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Zara B

@zaranosaur

8,663
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founder/director @AAT_transcribes | prev @phdisabled | tired | some kind of philosopher | she/her | @zaranosaur @mastodon .social

Joined September 2012
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@zaranosaur
Zara B
3 years
“Do you have COVID fatigue?” “no I have everybody thinks it’s fine disabled people are dying fatigue”
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@zaranosaur
Zara B
4 months
RT 🔒 re baby formula prices U.K.: Important to know: Iceland (the Supermarket) sells baby formula at cost price on principle. It's against the law to promote this discount, hence word of mouth. If you know someone who's struggling to buy formula you can point them there.
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@zaranosaur
Zara B
4 years
Incredible really how the British invented eugenics, then managed to somehow make it that the Nazis were blamed for inventing eugenics, so now we’re getting comparisons between Dawkins and Hitler but not Dawkins and Galton or Churchill or Beveridge
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@zaranosaur
Zara B
3 years
pay attention to the way this doctor negotiates their epistemic authority while recognising that of their patient
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@zaranosaur
Zara B
5 years
I don’t know who needs to hear this right now, but the way to “decolonize” a syllabus is not by adding 2-3 marginalised scholars to it. Why not try, idk, encouraging critical inquiry by giving readings on the historical role of your field in colonialism and imperialism?
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@zaranosaur
Zara B
8 months
PS the whole concept of public health—from sewers and toilets to running water and hand washing to vaccines and inoculations to ventilation—is predicated on a sufficiently large proportion of a population doing a thing to protect individuals within it, just saying!
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@zaranosaur
Zara B
4 years
Everyone realises that becoming housebound is itself a thing that involves grief and grieving right, even absent the global pandemic and it’s consequences, even absent the eugenics and racism? It takes a while to adjust and like other griefs, some days it flares, others not
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@zaranosaur
Zara B
8 months
… who has just woken from his nap an hour early after a shit nights sleep, crying
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@zaranosaur
Zara B
4 years
All UK PhD students need automatic extensions of six months, with funding extensions, and even if we can’t put our backs into achieving this for everyone, then it should at least happen for disabled and chronically ill students. Stop pretending things are normal.
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@zaranosaur
Zara B
8 months
meanwhile disabled and chronically ill people live in the world, including pregnant people who are de facto immunocompromised, and people like newborns and toddlers—and some of us live in countries w no mass vaccination plan, outdated boosters & none for under 5s anyway
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@zaranosaur
Zara B
4 years
Sorry to be a dick about this but if we’re listing minoritised groups can we remember to include disabled people? Disabled people exist in every single other minoritized group, and being disabled complicated and amplifies other marginalisations. Please.
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@zaranosaur
Zara B
8 months
this was just a little vent tweet about a shitty situation that has since gone out of network and while I appreciate the well wishes the replies are getting weird so I’m going to mute it now ✌🏻
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@zaranosaur
Zara B
3 years
Marcus Rashford is having to explain to the Prime Minister that poor families are unlikely to have access to a printer *pinches bridge of nose*
@MarcusRashford
Marcus Rashford
3 years
One thing I touched on with the Prime Minister was ways to course correct on the voucher scheme. If families can't access food consistently likelihood is they do not have access to a printer to print the vouchers at home. @10DowningStreet agreed to look into this.
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@zaranosaur
Zara B
3 years
[cn babies] So I have some news...
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@zaranosaur
Zara B
5 years
for nondisabled pals DID YOU KNOW that a fairly common feature of various flavours of disability & chronic illness is the physiological inability to handle well a) heat changes b) heat regulation c) extremes of heat so do pls check in on ur people who may be struggling w this
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@zaranosaur
Zara B
2 years
Look what I made! I've been quiet because it's been an eventful week: last Tuesday, my partner and I welcomed baby Rowan into the world, and we are delighted, if very, very tired.
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@zaranosaur
Zara B
5 years
isn’t this cat basically passing the mirror test? aren’t cats not supposed to be able to pass the mirror test?
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@zaranosaur
Zara B
4 years
good morning only to those of you who were already living the “stay home” life and an extra good morning to those of you still grumbling about the widespread mass adoption of precisely the access measures you struggled to obtain for years
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@zaranosaur
Zara B
9 months
🚨Reminder as the “are sick and disabled people fit for work?” conversation comes back with a vengeance, that the better question is: Are workplaces fit for disabled and chronically ill people to work in without compromising their health or with compromises to their access?
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@zaranosaur
Zara B
5 months
Imagine treating international students as cash cows to finance the whole institutional shebang while at the same time denying them a right to family while they pay through the nose to study here
@RishiSunak
Rishi Sunak
5 months
From today, the majority of foreign university students cannot bring family members to the UK. In 2024, we’re already delivering for the British people.
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@zaranosaur
Zara B
5 years
I don’t know who needs this reminder but PhD and student and academic mental health issues exist within a broader context of structural and systematic ableism and if you try and fix the former without the latter you’re gonna be hamstrung and, also, reproducing ableism
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@zaranosaur
Zara B
2 years
Who is teaching logic this term because Jorts has got you
@JortsTheCat
Jorts (and Jean)
2 years
Not every angel gives me slivers of pepperoni, but everyone who gives me slivers of pepperoni is an angel
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@zaranosaur
Zara B
3 years
Btw: it’s been clear that disabled people make up 2/3 of the COVID death toll since July 2020. UK press has yet again been ignoring state data and disabled people sounding alarm for 2/3 of a year.
@FinancialTimes
Financial Times
3 years
People with disabilities in England should be given priority for vaccination against Covid-19, according to leading charities. Here’s what you need to know 🔍
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@zaranosaur
Zara B
3 years
Replies to this with “it’s called the humanities” kind of forgetting how one can do an entire humanities degree and not encounter critical race theory or critical philosophy of race and I think we need to remember that
@SebDance
Seb Dance
3 years
When the dust settles we need to have a serious conversation about how we equip people with the critical analytical skills they need in an increasingly online world. Sifting fact from friction must be everyone’s core skill.
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@zaranosaur
Zara B
3 years
the argument from cultural ignorance for historical wrongdoing so often rests on ignoring condemnation from the time
@AsheLaura
Laura Ashe
3 years
Manchester Guardian 20 June 1899: a letter signed by 94 Oxford dons who wished to object to Cecil Rhodes' being given an honorary degree (though they couldn't block it because it had been awarded in 1892) on grounds of his actions in Africa in the intervening years.
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@zaranosaur
Zara B
3 years
“Why would the medical establishment not take Long Covid, a new iteration of post viral illness, seriously?” Is just a question I cannot parse without thinking about the widespread and systemic denialism of, well, other disabling post viral illness
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@zaranosaur
Zara B
4 years
I don’t know who else needs to hear this today but one reason disabled academics get annoyed by “grad school makes you sick” narratives is they just absent out those of us still in academia who arrived already sick or disabled or neurodivergent.
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@zaranosaur
Zara B
3 years
can I be pro vaccine but justifiably suspicious of the U.K. govt generally?
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@zaranosaur
Zara B
3 years
Oh see now I know that Marx was chronically ill and disabled, all the gags about him living off other people’s money really irritate me, anyone else get this
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@zaranosaur
Zara B
3 years
also while I’m here if your sincere view about the pandemic is “because mostly those who died were already chronically ill or disabled we should shut them in and the rest of us carry on as normal” you are a mealworm who deserves to be fed to a large spiny fish
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@zaranosaur
Zara B
4 years
My 70yo friend who works for a foodbank distribution centre just reminded me that a lot of the U.K. charity sector is staffed by volunteers who are 60+ or over and someone really needs to be writing and talking about this
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@zaranosaur
Zara B
4 years
So, here’s a shitty fact: the more time I’ve spent doing scholarship on racism from the U.K., knowing US scholars of race and racism, the more and more I have heard and seen that the U.K. is worse at talking and thinking about racism, and better at covering it up
@CorbynistaTeen
Hasan Patel 🌹
4 years
Stop saying British racism is “subtle.” Theresa May sent ‘go home’ vans to scare migrants, the government deported its own citizens to their deaths, black people are nine times more likely to be stopped and searched than white people... It’s not “hidden,” it’s been ignored.
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@zaranosaur
Zara B
4 years
@bennewmark Hi Ben, just a quick question, is this framing required by the syllabus? Because this representation seems to be teaching pupils that when a territory is colonised by a foreign power, the right question is “why didn’t indigenous people compromise?” not “why is colonisation bad?”
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@zaranosaur
Zara B
6 months
I get so cross with the constant attacks on disabled people for being out of work which almost never come with attacks on workplaces and employers for doing absolutely sod all to actually functionally or supportively recruit disabled people
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@zaranosaur
Zara B
5 years
Happy International Day of Disabled Persons, folks. Remember that disabled persons exist for the other 364 days a year too!
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@zaranosaur
Zara B
4 years
Can everyone who wants to #ClapForCarers #ClapForNHS today maybe take a moment to write to their MP insisting that the government provide full PPE and covid19 testing for all NHS workers please? Healthcare workers deserve our kindness, but they deserve just treatment too.
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@zaranosaur
Zara B
7 months
Confusing how “from the river to the sea” is framed as a call for genocide and that’s bad but indiscriminately levelling residential areas, hospitals and schools in a manner experts on genocide agree is actually tantamount to genocide is supposedly not bad
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@zaranosaur
Zara B
4 years
rhetorically tricky bc the conclusion for some seems to lean towards “oh shit well if British heroes did eugenics it can’t be so bad” rather than “oh no, WE are terrible, so very terrible”
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@zaranosaur
Zara B
3 years
that glorious TikTok genre that involves people being good models for things, like the person who does My Korean Dad or the person who does the school secretary videos
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@zaranosaur
Zara B
4 years
A fairly radical proposal for white academics: if you see your white colleagues engaging in racist behaviour, call it out. If you see your white colleagues doubling down on racist behaviour, call it out. Still doing racisms? Don't collaborate with them or promote their work.
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@zaranosaur
Zara B
4 years
If this is how hard it is for you after less than a week, please spend some time reflecting on how this might be for those of us for whom it had been months or years or decades or a lifetime. I’ve been mostly housebound this time around for 7-8 years.
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@zaranosaur
Zara B
4 years
Good morning to everyone except those advocating for the sacrifice of some “for the health of the herd”, you can have a fucking awful morning you eugenicist bastards
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@zaranosaur
Zara B
4 years
every so often it occurs to me to think about being mostly housebound for like seven years and how impossible it was to communicate the reality of that and how even postCOVID it’s still going to be impossible bc everyone is going to think they know exactly what i mean
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@zaranosaur
Zara B
4 years
A list of important texts for especially white people seeking to educate themselves about white supremacy in no particular order, from authors based in the U.K., Europe, US, Canada and Australia [thread]:
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@zaranosaur
Zara B
3 years
also the way that people who are doing COVID in “bored at home” style versus those of us who are “working our arses off at home like a blue arsed fly under difficult circumstances” act as if the latter group don’t exist
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@zaranosaur
Zara B
4 years
Sad that we haven’t collectively decided to just... try and work less, slow down, be flexible, as burnout piles on burnout and keeping up with work gets more and more difficult
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@zaranosaur
Zara B
3 years
Absolutely never forget that Dr Jenny Harries stood up and said that WHO advice on COVID was for “less developed countries than Britain” back in March 2020
@SchoolsWeek
Schools Week
3 years
Government deputy chief medical officer Dr Jenny Harries and DfE chief scientific adviser Osama Rahman are among witnesses giving evidence to @CommonsEd shortly on the science of school closures. Stay tuned for live tweets...
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@zaranosaur
Zara B
2 years
delighted that my copy of the Routledge international Handbook of Ignorance Studies (second edition) has arrived with my paper on ignorance as a more powerful explanatory framework than epistemic injustice in it, right next to Charles Mills’s classic, Global White Ignorance
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@zaranosaur
Zara B
3 years
Going to pester the crap out of everyone after all this to just include a remote feed even when f2f conferences and events come back, because honestly, capacity to be literally in the room should not be a demarcator for inclusion given all this
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@zaranosaur
Zara B
4 years
this is why this is so tricky for those of us already housebound, partly: part of what people who weren’t never seemed to get was just how hard it is to lose your mobility, to take outdoorness for granted (and if yr not high risk/symptomatic you still can), to be isolated always
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@zaranosaur
Zara B
4 years
Everyone who follows me, every chance you get, esp for UK academics, journalists, writers and thinkers: please challenge narratives that frame high risk as elderly only and forget/erase high risk workers, parents, people under 60. The measures are not protecting us. Ppl will die.
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@zaranosaur
Zara B
3 years
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@zaranosaur
Zara B
3 years
@lucyallan What aren’t you allowed to say, Lucy, that the category of pre existing conditions is so broad is included most people? Or is it that you’re not allowed to say that if pre existing conditions did mean disabled and chronically ill people, them dying would be fine?
@DrDomPimenta
Dr Dominic Pimenta MD
3 years
The 'pre-existing' conditions category is very very broad, and covers: 1) Any mental health diagnosis 2) A lot of common conditions that can range from trivial to severely life-limiting 3) And 72% labelled as 'OTHER' - which appears to be ANYTHING (e.g. gout, eczema etc) /2
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@zaranosaur
Zara B
3 years
Idk if this is inappropriate but it feels important: universities, already hotbeds of a refusal to countenance the lived challenges of chronic illness and disability, insisted on bringing students to campus to knowing mass infection was a major risk. These things are connected.
@Prof_GD_Foster
GaryFoster
3 years
We have deliberately infected a whole generation of UK uni students. The effects of Long COVID on our students will haunt those who allowed this for the rest of their lives.
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@zaranosaur
Zara B
6 months
this is part of the bit that makes it genocidal, fwiw
@BrandyLJensen
Brandy Jensen
6 months
bombing maternity wards, demolishing legislative buildings, leveling universities. clear intent is not just to cause maximum suffering in the present but to kill the future
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@zaranosaur
Zara B
3 years
in fact something that’s true and Idk if it’s well recognised: incapacitating chronic illness is so boring it’s very very boring to just be like “alright temper tantrum body, what now? Oh that now? Not ydays tantrum? Okay can I do some work please, even if not fun? No? fine”
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@zaranosaur
Zara B
4 years
Go easy on yourselves; expect to rage and weep and be more exhausted than you expect to be from “doing nothing”, then multiply that by whatever pandemic rage factor feels right, then add some more for good measure. But please don’t forget us or that for some of us this won’t end.
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@zaranosaur
Zara B
5 years
one of the hardest but best lessons of my early thirties is that if people can’t deal with the fact that sometimes I’m just various flavours of too sick to do things like even email for a week at a time, that’s okay! We don’t have to work together!
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@zaranosaur
Zara B
3 years
🤚🏻 professional transcriber who runs a transcription and closed captioning company here It takes, on average and for experienced transcribers, one work hour to transcribe 15 audio minutes from scratch, and around one work hour to edit 40 audio minutes of good quality transcript
@OtherBecky
Other Becky
3 years
Do you know how long it takes to transcribe a 47-minute audio piece that includes multiple speakers who sometimes talk over each other? I didn’t until yesterday. Now I do. Teachers & profs, PLEASE try to use resources that already have captions or transcripts.
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@zaranosaur
Zara B
4 years
@Nadjdaniela @Carlabela1 I am struggling to find the beginning of all of this but let me just say as an outside observer you doing this back and forth threatening WOC and Black women PhD students makes you look really bad, and not because of anything anyone said about you; your own tweets did that.
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@zaranosaur
Zara B
2 years
In a context where you can’t get a job, rent a flat, access health care without passports, govt tables removing them for “illegal drug users” (presumably not anyone over a certain income level taking coke tho)? hostile environment seems to be ramping up
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@zaranosaur
Zara B
4 years
Impressed with all the Americans in the replies being like “NO actually WE INVENTED EUGENICS” or making this about the US. First, this claim isn’t true, but yes the history is complicated. Second, why you all so keen to let the Brits off the hook here?
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@zaranosaur
Zara B
4 years
This is so heartbreaking, and I’m just going to call it what it is: racist eugenic ideology in action, embedded in existing medical infrastructure, costing young black women their lives, and their families a parent and partner. Shit.
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@zaranosaur
Zara B
4 years
Can introduce you to a body of scholarship on ignorance which reveals the myriad ways in which no matter how hard people try to tell some stories social norms as well as powerful actors often actively subvert such efforts to maintain existing narratives that serve the status quo?
@StevePhillipsMD
Steven Phillips, MD
4 years
Chronic illness patients often feel shame due to their illness. The antidote for shame is to tell your story.
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@zaranosaur
Zara B
2 years
@nanayasleeps @XiranJayZhao I’m still frankly shocked impressed and appalled that the British entry was like “tweed suit? That’ll do”
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@zaranosaur
Zara B
7 years
Folks realising US is now a far-right authoritarian regime, esp from UK: please look up stories of UK policies re immigration, disability.
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@zaranosaur
Zara B
4 years
Can I interest especially nondisabled people in my new song, it’s called: SYSTEMATIC CONCEPTUAL AND DISCURSIVE ERASURE OF WORKING AGE DISABLED PEOPLE IS ALREADY LETHAL and if we don’t take this moment to change it, people will die.
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@zaranosaur
Zara B
4 years
Thinking about this "live captions not transcripts" approach as everyone insists on doing realtime online materials and I just... I know realtime has benefits but you do know that if you opt for asynchronous pre-recorded materials you can cut costs and increase access?
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@zaranosaur
Zara B
3 years
Cannot wait for the day when instead of inviting Peter Singer to talk about moral dilemmas involving disabled people we instead asked disabled experts and disabled scholars and even disabled moral philosophers
@NYTmag
NYT Magazine
3 years
With limited vaccine doses available, and a pandemic claiming more lives every day, a complex moral calculus has begun. Five thinkers weigh the choices ahead.
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@zaranosaur
Zara B
4 years
We’d love to help you, but remember that watching you collectively and in the same moment join us in this place is hard for us, because we have fought so hard to be included from where we are and you have either refused, or ignored us, or minimised this challenge we now share.
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@zaranosaur
Zara B
7 years
While we're here, here's my annual reminder to academic staff to proactively pursue information & support on supporting disabled students
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@zaranosaur
Zara B
3 years
Increasingly want to replace the term “controversial ideas” with “dehumanising ideas” every time it appears in texts like these just to see what happens
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@zaranosaur
Zara B
3 years
big love to people unsure how they’ll adjust to social spaces and crowds and people again after a year of being stuck at home please all of you remember that anyone you know who lives as housebound even without the pandemic will probably encounter this, and probably repeatedly
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@zaranosaur
Zara B
3 years
the way that disabled people are conditioned to think that needing a week off at no notice because they just need an unexpected moment to put themselves back together emotionally or physically or mentally will preclude them from participation in projects makes my heart hurt
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@zaranosaur
Zara B
4 years
Hang on let me get this straight: the person who wanted desperately to platform Rudd at Oxford went and accused the Ox African and Caribbean society of organising a boycott because they didn’t attend Rudd’s event? Were they even protesting Rudd?
@OxfordACS
Oxford ACS
4 years
An official statement from the Oxford African and Caribbean Society regarding the Oxford UNWomen Society’s cancelled Amber Rudd event:
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@zaranosaur
Zara B
4 months
had a baby innit
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@zaranosaur
Zara B
3 years
Good morning! Remember that most accessibility measures in academic contexts—like remote access, closed captions and transcripts, audio versions of texts, breaks—benefit more than those who absolutely need them yet disabled scholars requesting them often lack support doing so
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@zaranosaur
Zara B
8 months
got some news to slide into the mix: I’m pregnant again and expecting a baby in late jan/early feb 2024 🥳🎉🤪
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@zaranosaur
Zara B
3 years
YES OMG PLEASE. Please. You don’t know for how many years how many of us struggled and failed to get remote access despite it being our only option.
@GaetaAmy
Amy Gaeta
3 years
As vaccines begin to roll out, I’d like to start a petition to now to keep a Zoom option available for every in-person event.
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@zaranosaur
Zara B
4 years
Read and sign your support, then please share with your networks: an open letter to UKRI, UK Universities and other Research Funders regarding specific reasonable adjustments for disabled, chronically ill and neurodivergent UK PhD students
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@zaranosaur
Zara B
4 years
Non flippant question but in all these debates about saving lives VERSUS saving the economy, what is the economic cost of enabling the death of up to 3% of a population and the long term disablement of those who get COVID and survive but are rendered chronically ill from it?
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@zaranosaur
Zara B
7 years
Solidarity with #JasonOsamedeOkundaye , and a call for UK academics to do the same. Identifying & calling out racism is not racism.
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@zaranosaur
Zara B
4 years
When everything settles, you get to go back to your outdoorness, to whatever degree thats possible or safe given your local contexts. We will still be here, inside, resting and keeping occupied, keeping each other company, building careers and lives and families like this.
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@zaranosaur
Zara B
3 years
this might make me sound like a crank but “it’s spreading more because it’s mutated!” sounds like someone in the govt PR office saw a good opportunity to take a truth and blow it up to avoid the other explanation which is that it’s spread because U.K. govt has fucked it up
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@zaranosaur
Zara B
7 months
Reading this and thinking about how the cost of inclusion is the adoption of a pretence of impartiality, where what’s supposed to be “impartial” is really just whatever is supposed to be rationally defensible to and within the status quo
@Lowkey0nline
Lowkey
7 months
Ofcom director Fadzai Madzingira has been suspended from her job for liking pro-Palestinian posts on her private Instagram account.
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@zaranosaur
Zara B
4 years
this is the best picture of a duck I’ve ever seen, presumably in the universe
@gayspud
Costco Hotdog
4 years
Here’s a duck!
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@zaranosaur
Zara B
2 years
jorts said workers rights including disabled chronically ill mad and ND workers (extrapolating from the post updates)
@JortsTheCat
Jorts (and Jean)
2 years
Everyone deserves to be respected and valued. Love to every worker cat just doing the best they can.
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@zaranosaur
Zara B
3 years
the way that so many people with long term ME and Fibro are pinning hopes on the increasing awareness of Long Covid to get them to a place where they’re believed in is just heartbreaking to see and completely understandable
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@zaranosaur
Zara B
2 years
Asking politely for people to acknowledge the contradiction or implicit assumptions behind “COVID is only risky for vulnerable populations” and “mask wearers are just doing so out of anxiety” maybe… maybe they’re in those “vulnerable populations” & still need to go out?
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@zaranosaur
Zara B
4 years
Its not just that Cummings and Johnson stopped you from seeing you dying parents, loves; its that they foresaw that they would die, could do something to prevent it, and yet allowed these deaths, your family’s deaths, to happen anyway, and told you to buckle up for it.
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@zaranosaur
Zara B
6 years
perhaps this is a useful time for a periodic reminder that your chronically ill and disabled friends may be living in lurching terrains of too-sick-to-do-a-thing followed by oh-shit-better-do-the-now-or-nearly-overdue-thing
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@zaranosaur
Zara B
3 years
Please just unfollow me if you think Long Covid is fake or psychosomatic, same for ME, fibromyalgia. Just go.
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@zaranosaur
Zara B
3 years
yes this is a nudge to people who consume lots of mainstream media during a time of client journalism to stop repeating media and state narratives without taking just a minute to think about them, especially to disabled people
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@zaranosaur
Zara B
5 years
@NatalieJester @lukestamps disabled academic twitter has to answer this q every few months. If ur reply is “but ofc I don’t ban laptops for ppl who have official permission to use them bc disabled,” consider: won’t doing that out them to their peers? Will their peers stigmatise them for “special stuff”?
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@zaranosaur
Zara B
3 years
feels like mid March 2020 again wrt to COVID except this time there’s just a settled acceptance of 100 deaths a day and very little impetus to do anything about it except seemingly from disabled and chronically ill people
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@zaranosaur
Zara B
4 years
anyone teaching politics or ethics this term who isn’t also teaching eugenics with arguments from disability studies and disability justice, a reminder to yknow, review that
@AdamBienkov
Adam Bienkov
4 years
Tony Abbott says governments should be less like doctors and more like “health economists” who ask “uncomfortable questions” about “the level of deaths we might have to live with”.
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@zaranosaur
Zara B
4 years
It is both telling and immensely frustrating to me that disabled activists are having to explain to philosophers why the sociopolitical context of claims about disability, and sites of those claims, and whether those claims recycle harmful tropes, matter.
3
41
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@zaranosaur
Zara B
3 years
What people mean when they say that the world is structured by a medicalised conception of disability
@AlexReeveGivens
AlexandraReeveGivens
3 years
Clothing ads showing models in wheelchairs were rejected b/c an algorithm assumes the ad is selling medical equipment, not nice clothes. This article perfectly captures the need for inclusive design in algorithmic tools. @CenDemTech @AAPD
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@zaranosaur
Zara B
3 years
it’s good that the disability community seems to be making explicit links between colonialism and disablement and fingers crossed we can keep this up to reckon with the deep relations between disability, white supremacy and settler colonialism generally
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28
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