RT 🔒 re baby formula prices U.K.:
Important to know: Iceland (the Supermarket) sells baby formula at cost price on principle. It's against the law to promote this discount, hence word of mouth. If you know someone who's struggling to buy formula you can point them there.
Incredible really how the British invented eugenics, then managed to somehow make it that the Nazis were blamed for inventing eugenics, so now we’re getting comparisons between Dawkins and Hitler but not Dawkins and Galton or Churchill or Beveridge
I don’t know who needs to hear this right now, but the way to “decolonize” a syllabus is not by adding 2-3 marginalised scholars to it. Why not try, idk, encouraging critical inquiry by giving readings on the historical role of your field in colonialism and imperialism?
PS the whole concept of public health—from sewers and toilets to running water and hand washing to vaccines and inoculations to ventilation—is predicated on a sufficiently large proportion of a population doing a thing to protect individuals within it, just saying!
Everyone realises that becoming housebound is itself a thing that involves grief and grieving right, even absent the global pandemic and it’s consequences, even absent the eugenics and racism? It takes a while to adjust and like other griefs, some days it flares, others not
All UK PhD students need automatic extensions of six months, with funding extensions, and even if we can’t put our backs into achieving this for everyone, then it should at least happen for disabled and chronically ill students.
Stop pretending things are normal.
meanwhile disabled and chronically ill people live in the world, including pregnant people who are de facto immunocompromised, and people like newborns and toddlers—and some of us live in countries w no mass vaccination plan, outdated boosters & none for under 5s anyway
Sorry to be a dick about this but if we’re listing minoritised groups can we remember to include disabled people?
Disabled people exist in every single other minoritized group, and being disabled complicated and amplifies other marginalisations.
Please.
this was just a little vent tweet about a shitty situation that has since gone out of network and while I appreciate the well wishes the replies are getting weird so I’m going to mute it now ✌🏻
One thing I touched on with the Prime Minister was ways to course correct on the voucher scheme. If families can't access food consistently likelihood is they do not have access to a printer to print the vouchers at home.
@10DowningStreet
agreed to look into this.
for nondisabled pals DID YOU KNOW that a fairly common feature of various flavours of disability & chronic illness is the physiological inability to handle well a) heat changes b) heat regulation c) extremes of heat so do pls check in on ur people who may be struggling w this
Look what I made!
I've been quiet because it's been an eventful week: last Tuesday, my partner and I welcomed baby Rowan into the world, and we are delighted, if very, very tired.
good morning only to those of you who were already living the “stay home” life and an extra good morning to those of you still grumbling about the widespread mass adoption of precisely the access measures you struggled to obtain for years
🚨Reminder as the “are sick and disabled people fit for work?” conversation comes back with a vengeance, that the better question is:
Are workplaces fit for disabled and chronically ill people to work in without compromising their health or with compromises to their access?
Imagine treating international students as cash cows to finance the whole institutional shebang while at the same time denying them a right to family while they pay through the nose to study here
From today, the majority of foreign university students cannot bring family members to the UK.
In 2024, we’re already delivering for the British people.
I don’t know who needs this reminder but PhD and student and academic mental health issues exist within a broader context of structural and systematic ableism and if you try and fix the former without the latter you’re gonna be hamstrung and, also, reproducing ableism
Btw: it’s been clear that disabled people make up 2/3 of the COVID death toll since July 2020. UK press has yet again been ignoring state data and disabled people sounding alarm for 2/3 of a year.
People with disabilities in England should be given priority for vaccination against Covid-19, according to leading charities. Here’s what you need to know 🔍
Replies to this with “it’s called the humanities” kind of forgetting how one can do an entire humanities degree and not encounter critical race theory or critical philosophy of race and I think we need to remember that
When the dust settles we need to have a serious conversation about how we equip people with the critical analytical skills they need in an increasingly online world. Sifting fact from friction must be everyone’s core skill.
Manchester Guardian 20 June 1899: a letter signed by 94 Oxford dons who wished to object to Cecil Rhodes' being given an honorary degree (though they couldn't block it because it had been awarded in 1892) on grounds of his actions in Africa in the intervening years.
“Why would the medical establishment not take Long Covid, a new iteration of post viral illness, seriously?” Is just a question I cannot parse without thinking about the widespread and systemic denialism of, well, other disabling post viral illness
I don’t know who else needs to hear this today but one reason disabled academics get annoyed by “grad school makes you sick” narratives is they just absent out those of us still in academia who arrived already sick or disabled or neurodivergent.
Oh see now I know that Marx was chronically ill and disabled, all the gags about him living off other people’s money really irritate me, anyone else get this
also while I’m here if your sincere view about the pandemic is “because mostly those who died were already chronically ill or disabled we should shut them in and the rest of us carry on as normal” you are a mealworm who deserves to be fed to a large spiny fish
My 70yo friend who works for a foodbank distribution centre just reminded me that a lot of the U.K. charity sector is staffed by volunteers who are 60+ or over and someone really needs to be writing and talking about this
So, here’s a shitty fact: the more time I’ve spent doing scholarship on racism from the U.K., knowing US scholars of race and racism, the more and more I have heard and seen that the U.K. is worse at talking and thinking about racism, and better at covering it up
Stop saying British racism is “subtle.” Theresa May sent ‘go home’ vans to scare migrants, the government deported its own citizens to their deaths, black people are nine times more likely to be stopped and searched than white people... It’s not “hidden,” it’s been ignored.
@bennewmark
Hi Ben, just a quick question, is this framing required by the syllabus? Because this representation seems to be teaching pupils that when a territory is colonised by a foreign power, the right question is “why didn’t indigenous people compromise?” not “why is colonisation bad?”
I get so cross with the constant attacks on disabled people for being out of work which almost never come with attacks on workplaces and employers for doing absolutely sod all to actually functionally or supportively recruit disabled people
Can everyone who wants to
#ClapForCarers
#ClapForNHS
today maybe take a moment to write to their MP insisting that the government provide full PPE and covid19 testing for all NHS workers please?
Healthcare workers deserve our kindness, but they deserve just treatment too.
Confusing how “from the river to the sea” is framed as a call for genocide and that’s bad but indiscriminately levelling residential areas, hospitals and schools in a manner experts on genocide agree is actually tantamount to genocide is supposedly not bad
rhetorically tricky bc the conclusion for some seems to lean towards “oh shit well if British heroes did eugenics it can’t be so bad” rather than “oh no, WE are terrible, so very terrible”
that glorious TikTok genre that involves people being good models for things, like the person who does My Korean Dad or the person who does the school secretary videos
A fairly radical proposal for white academics: if you see your white colleagues engaging in racist behaviour, call it out. If you see your white colleagues doubling down on racist behaviour, call it out. Still doing racisms? Don't collaborate with them or promote their work.
If this is how hard it is for you after less than a week, please spend some time reflecting on how this might be for those of us for whom it had been months or years or decades or a lifetime.
I’ve been mostly housebound this time around for 7-8 years.
Good morning to everyone except those advocating for the sacrifice of some “for the health of the herd”, you can have a fucking awful morning you eugenicist bastards
every so often it occurs to me to think about being mostly housebound for like seven years and how impossible it was to communicate the reality of that and how even postCOVID it’s still going to be impossible bc everyone is going to think they know exactly what i mean
A list of important texts for especially white people seeking to educate themselves about white supremacy in no particular order, from authors based in the U.K., Europe, US, Canada and Australia [thread]:
also the way that people who are doing COVID in “bored at home” style versus those of us who are “working our arses off at home like a blue arsed fly under difficult circumstances” act as if the latter group don’t exist
Sad that we haven’t collectively decided to just... try and work less, slow down, be flexible, as burnout piles on burnout and keeping up with work gets more and more difficult
Absolutely never forget that Dr Jenny Harries stood up and said that WHO advice on COVID was for “less developed countries than Britain” back in March 2020
Government deputy chief medical officer Dr Jenny Harries and DfE chief scientific adviser Osama Rahman are among witnesses giving evidence to
@CommonsEd
shortly on the science of school closures. Stay tuned for live tweets...
delighted that my copy of the Routledge international Handbook of Ignorance Studies (second edition) has arrived with my paper on ignorance as a more powerful explanatory framework than epistemic injustice in it, right next to Charles Mills’s classic, Global White Ignorance
Going to pester the crap out of everyone after all this to just include a remote feed even when f2f conferences and events come back, because honestly, capacity to be literally in the room should not be a demarcator for inclusion given all this
this is why this is so tricky for those of us already housebound, partly: part of what people who weren’t never seemed to get was just how hard it is to lose your mobility, to take outdoorness for granted (and if yr not high risk/symptomatic you still can), to be isolated always
Everyone who follows me, every chance you get, esp for UK academics, journalists, writers and thinkers: please challenge narratives that frame high risk as elderly only and forget/erase high risk workers, parents, people under 60. The measures are not protecting us. Ppl will die.
@lucyallan
What aren’t you allowed to say, Lucy, that the category of pre existing conditions is so broad is included most people? Or is it that you’re not allowed to say that if pre existing conditions did mean disabled and chronically ill people, them dying would be fine?
The 'pre-existing' conditions category is very very broad, and covers:
1) Any mental health diagnosis
2) A lot of common conditions that can range from trivial to severely life-limiting
3) And 72% labelled as 'OTHER' - which appears to be ANYTHING (e.g. gout, eczema etc) /2
Idk if this is inappropriate but it feels important: universities, already hotbeds of a refusal to countenance the lived challenges of chronic illness and disability, insisted on bringing students to campus to knowing mass infection was a major risk. These things are connected.
We have deliberately infected a whole generation of UK uni students. The effects of Long COVID on our students will haunt those who allowed this for the rest of their lives.
bombing maternity wards, demolishing legislative buildings, leveling universities. clear intent is not just to cause maximum suffering in the present but to kill the future
in fact something that’s true and Idk if it’s well recognised:
incapacitating chronic illness is so boring
it’s very very boring to just be like “alright temper tantrum body, what now? Oh that now? Not ydays tantrum? Okay can I do some work please, even if not fun? No? fine”
Go easy on yourselves; expect to rage and weep and be more exhausted than you expect to be from “doing nothing”, then multiply that by whatever pandemic rage factor feels right, then add some more for good measure. But please don’t forget us or that for some of us this won’t end.
one of the hardest but best lessons of my early thirties is that if people can’t deal with the fact that sometimes I’m just various flavours of too sick to do things like even email for a week at a time, that’s okay! We don’t have to work together!
🤚🏻 professional transcriber who runs a transcription and closed captioning company here
It takes, on average and for experienced transcribers, one work hour to transcribe 15 audio minutes from scratch, and around one work hour to edit 40 audio minutes of good quality transcript
Do you know how long it takes to transcribe a 47-minute audio piece that includes multiple speakers who sometimes talk over each other?
I didn’t until yesterday. Now I do.
Teachers & profs, PLEASE try to use resources that already have captions or transcripts.
@Nadjdaniela
@Carlabela1
I am struggling to find the beginning of all of this but let me just say as an outside observer you doing this back and forth threatening WOC and Black women PhD students makes you look really bad, and not because of anything anyone said about you; your own tweets did that.
In a context where you can’t get a job, rent a flat, access health care without passports, govt tables removing them for “illegal drug users” (presumably not anyone over a certain income level taking coke tho)? hostile environment seems to be ramping up
Impressed with all the Americans in the replies being like “NO actually WE INVENTED EUGENICS” or making this about the US. First, this claim isn’t true, but yes the history is complicated. Second, why you all so keen to let the Brits off the hook here?
This is so heartbreaking, and I’m just going to call it what it is: racist eugenic ideology in action, embedded in existing medical infrastructure, costing young black women their lives, and their families a parent and partner. Shit.
Can introduce you to a body of scholarship on ignorance which reveals the myriad ways in which no matter how hard people try to tell some stories social norms as well as powerful actors often actively subvert such efforts to maintain existing narratives that serve the status quo?
Can I interest especially nondisabled people in my new song, it’s called:
SYSTEMATIC CONCEPTUAL AND DISCURSIVE ERASURE OF WORKING AGE DISABLED PEOPLE IS ALREADY LETHAL and if we don’t take this moment to change it, people will die.
Thinking about this "live captions not transcripts" approach as everyone insists on doing realtime online materials and I just... I know realtime has benefits but you do know that if you opt for asynchronous pre-recorded materials you can cut costs and increase access?
Cannot wait for the day when instead of inviting Peter Singer to talk about moral dilemmas involving disabled people we instead asked disabled experts and disabled scholars and even disabled moral philosophers
With limited vaccine doses available, and a pandemic claiming more lives every day, a complex moral calculus has begun. Five thinkers weigh the choices ahead.
We’d love to help you, but remember that watching you collectively and in the same moment join us in this place is hard for us, because we have fought so hard to be included from where we are and you have either refused, or ignored us, or minimised this challenge we now share.
Increasingly want to replace the term “controversial ideas” with “dehumanising ideas” every time it appears in texts like these just to see what happens
big love to people unsure how they’ll adjust to social spaces and crowds and people again after a year of being stuck at home
please all of you remember that anyone you know who lives as housebound even without the pandemic will probably encounter this, and probably repeatedly
the way that disabled people are conditioned to think that needing a week off at no notice because they just need an unexpected moment to put themselves back together emotionally or physically or mentally will preclude them from participation in projects makes my heart hurt
Hang on let me get this straight: the person who wanted desperately to platform Rudd at Oxford went and accused the Ox African and Caribbean society of organising a boycott because they didn’t attend Rudd’s event? Were they even protesting Rudd?
Good morning! Remember that most accessibility measures in academic contexts—like remote access, closed captions and transcripts, audio versions of texts, breaks—benefit more than those who absolutely need them yet disabled scholars requesting them often lack support doing so
Read and sign your support, then please share with your networks: an open letter to UKRI, UK Universities and other Research Funders regarding specific reasonable adjustments for disabled, chronically ill and neurodivergent UK PhD students
Non flippant question but in all these debates about saving lives VERSUS saving the economy, what is the economic cost of enabling the death of up to 3% of a population and the long term disablement of those who get COVID and survive but are rendered chronically ill from it?
When everything settles, you get to go back to your outdoorness, to whatever degree thats possible or safe given your local contexts.
We will still be here, inside, resting and keeping occupied, keeping each other company, building careers and lives and families like this.
this might make me sound like a crank but “it’s spreading more because it’s mutated!” sounds like someone in the govt PR office saw a good opportunity to take a truth and blow it up to avoid the other explanation which is that it’s spread because U.K. govt has fucked it up
Reading this and thinking about how the cost of inclusion is the adoption of a pretence of impartiality, where what’s supposed to be “impartial” is really just whatever is supposed to be rationally defensible to and within the status quo
the way that so many people with long term ME and Fibro are pinning hopes on the increasing awareness of Long Covid to get them to a place where they’re believed in is just heartbreaking to see and completely understandable
Asking politely for people to acknowledge the contradiction or implicit assumptions behind “COVID is only risky for vulnerable populations” and “mask wearers are just doing so out of anxiety”
maybe… maybe they’re in those “vulnerable populations” & still need to go out?
Its not just that Cummings and Johnson stopped you from seeing you dying parents, loves; its that they foresaw that they would die, could do something to prevent it, and yet allowed these deaths, your family’s deaths, to happen anyway, and told you to buckle up for it.
perhaps this is a useful time for a periodic reminder that your chronically ill and disabled friends may be living in lurching terrains of too-sick-to-do-a-thing followed by oh-shit-better-do-the-now-or-nearly-overdue-thing
yes this is a nudge to people who consume lots of mainstream media during a time of client journalism to stop repeating media and state narratives without taking just a minute to think about them, especially to disabled people
@NatalieJester
@lukestamps
disabled academic twitter has to answer this q every few months. If ur reply is “but ofc I don’t ban laptops for ppl who have official permission to use them bc disabled,” consider: won’t doing that out them to their peers? Will their peers stigmatise them for “special stuff”?
feels like mid March 2020 again wrt to COVID except this time there’s just a settled acceptance of 100 deaths a day and very little impetus to do anything about it except seemingly from disabled and chronically ill people
anyone teaching politics or ethics this term who isn’t also teaching eugenics with arguments from disability studies and disability justice, a reminder to yknow, review that
Tony Abbott says governments should be less like doctors and more like “health economists” who ask “uncomfortable questions” about “the level of deaths we might have to live with”.
It is both telling and immensely frustrating to me that disabled activists are having to explain to philosophers why the sociopolitical context of claims about disability, and sites of those claims, and whether those claims recycle harmful tropes, matter.
Clothing ads showing models in wheelchairs were rejected b/c an algorithm assumes the ad is selling medical equipment, not nice clothes. This article perfectly captures the need for inclusive design in algorithmic tools.
@CenDemTech
@AAPD
it’s good that the disability community seems to be making explicit links between colonialism and disablement and fingers crossed we can keep this up to reckon with the deep relations between disability, white supremacy and settler colonialism generally