the way that so many people with long term ME and Fibro are pinning hopes on the increasing awareness of Long Covid to get them to a place where they’re believed in is just heartbreaking to see and completely understandable
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no criticism, just sadness on the one hand, interest and curiosity as someone working on the social epistemology of systemic denialism and its effects
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credence is so crucial to material recognition including clinically and socially and politically
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eventually I may try and gather up everything that’s been written about how patients with conditions that reveal clinical ignorance get to be patients w conditions that are subject to active and resilient clinical and political denialism, who knows
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@zaranosaur
I’m in that pile of notveryhopefulhopefuls - & concur that we’re still receiving dismissive attitudes in comparison to Long Coviders, some of whom are also prone to being sniffy about us, as if they somehow have a superior condition, which is quite ironic Abelism.
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