Phil Green @pjgreen Twitter profile

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Phil Green

5 years

Grateful to @PeteATurner @jonlg69 and @EchoinRamadi for the opportunity to share my story on @BreakItDownshow #BIDS #IAMALS #NoWhiteFlags #MADALS

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Phil Green

@pjgreen

2 years

Huge shoutout to the Coronado Lifeguards for use of their beach power wheelchair yesterday! It gave me some independence at the beach that #ALS had taken. #NotTodayALS #NoWhiteFlags

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Phil Green

@pjgreen

1 year

Had lunch at Buffalo Wild Wings today with my 19 year old son. As he was attempting to pay our bill, our server told us that it had been picked up by a generous gentleman two tables over who had watched my son patiently feed me. Thank you kind sir! #RandomActOfKindness

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Phil Green

@pjgreen

1 year

Was able to get in the pool for the first time this year. It felt great to float around and stretch my legs. #NotTodayALS

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Phil Green

@pjgreen

3 years

Over the past 2+ weeks, I’ve been doing pool exercises. I struggled to even stand when I started & today I’m knocking out squats in reps of 10! #NoWhiteFlags #NotTodayALS

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Phil Green

@pjgreen

2 years

Yesterday, I spent #LouGehrigDay in a clinic getting #NurOwn . Today, I attended my youngest son’s 8th grade promotion ceremony. Next week, I will be at my oldest son’s high school graduation. I don’t believe that I would be here to do either without NurOwn!

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Phil Green

@pjgreen

3 years

Six years ago, I was on top of the world and oblivious to #ALS . Today, I am no longer oblivious to ALS but still feel like I am on top of the world. #NoWhiteFlags

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Phil Green

@pjgreen

8 months

5 years ago today, I was diagnosed with #ALS . I haven’t walked in years but I am still breathing on my own and eating whatever I want. I attribute much of what I can still do today to the six treatments of #NurOwn that I received under EAP.

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Phil Green

@pjgreen

2 years

ALSland has lost a giant & unrelenting force to do things better, be more patient-centric & on the #ALS clock. I already miss you! You have been a best friend & my partner-in-crime! I will continue to make good trouble for you! I love you @sandymorris333 !

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Phil Green

@pjgreen

4 years

2 years ago today, I was diagnosed with ALS & given 2-5 years to live. Since that day, I have partnered with other amazing people to move mountains in the fight against ALS, & made sure that the important people in my life know how much I love them. #EndALS #Diagnosiversary

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Phil Green

@pjgreen

3 years

Just standing around in the pool today. #NotTodayALS #NoWhiteFlags #NurOwnWorks

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Phil Green

@pjgreen

4 years

I’m a 50 y.o. husband to an amazing woman & father to 4 wonderful children, living in Temecula, CA. Was a National Champ with @UW_Football & played semi-pro soccer before a successful 25+ career in technology. Was diagnosed with ALS in August 2018. #ALSAwarenessMonth #Day1

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Phil Green

@pjgreen

2 years

Same clinic. Same respiratory therapist. Same spirometer. Breathing increased by 13% after #NurOwn treatment. 9/13/21: FVC 34% 12/13/21: FVC 32% 3/30/22: NurOwn Treatment 4/11/22: FVC 45% #NurOwnWorks #LivingProof #RealWorldEvidence

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Phil Green

@pjgreen

3 years

Six months ago, I couldn’t even grab & hold onto the receiving end of the seatbelt let alone buckle it! #NurOwn #NurOwnWorks

Nicole Cimbura

@nicolecimbura

3 years

This is my friend @pjgreen . He can now buckle his own seat belt. This was not possible a few months ago! Guess what changed? He received #NurOwn thru #EAP . His function improved, we can prove it! Now @US_FDA approve it! #dyingwaiting #drugsinbodies #NurOwnWorks

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Phil Green

@pjgreen

2 years

We need to stop pretending like we fully understand #ALS when it comes to evaluating efficacy of ALS therapies in clinical trials. We should be celebrating a treatment effect in some people! Those of us with ALS are fading away while healthy people ask for more data & trials.

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Phil Green

@pjgreen

2 years

It was Ferrari vs Yugo but fun nonetheless. Not today #ALS ! #NoWhiteFlags .

Brian Wallach

@bsw5020

2 years

Stop me if you heard this one: Two guys with ALS roll out of a party in their wheelchairs in New Orleans. One, @pjgreen , turns to the other, me, and says, “shall we race?”

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Phil Green

@pjgreen

2 years

June 22, 2021 I had my last #NurOwn treatment. ALSFRS-R was 28 (up from 26 at 1st #EAP treatment on 3/2) & remained there until I started declining at the end of Nov. I’m now at 25 but get my 4th NurOwn EAP treatment next Wed. Maybe I’ll be able to take my pills again by myself!

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Phil Green

@pjgreen

2 years

There are too many orgs in #ALS Land that are not working together & appear to be more about feeding egos and less about really making a difference. Imagine where we would be if we all got in the same boat & rowed in the same direction, and stopped duplicating efforts.

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Phil Green

@pjgreen

2 years

People with #ALS will try anything that may help us slow decline of function. We take an insane amount of pills & supplements every day hoping that maybe one of them will make a difference. We will never know if any of them are helping or not, but what other options do we have?

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Phil Green

@pjgreen

2 years

If you have not been diagnosed with #ALS , please stop speaking on behalf of people living with this uniquely cruel disease. You don’t speak for me.

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Phil Green

@pjgreen

2 years

If you have a say in whether an #ALS therapy gets approved by @US_FDA , you should be required to spend a day with someone living with ALS. Maybe that would be the persuasion you need!

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Phil Green

@pjgreen

4 years

Our children can and will change the world! #CuresForAll @iamalsorg

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Phil Green

@pjgreen

2 years

Today is #LouGehrigDay & it is so unbelievable to see how June 2nd is bringing the #ALS Community together to celebrate Lou, those living with ALS and those we have lost to ALS. I am so glad we didn’t listen to those that said we couldn’t make it happen. #LG4Day

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Phil Green

@pjgreen

3 years

A 6-foot ramp, a shower chair & a little ingenuity and now I’m able to enjoy the pool this summer! #NoWhiteFlags

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Phil Green

@pjgreen

2 months

ALS is an expensive disease that isn’t as rare as some think. I appreciate the focus on solving the ALS mystery & finding effective therapies, but there’s too much invested on CURES & not nearly enough on everyday CARE support for PLWALS. The current imbalance is unacceptable!

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Phil Green

@pjgreen

1 year

@Detroit_Redhead ALS definitely commands humility. I try to get out and do as much as I can so that normal people see the reality of ALS.

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Phil Green

@pjgreen

2 months

After living with ALS for 5 1/2 years, I’ve noticed something… When you are early in your diagnosis & strongest, you are focused on treatments & efforts supporting research that may yield therapies. As you get weaker physically & mentally, your priority becomes care.

Phil Green

@pjgreen

2 months

ALS is an expensive disease that isn’t as rare as some think. I appreciate the focus on solving the ALS mystery & finding effective therapies, but there’s too much invested on CURES & not nearly enough on everyday CARE support for PLWALS. The current imbalance is unacceptable!

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Phil Green

@pjgreen

4 years

Successfully traveled across the country by myself with my portable power wheelchair. DC, I hope you’re ready for a whole lot of #ALS talk this week! #EndALS

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Phil Green

@pjgreen

3 years

I was lucky enough to get access to an investigational therapy that not only paused my disease progression, but also gave me back some lost function. @US_FDA says the therapy didn’t meet its p-value in clinical trial, but it worked for me… it met the me-value! #NurOwnWorks

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Phil Green

@pjgreen

2 years

If a therapy shows a treatment effect, that is huge in #ALS . Post-hoc analysis can give us clues who would benefit from that treatment. If that subgroup is almost everyone diagnosed with ALS, what are waiting for? That therapy needs to get in people! #NurOwn

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Phil Green

@pjgreen

2 years

At the iconic @HollywoodBowl tonight to see @NRateliff . #NotTodayALS #NoWhiteFlags

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Phil Green

@pjgreen

7 months

If you are one of those people that believe #NurOwn doesn’t work, you are effectively calling me a liar. Think about that for a minute. You probably should reevaluate who you are listening to. I would trust someone who knows firsthand what this therapy can do over anyone else.

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Phil Green

@pjgreen

4 years

As a person living with ALS who can no longer walk, traveling by air is a stressful event that I dread. Traveled last week from/to LAX & DFW on @AmericanAir with my son. AA was so helpful & accommodating that I wanted to publicly acknowledge their compassion & service. Thank you!

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Phil Green

@pjgreen

11 months

#LouGehrigDay with @Dodgers

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Phil Green

@pjgreen

3 years

Had an amazing trip to Seattle to be at @HunterGreen2022 ’s Senior Night game on Friday. Huge thank you to @blaircaseynola for traveling with me!

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Phil Green

@pjgreen

2 years

Happy Birthday to my friend @SteveGleason who inspires to do as much as I can while I can for those living with #ALS . #NoWhiteFlags

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Phil Green

@pjgreen

2 months

For those that don’t know, I am actively doing something to improve clinical outcomes in #ALS . I will be co-chairing a global effort to develop better clinical outcome measures for #ALS . #ActionsSpeak

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Phil Green

@pjgreen

7 months

We need to prioritize the development of #ALS outcome measures that can accurately give us answers about therapeutic efficacy. As long as ALSFRS-R is used in ALS clinical trials, we should expect results that are inconclusive and possibly incorrect.

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Phil Green

@pjgreen

4 years

Honored to be at today’s Congressional Gold Medal Ceremony for @SteveGleason ! #NoWhiteFlags

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Phil Green

@pjgreen

2 years

#ALS is an extremely heterogeneous disease, yet studies often lump us together using “mean” & “median” values for analysis. This is like saying all Toyotas get the same MPG regardless of model & year. We need more precision in ALS so a Prius doesn’t get compared to a 4Runner.

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Phil Green

@pjgreen

3 years

Imagine where #ALS would be if @US_FDA looked for reasons why an ALS therapy should be approved, rather than why it shouldn’t. #NurOwn #tofersen #AMX0035

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Phil Green

@pjgreen

3 years

Seeing posts from people & orgs calling the NurOwn results “disappointing” or a “failure” because the data indicate the therapy is most effective for people with motor neurons to save. How is helping some people “disappointing” or a “failure” in ALS? This is a huge win for ALS!

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Phil Green

@pjgreen

8 months

Someone with #ALS would never say that “hope devastates” because we are already facing the most devastating future one could have. All we have is hope! Why are some people so committed to stealing hope from the people that need it most? Time to check yourself.

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Phil Green

@pjgreen

3 years

On this Thanksgiving, I am thankful for all those relentless warriors living with ALS that fight each and every day to make progress in a disease that is 100% fatal with no effective treatments (approved) or cures.

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Phil Green

@pjgreen

11 months

Honored to be part of #LouGehrigDay with the @Dodgers and @Yankees on June 2nd. Thank you @MLB for being such a great partner in our quest to cure #ALS .

Augie's Quest

@augiesquest

11 months

Thank you, @pjgreen for representing the ALS community at the Dodgers game against the Yankees for #LouGehrigDay .

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Phil Green

@pjgreen

1 year

Some people are critical of me & my friends posting about our positive experiences with #NurOwn , saying that you can’t believe what you read on social media. The irony is not lost on me that these critics use the same social media to spout their uninformed opinions to raise doubt

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Phil Green

@pjgreen

3 years

Would love to share my story with @CBSLA about how getting #NurOwn under #EAP has helped not only pause my #ALS progression, but how I am now able do things I had lost the ability to do… like buckle/unbuckle my seatbelt, take my pills by myself, & then there’s this👇🏻!

Sandra Abrevaya

@sabrevaya

3 years

The @CBSSunday piece is only the beginning. If you are a patient or caregiver and willing to do TV, call your local CBS station assignment editor offering to do an interview & they can use your interview with part of the @CBSSunday piece. @EvanCampa locked in Nashville @CBSNews /1

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Phil Green

@pjgreen

11 months

Video of my son Parker throwing out the first pitch at the Dodgers game against the Yankees on Lou Gehrig Day. #LouGehrigDay

Dodgers pregame: Steve Garvey umpires first pitch on Lou Gehrig Day...

Los Angeles Dodgers legend Steve Garvey umpired the ceremonial first pitch on MLB's third annual Lou Gehrig Day in effort to raise awareness for ALS.#DodgerB...

www.youtube.com

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Phil Green

@pjgreen

1 year

We lost a great one yesterday. ⁦ @AugieNieto ⁩ was a friend & mentor who accepted me into the ⁦ @augiesquest ⁩ Family from day 1. We will proudly continue your Quest to cure ALS!

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Phil Green

@pjgreen

4 years

Been married to this amazing woman for 7 years today (been together for almost 14 years). I love her even more today than the day we said, “I do!” Happy Anniversary Mrs. Green! @mrslambgreen

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Phil Green

@pjgreen

4 years

Two guys advocating for access to #ALS therapies at the White House! @stevens_nation

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Phil Green

@pjgreen

1 year

As someone who participated in the @BrainstormCell #NurOwn trial and received six additional treatments under EAP, I am excited to share my firsthand experience at the upcoming @US_FDA AdComm. The biomarker data fully supports the benefits that I felt while on treatment.

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Phil Green

@pjgreen

7 months

I am extremely concerned for the future of #ALS drug development. Politics are driving opinions and some people are missing the fact that a therapy is actually having a meaningful effect on people’s disease progression and daily lives. I am not an anecdote!

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Phil Green

@pjgreen

2 years

Huge thank you to @SouthwestAir for making my travels from San Diego to New Orleans with my power wheelchair so smooth & easy today. Special shoutout to Dhara in SD and the crew of flight #2160 .

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Phil Green

@pjgreen

3 years

Woke to the news about the passing of my friend ⁦⁦⁦⁦⁦ @PQuinnfortheWin ⁩. Pat showed us that we could move mountains in this disease. We need to work with more urgency to save the lives of people with ALS!

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Phil Green

@pjgreen

3 years

Just read an activity summary from a leading #ALS org. Can we stop saying “finding a cure” & perpetuating the myth that there is going to be a singular cure for all people with ALS? Please start using “cure ALS” or “finding cures” instead. ALS is not a one-size-fits-all disease!

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Phil Green

@pjgreen

5 years

One year ago, August 30 2018, I received a confirmed diagnosis of ALS. I have lived so much and have met some of the most amazing people in the past year. Looking forward to doing even more in this next year. #Diagnosiversary #LiveLikeYourDying

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Phil Green

@pjgreen

2 years

Toileting with #ALS becomes difficult as you lose strength & function in your hands/arms. Started using plastic urinals after I fell at the toilet about 2 years ago. I’m still able to perform this function on my own, as long as I am wearing shorts. #ALSReality #ALSAwarenessMonth

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Phil Green

@pjgreen

2 years

Huge THANK YOU to the 7 #AMX0035 #AdCom members that voted “yes” today. You understand the unmet need in #ALS & how important access to this therapy is to those of us living with ALS. For the 2 “no” voters… I have nothing for you other than a scowl.

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Phil Green

@pjgreen

3 years

When is @US_FDA going to stop looking for perfection in #ALS therapies? Until we redefine what “effective” means for ALS, we will continue the “failure” trend & therapies that help SOME will not get approved for the people that need them most! #Toferson #NurOwn #AMX0035

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Phil Green

@pjgreen

2 years

Don’t assume the status quo is correct or that there aren’t better ways to do things. This is especially true when you are living with a terminal disease like #ALS . There is always room for better. Don’t be afraid to demand better. We deserve better!

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Phil Green

@pjgreen

11 months

As I was thanking @GerritCole45 for his help making #LouGehrigDay a reality with @MLB , a @Yankees fan next to me said that his father-in-law has #ALS back in Tennessee. ALS is not as rare as you think.

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Phil Green

@pjgreen

3 years

Thank you @AlaskaAir for taking such good care of me & my power wheelchair last night on my trip from ONT to SEA. I was anxious about flying with my PWC but you delivered to me without a scratch.

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Phil Green

@pjgreen

2 years

For those hardliners who insist that today’s clinical trial science can truly determine efficacy in #ALS … what if you are wrong? Would you bet YOUR life on it? How about YOUR son, daughter, mother or father?

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Phil Green

@pjgreen

1 year

@a_life_derailed Yes, 10 boneless wings down the hatch.

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Phil Green

@pjgreen

2 years

Thank you @MeritCudkowicz for mentioning @sandymorris333 in your #AMX0035 #AdCom presentation!

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Phil Green

@pjgreen

11 months

I do not like being called a PALS. Even though I am a friendly and likable guy (I’d like to think that I’m likable), I am not your pal. I am a person living with ALS (PLWALS). Please understand how condescending “pal” can sound.

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Phil Green

@pjgreen

4 years

Thank you ⁦ @BostonGlobe ⁩ for sharing my story and shining a light on promising ALS therapies. #EndALS

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Phil Green

@pjgreen

3 years

I applaud @FDA CDER for exercising regulatory flexibility by asking @AmylyxPharma to submit an NDA. Now it’s time for @FDACBER to exercise the same regulatory flexibility & ask @BrainstormCell to submit a BLA for #NurOwn so people with #ALS get a chance to live to see more days.

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Phil Green

@pjgreen

2 years

We need a better balance of science & humanity when it comes to evaluating #ALS therapies. While research tries to achieve scientific perfection, my friends & I are dying. If a therapy helps some, that needs to be good enough until we have a better understanding of the science.

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Phil Green

@pjgreen

2 years

If we started calling compassionate use programs for #ALS “Expanded Access Studies”… would it be more clear that research & giving people hope can be done simultaneously? #EAP #EAS

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Phil Green

@pjgreen

11 months

Better late than never. Our END ALS 4 LOU shirts from @obvious_shirts in @Dodgers blue arrived today. Get yours and help @BoogSciambi raise funds for @PMST4ALS . #LouGehrigDay

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Phil Green

@pjgreen

2 months

Today, I was disparaged for my #ALS advocacy efforts just because someone had a different perspective. Everyone is entitled to their own opinions, and I will continue to advocate for what I believe in regardless of what I’m called. Maybe that individual today just needs a hug.

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Phil Green

@pjgreen

4 years

Imagine being in a clinical trial that stopped the progression of your #ALS (3rd party data supported) & now have to wait a year+ before it may get FDA approval. While I wait, I am losing my ability to walk, speak, & breathe. @HollyLynchez your “FDA gatekeeping” is killing me.

DonnaYoungDC

@DonnaYoungDC

4 years

Lawmakers seek to loosen US FDA drug approval requirements to allow early access #FDA #pharma #biotech #ALS

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Phil Green

@pjgreen

2 years

Can we measure true efficacy of an #ALS therapy with tools like ALSFRS-R? Would you use a sledgehammer to drive a wood screw? It may appear to do the job, but will it hold if someone’s life depends on it? Until we find a “screwdriver” for ALS, we must consider any & all evidence!

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Phil Green

@pjgreen

3 years

5 months may not seem like a long time to a healthy person. For someone with ALS, it could be the difference between walking & being confined to a wheelchair, or breathing on your own & living off a ventilator, or living & dying. We need access to NurOwn on the ALS Clock!

Brian Wallach

@bsw5020

3 years

Dear @BrainstormCell , It’s been 5 months since @Cylebo said the company was open to an EAP. Two weeks since you reaffirmed that commitment on a public investor call and yet....nothing. No more words. Show us your commitment to pALS by making an EAP real now. -Brian

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Phil Green

@pjgreen

1 year

Thank you @US_FDA for granting @BrainstormCell an #AdCom which will allow people like me to share our lived experiences with #NurOwn and how this novel therapy slowed/paused our #ALS progression while on treatment.

BrainStorm Cell Therapeutics Announces FDA Advisory Committee Meeting to Review Biologics License...

BrainStorm Cell Therapeutics Inc. (NASDAQ: BCLI), a leading developer of adult stem cell therapeutics for neurodegenerative diseases, today announced that the U.S. Food and Drug Administration...

ir.brainstorm-cell.com

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Phil Green

@pjgreen

3 years

Nice to see such common sense legislation like the ALS Disability Insurance Access Act get passed in the Senate & the House. Let’s parlay that support for ALS into cosponsoring ACT for ALS (H.R.8662 & S.4867) while the devastation of ALS is still top of mind for legislators.

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Phil Green

@pjgreen

1 year

We need to stop pretending that everything in ALS Land is working perfectly. I appreciate my friends who dedicate their lives to understanding #ALS & develop therapies, but they don’t have all the answers. We have much more to learn before we start patting ourselves on the back.

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Phil Green

@pjgreen

2 years

This story. Tears. @sandymorris333 is a best friend, my partner-in-ALS-crime, the female version of me. We can finish each other’s sentences. My wife affectionately calls Sandy my “ALS wife”. Love you Sandy!

Businessweek

@BW

2 years

"Nobody is trying to kill me." In the grip of ALS, Sandy Morris wants to expand access to aid in dying so ending her life won't be a crime. Read The Big Take ⬇️

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Phil Green

@pjgreen

3 years

When I first met Eric two years ago, his speech was rapidly declining & he was getting weaker each day. Today, his speech isn’t much different & he is only slightly weaker than he was then. This is real world evidence @US_FDA needs to consider. #NurOwn

axeALSFoundation

@stevens_nation

3 years

Eric can still get down on the floor to play w/ our 5 mo old daughter. He gets up by himself using the couch for help. 2 years ago, doctors said he probably wouldn’t be here. Well, not only is he here—he’s singing, laughing & playing w/ our little girl. #LivingProof #NurOwnWorks

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Phil Green

@pjgreen

4 months

ALS takes away your abilities & at some point you require help to do the simplest things. Four months ago, I needed to hire a caregiver to be with me during the day. Unfortunately, this is not covered by insurance. Any help would be appreciated.

Phil Your Heart Trust, organized by Jennifer Green

Phil was diagnosed with ALS (amyotrophic lateral sclerosis), otherwise known as Lou Gehrig's Dise… Jennifer Green needs your support for Phil Your Heart Trust

www.gofundme.com

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Phil Green

@pjgreen

3 years

It is time for the #ALSCommunity to take ownership of our disease and demand better! We need to redefine what a successful therapy looks like for our disease! @US_FDA ’s current measure for efficacy in #ALS continues to fail us!

Jeff Fortenberry

@JeffFortenberry

3 years

For complex diseases like #ALS incremental progress is often monumental. But @US_FDA would rather OK a drug with a 3% benefit to every patient than one that helps 20% of patients substantively. It's hard to see how any ALS drug can get thru that gauntlet

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Phil Green

@pjgreen

2 years

At the Brewfest For #ALS , enjoying some #AlesForALS beers and raising funds for @ALSTDI . #EndALS

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Phil Green

@pjgreen

4 years

As a person living with #ALS , I want to thank @survivorcbs and @yul_kwon for raising ALS awareness by telling the story of @SurvivorPenner ’s wife Stacy Title. ALS is not an incurable disease... it is an underfunded one. #EndALS

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Phil Green

@pjgreen

3 years

Congrats to everyone that has put in effort to get S.578 across the line and to the Senate floor for a vote where it passed 96 to 1! House of Representatives, you are next up with H.R.1407!

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Phil Green

@pjgreen

5 years

#WhyIFight I fight for more time with my amazing wife, @mrslambgreen I fight to see my four children grow into the people they will become I fight for everybody that has been chosen to carry the burden of #ALS I fight to find effective treatments and cures, and #EndALS

I AM ALS

@iamalsorg

5 years

Some will say there is no hope for people living with ALS. F that. They don’t see what we see -- amazing communities fighting like hell to make hope real. And we won't stop until we find cures. #WhyIFight Retweet this post, use #WhyIFight , and tell us why you keep fighting.

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Phil Green

@pjgreen

11 months

Had a fun day with family at Fiesta Del Sol in Solana Beach listening to live music. #NotTodayALS

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Phil Green

@pjgreen

11 months

I will be ready to share my experiences with #NurOwn from three dosing periods (2019, 2021 & 2022).

BrainStorm

@BrainstormCell

11 months

We are pleased to announce the #FDA #AdComm for #NurOwn will be held on Sept. 27. Read more here:

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Phil Green

@pjgreen

4 years

Representing @iamalsorg at the first ever (?) Global Walk to D'Feet MND in Perth with about 500ish other #ALS #MND champions. #ALSMNDSymp #ALSSymp

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Phil Green

@pjgreen

1 year

This news is unacceptable! @US_FDA & @FDACBER need to exercise its regulatory flexibility as outlined in its 2019 #ALS Guidance! I know that #NurOwnWorks ! My breathing has improved & stabilized in the past year while getting #NurOwn under #EAP .

BrainStorm Cell Therapeutics Receives Refusal to File Letter from FDA for its New Biologics License...

BrainStorm Cell Therapeutics Inc. (NASDAQ: BCLI), a leading developer of cellular therapies for neurodegenerative diseases, today announced that the company has received a refusal to file letter...

ir.brainstorm-cell.com

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Phil Green

@pjgreen

2 years

We have indisputable biomarker evidence that #NurOwn has a treatment effect for those above 25 ALSFRS-R. @BrainstormCell needs to file a BLA with @FDACBER immediately. We don’t have any more time to waste! #NurOwnWorks

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Phil Green

@pjgreen

8 months

Don’t believe anyone that says they have all the answers… they don’t. They are just trying to overwhelm you with their fancy words & unrelenting nonsense. Nobody has all the answers, especially when it comes to #ALS . I encourage people to use common sense to navigate the noise.

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Phil Green

@pjgreen

3 years

We need to look thru a new lens to determine #ALS therapeutic efficacy. Does ANY of the data provide evidence of the therapy’s efficacy for SOME? If the answer is YES, that NEEDS to be good enough. People are dying waiting to access these therapies that could extend their lives.

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Phil Green

@pjgreen

4 years

In a state of shock, disbelief & sadness that my good friend @BryanWayneMusic passed suddenly yesterday. He inspired me, pushed me, confided in me, motivated me & reminded me to always #FindTheGoodStuff . You are already missed, but will never be forgotten! Love you Brother!

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Phil Green

@pjgreen

4 years

This is amazing! If only there was a day that every MLB player wore a number 4 jersey to honor Lou Gehrig and raise #ALS awareness. #LG4Day

Adam Wilson

@adamfwilson426

4 years

My uniform for the week at @reds fantasy camp!

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Phil Green

@pjgreen

2 months

It feels like when we enter the 4th quarter of our #ALS fight, we become insignificant & support is noticeably absent. Unfortunately, this is when we need the most support.

ALS Advocacy

@alsadvocacy

2 months

There is something wrong in our nation when people have to resort to gofundme and spaghetti suppers and bake sales to provide care and dignity for people living with ALS.

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Phil Green

@pjgreen

3 years

Incredibly honored to receive an award from such an amazing organization, @ALSTDI !

ALS TDI

@ALSTDI

3 years

Join @ALSTDI at the 16th ALS TDI Summit at 3:40 p.m. ET on Friday, December 4th, as we honor our 2020 Leadership Award winners, @pjgreen , @sandymorris333 , and @BWayneGal . You can read more about this year's award winners here

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Phil Green

@pjgreen

11 months

#ALSAwarenessMonth (US version) is coming to a close and I have yet to see any national campaigns that speak to a broad audience not affected by #ALS . We need to break out of the ALS Community echo chamber and turn heartbreak into action!

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Phil Green

@pjgreen

11 months

Yes, I have #ALS but I love my life.

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