It's really me. How do I know? I'm him, of course. And to any doubters I say once more, 'That's bollocks!' —visit my shop & aid ALS
@https
://linktr.ee/fuckals
I know nothing about India’s history, religions or mythology. But I think I know something about movies.
@RRRMovie
is one of the most incredible, musical, action packed & audacious crowd pleasers I’ve ever seen. Adventurous film lovers, check it out. It’s really Amazing!
Friends, thank you for all the incredible messages of love & condolence. I am truly humbled & know that Stacy, wherever she now resides, must be shaking her head, embarrassed by so much attention. I am bereft but grateful.
Today I got the greatest gift. Stacy’s eyes are going now, but thanks to the amazing folks at
@ComCareALS
&
@BridgingVoicesQ
she can use a Tobii to communicate again, just a little bit. For the first time in almost 5 months I heard this said out loud; ‘I Love you’
Just heartbroken. As he talked at tribal we were all like, ‘shut up! Shut up! Don’t be so smart!’ But what he did for Stacy & the kids & me? How he inspired & made all of us better? How he came straight at ALS? How he played his ass off?! My hero & that’s no lie.
@yul_kwon
Rules!
It’s my birthday. Please consider taking one minute to just sit. Close your eyes. & Breathe. & then maybe think how lucky you are to be ABLE to sit. & move your eyes. & breathe on your own. To even be ALIVE. That’s the present. Please celebrate today with gratitude? Thank you!
COVID safe personal march. Stacy, Tootsie, Cooper and I head to the Hollywood Sign. She insists she will still be seen and heard, especially when the world needs light and love!
Today is
#TransDayOfVisability
. As an adoring father of a trans son, I am proud to support this too often misunderstood, threatened & victimized community. The light of my life, he is only wonderful. Let’s make America (and the world) great w love, tolerance, respect & peace!
As the proud parent of a non-binary kid, I say to you, who would protest and even hurt my child out of fear & ignorance, I was once afraid and ignorant too. Now I have learned to love and accept. Try it, please? Join us. Or else mind your own business or fuck the fuck off!
Happy Birthday Stacy. This was how she looked at me and at the world; ‘Are you ready for me? Because I am ready for you and for anything.’ She was the most joyous, passionate, devoted and true friend a person could image. My God how she blazed.
Before she was a filmmaker, Stacy was a journalist, writing and editing for many prestigious publications. She would have loved this tribute. Thank you Amy Wallace for this beautiful piece.
Stacy can’t swallow or close her eyes so she needs this towel & these goggles to sleep. I climbed in bed took this selfie with her (from the most flattering angle, obviously!) & when she woke, I showed her. Who fan that she is, she spelled out, ‘I’m Tommy!’
In 3 years I’ve lost my Stacy, my father-in-law & my mom. But now I appreciate life more than ever. These 3 beautiful, brilliant people would want to be here but they can’t. So I try to live as they would: loudly, proudly & with gratitude for every new day. Hard. But I’m trying!
At CVS buying underpads, pull ups, lotions, lubes, gloves, wipes, etc. ‘Funny’ guy says, Wow! That’s a Big baby, huh? I see red. almost say, my wife has ALS, ass, Fuck off! but instead I just looked at him w/ pity & said what? you never been to an orgy? Laughed all the way home.
To say I find Trump repulsive would be an understatement. He is a vain, thin skinned cheater. An unfaithful, woman abusing, draft dodging, silver spoon-sucking liar. He has no friends. He is never seen enjoying his family. He’s an elitist blowhard & a bully. He is full of fear.
Cannot BELIEVE
@survivorcbs
is about to hit season 45. My last season was 25 and it seemed crazy then that the show had lasted that long. It means two things- Survivor is one of the greatest TV shows EVER, and I, Jonathan Penner, am Fucking OLD!!!
Today is my birthday. And if you want to help me celebrate, put down your phone, take a deep breath, and thank the powers that be for your life. It’s a miracle to be here on Earth, reading, breathing, laughing. Join me today and dance, my friend, DANCE!!!
Huge congrats to Cooper Keaton Penner! After years of effort and study he just got a 521 on his MCAT!He wants to be a neurologist and just woke us up w the incredible news. We couldn’t be prouder of this brilliant beautiful boy!
SCOTUS. The Shame of a Nation. As the widowed husband of a woman who, as a teenager, was raped and impregnated and needed Roe to allow her to get on with her young life, I am adsolutely infuriated, saddened and disgusted.
I’m not crying. You’re crying. Today we launch an amazing effort sparked by Yul & his love for Stacy & our kids (and I guess me a little too) More to come about this, but here’s a great interview & an incredible, emotional sneak peek.
@yul_kwon
is simply the best. Survivor Rules!
Want to see
@yul_kwon
cry? You can in this clip! You can also read my new interview with him about why he's playing
#Survivor
again in honor of
@SurvivorPenner
&
@StacyTitle
. Best of all, he wants you to help him give away $50K!!!
Story I just learned about when Stacy went to the DC Women’s March: No doubt giggling, she somehow snuck her group into the ‘Special Person’s Suite’ where they all grabbed gift bags. Stacy then handed them all to homeless people outside. That was Stacy every single day.
We met 11 years ago this week. Lisa is more radiant, brave, brilliant & beautiful than ever. So great to enjoy her company and hear how her amazing story continues. (& she’s got a most excellent husband Peter) Life is short & incredible, & she lives it w/ heart & eyes wide open!
Is it just me & mine who think this is like, the greatest season of
#Survivor
ever!? I cannot believe the epic play that’s on my TV screen. After 20 years the damn thing is literally now better than ever! Survivor Rules & congrats to all the
#WinnersAtWar
!
A list of Survivor alums I've seen speaking out against what Nick Wilson did, so far...
- Lyrsa
- Angelina
- Christian
- Davie
- Gabby
- Tiffany 41
- Ricard 41
- Ozzy 13 16 23 34
Due to Covid, few people can visit, & none can touch Stacy. But she’s terminally ill & really needs some TLC. Please send a reply video I can play her on Monday for our 29th anniversary? Something glad & brave & beautiful? A virtual hug & a kiss? Thank you all & sending love!
It’s not insensitive. But I no longer think about it. In September 2018, I was told she would be dead ‘in 3 months, 6 at most’ & she has beaten that by sheer will & love. How long? We have today. For her it may be a lifetime. & so we live it up! LIVE folks.Tomorrow doesn’t exist.
@SurvivorPenner
#fuckals
is right. I cannot even comprehend what that is like for her and your family. I hope this questions does not come off as insensitive, but do you know how much time she has left?
Folks, big news for
@Survivor
Fans and ALS Haters coming soon. All 20
#WinnersAtWar
have joined our fight and we have a very fun, one of a kind commemorative shirt dropping in the next day or two. You too can join our team and be a part of Survivor history!
You ask how Stacy is doing? Skye, Cooper’s partner who also lives with us, saw that Stacy wanted to communicate. ‘You are a great artist,’ Stacy spelled with her eyes. It took 30 minutes. That’s how Stacy’s doing. Trapped in her own body. Still always thinking of others.
I know nothing about India’s history, religions or mythology. But I think I know something about movies.
@RRRMovie
is one of the most incredible, musical, action packed & audacious crowd pleasers I’ve ever seen. Adventurous film lovers, check it out. It’s really Amazing!
I know we’re all stressed. By the election, by Covid, by the future. I get stressed too, all the time. And then I see Stacy. Last week she actually said, ‘I am happy’. For this day. This life. She always helps put things in perspective for me. She will wake soon and be glad.
I appreciate the kind thought but have to disagree. THIS is heaven. This is the place the dead would want to be; with us. We are in the best place now. She isn’t in pain, but she isn’t in pleasure or in warmth, surrounded by love and fun and tenderness. THIS is the better place.
#MothersDay
is actually a tough one for many of us; Kids that have lost their mothers. Mothers that have lost kids. Women who will never have kids. & kids & moms suffering painful, unsatisfying or even abusive relationships. I send love to you & hug you all very close today.
Lucky enough to catch the amazing
#RRR
again and gush over its writer/director
#SSRajamouli
. If you haven’t seen this mind blowing action adventure drama musical historical epic, you don’t know the treat that’s in store for you. It got a standing ovation tonight. See it NOW!!
Stacy moves her eyes for ‘yes’ and doesn’t move them for ‘no’. We can spell this way and converse about everything. To say she’s patient and brave would be an understatement. Stacy is literally extraordinary. And I adore her.
Holy Crap that was fantastic, cringeworthy and had us yelling at the screen. Denise steps up and two Survivor Royals went down. (And
@yul_kwon
of course!)
@survivorcbs
Rules. And BTW
@ALSSucks
!
So someone quit. Infuriating maybe (Johnny Unfairplay anyone?) but
#Survivor
is a game and people quit in games and in life (games are mini versions of life, right? That’s why we love them!) I’m all for the real drama & real struggle out there. Real reality tv.
I don’t really know what Twitter is ‘for’, except to communicate & so create community. We are communing right now, this second & I send you love and a warm embrace. I could use one right now, so I assume others feel the same way. Let me be that for you if needed? I embrace you.
Folks, it's here! Our one-of-a-kind
#WinnersatWar
Against ALS shirt! May is
#ALS
Awareness Month & $10 from every shirt goes to our campaign. Stacy & I are so grateful to all 20 Winners at War & to all of you for your love & support! Check out
#Survivorcbs
Congrats to our beautiful boy Cooper. Today was the white coat ceremony at Perelman School of Medicine at U Penn. His mother is beaming & his father, sibling & partner couldn’t be prouder. He’ll be an MD PhD in ONLY 8 years! Go Coop!!
A great interview with my dear friend Yul Kwon by
#Survivor
super guru
@DaltonRoss
. Thanks Yul for standing by Stacy and me in our time of strife & competing on our behalf. Your love and support mean the world to us. You are our hero!
If you're a fan of
#Survivor
, or
@SurvivorPenner
, or helping people, or finding cures, or total selflessness, or of things that may make you simultaneously smile & cry, please read the end of this interview & consider clicking on the link there to donate.
Happy 60th birthday Stacy! I picture you now, shooting hoops with Kobe, laughing, making him work for it, & oh so gently helping him improve his form! You are loved, still. Now and always. Xxx
Folks, if you can, go outside & clear your mind. Get some air & sunshine. Many people are sick, scared, alone. Some, like Stacy, are terribly vulnerable. But nature will make you feel better. If you must stay in, maybe disconnect for a while? Hey, pretend you’re on an island!!
Thanks my manhunt brother. At 61 it would be challenging. My mind and body have been, shall we say, ‘challenged’ since 2017 when Stacy got sick. 50 pounds and ptsd. But maybe it would be just what the doctor ordered. You & me - Survivor - too old to give a fuck island!
My worry? What do folks in abusive relationships do now, stuck at home w those who already terrified &tormented them? Kids, spouces, the disabled, elders, etc. Are there resources, guidelines, hotlines? Any ideas? We fortunately are safe here, but others are very vulnerable.
Got my
#CovidVaccine
today at 35 wks pregnant. Will pass antibodies to baby. Grateful to be part of ending the pandemic. To those waiting: have patience. ❤️ To those who are unsure: read primary sources, ask, & don’t give into fear.
@JPCodyMD
@VHC_Hospital
This is cute. A Potato? No, a glorious Woman with more love and light in her small perfect toe than you have in your whole body at your best moment. Potatoes live in the dark. Like you. Kisses.
Hard to believe it’s been two years. I imagine Stacy’s at a table, flipping her hair as she pours wine for Hitchcock, Wilder, Welles & Varda. She’s laughing, as always, and they are too. She was the bravest person I ever knew. She was magnificent.
Hear that sound? The fans are going wild for the new trailer of
@OmRauts
#Adipurush
! Check out the world premiere of this blockbuster starring superstar
@Prabhas
only at
#Tribeca2023
.
Tickets:
Was awakened this morning by the sounds of screaming in the street. In my dream I thought someone was dead. Then I opened my eyes & realized - it was the Trump presidency! They were screams of joy. I joined in heartily because Hope & Decency live! Go Joe & Kamala!!!
That’s a loaded question, Hope. Stacy can’t move, speak, eat or breathe, yet she loves & is loved, laughs, makes me laugh, is cuddly & has great taste & profound empathy. She sees auras & adores her family & pets & movies & books. Now she’s listening to Satie & watching birds fly
If you are lucky enough to have love in your life, be thankful; you are blessed with the greatest gift of them all. And if you are alone, or worse, lonely, know I love you. I’m thinking of you. If you have taken the time to read this, we are together right now. And I thank YOU.
Sorry but this barely qualifies as ‘mildly interesting.’ How about, ‘Penner was the only player medivac’ed out w gangrene in his knee, who also got devil tree sap on his testicals’? Now THAT is mildly interesting!
Todays mildly interesting fun fact about
#Survivor
@SurvivorPenner
Jonathan is the only player to play on a season with two starting tribes, three starting tribes, and four starting tribes.
RIP Nanci Ryder. Maverick superstar publicist, she took no shit from anybody, ever. Beloved and revered, feared and fearless, she kicked ALS’s ass for 6 years and never said die. She died today. Fuck you ALS
Another good question. Stacy’s mind is unaffected (though her gene mutation can cause dementia. Her mother is suffering from that.) she feels everything, pain and pleasure, but cannot move anything but her eyes. She is kind, funny, & has a genius level IQ. & the heart of a lion.
@SurvivorPenner
Hey Penner, is her cognition affected at all? Ie, is she well aware of everything that's happening with her body? Much love to you and your wife, you'll always be a favourite of mine and reason I'm such a superfan - from a fellow member of the tribe
I love this. And it’s why I always try to be as warm and welcoming as possible to fans when they say hi. One minute of my time spent in gratitude, & they never forget it. (One second spent in crabbiness; ‘no! I’m busy!’ and they never forget it either!) Thanks for this & say hi!
To all of you, but especially those lonely or scared or, God forbid, in danger or distress, we send you love & a warm embrace. And please send Stacy some strength this holiday season? She needs it & you have more than you know. (Like Love, it grows when shared!) Thanks so much!!!
28 years ago today, this joyous vision came toward me down the aisle, said ‘I do,’ and kissed me. I’ve been swooning ever since. Happy anniversary, Stacy. The bravest, sexiest, most brilliant person. God, it’s been so great.
nice to see myself on
#Survivor39
. Obviously they are preparing the viewers for next season’s Survivor- Bollocks Island. Where I mentor people in antagonism, injures and fatal, unforced errors. They end the season by burning my big head to the ground!
25 years ago today, Cooper Keaton Penner entered our lives & the world has been better since. Kind, creative, hilarious, soulful, conscientious & loved by all, this brilliant boy has dedicated his life to knowledge, service & justice. We love you son & could not be prouder.
Why I dislike Trump besides that I disagree with most policies? Criminal. Adulterer. Rapist. Wants to be a dictator. Sore loser. Con man. Malignant narcissist. Grabs women. Bullies people. Dementia. Hates his kids. Married to a weirdo who hates him. Doesn’t support troubled kid.
Happy Birthday Ava Rae Penner. The most incredible kind sensitive talented & Hilarious kid I know. You have filled us with pride & pleasure for 22 beautiful years. The world desperately needs your light. Shine on you Goofy Gozer. And tonight, Eggplant Parm & Long Island Iced Tea!
Tattooed yesterday by the incredible Ava Rae Penner. We had so much fun doing this together; a true bonding experience & a sweet celebration of Stacy. Every day gets a little better here. Hope the same is true for you too. Ava’s insta is
@it
.was.ava .Check it out. Happy Sunday.
Silly me, I thought you were human. My turn to feed the trolls, I guess, & glad you mentioned Stacy. Yes, she has ALS and drools. Thanks for showing the world how the sick & vulnerable get picked on. People adore & admire her. They loathe & pity you. Lifeless, soulless, hated.
Stacy is more alive than most people. She has gratitude. She has pain. She has love & appreciation. she enjoys the simple things.she remembers the past with affection & faces the future with a bravery that’s almost incomprehensible. & she is adored & encouraged. She is my teacher
5 people dead. And now we must spend hundreds of millions & countless man hours to investigate, prosecute & incarcerate you all. & if you think POtuS, who ‘loves’ you ‘cause you’re ‘special’ might pardon you? He won’t (& he doesn’t & your not.) Entitled ignorant Babies. Goodbye.
Thank you
@EthanZohn
! Stacy and I so appreciate everything you and
@yul_kwon
and our whole
@survivor
family is doing to help us raise awareness about ALS. Incredible how the worst things in life can bring out the best in people! Just an extraordinary night for us.
Donald Trump mocked Joe Biden’s stutter last night. How is it possible? In 2024?! That anyone, let alone a major party’s pick for President, could be so ignorant, mean, & desperate for attention? It’s disgusting, frightening, hateful & beneath contempt. What a little turd he is.
So cool to meet you
@wendellholland
! And thanks for the kind words! The last time I was the highlight of anyone’s tremendous night was my honeymoon! ;)
Didn’t have enough time tonight with my man to tell him all the incredible things
@yul_kwon
told me about him and Stacy on WAW, but finally meeting
@SurvivorPenner
was the absolute highlight of a tremendous night.
Happy Survivor Premiere day.
Thank you
@elizaorlins
🖤