Marcus Williams had a spectacular rookie season, and could have a stellar career. He was trying to make the right decision and not interfere. As a competitor, I'm sure he's crushed. I invite Nola to be encouraging and supportive as well as we move on.
-SG
I can't move or talk, but my capacity to experience overwhelming Joy, a Joy I couldn't have conceived or understood before ALS, that capacity has never been greater.
We have a choice. We can put in effort, and love & feel love, to & from our human family... Or not. Choose Love
Stephen Hawking inspired me before ALS - to keep asking questions, seeking answers, and understanding the cosmic perspective. But since ALS, he saved my life with his example - people diagnosed with ALS can continue to live productive & purposeful lives for decades.
-SG
I've been around high level football for 25 years or so, and I've always held that you can never blame the referees, but three consecutive game changing calls by
@NFL
referees... It's pretty remarkable incompetence. Stay resilient Who Dats
I'm headed to the ER for the first time in 3-4 years. I haven't been in the hospital for more than a few hours in 5 years.
I've had relentless hiccups for 5-6 days, and they think it may be developing early signs of pneumonia.
We shall see! So much Gratitude for my team.
Congratulations on receiving the Congressional Gold Medal. Not only is your fight against and in a search of a cure for ALS inspiring its also offered an incredible example of courage and commitment for my kids and others.
@TeamGleason
Gray Gray asked to have a shiny shiny shiny shiny birthday party for her 3rd birthday. We enthusiastically agreed!!!
Have a spectacular and shiny Saturday friends!
The Gleason crew is shutting it down for the night.
We share one challenge moment & two Gratitude moments from each day before bed, and we all agreed that today was the greatest day of our collective lives.
Thanks to
@MLB
& the
@Cubs
- see you in 2022 for
#LouGehrigDay
Welp. That was fun. Thank you players, coaches.
@Saints
- Thank you New Orleans!
I've been tweeting all day. Boy, are my eyes tired. Here is Michel greeting me post game.
#Rebirth2020
Out.
Over the past 9 years my family and I have experienced enormous loss, failure, and suffering. I think I've learned many pertinent and encouraging lessons that are applicable to our current global crisis.
Starting tomorrow, I intend to post a lesson or two each day.
I've said this several times before, and I'm definitely not ruling out saying it again, but in terms of public accomplishments, it's hard to imagine that it gets better than yesterday.
Thanks to everyone who has helped me throughout my life.
If you're into numbers...
Five days into the third decade of the 21st century I enter my tenth season with ALS, and in ten days I'll be in Washington DC being awarded the Congressional Gold Medal.
It seems like days like today are reminders that we're all in this human life, with it's joys, sorrows, tragedies, and triumphs, we're all in this experience together. A reminder to love relentlessly.
Yikes! I was just reminded that I was diagnosed with ALS 11 years ago, right at this time of the day.
Eight years past my 'expiration date' - my aims & aspirations for this wonderful life.
For 15 years,
@drewbrees
has been a steadfast friend who has inspired and motivated me to turn tragedies, like hurricane Katrina or ALS, into triumphs.
Here's to many more great memories in our future.
Thank you for your support and friendship Drew. I love you brother.
There is no greater time in history to raise a family. More than ever, on a global scale, our kids can be anything they want to be. Bounded only by their talents, their interests, their discipline, and their work ethic.
Be involved. Be active. Stay involved. Stay active.
-SG
My personal team of docs agreed I needed to be officially admitted b/c my sodium levels were critically low. Seizure & brain swelling risk! Maybe pneumonia, but they don't know.
No sleep last night!
Speaking of records. I haven't been fully reclined in 9 yrs! I'm Happy happy
7 years ago I was diagnosed with ALS, but I'm starting to lose track of the years... My statement from one year ago reflects how I feel today - "happy". I have high expectations - both for our foundation & personally in 2018. Our future is greater than our past.
-SG
The punt block never happens, the fans don't spill beer all over & the statue is not built.
If I didn't have Al Everest. Al was my ST coach 2000-2006. He taught me everything about getting to a punter, special teams & so much about life. A true Master mentor. RIP Al, I love you.
The same day I was diagnosed with ALS, I wrote email to friends & family. I told them how scared I was.
I closed the email with - “I promise to fight and believe and expect the extraordinary and smile and laugh and cry and love our lives for every breath that remains in my body.”
Dam, one thing I was a little nervous about with this
@espn
replay of the
@saints
Falcons game was... I'd miss my old self...
I don't dwell on, or wish I was still "just kind of a regular dude". But that was a good time in life. I'm enjoying the present moment, but crying a bit
As we all get ready for the replay of the 2006
@Saints
Domecoming game on Monday night...
I dug into the
@wdsu
video vault.
This clip is from the day after the historic game.
I asked
@TeamGleason
about why he was the perfect player to make that play that meant so much to so many.
The Sun, and it's perfect, life giving embrace of Earth, is creeping migrating closer to the Southern edge of my slider door, not to return until late May 2022.
Will today be the last Sunrise Selfie of the Summer? Of my life?
I enjoyed it, as if it were so. Perfection.
I don't deserve tried this Life!!
I don't deserve it ...
All the people who have supported me. The adventures. The smiles & laughter. The challenges. The beauty. The pain. The wisdom. The tears. The joy. The suffering. The liberation from suffering.
The moments like this...
Ten years ago today, my mom, my wife Michel and I walked into the office of a global expert, and we were told that I had a terminal disease called ALS. Much has changed. I haven't walked in 9 years. I still say 'pretty fucking epic'.
Here are my thoughts.
Thanks for the birthday Love. There is Life, then there is our interpretation of Life. My intention is to be grateful for the challenges Life brings us, so I love this crazy wonderful Life, and I love you. May you be well.
I'm grateful to grow old
We're having our daughter today or tomorrow. I'll be home Saturday with the family. I don't think I've watched Game Day in maybe ten years. The Gleason crew will definitely be tuning in Saturday.
-SG
I'm not able to move or talk, and the pain from that is real. I am able to rally the family for a Family Fo to Fo to start the week.
The Joy is real!
Monday's message: This week may seem like a long week, so let's work to be grateful & encouraging to ourselves & others this week.
Another very impressive win dudes.
@Saints
I saw Jameis as he was getting carted off. It looked like a really painful injury. I know a little bit about moving through painful circumstances to grow more triumphant.
I'm sending love and strength brother.
@Jaboowins
No matter who leads the country, we'll keep doing 'forehead to forehead' each morning and each night.
The adversity of ALS is an opportunity, quite a a powerful opportunity, to explore innovative ways to share the Love & Light that is within all of us...
If you've seen our film
@gleasonmovie
- you know we've been quite transparent about our journey with ALS. The tragedy & the triumph.
I've spent the last few days at Ochsner Medical. A precautionary measure, and not where I planned to spend my birthday, but I'll be home soon.
-SG
Rivers turned 10 yesterday. Still here a decade later. Gratitude.
I went to the school bookfair & he asked if he could leave, b/c it's his Bday.
Hmm... I said ok, if he could do 3 acts of kindness.
We chose to give Cane's to 3 homeless people.
Compassion & kindness is cool!
There will be challenges. There will be adversity. There will be painful circumstances... But we can choose to practice rituals to share the strength, power, and Love that runs through all of us to start our day.
...Share the Light.
I'm thankful for the support I have, which allows me to have a meaningful, purposeful life, and spend quality time with the people I love. Thank you.
-SG
#AwesomeAintEasy
Happy Easter friends!
Here's to human spiritual resurrection from fear and suffering right now. Mental peace & freedom are available. Present moment salvation. We are all the Light of the world.
This pic may not be the airbrushed Easter family pic. Just our wonderful life.
As you know, every 90 minutes someone dies from ALS. Today, one of those was Chris Snow. This one really hurts.
We have a lot of shared loves. Baseball. Pearl Jam. Sons. Daughters. Wives. We talked often.
He was with me in this wonderful Life. Now you're within me brother. LOVE
He was fearless on the field for the
#Saints
. Since being diagnosed with ALS,
@TeamGleason
has motivated countless others with the never-give-up mantra
#NoWhiteFlags
. Meet New Orleans' MVP – Steve Gleason.
I gave up social media for Lent unless it's essential news, and this is especially essential for Saints fans.
My sources are telling me the
@Saints
are bringing back the legendary
@MalcolmJenkins