Nick Wellings @Nick_Wellings Twitter profile

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Nick Wellings

2 years

Don't put off tomorrow what you can do today, unless you have ME or Long Covid, in which case please totally do that. It's fine.

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Last Seen Profiles

@Ks_October

@Pericos_Oficial

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@GetUpTy12

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@HomemChopp

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@WildBrainHQ

Nick Wellings

@Nick_Wellings

2 years

Boss' daughter's friend got CoV. Rushed to hospital with bleed on the brain. 18 years old. "But it's mild"

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Nick Wellings

@Nick_Wellings

12 days

Exploited, eh? PIP was one of the worst ordeals of my life, where you have to basically convince an utterly disinterested, unempathetic "assessor" whose default setting is "you're lying". And that's exactly what my first assesment said, basically.

Chirpy Chet

@ChirpyChet

14 days

The PIP assessments are NOT easily exploited. Pipe down you gaslighting pipsqueak. Enough. #Sunakered #ToriesOut662

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Nick Wellings

@Nick_Wellings

3 years

@Nigel_Farage @RNLI When you had that plane crash, Nige, did you berate the ambulance crew for helping foreigners too?

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Nick Wellings

@Nick_Wellings

4 years

@aljwhite Having no TV and knowing very little of what passes for modern culture, I have absolutely no idea what this, who those people are, and what is happening.

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Nick Wellings

@Nick_Wellings

2 years

@MrKovalenko

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Nick Wellings

@Nick_Wellings

6 months

I'd love to work, to earn money (more than benefits that's for sure) and be fulfilled. Unfortunately I can't. I'm in bed 23.5 hours a day. I have carers, I'm fed like a baby with a spoon. But ok, I'll just get a job.

Guardian news

@guardiannews

6 months

Disabled people must work from home to do ‘their duty’, says UK minister

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Nick Wellings

@Nick_Wellings

3 years

@paolorberni @hannahrosewoods My blood pressure

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Nick Wellings

@Nick_Wellings

2 months

@fesshole Poor woman indeed. Awful men.

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Nick Wellings

@Nick_Wellings

3 years

How awful to watch back.

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Nick Wellings

@Nick_Wellings

2 years

@omarhus1 @LBC @NickFerrariLBC How is telling people about someone dying from a totally preventable disease scaremongering?

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Nick Wellings

@Nick_Wellings

4 years

@joepike @aljwhite @BorisJohnson @itvcalendar Like any true Conservative he probably thought that he could take what was someone else's without any consequences.

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Nick Wellings

@Nick_Wellings

1 month

ME is damn cruel. At its worst it makes you nearly utterly reliant on other people to survive, but also almost utterly unable to tolerate them being near you, or talking to you, touching you etc.

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Nick Wellings

@Nick_Wellings

10 months

Amazing GP phone call just now about my high lactate levels. Basically "get lost". Told em I have elevated lactate. "Are you short of breath? Do you have infection? Pressure sores?" No. "I don't know what you want me to do then, you have no clnical signs needing investigation"

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Nick Wellings

@Nick_Wellings

7 months

My oldest friend gives me advice:

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Nick Wellings

@Nick_Wellings

1 year

Lots of "when you get better" and "when you get well" talk from friends. In a way that doesn't help. I know they mean well. But it's not like I've got a broken leg. Be ok in a few months. Multiple key metabolic pathways in me are broken, with no real cure.

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Nick Wellings

@Nick_Wellings

25 days

@drpaulwinston @ZacharyGrinDPT Yes, all that secondary gain of losing my job, losing my home, losing my savings, losing my health, losing my future, losing the ability to look after myself on the most basic level. So much gain

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Nick Wellings

@Nick_Wellings

2 months

Spot the presence of PsychoSocial, probably small thread: Sept 2020, went out on a day trip with my girlfriend. Didn't feel too great, but felt bad saying no. All on foot. Lots of walking. Wanted to go to a souvenir shop closing at 4pm. It was 1554. 1/n

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Nick Wellings

@Nick_Wellings

1 year

My local ME service sent me a survey to do. This was one of the questions....!

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Nick Wellings

@Nick_Wellings

2 months

I still want to do things BRAIN SAYS YES, PLEASE. BODY still says no Where was the effort perception fear? Where is the false illness belief? How can CBT fix that? And all the "just think better bro" books? END 12/n

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Nick Wellings

@Nick_Wellings

2 months

If it's just "effort perception" why did I get worse and worse, trying to live normally despite a mild ME diagnosis, until my whole world, formerly full, vibrant and fulfilling, shrunk to become one room, one bed?

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Nick Wellings

@Nick_Wellings

4 years

@ryangibelli Which bit stood out as especially brilliant, Ryan? (10 marks)

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Nick Wellings

@Nick_Wellings

6 years

@SCynic1 @PaulUK2901 Did the point need to be stated so odiously?

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Nick Wellings

@Nick_Wellings

3 months

OMG...Lauren is top story on Daily Mail...

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Nick Wellings

@Nick_Wellings

3 years

@Nicole013 @nytimes We're a terrible country now. Terrible is how we do things.

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Nick Wellings

@Nick_Wellings

5 years

@anne_howkins @blippyd @jessphillips @Anna_Soubry And a life.

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Nick Wellings

@Nick_Wellings

2 years

@elliebaby2003 The "but how many had underlying conditions" people are truly the worst.

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Nick Wellings

@Nick_Wellings

9 months

@markeology These are fantastic, she sees and gives the world back to us in a unique manner. That is the hallmark of a real artist's eye.

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Nick Wellings

@Nick_Wellings

2 years

Not a Christmas cheer post, but we must not turn away from history.

Auschwitz Memorial

@AuschwitzMuseum

2 years

25 December 1937 | A Duch Jewish girl, Liesbeth Prins, was born in Amsterdam. In October 1943 she was deported to #Auschwitz and murdered in a gas chamber after the selection.

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Nick Wellings

@Nick_Wellings

2 months

Where's the psychosocial element? WHERE? Tell me. WHERE. I tried to keep going. Surely I could. WRONG. BODY SAID NO. BRAIN SAID YES. BODY, NO. 11/n

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Nick Wellings

@Nick_Wellings

4 years

@CharlieRamsay8 Not all disabilities are visible. For instance I can quite clearly tell you are an idiot now, but had I passed you in the street it might have been difficult to tell.

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Nick Wellings

@Nick_Wellings

5 years

@JayElwes If the Queen is ever "impacted" because of Brexit, this will help her.

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Nick Wellings

@Nick_Wellings

5 years

@andyscrane @JunckerEU @bbclaurak It's not them, it's us.

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Nick Wellings

@Nick_Wellings

2 months

sigh

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Nick Wellings

@Nick_Wellings

3 years

@levim195 @RussellOkung Yeah, the natural immunity to AIDS, Polio and Smallpox is far better than the vaccines developed. Yeah.

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Nick Wellings

@Nick_Wellings

3 years

@frank_really Very sorry to hear this, and it is clear you are not alone in wanting and being about to leave. Our loss, definitely. The country is in an awful place.

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Nick Wellings

@Nick_Wellings

3 years

(not that anyone cares but SK did actually write this, basically in his diaries, if you take out the words "I miss" not that anyone cares)

Kim Kierkegaardashian

@KimKierkegaard

4 years

I miss going to parties where I am its life and soul, witticisms streaming from my lips, everyone laughing and admiring me, then going home and wanting to shoot myself

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Nick Wellings

@Nick_Wellings

1 month

I lost my temper after this latest barrage, I basically said stop. It's hard to say that, because they care.

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Nick Wellings

@Nick_Wellings

3 years

@brianrose4mayor Such naked fragility behind so much performative hyper-"masculine" nonsense. Cringe-factor 10.

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Nick Wellings

@Nick_Wellings

5 years

@JohnAdebiyi @sturdyAlex Hi, "a few technical rule breaches" is know in English as: "breaking the law". You're welcome.

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Nick Wellings

@Nick_Wellings

7 months

Literally enraging.

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Nick Wellings

@Nick_Wellings

2 years

@subaru555 @DeItaone What next? "Transitory" nuclear war?

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Nick Wellings

@Nick_Wellings

7 months

@shedranktheturp Also "all your tests are normal" so maybe you're just making it up. CD what? No, we don't test for that.

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Nick Wellings

@Nick_Wellings

6 months

My friend is in Paris, and sent me a picture from a Starbucks. !

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Nick Wellings

@Nick_Wellings

9 months

@fesshole Standing you have to fight your own clenched buttocks, surely?

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Nick Wellings

@Nick_Wellings

2 years

@BarbaraEichner @kakape Yes, one would hope. I also think, as a facile comment, the threat of disfigurement or rather, scarring, will cause people to take it more seriously than CoV.

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Nick Wellings

@Nick_Wellings

2 months

@fesshole Timely wimely for a ickle bitty witty of breakily uppilly wuppily

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Nick Wellings

@Nick_Wellings

10 months

She said it's not clinically significant, basically don't worry about it. Ok! 8 times higher than normal but ok!

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Nick Wellings

@Nick_Wellings

9 months

Evidently my my usual carer has decided I am faking it/not trying enough, as she has started no longer helping me as much with things. Even said to my mum "I think he can be doing more than what he is". Which is making me worse. Do t have energy to confront her really.

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Nick Wellings

@Nick_Wellings

2 years

I'm 100 years late to the party, but it was very very very funny.

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Nick Wellings

@Nick_Wellings

12 days

Serious question, what do "normal people" have as heart rate when standing? And waking? I've seen chydorina DrT say she tries to stay under 80 when walking....I'm 83 after eating dinner, up to 100 standing up at least.

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Nick Wellings

@Nick_Wellings

3 years

@daisbinding

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Nick Wellings

@Nick_Wellings

5 months

@fesshole I saw about nurses talking to the deceased, washing them, during pandemic doc. Quite touching really, respectful.

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Nick Wellings

@Nick_Wellings

6 years

@theweeflea @GordonM77073111 @sizjam68 @CarolineLucas May I draw your attention to WTO tarrifs? And the length of time it takes to negotiate trade treaties? And to UKs lack of negotiators?

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Nick Wellings

@Nick_Wellings

2 months

@radigancarter "emotional support water bottles" is probably the great thing I've read on here

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Nick Wellings

@Nick_Wellings

10 months

"we wouldn't use blood thinners for that, that's just for clots or cardiac stuff. I wouldn't go looking for problems, you've got enough on your plate already" *screaming internally* Outwardly: But it's a main factor in my ME!! Anyway they won't and can't help What a situation.

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Nick Wellings

@Nick_Wellings

10 months

But I can't use my muscles properly, my lactate levels are high indicating metabolic dysfunction. "You've had all the blood tests we can do, we can't do anymore" Someone recommend blood thinners perhaps as oxygen isn't being uptaken in my cells properly

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Nick Wellings

@Nick_Wellings

5 years

*ROH new season page blurb. "Click link to see new shows!" *ROH main page* Explore our new season! *clicking link* "Welcome back to our terrible new useless listing tool which makes finding anything about any production or date basically impossible!"

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Nick Wellings

@Nick_Wellings

5 years

@JoseDenning @Rachamuffin "I am so sorry but I don't realise how ignorant I am. *Nostalgic bleating about a war I wasn't involved in*"

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Nick Wellings

@Nick_Wellings

6 years

@mikesmlea @toryboypierce This is breathtakingly, hilariously dense.

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Nick Wellings

@Nick_Wellings

10 months

@whitecarz @Peston @OBR_UK "what do we want?" Nice things! "When do we want them?" Never, because we keep voting for a Government who says austerity is best, and most people believe it.

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Nick Wellings

@Nick_Wellings

2 years

@LanceForman @JuliaHB1 @BorisJohnson Luckily you didn't need to endure shelling or take an AK 47 onto the streets for that one, Lance. Just had to tick a wee little box.

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Nick Wellings

@Nick_Wellings

1 year

@deelomas Please write to Mogg when you are able. They know exactly what they are doing. Ask if his Nanny would enjoy the same experience!

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Nick Wellings

@Nick_Wellings

2 months

ALSO if it's "effort perception" why do I and others look at a task and thing "yeah, should be OK" and do it and then get ill/PEM after?

Nick Wellings

@Nick_Wellings

2 months

If it's just "effort perception" why did I get worse and worse, trying to live normally despite a mild ME diagnosis, until my whole world, formerly full, vibrant and fulfilling, shrunk to become one room, one bed?

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Nick Wellings

@Nick_Wellings

27 days

Just in the past week I've seen stories from/about separate women in 3 countries, all with either bad ME/LC, being abused and neglected in hospitals. This has to stop!!

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Nick Wellings

@Nick_Wellings

10 months

It was hard to convey the "get shunted" attitude and utter "stop bothering me" tone in my 2 minute phone call. But anyway, I don't know why I expected any insight or help at all. Hilarious in a way.

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Nick Wellings

@Nick_Wellings

5 years

@TomiLahren No compassion? No surprise.

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Nick Wellings

@Nick_Wellings

5 years

@Telegraph "the Remainer enemy"? These are people. These are people who drive buses, teach your children, serve in restaurants, help businesses stay on their feet. Disgusting, divisive, language.

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Nick Wellings

@Nick_Wellings

5 months

If you have ME or CFS, could you reply saying how many supplements you take a day? (Eg, 10, 15, 4, none). just the number/count is ok! Or even a photo! I keep meaning to take one of my morning pills but my phone is always off.

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Nick Wellings

@Nick_Wellings

2 years

@acanopyofstars @OnlyEnnui Apparently a lot of it is in our minds - because yes, we love living this way 😊

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Nick Wellings

@Nick_Wellings

3 years

@hustlersconvent @jamiesusskind I quite agree. The move from rather unassuming and agreeable Fairy cakes to horrendous Cupcakes has been lamentable.

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Nick Wellings

@Nick_Wellings

2 years

@ChrisCEOHopson All I can say is, thank you for what you are doing.

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Nick Wellings

@Nick_Wellings

2 years

@IJP74 @blucienwilliams @AdamJSchwarz "Help us Boris" Boris:

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Nick Wellings

@Nick_Wellings

5 years

@DavidGauke Sorry to hear this. You showed principles and conscience. Good on you.

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Nick Wellings

@Nick_Wellings

2 months

This guy is totally one of those "let me interrupt your experience with my confidence " bros isn't he. Oxford blahblah thinks everything is under his purview, as philosophical whimsy.

Aeron Laffere

@findboundary

2 months

@GeorgeMonbiot @ThosVarley Well done for completely misunderstanding “psychosomatic” as a designation and continuing to propagate a harmful myth! Something psychological is not unreal, nor is it stigmatising in the mind of anyone except the patients.

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Nick Wellings

@Nick_Wellings

5 years

@MartinDaubney @brexitparty_uk I'm appalled at this sheer excess of...democracy....?

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Nick Wellings

@Nick_Wellings

10 months

@guardian Hey look, known discredited academic promulgating her known discredited "research" yet again.

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Nick Wellings

@Nick_Wellings

3 years

@PhilipProudfoot @respeak_uk Thank goodness for cholera, instead of free broadband.

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Nick Wellings

@Nick_Wellings

1 year

PIP decision received. I got what I hoped, but with some creative scoring from the assessor. Apparently I can make a meal with supervision! Well, I am not complaining too much, I got there in the end.

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Nick Wellings

@Nick_Wellings

2 years

Obligatory "this tweet has done well" stuff: Please get boosted, or vaccinated if you have not. No-one who helps you will judge you. Masks help too. Stay safe, all.

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Nick Wellings

@Nick_Wellings

11 months

brb guys, gonna stick my toothbrush in my ear

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Nick Wellings

@Nick_Wellings

5 years

@jude_bowers We needed convoys from the USA to feed us in WW2, Judy. At one point we were a week from having no food for the country, and Churchill was despairing. But sure, let's all pretend WW2 was lots of fun and that your insane Brexit will be too

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Nick Wellings

@Nick_Wellings

1 year

Not with a bang: being retired on ill health grounds today, 17 years, one month, 27 days and about 6 hours after being with my company. Not cause to celebrate really.

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Nick Wellings

@Nick_Wellings

4 years

@JoePoutous @RosaGoldensohn @jbouie "help I can't feed my kids" *Cop shoots kids* JOB DONE MA'AM

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Nick Wellings

@Nick_Wellings

8 months

@tessfalor Most recent I had was "stop looking for problems, you've got enough on your plate already" Ok thanks doc

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Nick Wellings

@Nick_Wellings

2 months

Woke up quite unwell, and the frustrating thing is I don't know why. Didn't do anything different really yesterday. Stupid ME.

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Nick Wellings

@Nick_Wellings

7 years

One of my friends is a college professor. This is the handwriting of one of his students. #thereishope

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Nick Wellings

@Nick_Wellings

5 years

@CandaerReynolds @jude_bowers Sterner stuff = blind obstinacy and immunity to facts. But here's a little flag for you to wave. Enjoy! 🇬🇧

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Nick Wellings

@Nick_Wellings

2 months

My work week went from 5 days to three to two to three and then none, medically retired . Had to use grocery delivery service. Then had to ask them to take to my door. Then I to my flat. Then too weak to put away. Then too weak to open Then to weak to cook safely 10/n

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Nick Wellings

@Nick_Wellings

6 years

Shout-out to the dude next to me (Lohengrin, Bayreuth) who fell asleep in act I, left 10 mins into in Act II, then came back for Act III and fell asleep who even so applauded feverishly despite seeing in my estimation only about 4% of the entire evening without being asleep.

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Nick Wellings

@Nick_Wellings

5 months

@cherylbenson Delete your post. This is foul.

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Nick Wellings

@Nick_Wellings

5 months

@10DowningStreet I'm sure UK workers will fill the gaps, yeah

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Nick Wellings

@Nick_Wellings

11 months

@tenacious_mumma Last year I was so unwell that I couldn't tolerate people speaking to me, I'd cry very easily. It was not psychological, my brain was on fire. Docs need to understand it. So sad to read this.

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Nick Wellings

@Nick_Wellings

26 days

For those who do not have ME or LC, I will try to portray how it feels at its worst. Other pwMELC can also help if you want . Imagine you have the worst hangover ever. Light hurts. Noise hurts. Voices hurt. Talking hurts. Your brain can't cope. You need calm, or no talking 1/n

@TheChronicCollaboration

@TheChronicColab

27 days

CW: distressing We want you to meet Carla #SaveCarlasLife #ExposeMENow With family's permission we're sharing some videos of her experience in West Middlesex hospital. This first video is what happens when she is exposed to bright light. Staff won't cover the door window.

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Nick Wellings

@Nick_Wellings

3 years

Other supposedly mature democratic nations in Europe do stuff like this right, eg Germany, Belgium or Spain?

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Nick Wellings

@Nick_Wellings

5 years

@samwolfson What a terrible country we have become.

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Nick Wellings

@Nick_Wellings

5 years

@davidschneider Faze

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Nick Wellings

@Nick_Wellings

3 months

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Nick Wellings

@Nick_Wellings

4 years

@MarkPayne666 Yeah, bang on! 45k dead are fakely dead!

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Nick Wellings

@Nick_Wellings

5 years

If anyone has any clear, digestible, summarised info about the ROH season (ballet and/or opera) in a format that is readable and usable and browseable, I'd be greatly interested. Title, dates, cast. That's all I ask for.

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