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The ALS Association

@alsassociation

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The ALS Association / Fighting ALS on every front through research, care services, and advocacy. Community guidelines:

Arlington, VA
Joined February 2009
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@alsassociation
The ALS Association
6 months
ALS, or amyotrophic lateral sclerosis, is a disease that robs people of the ability to walk, talk, and breathe. There is no cure for #ALS yet. Learn more:
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@alsassociation
The ALS Association
3 years
(1/4) We are deeply saddened to share that Pat Quinn, co-founder of the ALS Ice Bucket Challenge passed away at the age of 37. Pat was diagnosed with ALS in 2013 and went on to help popularize the greatest social media campaign in history.
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@alsassociation
The ALS Association
6 years
Carmen Schentrup was killed in the Parkland mass shooting. Because #CarmensDream was to become a medical researcher & discover a cure for #ALS , her parents have created the Carmen Schentrup ALS Research Fund. Join us in Carmen's quest to find a cure:
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@alsassociation
The ALS Association
6 years
"However difficult life may seem, there is always something you can do and succeed at. It matters that you don't just give up." -- Stephen Hawking
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@alsassociation
The ALS Association
3 years
(2/4) The Ice Bucket challenge dramatically accelerated the fight against ALS, leading to new research discoveries, expansion of care for people with ALS, and greater investment by the government in ALS research.
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@alsassociation
The ALS Association
3 years
(3/4) Pat continued to raise awareness and funds for the fight against ALS and our thoughts are with the Quinn family and all of his friends and supporters. Pat was loved by many of us within the ALS community and around the world.
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@alsassociation
The ALS Association
3 years
(4/4) He will be missed, but he will continue to inspire us until we have a world without ALS. Read more:
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@alsassociation
The ALS Association
8 years
The #IceBucketChallenge impact grows as researchers identify one of the most common gene contributors to #ALS
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@alsassociation
The ALS Association
6 years
@alsassociation BOT Chair Stephen Winthrop on Hawking: "Most people describe ALS as a disease that, bit by bit, robs a patient’s ability to move and function. But Stephen Hawking has inspired me to focus on what I can do, rather than what my body can no longer do."
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@alsassociation
The ALS Association
6 years
Today we remember Stephen Hawking, who inspired the ALS community and the world. Our thoughts are with his family.
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@alsassociation
The ALS Association
2 years
(1/2) BREAKING NEWS: @US_FDA approved AMX0035, a new treatment that has been shown to slow progression of #ALS and extend life. This is an amazing development in the fight against ALS, and a meaningful win for the entire ALS community who worked tirelessly to make this happen.
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@alsassociation
The ALS Association
5 years
Thank you @justinsuntron and thank you to your team @BitTorrent , @Tronfoundation , and @BinanceBCF . Proud to partner with you on this beautiful campaign to spread love and raise awareness of ALS/MND. #VoiceYourLove
@justinsuntron
H.E. Justin Sun 孙宇晨
5 years
Proud to support the @alsassociation ! Let's voice our love, raise money and awareness to help find a cure. #VoiceYourLove @Tronfoundation @BitTorrent @BinanceBCF
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@alsassociation
The ALS Association
4 years
Our hearts go out to Frates family and Boston community. @PeteFrates3 changed the trajectory of ALS forever and showed the world how to live with a fatal disease. His efforts to lead the Ice Bucket Challenge had a significant impact on the search for treatments and a cure for ALS
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@alsassociation
The ALS Association
2 months
Hugh Hoffman wanted to help ensure more children don’t have to lose a parent to ALS. His historic $58 million gift will advance more clinical trials, expand clinic access, and provide some financial support for people living with ALS. Learn more here:
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@alsassociation
The ALS Association
6 years
We’re on our way to growing the Carmen Schentrup ALS Research Fund to 20x Carmen’s initial gift of $5628.84! Won’t you join us in Carmen’s quest to find a cure for #ALS ? Donate here: #CarmensDream #ALSresearch #MSDstrong
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@alsassociation
The ALS Association
6 years
We'd like to extend a special thanks to @terrellowens for his recent donation in memory of Dwight Clark. Thank you for raising awareness for #ALS and vital funds for #ALSResearch , #ALSCare & #ALSAdvocacy through your recent collaboration with @Represent .
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@alsassociation
The ALS Association
2 years
(1/2) BREAKING NEWS: Thanks to the tireless work of #ALSAdvocates across the country, the U.S. Senate just PASSED the #ACTforALS Act! This is a giant milestone in accelerating access to promising treatments for #ALS and to find urgently needed new treatments.
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@alsassociation
The ALS Association
7 years
BREAKING #ALS NEWS! @US_FDA approved 1st new drug for ALS in 22 yrs! We applaud FDA for swift approval of Radicava
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@alsassociation
The ALS Association
6 years
Incredible! Donors continue to match Carmen's original gift of $5,628.84. We're getting close to reaching our goal & EVERY dollar counts! From us & Carmen's family, THANK YOU for supporting #CarmensDream of finding a cure for #ALS ! Donate here: #MSDStrong
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@alsassociation
The ALS Association
6 years
Happy 61st birthday to former @49ers player @DwightC87 ! He’s bravely fighting #ALS and we wish him the best.
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@alsassociation
The ALS Association
2 years
(1/3) BREAKING: @US_FDA ’s Advisory Committee voted 7 to 2 for recommending approval for #AMX0035 . We applaud and thank the FDA Advisory Committee for their vote to support approval of AMX0035 and we urge the FDA to swiftly approve. Americans living with #ALS cannot wait.
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@alsassociation
The ALS Association
10 years
Thank you for your generosity! To date, we have received $88.5 million in donations - http://t.co/KnsYarLxfZ. #IceBucketChallenge .
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@alsassociation
The ALS Association
1 year
(1/2) Another victory for the ALS community! Tofersen is the second treatment approved for ALS in less than a year and the third since 2017. This gene-based therapy is approved for treating people living with SOD1-ALS. Thanks to the entire community for your advocacy!
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@alsassociation
The ALS Association
6 years
The Carmen Schentrup ALS Research Fund has grown by more than 10x! We & Carmen's family are so grateful & humbled at the outpouring of support for #CarmensDream . Our new goal is $112,576.80. Help support the most promising #ALSresearch : #ALS #MSDstrong
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@alsassociation
The ALS Association
3 years
@SurvivorPenner So terribly sorry to hear this news, Jonathan. She was a magnificent warrior against ALS, as are you. You and your family have our deepest condolences.
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@alsassociation
The ALS Association
4 years
We join the ALS community in mourning the loss of the legendary Hollywood publicist Nanci Ryder. #TeamNanci brought together a powerhouse team of friends including Renée Zellwegger, Courtney Cox, and Reese Witherspoon to lead the fight against #ALS .
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@alsassociation
The ALS Association
2 years
@BrainstormCell People living with ALS need new treatments now. We are excited that BrainStorm intends to apply for approval of NurOwn. We continue to encourage BrainStorm to file its application as soon as they are ready, and for @US_FDA to review the application as quickly as possible.
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@alsassociation
The ALS Association
10 years
Learn about global #alsresearch that we are funding. #StrikeOutALS http://t.co/F3VZ1OM2Ue
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@alsassociation
The ALS Association
9 years
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@alsassociation
The ALS Association
5 years
We're excited to share the news that we have made a $1 million investment into the Phase I trial of AT-1501, a potential ALS therapy developed by @ALSTDI . Anelixis Therapeutics announced the first person received AT-1501 today. 1/3
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@alsassociation
The ALS Association
7 years
Thank you for meeting with your constituents living with #ALS , @SpeakerRyan , and hearing their stories during #ALSHillDay17
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@alsassociation
The ALS Association
6 years
Thanks to the leadership of Steve Gleason & the support of advocates across the country, the Steve Gleason Enduring Voices Act is permanent! We were proud to play a part in advocating for this important piece of legislation! Read more: #ALS @TeamGleason
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@alsassociation
The ALS Association
5 years
It's Valentine's Day! Help us spread a lot of love & #ALSAwareness today. Compared to the immense challenge of living with #ALS , this is so, so easy. Be like Courteney & #VoiceYourLove for someone or something important to you. #MND
@CourteneyCox
Courteney Cox
5 years
When was the last time you told someone you love them? Today we’re launching the Voice Your Love campaign to raise awareness about #ALS and bring a little more love into the world. @alsagoldenwest #VoiceYourLove
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@alsassociation
The ALS Association
4 years
Former @Saints player and #ALS advocate, @SteveGleason , will receive the Congressional Gold Medal today. We are so proud of Steve and all the great work that @TeamGleason does for #OurALSCommunity . Please join us in congratulating him on this special day!
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@alsassociation
The ALS Association
7 years
Hundreds of patients are gathered in the halls of the U.S. Senate to oppose #GrahamCassidy at today's Senate Finance Committee hearing
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@alsassociation
The ALS Association
4 years
Today we are announcing a $3M commitment ($1M/yr for 3 yrs) to @MGHNeurology to support the first ever platform trial for #ALS . Read more:
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@alsassociation
The ALS Association
2 years
We are deeply saddened by the loss of @sandymorris333 . She was a fierce advocate, a devoted mother and wife, and a friend to the entire ALS community. We are thinking of her family and are grateful for her impact in the fight to end ALS.
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@alsassociation
The ALS Association
6 years
We're excited to support @Brewers catcher @JacobNottingham in his mission to #StrikeOutALS in memory of his aunt & grandmother & the many others who've lost their lives to #ALS . Good luck in this afternoon's game, Jacob! #OurALSCommunity
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@alsassociation
The ALS Association
7 years
We’re proud to partner with @MLB to honor @PeteFrates3 by tackling the high cost of #ALS health care! #MLBFightsALS
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@alsassociation
The ALS Association
4 years
In response to the results of the #AMX0035 phase 2 trial published today, @alsassociation and @iamalsorg launched a petition urging @AmylyxPharma and @US_FDA to get the drug to market as soon as possible. Sign today at #ALS #ALSAdvocacy #OurALSCommunity
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@alsassociation
The ALS Association
3 years
BREAKING: The Senate just passed a resolution to make May 2021 #ALSAwareness Month! @ChrisCoons and @SenatorBraun know that #EveryMomentMatters for people with #ALS and their loved ones. We thank them and all Senate #ALS champions for joining our fight to end ALS.
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@alsassociation
The ALS Association
5 years
Today is the 80th Anniversary of Lou Gehrig's farewell speech. Lou raised awareness of a disease that was virtually unknown at the time and made him the face and name of #ALS for decades to come. Read more: #MND #ALSAwareness #LouGehrig
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@alsassociation
The ALS Association
4 years
We are fighting to change the world for the entire ALS community! Special thanks to @iamalsorg and everyone who braved the rain in Times Square today to raise awareness for ALS! #CuresforAll #OurALSCommunity
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@alsassociation
The ALS Association
5 years
It is with heavy hearts that we share that Stephen Winthrop, Chair of The ALS Association Board of Trustees and person with ALS, died peacefully early this morning. Our hearts are with his wife, Jane, and their two daughters.
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@alsassociation
The ALS Association
1 year
Congratulations #SDSU Aztecs on your win tonight and best of luck in the national championship game! Thank you for all you do to help raise awareness of #ALS . #FinalFour
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@alsassociation
The ALS Association
6 years
“The Ice Bucket Challenge was the beginning of ending #ALS ,” - Patt Quinn. Read more about how three years later, we are beginning to see the tremendous payoff of the #ALSIceBucketChallenge :
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@alsassociation
The ALS Association
3 years
⚾ Today is #LouGehrigDay ! Thank you to @MLB , the #ALS community, and the Lou Gehrig Day Committee who made this #ALSAwareness day possible. Learn more:
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@alsassociation
The ALS Association
3 years
HUGE NEWS! The Senate has recommended $40M for the DOD ALSRP and $10M for the CDC National ALS Registry in their FY2021 appropriations bills. THANK YOU to the ALS community and our ALS champions in the Senate for making this happen!
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@alsassociation
The ALS Association
3 years
Thanks to the leadership of ALS champions @SenWhitehouse @SenTomCotton @ChrisCoons & @SenatorBraun , the Senate passed a fix to allow people with #ALS to receive the #SSDI waiting period waiver for applications before Dec. 23. Now the House must act.
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@alsassociation
The ALS Association
10 years
#IceBucketChallenge donations exceed $94 million. Thank you for your support! http://t.co/vLkQPG2lmH
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@alsassociation
The ALS Association
5 years
We're saddened to hear that Stephen Hillenburg, ‘Spongebob’ creator and two-time Emmy winner, has passed away from #ALS at the age of 57. He gave the world a show enjoyed by millions. Our hearts go out to his family & friends. #MND #OurALSCommunity
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@alsassociation
The ALS Association
6 years
We are very sorry to share that Anthony Senerchia, co-founder of #ALSIceBucketChallenge passed away on Saturday. Please see this video to learn more about him and his wife, Jeanette, and how they helped inspire a global phenomenon.
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@alsassociation
The ALS Association
5 years
We’re so happy to have you voicing your love with us, @CourteneyCox . Thank you! #VoiceYourLove #ALS
@CourteneyCox
Courteney Cox
5 years
When was the last time you told someone you love them? Today we’re launching the Voice Your Love campaign to raise awareness about #ALS and bring a little more love into the world. @alsagoldenwest #VoiceYourLove
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@alsassociation
The ALS Association
1 year
BREAKING! After our repeated requests to discuss their refusal to cover Relyvrio, Cigna has agreed to meet with us. We will keep you posted.
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@alsassociation
The ALS Association
2 years
(1/5) AMAZING NEWS! If you took the Ice Bucket Challenge, you helped deliver AMX0035, the first newly developed treatment approved for ALS in years! THANK YOU! AMX0035 slows progression of ALS and extends life for people living with ALS.
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@alsassociation
The ALS Association
4 years
The House has approved two key appropriations: $10M to the CDC Registry and $20M to the DOD ALS Research Program, doubling funds available to understand the increased risk of ALS for veterans. Deep gratitude to #OurALSCommunity for your tireless #ALSAdvocacy !
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@alsassociation
The ALS Association
2 months
Thank you to Majority Leader @SenSchumer for meeting with the @alsassociation and #ALS advocates today to discuss increasing ALS research funding and passing the #ALSBetterCareAct ! #ALSAdvocacy #FundALSResearch
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@alsassociation
The ALS Association
3 years
A new provisional approval pathway that will accelerate access to promising new treatments is urgently needed. Thank you @RepWesterman , @RepGallagher , @RepMikeQuigley , & @RepSwalwell for reintroducing the #PromisingPathwayAct in the House and supporting people with #ALS .
@RepWesterman
Rep. Bruce Westerman
3 years
Today, I reintroduced the Promising Pathway Act with @RepGallagher , @RepMikeQuigley , and @RepSwalwell to: ✅Cut red tape to bring therapies for terminal patients to market faster ✅Spark competition between small and large pharma companies Learn more👇
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@alsassociation
The ALS Association
9 months
We are saddened to hear of the passing of Bryan Randall. Our hearts go out to his friends and family.
@people
People
9 months
Sandra Bullock's Longtime Partner Bryan Randall Dead at 57 After Private 3-Year Battle with ALS
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@alsassociation
The ALS Association
3 years
Thank you @POTUS for supporting the ALS community by joining our #ALSChampions in Congress and signing the fix to the ALS Disability Insurance Access Act. Your support means all people living with #ALS can immediately access their #SSDI benefits. Read more
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@alsassociation
The ALS Association
4 years
Congratulations to #ReneeZellweger for taking home Best Actress at #Oscars2020 for her amazing performance in @Judy . Renée is a huge #ALS advocate, helping raise awareness and donations. We are thrilled for Renée and thank her for being part of our fight.
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@alsassociation
The ALS Association
2 years
Our hearts are with Margot and her loved ones as she faces this devastating disease. Thank you, @StarTrek community, for your support in her fight against #ALS !
@JeriLRyan
Jeri Ryan
2 years
My dear friend Margot needs our help. Please click the link to donate at and RT this video to spread the word! 🖖🏼❤️ #trekagainstals
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@alsassociation
The ALS Association
5 years
The ALS Association, ALS Finding A Cure, and @MDAorg award a $2.5 million clinical trial grant to study novel #ALS therapy. This fundingwill allow Dr. Appel to expand the first-in-human study that demonstrated promising results. Read more: #ALSresearch
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@alsassociation
The ALS Association
6 years
We were sad to hear about Dwight Clark's passing this evening and send our condolences to his loved ones. #ALS #MND #OurALSCommunity
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@alsassociation
The ALS Association
7 years
We are honored to be partnering w/ @MLB for #MLBFightsALS ! Read more here and stay tuned for details! #strikeoutALS
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@alsassociation
The ALS Association
9 months
It is with heavy hearts that we share that our colleague Jeremy Holden, host of our Connecting ALS podcast, passed away earlier this week. Jeremy had been with us since 2017 and was truly dedicated to our cause and the ALS community. He was also a well-respected colleague and…
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@alsassociation
The ALS Association
4 years
In his farewell speech, #LouGehrig called himself the luckiest man on the face of the earth. He wasn’t thinking of himself, but rather thanking those who had helped him in life. Tomorrow is Lou's birthday. Read more about his legacy & courage: #ALS
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@alsassociation
The ALS Association
5 years
(1/2) Carmen Schentrup dreamed of becoming a medical researcher & focusing on a cure for #ALS . Her life was tragically cut short in last year's horrific Parkland shooting. However, #CarmensDream to contribute to a cure is still being realized in a significant way. #ALSResearch
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@alsassociation
The ALS Association
8 years
The #IceBucketChallenge impact grows as researchers identify one of the most common gene contributors to #ALS
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@alsassociation
The ALS Association
4 years
We are excited to endorse the Promising Pathways Act - announced by @SenatorBraun at the #ALSAdvocacy Conference - to create a faster pathway for new therapies.
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@alsassociation
The ALS Association
2 years
Thank you to @IAMALSorg , @MDAorg and the many passionate advocates with #ALS who partnered to pass the #ACTforALS Act. This is an historic moment that will directly impact the lives of people with #ALS .
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@alsassociation
The ALS Association
9 years
July 4 1939: #LouGehrig 's speech brings national attention to #ALS . His words continue to inspire. http://t.co/fhlz85mDoo
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@alsassociation
The ALS Association
3 years
HUGE #ALSAdvocacy News: the U.S. House of Representatives PASSED the ALS Disability Insurance Act! Thanks to the tireless work of ALS advocates & House champions this 4 year fight for immediate access to #SSDI benefits for people with #ALS is almost over.
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@alsassociation
The ALS Association
4 years
This month we're helping create broader awareness of ALS worldwide. Please share this post with your social network build an even larger and more powerful community of people working together to find effective treatments and a cure. #ALSInThisTogether #ALSAwarenessMonth
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@alsassociation
The ALS Association
7 years
This year, Walks to Defeat ALS raised more than $24 million to support the #ALS community. Thank you for being a part of #OurALSStory
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@alsassociation
The ALS Association
6 years
Steve Gleason is being considered for the Congressional Gold Medal in recognition of his work through the Gleason Initiative Foundation. To show your support, contact your Congressional leaders. #ALSAdvocacy #OurALSCommunity #NoWhiteFlags @TeamGleason
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@alsassociation
The ALS Association
7 years
“It is refreshing to see rival Duke and UNC basketball coaches come together to fight ALS” – Dr. Bedlack, @DukeU #ALS Clinic.
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@alsassociation
The ALS Association
3 years
People living with #ALS urgently need effective new treatments. The reintroduced #ACTforALS Act will help us reach this goal. That’s why we’re joining @iamalsorg and @MDA_Advocacy to call on Congress to support and pass the ACT for ALS Act now. Read more:
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@alsassociation
The ALS Association
6 years
#ALS is incurable, but only for now. Scientists are going all-in to find a cure, and they’re making big progress. New technology, new discoveries, and new research are starting to make a difference:
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@alsassociation
The ALS Association
10 years
It's literally "soaked" the nation...the #IceBucketChallenge . #StrikeOutALS http://t.co/ruuyt83Ymr
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@alsassociation
The ALS Association
4 years
We can’t wait until this is over to find a cure for ALS. Please visit today and find out how we can end ALS together. #WeCantWait #ALS #ALSawareness
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@alsassociation
The ALS Association
5 years
“There will be a cure for ALS and it won’t be in the distant future.” -Don Cleveland, Ph.D. #ALS #MND #ALSResearch #ChallengeMe #ALSIceBucketChallenge
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@alsassociation
The ALS Association
7 years
This is a very important day in the fight against ALS. You can learn more about the new drug at .
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@alsassociation
The ALS Association
5 years
It is with heavy hearts that we share the news that Ryan Farnsworth, whose story is featured as a part of our #VoiceYourLove campaign, died yesterday evening surrounded by his family. #ALS #MND #OurALSCommunity
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@alsassociation
The ALS Association
2 years
(1/2) BREAKING: The #ACTForALS Act has been signed into law. Thank you to all #ALSAdvocates for the hard work it took to get this historic bill across the finish line. Thank you @POTUS for supporting people with #ALS & their loved ones. Your tireless support makes a difference!
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@alsassociation
The ALS Association
5 years
Great news! The Senate has taken the first step toward doubling funding for #ALS research at the DOD, from $10M to $20M. The House has already approved and now the full Senate must approve. We thank ALS advocates and our ALS champions in Congress. /1
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@alsassociation
The ALS Association
2 years
Today @alsassociation , @iamalsorg and @MDAorg are calling on Congress to fully fund the #ACTforALS Act and increase investments in #ALS research programs at @DeptofDefense , @NIH and #ARPA -H. Read our joint statement:
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@alsassociation
The ALS Association
3 years
(1/5) The @US_FDA has agreed to the ALS Association’s urgent request that they hear directly from people with ALS about their willingness to accept the risks of promising experimental therapies.
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@alsassociation
The ALS Association
5 years
Every 90 minutes, someone is diagnosed with #ALS & someone passes away from ALS. And 5,000+ people are diagnosed each year. Greater #ALSAwareness & more #ALSResearch are needed. Won't you help by retweeting or making a donation?
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@alsassociation
The ALS Association
5 years
There aren't enough words to express our gratitude for the family members who care for loved ones with #ALS every day. Thank you so much, caregivers! You're amazing. Watch our special video: . #MND #ALSCare #OurALSCommunity #NationalFamilyCaregiversMonth
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@alsassociation
The ALS Association
4 months
It is with heavy hearts that we share @adamfwilson426 , one of the founders of the @LG4Day Committee, has passed away. Adam inspired @MLB and its teams to create Lou Gehrig Day and united the #ALS community to celebrate it. He was a great friend and devoted father to Avery. Our…
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@alsassociation
The ALS Association
3 years
(1/3) BREAKING: After further conversation with the @US_FDA , we have secured its consent to livestream the We Can’t Wait Action meeting on May 25 at 10am ET.
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@alsassociation
The ALS Association
7 years
You can help continue lead the fight to treat and cure ALS by making a contribution on #GivingTuesday . Learn more: .
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@alsassociation
The ALS Association
4 years
More good news from Congress: the Senate approved $20M for @DeptofDefense ALS Research Program (ALSRP), $41.7B for @NIH , and $10M for @CDCgov 's National #ALS Registry. Thanks #ALSAdvocates from across the country for fighting to protect and increase this critical research funding
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@alsassociation
The ALS Association
2 years
Breaking news!
@AmylyxPharma
Amylyx
2 years
We are excited to share that the FDA has accepted for priority review the New Drug Application (NDA) for AMX0035 for the treatment of #ALS .
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@alsassociation
The ALS Association
9 years
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@alsassociation
The ALS Association
5 years
The Stephen Michael Gleason Congressional Gold Medal Act (S.2652) just passed the House! We were honored to support this important initiative to #HonorGleason . #ALS #MND #OurALSCommunity
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