Muscular Dystrophy Association Profile Banner
Muscular Dystrophy Association Profile
Muscular Dystrophy Association

@MDAorg

21,117
Followers
2,034
Following
2,929
Media
25,402
Statuses

MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy , #ALS , and related #neuromuscular diseases.

Nationwide
Joined June 2009
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@MDAorg
Muscular Dystrophy Association
10 years
Awesome! MDA National Goodwill Ambass. Reagan Imhoff with her new friends @officialR5 at the #MDAtelethon ! http://t.co/O1LkU8OMKN
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@MDAorg
Muscular Dystrophy Association
10 years
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@MDAorg
Muscular Dystrophy Association
5 years
Meet Brant Boersma, son of Dane Boersma the founder of @DutchBros who was diagnosed in 2005 w/ #ALS . After Dane's passing & in memory of his father, Brant founded a new passion, to raise funds for ALS research. Read about Brant's dream. #EndALSwithMDA
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@MDAorg
Muscular Dystrophy Association
6 years
Our generous partner @harleydavidson has donated a brand-new custom $30,000 2019 H-D Road Glide Special & ultimate Milwaukee Experience to benefit our #RideForStrength ! Get your bid on here:
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@MDAorg
Muscular Dystrophy Association
4 years
. @KevinHart4real is right – one dollar, one million dollars – whatever you can give will help us ensure everyone has equal access to opportunity, care, & scientific research! Please consider a gift at & see you Oct. 24 on @LOLNetwork . #MDAKevinHartTelethon
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@MDAorg
Muscular Dystrophy Association
2 years
It's #NationalTellAJokeDay , and #MDA National Ambassador Ethan LyBrand is joined by his favorite comedian, Ben Schwartz! This duo is guaranteed to make you smile. Show them some love by donating: #JokeOfTheDay Thanks to our special guest, @rejectedjokes !
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@MDAorg
Muscular Dystrophy Association
4 years
Tune in this Sunday the 15th to watch @Lordminion777 play games for #MDA #LetsPlay Live at
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@MDAorg
Muscular Dystrophy Association
7 years
We're deeply saddened by the death of beloved comedian, humanitarian & former MDA telethon star Jerry Lewis.
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@MDAorg
Muscular Dystrophy Association
6 years
For 38 years H-D riders have shared the freedom of the road with MDA families. Show your support for @harleydavidson #HD115 and our #RideforStrength event this #LaborDay . Click on the link to help fund breakthroughs & help MDA find a cure.
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@MDAorg
Muscular Dystrophy Association
6 years
We can’t wait to see Jace & his family at our Parade of Heroes! 1 more day until we celebrate the strength & passion kids like Jace bring to keep our fight going strong. Show your support in our fight against muscular dystrophy: #RideForStrength #hd115
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@MDAorg
Muscular Dystrophy Association
6 years
Bid here: It’s the final 2 days to bid to win a 2019 @harleydavidson Road Glide Special and ultimate Milwaukee experience prize package! All proceeds benefit MDA and our mission to transform the lives of people affected with neuromuscular disease.
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@MDAorg
Muscular Dystrophy Association
2 months
MDA President & CEO, Donald S. Wood, Ph.D introduced the #MDAconference keynote speaker, #ALS patient and advocate Brooke Eby! Brooke's speech left us inspired and motivated to approach our work with renewed focus and determination. Stay tuned for the link to watch! @limpbroozkit
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@MDAorg
Muscular Dystrophy Association
6 years
Thank you to all of the riders in today's @HarleyDavidson #HD115 parade who #RideforStrength and helped raise money to help find a cure for neuromuscular diseases.
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@MDAorg
Muscular Dystrophy Association
4 years
A BIG thank you to @kevinhart4real & ALL who showed up for & tuned into the FIRST #MDAKevinHartTelethon ! Tonight we've raised $10,548,454 - and we're not done yet. Visit for more ways to give & advocate so that ALL have equal access to care & opportunity.
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@MDAorg
Muscular Dystrophy Association
2 years
Even when headed for the #WorldSeries , @rhyshoskins is looking to raise funds & awareness for #MDA ! BID NOW on a ball signed by Rhys & his teammates – NLCS Champion @Phillies . Bidding ends 11/3 at 12PM EST. All Proceeds go to MDA! @jaymehoskins #Phillies
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@MDAorg
Muscular Dystrophy Association
5 years
. @BrandonBarash lost a childhood friend to a rare form of #musculardystrophy and has been involved with the MDA ever since. As an actor, father and advocate for the MDA learn how Brandon finds the strength to help others and work to be part of the change.
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@MDAorg
Muscular Dystrophy Association
4 years
Thank you to our partners @JiffyLube who will be matching every dollar you donate to the #MDAKevinHartTelethon , up to $100,000, through Saturday, October 24! Please go to TODAY – every dollar you give means two to @MDAorg thanks to our friends @JiffyLube !
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@MDAorg
Muscular Dystrophy Association
3 years
@bsw5020 @MDA_Advocacy @iamalsorg Hi Brian! We stand with you and look forward to supporting and working diligently to pass a strong #ACT4ALS bill ASAP. We hope it gets reintroduced soon! @MDA_Advocacy
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@MDAorg
Muscular Dystrophy Association
5 years
1-week from today is our 22nd Annual #NYMuscleTeam gala, a night dedicated to helping kids & adults live longer & grow stronger. Can’t wait to see @WWE Hall of Famers @_SgtSlaughter & @real_steamboat there! It’s not too late for you to join us.
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@MDAorg
Muscular Dystrophy Association
3 years
Honored to have @Colts @TheNyNy7 as our 2021 National Spokesperson! Nyheim is a longtime supporter & #MDA family member. We look forward to working with him to raise awareness & funds to support people living with #neuromuscular diseases.
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@MDAorg
Muscular Dystrophy Association
5 years
On Friday, May 10th, support MDA on our journey to #EndALSwithMDA by honoring Dane Boersma, who lost his life to ALS. Visit a @DutchBros location to Drink One for Dane. Your purchase will support MDA’s ALS research to help find effective treatments and cures.
@Upworthy
Upworthy
5 years
Dutch Bros Coffee hopes to raise $1.5 million for ALS research on Drink One for Dane Day.
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@MDAorg
Muscular Dystrophy Association
3 years
For 15 years, @DutchBros has raised funds for #MDA in honor of their co-founder Dane Boersma who lost his life to #ALS . This year $1,908,745 was raised, funding research, care and advocacy to find treatments and cures to #EndALS . THANK YOU, Dutch Bros!
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@MDAorg
Muscular Dystrophy Association
3 years
@TurnerSportsEJ On behalf of all of us at MDA, we are so very sorry for your loss. His life brought so much joy & hope to so many people. Your family’s love for him was & will always be the definition of what family means. We are grateful to have known him & his memory is a blessing to us all.
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@MDAorg
Muscular Dystrophy Association
2 years
We love our #MDA National Spokesperson @TheNyNy7 — Thank you @coltscommunity #ForTheShoe
@MaryFiance
Mary Fiance
2 years
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@MDAorg
Muscular Dystrophy Association
2 months
Brooke Eby, diagnosed with #ALS at age 33, delivered a powerful address at the 2024 #MDAconference as keynote speaker. Tune in to the full speech: #MDAconference #EndALS @limpbroozkit
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@MDAorg
Muscular Dystrophy Association
9 years
Congrats to Eddie Redmayne on his #oscar win! Thank you for bringing #ALS awareness into the millions of homes watching tonight!
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@MDAorg
Muscular Dystrophy Association
10 months
Proud to represent #MDA with the US Secretary of Transportation @PeteButtigieg for our #neuromuscular community and all people with disabilities to have #AccessibleTransportation . Tune in at 1pm to hear @VP Kamala Harris:
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@MDAorg
Muscular Dystrophy Association
6 years
Our partner @harleydavidson will be live in Milwaukee with our National Ambassador Faith! Tune-in on our Facebook page at 11:00am CT to hear how MDA, Faith and H-D riders are celebrating Harley’s 115th Anniversary this holiday weekend. #RideforStrength
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@MDAorg
Muscular Dystrophy Association
4 years
#ThankYou #Broadway star @IamChrisMann for the beautiful rendition of You’ll Never Walk Alone. Join Chris and pledge your support to #MDA today to provide critical funds for individuals living with #neuromuscular diseases.
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@MDAorg
Muscular Dystrophy Association
6 years
Thank you to our H-D riders who participated in the #RideforStrength this past weekend at #HD115 in Milwaukee. Our 38-day challenge isn’t over yet. Help us get to $1.15MM.
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@MDAorg
Muscular Dystrophy Association
1 year
Thank you, @heykayadams for always supporting #MDA 's mission to empower people living with #MuscularDystrophy , #ALS , and related #neuromuscular diseases. We are so grateful! @TheNyNy7 @BuffaloBills #BillsMafia
@UpAndAdamsShow
Up & Adams
1 year
It’s officially official. @heykayadams figured out how to use a QR code and has donated $1k to @MDAorg ! Donate here: 📺: @FanDuelTV | @TheNyNy7 | @BuffaloBills
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@MDAorg
Muscular Dystrophy Association
5 years
While there is no treatment to reverse the progression of #ALS , there are treatments that can slow the disease course. No one should be alone for this journey. If you are diagnosed with ALS call the MDA resource center 1-833-ASK-MDA-1 or email resourcecenter @mda .org.
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@MDAorg
Muscular Dystrophy Association
4 years
We’re kicking off @harleydavidson #MDA Ride for Life this #LaborDay Weekend! Join us as we ride virtually and raise funds to support the MDA community!
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@MDAorg
Muscular Dystrophy Association
5 years
TY to our @harleydavidson riders who inspire strength during this season of giving. “For Rupert, my stepson who is 35 and living with Duchenne Muscular Dystrophy. MDA gives us the comfort in knowing we are not in this fight alone.” #MDAGiveStrength
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@MDAorg
Muscular Dystrophy Association
3 years
On the last day of #MDA #Shamrocks , our hero @TheNyNy7 bought shamrocks in the names of all his @Colts teammates! THANK YOU so much for your incredible support to fund research and care for cures! #togetherwefight #musculardystrophy #ALS #neuromuscular
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@MDAorg
Muscular Dystrophy Association
5 years
Ed Tessaro, an admired member of the MDA community, has turned his ALS diagnosis into a platform for advocacy helping people understand and learn more about the disease as we work to #EndALSwithMDA . Learn more about Ed's impact here.
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@MDAorg
Muscular Dystrophy Association
3 years
Way to go @LG4Day #LouGehrigDay #MDA team with @MLB @Mariners @pjgreen ⚾️⚾️⚾️⬇️⬇️⬇️
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@MDAorg
Muscular Dystrophy Association
8 years
What exactly is muscular dystrophy & who can it affect? Learn more here:
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@MDAorg
Muscular Dystrophy Association
8 years
. @TurnerSportsEJ 's son Michael inspires him to #LiveUnlimited . Watch and share your own! .
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@MDAorg
Muscular Dystrophy Association
6 years
. @Target 's latest women's fashion line, Universal Thread, was designed with all bodies in mind, including those with disabilities and sensory-sensitivities and will be available in stores and online starting Feb. 4. #UniversalThread
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@MDAorg
Muscular Dystrophy Association
1 year
Congratulations to @MeritCudkowicz , MD, MSC from @MGHNeurology and renowned neurologist and clinical researcher in #ALS , the recipient of the second annual #MDA Legacy Award for Achievement in Clinical Research. The award was presented this morning at the 2023 #MDAconference .
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@MDAorg
Muscular Dystrophy Association
8 years
RT @harleydavidson : #HarleyWomen , help support the MDA Women's Ride #DaytonaBikeWeek
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@MDAorg
Muscular Dystrophy Association
5 years
Jerry Lewis would have turned 93 today. Will you take the Jerry Lewis challenge and make a donation in his honor today?
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@MDAorg
Muscular Dystrophy Association
7 years
MDA would not be what it is today if it weren't for Jerry Lewis & his tireless efforts. Thank you, Jerry ❤️
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@MDAorg
Muscular Dystrophy Association
10 months
#MDA is wishing our National Spokesperson @TheNyNy7 a speedy and full recovery. We are grateful for his support of our mission to accelerate research, advance care, and advocate for MDA families and send our love to him, his family, & #BillsMafia . #TogtherWeFight @BuffaloBills
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@MDAorg
Muscular Dystrophy Association
2 months
Earlier, #MDA ’s @PMelmeyer & @MindyHSpeaks were honored to be at @WhiteHouse w/ @SecButtigieg , @USDOT leaders, @SenDuckworth & passionate #disability advocates to celebrate the Biden Administration’s proposed rule to improve #AccessibleAirTravel for passengers w/ disabilities.
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@MDAorg
Muscular Dystrophy Association
3 years
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@MDAorg
Muscular Dystrophy Association
1 year
MDA National Spokesperson & @BuffaloBills running back @TheNyNy7 will be representing #MDA on game day, December 1, for @NFL 's #MyCauseMyCleats ! Thank you for raising awareness & funds for MDA's mission for the #neuromuscular community. Learn more:
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@MDAorg
Muscular Dystrophy Association
6 years
Safe travels to our @harleydavidson riders on their #RideforStrength journey to Milwaukee to celebrate #HD115 & their commitment to help transform the lives of people affected by neuromuscular disease. Sponsor a rider & help find cures & save lives today!
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@MDAorg
Muscular Dystrophy Association
7 years
The love Jerry Lewis had for “his kids” is incomparable. Thank you, Jerry. You are our hero. #rememberingjerry
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@MDAorg
Muscular Dystrophy Association
11 months
#MDA celebrates the @US_FDA accelerated approval of ELEVIDYS for the treatment of #Duchenne #MuscularDystrophy ( #DMD ). ELEVIDYS is the first gene therapy for DMD, and will be made available and marketed in the U.S. by @Sarepta . Learn more:
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@MDAorg
Muscular Dystrophy Association
9 years
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@MDAorg
Muscular Dystrophy Association
6 years
One year ago, we lost a man who helped shape the Muscular Dystrophy Association into the organization that it is today. We are forever grateful for the love, passion, and generosity of the great Jerry Lewis. ❤️
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@MDAorg
Muscular Dystrophy Association
2 years
We are so grateful to @Phillies @rhyshoskins and @jaymehoskins for their support! 👏💛💙
@JClarkNBCS
John Clark
2 years
👏🏼 @rhyshoskins and his wife @jaymehoskins hosted a Muscular Dystrophy Association @MDAorg fundraiser tonight at Yards Brewing Phillies ownership, management, teammates were there to meet with Phillies fans Hear from Rhys on NBC10 News at 11PM and Philly Live Sports
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@MDAorg
Muscular Dystrophy Association
4 years
#ThankYou to all who participated in this year’s #DrinkOneforDane fundraiser with @DutchBros . Your generosity and support helped raise $1.39M in our fight to #EndALS ! It's not too late to pick up your limited edition mug and sticker combo at !
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@MDAorg
Muscular Dystrophy Association
6 years
On Labor Day our #RideforStrength team rode to Milwaukee to celebrate @HarleyDavidson ’s #HD115 anniv & raise funds to benefit vital research. We are closing in on our goal but need your help to get us to $1.15M. Click the link in our blog to donate today.
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@MDAorg
Muscular Dystrophy Association
4 years
Ready for another joke? #MDA National Ambassador Ethan LyBrand is here with one of his favorites to brighten your day! #goodnewsoftheday #MDA #JokeoftheDay
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@MDAorg
Muscular Dystrophy Association
4 years
@KevinHart4real is right! Now is your chance to get involved with #MDAKevinHartTelethon . You can start donating today at . And don't forget to tune in Saturday, October 24th at 8 PM EST @LOLNetwork on @YouTube .
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@MDAorg
Muscular Dystrophy Association
3 months
#MDA is pleased to announce @limpbroozkit , #ALS patient and advocate, as the Keynote Speaker at the 2024 MDA Clinical & Scientific Conference. Her presentation will take place on March 4 at 10am ET. Read here for more details: #MDAconference
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@MDAorg
Muscular Dystrophy Association
5 years
Anyone can support #ALS awareness month! Donate today to help drive innovative research and lifechanging care for those living with ALS:
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@MDAorg
Muscular Dystrophy Association
4 years
Its National #FireFighterAppreciationDay ! Join us in thanking @IAFFNewsDesk #firefighters across the country for going above & beyond the call of duty to support #MDA in our goal to transform the lives of individuals living with related #neuromuscular diseases. Thank you!
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@MDAorg
Muscular Dystrophy Association
7 years
At exactly this time, every Labor Day for 45 years, Jerry sang “You’ll Never Walk Alone” after our 21 ½-hour telethon #RememberingJerry
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@MDAorg
Muscular Dystrophy Association
6 years
“I have spent my life wanting to make a real change in this disease. Finally, we may be there. I am very hopeful. This is an emotional time for people in the field,” said Dr. Jerry Mendell of Nationwide Children’s Hospital in Columbus, Ohio
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@MDAorg
Muscular Dystrophy Association
4 years
Join #MDA & @HarleyDavidson for its first virtual #RideForLife ride taking place #LaborDay weekend in support of children & adults living with neuromuscular diseases! Register and donate today! Also, tune into the Celebration Ceremony Sept. 5 at 1PM ET!
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@MDAorg
Muscular Dystrophy Association
4 years
Compete for Charity! Registration for the #MDA #LetsPlay x #SuperSmashBros Open Tournament is here 🏆 Sign up now $10 entry fee! ($5 to MDA, $5 to the prize pool) 💰$250 🖥 NA Region 📅 Friday, July 10 🎮
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@MDAorg
Muscular Dystrophy Association
8 months
Excited to kick off #MuscularDystrophyAwareness Month & #30DaysOfStrength with #MDA National Spokesperson & @BuffaloBills running back @TheNyNy7 ! Join us in supporting the #neuromuscular community and donate $30 to get an MDA t-shirt just like Nyheim’s!
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@MDAorg
Muscular Dystrophy Association
5 years
Today is #DrinkOneForDane ! Head to your local @DutchBros for an afternoon drink & support #ALS research in honor of Dutch Bros founder Dane Boersma. Can’t enjoy a drink in store? Help them reach their goal by donating online today:
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@MDAorg
Muscular Dystrophy Association
2 months
BREAKING NEWS: #MDA ’s funding of foundational research leads to new drug approval by the @US_FDA of Duvyzat (Givinostat) to treat children and adolescents living with #DMD . Duvyzat (Givinostat) will be made available in the US by ITF Therapeutics:
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@MDAorg
Muscular Dystrophy Association
10 years
Rock out to a @bretmichaels performance of “Sweet Home Alabama” on the #MDATelethon ! http://t.co/iDsZULWExg. Thanks Bret for ALL you...
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@MDAorg
Muscular Dystrophy Association
7 years
Our #firefighters work unbelievably hard to help others in need, including #MDA families. We can't thank them enough 👏 @IAFFNewsDesk #IAFF
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@MDAorg
Muscular Dystrophy Association
5 years
Justin, who lives with congenital muscular dystrophy, is attending @WPI with hopes of one day becoming an MD researcher and finding a cure for CMD. #GivingTuesday is Nov. 27, and it takes less than 1 minute to show Justin your #MDAGiveStrength commitment:
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@MDAorg
Muscular Dystrophy Association
4 years
Thank you so much for supporting the mission of MDA!
@heykayadams
Kay Adams
4 years
YAYYYY!!! 😎🔥👏🏆 I just won 10K for @MDAorg ! ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ Thanks for hosting me @DraftKings - this week was so fun! Let’s do it again soon?
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@MDAorg
Muscular Dystrophy Association
5 years
This month in support of ALS awareness month double your impact by donating to MDA to support ALS research and your gift will be instantly MATCHED, up to $50,000, by a generous donor.
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@MDAorg
Muscular Dystrophy Association
3 years
For 67 years, @IAFFNewsDesk has been fundraising to save the lives of people living with #musculardystrophy , #ALS , and related #neuromuscular diseases. They are our heroes this #EMSWeek and every week! Thank you to MDA’s National Spokesperson @TheNyNy7 for this special message!
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@MDAorg
Muscular Dystrophy Association
2 years
This #InternationalFirefightersDay , join #MDA National Spokesperson @TheNyNy7 in supporting @IAFFNewsDesk #FilltheBoot to support research, care, and advocacy for families living with #musculardystrophy , #ALS , and related #neuromuscular diseases!
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@MDAorg
Muscular Dystrophy Association
10 years
Don't miss the one and only @bretmichaels perform on the #MDATelethon coming up next! http://t.co/9jW9KAzOIx #IAmProgress
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@MDAorg
Muscular Dystrophy Association
5 years
Today we #Honor911 and thank our partners, the @IAFFNewsDesk , as well as all those who lost their lives and bravely served our country. #NeverForget
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@MDAorg
Muscular Dystrophy Association
6 years
Look who held a lemonade stand this weekend and raised more than $250 for MDA! Way to go National Ambassador Faith! <3
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@MDAorg
Muscular Dystrophy Association
3 years
Only a few hours left to visit your local @DutchBros and #DrinkOneforDane to #endALS !
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@MDAorg
Muscular Dystrophy Association
1 year
It’s game day! We can’t wait to see #MDA National Spokesperson and @BuffaloBills running back @TheNyNy7 wearing his cleats for MDA out on the field for #BuffaloVsNewEngland tonight. Thank you for supporting our mission! Donate: #BillsMafia #MyCauseMyCleats
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@MDAorg
Muscular Dystrophy Association
2 years
#MDA National Spokesperson & @Colts running back @TheNyNy7 has a personal connection to the critical need to drive awareness, improve care, & advance research for people living with #neuromuscular diseases. Hear his story in our new #PSA & donate today at
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@MDAorg
Muscular Dystrophy Association
1 year
This #NationalPhilanthropyDay , we share our gratitude with all who support our mission to empower people living with #neuromuscular diseases. Join #MDA National Spokesperson & @NFL @BuffaloBills running back @TheNyNy7 in supporting MDA! #BillsMafia
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@MDAorg
Muscular Dystrophy Association
4 years
We couldn't be more ecstatic either! Join us and @KevinHart4real at to transform the lives of kids with disabilities and disadvantages. See you October 24th! #MDAKevinHartTelethon
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@MDAorg
Muscular Dystrophy Association
1 year
@LauraMclinn
Laura McLinn
1 year
We drove from Indianapolis to Detroit today to see our friend, @TheNyNy7 , play today. 🏈❄️ It was our first Bills game and it was pretty special!!! #BillsMafia made the day so fun for our Jordan (and us)! #TogetherWeFight #MuscularDystrophy @MDAorg #HinesHeroes
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@MDAorg
Muscular Dystrophy Association
2 years
The #ACTforALS just passed the US House! This bill would accelerate therapeutic development for all #NMDs , including #ALS . Thank you to all the advocates who made this happen. See our joint statement w. @iamalsorg & @alsassociation : #EndALS
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@MDAorg
Muscular Dystrophy Association
5 years
. @BillyGilman has been involved with MDA for over 20 years and continues to be inspired by those living w/ #neuromuscular diseases, who possess the power of will. Support the community he holds so close to his heart.
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@MDAorg
Muscular Dystrophy Association
6 years
A huge shoutout to our friends at @harleydavidson as they celebrate #HD115 and kick off their Annual Dealer Meeting! H-D & MDA joined forces 38 years ago and have raised millions to research neuromuscular disease. Here’s to many more years (and miles)!
@harleydavidson
Harley-Davidson
6 years
#MilwaukeeOrBust ! @speedydonahue is headed to the Southwest Ride Home starting from #SanDiego and heading to #Milwaukee for the #HD115 celebration. Follow along his journey as things kick off 8/21. #HarleyDavidson
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@MDAorg
Muscular Dystrophy Association
2 years
#MDA National Spokesperson @TheNyNy7 is "flipping the script and using the strength and power in his legs he has been blessed with to keep raising awareness and fighting for the cause." Read more from @GusAlexiou in @Forbes : #TogetherWeFight #neuromuscular
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@MDAorg
Muscular Dystrophy Association
8 years
Happy birthday to MDA champion extraordinaire @bryson_foster . Hope you have the sweetest 16, buddy!
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@MDAorg
Muscular Dystrophy Association
7 years
BREAKING NEWS: The FDA has granted approval for deflazacort (brand name Emflaza), by Marathon Pharma, to treat DMD.
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@MDAorg
Muscular Dystrophy Association
2 years
Thank you @jwyattsports for covering the #MDA Tribute Awards in Nashville and the courageous work of @TShawsTruth to #EndALS
@jwyattsports
Jim Wyatt
2 years
Former @Titans LB @TShawsTruth received the inaugural Muscular Dystrophy Association ( @MDAorg ) Tribute Award Thursday night. The award acknowledges Shaw's efforts supporting patients and families affected by neuromuscular diseases. READ @alsassociation
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