Meet Brant Boersma, son of Dane Boersma the founder of
@DutchBros
who was diagnosed in 2005 w/
#ALS
. After Dane's passing & in memory of his father, Brant founded a new passion, to raise funds for ALS research. Read about Brant's dream.
#EndALSwithMDA
We sat down w/
@yourpaljess
from
@92Y
to discuss how
#GivingTuesday
transformed into an international day of generosity & hope. This year support
#MDAGiveStrength
to give kids & adults w/ muscle diseases the strength to eat, breathe & walk. Learn more:
Our generous partner
@harleydavidson
has donated a brand-new custom $30,000 2019 H-D Road Glide Special & ultimate Milwaukee Experience to benefit our
#RideForStrength
! Get your bid on here:
.
@KevinHart4real
is right – one dollar, one million dollars – whatever you can give will help us ensure everyone has equal access to opportunity, care, & scientific research! Please consider a gift at & see you Oct. 24 on
@LOLNetwork
.
#MDAKevinHartTelethon
It's
#NationalTellAJokeDay
, and
#MDA
National Ambassador Ethan LyBrand is joined by his favorite comedian, Ben Schwartz! This duo is guaranteed to make you smile. Show them some love by donating:
#JokeOfTheDay
Thanks to our special guest,
@rejectedjokes
!
For 38 years H-D riders have shared the freedom of the road with MDA families. Show your support for
@harleydavidson
#HD115
and our
#RideforStrength
event this
#LaborDay
. Click on the link to help fund breakthroughs & help MDA find a cure.
We can’t wait to see Jace & his family at our Parade of Heroes! 1 more day until we celebrate the strength & passion kids like Jace bring to keep our fight going strong. Show your support in our fight against muscular dystrophy:
#RideForStrength
#hd115
Bid here: It’s the final 2 days to bid to win a 2019
@harleydavidson
Road Glide Special and ultimate Milwaukee experience prize package! All proceeds benefit MDA and our mission to transform the lives of people affected with neuromuscular disease.
MDA President & CEO, Donald S. Wood, Ph.D introduced the
#MDAconference
keynote speaker,
#ALS
patient and advocate Brooke Eby! Brooke's speech left us inspired and motivated to approach our work with renewed focus and determination. Stay tuned for the link to watch!
@limpbroozkit
A BIG thank you to
@kevinhart4real
& ALL who showed up for & tuned into the FIRST
#MDAKevinHartTelethon
! Tonight we've raised $10,548,454 - and we're not done yet. Visit for more ways to give & advocate so that ALL have equal access to care & opportunity.
.
@BrandonBarash
lost a childhood friend to a rare form of
#musculardystrophy
and has been involved with the MDA ever since. As an actor, father and advocate for the MDA learn how Brandon finds the strength to help others and work to be part of the change.
Thank you to our partners
@JiffyLube
who will be matching every dollar you donate to the
#MDAKevinHartTelethon
, up to $100,000, through Saturday, October 24! Please go to TODAY – every dollar you give means two to
@MDAorg
thanks to our friends
@JiffyLube
!
1-week from today is our 22nd Annual
#NYMuscleTeam
gala, a night dedicated to helping kids & adults live longer & grow stronger. Can’t wait to see
@WWE
Hall of Famers
@_SgtSlaughter
&
@real_steamboat
there! It’s not too late for you to join us.
Honored to have
@Colts
@TheNyNy7
as our 2021 National Spokesperson! Nyheim is a longtime supporter &
#MDA
family member. We look forward to working with him to raise awareness & funds to support people living with
#neuromuscular
diseases.
On Friday, May 10th, support MDA on our journey to
#EndALSwithMDA
by honoring Dane Boersma, who lost his life to ALS. Visit a
@DutchBros
location to Drink One for Dane. Your purchase will support MDA’s ALS research to help find effective treatments and cures.
For 15 years,
@DutchBros
has raised funds for
#MDA
in honor of their co-founder Dane Boersma who lost his life to
#ALS
. This year $1,908,745 was raised, funding research, care and advocacy to find treatments and cures to
#EndALS
. THANK YOU, Dutch Bros!
@TurnerSportsEJ
On behalf of all of us at MDA, we are so very sorry for your loss. His life brought so much joy & hope to so many people. Your family’s love for him was & will always be the definition of what family means. We are grateful to have known him & his memory is a blessing to us all.
Our partner
@harleydavidson
will be live in Milwaukee with our National Ambassador Faith! Tune-in on our Facebook page at 11:00am CT to hear how MDA, Faith and H-D riders are celebrating Harley’s 115th Anniversary this holiday weekend.
#RideforStrength
Thank you to our H-D riders who participated in the
#RideforStrength
this past weekend at
#HD115
in Milwaukee. Our 38-day challenge isn’t over yet. Help us get to $1.15MM.
While there is no treatment to reverse the progression of
#ALS
, there are treatments that can slow the disease course. No one should be alone for this journey. If you are diagnosed with ALS call the MDA resource center 1-833-ASK-MDA-1 or email resourcecenter
@mda
.org.
We’re kicking off
@harleydavidson
#MDA
Ride for Life this
#LaborDay
Weekend! Join us as we ride virtually and raise funds to support the MDA community!
TY to our
@harleydavidson
riders who inspire strength during this season of giving. “For Rupert, my stepson who is 35 and living with Duchenne Muscular Dystrophy. MDA gives us the comfort in knowing we are not in this fight alone.”
#MDAGiveStrength
Ed Tessaro, an admired member of the MDA community, has turned his ALS diagnosis into a platform for advocacy helping people understand and learn more about the disease as we work to
#EndALSwithMDA
. Learn more about Ed's impact here.
.
@Target
's latest women's fashion line, Universal Thread, was designed with all bodies in mind, including those with disabilities and sensory-sensitivities and will be available in stores and online starting Feb. 4.
#UniversalThread
Congratulations to
@MeritCudkowicz
, MD, MSC from
@MGHNeurology
and renowned neurologist and clinical researcher in
#ALS
, the recipient of the second annual
#MDA
Legacy Award for Achievement in Clinical Research. The award was presented this morning at the 2023
#MDAconference
.
#MDA
is wishing our National Spokesperson
@TheNyNy7
a speedy and full recovery. We are grateful for his support of our mission to accelerate research, advance care, and advocate for MDA families and send our love to him, his family, &
#BillsMafia
.
#TogtherWeFight
@BuffaloBills
Safe travels to our
@harleydavidson
riders on their
#RideforStrength
journey to Milwaukee to celebrate
#HD115
& their commitment to help transform the lives of people affected by neuromuscular disease. Sponsor a rider & help find cures & save lives today!
One year ago, we lost a man who helped shape the Muscular Dystrophy Association into the organization that it is today. We are forever grateful for the love, passion, and generosity of the great Jerry Lewis. ❤️
👏🏼
@rhyshoskins
and his wife
@jaymehoskins
hosted a Muscular Dystrophy Association
@MDAorg
fundraiser tonight at Yards Brewing
Phillies ownership, management, teammates were there to meet with Phillies fans
Hear from Rhys on NBC10 News at 11PM and Philly Live Sports
#ThankYou
to all who participated in this year’s
#DrinkOneforDane
fundraiser with
@DutchBros
. Your generosity and support helped raise $1.39M in our fight to
#EndALS
! It's not too late to pick up your limited edition mug and sticker combo at !
On Labor Day our
#RideforStrength
team rode to Milwaukee to celebrate
@HarleyDavidson
’s
#HD115
anniv & raise funds to benefit vital research. We are closing in on our goal but need your help to get us to $1.15M. Click the link in our blog to donate today.
#MDA
is pleased to announce
@limpbroozkit
,
#ALS
patient and advocate, as the Keynote Speaker at the 2024 MDA Clinical & Scientific Conference. Her presentation will take place on March 4 at 10am ET. Read here for more details:
#MDAconference
“I have spent my life wanting to make a real change in this disease. Finally, we may be there. I am very hopeful. This is an emotional time for people in the field,” said Dr. Jerry Mendell of Nationwide Children’s Hospital in Columbus, Ohio
Join
#MDA
&
@HarleyDavidson
for its first virtual
#RideForLife
ride taking place
#LaborDay
weekend in support of children & adults living with neuromuscular diseases! Register and donate today! Also, tune into the Celebration Ceremony Sept. 5 at 1PM ET!
Compete for Charity!
Registration for the
#MDA
#LetsPlay
x
#SuperSmashBros
Open Tournament is here 🏆
Sign up now $10 entry fee! ($5 to MDA, $5 to the prize pool)
💰$250
🖥 NA Region
📅 Friday, July 10
🎮
Today is
#DrinkOneForDane
! Head to your local
@DutchBros
for an afternoon drink & support
#ALS
research in honor of Dutch Bros founder Dane Boersma. Can’t enjoy a drink in store? Help them reach their goal by donating online today:
BREAKING NEWS:
#MDA
’s funding of foundational research leads to new drug approval by the
@US_FDA
of Duvyzat (Givinostat) to treat children and adolescents living with
#DMD
. Duvyzat (Givinostat) will be made available in the US by ITF Therapeutics:
Justin, who lives with congenital muscular dystrophy, is attending
@WPI
with hopes of one day becoming an MD researcher and finding a cure for CMD.
#GivingTuesday
is Nov. 27, and it takes less than 1 minute to show Justin your
#MDAGiveStrength
commitment:
This month in support of ALS awareness month double your impact by donating to MDA to support ALS research and your gift will be instantly MATCHED, up to $50,000, by a generous donor.
The
@alsassociation
, ALS Finding A Cure, and MDA award a $2.5 million clinical trial grant to study novel
#ALS
therapy. Read the latest at our Strongly blog to learn more.
#MDA
National Spokesperson &
@Colts
running back
@TheNyNy7
has a personal connection to the critical need to drive awareness, improve care, & advance research for people living with
#neuromuscular
diseases. Hear his story in our new
#PSA
& donate today at
We couldn't be more ecstatic either! Join us and
@KevinHart4real
at to transform the lives of kids with disabilities and disadvantages. See you October 24th!
#MDAKevinHartTelethon
Congratulations to
@NFL
running back
@TheNyNy7
on agreeing to a new contract to play for the
@Browns
and joining us for another year as
#MDA
’s National Spokesperson! Learn more:
#MDA
celebrates the
@US_FDA
approval of AGAMREE® (vamorolone) to treat children and adolescents living with
#Duchenne
#MuscularDystrophy
(
#DMD
). Learn more about this novel therapy, supported in part by MDA Venture Philanthropy:
.
@BillyGilman
has been involved with MDA for over 20 years and continues to be inspired by those living w/
#neuromuscular
diseases, who possess the power of will. Support the community he holds so close to his heart.
A huge shoutout to our friends at
@harleydavidson
as they celebrate
#HD115
and kick off their Annual Dealer Meeting! H-D & MDA joined forces 38 years ago and have raised millions to research neuromuscular disease. Here’s to many more years (and miles)!
Former
@Titans
LB
@TShawsTruth
received the inaugural Muscular Dystrophy Association (
@MDAorg
) Tribute Award Thursday night.
The award acknowledges Shaw's efforts supporting patients and families affected by neuromuscular diseases.
READ
@alsassociation