Harry Boby @HarryBoby4 Twitter profile

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Harry Boby

1 year

65 million people worldwide & counting suffer from Long Covid. With adequate investment, there is a monumental opportunity to solve a humanitarian & economic crisis. Here is why investors & Big Pharma should get involved. [🧵 thread]

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Harry Boby

@HarryBoby4

11 months

Most people think that Long Covid is a lingering cough & bit of fatigue. I’ve felt flu-like & concussed every time I train for the last 3 years. For context, I’m a former GB athlete, who trained 3 times a day. And I’m a mild case...

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Harry Boby

@HarryBoby4

1 year

Is Long Covid really that prevalent, or are we misdiagnosing everyone w/ fatigue, depression etc? Valid concern, but I would point out.. In a study of 80 participants w/ diagnosed LC: All 80 showed microclots & platelet pathologies Not sure you can exaggerate clotting..

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Harry Boby

@HarryBoby4

10 months

Long Covid is not post-viral fatigue. I've had both. Here's the difference:

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Harry Boby

@HarryBoby4

1 year

If theres one thing that having Long Covid has taught me: Health really is the only thing that matters. I've spent hours fantasizing over how I'd give all I own - my work, my money, my age in a heartbeat just to be 100% healthy. All the other stuff seems so unimportant

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Harry Boby

@HarryBoby4

11 months

Long Covid is not deconditioning. I’ve been off training for 6 months with a broken ankle, I know when I'm deconditioned. Here’s the difference.

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Harry Boby

@HarryBoby4

7 months

I’ve had #longcovid symptoms for over 3 years now. Here’s what I’ve learnt: ‣ Health is all that matters ‣ Being present > being productive ‣ Money means nothing if you can’t use it All it took for me to learn this was a life-changing illness. In many ways, these 3 years

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Harry Boby

@HarryBoby4

1 year

How can you explain post-exertional malaise to someone who doesn't have #LongCovid ? It is truly bizarre, and such a debilitating symptom. Exercise no longer makes you feel good, but leaves you feeling flu-like and concussed instead.

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Harry Boby

@HarryBoby4

11 months

Why I'm confident Long Covid will be solved in the next 5 years. COVID is the most studied virus ever → we already know so much. We live in a digital age → HIV research didn't have this luxury. >65 million people affected → All have 1 goal in mind. We can beat Long Covid.

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Harry Boby

@HarryBoby4

4 months

I don’t think people understand that for millions worldwide, #LongCovid isn’t just a few months of fatigue. It’s an end to life as you know it.

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Harry Boby

@HarryBoby4

1 year

I’ve had long covid symptoms for nearly 3 years now. Here’s what I’ve learnt: - Health is all that matters - Being present > being productive - Money means nothing if you can’t use it All it took for me to learn this was a life-changing illness. Onwards and upwards!

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Harry Boby

@HarryBoby4

11 months

Why I'm confident Long Covid will be solved in the next 5 years. >65 million people are affected worldwide. These include founders, coders, billionaires, microbiologists etc. All of whom have one goal in mind. Beat Long Covid. Think what we can do if we harness that talent.

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Harry Boby

@HarryBoby4

10 months

Long Covid: - Floored after brushing my teeth - Got the flu if I walked 1km - 3 yrs & counting

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Harry Boby

@HarryBoby4

11 months

Long Covid: - Floored after brushing my teeth - Felt like the flu after workouts - 3 years and counting

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Harry Boby

@HarryBoby4

26 days

Why I'm confident Long Covid will be solved in the next 5 years. COVID is the most studied virus ever → we already know so much. We live in a digital age → HIV research didn't have this luxury. >65 million people affected → All have 1 goal in mind. We can beat it.

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Harry Boby

@HarryBoby4

1 year

Describing Post Exertional Malaise to a healthy person is impossible. The aches, pains & headaches can be somewhat understood. But how do you explain that you feel flu-like & concussed if you move?

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Harry Boby

@HarryBoby4

1 year

Post Exertional Malaise is simply bizarre. It's real crazy going from: 'I better train today else I'll feel sluggish' to 'I'm dying to train, but if I do - I'll feel like I have the flu + concussion' One of the worst & most frustrating symptoms.

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Harry Boby

@HarryBoby4

11 months

A large majority of Long Covid & ME/CFS sufferers haven't the energy to get out of bed, let alone campaign for treatments. It's the duty of those of us, fortunate enough to have energy, to campaign tirelessly on their behalf.

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Harry Boby

@HarryBoby4

6 months

I turn 26 today. #longcovid made 23 and 24 rough, but 25 has been a blessing. I truly believe recovery is possible, and this experience will shape us all to be stronger, more grateful and all-round happier individuals in the long run. Please don’t give up hope ❤️

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Harry Boby

@HarryBoby4

1 year

Long Covid really overshadows any other possible troubles you may encounter in life. Everything but having good health seems so trivial.

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Harry Boby

@HarryBoby4

9 months

Long Covid is rarely apparent to non-sufferers. A broken leg or tumour are visible, chronic illnesses are not. This leads to the belief that Long Covid sufferers pretend to be sick. When in fact. We more often pretend to be healthy.

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Harry Boby

@HarryBoby4

1 year

It's hard to imagine just how many symptoms Long Covid can come with. Here's an overview & the onset time for each

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Harry Boby

@HarryBoby4

10 months

Post-Viral Fatigue: - Felt tired after a long day - Less pumped when working out - Back to normal in 6 months

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Harry Boby

@HarryBoby4

11 months

I've struggled with feeling guilty for complaining about my Long Covid. I can walk, train and generally live a normal life. Others are fed through a tube. But I don't think it's greedy to wish for a clear head & energy at 25 years old. No suffering is unworthy.

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Harry Boby

@HarryBoby4

11 months

Deconditioning: - Breathing heavy after cardio - Extra sore after workouts - Firs few weeks suck, then you get it back

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Harry Boby

@HarryBoby4

11 months

Long Covid is essentially the same as ME/CFS. ME/CFS can be triggered by: - Viruses - Bacterial infections - Stress Do you think the way we separate Long Covid & ME/CFS is helpful or a hinderance?

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Harry Boby

@HarryBoby4

1 year

My order of priorities before Long Covid: 1. Work 2. Hobbies 3. Relationships 4. Health After: 1. Health 2. Relationships 3. Hobbies 4. Work Nothing matters but having the health to enjoy doing what you love, with the people you love☘️

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Harry Boby

@HarryBoby4

11 months

Long Covid is basically general tiredness right? Well... Long Covid fatigue affects quality of life more than some cancers. Here's how much the illness affects your day to day: [🧵 thread]

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Harry Boby

@HarryBoby4

4 months

When I broke my ankle a while back, the sympathy I got was astounding. The pain of breaking my ankle vs. Long Covid is inconsequential. An ankle will heal, but you don't know when LC will end Yet support for the condition pales in comparison. Let's listen & support sufferers.

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Harry Boby

@HarryBoby4

6 months

If you're struggling with Long Covid, please remember: - Some people have recovered fully - Some live a near normal life - Research is happening There is hope ❤️

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Harry Boby

@HarryBoby4

1 year

#longcovid is a horrific illness that leaves you w/ no desire to exist But I urge you not to lose hope. 1) Some people are recovering/ at least to the point where life is enjoyable again 2) Never been such attention & research - I truly believe treatments are coming.

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Harry Boby

@HarryBoby4

1 year

Just 27% of those with Long Covid work the same hours as before they were ill Estimated that 3 million workers have left the US work force thanks to LC This is the trend of long term disability in the UK since the pandemic. ⬇️ Coincidence?

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Harry Boby

@HarryBoby4

8 months

Long Covid has a huge impact on how you identify. Many lives are defined by who you are as an athlete, your career, academics etc. It's hard to figure it out whats left when it's all stripped away.

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Harry Boby

@HarryBoby4

11 months

It's amazing how many people still genuinely think Long Covid is just being lazy or depressed. Even when we have evidence of: 🧠Brain inflammation 🩸Microclots 🦠Auto antibodies I think it just comes down to lack of knowledge & understanding.

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Harry Boby

@HarryBoby4

4 months

There’s a difference between chronic fatigue and being unfit. Suddenly feeling flu-like and concussed after a 30 minute walk is NOT just a lack of fitness. #LongCovid is not Deconditioning.

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Harry Boby

@HarryBoby4

6 days

If you’ve had Long Covid/ MECFS for years and still kicking, you’re a fucking animal. 🫡

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Harry Boby

@HarryBoby4

5 months

Nearly 4 years ago we saw the first cases of #LongCovid We had no treatments, and no idea what was causing it. Now we: - Still have no treatments - Still don’t know whats causing it - 65 million people have joined the club Can we not do better?

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Harry Boby

@HarryBoby4

10 months

People think Long Covid is just de-conditioning. Young people becoming bed bound. Athletes unable to brush their teeth. Just a lack of fitness right?🤦‍♂️

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Harry Boby

@HarryBoby4

10 months

This was my life for months thanks to Long Covid. Millions with ME/CFS experience this as their permanent existence. 1/10 cases result in Long Covid, many of which end up like this. When are we going to properly fund preventative measures and treatments?

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Harry Boby

@HarryBoby4

10 months

One of the biggest frustrations with Long Covid is the up and down nature of the illness. One day I feel quite normal, maybe I'm out of the woods? The next feels like being hit by a truck.

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Harry Boby

@HarryBoby4

11 months

Long Covid is insufferable for so many people. So is being offered nothing by your doctor. We already have some safe, accessible therapies that can improve Quality of Life. - HBOT - Diet support - Amino acids - Anticoagulants Why are these not being offered?

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Harry Boby

@HarryBoby4

10 months

2 years ago I was in despair at my health. I felt ill when I moved, permanently anxious, and 0 desire to exist any more. Now I: • Train at the gym • Connect with friends • Eat what I want (within reason!) Long Covid is horrendous. But please don’t lose hope.

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Harry Boby

@HarryBoby4

10 months

I've spent £1000's on supplements. Some were a game changer, some a waste of time & money. Here are the ones that actually helped: 1. Niacin 2. Turmeric powder 3. Omega 3 4. Magnesium Hope that helps!

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Harry Boby

@HarryBoby4

1 year

The cost of Long Covid is actually crazy.. I've spent £15k trying: - HBOT - Supplements - Testing - Massage/ accupuncture - Dark web pills (lol) - Therapy woman who got me chanting & god knows what (I was desperate lol) And then lost earnings from sick leave on top! Mental.

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Harry Boby

@HarryBoby4

10 months

Long Covid & CFS have been dismissed due to lack of biomarkers. But now we measure clear discrepancies: - Autoantibody levels🦠 - Oxidative stress💨 - Fibrinogen & clots🩸 - Lipid levels🫓 - Inflammation💥 - ANS dysfunction🫀 Who's going to invest so we can develop treatments?

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Harry Boby

@HarryBoby4

1 year

My Long Covid symptoms have slowly, but surely improved over the last 2 years. Here's what helped me: - Niacin & Aspirin - Fasting & paleo diet - Regulating my ANS (breathwork, cold therapy etc.) It's a long slog, but please don't lose hope🙏

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Harry Boby

@HarryBoby4

10 months

Why Long Covid is the next public health crisis: - 65 million cases worldwide & counting - 27% won't work the same as before - Lost wages cost already $200 billion - Millions in constant pain? Why are we not piling resources into solving this disease?

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Harry Boby

@HarryBoby4

11 months

'Long Covid isn't real, it's in your head'. Here are 5 *real* reasons this simply isn't the case:

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Harry Boby

@HarryBoby4

4 months

We know what being unfit feels like. #LongCovid is different. Going from being an athlete to unable to brush your teeth is NOT deconditioning.

Why Long Covid is NOT Deconditioning

As athletes, we know what de-conditioning feels like. Long Covid is not this.Going from being an athlete to unable to brush your teeth is not deconditioning....

www.youtube.com

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Harry Boby

@HarryBoby4

1 year

Long Covid often gets confused w/ viral fatigue I’ve had both - here’s the difference: PVF: - Felt tired after a long day - Less pumped when working out - Back to normal in 6 months LC: - Floored after brushing teeth - Got the flu if I walked 1km - 3 yrs & counting

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Harry Boby

@HarryBoby4

1 year

Here are 5 things I can do today, that I couldn't 2 years ago: 1. Go for a run 2. Enjoy a couple of beers 3. Be out of the house all day 4. Feel connected to friends & family Small things, but truly blissful. Please hang in there🙏

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Harry Boby

@HarryBoby4

11 months

#LongCovid has made me grateful for things I never noticed before. - Taking a walk - The beauty of being in nature - Eating/ drinking without a reaction Nowadays I try not to live at 100mph..

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Harry Boby

@HarryBoby4

11 months

#LongCovid is a horrific illness that leaves you w/ no desire to exist But I urge you not to lose hope. 1) Some people are recovering/ at least to the point where life is enjoyable again 2) Never been such attention & research - I truly believe treatments are coming.

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Harry Boby

@HarryBoby4

1 year

Brain fog is not the same as 'I stared at my screen too long' Sore eyes from your screen is one thing.. Brain fog in #longcovid feels like you've been clubbed in the head & not slept for a week.

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Harry Boby

@HarryBoby4

10 months

Why Long Covid is the next public health crisis: - 65 million cases worldwide & counting - 27% won't work the same as before - Lost wages cost already $200 billion - Millions in constant pain? Why are we not piling resources into solving this disease?

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Harry Boby

@HarryBoby4

1 year

I've experimented with loads of diets that have helped my Long Covid symptoms. - Paleo - Keto - Vegan - Carnivore - Nothing! (Fasting) Sooo.. whats the key? Seems processed carbs are the killers! 🍞🥖🌭

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Harry Boby

@HarryBoby4

10 months

If you're feeling hopeless about Long Covid, can I just remind you. There are: People recovering fully. People able to train again. People closing in on treatments. Please don't lose hope❤️

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Harry Boby

@HarryBoby4

1 year

When I broke my ankle a while back, the sympathy I got was astounding. The pain of breaking my ankle vs. Long Covid is inconsequential. An ankle will heal, but you don't know when LC will end Yet support for the condition pales in comparison. Let's listen & support sufferers.

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Harry Boby

@HarryBoby4

9 months

Investing in Long Covid & ME/CFS is imperative. - 2 million suffer Long Covid in the UK - 78% have to cut down on work - 19% can't work at all Solving Long Covid isn't just a humanitarian win. It's an economic necessity.

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Harry Boby

@HarryBoby4

5 months

Treatments for Long Covid are pitiful. We don't want: - CBT - Food journals - 6 month referral waits We want: - Proper testing - Bold treatments - Trials on existing drugs We're not going to get anywhere by re-trialling exercise therapies again & again.

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Harry Boby

@HarryBoby4

10 months

A healthy man wants a thousand things, a sick man only wants one.

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Harry Boby

@HarryBoby4

1 year

One positive of #longcovid is turning off my ego. I used to think something was only worth doing if: - It's 'productive' - I could become world class at it - It's deemed 'impressive' to others Now, I focus on being fully present in what I'm doing & just enjoying the ride

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Harry Boby

@HarryBoby4

11 months

Recovery from Long Covid is a full time job. Except it’s 24/7, not 9-5. And no weekends, holidays or option to change to something better!

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Harry Boby

@HarryBoby4

1 year

The biggest mistake I made when I first got Long Covid? Not taking adequate rest. I tried to push through despite feeling like death. Instead, I should have: - Rested physically & mentally - Supplemented Niacin & aspirin - Phased return to work Don't make the same mistakes!

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Harry Boby

@HarryBoby4

1 year

Here's my breakdown of the fantastic release by @doctorasadkhan @resiapretorius @PutrinoLab @dbkell Long COVID: pathophysiological factors and abnormalities of coagulation Hope this shorter form is helpful to someone & that I did it justice [🧵 thread]

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Harry Boby

@HarryBoby4

10 months

Long Covid has ruined the careers of many athletes. Sport has always been my life. A permanent north star. 🌟 But it's hard when training makes you feel flu-like. Here's how I've coped as an athlete. [🧵 thread]

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Harry Boby

@HarryBoby4

10 months

I do wonder the true scale of Long Covid. How many people haven't bothered with the doctor after being dismissed as depression or anxiety? How many can't put their finger on why they're so tired and foggy in recent years?

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Harry Boby

@HarryBoby4

11 months

#LongCovid sufferers. If you keep crashing. STOP pushing it. 1. Do 50% of what might trigger a crash 2. Low impact > High impact. ie. yoga, pilates etc. 3. Gradually increase Stop the boom & bust cycle. Life is easier if you stop getting put back to square one.

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Harry Boby

@HarryBoby4

11 months

3 of the best accounts for Long Covid resources. 1. @gezmedinger - Expert interviews, latest research, personal experience. He really is a must follow. 2. @patientled - Patient- led movement leaders 3. @EricTopol - Scientific summary threads of the latest papers & research. All

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Harry Boby

@HarryBoby4

1 year

May 2021 - Constant paranoia - Sleeping 3 hrs a night - 500m walk max May 2022 - Lower anxiety - Sleeping most the night - Some gym work May 2023 - More connected - Sleeping 8 hrs - Hiking Table Mountain Slowly, improvements are happening. Please don't lose hope. 🙏

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Harry Boby

@HarryBoby4

9 months

This is perhaps a silly question.. But can someone explain why antivirals would not be effective, should the residual virus be residing in the vagus nerve or brain stem?

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Harry Boby

@HarryBoby4

5 months

Here are 5 things I can do today, that I couldn't 2 years ago: 1. Go to the gym 2. Enjoy a couple of drinks 3. Be out of the house all day 4. Feel connected to friends & family Small things, but truly blissful. Please hang in there🙏

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Harry Boby

@HarryBoby4

10 months

I've tried all sorts of diets that have helped my #LongCovid symptoms - Paleo - Keto - Vegan - Carnivore - Nothing! (Fasting) Sooo.. whats the key? Seems processed carbs are the killers! 🍞🥖🌭

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Harry Boby

@HarryBoby4

1 year

The cutler report suggests Long Covid will have a $3.7 trillion impact 💵 1) Quality of life cost→$2.195 trillion 2) Lost earnings→$997 billion 3) Medical care spend→$528 billion Investing in treatment & prevention is an economic & humanitarian necessity.

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Harry Boby

@HarryBoby4

9 months

I'm envious of people who can exercise freely, Yet those bedbound are likely envious of what I can do. Comparison is the thief of joy, especially when suffering an illness. Try and focus on your own small wins.

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Harry Boby

@HarryBoby4

11 months

@MaxPlaysFIFA Never cease to amaze me 😂 'Have you tried resting?' is another classic

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Harry Boby

@HarryBoby4

1 year

Why Long Covid is the next public health crisis: - 65 million cases worldwide & counting - 27% won't work the same as before - Lost wages cost already $200 billion - Millions in constant pain? Why are we not piling resources into solving this disease?

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Harry Boby

@HarryBoby4

11 months

Long Covid is truly horrific. But.. I wholeheartedly believe recovery is possible, and this experience will shape us all to be stronger, more grateful and all-round happier individuals in the long run. Please don’t give up hope, keep at it. ❤️

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Harry Boby

@HarryBoby4

11 months

People with Long Covid are self-experimenting with therapies, myself included. When desperate, you'll try anything. Here's how to keep experiments safe and useful. [🧵 thread]

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Harry Boby

@HarryBoby4

1 year

Planning a trip out around #LongCovid takes a crazy amount of planning! Hope this helps to explain the struggles to anyone who has friends or family that are suffering ✌️

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Harry Boby

@HarryBoby4

11 months

Long Covid sufferers don't want sympathy, we want to get our lives back. Our time & resources should be spent developing targeted therapeutics, not trying to prove the condition exists. With the proper funding, we will get there.💪

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Harry Boby

@HarryBoby4

11 months

Long Covid makes any sort of exercise a nightmare. For us sport lovers, this is the worst. No judo or gym - I needed something to apply myself to. I started golf, & even though I'm now back to judo, I'm still obsessed!⛳️ What did you replace your former sports with?

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Harry Boby

@HarryBoby4

10 months

How does COVID affect the brain? 🧠 And more importantly, how can we reverse the damage? [🧵 thread]

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Harry Boby

@HarryBoby4

1 year

Investors: Long COVID treatments = enormous potential. Rising demand, unmet medical need, innovation opportunities, long-term growth, and end the suffering of millions. #longcovid #InvestInLongCOVID

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Harry Boby

@HarryBoby4

11 months

Solving #LongCovid will... Save our economy trillions. Lower medical spend by billions. And give the lives back to millions.

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Harry Boby

@HarryBoby4

1 year

Life will never taste so sweet when we recover. Think how it will feel to: - Feel that nice fatigue after a good session - Wake up after a deep, refreshing sleep - Look out with a fresh, clear head Little things, that will bring endless joy!

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Harry Boby

@HarryBoby4

10 months

One bright side of having #LongCovid is that all other problems you face will pale in comparison.

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Harry Boby

@HarryBoby4

1 year

'Deconditioning' is the most frustrating response. I've come back to full time judo after 6 months out due to breaking my leg, and yes, I was deconditioned. I was breathing heavy, bit achey etc. Being bed bound from brushing your teeth is not the same 🤦‍♂️

Jade Savoca

@JadieIsTired

1 year

Deconditioning. Cardiologists really love that word, don’t they? #LongCovid #LCME #MECFS

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Harry Boby

@HarryBoby4

5 months

Recovery from Long Covid is a full time job. Except it’s 24/7, not 9-5. And no weekends, holidays or option to change to something better!

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Harry Boby

@HarryBoby4

1 year

@Naomi_D_Harvey Yeah true, I just so often hear people saying 'do you actually have LC, or are you 'just' depressed, tired etc. When we have a readily available biomarker test - it will be hard to minimisers to argue

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Harry Boby

@HarryBoby4

1 year

16 million working age Americans have Long Covid today. Of those, 2-4 million are out of work as a result. Annual cost of lost wages alone is $170 billion. Invest in treatments, or our economy will be incapacitated too.

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Harry Boby

@HarryBoby4

11 months

Recovery from #longcovid is a marathon, not a sprint. I obsessed with getting better right NOW, for too long. Here are the 5 phases of my recovery: 1: Panic 2: Denial 3: Hopelessness 4: Acceptance 5: Confidence I'll get there I now try and take each day as it comes.☀️

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Harry Boby

@HarryBoby4

1 year

Sharp rise in fatigue, I wonder why? 🤦‍♂️

Exhausting search for solutions to UK’s sharp rise in tiredness

Cost of living crisis, mental health issues and long Covid all thought to be factors, but we still know too little about fatigue

www.theguardian.com

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Harry Boby

@HarryBoby4

11 months

@gezmedinger For sure, I also find it really baffling how both mental work & exercise produce similar sorts of malaise for me. My guess is our system going into overdrive at the slightest stressor causing inflammation & maybe reduced blood & o2 flow?

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Harry Boby

@HarryBoby4

1 year

I know that we have a long way to go research wise, but I truly do feel optimistic. Think how incredible it will feel to: - Get that endorphin rush after a run - Wake up feeling well rested - Look out with a fresh, clear head Small things, that will feel like pure heaven!

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Harry Boby

@HarryBoby4

9 months

August 2021 - Constant paranoia - Sleeping 3 hrs a night - Walking = PEM August 2022 - Lower anxiety - Sleeping most the night - Some gym work August 2023 - More connected - Regular training - Enjoying life Slowly, improvements are happening. Please don't lose hope. 🙏

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Harry Boby

@HarryBoby4

4 months

Post exertional malaise is often confused with tiredness. In reality it feels more like being ill and concussed. It will be a true blessing once #LongCovid and #MECFS sufferers experience that endorphin rush again!

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Harry Boby

@HarryBoby4

10 months

If you're struggling with Long Covid, glucose spikes will likely worsen your crashes. Here's how you can level out those spikes: 1) Eat your veggies first in your meal 2) Start the day with proteins & veggies, nothing sweet 3) After you eat, move Lower spikes = lower crashes

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Harry Boby

@HarryBoby4

6 months

#longcovid throws up some truly bizarre symptoms. Post Exertional Malaise is one of them. It's real crazy going from: 'I better train today else I'll feel sluggish' to 'I'm dying to train, but if I do - I'll feel like I have the flu + concussion' One of the worst & most

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Harry Boby

@HarryBoby4

11 months

Pacing is a tricky thing to get right. I really believe your body needs to move to some degree, but the implications of overdoing it are severe. Especially when your limits change daily. Here's how I went about keeping moving:

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