A large majority of Long Covid & ME/CFS sufferers haven't the energy to get out of bed, let alone campaign for treatments.
It's the duty of those of us, fortunate enough to have energy, to campaign tirelessly on their behalf.
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@HarryBoby4
In ME/CFS the portion severely affected is 25% , and those bedridden only a portion of that. Thanks for speaking up for us though. We need more Of the walking (wounded) to
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@HarryBoby4
It shouldn't be necessary. Governments and medicine has more than enough evidence to act, campaigning isn't going to change how they behave and I doubt there is anything peaceful that could change that, ME/CFS failed to change it for 80 years. Prejudice can't be solved this way.
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@HarryBoby4
Thank you for stating this, Harry. Appreciate it!!!
And I’m so happy you are doing well.🌞
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@HarryBoby4
Thank you Harry! And thank you for including ME/CFS. We've been so neglected for so long.
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@HarryBoby4
I don't think I agree. Most of us with ME/CFS & Long Covid do all we can, but why should the sick have to use up our very limited energy trying to persuade governments/the medical profession to do THEIR duty and take care of us, as they do people with all other serious illnesses?
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@HarryBoby4
Agree, but further - I think responsibility falls to those fortunate enough to have avoided LC to this point. Life is a team sport and right now, some teammates need help
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@HarryBoby4
Together we have more of a voice, but you’re right it’s just so darn hard to do that from bed and with energy limits. I wish more ppl who weren’t sick would rally for us. I can barely make it through the day
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@HarryBoby4
Yesterday (11 yrs CFS) I called 4 numbers looking for support (all useless) and left GP stuttering when I asked him to just be honest that there is no help as it’s better to accept reality than pretend we have *any* appropriate professional support or even guidance whatsoever
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@HarryBoby4
The signal that ‘nobody gives a fuck and there is NO help’ is very clear. Your tweet hits hard, but means a lot to many people, I’m sure. We just have to hang in there and wait for long covid research to trickle our way while we all try not to kill ourselves. That’s all we have
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@HarryBoby4
This and this alone justifies me keeping the lights on for this account. I have 15k followers, by far the largest of my followings on any of the turnkey social media sites, and I'm pretty passionate about Long Covid patient/sufferer/combatant advocacy.
#LongCovid
#MECFS
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