The Long Covid groups speak as one today, telling the world that anyone can get
#LongCovid
Please share our message and call for treatment,
#CleanAir
and support for the millions living with Long Covid.
#ItCouldHappenToYou
This is self confessed shameless blow my own trumpet tweet and I don’t care!
#LongCovid
robbed me of my ability to cook. 1 yr in I couldn’t even make beans on toast.
Tonight 3.5 yrs in, from scratch, fresh ingredients, no kit just veg and spices da da.. a delicious Thai curry.
🛑 If I can stop 1 person from doing the wrong thing today it will be worth it. Day 3 of symptoms, 4th Xmas with
#LongCovid
😭I feel awful & sad for my whole fam- we are not together because of
#Covid
🤷🏼♀️ if in ANY doubt do the right thing test &stay home
You don’t want this 💔
I was masked, walking my dog past a removals lorry yesterday on the opposite side of road. Man stopped working to stand with hands on hips watching me walk towards his lorry. When I got level he sniffed and gobbed up a disgusting mess in my direction. Then looked smug. 🤬🤮
I’m fed up and tired of it all. Day 12 testing positive and feeling exhausted by the coughing. And the coughing. And the cough cough coughing. I hurt all over. Haven’t been anywhere so definitely haven’t infected anyone else at least 😢
Just a cold, my arse!
#Covid
#LongCovid
Oh my goodness. I have just done my first 10k steps today since last summer when I did by accident and paid for it.
#LongCovid
#FirstWave
slooooowly slooowly things are improving. In the last few weeks the steps have been creeping up & today I didn’t have a nap. Will report back
#LongCovidAwarenessDay
Before Long Covid I was always smiling, travelling, enjoying my life. I’d walk for hours with my dog, I’d be out with friends, love life with my family and making the most of every minute. I climbed mountains, made jewellery and snorkelled when I could.
The narrative that being fit and healthy means you’ll be ok if you catch covid is still widely believed. This really pisses me off. I was fit and healthy.
#LongCovid
#firstwave
#CountLongCovid
#itsnotflu
#WearAMask
🤬 “oh it couldn’t happen to me” um yes it could
I don’t think I’ve ever blocked anyone before today - some shocking excuses for humans out there. Why so triggered by me wanting to protect my 82 yr old widowed mother? Whatever the cause or virus is? Why are they so triggered by me being ill with
#LongCovid
? Genuinely baffled🤔
Every person with
#LongCovid
deserves these rights
• to be believed
• a diagnosis
• support
• safe health care
• funded research
Please sign the petition and support
#LongCovidAwareness
and SHARE!
@brownecfm
I remember being really concerned and asking a doctor friend and a virologist neighbour- neither who we’re concerned. How wrong they were. And how unfortunately right I was to be worried. And I’ve been ill with
#LongCovid
ever since.
Really poor bit of reporting
@PhilippaPr
@BBC
Not ONE mention of
#Covid
Please report what is actually causing there illnesses not the government narrative
Back-to-school illness advice offered to parents
Astounded by the lack of empathy or kindness from the responses from some people here. Believe in
#LongCovid
or not I’d never mock someone who was ill. You’re some nasty people out there. Look inwards for a second question your morals. Season of goodwill and all that! 🎄
🛑 If I can stop 1 person from doing the wrong thing today it will be worth it. Day 3 of symptoms, 4th Xmas with
#LongCovid
😭I feel awful & sad for my whole fam- we are not together because of
#Covid
🤷🏼♀️ if in ANY doubt do the right thing test &stay home
You don’t want this 💔
@xabitron1
I went into a smal garage to pay yesterday- the coughing cashier gave me such a dirty look. She HATED me. I was very pleased to be in and out in a minute in my N95. And I was ready for a fight. How awful is it to have to feel like that when I’ve had
#LongCovid
for over 2 years.
I’m feeling so disconnected to everyone other than my little family today. How would I be feeling if I got COVID March 2020 then GOT BETTER!?!? 😳 Would I be going out and meeting friends in cafes? Cinema? PUB??? 😔
I’ve moved away from London & the house I have felt virtually a prisoner in for the last 3.5 years of
#LongCovid
It’s been a week & I haven’t had 1
#NIGHTMARE
. They were gory horrific & nightly
#PTSD
I’m fortunate I know but it hasn’t been easy. I feel like I can breathe
@dr_musgrave
I’d wear a mask forever if it had been known then what
#LongCovid
would have done to my life. And if I could prevent just one more person from getting it and specially preventing
#LongCovidKids
😢 it’s hideous
5 weeks ago today I tested positive
#Covid
I am still ill
4 years ago today I was coughed at by someone on the tube from the airport with suitcases with a mask under her chin
#LongCovid
I was ill for 6 wks -getting better for 2 when the first gastro symptoms hit
#LifeChanged
@farid__jalali
I’ve only ever had influenza 5 or 6 times in my 50 odd YEARS certainly NOT once a year. Real flu is a very nasty illness. We’re not talking a bad cold here. Flu makes you hallucinate and really really unwell. People bandy I’ve got the flu around much too easily.
@AaronCa11
I had to exit my friend group chat. This was in the 2nd year of the pandemic. I told them and they knew I was very ill. At first sympathy. Turned soon to moving on quickly. Final straw was when one of them said- isn’t it amazing how none of us have been affected by covid?! Hurt
@K8Stott
It’s absolutely dreadful that you are expected to live like this. If levels of community infection dropped then people could maybe begin to heal without constant reinfection. It’s mind boggling. Sending love ❤️
@1goodtern
Avoid it like the plague that it is. Into my 4th year of
#LongCovid
and although better than I was I’ve just had to have another 5 day heart holter as something is going on still.
@BlackLucey
It is bullshit. I got followed around a supermarket with my elderly mum by a smirking git. I’m sure the only reason he didn’t say anything was because I was with her. I hope your kid is ok. Mine masks also 👍🏼
To ABSOLUTELY everyone who has been so kind & shown support thank you! Overwhelmed by all your kind responses. Unfortunately I didn’t think to get the name of the company & it was gone when I returned. Hopefully there won’t be a next time- but if there is I will be prepared! ♥️
@AnneLouiseAvery
I’m so glad you’re feeling a bit more grounded. I went to a healing stone in Cornwall yesterday called Mên-an-Tol and sent healing wishes to the world. 🥰
My mum and sis came and stood away from our front door to deliver presents. First Christmas without my Dad we were really needing to spend time as a family together.
#Covid
has ruined that. Public health messaging has been absent
@UKHSA
#CovidIsEverywhere
#HeadsWillRoll
A month today of new
#Covid
- all my
#LongCovid
symptoms are flared in the most enormous crash. No voice, heart rate up, breathing bad, my very bones ache. Still coughing, sore swollen throat.
#Brain
seems ok 🤞🏼
#ItIsNotACold
#ItIsNotFlu
🦠 not an F-ing cold 🤬
It’s a beautiful morning!
#Sunrise
#Cotswolds
#Sky
#Morning
#Colours
From my bedroom window 🌅
Unfortunately 3 & 1/2 weeks into my
#Covid
inf ontop of nearly 4 yrs of
#LongCovid
it has hit me hard.
Increased all the meds I can but crashed brutally & a bit frightened I must say
@jojoandspoons
So interesting! I can relate to this completely. I once waited for 4 hours face glued to the window. Started looking for my sis straight away when she rang to say she had just left (Wales) I live in London. I can’t do anything when I’m waiting for something 🤔
Reporting back on my
#HBOT
. I am pretty much 2 years into
#LongCovid
I’m bitterly disappointed to realise it didn’t suit me at all. Caused a big flare up of chest/ heart issues & killer headache. I will try again in a few months.
@DrNeenaJha
@ahandvanish
I remember years ago a friend of my sisters got on a plane back to the UK from the US knowingly with chickenpox and I was furious with him because I was pregnant and he could have risked any unborn child in the plane. Some people are so selfish
It’s ok not to feel brave - today is a day that may be completely overwhelming for people with
#LongCovid
#LongCovidAwarenessDay
is a day to come together & share. But it’s ok if you want to hide under your duvet too.
Our lives have been changed forever we all understand 🩵🩶🖤
We know that some people will find today hard, or just don’t feel able to process all the stories and intensity of
#LongCovidAwarenessDay
That’s ok. We’re here for you too, and we hear you
Our mantra has always been “Put your own life ring on first” 🛟
@i_petersen
@_CatintheHat
@CitizenSnippy
@arigden
@trottaround
Absolutely heartless and shocking reply. I’ve had
#LongCovid
for nearly 4 year, completely upended my life. Am now over 2 weeks into another infection ruined our family’s whole Christmas, the first without my Dad. Yes there’s REASONS we can’t move on. Physical ones.
@chantz_y
I was looking at all the people yesterday coming into the gp surgery without a mask, thinking why don’t you give a shit about others? It’s heartbreaking
📢 Join us in making a difference! The Long Covid Groups are taking center stage at the Covid Inquiry Hearings today. We refuse to be forgotten, unheard, disbelieved, isolated, unemployed, disabled, or immobile.
#LongCovidLivesRuined
#LongCovidRuinsLives
#WeNeedAnswers
@RhodaWatkins10
@ShaneyWright
Yes me too. My fight or flight were horrendous-this is in the really early stage- first couple of weeks. Then it lasted. I have tried to explain this to neurologists and psychologists but they all say it was my fear of covid. No. It WAS THE VIRUS. I told them to read up on it 😂
@1goodtern
And I keep saying to everyone (who will still listen!) that for some people this virus OBVIOUSLY doesn’t agree with us. So how are we supposed to ever live our lives? For others it may not be so obvious initially but repeated infections of this virus *shudders*
My
#Covid
#reinfection
has upped the
#fatigue
ante like you wouldn’t believe. Only had it occasionally first time round this time it is basically constant. 10 weeks in.
Unsustainable-
#LongCovid
#FuckIAmTired
who would have thought I’d yearn for my Long Covid life ?
@GeorgeMonbiot
My brain feels injured. Headaches, tinnitus, cognitive impairment, feeling hungover Al the time, it feels swollen. Definitely CNS involvement too. Horrible horrible virus
#LongCovid
Just heard from my friend that her seriously disabled non verbal son has been in hospital for seizures due to high temperature because of
#Covid
and O2 stats down to 70 because of
#Covid
Medical staff walking in & out of his room UNMASKED knowing he is covid positive WTAF
@Kit_Yates_Maths
Yeah. It’s not good being a parent with
#LongCovid
😢 I was basically bedbound for 6 months and I remember very little of that time. On month 27 now of being ill. I’ve got a 14 year old. So sad for them. Thank you for everything you do to raise awareness
Thank you for everything you have done for
#pwLC
and everything you continue to do.
#LongCovid
@elisaperego78
Long COVID advocate Dr. Elisa Perego speaks on the pandemic and the need for global elimination
@DrNeenaJha
Please wear a mask in a health setting! My Dad is in hospital and NO ONE as in ZERO mask are being worn. He’s got cancer and an unidentified infection. I’m so pissed off.
I was in
@LongCovidSOS
film
#messageinabottle
It’s as hard hitting and emotional now as it was then, but for different reasons. How sad that we are STILL fighting for our health 3 years later. Please watch it and share it. We want our lives back. 💔
It's 3 whole years since we released our
#messageinabottle
film
It has since had hundreds of thousands of views on different platforms
We're glad that some people featured are now recovered but many are not
Things - still - need to change
#recognition
#research
#rehabilitation
@archeohistories
I lived in Denmark as a child for a few years and we went on a school trip to see him. Absolutely fascinated me then and still does. Thank you.
I hadn’t worked since getting
#LongCovid
I was an illustrator & jeweller prior to getting ill but my fine motor skills & CNS have been hit pretty hard But volunteering for
@LongCovidSOS
has really helped me regain some confidence and learn new art skills! ❤️🩹 thanks Team
📢 The Long COVID Groups are at the COVID Inquiry Hearings 📢
We are presenting evidence today at the hearings and also will be staging a gathering of unity at the entrance.
👥 Stand with us. We are here all day.
📍 Location: 121 Westbourne Terrace, London, W2 6BU
@fucklongcovid
A doc friend of mine when it looked like
#LongCovid
was settling in to stay with me said- you’re lucky in a way that you’ve got this in the middle of a pandemic with so many people being infected otherwise you’d be left on your own.
@AmandaB55744931
I actually told a ‘friend’ on my doorstep that she wasn’t a friend as she had barely been in contact for 2 years despite knowing how ill I was and only living 10 min walk away. I surprised myself but didn’t have the energy to keep it up when I was so cross and hurt.
@iamKJL
I’m forever changed. I’ve definitely lost a bit of the joyful part of me but I’ve discovered a determination I didn’t know I had either. I’m not taking any shit from anyone anymore.