Brian Fog @useless_priest Twitter profile

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Brian Fog

4 months

Hey, journalists! 😃 Happy new year! Here are 5 things about Long COVID or Post-Acute Sequelae of COVID that I'd love you to understand better in 2024. Short 🧵...

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Brian Fog

@useless_priest

2 years

Is today a bad day to mention that a 9/11 of people is dying of acute COVID-19 in the US every week?

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Brian Fog

@useless_priest

1 year

If I had one piece of advice for you young people coming up today it would be: try not to get disabled by a novel virus during the rise of fascism.

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Brian Fog

@useless_priest

2 months

A guy spent 70 f*cking years in an iron lung and was killed by COVID in f*cking 2024?? 😡

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Brian Fog

@useless_priest

1 year

I turned 33 today, and have Long Covid. By 34, I don’t know if I will be healthy or bedridden with crippling fatigue. Governments don’t want to hear about this and doctors can’t help. If you think this is unacceptable please RT. If you are in the same situation please like.

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Brian Fog

@useless_priest

18 days

Don't think I've ever seen this articulated in a headline.

STV News

@STVNews

18 days

Stroke patient died after health board failed to follow Covid guidance.

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Brian Fog

@useless_priest

1 year

Okay, so you’re COVID positive. Forget about “COVID”. Forget about sore throats and coughs. Look out for stroke symptoms. Look out for shortness of breath. Look out for chest pain. Look out for fatigue. Your friends, family and doctor won’t. #LongCOVID

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Brian Fog

@useless_priest

10 months

Just so I'm clear on the medium term plan for the next 3-5 years in relation to disabled and immunocompromised people. Let me know if I'm missing anything. Our leaders plan to: > Ignore that disabled and vulnerable people are essentially condemned to permanent lockdown... 1/

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Brian Fog

@useless_priest

2 years

Petition for Long COVID studies to stop using phrases like “up to 12 months” and start using phrases like “at least 12 months”

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Brian Fog

@useless_priest

9 months

From 2015-2020 I worked in an office where the entire floor was asked not to eat any citrus fruit due to one guy who had an allergy, and everyone complied. Would the same be true today? Would the guy even raise the point today?

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Brian Fog

@useless_priest

2 months

Irish babies born during pandemic restrictions: > Had healthier gut microbiomes > Developed fewer allergies > Required fewer antibiotics at year 1.

Devon McDonald

@McDevonMD

2 months

Association between gut microbiota development and (reduced) allergy in infants born during pandemic‐related social distancing restrictions

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Brian Fog

@useless_priest

22 days

I know I should be a bigger person but I'm tired of seeing / hearing references to how tough the pandemic "was" psychologically for people.

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Brian Fog

@useless_priest

1 year

Pssst… … … … … I got long COVID by following public health advice

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Brian Fog

@useless_priest

4 months

Just had direct COVID+ exposure. > Hitting the Algovir nasal spray > Gargling w/ CPC mouthwash > Will be taking Zinc, Allegra, Quercetin, Niacin, Aspirin > Resting Any other ideas?

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Brian Fog

@useless_priest

5 months

People are applying for euthanasia because medical students don’t learn about infection-associated illnesses.

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Brian Fog

@useless_priest

1 year

Pedro Pascal as Long COVID paper charts and infographics. (100% credit goes to @mildTin )

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Brian Fog

@useless_priest

1 month

It drives me f*cking crazy how few people understand that people have been disabled by COVID.

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Brian Fog

@useless_priest

1 year

I hadn't heard of ME before I succumbed to Long COVID. I always understood there were conditions that caused suffering that weren't currently treatable. I never knew it was possible for this many people to be so profoundly ill for so long and for no one to care. #WorldMEDay

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Brian Fog

@useless_priest

6 months

I know when people reply saying, "I hope she pulls out of it", that they mean well, but read up about Long COVID, ME/CFS and related diseases. She doesn't need hope. She needs people to start talking about these illnesses. She needs specialist care and research funding.

Dianna Cowern

@thephysicsgirl

6 months

(From husband Kyle) Dianna has been in a really tough crash the last couple months. She has very little energy so is staying off her phone. I’m in with her everyday holding her hand. Some days she’s in pain, some days not as much. She’s conserving energy so not to crash harder.

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Brian Fog

@useless_priest

3 months

"I think this young Dutch woman's voluntary euthanasia due to the severe effects of a condition I don't regard as serious is a great opportunity for me to tell people about my experience with depression and how much more resilient I am than this recently deceased girl."

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Brian Fog

@useless_priest

4 months

Working with mild Long COVID is doing nothing all week except working, feeding yourself and sitting/lying down, and yet feeling like you've gone on a bender 3-5 nights out of the week. But still a privilege relative to more severe LC.

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Brian Fog

@useless_priest

8 months

*By far* the most f*cked up aspect of Long COVID and ME for me is the fact that people who know you as well as anyone can know you will literally not believe you and write off the illness as a character flaw. I literally can't believe this is the way it is, every day.

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Brian Fog

@useless_priest

10 months

> Let the virus that disabled many of us circulate freely and mutate > Not mention and actively stigmatise mentioning the virus itself by name > Make the vulnerable mask at their own expense to participate in society at an absolutely baseline level 2/

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Brian Fog

@useless_priest

8 months

Long COVID is being less mobile than your 70yo parents while being told to think positively.

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Brian Fog

@useless_priest

1 year

A thread of socialists not mentioning Long COVID or not having mentioned it for a long time. Feel free to contribute.

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Brian Fog

@useless_priest

1 year

Spotted on tram 19

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Brian Fog

@useless_priest

2 years

People treat the chronically ill as an abstract minority and not a group in which they could easily include themselves before the pandemic truly ends.

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Brian Fog

@useless_priest

4 months

“What did we do with multiple sclerosis 100 years ago? We said ‘These people are crazy!’ We put them in mental institutions! *Until* we invented the MRI 50 years later” @zalaly on the psychologisation of poorly-studied illnesses like LC/ME ⚕️

Christopher C. Cuomo

@ChrisCuomo

4 months

As Physician and Scientist Dr. Ziyad Al-Aly told me tonight, we must initiate the conversation to solve the problem of long covid despite pandemic fatigue. I’m going to stay on this as long as it takes until we get answers.

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Brian Fog

@useless_priest

10 months

> Normalise, by the promotion of general ignorance, the collective eye-rolling of society in response to this necessity. At best. Mockery and abuse at worst. > Apply pressure for people to return to indoor environments like offices so they can feed themselves 3/

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Brian Fog

@useless_priest

1 year

I’d encourage anyone with #LongCOVID to be as open as they think is possible with friends, family and colleagues. It’s been clear to me for a while that our biggest enemies are ignorance and dismissal.

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Brian Fog

@useless_priest

1 year

Fasting significantly improves all symptoms, almost unconditionally. Can’t be the only can I? #LongCovid

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Brian Fog

@useless_priest

10 months

> Ignore air hygiene measures that would save trillions > Make all the same mistakes with Long COVID as were made with ME > Pay someone at Slate or another MSM publication to resurrect the biopsychosocial model on a roughly quarterly basis 4/

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Brian Fog

@useless_priest

10 months

> Let RECOVER stew in its general ineptitude and lack of ambition > Let it eventually fail and shrug your shoulders - "maybe it is in their heads?" > Squander this once-in-century opportunity to tackle infectious-associated chronic illnesses that cost the economy trillions 5/5

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Brian Fog

@useless_priest

4 months

Spotted in Amsterdam West @BerlinBuyers

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Brian Fog

@useless_priest

7 months

I keep wondering whether the whole “princess in the tower” part of our folk lore is in part derived from autoimmune and other diseases affecting women disproportionately.

E𝚕𝚢𝚜𝚎 K𝚒𝚎𝚛𝚊

@elysekiera

2 years

I have been stuck in bed and within one room for almost 15 years now. I have learned over time to let go ( as many of us have) in the most impossible and profound of ways. To watch life pass by, to observe…. #cfs #mecfs #pmwe #longcovid #lymedisease #lyme

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Brian Fog

@useless_priest

3 months

Another severe ME/CFS patient lost to euthanasia, albeit with immense f*cking style, grace and good humour. Farewell, Lauren 💙. I hope we will eventually be able do better.

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Brian Fog

@useless_priest

9 months

@healingfromlc Nothing like getting on the tram and 4 or 5 people have chesty coughs but you’re getting dirty looks and people avoiding sitting next to you because you have the mask on.

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Brian Fog

@useless_priest

1 year

If we’re supposedly all dying and becoming disabled to protect the economy, … … why do all the financial papers keep running articles about long COVID and immune dysregulation? 🤔

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Brian Fog

@useless_priest

4 months

Dr. Birx said the comparison between COVID and HIV is valid in a specific way: that both are (/ can be) asymptomatic, and their effects on the immune system are only noticed on a delay of months or years. That's valid. It doesn't mean LC = AIDS. That's not what she's saying.

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Brian Fog

@useless_priest

8 months

No one told me I could get Long COVID.

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Brian Fog

@useless_priest

1 year

Journalists 🙏 Long COVID is not "a syndrome in which people continue to experience symptoms of COVID-19". It's a virus-triggered cluster of complications with a high degree of overlap with ME, and includes POTS, dysautonomia, dysbiosis, MCAS, endothelial dysfunction and neuro.

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Brian Fog

@useless_priest

1 year

Where are all the super-cool lefty folks when it comes to COVID absence, long COVID and DISABILITY? There’s a blindspot in left wing politics. A massive yawning chasm.

Julia Marie

@julia_doubleday

1 year

COVID is a WORKERS’ RIGHTS ISSUE So where are the unions and leftists huh??? This is acceptable, ppl getting forcibly infected and reinfected forever??

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Brian Fog

@useless_priest

8 months

This is not to detract from any case of Long COVID, but I think there’s a serious problem that most people perceive LC as something where you’re run down for 3 months, you eat some radishes and do some yoga and you’re good to go.

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Brian Fog

@useless_priest

1 year

Prebiotics, probiotics and #LongCOVID . Lots of papers on potential help to be found here. I haven’t found many people who have tried them. If you have please reply.

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Brian Fog

@useless_priest

9 months

Long COVID is being 33 and grateful you can wash the dishes today.

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Brian Fog

@useless_priest

4 months

Thanks for the reply but I don't think it's clear to you where the anger is coming from. Imagine you've been disabled by one (1) infection, and you're either unable to work or clinging on for dear life. You're the only one on public transport / in the shop wearing a mask ... 1/

Jon Favreau

@jonfavs

4 months

Just to follow up: the brand of person I was referring to is someone who tells people to fuck off if they choose to work from home while sick. I don’t find that persuasive, I find it unhinged. Long Covid is real, tragic, and deserves more attention (I had a post-Covid condition…

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Brian Fog

@useless_priest

1 month

We’re a hair’s breadth away from the article that’s like, “After 2020 there was a sharp increase in death rates across most of the world. Scientists are still trying to understand the cause.”

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Brian Fog

@useless_priest

1 year

I'm gonna give you a list of the things I can't do since I got Long COVID, and tell you why it doesn't occupy my mind at all. What I can't do: - Go for a leisurely walk - Cycle (favourite thing) - Go to a café - Go to a restaurant - Get some exercise - Go on holidays ... 1/

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Brian Fog

@useless_priest

8 months

Long COVID is being very sick for 3.5 years and counting but reading in the newspaper that you actually recovered after a few months.

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Brian Fog

@useless_priest

8 months

Love how Zeynep called out speculation around Wen’s health as “armchair diagnosis” and then proceeds to be like “Anyway I think it’s clear she has bacterial pneumonia”.

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Brian Fog

@useless_priest

29 days

"Long COVID is a straightforward illness that can be addressed with good diet, sleep hygiene and exercise." "OK, would you like some blood? I understand there's a big dema..." "Nah nah, bruv, you're good lol"

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Brian Fog

@useless_priest

10 months

Having a contested illness is like, "My life is falling apart but I have to appear more mentally resilient than I even was before this happened or else they'll psychologise it." It's some Cuckoo's Nest sh*t.

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Brian Fog

@useless_priest

3 months

"An apple a day keeps the doctor away." So does the phrase, "I think I might have Long COVID."

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Brian Fog

@useless_priest

7 months

I did what I was supposed to do: I took all the precautions, I got vaccinated, took off the mask and went out and got infected. Now that I have Long C∅vid, there's nothing for me.

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Brian Fog

@useless_priest

1 year

Besides that, it's not really stated enough how often in the ME/CFS community we hear a story like... ..."I was mild for 5 or 6 years but I suddenly deteriorated. Now I am bedbound and I've had to give up my job". People don't understand yet how long this long tail is.

charlos

@loscharlos

1 year

The recurring narrative that we do ourselves a disservice by discussing the mild cases of #LongCovid is nothing more than another goal post move by those who will continue to do whatever they can to minimize the monstrous political inconvenience that is long covid.

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Brian Fog

@useless_priest

4 months

If you don’t recover from Long COVID, it’s not your fault.

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Brian Fog

@useless_priest

8 months

Do people really expect people with Long COVID, more severe ME etc. to be casualties of a botched public health response and to just quietly / happily accept that?

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Brian Fog

@useless_priest

10 months

I think healthy people who know one person who went downhill after a viral infection assume on some level that this is the only person in the world with the condition.

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Brian Fog

@useless_priest

1 month

Me reading this headline

Billy Hanlon

@bhanlon15

1 month

Forbes: 'Covid-19 Linked To Higher Risk Of Developing Autoimmune Inflammatory Rheumatic Diseases'

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Brian Fog

@useless_priest

6 months

An athlete tragically commits suicide due to the effects what is clearly POTS. She describes “all of her tests coming back normal”. When will #MedTwitter and the media acknowledge these conditions? If every time tragedy strikes, we fail to even recognise the condition…

Billy Hanlon

@bhanlon15

6 months

“Tragic death of top Swedish athlete Emilia Brangefält at the age of 21” Emilia posted on Instagram just a few weeks ago: “Haven’t been able to train anything due to a extremely high heart rate. (120-150 bpm) just standing up’, she wrote”

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Brian Fog

@useless_priest

2 years

What’s up with the uptick in articles assaulting “spoonies”, “invisible illnesses”, “mass anxiety” etc? Is it the JKR stuff?

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Brian Fog

@useless_priest

1 year

Above all, I miss my own autonomy and agency. It’s no longer possible for me to walk places I want to go. It’s time to bring people with Long COVID, ME and related conditions in out of the cold. #LongCovid #LongCovidAwarenessDay #LongCovidAwarenessMonth

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Brian Fog

@useless_priest

7 months

Went to a party masked (was a big hit 😅) for a little while. Rare opportunity to see reactions to Long COVID in the wild and with social guards dropped. Lots of “I know two people who had LC for like a year and were out of work- they got better”.

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Brian Fog

@useless_priest

4 months

Shout if you’d had 2 or more vaccinations at the time you got Long COVID 👇

Laurie Garrett

@Laurie_Garrett

4 months

A single #Covid #Vaccine dose reduced the risk of #LongCOVID by 21 percent, two doses reduced it by 59 percent & three or more doses reduced it by 73 percent.

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Brian Fog

@useless_priest

8 months

Long COVID is being in the worst health you’ve ever been and labelled a conspiracy theorist for mentioning it.

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Brian Fog

@useless_priest

2 years

Has anyone with #LongCOVID , in all seriousness, tried Wim Hof breathing? It genuinely seems to help.

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Brian Fog

@useless_priest

1 year

People with Long COVID and related conditions should be considered medically vulnerable. They should have priority access to Paxlovid, monoclonal antibodies, and any other relevant treatment.

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Brian Fog

@useless_priest

2 months

"We should stop using the term Long COVID. The disease is indistinguishable from other conditions we didn't give proper names to because we don't care about them. Please just allow us not to care about these things collectively as it's more efficient."

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Brian Fog

@useless_priest

2 months

I just find it so bitterly ironic that the attitude of almost the entire medical profession towards infection-associated illnesses like Long COVID is an enormous maladaptive response.

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Brian Fog

@useless_priest

8 months

There are a lot of people on this website and out in the world who would be in quite an embarrassing/compromised position if biomarkers for LC and/or ME are discovered.

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Brian Fog

@useless_priest

1 year

I ate a pizza yesterday. The reaction in terms of heart rate and general health was predictable. Who the hell do I think I am to be eating a pizza? #LongCovid #pizza

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Brian Fog

@useless_priest

2 years

LongCOVID is not going away any time soon. Keep talking about it. #NotRecovered

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Brian Fog

@useless_priest

3 years

@gavnugent "What if I told you you could be a millionaire and never pay taxes? OK. First, get a million dollars. Now.."

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Brian Fog

@useless_priest

1 year

Them: “Have you tried Vitamin D” Me: “Have you heard of ME/CFS?” Them: “Have you tried an inhaler?” Me: “Have you heard of ME/CFS?” Them: “I found exercise helped” Me: “Have you heard of ME/CFS?” Them: “It’s okay not to be okay” Me: “Have you hea…”

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Brian Fog

@useless_priest

12 days

I really don't understand what's going on here. The whole thing with ME is, supposedly, that nothing shows up in tests. But when someone's SpO2 falls to 72 (normal 95-100), this is due to - what - illness beliefs?

Naomi Harvey PhD #WearAMask

@Naomi_D_Harvey

12 days

@MEawareness @5_News Jesus. That’s someone clearly struggling to breath with a clinical quality hospital device showing an emergency level low blood oxygen. The hospital, instead of addressing this…just turned off the obs machine 😧 I just…what is wrong with them??

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Brian Fog

@useless_priest

1 year

‘Today I went to the Frankfurt Zoo with my child. There, masks are compulsory for visitors to the ape house so that the animals do not become infected with Corona. My child asked: "Why are the monkeys protected but we children are not protected at school?" - Yes, why not???’

Mopsstimme 

@mopsstimme

1 year

@Karl_Lauterbach Ich war heute mit meinem Kind im Frankfurter Zoo. Dort gilt für Besucher im Menschenaffenhaus Maskenpflicht, damit die Tiere sich nicht mit Corona anstecken. Mein Kind fragte: „Warum werden die Affen geschützt, wir Kinder aber in der Schule nicht?“ - Ja, warum nicht???

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Brian Fog

@useless_priest

11 months

Reminder to journalists covering Long COVID. It is not persistent COVID symptoms. It's a collection of chronic symptoms and health complications triggered by SARS-CoV-2 infection.

BBC News (UK)

@BBCNews

11 months

Long Covid sufferers feel forgotten three years on

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Brian Fog

@useless_priest

1 year

Broke: Long COVID causes physical inactivity Woke: Physical inactivity causes Long COVID

Study suggests that long-COVID is associated with physical inactivity

In a recent study published in the Scientific Reports journal, researchers in Brazil assessed the association between post-acute sequelae of coronavirus disease 2019 (COVID-19) (PASC) and physical...

www.news-medical.net

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Brian Fog

@useless_priest

1 month

We'll never know how many people have simply disengaged from the health (and social welfare) system as a consequence of not being believed or taken seriously.

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Brian Fog

@useless_priest

4 months

"We invest millions of dollars to make buildings earthquake proof - something that might happen every 50 years. Why can't we do the same with ventilation?" @zalaly 🍃

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Brian Fog

@useless_priest

1 year

Brutal. It highlights the need for urgency with respect to research and recognition for Long COVID.

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Brian Fog

@useless_priest

1 year

@ShaneyWright @LymeLeper In their mind there’s a type of patient they refer to as “care seeking” who are hypochondriacs and super well-read on everything. I think they strongly associate well-read patients with this type.

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Brian Fog

@useless_priest

4 months

Why is EBV not being vaccinated to blue blazes?

Eric Topol

@EricTopol

4 months

More smoking gun evidence for the role of Epstein-Barr virus (EBV) in multiple sclerosis. Elevated EBV-specific lymphocytes in cerebrospinal fluid @PNASNews @UTHealth_SBMI

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Brian Fog

@useless_priest

2 months

@TomMonrow We used to take care of people!

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Brian Fog

@useless_priest

6 months

@organichemusic I did this last time I was getting Novavax. Turned out I was about to get Pfizer and had come on the wrong day (facility was in a remote part of the city). No one had mentioned anything to me. They don’t care what they’re doing but they also get offended when you check. 🤷

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Brian Fog

@useless_priest

30 days

“A life with ME/CFS is like being buried alive.” 🔥 I feel like it’s not discussed enough that there have been large-scale protests for ME/LC happening across Germany, Austria and Switzerland for weeks.

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Brian Fog

@useless_priest

10 months

Seriously.. how many f-ing studies is it going to take?

GeoCK

@GeoEduOne

10 months

Long COVID Devastates Patients' Careers and Quality of Life A survey in Spain of the progress of individuals with #LongCovid reveals the tremendous toll that the condition has taken on their employment, quality of life, and social support network

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Brian Fog

@useless_priest

1 year

This is a masterclass in Long COVID reporting. Why? ✅ Leads with patient experience / expertise ✅ Mentions ME ( #MECFS ) ✅ Mentions POTS ✅ Features scientists who specialise in this area Some more specific points below...

Roey Hadar

@roeyhadar

1 year

#LongCOVID is real. And it's causing real hurt for the people who have it (at least 5% of US adults.) Some lost their jobs, their livelihoods, can't sleep, can't think, can't walk! In our @scrippsnews #InTheLoop story, long haulers share what it's like.

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Brian Fog

@useless_priest

3 months

"The fight against long COVID-19 is not just a medical challenge. It is a moral one." - Bernie Sanders

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Brian Fog

@useless_priest

3 months

She was fucking 28.

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Brian Fog

@useless_priest

10 months

Long COVID is being repeatedly described as "lingering effects of the virus" which makes it sound like a nuisance. It's not a nuisance - it's profoundly life-changing and disabling. It causes atrocious morbidity.

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Brian Fog

@useless_priest

1 year

Always impressed by the bravery of people who are lucky enough to be in the ~90% not affected by post-COVID complications, whose only engagement with COVID now is to take the p*ss out of those trying to raise the alarm on mass disability and revise how serious COVID "was".

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Brian Fog

@useless_priest

9 months

Family member, who is a GP, and just back from sailing around Spain: "You know I have debilitating fatigue too, right?" Me: "..." ... Later in conversation ... Me: "Are you still going to the gym or did that fall by the wayside?" Them: "No I'm still going as much as I can."

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Brian Fog

@useless_priest

4 months

New graphic for the number of fucks given generally

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Brian Fog

@useless_priest

2 years

Why is the political left almost sociopathically silent on #LongCOVID and disability in general?

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Brian Fog

@useless_priest

1 year

I don't think there's anything I miss more than walking around aimlessly at my discretion. There are no discretionary journies. #LongCOVID

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263

Brian Fog

@useless_priest

4 months

... no indication that any help is on the way. This is just the way things are now, and it's being negative or imputent if you, the disabled person, points out any different. So yes, f*ck off Bernie, and f*ck off to everyone trying to write us out of history! 5/5

5

14

266

Brian Fog

@useless_priest

8 months

@h1w0rld But in both cases we definitely decided to ignore the firefighters’ health issues in the aftermath.

4

5

256

Brian Fog

@useless_priest

1 year

A Long COVID FB group admin declined my post about a Long COVID government petition. What's the point of having thousands of LC patients in one place and prohibiting political action?

36

20

255

Brian Fog

@useless_priest

11 months

@remembrancermx This reminds me of the history of chronic health issues that affect mainly women. Before a biomarker was found, MS was dismissed as “hysteria”. The same happens today with conditions like ME/CFS and even Long COVID.

4

22

254