This
#scicomm
tip is free:
I write a lot of my video scripts by telling the story to a friend or family member, and recording it on a voice memo. Then I transcribe that, and remove 14 "likes" 20 "ums" and 23 "so cools."
I've been bedbound since January with long Covid, but I still love to dress up for Halloween. So my husband made me this costume (posted by Kyle, the husband.)
6 months ago today, I got COVID
Today I can’t shower standing up.
Can’t do video calls.
Can’t read books.
Can’t drive.
But I’m still fighting to recover. 🥲
Today marks one year since I got COVID. I’m finally starting to see tiny bits of progress in my recovery, which I feel cautiously optimistic about.
But today I mostly feel a profound grief, missing the life I had a year ago. 😔
#LongCovid
(From husband Kyle) Dianna has been in a really tough crash the last couple months. She has very little energy so is staying off her phone. I’m in with her everyday holding her hand. Some days she’s in pain, some days not as much. She’s conserving energy so not to crash harder.
My condition has declined fast. It’s clear I have severe
#MECFS
I can’t eat solid foods, or feed myself.
I have moderate pain almost 24/7.
I have trouble breathing and lose my ability to stay fully conscious when my symptoms intensify.
I cannot leave the bed.
I am scared 😔
(From Kyle) - The last weeks were scary. ER visits were hard. Dianna still can’t walk, or even sit up in bed. But we see signs of progress. Sleeping more. Eating more. More treatments coming.
Di’s mantras: On the right track. Tomorrow will be better.
I had so many dreams.
I wanted my own science show on Netflix.
I wanted to start a family with Kyle.
I wanted to scuba in Australia.
Now, I just want to walk again.
I want to have a real conversation.
I want to read a book again.
I want to listen to music and see my family.
It’s been nearly 5 months of being completely bedridden. I’ve made very little progress. I can still barely move, or think or talk.
I want to be out in the world living a life. My body hurts. But my heart hurts more.
I wish I had a more positive update.
When I am better, I would like to be invited to everything, thanks.
Your uncle’s banjo performance? Count me in. Your nephew’s Bar mitzvah? I’m there.
Don’t worry, you have a couple years to get your invitations ready.
Dianna’s husband here. Doc advised to take her to ER due to other issues with breathing and HR. Any tips for
#LongCovid
#mecfs
Emergency room visits? 🙏🏼
FINALLY met with a specialist today. (Well, my husband did on my behalf. I can’t process more than a min of talking at a time). More tests starting soon.
For now, one bite at a time.
Sometimes I remember that light and gravity travel at the same speed, so if the Sun disappeared, we would be cast into darkness at the same moment we were flung from orbit.
What a strange universe we live in.
GIF from my video on LIGO:
YOU GUYS. This is Newton’s Principia. The original. The hand-written version, with the laws of motion and the pen corrections and stuff. I. Am. Holding. It.
Kyle here - we wanted to share this (Dianna writes me notes when talking is too hard). When she says she "cant do something" it means there's often an energy or symptom cost to trying. For the last 5 months, tiny amounts of activity trigger awful symptoms.
#longcovid
#MECFS
More labs came back. I very likely have Lyme disease as well. But I can’t tolerate the antibiotics for it because of my severe MCAS. I feel so trapped, depressed, sad, so so scared.
My condition has declined fast. It’s clear I have severe
#MECFS
I can’t eat solid foods, or feed myself.
I have moderate pain almost 24/7.
I have trouble breathing and lose my ability to stay fully conscious when my symptoms intensify.
I cannot leave the bed.
I am scared 😔
Something weird about my disease… I drink only salt water. I’ve been drinking salt water for six months. I’m so used to it now, I don’t even like plain water anymore. 🥴
I can’t believe 2022 was the same year I married my best friend AND developed a disabling chronic illness I may have for life.
To clarify, those are not the same event
I just tested positive for bartonella and babesia. That’s
#LongCovid
,
#MECFS
, MCAS, SIBO, and a lower gut infection, and now 2 vector borne diseases. Do I get BINGO?
(Tweeted by Kyle for Dianna)
A middle school girl saw me after my keynote speech this weekend and said, "Oh my gosh you're physics girl! Your speech was so good. Like, I didn't fall asleep. At ALL."
That's a win.
Congratulations to UCLA professor Andrea Ghez, winner of the 2020 Nobel Prize in Physics, for her pioneering research on the Milky Way’s supermassive black hole.
Full story:
#WomenInSTEM
I’m finally getting some decent results producing 100%-edible iridescent tempered chocolate. The colors are from the chocolate (not any ingredient or coating) diffracting light after being forcefully molded onto a diffraction grating in vacuum.
This disease takes so long to recover from. It’s easy to feel like, when I’m ready to come back to the world, the whole world will have moved on without me.
Will it be years until I can work again? Very likely. 😣
I've been feeling a bit helpless during this whole virus ordeal. But we decided to make ourselves useful and provide 20 fast and easy experiments for parents to do at home with their kids!
Nine months ago, I started working on an ambitious 20-part free physics 101 series. Over the weekend, we released the final lesson and I couldn’t be more proud.
THE EXPANSE OMG. Why did no one tell me it was SO GOOD.
You know when there's a story so captivating you analyze it like your own life, but also the characters are so well-done you miss them between episodes? That's
@ExpanseOnPrime
Worst thing that ever happened to my already crowded inbox:
"We are updating our Privacy Policy."
"Your privacy is important to us."
"We take our responsibility regarding the security of your personal information very seriously."
"We are committed to protecting your data."
If I ever get better, I’m going to treat myself to a fancy AF
@montblanc_world
pen.
(But not the fanciest they have because if I had that kind of money, I would spend it on a house 😅)
A guy on the street just yelled “hello” and I said “hi” back.
Then he yelled, “You said hello back. Does that mean you want to go on a date?”
And that is why women do not respond when you catcall them on the street.
To anyone who has to live with roommates for whatever reason, please know there is NO shame in it. (TBH I didn’t even know there was a stigma until this tweet.)
To anyone who chooses to, for financial, social or whatever personal reason, good for you!
I should have googled how much my trip to the ER would cost. But even if I had, I'd still be shocked to get a $2500 bill with health insurance. WT actual F, America??
A lil surprise showed up in our mailbox. Dude. This is so cool. Thanks to
@EngineeredLabs
for the periodic table WITH ALL THE ELEMENTS IN IT. Gases are even shown as little bubbles. People are so creative...
Day
#150
of Long COVID
Another day I wish I were working on videos, hiking, even watching movies, another day of
#longcovid
spent lying all day on the couch, mostly meditating.
If nothing else, mask up and stay safe so you don’t end up like me! ☺️
#UniteToFight2024
On May 15th - 16th, an international online
#LongCovid
&
#MECFS
Conference will take place, featuring over 18 hours of world-class speakers.
The conference offers free access and is entirely community-driven.
Please assist us in spreading the word about this…
Today is definitely the lowest point of
#longcovid
so far. I laid in the dark all day yesterday listening to chill music & YA audiobooks on 0.8x speed, and crashed even harder today. Too much audiobook time?? I don’t know!
Does anyone else sometimes fall into that unhealthy habit of immediately going to Twitter or Reddit or something when you have even a small break in your work? HOW TO STOP?!
My face still hurts.
(Got punched in the face by the tip of a surfboard. When you’re a woman and you have a black eye, I’ve learned it’s best to give context.)
That is a 4km long cement tunnel protecting a 4km long vacuum tube, one of the arms of the interferometer used to detect gravitational waves. This observatory made history. I can’t believe I got to visit. What a trip.
@LIGO
@LIGOWA
Oh yikes… Netflix just announced a Maker-type show with “4 bearded guys” that appears to be a replica of the female-created YouTube channel
@KidsInventStuff
with my friend
@RuthAmos
How does one get an invitation to Henry Cavill to play a game of Dominion? (Contingent on the inviter recovering from a severe chronic illness in like, a few years probably. Also, I’d settle for a game of Carcassonne.)
The symptoms can come unpredictably, either immediately or delayed for a day. For her, that's the hardest part of MECFS and long covid - not knowing when or how sick she'll become if she tries to be herself
#longcovid
#MECFS
I am releasing a Physics 101 series on my main channel! Who is this for? Anyone curious about introductory physics, but we are following the US AP Physics 1 curriculum.