I am so EXCITED! I got into
@GWpublichealth
for my MPH. It is an all online program to maximize accessibility & minimizing change to my support systems like my doctors.
If you want to help towards the tuition deposit,
@Venmo
me at Syreeta-Nolan
@DisInHigherEd
@AcademicChatter
@NateMJensen
Warmly,
Syreeta
Warmly with gratitude,
Syreeta
Warmly with pain,
Syreeta
Warmly with confusion,
Syreeta
Warmly because I don’t like being cold,
Syreeta
@gaetormom
Show yourself grace
Love yourself deeply
Accept your pain
Speak your truth
Go have fun
Stop punishing yourself
You are disabled
Let people in
Grades aren’t everything
You aren’t worthless
You aren’t trash
Accept all compliments
Stop insulting yourself
Be a teenager
Live your life
@stillstroppy
@SaraFeistiness
@otago
“It is a non-invasive, reversible, economical and attractive alternative to surgical procedures.
“The fact is, there are no adverse consequences with this device.”
So the mental health impacts are not adverse consequences?
All of my spoons are gone.
My heart is breaking.
Finances shouldn’t have the power of choice between life and death, access or no access to healthcare.
I wish I could do more.
I am so depressed and I just feel like a failure in this moment.
#DisabilityTwitter
Cute pics, pls.
@KellyannNavarre
How the fudge could your university notice a lot of people quitting and not prioritize hiring new staff as soon as possible? It is not fair to you and all disabled students at your university.
@DisInHigherEd
@AbleismAcademia
OMG, my first solo published article is available now from
@JDisSoc
. I am so excited to be able to share this with each of you.
The compounded burden of being a black and disabled student during the age of COVID-19
1/
@zarqawiyyah
Ooo I got this wrong answer! Make sure DEI continues to exclude disability & fostering an ableist environment with blatant exclusion from the lab to continue to create ablesplaining solutions to disability issues. Focusing more on abled student success & abandoning accessibility
@WolfoJakayy
@Megan_Steffen
This is my life bisexual with a ton of legalistic Christian friends and family that I can’t be myself around. My CR sponsor who is Christian and works with me as a survivor of abuse considers it backsliding to be attracted to women, so I stopped talking to her about it.
I am in a state of disbelief: My first solo published articles has been named by
@educationarena
as one of the top Education articles published this year. The quoted tweet has no alt text, so I am going to write out alt text in this thread: Blue background with Routledge
1/
In 'The compounded burden of being a black & disabled student during the age of COVID-19', Syreeta Nolan calls for public health systems to holistically address disparities in these most affected communities
🔓:
@nolan_syreeta
@DisInHigherEd
#EduTwitter
@Imani_Barbarin
I was diagnosed with my first mental illness in high school. No one told me it was a disability. No one told me about IEP or any additional supports that I had a right to. Avoiding disability alignment to mental illness is fostering internalized and systemic ableism.
@EbonyJHilton_MD
@FinchTH
I wish there was a reality where the US shut down long enough in the beginning for minimum air ventilation and purification standards to be set & funded for installation across the country.
I live in chronic pain & will continue to mask forever at this point.
Safety 1st
Mom and I are in the ER tonight. It has been 4 hours. She is having chest pains and it has been 4 hours. It is hard to watch the way staff are taking this so casually as my pain increases waiting in hospital chairs. It is a lot.
#DisabledBlackTalk
Get ready, ya’ll! 🥳📢
#BlackInNeuroWeek
is HERE! Drop a "🧠" emoji if you're ready for
#BlackNeuroRollCall
!
To make sure you’re ready for all of the excellence in store, check out our full schedule here.
For detailed instructions on each day, visit
All by myself in ER
All by myself with my GI tract trying to kill me
It is my first time being here since mom passed, so it is also weird emotionally
Cute pictures and memes, please
#DisabilityTwitter
🥺
I just realized that today is a week from the anniversary of my sister’s passing.
AND…
My first Summer Session starts Tuesday with one class: Life, Death & the Human.
This feels heavy already. This is my beautiful sister, Cara, that I carry in my heart & dedicate my work to
Trigger Warning: Suicidal language (more in 🧵), welfare check (🧵/QT Below)
I won’t be able to make my December rent as things are now.
I tried to ask how many days there are past the 3 day grace period to when it goes to legal for the 3 day to pay or quit notice.
She
1/
It is the beginning of what is normally my favorite month of the year, my birthday month… and I am rage crying.
I hate loving my dad when he painfully ignores me telling him mom died.
I hate that my car is in the shop.
I hate being alone.
Help is welcomed
V: Syreeta-Nolan
I just won my 4th award at
@UCSanDiego
for my advocacy. I am so surprised, never did I imagine this happening. It’s really 5 counting the
@ucsdlibrary
Undergraduate library Research Prize.
This is the best way to celebrate 5 years of freedom from my abusive marriage!
#PTSD
Another bonus tweet 19:
I love my mom so much and always will. My mom passed away this morning at 7:15 PST.
I wish my Fibromyalgia would have taken the day off because I am flaring from crying so hard.
Food help is welcomed.
V: Syreeta-Nolan
@CoreyMiles__
I know that there is a trend here on Twitter with the red flags, but following this trend leads to inaccessibility of your post for those use screen readers. Each emoji is read by many screen readers & it can become hard to listen to. For accessibility, please try to limit emojis
Hi everyone, can you help me with a final push to 5,000 followers to be able to follow people again with Twitter blocking me? I am 300 people away.
Let’s have
#WholeWednesday
bringing your whole self here! What are your intersecting identities?
I’m a Disabled, Black, bi woman
I am mentally & physically exhausted,
#DisabilityTwitter
, with all the bad stuff that keeps happening.
Mom was admitted yesterday & they found a 2x2 cm mass at the head of her pancreas. This afternoon she is having a biopsy & stent placed in a duct.
Help.
V: Syreeta-Nolan 😞
Hi.
I am okay.
Also not okay.
Busted into pile of tears in the apartment.
I am with
@BeingCharisBlog
Thank you for all your love and support
V: Syreeta-Nolan
❤️❤️❤️
Call with Social Security right now is called ripping off old wounds. It hurts so bad.
Does applying for help always hurt this badly for disability benefits emotionally?
Send cute animal pictures or GIFs, please.
Or encouragement
#DisabilityTwitter
I’m tired of being told with a smile that I’m resilient
That just means I am regularly knocked down & expected to get back up
Resilience can become toxic when it is just another form of inspiration porn where nothing is done to help in the struggle. It is empty
Quoted Tweet:
Can we please stop equating resiliency with stability or health?
Let’s not pretend that resiliency is the same thing as lack of struggle and its consequences.
Stop acting like resiliency means we can ignore systemic ableism.
#DisabilityTwitter
#NEISVoid
Happy Holidays everybody!
I don’t think happy is the word for my experience of my first holiday season without my mom
I just got out of the UCLA psych unit last week & now I am in UCSD East for IV antibiotics for my resistant UTI
I need $700 more for rent😢
V: Syreeta-Nolan
I am just so tired & overwhelmed.
I was a victim of a scam & lost $976
I lost my wallet including license yesterday
I am now using my mom’s debit card
I just got a replacement license for my flight tomorrow to Seattle
Please Venmo anything you can to help: Syreeta-Nolan
It is 23 days before my thesis is due
It is 23 days before my Calculus final
It is 23 days until I know if Mom has cancer
It is 23 days until my last meeting with UCSD leadership as a student
It is 23 days to a major flare up
It is 23 days to the end of a lot of pressure
23 days
Alt text from
@PunsHurt
:
A person in a wheelchair sits with their back to the camera, facing an elevator with closed doors. On the doors is an ad taken out by a health organization, & it says "Today is the day we take the stairs"
This ad is like shame while waiting, but
1/
[QT]
I’m so excited that I want to cry happy tears. Inclusive Excellence is my heart beat & I’m so thankful to
@UCSanDiego
for recognizing it & for
@riley_ilyse
submitting a nomination. This is going to be such a special way to celebrate Black History Month!
#BlackDEHEM
#DisInHigherEd
@BeingCharisBlog
I remember a long time ago when “following CDC guidelines” aligned with good public health practices to protect disabled people.
Now, it is just ablesplaining & gaslighting as disabled people are left to protect themselves in a return to “normal” that never should have been.
I have to pass my Calculus class and I think I realize going to office hours is a mistake. My teacher is getting more ableist, disrespectful, and less helpful. He told me that I shouldn't have been passed from my last course and shouldn't be in his class at all. This is so hard.
as an invisibly Disabled person it hits differently. An ad that questions the validity of my disability just as the eyes that stare me down getting out of accessible parking spaces with my placard. I wish the ad was on the stairs for those able to consider them as an option.
2/2
I am following 5,001 remarkable people and I can’t follow anyone else until I reach 5,000 followers (Seems like an arbitrary Twitter rule). I would love to start a conversation & amplify you ❤️
Q1: Why are you following me?
Q2: Why should people follow you?
#DisabilityTwitter
“Ableism affects everyone. Disability is going to inform the future because we are in a mass disabling event” -
@Imani_Barbarin
#BlackDEHEMConference
#AACD2021
What do you think the effects of this will be with
@DisInHigherEd
& the barriers experienced before the pandemic?
Please share this information for
@UCSanDiego
students:
Four Marriott hotels indicated that they are offering UCSD students extended stay housing options at a discount on stays of longer than 90 days during the fall quarter.
Students can review options at this link, which
1/
@Imani_Barbarin
Somehow I think that the ableds are just surprised that we were right. They ignored science too in favor of this beloved “back to normal” they desperately wanted. I just wish that public health leadership would have listened.
This reality is awful 😞
@lizzo
Thank you so much,
@lizzo
. My sister had cerebral palsy and epilepsy. In her memory and so many friends in the disability community, thank you.
I have so many feelings about typing this, but I think I am going to throw caution to the wind. Therapists & psychiatrists for years have tried to diagnosed me with
#bipolar
. I rejected it because of trauma, but I know they are right & accepting it will help me get the right meds
@CatherineEPDoc
@DrAlrahmani
@MayoClinic
After the last 3 (going on 4) years during
#COVID19
, what doctor wouldn’t have mental health issues that they are battling? The prevalence of mental illness doesn’t change for any human just because they are a doctor. Mental health history should not be a credential question. 😞
@commaficionado
Thank you for this validation. Getting used to being
#ActuallyAutistic
, I am trying to stop to notice the things I “forced” myself to be okay with & to say that they aren’t. I told mom for the 1st time about the roughness of the bed sheets bothering me. Any shopping advice?
@crutchingreader
When did she say this? I just feel more and more like she is saying all the quiet parts aloud. Public health is saying all the quiet parts out loud state by state as mandates fall. Disabled people fall behind, afterthoughts, to fight for our health as we fight for each other. 😞
“You are so resilient.”
Sure, I am resilient. I get knocked by so many barriers, ableist people and organizations then I stand back up.
Being resilient is so exhausting and it costs so many spoons.
[Quoted Tweet Below]
Fellow disabled people, we know all platitudes suck, but which ones do y’all hate the most and why?
I’ll start.
“Just believe in yourself and you can do anything!”
No amount of believing in myself is gonna make the world accessible to me.
#DisabilityTwitter
#NEISVoid
I have good news,
#NeurodiverseSquad
and
#DisabilityTwitter
!
1. I am ready to break up with my ableist counselor tomorrow during my session. Any advice?
2. I picked up my prescription for Ritalin. Actually treating my
#ADHD
is so exciting! No more antidepressant for ADHD. ❤️
@BrittGratreak
Oh my gosh,
@BrittGratreak
. That is horrific and unimaginable the results of this neglect. The Trimet Lift should have been more careful especially with dementia patients. My family has such a rich history of dementia. My mom and I offer our condolences to you and your family.
@PanickedFoodie
@CoreyMiles__
Yes that would be much better because the same meaning we see is conveyed by what a screen reader would read out of: “red flag on post times one hundred.” Thank you for the question.
#DigitalEquityMatters
to reduce the impacts of sighted privilege on
@Twitter
with accessibility
I guess I can’t just use Twitter to share others fundraisers without it locking me out.
Maybe it’s a sign I need to post for myself.
I have been in the ER with mom for 2 days w/ severe clots in her liver & throughout her lungs
Food is expensive away from home
V: Syreeta-Nolan
Can you help me?
#MutualAidRequest
My housing I thought I had to save money fell through. I have to pay $660 by 9/19 to keep my insurance with UCSD. My membership to
@PublicHealth
is expiring & I can’t afford the conference.
If you can help, please Venmo Syreeta-Nolan &/or RT
@emily_ladau
@HeidiSueRoth1
These ads are all over my social media and my TV commercials. I hate this all so much.
There should be a counter commercial: “Have you been emotionally harmed by these ads for Tylenol and autism? Join this class action lawsuit”
SMH
It has been my absolute honor to be a part of this
#DisabilityTwitter
community. I cannot believe I am one follower away from 6,000 followers.
To celebrate,
#AskMeAnything
(respectfully). I would also love to get to know you all a bit more too.
Please follow each other. ❤️
Fibro MD: Walk more
Me: Walked more and was a productive human
#Fibromyalgia
: *Intense flare*
Me: *staring at NSAIDs and muscle relaxants that aren’t going to do enough, but taking them away*
Laying on heating pad waiting to be able to turn over to sleep.
#DisabilityTwitter
“Color-blindness, as a racial ideology, conflates lack of eyesight with lack of knowing. Said differently, the inherent ableism in this term equates blindness with ignorance”
Racial microaggressions are spoken about, but we don’t talk
Long 🧵 coming
1/
@cakrolik
This one is so much perfection. My inbox is so full that I intentionally ignore some email because I forgot where I left off the last time or I thought I could reply later... but it is more like a failure.
@AprilDalaman
Health care in California shouldn’t be such a nightmare.
ADA accommodations are our rights as Disabled people. It is so bold of them to make this statement
Forget survivor’s guilt
It is survivor’s rage
All the people who deeply loved me in my family & that I was close to have died
I have been battling suicidal thoughts for 20 years & somehow I am still breathing
I hate it
Back to the psych unit I go
V: Syreeta-Nolan
I hope to return
I find myself overwhelmed by emotions today. I was the victim of medical trauma yesterday & it is my first full week of classes at
@UCSanDiego
. I have an emergency appt with my pain psychologist. Please send good vibes today & support tomorrow for my takeover of
@DisInHigherEd
This was asked as a part of my Developmental Psychology course. I lost 2 points in how I replied that we shouldn’t try to “cure” autism.
Here‘s the feedback: “Nice post, although you did not mention how you could support the other side of the argument”
I couldn’t do it 2/2
@BeingCharisBlog
A “conventional disability” is a disability that you ignore because internalized ableism is so conventional. Let’s get to the yoga, essential oils, and just pushing through.
the UPS label to return the government computer since I lost my job.
This is forcing me into urgent crowdfunding. I need $1700 in my
@Venmo
to stay (since it allows immediate withdraw) by December 3rd.
Can any of you help me for the 1st time or again?
V: Syreeta-Nolan
3/3
@GreeneFinchley
@gaetormom
Even if I could say is “You are disabled,” I would still tell my 18 year old self that. I was raised with a visibility disabled sister. When I started to have my mental health challenges, I didn’t see it as a disability. Accepting my disabilities sooner would have changed so much
“If diversity actually valued disability, I could have people to look up to as a disabled undergraduate,” said Nolan. “There would be such a world change if diversity included disability enough that there was more than 3.6% of tenured faculty that consider themselves disabled.”
Advocates and scholars say higher ed has been slow to recognize disability as an identity group or include it in programming around diversity and inclusion
I
#MakeAbleistsUncomfortable
because I am proud to be Disabled in higher education. The more
#academia
tries to exclude or deny the existence of disability, the more ill prepared each leader will be if they become disabled.
Disability is diversity, not something to be denied.
I think one thing that is not spoken about enough is the grieving process of our nondisabled self and who we were.
If a loved one dies, there is bereavement counseling. Yet when we are diagnosed with a life altering condition, we aren’t offered support to grieve
Quoted Tweet:
I want to watch Olympics soccer but I know it'll bring back memories of playing college soccer & remind me that I can no longer play any sport because of what chronic disease has done to my body.
You may not know this - before chronic disease my WHOLE identity was 'athlete'.
I have been waiting to share this good news and the wait is over:
I am joining the board of
@HealthAdvocateX
! I am so honored to bring a disability advocacy perspective. I hope that one day health advocacy can be known more broadly and utilized more.
Everyone I just need to vent about
@UCSDHealth
. Please hold space with me. Mom has been feeling short of breath and in chest pain since Thursday. The ER on Thursday was useless after a long wait and they didn’t even look at the chest x-ray. Mom went to urgent care and the ER
1/
5 rich people lost: World wide news coverage
750 asylum seekers drowning: Silence 😐
Image Description for picture in quote tweet: Blue boat with 750 people tightly packed on 3 deck levels in blue ocean waters with white caps to either side of the boat.
#DisabilityTwitter
The Greek coastguard claimed it didn’t intervene when a boat carrying asylum seekers and refugees capsized last week because those on board refused help, leaving as many as 750 people to drown.
Activists say Greece delayed aid as those on board pleaded for help for 15+ hours.
TW: clots
I just ran out of mom’s room to sob somewhere in private
Her surgical oncologist said that the treatment her medical oncologist recommended isn’t likely to help
Further, that the clots could be highly vascular tumors of
#PancreaticCancer
It’s hospice time
😩
[QT]
I guess I can’t just use Twitter to share others fundraisers without it locking me out.
Maybe it’s a sign I need to post for myself.
I have been in the ER with mom for 2 days w/ severe clots in her liver & throughout her lungs
Food is expensive away from home
V: Syreeta-Nolan
Good news: I’m over 75% through emptying the storage unit that mom & I shared together
Bad news: I got home in a flare & laid down… nothing is close. Not meds, not liquid, not pajamas. I don’t even know if I have “get out of clothes” spoons
#DisabilityTwitter
alone advice pls?
I thought it was time for a little life update. I am just in so much emotional and physical pain. All of my closest family has passed away. Mom’s closest friends have ghosted me after my psych hospitalization. My two pain doctors are requiring too much mental energy to get too 1/
Thank you
@Tinu
. As I was getting out of my car one day, an old white man demanded me to leave the space for someone who needed it & accused me of stealing my Mom’s handicap placard. This was & is my placard. Mom is healthier than I am. I want to park in peace
#DisabledBlackTalk
3-
Stay out of policing our bathroom stalls & parking spaces.
Since you can't tell by looking who is disabled, you're just making us afraid to pee & park in public.
People try to harm us when we're alone because you do that.
#ShowUpForDisabledPeople
.
#DisabledBlackTalk
When
@jtknoxroxs
did too good of a job on the design for my cap and I couldn’t bring myself to throw it. LOL! Headliner auto captioned video coming up next and video description. Thank you for each of you being a part of my journey. A new one is beginning with mixed feelings.
Christian math is keeping churches as ableist as possible and gaslighting disabled people away
If disabled people are not given an accessible church, then all the abled people will make it seem like “healing prayers” work miracles
[Quoted Tweet Below]
This
@NPR
article is phenomenal. The pursuit of “normal” has left disabled people behind. Public health is a passion of mine, but watching
#PublicHealth
data ignored for capitalism makes me question everything about my career plans.
#DisabilityTwitter
, we deserve better
[QT]
“It feels like an uphill battle constantly fighting for someone, anyone to care,” said Justice.
@bethkenny411
@thatjayjustice
@Imani_Barbarin
@mattbc
speak about how the disabled community is being forgotten amid the lifting of COVID safety precautions.
@ZJAyres
Resilience is a burden brought on by broken systems that attempt to break us.
#AcademicMentalHealth
should be fostered by members of leadership in academia remembering how they felt & imagining themselves going through a PhD now. Compassion, understanding and funded extensions.
@semispeaking
My sister had cerebral palsy & epilepsy. Being nonspeaking, no one ever offered her an AAC or an alternate form of communication
I feel like I missed so much from the jokes she could have made, her likes, her fears, her hopes, her dreams, & hearing “I love you” in some form
💔
@CaliforniaCodes
@x3r0gxx
What the?! I live in San Diego. I feel like the truth about the current status of COVID is hidden because no one in leadership really wants to admit we are still in a pandemic. Are California hospitals actually maskless now?
ER again today if she is still not feeling better. I just want to say thank you
#DisabilityTwitter
&
#DisabledBlackTalk
for being there for me. If anyone wants to donate to us as rent is looming & Mom may need to take time off, please Venmo Syreeta-Nolan or DM for my PayPal
7/7
@DrJenGunter
I would say so and the article goes on to say “On Saturday, the president himself relished in news of the MAGA contingent harassing Biden’s campaign bus, retweeting video of the incident along with the caption, “I LOVE TEXAS!”
Please get out & vote. It is time for change.
I am so excited that
@DisInHigherEd
held space to discuss minority stress.
Being a Black Disabled Indigenous bisexual woman, it is a lot of minority stressors that come together
What does minority stress mean to you?
@DisInHigherEd
I am going to share some highlights from
1/
Racism & ableism are two sides of the same coin. To be Black & Disabled is to have professors that cannot openly be racist, but can be openly ableist to mentally & physically disabled Black students driven by an unconscious racial bias.
@DisInHigherEd
@BlackInMH
Quoted Tweet:
We cannot talk about racism or anti-racism or the attainment gap or the broken education pipeline without talking about mental health or mental health inequality at university
Black students are suffering in silence
This plan gives me no hope. Just more words without actual protection.
High quality masks, like KN95 or N95, should be given along with free tests. Indoor ventilation and air quality should be invested in.
#CovidIsNotOver
and will not be for awhile at this rate.
[QT]
COVID cases are going up across the country. But we have the tools, infrastructure, and know-how we need to manage this moment.
Today, we announced our Winter COVID-19 Preparedness Plan to ensure we stay ahead of increases in cases this winter. Take a look:
I am so excited to see the Disability Awareness Track, I created featured in
@UCSanDiego
This Week & to have
@Olas_Truth
to share Black Disabled History with us. It is an Untold story that I look forward to hearing her share. This is open to the
@UofCalifornia
system as well. 1/
@johnpavlovitz
@beckya57
Thank you so much
@johnpavlovitz
This means the world to hear this encouragement
I am Christian & bisexual
I am Black & Disabled
It is hard to live my life
Where the BSU minimizes my disability
Where I am called a sinner
I just want to be
Jesus is love
So many humans are hate
Oh my gosh! This email is like a dream come true! The
@BSPatUCSD
wants to pay me for the advocacy that I plan to do for the Spring quarter. They even asked me to write my own job description. My advocacy will be paid! This is the best early birthday present,
@DisInHigherEd
!
1/
It shouldn’t be like this to be
#disabled
& part of a historically marginalized community. I am applying for grad school in Health Policy next round & I have to craft myself into the right inspiration porn for the abled audience.
@DisInHigherEd
, what do you think?
Quoted Tweet:
applying for scholarships and grants feels like begging. "i should get it because i suffered and lack xyz, please please pleeeaaase, read these 5 pages of reasons why u should pick meee". its degrading af. and most ppl denied. surely there must be another way.
So excited! I have a panel invitation from the Association of Women in Science (AWIS).
I have another invitation asking me to name my honorarium.
I have just been sharing my heart for
#disability
as diversity in Higher Ed & STEM. I am so honored and humbled.
@DisInHigherEd