So very proud of my lovely Son Rob today, receiving his MBE from HRH Princess Royal 💙 so very proud of Rob EVERY day of my life. Visiting Windsor Castle was fabulous to see. I have a wonderful family 👍
SO SAD to hear about Rugby Legend Doddle Weir 💙 a true champion and such a lovely kind human being RIP Doddle 🙏 SO NOW COME ON GOVERNMENT - cut all “Red Tape” 😳and give the so called “promises” of funding of £50 million over 5 years. NO MORE DELAYS PLEASE 🙏
What wonderful news that the Government have agreed to the £50 million pounds, over 5 years, to fund finding a Cure for MND 💙❤️ THANK YOU TO EVERYONE FOR ALL SUPPORT - too many people to thank personally. God Bless you ALL x
Tilda Tries Again - just seen this Inspirational Ceebies Bedtime Stories being read by my wonderful Son 👍what a truly inspiring story for anyone struggling hey ? Very Proud Dad xxxxxxx
Congratulations to Kevin Sinfield OBE. Such a wonderful lovely and inspirational person. No amount awards can be enough for Kevin Sinfield. We love you millions Kev. God Bless x
Blown away this evening. Here is the man himself Rob Burrow wearing the commemorative shirt we’ve been producing for this year’s
@mndassoc
Rugby League Jersey Day shirt. £30 per shirt or vest wit £10 from every sale to MNDA. Please message Chris Superfly Walker on Facebook 💙🧡
An incredible end for Kevin Sinfield on day 6 of his
#7in7in7
challenge raising support for MND.
Staff and students at Brighton College line the route as the rugby league legend and his team complete their latest ultramarathon.
Next stop London.
Even after receiving £30,000 from the Leeds Irish Centre Dinner on Friday - towards the Rob Burrow MND Centre, Today I received another cheque from the Leeds Irish Centre for a further £20,000 🙏 Today we are even closer to a cure for MND. Thank you everyone x
Please watch “Living with MND” tonight on BBC2 🙏 People with MND (and their family) have to get on with life - AND WE DO. But the promised £50 million towards finding a Cure needs to be given NOW 🙏🥲DO NOT DO A U TURN ON THIS FUNDING 🙏
I have just read an absolutely brilliant tweet from my wonderful Rob 👍👍 YES you are going to beat MND Rob - We Can, We Will, I Can, I Will 👊
That’s my Son 💙xxx
Going the Extra Mile on BBC 2 - made me cry so much BUT not in sadness, but in pure admiration of Kevin who IS absolutely “One in a Million” Jack Sinfield stole the show, for me, in his words of admiration for his Dad 💙 Thanks again BBC x
Kevin Sinfield and Rob received their Honorary Freedom of the City of Leeds awards yesterday evening 💙💙 one of the proudest days of my life 🥲Rob said “Leeds is where my Dreams came true”. Fantastic day 👍
Happy New Year to everyone and thank you all for your kindness and wonderful support for my lovely son Rob, and our family 👍
2022 is going to be a real breakthrough year for MND treatments 👍
We Can, We Will, I Can, I Will
Health and happiness to everyone for the New Year x
I am absolutely disgusted to hear that the Government Spending Review has decided NOT to support the Campaign to EndMND, and the requested £50 million over 5 years ! All the so called indicated “Support” for the extra funding comes to NOTHING !! PLEASE RECONSIDER AND HELP MY SON
Earlier this afternoon, an absolutely wonderful Gentleman, who played for the Castleford RLFC club when they they beat the fantastic Australia side in 1863, said to me about my wonderful Son Rob Burrow - Rob is a “Giant in a small body” 🥲Those comment meant the World 💙
👏👏yes 4 years ago today that our hearts broke BUT 4 years later and Rob and us all are SO positive about the future 🙏🤞👍
So marching on together for another 4 years, then another…. Then another etc👍👍
Thank you everyone xxx
Well oh well - my family went out, with my wonderful Son Rob, for a lovely meal at Rockello’s in Glasshoughton Castleford tonight.Unfortunately a disgrace of a person decided to scratch all over Rob’s Disability van 🥲how low are some people hey ! Sleep well you scum of a person
Today has been another unbelievable day 👍Rob was invited to Leeds Irish Centre for a Sports Dinner. Rob was presented with a cheque for £30,000 towards the fundraising for the Rob Burrow MND Centre. Such wonderful people and so kind. Thank you all and God Bless 🙏x
So vandals have now damaged my Son, Rob’s fantastic artwork at Leeds Beckett University 😳 What sort of sick mind would do such a thing hey ?? Sick cowards of people who haven’t the guts to do this sick behaviour in public ! Hide away scumbags 😢
At this festive time of year, on behalf of myself and all my family, I would like to wish everyone a very Safe and Happy Christmas and health and happiness for the New Year. Thank you everybody for all your kind wishes and wonderful support - Enjoy 💙❤️👍
Rob Burrow gave an emotional speech after his documentary 'Rob Burrow: Living with MND' won at last night's Broadcast Sports Awards, offering up a message that everyone can get behind ❤
This is immense: Tony Hudgell, 9, receives a BEM for services to the prevention of child abuse. He raised more than £1.8m for the hospital that saved him after suffering abuse as a baby.
#TomorrowsPapersToday
Good luck to Kevin Sinfield who is running 101 miles from Leicester Tigers ground to Headingley in 24 Hours 💙 all monies raised will be go towards fundraising for the MNDA and the Rob Burrow MND Centre in Leeds. God bless you Kevin - a true Legend 👍
Happy New Year - EVERY DAY, I say a prayer to thank Doddie for everything he did for my Son, Rob.
Doddie started the biggest campaign to raise awareness and fundraising for MND in the uk 🙏 A TRUE LEGEND - thank you Doddie 🙏🏉x
Thanks to the wonderful France Rugby League World Cup team for their very kind gesture of having my Son Rob’s name linked to their Shirts 🙏
Rugby League is such a wonderful Sport 👊Well played today France and best wishes for the rest of the Tournament 💙
I am absolutely disgusted that NO MONEY has been received of the £50 million over 5 years for MND !!! Government and Health Minister should hang their heads in shame. Was the “promise” just a cruel sick lie ? Give us the money PLEASE 🙏
Kevin really is a kindness one in a million 💙👏Kevin doesn’t have to put his body through his challenges but HE JUST DOES 👏he does it for everyone with MND x
ONE MILLION POUNDS!🤯
We are totally in awe of Kevin Sinfield’s determination to raise funds for people living with
#MND
through his
#7in7in7
challenge!🤩
THANK YOU KEVIN!💜
You can still support Kevin by donating to his fundraising page
I had an absolutely amazing day today - went in BBC Breakfast show about the Government’s agreement to Fund MND Research - had a photo with the true Legend Owain Wyn Evans x Also paid my own tribute to a true inspiration Doddie Weir 💙 Even better days ahead now for MND 👍
Well what a wonderful Rugby League World Cup Tournament hey ? Fantastic games and fantastic Finals - congratulations to every Team. But thanks to Kevin Sinfield and his wonderful team for the 7Ultra Challenge 🙏We ARE gonna get a Cure for MND and treatments x
🥲So Proud of my lovely Son Rob and his amazing family ❤️❤️❤️💙💙 Rob ALWAYS fighting for allMND sufferers 🙏
I have never been prouder - thanks for being my Son, Rob 💙x
Thanks to everyone who voted for Rob and Lindsey’s BBC Documentary in tonight’s NTA awards 👍
Congratulations to all winners 👏
However the most award we want for Rob, and all MND sufferers, is an effective treatment and cure for MND - then we celebrate 🎉🙏👍x
What a wonderful day for MND sufferers and families 🙏 Positive (not negative) news about Treatments 👍 I reckon more very positive news from now on 😉WE CAN BEAT THIS CONDITION 🤞👊
Wow what a day, a very Special Day, for MND and a massive step forward towards funding making the difference to find an effective treatment and cure 👍 I would just like to pay my own personal Thank You to everyone at Leicester Tigers for their fantastic support.
Yorkshire’s Rising Star Returns🌟
Macy Burrow, the eldest daughter of
@Rob7Burrow
, and recipient of the Yorkshire Choice Young Achiever Award in 2022, will return to the Yorkshire Choice Awards stage to perform at the Awards in June
Read more HERE >
I just hope and pray that the articles in the Sunday Mirror and Sunday People, today, are read with interest. I am not intending to build any “False Hope” - it’s intended to encourage people to at least HAVE SOME HOPE because surely some hope is better than No Hope.
My Boy, my World 🥲💙
Should Be very interesting because Rob asking questions to very famous people could be hilarious 😂😂
Rob has a very “interesting” sense of humour 😉
Enjoy the episodes 😂
We had an absolutely fantastic meeting earlier today to learn that the Rob Burrow MND Care Centre has moved a massive step forward towards opening 👍 The Centre will be for ALL MND sufferers and families 👍x
I would just like to say Thank You for all the kind people who have responded to my interview today on Politics North. I never mean to upset people but I just want the Government to at least TRY to help MND sufferers. God Bless you all x
A special mention to Emma our Head Girl, Jackson our Head Boy, & Macy who joined Year 7 just a few weeks ago. You all gave brilliant speeches giving everyone a fantastic insight to life as a student at Carleton High School. Thank You!
#amazingstudents
#TeamCarleton
#Belonging
Thanks to everyone at the New Burley Club, in Leeds, who attended the Special concert and fundraising event for my lovely son, Rob Burrow. Thank also to Simon Young for entertaining with his Special voice. God Bless everyone 💙❤️ Ps Rob has stabilised and is doing fantastic 👍
@DrFrancesRyan
What a pathetic thoughtless message 🥲 That’s my Son, and his wonderful friend Kevin, you are messaging about !! PLEASE DONT REPLY - perhaps try to be a kinder person.
From the man himself
@Rob7Burrow
that smile ☺️🥰 please get your tickets now for the Burrow Strictly Ball 💃🕺🪩before it’s too late and thank you!! Your support means the world to Rob 🥰
@mndassoc
@LDShospcharity
@leedsrhinos
Happy publication day to With You Every Step: A Celebration of Friendship by rugby legends, national heroes and best friends
@Rob7Burrow
and Kevin Sinfield (photo: The Daily Mail)
50p from the sale of each book will be split equally between
@mndassoc
and
@LDSHospCharity
Thank you to everyone at Leeds Irish Centre who, through the Sports Luncheon some months ago, have provided Rob and his family with a wonderful Vehicle that has been adapted for Wheelchair access. This vehicle has made transport for Rob and the family SO much easier. So kind x
What an absolutely amazing Evening yesterday at the Burrow Strictly Ball, at Headingley 👍
Sellout event, with so many Stars attending 🤩
My lovely Son, Rob, loved every minute and laughed so much when Barrie McDermott won the Glitter Ball for his Thriller Dance 😂 Thank you 🙏
Thank you to Health Minister Steven Barclay for some positive news with regards to the promised “Ring Fenced” £50 million for MND Research. MND is NOT incurable - it’s Underfunded. Hopefully now we will see the money 🤞🙏
Thinking of you on your birthday Doddie - a true inspiration and Legend.
And YES MND is not incurable, it’s Underfunded 👍
So come on this Government - keep at least your Promise about the “Ring Fencing” of the MND Money 🙏
Thank you MNDA for your kind message 👍and ongoing support.
No Rob didn’t win tonight but TOGETHER we WILL win,beat MND - we can, we Will, I can, I will 👊
Finally heard some fantastic news earlier today from the MNDA, that the Government had agreed a revised Application Process in order to release some of the £50 million “Promised” towards MND Research into a Cure 👍 Just a shame we have had to wait nearly a year !
How unbelievably disgusting that vandals once again damaged the MND 7 stories exhibits in Leeds !! 7 wonderful stories from unbelievably brave people and families and low life scums of people have nothing better to do than damage these stories 😢
Just watched the lovely, touching Interview with Rob and Lindsey on GOOD MORNING BRITAIN 💙❤️Thank you all at the ITV team for looking after Rob and Lindsey. Proud Dad xxxxxxx
Had a fantastic day in London yesterday and a massive thank you to the MNDA. Let’s now just hope we get the extra funding to get a cure and effective treatments 🤞
@EnglandRugby
Kevin is 1 in a Million.
I captured this wonderful moment in my recent charity painting, its one of my most popular artworks and have sold many prints to raise funds for the Rob Burrow centre for MND appeal.
#MND
#sirkev
#robburrow
#7in7in7
Congratulations to Sally Nugent for being a co presenter on BBC Breakfast 👍 Sally, Claire Ryan, and everyone at the BBC have SO supportive for Rob, Lindsey and the family. Words can’t explain how lovely Sally is. It’s my absolute pleasure to know her x
I am absolutely Disgusted to read today’s Sunday Express article “Vital MND cure stalled by red tape” ???? Come on Prime Minister, PLEASE keep your Promise and don’t delay the MND funding because of “Red Tape” please 🙏please 🙏 So near to a Cure 🙏 I beg you.
Rob, Lindsey, and myself had a wonderful night tonight at Pontefract Squash and Leisure Club who kindly held a Fundraising Night for the future new Rob Burrow MND Centre at Seacroft Hospital. The lovely people raised thousands tonight - Thank you all 🙏xxx
Dame Deborah James ❤️Wow how absolutely wonderful and inspirational this lovely lady really is 😂 keep fighting and our love and best wishes are with you. God Bless you from the Burrow family ❤️
The Griffin pub in Castleford have provided Rob, myself and family with a wonderful day today. Such a fantastic pub and Castleford community who held an unbelievable fundraising day for Rob and his family ❤️❤️❤️💙💙 Such kind and wonderful people - Rob smiling so much today. xxx
Just watched Ed Slater, on BBC Breakfast, talking about his MND diagnosis. Good luck guys on your bike fundraising ride. Raising awareness is getting us SO close to a treatment and cure 😉Watch this space 👍
We are going for a Day At The Races, on the 14th of December, at Catterick Racecourse to watch BurrowSeven race 👍👍 It would be lovely to see (and meet) as many kind people who have supported my lovely Son Rob. Gonna have £7 on BurrowSeven 😉xxx
Hasn’t the BBC coverage of the Rugby League World Cup been fantastic 👍All the tournaments have been brilliant. Great viewing and commentary of every game. COME ON ENGLAND 🏴 👊
I have just seen this on twitter - thank you, but I am embarrassed because I am only doing what every Dad, or family member, would do 😉 I dedicate this message to everyone else who are doing exactly the same as I am doing - God Bless and thank you 🙏🥲
I love
@burrow_geoff
’s tenacity. For me, he is the definition of what a Yorkshire dad, a
#rugbyleague
dad, a dad full stop should be.
He’s taken a disease picking on his lad as a personal insult and is taking the fight right back to it.
On behalf of Rob, Lindsey, and all of our family, I would like to say thank Kevin Heath (from Essex) for his kind fundraising donation of £1850 to the MNDA.
Kevin organises a Premier League football competition called “Last Man Standing”⚽️ THANK YOU KEVIN 🙏
Rob has just kindly donated a wonderful framed picture to the Leeds Irish Centre in order to thank them for supporting him and his family, and all the MND community 🙏
Rob, my wife Irene and myself, attended an absolutely amazing “Evening with Kevin Sinfield”. Wow what an incredible evening full of Rugby League legends 🏉raising money for Rugby League Cares Brain Health programs. Pete Emett is a brilliant compère 😂😂 SO FUNNY and brilliant 👍
Rob Burrow told Prince William he "just wanted to try and help other people in a similar situation to me".
The Prince of Wales surprised Rob Burrow and Kevin Sinfield by awarding them with their CBEs during a meeting in Leeds.
Read more:
📸 PA Media
I collected a Cheque yesterday, for £870 from ASDA Distribution Centre in Normanton, West Yorkshire.
ASDA staff are so kind -the £870 will go towards the Rob Burrow MND Care Centre in Leeds which will be a world class venue for MND Care, Hope and inspiration 🙏
Thank you ASDA
‘Living with MND’ is a heartbreaking insight into life for Rob Burrow's family after his diagnosis.
Despite everything thrown at them, they face it all united in love and courage.
Deservedly nominated for the
@OfficialNTAs
, click the link to vote ⬇️
BREAKING: Some very special news this morning.
The player of the match in this year's Super League Grand Final will be the first recipient of the newly-named Rob Burrow Award, after it was renamed to celebrate the Leeds Rhinos legend. 🏆
What a fantastic Rugby Union game between Leicester Tigers and Harlequins 👍wow ! Also what a wonderful gesture from all the Volunteers who took part in the Bucket collection for Kevin’s 101 mile challenge 🙏 THANK YOU 🙏 What a wonderful Sport and very kind supporters x
Congratulations to the fantastic England Wheelchair Rugby League team on winning the World Cup 👍 What a Performance, What a Team, and what an exciting brutal game 👍 SO PROUD 👍👍
Rob has just had 2 fantastic visitors today - Kevin Sinfield CBE, and the wonderful Brent Sheldon (
@armleyartist
). Kevin has signed a wonderful artwork of himself for the forthcoming Auction at the Burrow Strictly Ball on the 20th of April 🙏 All for MND funds 👍
There’s only one Sally, Claire, Richard and BBC Breakfast team 🙏🙏 We really can’t thank you all enough 🥲
The difference you have made in raising awareness of MND in the UK, is priceless 👏
God Bless x
All the very best to Tanya Arnold - you will be SO missed, not being on BBC ❤️ thank you so much for your kind support for MND sufferers and families x
Wowser this is the “Burrow Glitter Ball” for the Champions of Burrow Strictly Ball on Saturday 20th April 2024, at Blackpool Winter Gardens 💃🕺 BUT WHICH DANCERS WILL WIN ?
It’s a scandal, and a disgrace, that MND sufferers are still waiting for the remaining £20 million, of £50 million, “Promised “ by this Government 🤷♂️ As I expected, words and untruths again from Ministers !! Who pays these people 🤔 OH - WE DO 🤷♂️
@AberdareNic
@GeorgeFreemanMP
Remaining £20m MUST be ring fenced to
#mnd
#als
& not from a general ‘competition pot’ available to all causes. It wrecks a strategic approach. We would be back to decades to make real progress again! How is the UK to become a scientific superpower otherwise?
@GeorgeFreemanMP
Congratulations to Scotland on winning the Doddie Weir Cup 👍a fantastic game of Rugby for a wonderful Legend 👊🏉Lovely to see Doddie’s wonderful family 🙏x
Wishing the fantastic Dan Walker, BBC Breakfast, all the very best in his future career with Channel 5. Thank you Dan for all of your support for my wonderful Son Rob. We will be watching you 💙
This Tonight programme will show the understated Love and devotion for caring for their families 🙏 PLEASE WATCH, please share and raise awareness for ALL Carers
I’m really proud of Lindsey for raising awareness for the needs of carers and for shining a light on the incredible work unpaid carers do. If you can please watch Tonight at 8.30pm in support of our carers!
Every time I see footage or Kevin &
@Rob7Burrow
it always brings a tear to my eyes… I have no words which haven’t already been used for the amazing work these team mates & friends have done in raising funds & awareness for MND
@LynnPritchatt
@burrow_geoff
@mndassoc
Thanks to everyone involved in the “Row For Rob” initiative and thanks to everyone who has donated. I am continually meeting True Legends of Rugby League 👍 I just pray for an overdue Treatment and Cure for MND 🙏 thanks to everyone’s kindness - “We Can, We Will, I Can, I Will”
Stephen Darby - during his 5 years with MND he has inspired so many others with this awful disease, to be positive and to fight for a Cure for MND - I applaud you 👏👏Legend 👊
On behalf of Rob and our family - THANK YOU to everyone at the George WMC for your recent and ongoing support for Rob and the MNDA. We can never thank you enough. God Bless you all ❤️💙x