If you are going to protest this weekend and beyond- MASK UP with high quality masks. Yes, outside protests MASK UP with high quality masks! Bring extra. Hand them out to people who don't have masks on.
@JenniferHarr
@PTF_org
My kids were at the peds today and the nurse stuck her head in and asked if a certain family could be seen for a sick check. They replied. It is day 6 so they can come on… no mention of asking if there was a negative test!
@luckytran
My dad died because 1 employee (in a leadership position) lied about his staycation and went to FL and took risks. Almost the entire office got Covid, there was multiple hospitalizations (resulting in at least 2 deaths) and some have long covid. I wanted to sue. My mom said no.
@luckytran
So tired of it. Canceled a doc appointment that is tomorrow cause nervous about all those non-maskers right after going to big unmasked parties.
This is so beyond offensive
@POTUS
. Our loved ones are people who impacted us, who had lives and families, friends. Why has he still not met with loss families. I have asked
@WhiteHouse
to sit down with myself and friends in the loss community. No response.
BIDEN: “And I think we — I sometimes underestimate it because I stopped thinking about it, but I’m sure you don’t: We lost 1 — over 1 million people in several years to COVID.”
We lost almost 700,000 people to covid since Biden took office two years ago.
When my allergist demanded to know why I wasn't getting my allergy shots I explained people aren't masking and those who are aren't wearing them right or high quality enough masks. I don't want to get
#COVID19
. I was told that he can just prescribe me
#paxlovid
, no biggie. WTAF!
@BeingCharisBlog
CDC will move the goal posts again, tests will get harder to get, they will make things less accessible for those of us trying to stay alive, and at the same time product will be harder to get because so many people are sick. People will be out of work and our economy get worse
@rasmr_eth
@luckytran
Did you know his medical history and have his medical files? He died of Covid. It says it on the damn death certificate. And if someone has multiple comorbidities, do you think it is okay than that they died because of Covid? Some lives aren't important according to you clearly.
I worked my ass off to get this President elected. He campaigned on science and doing better. I shouldn't be surprised that now as
@POTUS
he has given up, not following science, and doesn't care how this impacts those of us who are immunocompromised and disabled. I am exhausted
@CovidDataReport
Yep,started preparing Dec 2019. Filed taxes the first day possible so we could use the money to fill our freezer and do a massive costco run. Had my husband arrange to work from home first week in Feb. Same week we arranged for ST and OT to be virtual. Gave friends extra hugs.
@pinkrocktopus
Or continued to teach our girls to be strong women who rule the world and fight for equality for all... girls scouts are more than cookies! My daughter’s silver is almost done and she registered over 100 people to vote!
@kdurquiza
@WSJ
@MarkedByCovid
I, my kids, and my husband have not. WHY? Cause we already paid the ultimate price by covid murdering my dad. We are immunocompromised. We stay the fuck home still. Mask with high quality for docs and the few times we have interacted with people- and only outside with masks.
@DrLeanaWen
@CNN
@katiahetter
Please stop. Every time you tweet you make it less safe for my family. Not to mention, you are causing harm to all of us who lost our loved ones by giving people misinformation about covid.
@AshishKJha46
We are NOT okay, we do NOT have the tools, and thousands are STILL dying!
#CovidIsNotOver
Over 1.1 million people have died of covid- over 600k of them on
@POTUS
's watch. Millions have become disabled by
#LongCovid
. Those of us who are immunocompromised can't leave our homes!
@alexjgoldstein
@NoahTzedek
I am exhausted from people telling me to move on, get out, get together with people. I already paid too high of a price and promised my dad I would stay safe.This is destroying families and causing similar to ptsd symptoms for many of us. Seeing everyone just moving on is painful
@Mike_Pence
@KarenPence
The 7th and 8th nights of Chanukah are offended. You might want to actually use clip art of a Chanukiah and not a Menorah. While all Chanukiahs are Menorahs, not all Menorahs are Chanukiahs. Than again, I don't think you care. This is completely performative coming from you.
@luckytran
Totally agree. It is incredibly frustrating. I have had to cancel a number of appointments because the risk is just too high. Been sitting on a PT referral too and my back just keeps deteriorating in the meantime.
@POTUS
Seriously- google it?! I have and most places you can’t get a test within a timeframe that you need to get it in. I have friends being told the next appointment is in two weeks! That is too late.
Super important conversation. Yes, after reading my dad's medical record from the hospital with
#COVID19
that he was treated like he was expendable because of his chronic medical conditions. Also by every person who says to me- oh, did he have a pre-existing condition as well.
She doesn't care or hear us.
@POTUS
and
@CDCgov
you have not been making choices based on science. If you were mitigations KNOWN to work would be at the forefront. Vax only is not the answer. I am a huge supporter of vaccines but it can not be the end all be all.
#CovidIsNotOver
As we get closer to 700,000 who have been murdered by
#COVID19
, please remember these are actual people who had people who love them and miss them so much, they are
#NotJustANumber
! Nobody wants to be
@MarkedByCovid
I miss my dad so much and fighting with
@R2HAction
in his memory
@chronicallybeee
I am struggling to get a dx. All my docs agree- I have hEDS but they are all scared to officially dx claiming it has to be an EDS program. Those aren’t taking patients! They also all act like it is no biggie. I am tired of being in pain.
@DrTomFrieden
If you have symptoms stay the fuck home except to get tested. This is exactly why those of us who are immunocompromised can't trust people!
My dad was murdered because of
#COVID19
and someone lying about their exposure. He was not the only one to die because of that liar. What we say and do impacts other people... this is why actual REAL public health must happen.
#1MillionPlusPolicyFailures
#CovidIsNotOver
@DrLeanaWen
It is not the CDC's job to meet people where they are either... their job is to get them where they have to be for PUBLIC SAFETY! You are all about mememe aka selfish.
I can't move on. Not only am I immunocompromised but I will forever not have my dad back cause of it. He was murdered by
#COVID19
and a gov. which doesn't value his life. We must vaccinate the world ASAP
@POTUS
and fully fund the Global Fund for Pandemic Prevention
@R2HAction
Was at the World War II memorial in DC, and there was a plaque that noted 400,000 died in the war. Second only to the Civil War, at 600,000 deaths.
And soon we’ll have more dead from COVID than both combined.
Yet still we’re told to just move on and forget about it.
@sunrisemvmt
Why when you call out antisemitism you have to call out every other ism with it and not just antisemitism when the situation WAS antisemitic?
@Matt4VA
@DrEricDing
My daughter developed autonomic dysfunction after having h1n1. It impacts her daily and her education. I have had it since I was young- I missed more HS out sick than in school. Now long haulers from Covid are developing it and we already don’t have enough docs who can treat it!
@kdurquiza
@MarkedByCovid
I got almost no calls cause he was struggling to breath let alone talk. The doctors wouldn't talk to me, only my mom and she had covid too. They lied through their teeth to my mom. I got 1 min over facetime to say bye the day before on a snuck in iphone by my mom who got 5 mins.
@DrEricDing
@latimes
@latimeshealth
I have post viral POTS (not from covid). I have severe brain fog at times. I don't know how many times it had brought me to sobbing cause of the frustration. I can not drive, at times I can not speak, and even sometimes take care of myself all because of the brain fog!
@joaquinlife
We stayed the fuck home again because we did not want to take the risk. We are immunocompromised and we are very aware people just do not care to be safe. It has been 3 long years. 2 years ago we lost my dad right after thanksgiving and I have yet to be able to go to his grave.
@paulkrugman
My dad is one of those people. My family was turned upside down. Over 2 years of mourning because I still have had no real life cycle experiences to mourn with family. My dad was someone who changed peoples' lives and did good in the world. The world is not better without him.
@joaquinlife
How do you get people to care. I literally get trolled and laughed at because I say I am still grieving from losing my dad to covid. I point out that post viral illness has a long history and public health officials should have known what was coming- I get laughed at.
@CDCDirector
We can not JUST vax our way out of this. We MUST use all mitigation methods which include ventilation, masks, and staying the fuck home when we feel sick in addition to vaccination.
@mattbc
I have struggled with this because I have been told too many times by people in the disability community my disabilities aren’t because they are “chronic illness.” Took a lot to accept that they are and still don’t see welcoming by some in the disability community.
@TRyanGregory
As a former pre-school teacher, I got everything my kids got and was the sickest I have ever been. When I got pregnant, my doctors made me quit cause I was so sick.
@flyingfannie
I have had alopecia for a long time. I have waves. The last 6 months has been the worst ever for me but I have not had covid. However, the stress from the lack of protections has 110% is a contributor.
Got a voicemail- F's emgality has been approved! My husband's employer has agreed to approve an exception for her. Thank you
@malcolmkenyatta
and
@SenBobCasey
for standing up for her!! PA- the two of them as our Senators, we would be a very lucky state! They have our back!
@JolentaG
My immunocompromised kids have taken a major mental health hit now that everyone has stopped with accomodations and are acting like it is over- it isn't and they are still super vulnerable and have to do things virtually. When they get left out for this, it hurts
@Arose16399283
@jenniferflynn
That is me. She is still on the meds. We tried to wean her last year and she started to go back into regular anaphylaxis. She is back on.
@queer_spice
I miss taking an hour and slowly looking through the supermarket to find new finds and products safe for my crew. I miss not being judged all the time for wanting to stay alive.
@gordon770
@libsoftiktok
@TuckerCarlson
She LITERALLY doxed and put tons of people in harm's way. This includes a teacher in my local area. She is a shanda. You are a shanda for supporting her. There is nothing of frumkeit in the hate she spews and the harm she does. (And yeah, I am frum and I am disgusted!)
@myrabatchelder
I wish people would listen to use who have autonomic dysfunction/POTS as well as have kids with it. Wouldn’t wish it on my worst enemy.
@emily_rj
@luckytran
Thank you. People don't seem to process that it isn't just you one's behavior impacts. I am trying to work through my anger that a) my mom stayed employed there despite and b) that this person is still employed there despite murdering a co-worker and my dad.
@joaquinlife
We will never know because the medical community will gaslight them just like they have been gaslighting patients with POTS/autonomic dysfunction/fibro/MECFS, and on and on.
@DrEricDing
I already have POTS/Autonomic Dysfunction post virus over 30 years ago when I was a kid. I have been dealing with the consequences almost my entire life. People- you don't want this!
@cjmaddison
I have had POTS for over 30 years. It impacts my entire body,not just heart. Developed it post virus as a kid. I have one kid who developed it post H1N1. Another child who developed it post rotavirus. I have one who is inconclusive but is going that direction. It is not new.
@kdurquiza
@Acosta
Most people are never offered it while it sits on the shelf of the hospital and even those who fight for it don’t always get it. My dad never had a chance to try it and this pisses me off so much!!
@EladNehorai
Over 1.1 million in the US. Close to 7 million internationally. Additionally millions and millions who have become disabled with long covid.
The pundits think this race is about the color of my skin or who I love. But this race is about who I’ll fight for — and in me, working families like mine across PA will have a champion in the US Senate. Too much is on the line.
Check out my first ad 📺
@dipafiend
@FeralHeather
Why are you in healthcare if you don't give a damn about keeping patients safe and not making them sicker when they come visit you?
We will not let 1,000,000 be a lifeless statistic without a face or a name.
We will tell their stories and preserve their memory.
We will stand with those they left behind.
I will never stop fighting for my children! My 12 year old daughter will die if the ACA is overturned. Picture- me being dragged out of the Kavanaugh hearing day 3.
#StopKavanaugh
@ChanaSaraW
@Tzivers
NOPE! As her friend, asking you to take it down IS protecting her and looking out for her wellbeing. You are a bully and making shit up.
@TuesdaysToomey
@SenBobCasey
@SenToomey
Toomey’s office refused to help us when F’s med was being denied over and over while the insurance company refused to actually read her medical file. Casey’s office jumped reaching out. With the letter from Casey they read her file and approved her right away. It saved her life.
@BeingCharisBlog
@Safeway
CVS has been doing that too. My daughter went this morning and they tried. My husband pulled up the CDC page and they backed down. I go in an hour and expect them to try as well.
@malcolmkenyatta
@PAHouseGOP
@TempleUniv
Having small panic attacks cause I have a kid starting at Penn State and if in state tuition massively goes up, I don't know how we will be able to handle it!
I am fighting tooth and nail to end this pandemic so that no more families have to experience this trauma those of us in the loss community are experiencing. At the same time I am seeing all these people I respected acting like
#COVID19
is over guess what-
#CovidIsNotOver
So mad!
@SabrinaTessEp
We did too and the words that came out of my mouth... we see our doc there once a year and keep them updated through mychart. We have done this for years and years. My husband and I were like- their billing is already massively messed up, this is just going to make things worse.
@dysclinic
The "recovery" part is a big error. It simply is not fact. Over 30 years here with
#POTS
. Everyone I know with POTS has waves of good times and roller coasters of bad. The reality is, some thankfully find the right combos and can live with it. Not everyone is so lucky.
@JeromeAdamsMD
I encourage adults to STOP saying virtual school sucks. For some kids, it is not the right or a healthy learning enviroment. For other kids it is a game changer and their educations become something they love vs. it sucked when they were in brick and mortar.
@themaxburns
@JohnFetterman
As a Jewish Pennsylvanian, I am terrified. I would post and tweet and silence except for the same handful of allies. As a disabled Pennsylvanian and a former disabled candidate, we MUST have a conversation about accessibility in the campaign space. Both important convos.