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Rightful Lives Profile
Rightful Lives

@RightfulLives

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A creative campaign and community focussed on the Human Rights of Autistic people and people with Learning Disabilities.

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@RightfulLives
Rightful Lives
2 months
There are lots of reasons why the right community care and support for people with learning disabilities and autistic people just isn’t there. One of those reasons is the huge power imbalance that exists between professionals and people and families. We asked our community to
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@RightfulLives
Rightful Lives
2 years
Tony Hickmott, happy in his new home and having a wonderful time. What a shame it took 22 years for the powers that be to realise this was possible. We hope they are queuing up to apologise.
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@RightfulLives
Rightful Lives
3 years
It really is about time professionals stopped using the statement, ‘this person has extremely complex needs’ to describe their own inability to do anything to help that person.
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@RightfulLives
Rightful Lives
2 years
Today’s the day. Tony Hickmott is coming home.
@JayneMcCubbinTV
Jayne McCubbin
2 years
In 2017 Pam & Roy told me about Tony Their autistic son detained in a crisis when he was 23 STILL locked away today aged 45 But…2 weeks ago …WOW! We stood infront of a beaut bungalow, swarming with workmen, watching Tony’s forever home FINALLY take shape @BBCBreakfast 🧵
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@RightfulLives
Rightful Lives
4 months
Dear @Warwickshire_CC You really need to sort some of your councillors out. This thread contains ignorant and offensive quotes from councillors. Please educate them, maybe show them the Nolan principles. And remind them about hate crime.
@ElissaNoves
Elissa Noves
4 months
🧵 Clips below: Cllr Hammersley: "Is it something in the water?" "Why are there so many people jumping out with these needs? Where were they when I was at school?" "Why do so many people have this badge of SEND and special needs?" "To stop this spend fix the problem at source"
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@RightfulLives
Rightful Lives
2 years
Following #BBCPanorama , we’ve put together a few links where autistic people and people with learning disabilities can try to get help if they are stuck in ATU. We know this kind of abuse is endemic in the system. 1/
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@RightfulLives
Rightful Lives
2 years
Content warning Death of a young autistic girl in an institution. Enough now @NHSEngland @DHSCgovuk @EHRC
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@RightfulLives
Rightful Lives
5 years
GAME CHANGER: The Equality and Human Rights Commissiin is considering prosecuting the Department of Health and the CQC over the human rights abuses of autistic people and people with learning disabilities locked up in ATUs. And rightly so...
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@RightfulLives
Rightful Lives
4 years
Thomas and Joanna. Article 2 The Right to Life They mattered.
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@RightfulLives
Rightful Lives
4 years
There has been a lot of horror expressed about students in Manchester who barely know one another but who are now forcibly locked up together. Awful? Welcome to ATUs...in fact welcome to residential care.
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@RightfulLives
Rightful Lives
6 years
AND WE ARE LIVE..... ENJOY #RIGHTFULLIVES AND LET US KNOW WHAT YOU THINK....
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@RightfulLives
Rightful Lives
1 year
Utterly criminal. Abuse of autistic people and people with learning disabilities is from cradle to grave it seems. Assaults, neglect and a Taser revealed in ‘deeply shocking’ BBC care home investigation
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@RightfulLives
Rightful Lives
6 years
Our letter to @EHRC regarding the violations of the human rights of people with autism and learning disabilities in psychiatric inpatient settings. Please share widely.
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@RightfulLives
Rightful Lives
2 months
Jack Moore suffered hugely as a patient in Cedar House Hospital in Kent. He was a friend of Tony Hickmott who was a patient there for so many years. Today Jack celebrated the closure of this hospital which had been rated inadequate and put in special measures. Sometimes people
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@RightfulLives
Rightful Lives
3 years
If you take the time to give people with learning disabilities a voice and then actually listen to that voice, you will find they talk a lot more sense than most and can quite easily fight for themselves. Historic health inequalities and ‘othering’ attitudes are the issue here.
@doctor_oxford
Dr Rachel Clarke
3 years
People with learning disabilities: "Are so precious, so vulnerable & they have no way of fighting for themselves, we have to fight for them. Get them and their carers vaccinated, stop them dying.” So well said, @jowhiley . Love & strength to Frances 💙
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@RightfulLives
Rightful Lives
5 months
Oh good grief @VictoriaAtkins . What is your point here? Autistic people and people with learning disabilities are much more likely to be harmed than they are to harm. It’s risk averse clinicians who are the problem here not their patients!
@KeeleyMP
Barbara Keeley 💙 🇺🇦
5 months
The Judge who delivered sentences against abusive social care staff at Whorlton Hall said it was an "unpredictable and inherently frightening place to live." It's time the Government closed down such inpatient units detaining autistic people & people with learning disabilities.
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@RightfulLives
Rightful Lives
5 years
Can we also stop with the "services in the community" nonsense. It's vague and othering. Let's just say a home and people to support us in that home. That's all most people want. "Services in the community" colludes with the "extremely complex needs" bollocks.
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@RightfulLives
Rightful Lives
3 years
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@RightfulLives
Rightful Lives
8 months
Exciting announcement!
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@RightfulLives
Rightful Lives
3 years
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@RightfulLives
Rightful Lives
1 year
The next Channel 4 Dispatches documentary will show that the inpatient scandal continues. Titled ‘Locked Away: Our Autism Scandal, it airs on 24th March and is directed by @richardbutchins
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@RightfulLives
Rightful Lives
1 year
If you saw Dannielle on #Dispatches just now, please know she is keen for her voice to be heard. She writes poetry to help her through the darkness so we have made a video of one of her poems which describes her sexual abuse. Please share, for Dannielle.
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@RightfulLives
Rightful Lives
6 years
It was good to join @JeremyH09406697 and Paul Scarrott today as we gave evidence to the Joint Committee on Human Rights about the abuses suffered by people with autism and learning disabilities in psychiatric hospitals. One thing is for sure now...they can’t say they didn’t know.
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@RightfulLives
Rightful Lives
3 years
This is our vigil. Please watch and share... #winterbourne10
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@RightfulLives
Rightful Lives
3 years
“The reforms will also ensure neither autism nor a learning disability are grounds for detention under the act....” News on the MHA White Paper released today.
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@RightfulLives
Rightful Lives
2 years
Dear @Jeremy_Hunt , Congrats on your appointment as Chancellor. Could you now ensure that funding is made available for autistic and learning disabled people to live good lives in the community and not psych hospitals as recommended by @CommonsHealth when you were Chair? Thanks
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@RightfulLives
Rightful Lives
5 years
Just what is the point of psychiatric hospitals for autistic people and people with learning disabilities? Jack will be telling the story of his time in an ATU tomorrow on @BBCBreakfast . He says it was like being in prison or a zoo. Now he is free and his life is so much better.
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@RightfulLives
Rightful Lives
6 years
Much love to @MarkNeary1 who is hospital following a heart attack. We wouldn’t have started #RightfulLives without him xx
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@RightfulLives
Rightful Lives
4 years
For those autistic and learning disabled people whose human rights have been set aside this Christmas... We are with you.
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@RightfulLives
Rightful Lives
3 years
Remembering all the autistic and learning disabled people who have lost their lives to Covid in the past year and hoping that the health inequalities that have contributed will soon be a thing of the past.
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@RightfulLives
Rightful Lives
2 years
Last night, another autistic person died in a hospital where they should have been safe. Where were you @sajidjavid @GillianKeegan ?
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@RightfulLives
Rightful Lives
6 months
Thinking of everyone locked away in a psychiatric hospital over the festive period.
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@RightfulLives
Rightful Lives
3 years
Getting the environment wrong has consequences.
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@RightfulLives
Rightful Lives
4 months
Maybe somebody needs to ask why the people with learning disabilities are in custody in the first place.
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@RightfulLives
Rightful Lives
5 years
The parliamentary Joint Committee on Human Rights would like to hear evidence from anyone who has suffered possible human rights abuses in ATUs. We are happy to collate this. For more info email julienewcombe @rightfullives .net
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@RightfulLives
Rightful Lives
1 year
It’s 12 years since the @BBCPanorama documentary about #WinterbourneView . 12 wasted years of talk, reviews and reports. And no meaningful action. Watch our vigil from the 10 anniversary and ask yourself if this rotten system will ever be fixed.
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@RightfulLives
Rightful Lives
1 year
If you missed @KeeleyMP ’s excellent speech in the Commons today about the abuse of autistic people and people with learning disabilities in inpatient settings today, you can watch it here. Barbara’s speech starts at 17:14.
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@RightfulLives
Rightful Lives
2 years
Big Announcement! On Monday at 7pm, Rightful Lives will take over @NevilleSouthall ’s Twitter feed for 90 minutes to spread the word about the human rights abuses in ATUs. We’ll include links to articles and reports and tweets from self advocates. Be there! @LearningDisEng
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@RightfulLives
Rightful Lives
2 years
Thinking of all those autistic people and people with learning disabilities locked up on hot psych wards and not permitted to have fans or curtains or blinds. Unforgivable.
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@RightfulLives
Rightful Lives
5 months
Suspended sentences for four #WhorltonHall staff. Where on earth is the justice in that @MoJGovUK ? It’s a life sentence of trauma for their victims. Whorlton Hall: Four carers sentenced for abusing hospital patients
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@RightfulLives
Rightful Lives
7 months
This is hate speech @Telegraph . And it also reveals a very poor understanding of autistic folk who are often extremely empathetic.
@AllisonPearson
Allison Pearson
7 months
Lockdown was the brainchild of a bunch of men on the spectrum. They lacked the emotional intelligence to feel or anticipate the appalling consequences of criminalising human contact. They still have the gall to claim it was the right plan. My column: The Covid Inquiry gets
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@RightfulLives
Rightful Lives
7 months
So @DHSCgovuk claims “We are committed to ensuring people with a learning disability and autistic people get the best quality support”. No you’re not @DHSCgovuk . You’re really not. Because you were saying that years ago, yet here we are. Stop lying to us.
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@RightfulLives
Rightful Lives
5 years
One deeply disturbing thought. Yesterday evening #Panorama revealed instances of TORTURE in psychiatric hospitals. This morning @MattHancock couldn’t be bothered to turn up to Parliament to discuss it.
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@RightfulLives
Rightful Lives
4 years
In October 2018, #RightfulLives wrote an open letter to @EHRC asking that they take action against the government regarding the #HumanRights abuses of autistic and learning disabled people in ATUs. Today that action has been announced.
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@RightfulLives
Rightful Lives
4 years
So here comes #Nationalcarersweek . In a pandemic. When carers have been totally ignored and left at the back of the queue. No help, no support, no money. Rock on...
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@RightfulLives
Rightful Lives
4 years
Big news. We've got a sparkling new Rightful Lives team. Welcome to: @AQuinnUnbroken @AliciaWood__ Julie Newcombe, @MadeInBedlam & @MarkNeary18 . Keep your eyes peeled for news of our next project.
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@RightfulLives
Rightful Lives
6 years
#RightfulLives has written to Simon Stevens CEO of @NHSEngland asking him why the NHS is continuing to fund the detention of people in ATUs, often in abusive conditions, and at the same time line the pockets of private investors
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@RightfulLives
Rightful Lives
5 years
Congratulations to @ianbirrell for winning Health Journalist of the Year for raising awareness about the horrors of ATUs and the dreadful abuses inflicted on autistic people and people with learning disabilities. #pressawards
@EditorsUK
Society of Editors UK
5 years
Health Journalist of the Year for 2018 is @ianbirrell of The Mail on Sunday #PressAwards
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@RightfulLives
Rightful Lives
6 months
How very confusing for parents of SEND children. They are either middle class pushy parents after the ‘golden ticket’ of an EHCP or they are just ‘crap parents’, responsible for their children’s differences Make your mind up @Conservatives @GillianKeegan
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@RightfulLives
Rightful Lives
3 years
On the 31st May 2021 it will be 10 years since BBC Panorama screened the abuse at Winterbourne View. Join us in a vigil to remember those who were abused and are still being abused and or detained in hospitals. #winterbourne10
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@RightfulLives
Rightful Lives
5 months
Don’t forget #Winterboune , #WhorltonHall , #CawstonPark and all the other scandals involving the abuse of people with learning disabilities and autistic people. More lives destroyed by professional incompetence, corporate greed and lack of accountability.
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@RightfulLives
Rightful Lives
4 years
We need to change the system so that the decision makers no longer get to benefit from their own decisions.
@JeremyH09406697
Bethany's dad
4 years
4 weeks ago Beth was kept locked in a seclusion cell The Priory wanted her to go to Rampton. They said she needed High Secure Care. Look at today..A family walk by a local river How many more people are locked away just because a blinkered clinician cannot see the right way?
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@RightfulLives
Rightful Lives
3 years
“We are generating traumatic experiences for people and then puzzling over why we can’t release people back into the community.” In a nutshell from @sarasiobhan
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@RightfulLives
Rightful Lives
5 years
Lady Hale: “The Human Rights Act is an act of the United Kingdom parliament and takes precedence over subordinate legislation… This means that incompatible subordinate legislation must simply be ignored.”
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@RightfulLives
Rightful Lives
4 years
You cannot be serious. Family carers have been last on the list for every bit of help and guidance going....and then you refused to increase Carers Allowance. Feel free to get knotted...
@BorisJohnson
Boris Johnson
4 years
I want to say thank you, from the bottom of my heart, to all carers in the UK helping us through this pandemic. Whether you work as a carer, or are caring for someone at home, your compassion and strength at this time is a beacon of hope for us all. #CarersWeek
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@RightfulLives
Rightful Lives
8 months
Four years ago @HumanRightsCtte published its damning report about abusive and appalling conditions in psychiatric hospitals. Nothing has changed. Nothing. @RishiSunak @Keir_Starmer @EdwardJDavey @AdrianRamsay @PrifWeinidog @HumzaYousaf
@BBCBreakfast
BBC Breakfast
5 years
The human rights of some young people with #learningdisabilities and #autism are being breached in mental health hospitals in England according to a new report. It's a story #BBCBreakfast has told from the start ⬇️ #BBCSend #SEN #SEND
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@RightfulLives
Rightful Lives
1 year
We are sorry to hear that Bob Kerslake has died . He was a supporter of #HomesNotHospitals and the rights of people with learning disabilities to live in their own communities.
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@RightfulLives
Rightful Lives
4 years
To those who say some autistic and learning disabled people need to be locked up, restrained and kept in solitary confinement...... READ THIS THREAD...
@JeremyH09406697
Bethany's dad
4 years
Amazing day with Beth.. First time I've seen her for over 100 days. She caught loads of fish!! It was tough social distancing and not having any hugs but hey!.we've been thru far worse! She won the 'Kicked my dad's arse' fishing trophy and was rewarded with a new fishing hoody
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@RightfulLives
Rightful Lives
4 years
“For a life to count, it has to be counted.” Our video about the government’s failure to protect people in care homes in the #COVID19 pandemic. Please share and share again. These are people and they have rights.
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@RightfulLives
Rightful Lives
1 year
Dear @Keir_Starmer Please could you let us know what @UKLabour will do to provide the right support in the community for autistic people and people with learning disabilities? What will you do to close abusive hospital beds? Asking for a lot of people.
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@RightfulLives
Rightful Lives
1 month
This week marks the 13th anniversary of the Steven Neary legal case that effectively brought the language of human rights into the lives of people with learning disabilities and autistic people. It also provided the impetus for the birth of Rightful Lives. We asked @MarkNeary1
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@RightfulLives
Rightful Lives
5 years
The smile of a young man who is no longer locked away. We need more smiles.
@LindaLoux269
Linda Johnson
5 years
Six weeks post-discharge and living his best life 😍
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@RightfulLives
Rightful Lives
3 years
The Priory has been bought and sold by private investors 4 times in the last 15 years. And there you have it. This is why these patients are being failed. Profit. #SecureHospitalUncovered
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@RightfulLives
Rightful Lives
5 years
Have you watched our video yet @MattHancock @BorisJohnson ? The NHS is already being sold. It’s already on the table. When are you going to stop telling lies?
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@RightfulLives
Rightful Lives
7 months
Three members of the Rightful Lives Admin Team have spent the past four years working with @BaronessHollins on her report into solitary confinement in psychiatric hospitals. The report is due out at 2pm and we will be making a statement.
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@RightfulLives
Rightful Lives
20 days
It really is possible!
@JeremyH09406697
Bethany's dad
20 days
The right support opens up the world for people like Bethany. Staff who really understand the person they support and who do their utmost to fulfil dreams. Community Integrated Care have helped Beth fulfil a lifetime dream today.. A trip to Comic Con. They are awesome!!
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@RightfulLives
Rightful Lives
3 years
Dear @EHRC @EHRCChair Please stop listening to providers, government officials and other professionals and start listening to autistic people and people with learning disabilities. You can’t draw conclusions about their human rights until you listen to their voices.
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@RightfulLives
Rightful Lives
5 years
Here’s a random thought. Why doesn’t @CareQualityComm recruit Specialist Advisors who are autistic or learning disabled instead of just clinicians?
@CareQualityComm
Care Quality Commission
5 years
Want to become a Specialist Advisor? We're inviting expressions of interest:
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@RightfulLives
Rightful Lives
6 years
Thank you for your tweets today in support of the #rightfullives exhibition. We are overwhelmed by the responses and we hadn’t envisaged getting to 1000 Twitter followers on day 1. Please keep sharing the website and thank you to all our amazing exhibitors
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@RightfulLives
Rightful Lives
5 years
One more small, but vital recommendation from the recent @HumanRightsCtte report: “Families must be given non-means tested funding for legal representation at inquests where the state has separate representation for one or more interested persons.” @INQUEST_ORG @DebatINQUEST
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@RightfulLives
Rightful Lives
2 years
Happily…Pam and Roy can now visit Tony for Christmas! They are going stacked with presents and love.
@RightfulLives
Rightful Lives
2 years
Pam and Roy got the phone call saying they couldn’t visit Tony after the @BBCBreakfast piece was aired this morning. Cedar House hospital is not acting within current Covid guidelines. What are you doing about it @CahillT1 @BrightonHoveCC @NHSBromley_CCG @GillianKeegan ?
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@RightfulLives
Rightful Lives
5 years
Well it’s the last day of March 2019 and around 2,300 autistic people and people with learning disabilities are still stuck in psychiatric hospitals. Abused, over-medicated, restrained and in seclusion. The architects of #TransformingCare should hang their heads in utter shame.
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@RightfulLives
Rightful Lives
7 months
Come on @wesstreeting . Exactly what will @UKLabour do about this issue?
@KeeleyMP
Barbara Keeley 💙 🇺🇦
7 months
I raised that there are over 2,000 autistic people or people with learning disabilities detained in inappropriate in-patient units despite the Government promising to close them all down over TEN years ago. @wesstreeting is right, Ministers have shown breathtaking complacency.
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@RightfulLives
Rightful Lives
2 years
Report from @NHSEngland that says, amongst other things, that we need research into what makes good community care for autistic people and people with learning disabilities. How can they not know this already?
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@RightfulLives
Rightful Lives
18 days
Meanwhile over 2000 beds are occupied by autistic people and people with learning disabilities, most of whom do not need to be in hospital, but who cannot be discharged because the right community services are not available and because a self serving system keeps them locked up.
@ShaunLintern
Shaun Lintern
19 days
🚨 INVESTIGATION: Britain's mental health system is broken. Patients & innocent members of the public are paying the price. Today we reveal how dangerous mentally ill people are being routinely left in the community. Some will kill themselves or others:
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@RightfulLives
Rightful Lives
2 years
On #WorldMentalHealthDay we are thinking of all those people in psychiatric hospitals for whom today is just another day to be abused.
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@RightfulLives
Rightful Lives
1 year
On Tuesday, the wonderful @KeeleyMP has secured an adjournment debate to discuss the abuse of autistic people and people with learning disabilities in psych hospitals. We ask what @UKLabour would do to empty the hospitals AND ensure there is good, safe community care instead.
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@RightfulLives
Rightful Lives
5 years
More moves from @MattHancock to free people from abusive ATUs. The authorities have got to make this work now...well done @ianbirrell for your tenacity and commitment. It’s great to work with you.
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@RightfulLives
Rightful Lives
4 years
Please share widely and note the last paragraph.
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@RightfulLives
Rightful Lives
4 years
Asking for a few friends. We know human rights abuses are common in psych hospitals. So why, after all this time, don’t @CareQualityComm and @NHSEngland commissioners go charging into any hospital where concerns have been reported, armed with lawyers, advocates and the police?
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@RightfulLives
Rightful Lives
7 months
Are you going to comment on this @wesstreeting @Keir_Starmer ? And where exactly does @uklabour stand on the rights of people with learning disabilities and autistic people? Lots of voters would like to know…
@PauletteHamilto
Paulette Hamilton
7 months
🚨 Harrison Road planning application REJECTED I supported local residents in opposing this proposal, as it would have caused increased noise, parking, and a change in the character of the property, which would have negatively affected the area. Read my letter in full 👇🏿
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@RightfulLives
Rightful Lives
7 months
Today @DHSCgovuk published @BaronessHollins excellent report into the use of solitary confinement for autistic people and people with learning disabilities. The government also published its desultory and insulting response. Our statement is here:
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@RightfulLives
Rightful Lives
4 months
Why is it up to the CQC to find these horrors? Where are the senior managers? Where are the commissioners? Mental health staff falsified records and assaulted patients - CQC
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@RightfulLives
Rightful Lives
5 years
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@RightfulLives
Rightful Lives
2 years
Tomorrow it will be 11 years since @BBCPanorama broadcast #WinterbourneView . Here’s a reminder of what @DHSCgovuk promised back then.
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@RightfulLives
Rightful Lives
5 years
Let’s get this straight... March 2018: the #CQC goes into Whorlton Hall following whistleblowing concerns. May 2019: Action is finally taken. So that’s 14 months of completely avoidable abuse. #notfitforpurpose
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@RightfulLives
Rightful Lives
4 years
Total failure of services. Bravery had a torrid time in a Priory ATU and had nowhere to live when he was discharged. He and his dad lived in cheap hotels. And he was allowed out alone after telling his carers he wanted to kill someone. His awful crime was completely avoidable. 1/
@BBCBreaking
BBC Breaking News
4 years
Jonty Bravery, 18, jailed for at least 15 years for throwing six-year-old boy from balcony at London's Tate Modern
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@RightfulLives
Rightful Lives
5 years
Hi @MattHancock . I know you're busy & that's probably why you haven't followed up on your offer to talk with us. Here's a short film we've made which gives you a flavour of what we'd like to chat about.
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@RightfulLives
Rightful Lives
5 years
Season greetings to you all. Thinking of those locked away and of their families. And of those who are no longer with us because the system doesn’t care. The fight goes on. #RightfulLives
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@RightfulLives
Rightful Lives
5 years
We are at the beginning of a week of reports that will condemn the psychiatric inpatient system, for autistic people, people with learning disabilities, children and those with mental health issues. By the weekend @MattHancock , will anything have really changed?
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@RightfulLives
Rightful Lives
1 year
Hi @Jeremy_Hunt . We listened to your budget. Why are you doing nothing for people with learning disabilities and autistic people stuck in ATUs, despite the recommendations you made as chair of @CommonsHealth ? And what about unpaid carers? No chance of then returning to work.
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@RightfulLives
Rightful Lives
5 years
Eight years after Winterbourne View, Panorama goes undercover again in a hospital for vulnerable adults.
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@RightfulLives
Rightful Lives
7 months
So @David_Cameron is back. Can we remind you, Mr Cameron, how “appalled" you were at the "catalogue of abuses" seen at Winterbourne View. You promised it would never happen again, Well all that abuse is happening, over and over again. Have a word with @DHSCgovuk will you?
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@RightfulLives
Rightful Lives
5 years
Odd isn’t it....there are no beds for MH patients it seems and yet you can lock autistic and learning disabled people up for years in beds they don’t even need and shouldn’t be in. The solution isn’t more beds’ @rcpsych ! It’s better community care.
@rcpsych
Royal College of Psychiatrists
5 years
More psychiatric beds needed to help stop patients being sent many miles from home for treatment, says @rcpsych . Tune into @BBCr4today to hear @EllenWilkinson6 and @Simonro40611952 talking about this at 8.40am #DistanceToBeds
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