Wow. I'm being given an Honorary Doctorate from Oxford Brookes for my role in the 'imaginative and sustained
#JusticeforLB
campaign'. Way to start the weekend.👊
This story goes to the heart of our flourishing lives project; the importance of having the opportunities to do the things you love. His life will be impoverished by removing this. For what?
When a photo unexpectedly appears on FB. Sadness. A moment or ten. Forensic examination. The gig, the glossy mop, the t-shirt. Memories. Love. And sadness.
Did you know that the first four Eddie Stobart trucks were named after famous women - Tammy, Dolly, Twiggy and Cilla. Who would you name a truck after?
Er, not just autistic people and their families. As an academic I have serious concerns about this study which should have been headed off by an ethics committee.
Connor’s birthday. Born in a birthing pool in the small, gloomy dining room 29 years ago. (Lovely) GP in the front room, door shut. Tinny soundtrack and wine gums. 1.
In other news
#JusticeforLB
TV drama rights extended for a year and contract signed for a theatre production. Connor continuing in his inimitable way. ♥️
We’re 8 years in. Decades of ‘lessons learned’, collective brilliance and distraction. Mandatory training, Down syndrome billy bullshite and other white noise.
Chuffed this is out. I'm trying to sort a sharing link and can email PDF copies if anyone wants one. Part of a special edition on 50 years of NHS inquiries.
Relieved to see the back end of a gut wrenching decade. Here’s to some kickass action in the next. Onwards and upwards. We must be nearing the top. ❤️👊❤️
'Mum.. Mum?' 'Yes?' 'Mum is it a bomb detector truck mum?' 'Yep.' 'Mum?' Yes?' 'Mum is it roadworthy mum?' 'Yep.' 'Mum has it had an oil check mum?' ❤️
Exciting news just shared with
@sarasiobhan
we have collection & sign writing dates for Connor's rig! Can't wait for it to be ready and to have LB's family down to see how the
#ConnorSparrowhawk
rig will work to keep the UK safe from unexploded bombs & ordnance. Watch this space!
I dreamt of LB last night. A chaotic dream, he was a tot. I picked him up, held him close and smelled his skin. I didn't move. I just held him close.❤️
Things are afoot in relation to my beautiful Laughing Boy. Big plans (plural) as there should be. A total smasher whose life was extinguished by ignorance and indifference.
This. Still. Families have to fund legal representation at inquests while Trusts use public dosh to arm themselves to the hilt. [That's me and Rich, £27k fees*]
Yesterday was a day of food, drink and remembering LB. A mini
#CaminoLB
with his school staff, classmates and friends. Blown away by the love, support and messages. ❤️
Extraordinary talk of 'elderly' people quarantined for 4 months. Zero reflection still of learning disabled/and or autistic people detained for yonks [and more].