Marie-Claire Grounds @DrGrounds Twitter profile

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Marie-Claire Grounds

5 months

Happy New Year dear friends. For my New Year’s resolution, I’ve decided to take a break from here for a while. Doing ok but just in need of some cognitive and emotional headspace. Wishing you all moments of peace and joy as we step into 2024.

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Marie-Claire Grounds

@DrGrounds

2 years

Two years ago I was putting on scrubs ready for my first shift in a Covid Admissions Ward. I was eager to help however I could. Little did I know within five weeks I would become unwell, leading to a debilitating chronic illness which has no cure. 1/

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Marie-Claire Grounds

@DrGrounds

2 years

I saw my last patient a year ago today. I miss medicine greatly. Yet #LongCovid has taken me on the biggest learning curve of my career. Amidst all the suffering, I have discovered so much about chronic illness that I was never taught. 1/2

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Marie-Claire Grounds

@DrGrounds

2 years

I wish I hadn’t had to learn this by experience. We need to improve medical education; to teach about these dreadful disabling illnesses, and stop the stigma that these are psychological conditions. #MECFS #LongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

The government have given up, but we must continue to try our best. You may not realise it, but your life as you know it may never be the same. #LongCovid #TreatLongCovid #ResearchLongCovid 4/end

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Marie-Claire Grounds

@DrGrounds

2 years

It has been an extremely high price to pay. And yet still my colleagues are sent to work in the same environment with only surgical masks and plastic aprons. How many more will suffer due to covid? Why have we not learned and adapted? This virus is airborne! 2/

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Marie-Claire Grounds

@DrGrounds

2 years

You don’t think it will happen to you…until it does, and then there is no going back. Your life may have changed forever. All it takes is one infection. #LongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

Now all I can do is watch by the sidelines. As cases rise, please do all you can to avoid infection. Wear a mask, ventilate a room, test and isolate if you are unwell. 3/

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Marie-Claire Grounds

@DrGrounds

1 year

Three years ago today, I went to work on a Covid ward. I was eager to help in any way I could. Little did I know how my life was about to change. #LongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

I sit in the oxygen chamber with so many other highly skilled people; lawyers, doctors, vets, teachers, writers, business owners, architects, scientists. Yet none of us can participate in the world anymore. #LongCovid has taken so much from individuals, but the wider society too.

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Marie-Claire Grounds

@DrGrounds

2 years

Long Covid is not slow recovery. It is a complex neuroimmune multi-system condition. We are full of pathology and not getting better without treatment. #ResearchLongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

As I lie resting, full of fatigue, I’m thinking of all those with #LongCovid and #MECFS doing the same at this exact moment around the world. This illness is isolating and lonely but we are connected deeply through our experience. Sending solidarity to all.

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Marie-Claire Grounds

@DrGrounds

2 years

Missing medicine so much right now. I loved my job, and I think I was good at it. There is so much loss in #LongCovid .

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Marie-Claire Grounds

@DrGrounds

1 year

Fantastic programme #BBCPanorama . I’ve not been able to work for 19 months due to severe #LongCovid . Colleagues still using only surgical masks and plastic aprons in covid wards. Our doctors Long Covid group on Facebook continues to grow. No lessons learned.

BBC Panorama

@BBCPanorama

1 year

Healthcare workers with Long Covid face pay cuts as changes to sickness policies kick in Unions say the government is failing to support health staff with Long Covid The government says the public inquiry will cover issues raised in the programme

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Marie-Claire Grounds

@DrGrounds

2 years

A brand new survey reports 95% people with #LongCovid have experienced stigma. Here is what medical colleagues have said to my face. It makes me wonder what is being said behind my back. 1/

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Marie-Claire Grounds

@DrGrounds

2 years

So many new people from omicron waves in my #LongCovid Facebook group, desperately asking for help as they start this terrible journey. Completely heartbreaking to see, knowing what they are facing.

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Marie-Claire Grounds

@DrGrounds

2 years

Steadily becoming a #LongCovid agony aunt. Being put in touch with so many friends of friends who are newly suffering. Glad to be able to help and offer solidarity. Feels like we are heading for a tsunami of chronic illness in working age people, more and more every week.

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Marie-Claire Grounds

@DrGrounds

1 year

1049 days since I caught Covid and my life changed immeasurably. So much loss and suffering since. Across the world millions of futures uncertain, enduring day after day. #LongCovidAwarenessDay

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Marie-Claire Grounds

@DrGrounds

2 years

Letter in @guardian today. So so true. I will be forever changed by this illness. My outlook on the world is altered. I hope if I can work as a doctor again, it will be with empathy and humility. #LongCovid

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Marie-Claire Grounds

@DrGrounds

8 months

Fascinated to better understand the reason for the circadian nature of #LongCovid and #MECFS . Even during a crash, I experience relief in the evenings. Mornings invariably the worst time of day, and dip again around 4pm. What do we know about why this happens?

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Marie-Claire Grounds

@DrGrounds

2 years

@Felice_Interim It’s felt like stepping into a parallel universe, where my body and brain no longer work. As hard as I try, I can’t find the way out anymore.

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Marie-Claire Grounds

@DrGrounds

1 year

My old work bag has been lying abandoned in a corner since I became ill. Finally emptied it out and put it away in a cupboard. Felt like opening a door to a whole different life. That version of me doesn’t exist any more. #LongCovid #Grief

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Marie-Claire Grounds

@DrGrounds

2 years

Chronic illness is such a test of endurance. Just getting through, day after day after day. I long for purpose and passions again. Instead, stuck between these four walls, enduring it all. #LongCovid #MECFS #NEISvoid

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Marie-Claire Grounds

@DrGrounds

7 months

Incredibly proud of my husband Jamie, who absolutely smashed the New York marathon yesterday. Not only achieving a new PB (3:33:55), but also raising almost £4000 for #LongCovid research at @polybioRF . Total hero!

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Marie-Claire Grounds

@DrGrounds

1 year

Finally negative! Day 14. Be careful out there. #LongCovid #Reinfection

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Marie-Claire Grounds

@DrGrounds

8 months

I used to feel deep shame that I was sick, that I couldn’t get better, beating myself up about it. Yet the truth is, there are profoundly abnormal pathological processes going on in my body. Instead, the severity of this illness requires boundless self kindness. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

7 months

My husband is running the New York City Marathon TODAY in aid of #LongCovid research for @polybioRF ! Super proud of him! If you can, please donate:

Jamie's NYC Marathon fundraiser for Long Covid research

Help Jamie Dick raise money to support Polybio Research Foundation

www.justgiving.com

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Marie-Claire Grounds

@DrGrounds

2 years

A beautifully eloquent description of what is happening to me at the moment. #LongCovid

Vlad Vexler

@VladVexler

3 years

#VladsMEdiary Ep 148 Let's talk dynamic disability. #MEawarenesshour #LongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

Medical colleagues, we were never taught about ME at medical school, and if we were it was incorrectly characterised as a psychological illness. There is so much overlap with Long Covid. This is a wonderful introduction⁩ to begin your education.

A life-changing illness

Some perspectives on developing what may be the most common debilitating condition you’ve never heard of…

medium.com

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Marie-Claire Grounds

@DrGrounds

7 months

It is profoundly unacceptable that post-viral illness is categorised by medicine as ‘something to live with’ rather than to actively treat, effectively crossing our fingers that these illnesses might just improve spontaneously. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

1 year

I’ve learned to approach rest with the discipline of someone training for a marathon. I carefully listen to my body’s signals, as an athlete would as they train. Rest has become essential, it is always productive and a non-negotiable part of my every day. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

2 years

@Ladyinahat1 No I didn’t, but to be honest I think that was due to experience from friends and relatives suffering than my medical training. Certainly I knew very little about MECFS nor it’s dark history. It just isn’t taught in medical schools. Things have got to change.

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Marie-Claire Grounds

@DrGrounds

1 year

New Scottish study. 1 in 50 with #LongCovid in Scotland.

One in 50 people in Scotland had long Covid - landmark study

The research is one of the first estimates in the world of long Covid using population-wide data.

www.bbc.co.uk

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Marie-Claire Grounds

@DrGrounds

2 years

Positive thinking is not a treatment. If it was we would all be better. We are highly motivated and desperate to be well again. #ResearchLongCovid

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Marie-Claire Grounds

@DrGrounds

1 year

Becoming ill is not a personal failing. A pathological process is occurring in your body. Do not feel shame or guilt. You are doing the best you can. #LongCovid #MECFS #NEISvoid

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Marie-Claire Grounds

@DrGrounds

2 years

@RhodaWatkins10 Was running regularly. Fittest I had ever been. Caught Covid in April 2020 working on the front line. Severe relapse/reinfection June 2021, now mostly housebound.

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Marie-Claire Grounds

@DrGrounds

7 months

Steadily forgetting what it felt like to be well. Seems hard to believe that I used to have endless energy and brain power, my life full of work, music, friends, travel. Longing for that person to re-emerge somehow. The cruelty of this illness knows no bounds. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

2 years

Time takes on a very different quality in chronic illness. The carefully calculated pacing of activities, coupled by relentless endurance of often severe physical suffering, can turn each hour, day and week into marathons, often stumbled through in a foggy haze. 1/4

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Marie-Claire Grounds

@DrGrounds

2 years

I do wonder if part of the reason medicine and society at large subscribes to the incorrect idea that #MECFS is psychological, is because people can then feel ‘it won’t happen to them’. The truth that they are one virus away from a severe illness is too terrifying. #LongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

Which is why I keep talking about #LongCovid , to keep it out in the open. No one should be made to feel shame about this illness, or feel guilty for not getting better. Above all, it is not a psychological illness. 2/

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Marie-Claire Grounds

@DrGrounds

1 year

This now my fourth summer lying in this hammock, soothing my weary body as it struggles on with this illness. It cradles me, as if in a cocoon. When will I re-emerge, to spread my wings again, metamorphosed? #LongCovid #poetrytwitter

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Marie-Claire Grounds

@DrGrounds

7 months

Would give anything to be able to go on a lovely long walk, just aimlessly wandering, with no need to calculate every step of energy spent. The sense of freedom would be overwhelming. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

8 months

Long covid: the doctors’ lives destroyed by an illness they caught while doing their jobs | The BMJ

Long covid: the doctors’ lives destroyed by an illness they caught while doing their jobs

Unable to work or to play with their children, forced to sell their homes or facing insolvency—doctors with long covid deserve more support from the government and the NHS, writes Adele Waters When...

www.bmj.com

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Marie-Claire Grounds

@DrGrounds

1 year

Medical colleagues. If you’d like to learn more about #LongCovid , but not sure where to start, this is the paper to read! It is the defining illness of our generation, and everybody’s business.

Eric Topol

@EricTopol

1 year

Our comprehensive review of #LongCovid has just been published Phenomenal work by @ahandvanish @LisaAMcCorkell @juliamv @NatureRevMicro

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Marie-Claire Grounds

@DrGrounds

7 months

Dreaming of a parallel universe in which I didn’t get sick and the future I’d envisioned was able to unfold. The grief of chronic illness can be unbearable at times. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

1 year

‘Living with Covid’. Infection #4 . Heading towards my 3 year covidversary. What a present. #LongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

Decades have been wasted whilst post-viral illnesses have been scandalously psychologised. Now is the time to make progress. We need biomarkers and treatments for all. #MECFS #LongCovid #ResearchLongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

You can’t think yourself better, or exercise your way out of this illness. This is a complex multi-system neuroimmune illness, currently without a cure. What we need instead of stigma is empathy, encouragement to rest and an abundance of biomedical research. #TreatLongCovid 3/

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Marie-Claire Grounds

@DrGrounds

2 years

2 year Covid-versary today. Thought I’d be better by the time it took to do this puzzle. How wrong I was. My life has been changed forever. Such a long and rocky journey. #LongCovid

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Marie-Claire Grounds

@DrGrounds

8 months

Crashing badly after a record four weeks of stability. Feel like I keep coming up for air and then plunge back down into the depths of PEM. Holding tight and enduring as best I can. No matter how many times I’ve been here before it never gets any easier. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

1 year

Just in case anyone needs to hear this today, becoming chronically ill is not a character flaw. None of this is your fault. #LongCovid #MECFS #NEISvoid

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Marie-Claire Grounds

@DrGrounds

2 years

I should also say that the stigma people with #LongCovid are experiencing follows in a long line of tradition towards invisible illness from those in healthcare and the wider society. In particular the treatment of those with #MECFS who have suffered greatly over many decades.

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Marie-Claire Grounds

@DrGrounds

2 years

The problem with medical education is that it is very dogmatic. Someone with influence and who is respected tells you something so it is true. Exams test factual knowledge, and groups of experts draw up guidelines and protocols, from which deviation is frowned upon. 1/

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Marie-Claire Grounds

@DrGrounds

11 months

Twitter hive mind! Best educators in ME/CFS and Long Covid? If you had to pick someone to teach your doctor about these illnesses, who would it be? #LongCovid #MECFS #pwME

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Marie-Claire Grounds

@DrGrounds

5 months

From the longest day to the shortest. At the summer solstice I took cuttings of all the flowers in my garden, to be pressed and unveiled on the winter solstice. Here they are! Lovely moment of joy in the depths of winter. Thank you @porridgebrain for the inspiration! #Solstice

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Marie-Claire Grounds

@DrGrounds

8 months

My brilliant husband is running the New York marathon in November and is fundraising for Long Covid research by @polybioRF . We’d be so grateful for any donations. #LongCovid #ResearchLongCovid

Jamie's NYC Marathon fundraiser for Long Covid research

Help Jamie Dick raise money to support Polybio Research Foundation

www.justgiving.com

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Marie-Claire Grounds

@DrGrounds

1 year

Beyond the physical misery of post-exertional malaise and fatigue, the enormous loss of time and ambition is crushing. Dreams and ambitions constantly being tempered and shrunk, to make way for lying horizontal in quiet darkened rooms. This illness is so cruel. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

11 months

Thought I’d have a look in my old medical school textbook to see what was written on post-viral illness. This is the extent of what I could find, a tiny paragraph within the ‘medical psychiatry’ section. Published in 2006. Yikes. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

8 months

Hearing about breakthroughs and progress in #LongCovid and #MECFs research brings much needed hope. Dreaming of the day when we will be able to live life fully again, instead of being imprisoned by this illness. I do believe that day will come! #ResearchLongCovid

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Marie-Claire Grounds

@DrGrounds

7 months

Late to the party but finally trying Nattokinase. Fingers crossed it might shift the dial a little bit. Tips welcomed! #LongCovid

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Marie-Claire Grounds

@DrGrounds

1 year

Sending enormous gratitude to our brothers and sisters with #MECFS who have guided the way, holding our hands and welcoming us as we cross into this strange parallel universe. We are all in this together. #LongCovidAwarenessDay

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Marie-Claire Grounds

@DrGrounds

2 years

@kiwi_to_go @loscharlos Yes been doing it for 7 months. Made a huge difference to my MCAS/histamine intolerance symptoms, but only a piece of the puzzle.

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Marie-Claire Grounds

@DrGrounds

2 years

Every so often, the grief of this illness engulfs you. Everything that has been lost and the mountainous path you have to keep treading. The feeling will pass, but in the moment it can feel soul wrenching. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

3 years

Delighted to have accepted a Consultant Geriatrician post in @nhsfife Can’t wait to join the team! @FifeGeriatrics

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Marie-Claire Grounds

@DrGrounds

2 years

@Nukapai There needs to be huge culture change. I’m determined to be part of it. Here’s a great infographic summarising the evidence to date in Long Covid. Could be helpful to share with your Doctor. I think there are references attached.

Sam McIntyre

@SamMc413

2 years

Long Covid Infographic 🦠 1/2 I’ve made this summary of the latest Long Covid research (condensed for a phone screen) in an attempt to help inform and communicate the biological nature of this horrible condition. PDF Links to all research used below 👇

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Marie-Claire Grounds

@DrGrounds

7 months

Had a dream last night that I ran a full ward round, with vivid detail of each patient’s diagnosis, results and plan. Quite enjoyed it! Woke up to find myself stuck in this broken body, but nice to know medicine is still in me. #LongCovid

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Marie-Claire Grounds

@DrGrounds

10 months

Has anyone worked out how to avoid/minimise the post-breakfast power down? Absolute worst time of day. Ok getting up but as soon as I eat, body and brain go into meltdown. Doesn’t happen for other meals. Interested to hear other experience/tips. #LongCovid #MECFS #pwME

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Marie-Claire Grounds

@DrGrounds

10 months

Today is #SevereMEDay , raising awareness for a profoundly disabling illness causing unfathomable levels of suffering. Devastatingly this illness isn’t taught about in medical training. Please consider watching this short video to learn more. Don’t look away.

Adam

@ABrokenBattery

10 months

New Video: Very Severe #MECFS is a debilitating condition causing profound suffering and life threatening symptoms. They are bedridden and dependent on care. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

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Marie-Claire Grounds

@DrGrounds

2 years

The irony of course is an illness like #LongCovid is not completely new. If only other invisible illnesses such as #MECFS and #Fibromyalgia had been properly funded and researched, we might already have answers to treat the millions suffering. 4/

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Marie-Claire Grounds

@DrGrounds

1 year

I am one of these healthcare workers. Each and every one of us has a story of great loss, enduring debilitating symptoms every day, without an end in sight. #LongCovid

Long Covid SOS

@LongCovidSOS

1 year

More than 2,600 NHS staff in Scotland have been forced to take time off due to #LongCovid It's a “damning verdict of the Scottish Government’s complete lack of care for Long Covid victims” says @agcolehamilton , calling for multi-disciplinary rehab clinics

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Marie-Claire Grounds

@DrGrounds

2 years

‘Normal tests’ aren’t necessarily good news. We just haven’t done the right ones. As novel investigations are beginning to develop, it is clear that people with Long Covid have far from normal results. #ResearchLongCovid

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Marie-Claire Grounds

@DrGrounds

11 months

LDN update: this one was not for me. Not looking for advice but thought I’d share my experience in the interest of balance; too often only positive experiences are shared. NB, this is not medical advice, just my personal experience.

Marie-Claire Grounds

@DrGrounds

1 year

Finally bit the bullet and have my first dose of LDN on board. Hoping it might help shift the dial a bit further in the right direction! Bracing myself for the vivid dreams! #LongCovid

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Marie-Claire Grounds

@DrGrounds

1 year

The @visible_health app is just amazing! Graphs super useful to start to see trends. Clearly a cyclical worsening of my brain fog! Fantastic and easy to use resource for #LongCovid and #MECFS . 👏👏👏

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Marie-Claire Grounds

@DrGrounds

5 months

Sharing a little moment of wintery calm, for those who can’t get out to nature at the moment. So peaceful in these woods. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

8 months

Currently being crushed by PEM and struggling with the endlessness of it all. But so grateful for the solidarity of this community and all the friends I’ve found since this journey began. Who knew such deep pain could bring so much love too. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

1 year

@JonathanCOnP @DaliaHasanMD Currently testing positive yet again. 😩

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Marie-Claire Grounds

@DrGrounds

2 years

@AntonyLoveless I’m so sorry. There is so much loss and grief that comes alongside all the physical suffering. Hope you are getting through your re-infection without too much pain. X

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Marie-Claire Grounds

@DrGrounds

2 years

4/end

Majority of people with long Covid ‘report experiencing some form of stigma’

An estimated 2.1 million people are living with long Covid in the UK.

www.independent.co.uk

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Marie-Claire Grounds

@DrGrounds

1 year

Can only go as far as the bottom of my garden at the moment, but can still share in celestial wonders! Beautiful Edinburgh light this evening, followed by planet spotting! Mars and Venus in this picture! #JoyInSmallThings #LongCovid #Reinfection

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Marie-Claire Grounds

@DrGrounds

7 months

Absolutely smashed it!! #NYCMarathon #ResearchLongCovid

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Marie-Claire Grounds

@DrGrounds

1 year

I’ve realised that my relationship with rest has changed over this year. I used to see it as a chore, and begrudge it feverishly. Yet now, hard as it is, I find solace in rest. It has become an essential part of each day; my strongest weapon and at times an enabler. #LongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

@QLDhealthFail It’s not a cure by any means but has really helped my cognitive dysfunction and fatigue/PEM to a lesser extent. Sleep much better too. A definite upward shift in my function as a result.

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Marie-Claire Grounds

@DrGrounds

1 year

After a decade of nightshifts I used to think I knew what fatigue was. In reality what I’d experienced was severe tiredness, nothing at all like the crushing pathological fatigue of #LongCovid .

GeoCK

@GeoEduOne

1 year

@CovidSolidarit1 I used to enjoy the satisfying fatigued feeling after a strenuous day in the saddle. #LongCovid fatigue is like being on a deathbed. It’s like dying. But you don’t die. You just get to keep experiencing it over and over again with no relief

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@DrGrounds

2 years

Instead they have been psychologised and consigned to the scrap heap, treated as lesser illnesses. This must not continue. Now is the time to move forward and change, for genuine progression which will change countless lives for the better. 5/end

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Marie-Claire Grounds

@DrGrounds

2 years

Medicine needs to learn to think outside the box, and be open to shifting paradigms. There is still so much for us to learn. Things may seem implausible on first look, to our textbook trained brains, but we need to open our minds to possibility. 3/

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Marie-Claire Grounds

@DrGrounds

2 years

@trishgreenhalgh @bcdelaney @ruairidhm @REvans_Breathe @sivanmanoj @LOCOMOTIONstudy Thanks @trishgreenhalgh great thread. Would also highly recommend @LongCOVIDPhysio website, in particular the section on post-exertional malaise which must be screened for in all patients in order to prevent exercise or activity from worsening symptoms. Occurs in over 50% cases.

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Marie-Claire Grounds

@DrGrounds

1 year

Going to be on STV news at 6pm tonight, talking about my experience participating in #LongCovid research. Hopefully it goes better than my previous media appearance!

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Marie-Claire Grounds

@DrGrounds

7 months

Spotted at 23k! So proud of this man! Donate to @polybioRF if you’re able: #NYCMarathon #ResearchLongCovid

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Marie-Claire Grounds

@DrGrounds

2 years

@Aarsil0 @thepollenberry @resiapretorius The irony is that if they were to become unwell with this condition, they would read all available medical literature, desperate to understand how they might get better. I know this because I am a doctor with Long Covid. I would love to be well again and help patients like me.

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Marie-Claire Grounds

@DrGrounds

1 year

Recently I’ve had several people reach out to me, telling stories of their own prolonged post-infectious illnesses. Their recovery brings hope, but devastating that so many years were lost in the process, echoing the ongoing lack of treatments and neglect within medicine. 1/4

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Marie-Claire Grounds

@DrGrounds

11 months

Sadly found this in the other major UK medical textbook. This one published in 2020. Medical education really needs an enormous paradigm shift. #MECFS #LongCovid

Marie-Claire Grounds

@DrGrounds

11 months

Thought I’d have a look in my old medical school textbook to see what was written on post-viral illness. This is the extent of what I could find, a tiny paragraph within the ‘medical psychiatry’ section. Published in 2006. Yikes. #LongCovid #MECFS

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Marie-Claire Grounds

@DrGrounds

2 years

@GeoEduOne Peanut butter is super high in histamine. Sorry you had such an unpleasant experience. Here’s a useful table to help identify potential high histamine foods.

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Marie-Claire Grounds

@DrGrounds

2 years

Modern medicine has a significant problem psychologising severe physical post-viral illness. We have to learn and move forward, but it feels like we are stuck in the Victorian era diagnosing hysteria over and over.

Binita Kane

@BinitaKane

2 years

Another day, another conversation with a parent of a 10yr old child with #LongCovid . Prev healthy, horrendously sick. From clinical picture; PIMS, POTS, gastroparesis, encephalopathy, pericarditis - she’s been checked for none of these, but has seen a psychiatrist #LongCovidKids

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Marie-Claire Grounds

@DrGrounds

1 year

Musical progress! Slowly slowly slowly finding my way back, one bar at a time. In the last week I’ve managed to bring both hands together! Amazed that my brain is slowly improving, as long as I don’t challenge it too fast. Bringing me a lot of joy. #LongCovid #NeuroRehab #Bach

Marie-Claire Grounds

@DrGrounds

2 years

Musicians with #LongCovid ! After many months of not even being able to listen to music due to sensory overload, I am starting to try to practice piano and sing again. I’m finding reading music brings on brain fog and headaches quite rapidly. Any tips? #Neurorehab

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Marie-Claire Grounds

@DrGrounds

2 years

So what happens when a new disease comes along that defies these rules, whose pathophysiology is wholly different from illnesses that came before? 2/

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Marie-Claire Grounds

@DrGrounds

1 year

Medical friends, today is #LongCovidAwarenessDay . For your PDP this week, please consider reading this excellent review paper which outlines the current understanding of the pathophysiology of #LongCovid . It is the defining illness of our generation. #MedTwitter

Eric Topol

@EricTopol

1 year

Our comprehensive review of #LongCovid has just been published Phenomenal work by @ahandvanish @LisaAMcCorkell @juliamv @NatureRevMicro

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Marie-Claire Grounds

@DrGrounds

1 year

Invisible illness. People only see you in your best moments. #LongCovid #MECFS From Classic Art Memes Moderated.

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Marie-Claire Grounds

@DrGrounds

6 months

After a very tough month, finally made it back to the sea. 4 mins at 9.2C. Icy but invigorating. #LongCovid #ColdWaterTherapy

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Marie-Claire Grounds

@DrGrounds

2 years

This is the standard mask that NHS staff are provided with. In Scotland you can now request higher grade PPE as per Scottish Government guidelines. Speak to your line manager who can help. You do not want this virus. Believe me. Sick 27 months now with Long Covid.

Dr Satoshi Akima FRACP 『秋間聰』

@ToshiAkima

2 years

1. Qualitative fit test report on a surgical mask. Outcome: abject failure. The test failed within 5 seconds of a 7-minute OSHA fit test protocol (3M FT-10). In fact, it failed faster than I could start the timer. A record

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Marie-Claire Grounds

@DrGrounds

1 year

Here’s the STV piece which I featured in today. Discussing my participation in research looking at #LongCovid and the menstrual cycle. Thanks ⁦ @KayeNicolson ⁩ for your excellent reporting and ⁦ @JackieMaybin ⁩ for championing this research!

New study on the impact of long Covid on menstruation

The devastating impact of Long Covid has been well documented by those living with the condition.Yet little is known about why some people have been left wit...

www.youtube.com

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