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@visible_health

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The activity tracking platform for illness, not fitness. #MECFS #LongCovid #invisibleillness

https://t.co/FSnU0DuJ1u
Joined November 2021
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@visible_health
Visible
@visible_health
11 months
Today, we’re launching research studies with Imperial College London! 🚀 Our mission is to increase our understanding of invisible illnesses like #LongCovid & #MECFS . Now you can be part of this by sharing your Visible data directly with researchers: 🧵
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Join Research into Long Covid and ME/CFS

Your data can make a difference. With Visible, taking part in research has never been simpler. You can sign up to studies right from your phone.

www.makevisible.com
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@visible_health
Visible
@visible_health
2 years
Today, we're launching the Visible Beta app for #LongCovid and #MECFS . We want to make tracking your condition and taking part in research available to as many people as possible, as soon as possible. Here's more about what we're building:👇🧵1/7
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The next step: Our beta launch

Today, we’re opening up the Visible beta to the whole Long Covid and ME/CFS community.

www.makevisible.com
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@visible_health
Visible
@visible_health
7 months
Today, Visible is launching a research collaboration with neuroscientist David Putrino ( @PutrinoLab ) 🚀 David + the team at Mt Sinai have been relentless in pursuing answers for people with #LongCovid and #MECFS . You can help them on this mission 🧵
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Introducing: David Putrino’s Research Study
www.makevisible.com
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@visible_health
Visible
@visible_health
4 months
Today we’re launching an all-new Monthly Check-in 🚀 One of the most significant impacts of #LongCovid + #MECFS is reduced Functional Capacity. Now you can track it, once a month, in the Visible app using a validated patient questionnaire - FUNCAP27 Why is this important? 🧵
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@visible_health
Visible
@visible_health
9 months
1/ We’re on a mission to make invisible illness visible. Making your health data easier to share with healthcare providers & researchers is a crucial part of that. So today, we’re launching all-new Health Reports + Data Export for #LongCovid & #MECFS 🎉
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Introducing: Health Reports

We’re launching brand new ways for you to view, analyse and share your Visible data.

www.makevisible.com
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@visible_health
Visible
@visible_health
3 years
Many invisible illnesses like ME/CFS, Long Covid and Chronic Lyme share one debilitating symptom: Post Exertional Malaise (PEM). It's incredibly difficult to predict and manage. At Visible, we think we can help. Here's a letter from our co-founders: 1/6
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@visible_health
Visible
@visible_health
2 months
Today, we’re launching a new in-app research study into reinfections with @patientled 🚀 It’s been widely reported by people with #LongCovid & #MECFS that infections can have a significant impact on long-term symptoms With your help, we can better understand this phenomenon 🧵
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@visible_health
Visible
@visible_health
2 years
Since we launched last week, we’ve had some incredible coverage in the media. While the journalists chose to focus on #LongCovid in the headlines, we’re excited to see Visible as another reason for the press to talk about #MECFS and PEM/PESE. Here are a few articles: 🧵 1/5
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@visible_health
Visible
@visible_health
2 years
Right now, over 100 million people are living with energy-limiting conditions like Long Covid and ME. People living with these conditions have been left in the dark for too long.‍ We're determined to help change that. 6/7
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Why we're building Visible

Hi, I’m Harry. I was a fit and healthy 29-year-old, and now I have Long Covid. I’m building Visible because this is what I wish had existed when I got sick 18 months ago. Here’s a little about me and...

www.makevisible.com
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@visible_health
Visible
@visible_health
3 years
Launch day! We're excited to announce we've launched a tracker for #MECFS and #LongCOVID 🎉 Sign up to get early access & find out more:
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@visible_health
Visible
@visible_health
1 year
We've been hard at work on a major update to Visible, which we're launching today. The new ✨Morning Stability Score✨ is based on our analysis of over 5.5 million data points collected from people with #LongCovid and #MECFS . 🧵 1/4
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Introducing: Morning Stability
www.makevisible.com
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@visible_health
Visible
@visible_health
7 months
Listen to David Putrino ( @PutrinoLab ) discuss #LongCovid + complex chronic illness on Sanjay Gupta’s ( @drsanjaygupta ) CNN podcast. David also highlights the work we've been doing at Visible and our upcoming research. We'll be sharing more on this soon.
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Chasing Life with Dr. Sanjay Gupta - Podcast on CNN Audio

Dr. Sanjay Gupta is on a mission to help us approach our new normal mindfully, finding a balance between self-care and productivity, and talking to doctors and researchers about the surprising...

edition.cnn.com
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@visible_health
Visible
@visible_health
1 year
20,000 people with #LongCovid and #MECFS have now joined Visible! Thank you if you’ve been sharing our mission to make invisible illness visible with friends and family. This week, the beta app is updated for those with light sensitivity:
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Week 12: New beta app update
www.makevisible.com
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@visible_health
Visible
@visible_health
7 months
If you live with ME or Long Covid, you can get involved today. Download the Visible app, enroll in the study, and start tracking your illness. Help increase our collective understanding of these invisible illnesses, and help move the science forward 💪
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Download Visible: Long Covid & ME/CFS app

Visible provides the tools you need to get clarity on your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
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@visible_health
Visible
@visible_health
7 months
If you have Long Covid or ME/CFS, you now sign up to our early access program for Visible Plus. Get all-day data via our wearable + real-time pacing alerts. Go to our website to see if Visible Plus is a fit for you:
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Visible - Activity tracking for Long Covid and ME/CFS

Visible provides the tools you need to understand your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
@HarryLeeming
Harry Leeming
@HarryLeeming
7 months
So great to see @visible_health being awarded 'Best of What's New' by @PopSci 🚀 We still have lots of work to do, but a massive thanks to the #LongCovid + #MECFS community for all the help and support in building Visible so far. Onwards!
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@visible_health
Visible
@visible_health
11 months
Research is crucial. Invisible illnesses have been overlooked and underserved for decades. As a community, we need more research to better recognize, support, and treat these conditions. 2/8
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@visible_health
Visible
@visible_health
1 year
'One of the biggest challenges of pacing is that it contradicts popular thinking around recovery.' We're featured in a fantastic article on pacing in #MECFS and #LongCovid , alongside our advisor Todd Davenport ( @sunsopeningband )
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For long covid fatigue, a strategy called ‘pacing’ helps, but at a cost

Taking a lesson from people with chronic fatigue, many patients with long covid are dramatically scaling back daily activities to cope

www.washingtonpost.com
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@visible_health
Visible
@visible_health
2 years
In the background, we've been working hard to build a wearable platform (Visible Plus) for people living with energy-limiting illnesses. A platform that focuses on rest and pacing, not workouts and exercise. You can join the Visible Plus waitlist from the beta app. 5/7
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@visible_health
Visible
@visible_health
2 years
The Visible beta app is available today to download for free. It lets you track and see trends in your symptoms, measure your body's signals (including Heart Rate Variability) with your phone's camera, and contribute data to global research. 2/7
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@visible_health
Visible
@visible_health
6 months
Visible is named as one of the top science breakthroughs of 2023 by immunologist Luke O'Neil 🚀 Luke O'Neil ( @laoneill111 ), Professor at the School of Immunology, Trinity College Dublin, discusses Visible Plus and #LongCovid on @NewstalkFM .
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@visible_health
Visible
@visible_health
2 years
Download the beta app now to get involved: 9/9
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Download Visible: Long Covid & ME/CFS app

Visible provides the tools you need to get clarity on your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
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@visible_health
Visible
@visible_health
2 years
It's been 131 days since we shared the first version of the Visible beta app with a small group of people living with Long Covid and ME/CFS. In that time, this group have tested it, shared their feedback, and captured more than 76,000 data points on their conditions. 🙏 3/7
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@visible_health
Visible
@visible_health
7 months
With over 58 million data points and more than 40,000 people using Visible, we’ve built the largest dataset in the world on biometrics, symptoms + interventions across #LongCovid and #MECFS 🌎 This provides an incredible opportunity for research.
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@visible_health
Visible
@visible_health
11 months
Our 1st study is investigating the effect of menstrual cycle on Long Covid and ME symptoms with @VikiLovesFACS It’s clear to many #pwLC and #pwME that the menstrual cycle has a major impact on symptoms. This relationship needs more research and visibility. 5/8
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@visible_health
Visible
@visible_health
1 year
Visible featured in @WIRED 🚀 Despite debilitating health conditions, patients are turning to fitness trackers to manage their illness. We spoke to WIRED about how Visible is developing a new wearable platform - one designed for illness, not fitness.
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How Chronic Illness Patients Are ‘Hacking’ Their Wearables

Fitbits and Apple Watches weren’t designed for people with atypical health conditions. But the tech can be extremely useful—with some creativity.

www.wired.com
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@visible_health
Visible
@visible_health
2 years
'Visible potentially presents a revolutionary development in wearables for long COVID, ME/CFS, and similar diseases – one that could impact not just the health of the people that use it but the long COVID and ME/CFS fields as well.' - @CortJohnson
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Visible: The 1st Long-COVID and ME/CFS Activity/PEM Tracker is Here - Health Rising

Harry Leeming was in good shape! He was young, he exercised daily, had climbed mountains, and even cycled across continents. An engineer in the electric car field, he was making a difference as well....

www.healthrising.org
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@visible_health
Visible
@visible_health
2 years
It’s been a week since we launched our Beta app, and we have been so grateful for the incredible response! Over 5,000 people with #LongCovid & #MECFS have now started using Visible. Here are some of the most common questions we’ve received… 🧵 1/8
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Our first week with the beta app
www.makevisible.com
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@visible_health
Visible
@visible_health
4 months
Tracking symptoms alone doesn't tell the full story. This is because, for many people, as their condition improves, they increase their activity to tolerate a similar level of symptom severity. This means that when evaluating treatments, beneficial outcomes can easily be missed
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@visible_health
Visible
@visible_health
1 year
This week, we're updating the Morning Stability score with an improved algorithm.🎯 It’s now better at handling high Heart Rate Variability (HRV) and low Resting Heart Rate values. Find out more in our latest blog 🧵
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Introducing: Morning Stability v1.2
www.makevisible.com
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@visible_health
Visible
@visible_health
2 years
We're continuing to improve and develop the Visible platform, but we want to share the earliest version so we can get your feedback. Test it, break it, share your feedback on what works for you and what doesn't, and help us build the platform we so badly need. 4/7
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@visible_health
Visible
@visible_health
7 months
David and his data science team are particularly interested in the relationship between biometrics (like HRV) and symptoms. Previous studies have been limited in scope, but this research aims to use the power of big data to uncover new + significant findings in these conditions.
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@visible_health
Visible
@visible_health
2 years
It’s been two weeks since we launched the Visible Beta app. We now have more than 10,000 people with #LongCovid and #MECFS helping to test what we’ve built, and providing feedback. Today we’re releasing our latest app update with 2 new features... 🧵1/5
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Introducing: Notes and crashes

It’s been two weeks since we launched the Visible Beta app. We now have more than 10,000 people helping to test what we’ve built, a number that has doubled in the last week. Today we’re releasing our...

www.makevisible.com
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@visible_health
Visible
@visible_health
2 years
'Visible is going to help sufferers address what is widely considered to be the number one #LongCOVID symptom. Post-exertional malaise (PEM) describes the worsening of a condition’s symptoms following even minor exertion, and it’s also common in #MECFS '
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Visible launches activity-tracking platform to tackle long COVID | TechCrunch

Visible is a new activity-tracking platform designed to help those suffering from long COVID track and manage their symptoms.

techcrunch.com
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@visible_health
Visible
@visible_health
1 year
This week, we’ve finished rolling out an update to our Morning Stability Score 🎉 With over 25,000 people using Visible, we’re now using more data to generate the score and make it more personalized to you. Here’s how we’re doing it 🧵
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Introducing: Morning Stability v1.1
www.makevisible.com
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@visible_health
Visible
@visible_health
4 months
Functional Capacity captures both the capability of performing an activity and the consequences of doing so - crucial given PEM. Four ME researchers spent 2yrs, working with 1000+ pts and 5x iterations to build a standardized way of tracking it. This is called FUNCAP27.
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@visible_health
Visible
@visible_health
4 months
Similarly tracking only activity, misses a key aspect... That many people are ‘able’ to increase their activity, but it doesn’t take into account the cost of doing so. Tracking Functional Capacity helps solve this.
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@visible_health
Visible
@visible_health
4 months
Finally, a big thank you to: Kristian Sommerfelt, Trude Schei ( @t_schei ), Katharine Seton ( @Katharine_seton ), Simon Carding ( @CardingLab ) and the 1000s of patients from The Norwegian ME Association support groups who contributed. It’s due to their hard work that FUNCAP27
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@visible_health
Visible
@visible_health
1 year
We’ve released another version of the Visible beta app for #LongCovid and #MECFS 🚀 This week we’ve added medication tracking. Read more about our latest update here, including what’s coming in January: 1/5 🧵
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Introducing: Medication tracking
www.makevisible.com
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@visible_health
Visible
@visible_health
2 years
We're very excited to be supporting this pilot study into heart rate monitored pacing in #pwME and #LongCovid using Visible with @PhysiosForME @MEAssociation Now recruiting!
@PhysiosForME
Physios For ME
@PhysiosForME
2 years
🚨👇🚨 We are now recruiting for a pilot study looking at pacing with a Heart Rate Monitor for people with ME and/or Long Covid Eligibility criteria in next tweet, all details on link below #pwme #LongCovid
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@visible_health
Visible
@visible_health
4 months
FUNCAP27 is a 27-question validated survey covering 8 types of activity. For each activity, it asks: - What are the consequences for you if you perform this activity? - To what extent does this affect how much else you can do? Giving you a total score out of 6.
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@visible_health
Visible
@visible_health
11 months
Our 2nd study is investigating the economic impact of Long Covid and ME symptoms with @MRC_Outbreak . With disability claims rising in the US, and long-term sickness at an all-time high in the UK, we need better epidemiological models of #LongCovid . 6/8
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@visible_health
Visible
@visible_health
4 months
Capturing your Functional Capacity can help you understand: 1) How your score compares to a healthy individual 2) How your health is progressing over-time If you’d like to get your score today, just download the Visible app & start your Monthly Check-in
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Download Visible: Long Covid & ME/CFS app

Visible provides the tools you need to get clarity on your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
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@visible_health
Visible
@visible_health
11 months
More studies coming soon! This is just the beginning. We’re inviting academic researchers and institutions from around the world to host studies with us. If you’re a researcher and interested in launching a study, reach out to the team at research @makevisible .com. 7/8
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@visible_health
Visible
@visible_health
11 months
Finally, help us move the science forwards and get involved! Download the app, join the research, and help make invisible illness, visible. 8/8
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Join Research into Long Covid and ME/CFS

Your data can make a difference. With Visible, taking part in research has never been simpler. You can sign up to studies right from your phone.

www.makevisible.com
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@visible_health
Visible
@visible_health
11 months
We’re working with world-leading academic institutions. We’re excited to be partnering with Imperial College London ( @imperialcollege ), and together, we’re launching our first in-app research studies. 4/8
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@visible_health
Visible
@visible_health
2 years
Over the past 3 months, we’ve been working with the first 100 people from our waitlist. We’ve called this group the Founding 100 and they’ve been helping build and test Visible. 🧵 1/3
@LyssaLittleBear
Lyssa Little Bear
@LyssaLittleBear
2 years
@saralobkovich @qkate @visible_health I'm in the beta for Visible and it shows a LOT of promise. It has great features so far and the developers are clearly working very hard to make an app for patients, by patients.
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@visible_health
Visible
@visible_health
1 year
New app update out today! In the 2 months since we launched the beta app there are now over 15,000 people with #LongCovid and #MECFS using Visible. This app update has some small changes, find out more in our latest blog.🧵 1/4 .
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Week 7: New beta app update
www.makevisible.com
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@visible_health
Visible
@visible_health
3 years
We’d love you to join us on this journey. Together we can make invisible illness, Visible. Sign up to our waitlist here: 6/6
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@visible_health
Visible
@visible_health
4 months
We’ll continue to work closely with them to keep improving this crucial tool and to help make it accessible to patients, clinicians, and researchers around the world. One more step towards making invisible illnesses, visible.
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@visible_health
Visible
@visible_health
11 months
Your data can create change. The data you collect in Visible is incredibly valuable - not just for you, but for researchers too. With research studies, you can now opt-in to contribute this data directly to research. 3/8
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@visible_health
Visible
@visible_health
2 years
A quick update from the Visible team 👋 Since November, we’ve been working hard behind the scenes to build Visible. Over the last few weeks the first 100 people on our waitlist have started testing the Visible platform 🎉 We'll be updating our website with more info very soon!
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@visible_health
Visible
@visible_health
1 year
That's why today we're replacing the Morning Pace Score with a new Stability Score. This is the first major update to our morning algorithm and we'll be continuing to improve it as we collect more data and dive deeper into the numbers. 3/4
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@visible_health
Visible
@visible_health
3 years
For people with PEM, minor exertion can cause exacerbation of symptoms, often hours or days after an activity. We know this, because we suffer too. But studies show that Pacing can help to reduce the impact of PEM dramatically and improve recovery time by up to 75%. 2/6
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@visible_health
Visible
@visible_health
1 year
It's clear from the data we've collected that stability in morning HRV, resting HR and self-reported symptoms and sleep are important predictors of future changes in symptom severity. Measuring this stability can be a helpful tool when deciding how to pace. 2/4
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@visible_health
Visible
@visible_health
3 years
Until now, people have used fitness trackers, symptom diaries and spreadsheets to manage their illness and pace their activity. But these tools aren’t designed with us, or the wider invisible illness community, in mind. At Visible, we think we've got a better way 5/6
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@visible_health
Visible
@visible_health
1 year
🚀 Visible featured in @PsychToday by @r_prior 🚀 ‘Visible's platform could work as a bottom-up way toward discovering a biomarker, which could enable diagnosis of #LongCovid and other chronic illnesses in clinics and further recognition by insurance'
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A FitBit for Illness: The Start of Human-Centered Healthcare

Patients with chronic illnesses have developed apps to help manage conditions with wearable devices. They're partnering with researchers to move science forward.

www.psychologytoday.com
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@visible_health
Visible
@visible_health
9 months
2/ 📄 Health Summary PDFs: Tired of repeating your complex health story to health providers? Our new PDF report consolidates your Visible data into one easily shareable document. 🗂️
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@visible_health
Visible
@visible_health
2 years
@theipaper @BawdenTom : 'Managing activity levels is crucial in long Covid and ME/CFS. For 75% of long Covid patients and 100% of people with ME/CFS, too much exercise can make their condition significantly worse' 5/5
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How the world's first long Covid app could treat chronic illness - from a women who's tried it

Visible, which can also be used by people with ME, is launching today. Rachel Moore says the app has been a 'turning point' in her battle with long Covid

inews.co.uk
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@visible_health
Visible
@visible_health
2 years
@TechCrunch @psawers :'Post-exertional malaise (PEM) describes the worsening of a condition’s symptoms following even minor physical exertion, and it’s also common in ME/chronic fatigue syndrome' 2/5
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Visible launches activity-tracking platform to tackle long COVID | TechCrunch

Visible is a new activity-tracking platform designed to help those suffering from long COVID track and manage their symptoms.

techcrunch.com
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@visible_health
Visible
@visible_health
9 months
3/ 📈 Monthly Analysis PDF - Coming Soon! Get a closer look at recent trends in your condition by comparing your last 30 days to your previous 3 months. Look out for this in the near future. 📆
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@visible_health
Visible
@visible_health
2 months
You can also opt-in to share your data with other incredible Long Covid and ME researchers. @DavidPutrino and @VikiMale have already started analyzing the anonymized data contributed by thousands of people with Long Covid and ME/CFS in separate in-app studies.
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@visible_health
Visible
@visible_health
2 years
@Guardian @NicolaKSDavis : ‘The goal is to help those with these conditions manage their illness – such as the worsening of symptoms after exertion. It doesn’t happen immediately after you have exerted yourself. It happens hours or even days later' 3/5
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Visible
@visible_health
1 year
As always, if you have any feedback on Morning Stability Score, you can message us from the in-app ‘Help and Feedback’ section or email us at info @makevisible .com. And if you haven’t downloaded the beta app, you can help test it here: 4/4
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Download Visible: Long Covid & ME/CFS app

Visible provides the tools you need to get clarity on your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
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@visible_health
Visible
@visible_health
3 years
Pacing requires you to understand your illness - what level of activity can you sustain? How long does it take you to recover? Metrics like Heart Rate Variability (HRV) and Anabolic Threshold (the level after which you may experience PEM) can help to answer these questions. 3/6
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@visible_health
Visible
@visible_health
9 months
4/ 📊 Export Data to Spreadsheet: Access all of your raw Visible data, for easier sharing. Using the ‘Export data’ button in the Profile tab, you can download a CSV of all the data you’ve ever tracked in Visible. 📚
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@visible_health
Visible
@visible_health
2 years
We’re also working on requested features that we will be adding to the beta app over the coming weeks including: - Free-form notes - Medication tracking - Crashes tracking - Improved Morning Pace Score algorithm 6/7
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@visible_health
Visible
@visible_health
9 months
5/ 📝 Help shape Visible: We'd love your feedback on what we've built. Message us from the in-app ‘Help and Feedback’ section or email us at info @makevisible .com. We’ll always respond! And if you haven’t downloaded the app, you can try it here:
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Download Visible: Long Covid & ME/CFS app

Visible provides the tools you need to get clarity on your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
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@visible_health
Visible
@visible_health
2 months
- What is the impact of reinfections on symptoms, biometrics and recovery? - Do Covid (re-)infections differ from other infections in terms of their impact on people with ME or Long Covid? - Do medications change the impact of infections for those with long-term symptoms?
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@visible_health
Visible
@visible_health
2 years
@Siftedeu @NicolSchwarzK : 'The aim is to allow users to understand potential triggers for post-exertional malaise (PEM) — a condition associated with long Covid and chronic fatigue syndrome (CFS)' 4/5
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Long Covid may affect 100m people — meet one of the first startups looking to help them

Visible is one of the first startups working on collecting data on and helping to treat long Covid, and it’s just raised a $1m round

sifted.eu
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@visible_health
Visible
@visible_health
2 months
Patient-Led Research Collaborative (PLRC) is a non-profit research group that has published some of the most cited work in Long Covid. The research they have published/funded has been some of the most impactful to date.
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@visible_health
Visible
@visible_health
3 years
Combining this data with an understanding of your activity and symptoms can help to build a full picture of your illness. Armed with this knowledge, you can live the fullest life possible. 4/6
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@visible_health
Visible
@visible_health
2 years
@Naomi_D_Harvey @KSchnickelfritz @hopefullizzy Hi there - this is really good feedback, thank you! We recently added crash tracking to the app, to help with this analysis (under Profile> Your trackers). We're also working hard on an updated pace score right now, which will take into account symptom trends in addition to HRV.
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@visible_health
Visible
@visible_health
2 months
Last year PLRC ran a survey to gather data on reinfections () With over 3k respondents, the team has already gathered some unprecedented insights on this topic. But...
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@visible_health
Visible
@visible_health
2 months
If you’d like to participate in this research, you can opt-in to share your data directly with PLRC from within the Visible app.📱 Your evening check-in will then include a new tracker for ‘infection’, allowing you to record any new (re-)infections and their type.
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@visible_health
Visible
@visible_health
2 years
Our weekly beta app update is out today🚀 Find out more about what's in the latest update in our new blog post, as well as what we're working on in the background, including: 1/6 🧵
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Week 3: New beta app update
www.makevisible.com
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7
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@visible_health
Visible
@visible_health
2 months
With 60k+ people tracking symptoms with Visible, we have the opportunity to share an even larger and more comprehensive dataset with @patientled . Together, we can help answer crucial questions like:
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@visible_health
Visible
@visible_health
2 months
If you haven’t downloaded the Visible app, you can download it here to start tracking your symptoms and help move the science forward. Join our mission to make invisible illness, visible.
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Download Visible: Long Covid & ME/CFS app

Visible provides the tools you need to get clarity on your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
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@visible_health
Visible
@visible_health
1 year
In the background, we’re working on introducing in-app studies so that you can opt-in to share your Visible data with researchers around the world. We’re hoping to make our first studies available in June, with more academic partnerships coming soon. 2/4
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@visible_health
Visible
@visible_health
2 years
We’re still working on a lot of the feedback that we received last week, including: • ☀️ Fixing issues with the Morning check-in • 💊 Adding medication tracking • 🧮 Updating the Morning Pace Score algorithm • 🏗️ Building Visible Plus, our wearable integration 4/5
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@visible_health
Visible
@visible_health
2 years
1. International availability We’ve had requests from all over the world to make Visible more widely available incl. South Africa, Sweden, Italy, Poland, Portugal, New Zealand & Hungary! We're considering how best to support this, and will send updates via Twitter & email 2/7
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@visible_health
Visible
@visible_health
2 years
If you have any other suggestions or feedback for Visible, message us from the in-app ‘Help and Feedback’ section or email us at info @makevisible .com. And if you haven’t downloaded the beta app, you can help test it here: 7/7
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Download Visible: Long Covid & ME/CFS app

Visible provides the tools you need to get clarity on your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
0
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@visible_health
Visible
@visible_health
1 year
You can now see what treatments impact your illness, and as we collect more data, help Visible see which interventions cause upward trends in health across the Long Covid and ME/CFS population. 2/5
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@visible_health
Visible
@visible_health
2 years
And if you’d like to get involved in testing Visible join our waitlist and simply tick the checkbox at the end of the signup form ✔️ 3/3
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Visible - Activity tracking for Long Covid and ME/CFS

Visible provides the tools you need to understand your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
0
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@visible_health
Visible
@visible_health
2 years
If you have any other suggestions or feedback for Visible, message us from the in-app ‘Help and Feedback’ section or email us at info @makevisible .com. And if you haven’t downloaded the beta app, you can help test it here: 5/5
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Download Visible: Long Covid & ME/CFS app

Visible provides the tools you need to get clarity on your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.

www.makevisible.com
0
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@visible_health
Visible
@visible_health
2 years
A 🧵from Todd Davenport, one of our experts, on working on Heart Rate Monitored Pacing with the Visible Team 🙏
@sunsopeningband
Todd Davenport
@sunsopeningband
2 years
@PTPintcast I am pleased to contribute to the team helping bring @visible_health to people living with PEM/PESE. @HarryLeeming
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@visible_health
Visible
@visible_health
2 years
@PJPrydderch @hopefullizzy Thanks for this, that's exactly right. At the moment, higher scores simply indicate periods of relative HRV stability, rather than that things are "good". There's a little more info on the score in the "introducing" blog on the community tab. I hope that helps, for now!
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@visible_health
Visible
@visible_health
2 years
📝 Notes: You can now add a free-form note at the end of your evening check-in. These notes are editable from the “Today” tab, and in a future update, they will appear on the charts in the “Trends” tab too. 2/5
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@visible_health
Visible
@visible_health
1 year
🎯 Introducing personalized normal ranges We now take into account how much your biometrics typically fluctuate when calculating your normal range. This makes your score more personalized to you.
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@visible_health
Visible
@visible_health
2 years
3. Wearable data We don’t currently support HRV data from Apple Health or Garmin. We're working on Visible Plus, our wearable integration in the background, and we'll be sharing more about this soon via our blog. 4/7
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@visible_health
Visible
@visible_health
1 year
We’ve also invited our first few users to join the Early Access Program for Visible Plus, our wearable integration, for all-day pacing guidance. If you’re interested in getting early access, make sure you're signed up to the Visible Plus waitlist. 3/4
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@visible_health
Visible
@visible_health
1 year
📏 Extending the baseline We now look at up to 90 days of your historical data when calculating your "normal range." This helps us understand what "stable" looks like for you, especially if you're experiencing an extended crash that may last a few weeks.
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@visible_health
Visible
@visible_health
1 year
Our updated Morning Stability Score has 3x more predictive power, and we're continuing to improve the Morning Stability Score as we gather more data, including how we score very high HRV values. You can find out more in our latest blog post.
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@visible_health
Visible
@visible_health
11 months
@TBDAwareness Absolutely, we plan on adding more diagnoses soon!
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@visible_health
Visible
@visible_health
2 years
📉 Crashes/flare-ups: You can start tracking crashes in your evening check-in by going to Profile > Trackers > Other Factors. Collecting structured data about crashes will help us build algorithms to predict and reduce them. 3/5
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@visible_health
Visible
@visible_health
2 years
4. Morning check-in Some phones have had issues with the Morning check-in. It looks like this is mainly affecting users on Google Pixels, and some Samsung devices. We’re working hard to find out which models are affected and why. Hang tight! 5/7
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@visible_health
Visible
@visible_health
2 years
Our medical advisor Dr David Strain ( @DocStrain ) joins this week's The Long Covid Sessions podcast. He dives into the work we're doing at Visible and the role of Heart Rate Variability in measuring and managing #LongCovid and #MECFS .
@SessionsTlc
The Long Covid Sessions Podcast
@SessionsTlc
2 years
🚨New Long Covid Sessions episode out. Amazing interview with Dr. David Strain @DocStrain on all things #LongCovid including detailed explanation of Heart Rate Variability (HRV) @AppgCoronavirus @TheBMA #LongCovid @HarryLeeming @visible_health
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@visible_health
Visible
@visible_health
1 year
Alongside major updates to the Morning check-in, we’ll be kicking off beta testing for Visible Plus, our wearable subscription in January. If you’d like early access to the Visible Plus beta you can sign up for our waitlist within the beta app or on our website. 3/5
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@visible_health
Visible
@visible_health
3 years
@shellchat @Sabrina_Poirier @ahandvanish That's exactly right.👌At Visible we're designing our products and experiences with people with PEM in mind. When you're overexerting, Visible will remind you to pace yourself, not push yourself! #PEM #pwME #longhaulers
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@visible_health
Visible
@visible_health
1 year
We’re continuing to work on our wearable subscription, Visible Plus. Our Founding 100 group will receive a new test version over the next two weeks before we make it available to those on our waitlist over the coming months. 3/4
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@visible_health
Visible
@visible_health
2 years
The importance of patient voices in building tools, services, and research for these conditions can't be emphasized enough. You can find out more about the Founding 100 and how they've been involved in Visible here: 2/3
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The Founding 100
www.makevisible.com
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