Avery Huffman DIPG Foundation @AveryStrongDIPG Twitter profile

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Avery Huffman DIPG Foundation

2 months

Avery’s beloved Auntie LeeSee (Alyse), took her final earthly breath and went to heaven to be with the Lord. She loved big. Avery and her had a special bond. It’s comforting to know she was there to greet her in heaven. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

4 years

Merry Christmas from the Avery Huffman Defeat DIPG Foundation. So thankful for another year of love and support in our fight to #DefeatDIPG and in continuing to honor and remember Avery. On this Christmas Day, thank you for always being #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

2 years

Merry Christmas from the Avery Huffman DIPG Foundation. As we set out on our own in 2021, we are so grateful for the love and support as you helped us honor and remember Avery while we fight for a cure for others. Thank you for fighting along side us & always being #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

5 years

Merry Christmas from the Avery Huffman Defeat DIPG Foundation. Grateful for another year of love and support in our fight to #DefeatDIPG and in continuing to honor and remember Avery. On this Christmas Day and #AveryTuesday , thank you for always being #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

Merry Christmas from the AHDDF. In a roller coaster year, we’re so grateful for the love & support to help us honor and remember Avery while we fight for a cure for others. We are excited for what 2021 will bring us and have big news coming soon. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

5 years

Happy Thanksgiving from the Avery Huffman Defeat DIPG Foundation. Thankful for all of our supporters and their willingness to help us fight back to #DefeatDIPG and honor Avery in all that we do. Stay tuned for Giving Tuesday in just a couple of days! #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Merry Christmas from Avery and thank you everyone for your love and support. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

On our @MakeAWish trip, Avery enjoying ice cream for breakfast. We miss you brAvery! #EatIceCreamForBreakfastDay

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

4 years

Happy Thanksgiving from the Avery Huffman Defeat DIPG Foundation. Thankful for all of our supporters and their willingness to help us fight back to #DefeatDIPG and honor Avery in all that we do. Stay tuned for Giving Tuesday in just a couple of days! #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

25 radiation treatments down, five to go. One week left. #AveryStrong http://t.co/Ucn9kRby2x

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

Halfway done with radiation treatments. 15 down, 15 to go. #AveryStrong #brAvery #defeatDIPG http://t.co/GeORyd4POC

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

June 30th, 2021- Diagnosis Day, Six Years Later #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

When the going gets tough, Avery fights harder. This kid is a warrior. Another good day today. #AveryStrong .

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

The bravest. The strongest. The toughest. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

2 months

Eight years ago today, Avery took her final breath on earth, on February 16th, 2016 at 11:11 a.m. She never ever stopped fighting against cancer. We will never ever stop fighting for her. Our hero, our inspiration. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

4 months

Merry Christmas from the Avery Huffman DIPG Foundation! Thank you to every one who continues to support our fight and for a great 2023 that allowed us to fund several different projects. As Avery would say, “to the Future!” #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

October 19, 2021- Today would have been Avery’s 13th Birthday. Today, we honor our fighter and our hero. #AveryStrong #brAvery

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

Five years ago today, Avery left the hospital after emergency surgery, to begin her end of life hospice care. Her fight and brAvery was an inspiration and motivates us each and every day to fight back for her. Join with us in the fight. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

4 years

12 years ago today, our hero and our inspiration was born. Happy Heavenly Birthday, Avery. You are loved, you are missed and we will always fight for you. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday A wide array of faces and a vast collection of selfies whenever she snagged our phones. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

It has been one month. One quick, long, difficult, painful, bumpy month. We miss Avery badly

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

1 year

Merry Christmas from the Avery Huffman DIPG Foundation. We are so grateful for all of the love and support as you join with us in our fight for a cure and to help us honor and remember Avery. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

One of our favorite videos of Avery. Happy Thanksgiving from the Avery Huffman Defeat DIPG Foundation. Thankful for all of our supporters. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

Three years ago, 6/30/15, the letters DIPG first entered into our vocabulary. The day Avery was diagnosed with DIPG. Avery’s fight is our inspiration. We will never, ever, stop fighting because Avery never, ever, stopped. Fight back with us. #AveryStrong #DefeatDIPG #EveryDay

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

Five years ago today, we said goodbye to Avery. She is the reason why we fight. We are committed to honor our hero, to share her story, to carry on her legacy. To give other families hope. To end DIPG once and for all. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

4 years

It has been four years since Avery took her final breath here on earth. She never stopped fighting. We won't either. We continue to fight to #DefeatDIPG for Avery, our inspiration, our hero. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

So much genuine love from our community. Thank you, again, Lakeland.

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

Today, we are thrilled to announce the establishment of our own independent, separate non-profit public charity under the new name Avery Huffman DIPG Foundation. We aren’t finished telling Avery’s story. #AveryStrong #EndDIPG Read more:

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday Avery was determined to walk at Disney World. Her determination and fight is why we fight #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

MRI complete, handled it like a champ. And already back to school. Now we wait...

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

5 years

Happy Birthday Avery. You should be turning 11 today but you’re forever 7. We love and miss you. And your big brother Cade continues to honor you and misses you so much. Here are his words in this year’s Gala program. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

Brain Tumor Awareness Month Day 6. Today marks the second year of our fight as a foundation in Avery’s honor. The @AveryStrongDIPG started on May 6, 2016. But the fight goes until there is a cure. Join the fight. #AveryStrong #DefeatDIPG #EveryDay

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

It's the First-Day-of-School Eve and Avery's shirt showed her fight: http://t.co/HgmSDINYQe #NEGU #AveryStrong http://t.co/kWBBfCmhgR

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday On this third day of Brain Tumor Awareness month, we remember the fight Avery showed. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#brAvery #AveryStrong Thank you Lakeland Hills Elementary. Always a Wildcat.

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

May 1st. Day one of Brain Tumor Awareness Month. We raise awareness and we fight back so families don’t have to do this. #AveryStrong #DefeatDIPG #EveryDay

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Five months into the battle and we keep on fighting. We DEMAND a cure! #AveryStrong #DefeatDIPG

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

One more to go... http://t.co/NEZnOe8oKy

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

7 years

10 months. Missing you this Christmas season. Missing you every single second of every day. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

Merry Christmas from the Avery Huffman Defeat DIPG Foundation. Thank you for continuing to fight alongside us, for Avery, for children and families everywhere. Grateful for the constant love and unending support to help us find a cure and #DefeatDIPG . #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

1 year

This May marks the 7-year anniversary of the Avery Huffman DIPG Foundation. As we celebrate the 7-year anniversary, we are thrilled to announce that since our inception, the AHDF has now officially raised over $1 million dollars. Read More: #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Avery's next MRI is tomorrow (Friday) morning so please keep on praying.

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Avery Hayden Huffman's Memorial Page & Obituary #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

7 years

Exactly 18 months ago today, we learned what DIPG was at the start of Avery's fight. 18 months later, we now fight for her. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

We will never ever give up on finding a cure or a way to #DefeatDIPG . That's how we'll honor her legacy #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

A limo picked Avery up for her last radiation appointment. On the road for treatment No. 30. http://t.co/IsYbBC1Ou6

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Friday evening update on Avery- we're back home from the hospital

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

Two short, and brutally long, years ago today, this article about our family came out from @chadtough . Just a few weeks after this, our lives drastically changed again forever when Avery’s last breath was taken. She is why we fight. #AveryStrong .

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Monday evening update on Avery. Today was a much better day for our fighter #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday Brain tumor awareness month may end today, but we continue to fight #EveryDay for Avery. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Avery's big brother gives his perspective on his little sister and her fight

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

In honor of #NationalPuppyDay , Avery with Coco the day she picked her out in March 2015...

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Avery is the ultimate warrior:

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

A 7th birthday to remember and a 7th birthday to celebrate #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday Avery loved going to Starbucks for a treat but really just to spend time with mom or dad. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

30 down, ZERO to go. Radiation complete. #AveryStrong #DefeatDIPG http://t.co/W5VPPOaIuO

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Avery always loved bunnies, no matter the shape or size. Happy Easter!

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

It has now been two years since Avery took her final breath here on earth. She never, ever, quit fighting. And we will continue to fight to #DefeatDIPG for Avery. Because she wrote the book on what fighting really looks like. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

The @SeattleTbirds were #AveryStrong this weekend

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Avery's big brother Cade celebrated his 10th birthday today and he wrote about his sister

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday One year ago today, in her Princess Anna dress, blowing bubbles, enjoying the sun #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

7 years

May is Brain Cancer Awareness Month. Avery so bravely fought DIPG & brain cancer. Please show your support too!

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

4 years

Brain Tumor Awareness Day 3. Imagine trying to plan what will knowingly be your child's last earthly birthday. This is Avery blowing out the candles at her 7th birthday celebration, her last birthday. On average, DIPG gives a 6-9 month timeline. Fight back w/us. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Prepping for treatment, praying for strength

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday We remember how much Avery loved HoppyJumpy and how much comfort he brought her. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

5 years

It has now been three years since Avery took her final breath here on earth. She never, ever, quit fighting. And we will continue to fight to #DefeatDIPG for Avery. Our motivation, our why. The reason we will always fight. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

#AveryTuesday Two years ago today, over 1,000 people joined us to celebrate the life of Avery. We laughed, cried, smiled and remembered the life of a little girl, taken too soon, but who showed how to live life with brAvery, with toughness, with love and with grace. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

Today would have been Avery's 10th birthday. Never did we think we would be celebrating our girl without her. More on our blog: #AveryStrong #DefeatDIPG #EveryDay

A 10th Birthday Letter to Avery — Avery Huffman DIPG Foundation

A 10th Birthday Letter to Avery

averystrongdipg.org

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

Brain Tumor Awareness Day 29. Even in fighting, even in losing so much of her physical ability, Avery wanted to just have fun, to smile and be normal once again. Like she used to be. We fight for normal. #AveryStrong #DefeatDIPG #EveryDay

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Avery on her @makeawishamerica trip to Disney World- lunch with Mickey, Goofy, Donald and Daisy #ShareYourEars

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

One year ago today, the best pet and friend joined us. Hoppy Jumpy, simply the best.

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

7 years

On what should have been her 9th birthday, a Birthday Letter to Avery... #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

We tried to use this Throwback Thursday to remember the times before Avery's diagnosis

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

Radiation ended today & thanks to @blazerbrian1 & SYL Foundation, it was cause for celebration http://t.co/2QguXN2VTW http://t.co/4MExJkl7u6

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Monday was a really rough day for Avery, but our fighter keeps fighting. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

7 years

One year ago today, @DougBaldwinJr and her classmates made Avery's day. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

20 radiation treatments down, 10 more to go. Always #AveryStrong . #brAvery http://t.co/z21ZYhKc4D

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

#AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

A sense of accomplishment

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

Cleats vs. Cancer, Gatorade state Player of the Year Sam Huard give donation to Avery Huffman DIPG Foundation

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

One week. Always in our hearts. Forever loved. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Praying without ceasing

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

Thursday was a day to laugh and a day to smile: http://t.co/3CwAQMwhqH http://t.co/1dRuDKY0Wu

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday In honor of picture day this week at Avery's school, Avery from Kindergarten picture day two years ago #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Tonight we reflected on the four months since Avery's diagnosis

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

4 years

#AveryTuesday “You beat cancer by how you live, why you live, and the manner in which you live”-Stuart Scott. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

3 years

Avery’s legacy lives on at local school

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

Sometimes its best to just stop and smell the roses http://t.co/nFq3GskKGn http://t.co/2LPRBbkPgj

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Big thanks to Tate Martell for the letter, personalized cleats and bag and dedicating season to #AveryStrong !

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

Today we celebrate the life of Avery Hayden Huffman at 3pm. Wear pink or green today in Avery's honor. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

Two more radiation appointments to go. Smile not going anywhere... http://t.co/9J9HyIbdVA

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

#AveryTuesday From the Lakeland Easter Egg Hunt last spring. So grateful & thankful for our community. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

Last full week of treatment is done, only three more left. #AveryStrong #brAvery http://t.co/NZnseNTj9H

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

7 years

Fighting for our girl. Fighting for every other family. #DefeatDIPG #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

7 years

Two years ago today, we heard "DIPG" for the first time. Avery battled and fought with everything she had. Now we fight back. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

7 years

#AveryTuesday Never forgotten, always loved. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

6 years

May 2nd. Day 2 of Brain Tumor Awareness Month. The hat says #brAvery . Her fight showed bravery. Every day, through every treatment. She’d smile & give a thumbs up, that she could make it through a tough day. Be ready to fight. Because she did. #EveryDay . #AveryStrong #DefeatDIPG

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

8 years

A treatment and a gift. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

1 year

Seven years ago today, we said goodbye to Avery. She is the reason why we continue to fight. We are committed to honor our hero, to share her story, to carry on her legacy. To give other families hope. To end DIPG once and for all. #AveryStrong

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Avery Huffman DIPG Foundation

@AveryStrongDIPG

9 years

The Fighter took on another round of treatment on Tuesday

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