research fellow
@Active_ATA
| active travel | public transport | crit dis | pedestrian every day, tricycling often | trustee
@Wheels4Well
| views are Frida's π
I made a video about what it's like to be a disabled cyclist.
The freedom is like nothing else until you meet the A frames, the chicanes and the cars in the cycle lane.
I was just standing at a bus stop minding my own disabled business.
And a woman stopped to expressly tell me that my feeding tube is unpleasant.
But you know what's truly unpleasant?
Slowly dying of starvation.
My self-esteem is crushed.
In town this weekend a woman looked at me, double took, said "oh my fucking god", and started laughing at my face.
I took this photo with my friend today and want to love it as I rarely see her, but I am hating the tube on my face π
A year ago I graduated from my PhD.
It took me five years to complete & I wrote many parts of my thesis whilst in hospital.
Disabled academics like myself often work on crip time. This doesn't make our contributions any less. And academia is a better place for us being in it.
Really want to be a super resilient person so that these type of thing don't touch me.
But I'm not. I'm in my office having a cry because it's really fucking hard.
Alot of people are shocked at this but ableist abuse is prolific. I experience it often - and especially when I am alone. People demand to know what's "wrong" with me, tell me they would rather die than have a feeding tube, & tell me my life is tragic.
I have gained lots of new followers in the last week, so here's a quick intro to me.
I'm Harrie. I tweet about my dogter Frida & inclusive active travel & public transport.
I also tweet about my experiences as a disabled person.
And I believe trans rights are human rights.
Absolutely immense road space reallocation in Barcelona on Avinguda Meridiana.
From 12 lanes for private vehicles down to 2 lanes for private vehicles, with bus lanes, cycle lanes and widened pavements. As well as significant greening.
Its been 0 days since I experienced ableist abuse.
Out walking Frida, a drunk man sitting on a wall shouted at me "what happened to you?"
I said "nothing".
He gets off the wall, moves towards me and shouts "what's on yer face then?"
Really intimidating. Feeling miserable.
What fresh leftie hell is this??
Turns out I've bought a house in one of these 15-minute cities.
Coffee shop - 1 minute
Food shop - 1 minute
Green space - 5 minutes
Bus - 5 minutes
Tram - 12 minutes
Absolutely raging. Will be giving estate agents a terrible review π€¬π€¬π€¬
Hi Charlotte I'm disabled and use my e-cargo trike as my mobility aid.
There's lots of us disabled cyclists around. Have a look at
@Wheels4Well
for more information.
This is economic medievalism. Sure, some can use cargo bikes (mostly young men taking food deliveries round). But can you imagine trying to move flat on a cargo bike?! Or plumbers and builders trying to ship large parts. People with mobility issues? Meh! This is "normality".
I've resigned from the
@BritishCycling
diversity and inclusion working group I was part of.
Their partnership with Shell is unethical & antithetical to the grass roots cycling the group supports.
Absolutely chuffed to be watching a netflix show with an actor casually sporting a feeding tube.
Her tube isn't the subject of a plot, she's just getting on with her work with her medical device.
First time I've seen tube feeding represented in the media.
π₯°π₯°π₯°
Taxes fund the equipment that keeps me alive and healthy.
Disabled people are not a burden and we deserve rich and fulfilling lives, whether or not we are able to work.
Welfare spending is the single biggest component of public sector expenditure & we should celebrate that.
My cargo trike is adapted for my disability and means I can do many activities - like transporting my dog or carrying shopping - independently.
I may be a smug hipster. But it's certainly not my mobility aid (which cost 6x less than an adapted car) that makes me one.
A year ago I graduated from my PhD.
It took me five years to complete & I wrote many parts of my thesis whilst in hospital.
Disabled academics like myself often work on crip time. This doesn't make our contributions any less. And academia is a better place for us being in it.
Happy international day of disabled persons
#IDPWD
#IDPWD2022
Today I'm celebrating my feeding tube, which helps me live well.
It's not awful, or terrible, or the worst thing that could happen to you*.
Happy World Tricycle Day to anyone who celebrates.
Iβ€οΈ my cargo trike.
When I first gained my disability, I was told by a doctor that I wouldn't be able to cycle anymore. But I can, just in an adapted way.
πΈ
@BikeIsBestHQ
#WorldTricycleDay23
All these active travel activists taking and tweeting photos of disabled people without consent obviously have no clue about how fucking horrible it is as a disabled person to have people take and presumably share your photograph without consent.
My adapted cargo trike cost Β£5000.
A car that's adapted to my needs costs Β£42,000.
Β£3,999 for a cargo bike?! How a new kind of class politics arrived on Britain's streets | Adrian Chiles
Spent such a good day looking at recumbent trike options. Found the one I want I think (not the model in photo).
Anyone got a spare Β£13.5K? π π
Cycling disabled is (prohibitively) expensive.
Recently a journal editor told me I shouldn't have submitted to his journal if I couldn't meet the same temporalities as non-disabled academics.
I cried for two days.
Being with and talking with other disabled academics helped me recover somewhat.
Delighted to be awarded
@Motability
funding for my 3-year project 'Monitoring access control removal on traffic-free routes'.
Using Vivacity sensors, interviews & surveys, we'll monitor the impacts of barrier removal on intended & antisocial use.
1/
Free staff parking is not caring. It creates poverty through forced car ownership, it stresses hospital parking facilities that are already at capacity, and it promotes polluting behaviourβwith the ensuing economic and health consequences.Β
.
I'll die on this hill:
Hospitals should not charge patients or staff to park. For patients, it disproportionally affects those with the lowest economic status.
And for employees, you're charging them to essentially come to work; this most affects employees who make the least.
Δ°f you're saying "what the eff is that on her face" loud enough for me to hear as you walk past, you're just being unkind on purpose.
It's a feeding tube btw βοΈ
When a driver hit me & left me with life-changing injuries, GM Police told me they weren't prosecuting coz the witness statement didn't match my own.
Turns out:
1. the witness had not written said statement
2. the witness had not signed said statement
A man in my comments denying that ableist abuse happened.
Shows he doesn't know 1) any women or 2) any disabled people if he doesn't think we get abused on the street.
Reading an academic paper which describes living with disability and illness as 'living with adversity'.
I really don't like it.
What do other disabled people think?
Disabled people must work from home to do βtheir dutyβ, says UK minister
I'm a disabled person who WFH. It suits me well,
But we cannot ignore the level of privilege involved in securing such jobs. It's taken me a PhD to get here.
Really appreciate all the lovely responses I got to this. Martin Lewis even took time out of getting the UK through the cost of living crisis to comment ππ
Quite a few anonymous twitter accounts denying the abuse happened. Clearly those users know no women or disabled people.
I was just standing at a bus stop minding my own disabled business.
And a woman stopped to expressly tell me that my feeding tube is unpleasant.
But you know what's truly unpleasant?
Slowly dying of starvation.
Similarly, I did not achieve my PhD "in spite of" my feeding tube.
I achieved my PhD because of my feeding tube.
You can't write a thesis if you're dead.
When I first got ill, I desperately needed non-medical literature on enteral feeding to help me make sense of my experiences.
It didn't really exist. So I've been writing my own.
Here's 3 publications on my experiences of living (not just surviving) with an NJ tube.
1/4
Trying to cycle somewhere new as a disabled person using a trike.
Looking at multiple maps and having conversations with multiple people to try and find a route that is accessible.
It shouldn't be this hard to cycle somewhere. Utterly demoralising.
Its been 0 days since I experienced ableist abuse.
Out walking Frida, a drunk man sitting on a wall shouted at me "what happened to you?"
I said "nothing".
He gets off the wall, moves towards me and shouts "what's on yer face then?"
Really intimidating. Feeling miserable.
It's brachial plexus injury awareness week.
I got my traumatic brachial plexus injury when a driver hit me off my bike with their car.
Still cycling, albeit quite differently.
πΈ
@BikeIsBestHQ
Exhausted after six weeks solid of infections caused by my feeding tube.
I've finally taken it out to have a little respite.
But this means no food for three weeks until I can get a new tube.
Being disabled is hard work but at least Frida is cute as β€οΈ
If you don't think a man shouting at me on the street demanding to know my private medical history is abusive, you need to take yourself off twitter and educate yourself.
@RachelCDailey
I had such a great moment on the tube last year when a woman looked up at me and said "do you want a seat?". I said yes and thought she was going to offer me hers. But she tapped the man sitting next to her on the shoulder and asked him to move so I can sit πππππ
Oh cool.
The dropped kerb to the cycle parking in Stevenson Square has been removed so I can no longer park my trike there.
Thanks
@ManCityCouncil
for reducing my ability to get around actively and independently π
Do you have lived experience of disability and are interested in undertaking a PhD on accessible transport design, policy or practice?
If so, message or email me.
At UoW we have an opportunity to apply for a fully funded PhD fellowship.
#PhD
#DisabilityTwitter
Please RT
As antidote to this miserable weather, here's Frida with her rainbow ears cruising down Oxford Road, Manchester.
Video alt text: fluffy white poodle with rainbow ears is standing up at the front of a trike, being cycled down a quiet road with cycle lanes on either side.
My neighbour didn't vote for the labour candidate in our ward because of how said candidate had parked their car fully on the pavement recently.
Walking and cycling does matter to local elections.
In our chapter 'disabled environmentalisms' we build on
@SaraNAhmed
's feminist killjoy to introduce the disabled killjoy.
Disabled people constantly have to fight for access and inclusion and to not be discriminated against.
And in doing so become the problem. The killjoy.
Yes I can't transport a fridge, an armchair, and 16 bags of concrete by trike.
But equally I wouldn't be able to transport myself, my husband, my dog, and my cello all together in a small hatchback car...
Hi
@NetworkRailMAN
I'm a disabled cyclist and often used the previous Sheffield stands.
I can't use this type of cycle stand with either my bike or trike. What provision will you be making for disabled people in cycle parking provision?
Just saw a young girl biking home from high school.
Part of me was 'woo go girl' but most of me was 'fuck we need to do so much more to keep you safe' as she biked along a painted cycle lane on an A road.
Just resharing in case anyone is feeling 'New Year, New me, New PhD'.
Funding opportunity specifically for a disabled person interested in undertaking a PhD on accessible transport design, policy, or practice.
Let me know if you're interested π
Do you have lived experience of disability and are interested in undertaking a PhD on accessible transport design, policy or practice?
If so, message or email me.
At UoW we have an opportunity to apply for a fully funded PhD fellowship.
#PhD
#DisabilityTwitter
Please RT
I actually love this stat. I spend the majority of my work hours thinking about LTNs and it turns out that the majority of people living in them don't even know what they are.
Very humbling.
Meeting my husband at Piccadilly.
It's great that there's much needed high density cycle parking.
It remains upsetting that they've removed cycle parking (sunken Sheffield stands) that I could use and left me no option that's compatible with a trike.
I wrote for
@DisVisibility
about the abuse I experience as a disabled person & how more-than-leaky bodies like mine show the value of interdependence & challenge those enabled by regimes of power.
#INCIDENT
| Officers respond to collision in the city centre.
At around 1pm today (Monday 16 October) police were called to reports of a collision involving a bus and shop in Piccadilly Gardens.
Read more here:
Today in disabled.
@DPDgroup_news
driver aggressively demanding I (disabled person) collects my life sustaining and heavy medical equipment from their van.
When I can't and don't they leave. Taking my life sustaining medical equipment with them.
The absence of disabled people (who make up 23% of the UK population) in walking, wheeling, cycling conversations is stark.
We are a huge minoritised group & our absence shows engrained bias by ableds that we can't be active, or they are the experts in supporting us be active.
Saddens me that so many (anonymous) accounts arguing against inclusive active mobility on my tweets identify as disabled or as supporting disability rights.
Disabled people need transport equity. And this includes active travel.
β Today, the Government launched a new campaign, developed in partnership with disabled people, aiming to start conversations about the everyday assumptions that disabled people face about their lives and capabilities with the simple call to action
#AskDontAssume
I'm definitely not a confident person.
But my audacity in thinking it's ok to take Frida to every single occasion is outstanding.
Conferences? β
Meetings? β
Fancy dinners? β
Hi
@NetworkRailMAN
neither of the two types of cycle racks put in at Piccadilly are suitable for disabled people using adapted cycles.
Where am I supposed to park my trike now?
Really excited that the trike library I raised money for will be homed
@StationsSouth
on the fallowfield loop.
Money funding e-trike, storage & engagement.
Community rides & borrowing available. Get in touch with them to organise something that suits you.
@WalkRideGM
1/
Are you a disabled person who cycles or would like to cycle?
We
@Active_ATA
&
@Wheels4Well
want to know your priorities for future research on disability and cycling.
Use this link to register your interest in participating:
Password: cycling
Pls RT