BIG NEWS! I’m delighted to announce that I got a book deal! I am the editor Disability Visibility, an anthology of first-person essays published 2000-19. It's a dream come true. 😍💖📚
My piece in
@TeenVogue
on activism, disability rights, and accessibility.
#HR620
will be up for a vote on 2/15. Here are 6 things you can do today:
It's not just about this bill, it's about what kind of word we want to build.
#HandsOffMyADA
#CripTheVote
"Disabled since birth, I never thought I would reach 50 this March...Celebrate my birthday by making a donation to erase medical debt in the United States. No amount is too small...No one should have to go in debt or crowdfund for healthcare."
🎉 I'm turning 50 this March! 🎊
🎁Instead of gifts I'm raising money to erase medical debt w/
@RIPMedicalDebt
💵Each dollar erases 100 in medical debt!
🐈This message brought to you by Bert & Ernie 🐈⬛
🎨
@jtknoxroxs
History of closed captioning:
... the technology dates back to the early 1970s, when Julia Child’s The French Chef “made history as the first television program accessible to deaf and hard-of-hearing viewers.”
This is a line that I'll probably repeat often on politics, media and culture this year: "Inclusion doesn’t mean sh*t unless we’re being paid, respected, and taken seriously"
My essay in
@TeenVogue
:
#RepresentationMatters
"Calling 911 is all too often a death sentence for mad, neurodivergent, mentally ill, and disabled people...With each new tragedy, calls to defund and abolish the police grow and gain in momentum."
-
@leahida
#MentalHeath
#CripTheVote
#abolition
Are you tired of so many cringe-worthy stock images of disabled folks? Check out this great project by
@elea
!
Disabled And Here: a photo series
A portrait series and stock photo project highlighting disabled people of color around the Pacific Northwest.
Welcome to the
#CripTheVote
candidate chat with
@PeteButtigieg
!
Remember to use the
#CripTheVote
hashtag when you tweet.
For more about Pete Buttigieg’s plan, Dignity, Access, and Belonging: A New Era of Inclusion for People with Disabilities
How do we honor the our disabled elders & ancestors?
When I first found out that Carrie Ann Lucas
@DisabilityCubed
died 3 days ago, it was painful. Like countless of sick, chronically ill, and disabled people, she died at the hands of the medical industrial complex.
We will ask 6 questions to
@PeteButtigieg
.
Everyone is welcome to ask questions throughout the chat but there will be time set aside for engagement with community members in the last 20 minutes.
#CripTheVote
My piece in
@TeenVogue
on activism & disability rights.
#HR620
passed in the House but the fight continues in Senate. 6 things you can do today:
…
It's not just about this bill, it's about what kind of world we want to build.
#HandsOffMyADA
#CripTheVote
Hey
@CBSNews
time to do some actual journalism on public transit and the many access problems that harm & disrupt disabled people’s lives
And on top of that, hire more disabled journalists!
When he realized the train station elevator was broken, this dad did what he needed to do. He hoisted his son, who is paralyzed and uses a wheelchair, up a long flight of steps 💪
Necessary piece by
@merkyywaters
👇👇👇
I wore disposable diapers throughout high school and college and had leaks during days where I spent 10+ hours from home w/o bathroom access during field trips & after school activities.
#SuckItAbleism
I wrote about a deeply personal issue that has been affecting my life for pretty much ever. This was incredibly difficult to write but it's very important that we start talking about it!
Refreshing?!? *chokes on some hot tea*
Not sure why folks/advocacy orgs so eager to give cookies to the entertainment industry that continues to cast non-disabled actors in disabled roles, but you do you! We deserve more.
#InDarkness
#RepresentationMatters
#FilmDis
It's refreshing to see Natalie Dormer play a blind pianist in
@InDarknessFilm
. Her commitment to researching the role, which we supported her in, was remarkable:
This concludes our
#CripTheVote
candidate chat with
@ewarren
.
Many thanks to Senator Warren, her team, and everyone for joining us today!
Please keep the conversation going! A recap of this chat will be up shortly.
For more:
Are you tired of explaining and educating folks about disability 24/7? Can you believe the
#ADA
turns 28 on 7/26 and we're still having some super basic convos about ableism & accessibility? I have just the thing for you...
#CripTheVote
#ADA28
#StrawBan
#SuckItAbleism
#NCIL2018
Stuff for disabled people doesn't have to be ugly or institutional. Also, disabled people can actually create & design great products.
Article about Access+Ability exhibit at
@cooperhewitt
until Sept 2018
😍 This anthology features work by 37 amazing disabled people. I hope you love it as much as I do.
You can find out more about the book including events, reviews, and more:
For the latest, sign up for my newsletter:
"UCLA law students started the Disability Law Journal, which will be the only disability law journal in the country after it publishes its first issue in spring 2019."
“Students who are both unvaccinated and under a quarantine order from the Illinois Department of Health can keep on doing remote learning. If the department can make that exception, why not extend it to include disabled students — or anyone...who wants to keep remote learning?”
Q2
@ewarren
: What are some of the main things you learned from the disability community and how did it influence your overall vision of what you want to do if elected?
#CripTheVote
"The body that I was born into, being a Black disabled woman is what makes me an advocate...there is sort of no separating these issues. I am proud to represent the disability community and to hopefully shed light on these issues. "
-
@labelleverite
By Rabbi Elliot Kukla:
"Disabled people are likely to have experienced trauma. And traumatized people are likely to become disabled, which means if you want to welcome disabled people to your community, you need to grapple with the impacts of trauma."
FYI: We invite all Presidential candidates to join us in
#CripTheVote
chats similar to this one where they can answer the same questions and interact with disabled voters
Just send us an email: cripthevote
@gmail
.com
#Election2020
Stories like this by
@merkyywaters
are important because it reveals the constant invisible labor performed by disabled people in a world that does not recognize the strength & knowledge that comes from our vulnerability & interdependence.
Op-ed by
@UntoNuggan
on Marianne Williamson views and how they harm the disability community:
"She is the epitome of what disabled people have described as “toxic positivity,” or the belief that positive thinking will cure you."
#CripTheVote
#ableism
😒 "TikTok Admits It Suppressed Videos by Disabled, Queer, and Fat Creators
TikTok says that as part of an anti-bullying policy, it restricted videos that featured people whose bodies had “problems.”"
via
@slate
#TikTok
#SuckItAbleism
"As a Jewish, queer, and disabled person, it is deeply personal to me to not let the lessons of the Shoah be forgotten. And as a human, I am deeply invested in questioning how we determine worth and value."
-
@coffeespoonie
#HighRiskCovid19
I can handle insults & attacks about, & towards me, but what I will not allow is for you to use
#retard
in your tirades about me or anyone else. It is ignorant, dehumanizing & degrading. In the past, this word was used as hurtful slang towards those w intellectual
#disabilities
"Members of the public view disability as a tragedy and a personal problem, so individualized tech “fixes” are appealing but ignore the larger issue: Why is everyone afraid of the big bad wheelchair?"
-
@sesmith
A doctor recalls the experience of telling her patient that she is very ill. The surprise response is joy and relief
The power of a diagnosis is that it legitimizes your needs. There are millions of people with chronic illness/disabilities who will never receive this
#UnrestPBS
On plastic straw bans by various cities/establishments & impact on disabled people:
"As a society, we are far too quick to write off the concerns of marginalized groups as insignificant or inconvenient."
“We need our existence as autistic people to be accepted, supported, and seen as normal. The more examples the world sees of openly autistic leaders, the more likely that is to happen.”
-
@JustStimming
#CripTheVote
#AutisticsForGreta
Q1
@PeteButtigieg
: Tell us about your engagement with the disability community so far and examples of your campaign’s access and inclusion.
#CripTheVote
👏”...having a high-profile theatre company like the RSC welcome deaf and disabled artists feels like another massive crack in the glass ceiling. This will hopefully encourage...the TV and film industry, to take more steps towards being truly diverse.”
⭕ In these tough times for writers w/ books out 2020-21, I just launched
#DisabilityVisibility
Book Circle, one-time grants of $1000 for 13 disabled writers in the US for online book events.
Check out all the recipients & support their work!
This concludes our
#CripTheVote
candidate chat with
@PeteButtigieg
.
Many thanks to Pete Buttigieg, his team, and everyone for joining us today!
Please keep the conversation going. A recap of this chat will be up shortly.
For more:
Fighting ableism is a Sisyphean task. First, the bar is so low with some folks & orgs that you have to start with the basics.
Second, you get similar requests for information & labor constantly.
Third, this type of labor is rarely compensated.
#SuckItAbleism
#AccessIsLove
Fighting ableism is basically being a professional whack-a-mole player. As soon as you knock down one ableist, another one pops up. But of course no one pays you for your work, because who takes professional whack-a-mole-ing (read: activism, education, emotional labor) seriously?
🥤🥤🥤 The struggle is real, yo! If you want a sense of my experiences in public spaces and my thoughts on accessibility and the
#StrawBan
, look no further: via
@Eater
Everything is political. All part of a larger problem in our culture
#SuckItAbleism
On debunking the myth extra time for disabled students during exams as 'special' advantages:
"Students enter the exam with a level of competency on the topic; time does not increase that knowledge, only the ability to retrieve it."
#CripTheVote
#ADA
Q4
@ewarren
: How are disabled people involved in your campaign whether it’s staff, volunteers, advisors, or consultants?
How will this continue in your administration if elected?
#CripTheVote
The phrase is: “
@DisVisibility
is an online community dedicated to creating, sharing, and amplifying disability media and culture.”
That’s media & culture created by disabled people.
Nothing to prevent or create awareness of. Not changing it one bit but you do you!
@DisVisibility
the wording: 'amplifying disability' is not ideal. It should say: 'amplifying disability prevention, or amplifying disability awareness, unless you are making persons disable, as the scope of your activity. Please, change it, or your work goes to waste at times
I’ll be working with
@CatherineTung1
of
@VintageBooks
with the publication date set for summer 2020 in time for the 30th anniversary of the Americans with Disabilities Act.
Many thanks to my agent
@jlkardon
of
@HSGAgency
for guiding me throughout this process.
“The majority of the disability community lives below the poverty line. Running for office is cost prohibitive, not just for people with disabilities, but for many marginalized communities” --
@Olivia4FLSenate
#CripTheVote
Q4
@PeteButtigieg
: How are disabled people involved in your campaign whether it’s staff, volunteers, advisors, or consultants?
How will this continue in your administration if elected?
#CripTheVote
Later on when I connected with other disabled people online I realized holding our urine & feces was a cultural practice (a messed up one at that but totes real). Some friends called it "pee math" to connote the constant calculation & effort involved in planning one's day.
"Transness and disability are frequently linked and presented as a danger by state legislatures as they dehumanize trans people and deny rights."
-
@AdaHubrig
Available in 10 days! Resistance and Hope: Essays by Disabled People
16 essays by 17 disabled writers, activists, and artists. This is crip wisdom for the people.
October 15, 2018 on Amazon &
Details:
#ResistanceAndHope
👏💖💯
@Aerie
"Proudly showing off their figures... there are women in wheelchairs and crutches; photos show women posing with their insulin pumps and J-pouches.
The campaign was released with little fanfare..any other rollout might."
Carrie Ann created disability culture, family, and community. She lifted people up and defended their rights. She fought the system with every tool at her disposal. She loved her friends and family fiercely.
get cleaned up and get back to class.
At first, you are so relieved that you just don't care. The warmth of the urine gives way to a cold soggy mess that marinates your skin. I don't think of these moments as humiliating or undignified. These are moments of survival.
There is such shame about our bodyminds & the loss of 'control' over our bowels and bladder. The smells, the mess, the clean-up involved...
To me as a kid, here is the unspoken ableist message: this is the trade-off/sacrifice you gotta give in order to participate in society.
CN: eating disorders
By
@SultanReina
:
"The erasure of people of color and larger-bodied people with eating disorders exacerbates bad treatment from doctors. "
Access isn't 'disrespectful' 😒
RT Wisconsin Republican won’t allow Democratic legislator who uses wheelchair to phone in to committee meetings because he says it’s ‘disrespectful’
#CripTheVote
#SuckItAbleism
Hunger and thirst became a normal state for me as a young person who desperately tried to keep up, fit in, & not draw any additional attention to myself.
I never questioned the structural and cultural conditions. I never felt entitled to the basics (freedom to pee whenever).
Creating a Disabled Family: The Life of Carrie Ann Lucas
By
@CorbettOToole
"We were two poor queer disabled women navigating systems designed for nondisabled parents with money...
Stories can carry our history, joy, love & grief into the future. We can preserve Carrie Ann's crip wisdom by sharing stories about her. I'm delighted to publish 2 guest pieces for
@DisVisibility
by disabled parents about Carrie Ann, a badass unapologetic queer disabled mother.
Definition: Tokens are people who get used by groups of people as a figure to show that the group is inclusive.
Groups that use people as tokens do not listen to those people, or their community members.
“Tokenizing” is making a person into a token.
#CripTheVote
Q2
@PeteButtigieg
: What are some of the main things you learned from the disability community and how did it influence your overall vision of what you want to do if elected?
#CripTheVote