Clare Daly @clarejdaly Twitter profile | Pikagi

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Clare Daly

@clarejdaly

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Usually a #WomanInTech - Year 4 of #LongCovid (2020) | #MECFS (1993)

England, United Kingdom

Joined September 2012

Don't wanna be here? Send us removal request.

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@clarejdaly

Clare Daly

2 months

1.17 Care for people with severe or very severe ME/CFS 1.17.1 Be aware that people with severe or very severe ME/CFS may experience … •hypersensitivity to light, sound, touch, movement, temperature extremes and smells #SaveCarlasLife #ExposeMENow

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@clarejdaly

Clare Daly

2 years

I have lost a lot of my freedom as a result of getting #LongCovid . I am mostly housebound, too ill to work and am having to move in with my parents at the age of 38. Removing basic Covid health and safety measures is a path to disability, not freedom.

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@clarejdaly

Clare Daly

2 years

People with #LongCovid will do anything they can to avoid #COVID19 reinfection. We just don’t want to have to go through this again. In the last 15mths I’ve lost my health, job and home. Cases are surging. Please don’t risk joining us. Stay as safe as you can.

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Clare Daly

2 years

I bought a car just a few months before I got #COVID so I could go hiking more. Unfortunately, #LongCovid had other plans for me. Instead of researching hiking routes, I'm looking into electric wheelchairs.

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@clarejdaly

Clare Daly

2 years

While my friends are having babies/buying houses/starting their own businesses, I’m preparing to move in with my parents and awaiting my DWP assessment call. This is life with #LongCovid .

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@clarejdaly

Clare Daly

2 years

#LongCovid patients are being advised to journal, maintain a balanced diet, and implement good sleep hygiene. If you had a severely debilitating illness that meant you couldn’t work, play with your kids or even just walk to the kitchen and make lunch, would you settle for this?

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@clarejdaly

Clare Daly

2 years

Imagine getting Covid and within less than a week you’re able to get on with your life again 🤯 I’m on day 407 and still on sick leave. #WearAMask #GetVaccinated #TreatLongCovid

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@clarejdaly

Clare Daly

2 years

I tested positive for Covid again this weekend 😔 Am resting in bed with paracetamol, vitamins and fluids. Will call any Dr that will listen to me tomorrow to see if I can get access to antivirals. #LongCovid

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@clarejdaly

Clare Daly

2 years

How many days have you been sick with Long Covid? I’m on Day 627. #NotRecovered #LongCovid #TreatLongCovid

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@clarejdaly

Clare Daly

2 years

I haven’t been well enough to work for 98 weeks. My Statutory Sick Pay ended a year ago. I have to go to Tribunal with the @DWPgovuk to guarantee an income of £75pw. The only treatment I’ve been offered is an antihistamine. This is life with #LongCovid .

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@clarejdaly

Clare Daly

1 year

The idea that chronically ill patients stop seeking care because they are cured reminds me of the time a new GP wouldn’t issue me a sick note for my ME/CFS as I hadn’t seen them about my condition. I’d been ill for over 10 years already with no access to treatment.

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@clarejdaly

Clare Daly

2 years

My primary, secondary, undergraduate and postgraduate education were all disrupted by my post-viral illness. I was 10yrs old when I became chronically ill. We need to protect children OF ALL AGES from #LongCovid . #LongCovidKids

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@clarejdaly

Clare Daly

2 months

Why are we so ill? asks the BBC. I had a mild Covid infection in Dec 2020. Happened a week before we went into lockdown. I never recovered and ended up with Severe Long Covid. It took me 3yrs to get access to just one medication that helps with just one symptom.

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@clarejdaly

Clare Daly

2 years

Why aren’t our #LongCovid clinics informing us about research trials we could participate in?

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@clarejdaly

Clare Daly

2 years

News flash ! The Long Covid clinics do not #TreatLongCovid . We are only given advice on how to manage symptoms.

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@clarejdaly

Clare Daly

2 years

“It could happen to any of us.” #LongCovid

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@clarejdaly

Clare Daly

2 years

The best time to invest in biomedical research for #MECFS was 20 years ago. The second best time is now.

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Clare Daly

11 months

“Wait… what? You’ve had Covid for 2.5yrs?” “No, I have Long Covid.” “What’s that?” I find when I talk about LC with strangers either they also have it, or they know someone that has it, or they’ve *never* heard of it. Public health messaging is still very much needed.

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@clarejdaly

Clare Daly

2 years

“Ate lunch. Went back to bed to sleep.” “Had a bath. Went back to bed to rest more.” “Ate dinner. Fell asleep on the sofa.” “Spent the evening in bed resting.” My #LongCovid diary is quite the page turner.

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@clarejdaly

Clare Daly

1 year

Reinfection worsened my Long Covid. “Our survey of almost 600 people makes clear that reinfection makes Long Covid worse in the majority of those who are still living with it (80%) and can cause it to recur in those who have recovered (60%).”

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Clare Daly

2 years

I'm on month 19 of not being able to work due to #LongCovid . No job means no salary. No salary means no spending. It pays to #TreatLongCovid . @NIHRresearch @SteveBarclay

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@clarejdaly

Clare Daly

2 years

I bought a puzzle book last year to see if I could help improve my brain fog. Despite having a degree in maths, it took me an entire week to complete an easy sudoku. Brain training games aren’t going to cure #LongCovid #BrainFog . So let’s research it instead. #TreatLongCovid

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Clare Daly

2 years

Have I not done mine time already? Is 15mths of suffering not enough? #LongCovid “I have discussed your medical history with the COVID team at UCLH and they have advised that you do not meet the eligibility criteria for antiviral medication.”

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@clarejdaly

Clare Daly

2 years

I wasn’t informed that I was at high risk of #LongCovid or prioritised in the vaccine roll-out. I wasn’t told that due to my LC, “severe and prolonged” vaccine side effects were likely. I wasn’t given antivirals on reinfection. My LC remains untreated. 1/ @sajidjavid

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@clarejdaly

Clare Daly

2 years

A prolonged cough that lasts many, many months following Covid infection, in my opinion, is a bad enough outcome that it should be counted. In my first 6 months of #LongCovid , I suffered severely with around 15 symptoms. The cough was the main one I investigated with my Dr. 1/

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@clarejdaly

Clare Daly

4 months

@ukhomeoffice Long Covid patients protesting outside the Covid Inquiry wearing high quality masks to protect their health. Now banned?

@LongCovidSOS

Long Covid SOS

8 months

The Long Covid charities are at the Long COVID Inquiry today. Using their voice with dignity, with power, with exhaustion. We Will Not be Forgotten! #longcovidruinslives #weneedanswers #listenlearnhope #giveushope @long_covid @LongCovidKids @LongCOVIDPhysio @LCNMUK

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Clare Daly

2 years

I don’t need “I’m sorry”. I don’t need “Have you tried..?” I don’t need “I’ve been thinking of you.” I don’t need “I hope you feel better soon.” I need action! Donate to *biomedical* research. Wrote to your MP. Correct anyone and everyone that dismisses Long Covid. Wear a mask.

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@clarejdaly

Clare Daly

2 years

Have sold my bike and packed away my hiking gear, running shorts and tennis racket. It took 20yrs for me to be able to exercise again after I was diagnosed with #MECFS . Couldn’t do a lot but even a little was enough. How long will I have to wait again this time? #LongCovid

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@clarejdaly

Clare Daly

2 years

“You look well!” Happy to help you avoid any discomfort when seeing me during this period of intense suffering. #LongCovid

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@clarejdaly

Clare Daly

2 years

It shouldn’t matter that #LongCovid patients use simple terminology to describe their illness. “So fatigued I can’t walk.” “Brain fog so bad I couldn’t remember my son’s name.” If ppl bothered to listen, they would hear what a profound impact these symptoms have on our lives.

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@clarejdaly

Clare Daly

2 years

Been informed I am fit for work as I’m able to do things like make a sandwich, shop for groceries and use public transport. Yesterday I managed an hour in bed writing on my laptop. I fell asleep afterwards. Am v tired today. Waiting to see the full report… /1 #LongCovidWork

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Clare Daly

2 years

So I have to provide evidence to show why I'm not capable of doing 16hrs per week of work, but the @DWP doesn't have to provide any evidence to say that I am? "She would be able to perform a routine sedentary role." HOW?! #LongCovidWork #LongCovidCosts

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@clarejdaly

Clare Daly

1 year

My lingering Long Covid cough ended up being a secondary bacterial chest infection. My symptoms were initially dismissed by my GP. I strongly suspect the delay in getting access to care heavily contributed to my severe ME relapse.

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@clarejdaly

Clare Daly

2 years

Protect yourself. #LongCovid is a severe illness. There is no treatment available for many of us. Our disability claims are being denied. You are at risk of losing everything you love to do in life.

@elisaperego78

Dr Elisa Perego

2 years

Your daily reminder covid is not the flu, even if "prominent experts" with a degree in medicine and positions of power say so Lived experience of covid survivors, a huge amount of scientific data, and even common sense are crystal clear 🧵

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Clare Daly

2 years

Today we learnt that a talented, hard-working and ambitious member of the Long Covid community took his own life due to immense suffering. This man though is still busy promoting the ridiculous idea that patients have a fear of engaging in everyday activity. Shameful behaviour.

@PaulGarnerWoof

Paul Garner

@PaulGarnerWoof

2 years

An experienced specialist in CFS/ME speaks. Faulty ideology distorted NICE's procedures. Graded exercise therapy helps "by gradually removing the fear of engaging in usual everyday #MECFS #LongCovid

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Clare Daly

2 years

Doctors, please retire using the phrase “It’s just post-viral” in consultations with patients suffering from #LongCovid . It’s great that you aren’t calling it anxiety, but it’s an equally unhelpful diagnosis. We need real answers. #MedTwitter

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Clare Daly

2 years

Good time to remind ourselves that mystery illnesses = underfunded illnesses. It’s also been shown that diseases that primarily effect males are given a disproportionate share of funding at the expense of those that primarily effect females.

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Clare Daly

11 months

“One of the most insulting things people can say is ‘Fight your illness,’” Misko said. That would be much easier for her. “It takes so much self-control and strength to do less, to be less, to shrink your life down…” 1/

@TomKindlon

Tom Kindlon

11 months

New Ed Yong article: “What Fatigue Really Means”: Everyday tiredness is nothing like the depleting symptom that people with #longCOVID and ME/CFS experience #mecfs #cfs #PostCovid #PostCovid19 #MyalgicEncephalomyelitis #pwme #CovidLong

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Clare Daly

3 years

“We deserve treatment, we deserve research, we deserve investment.” Big thanks to the @NewJournal for telling my story this week. #LongCovid #LongCovidKids #MECFS #pwME

@NewJournal

Camden New Journal

3 years

'Save us from Long Covid';: Woman says condition left her burning in pain:

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Clare Daly

26 days

"It's possible that crashes activate innate immunity and restarts the disease" ~ Ron Davis at #UniteToFight2024

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@clarejdaly

Clare Daly

1 year

@EricTopol @LancetRespirMed I got sick from a Covid infection. That’s all that happened. We really need these false narratives about our lives and our personalities to stop.

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Clare Daly

1 year

Just realised it’s been a year since I had to give up my home and move in with family because of #LongCovid and then got reinfected on arrival. As an extra bonus a few days later the DWP rang to tell me I was “fully fit for work”.

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Clare Daly

2 years

Who do we need to lobby to get people with Long Covid (and ME) on the eligibility list for antivirals? We can’t keep enduring wave after wave with no support. We’re already sick enough. How can we organise? @CMO_England @sajidjavid @long_covid @LongCovidSOS @LongCovidKids

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@clarejdaly

Clare Daly

2 years

Founder of one of the largest Long Covid support groups states that she believes “mild exercise is important to recovery”. Her belief is nothing compared to our lived experience. If you suffer from PEM, DO NOT try to exercise your way out of this. #StopRestPace

@dianaberrent

Diana Berrent Güthe

2 years

@Dakota_150 I thought we agreed not to do this. I happen to believe you are incorrect and mild exercise is important to recovery. We've already discussed this offline and I explained in detail. This is your issue. Not mine.

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Clare Daly

1 year

Thinking of everyone who is too ill to even post a short tweet today. #LongCovidAwarenessDay

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Clare Daly

3 years

If a medic writes about #MECFS or #LongCovid in the press and doesn't mention how patients suffer due to: - the severity of the illness or, - the lack of diagnostic testing and treatments or, - underfunding into biomedical research or, 1/

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@clarejdaly

Clare Daly

2 years

It’s completely unsustainable - no treatment on offer and a constant stream of new referrals. #LongCovid

@SkyNews

Sky News

2 years

The number of people seeking help for long COVID has doubled and the NHS is struggling to keep up, a charity has warned

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Clare Daly

10 months

GPs need to stop telling ME patients to exercise. Ask them whether they are resting enough instead. #MECFS #LongCovid #MedTwitter

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Clare Daly

2 months

“a private doctor has diagnosed Millie” “thought to be living with ME” There is no specialist NHS care for Severe ME patients anywhere in the UK. The only way a Severe ME patient can see an ME Dr is by going privately. #BringMillieHome #DontLetMEDie

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Clare Daly

2 years

If you live with Long Covid, how has it affected you? I’ve been ill for 21mths now. Am still unable to work. I made the decision earlier this year to move in with my parents as I was having to use my savings to cover my rent. The NHS has no treatment on offer. #NotRecovered

@ONS

Office for National Statistics (ONS)

2 years

An estimated 2.3 million people – 3.5% of the UK population – had self-reported long COVID as of 3 September 2022. ➡️

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Clare Daly

1 year

ME/CFS had already taken a lot from my life, but a Covid infection reminded me how much more was still up for grabs. Long Covid has meant I’ve been too ill to work for over 2 years. I’ve had to give up my home. #LongCovidAwarenessDay

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Clare Daly

2 years

“It’s a paradigm shift,” says @Daltmann10 . “This is patients saying we’ve identified the syndrome, named the syndrome, we’re calling out the agenda for the syndrome, and this is the research we’d like done. It’s unique in my life. I’ve never seen anything like it.” #LongCovid

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@clarejdaly

Clare Daly

2 years

Why does my brain fog get better as the day progresses? #MECFS #LongCovid

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Clare Daly

1 year

It's no wonder patients are angry about the lack of treatment for ME and Long Covid. The medical profession put together this plan to help us in 2015. #MedTwitter @SteveBarclay @NHSuk

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Clare Daly

1 year

Please stop researching Long Covid if you don’t have the support of the patient community. Please stop working with Long Covid patients if you don’t listen to and believe our lived experience.

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Clare Daly

3 years

- the stigma and neglect that comes with having a "mysterious" illness AND they don't centre their article around resolving any of these issues... Then they are writing to further their own career, rather than actually help chronically ill patients. 2/

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Clare Daly

3 years

I was diagnosed as a child with #MECFS . So why, 28yrs later, do I still get asked if I was breastfed as a baby and what my family environment was like growing up? Why can’t doctors even believe their own colleagues? #LongCovid #MedTwitter #NEISVoid

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Clare Daly

2 years

Are #pwME and #LongCovid only at low risk of hospitalisation because there isn’t actually any treatment on offer for us?

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@clarejdaly

Clare Daly

2 years

@daydreamer2239 “Please write in 2000 words or more how your disability interferes with making a sandwich. You must include each of our 100 descriptors in your response. These will be keep secret from you. All medical documentation will be ignored as evidence. Deadline to submit is last week.”

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@clarejdaly

Clare Daly

1 year

At what point would you consider saying you are/aren’t housebound? I could probably go out more than I do, but I’d have to couple it with more bed rest which I don’t want to do. #MECFS #LongCovid

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@clarejdaly

Clare Daly

3 years

Thinking today about how @BorisJohnson says he wants the UK to be a “high wage, high skill, low tax” economy but is also letting #covid run rampant. I have degrees in Maths, Stats and CompSci but can’t work because of #LongCovid brain fog and fatigue.

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@clarejdaly

Clare Daly

2 years

Starting #LDN today, on day 443 of #LongCovid . Here's hoping it helps my fatigue a little. #TreatLongCovid

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@clarejdaly

Clare Daly

2 years

“Most patients with COVID-19 who have lingering symptoms at 12 months are likely to still have symptoms at 18 months, new data suggest.” #LongCovid

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Long COVID at 12 months persists at 18 months, study shows

Most patients with COVID-19 who have lingering symptoms at 12 months are likely to still have symptoms at 18 months, new data suggest.

www.reuters.com

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@clarejdaly

Clare Daly

2 years

I’ve been waiting nearly three decades for the medical establishment to offer me “safe and effective” treatment for my post-viral illness. So yes, I don’t believe that waiting for formal trials funded by the UK Gov should be my only option. Lack of action == lack of health.

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@clarejdaly

Clare Daly

2 years

I’ve deteriorated this week. Am back to needing a couple of hours of sleep each afternoon. Having to sit with that uncomfortable feeling of not knowing whether I’m just having a bad few days or whether maybe I’ve been overdoing it the last few weeks :/ #MECFS #LongCovid

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@clarejdaly

Clare Daly

5 months

“I split up with my ex just before pandemic - now I'm housebound with long Covid” Agony aunt advice to someone who is housebound due to Long Covid is to go for a walk 🙄

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'I split up with ex just before pandemic - now I'm housebound with long Covid'

Daily Mirror agony aunt Coleen Nolan comes to the aid of a lonely reader feeling overwhelmed as she tackles a debilitating long-term illness and heartbreak

www.mirror.co.uk

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@clarejdaly

Clare Daly

6 months

Three years to the day since I got Covid and never recovered. #LongCovid #MECFS #TreatLongCovid

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Clare Daly

1 year

On reflection, the thing I really miss the most is waking up and feeling well. #LongCovidAwaneressDay #MECFS

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Clare Daly

5 months

So when we say we feel like we’re dying when we’re in a crash we were actually right? Muscle cell death after exertion 👇🏻

@FvRhijn

Fen, MD

5 months

Here's a pic of what happens in our muscles after exercise. Necrosis, muscle cells die, way more than in healthy controls. The magenta blobs are normal muscle fibers and the big spotted pale part is the necrosis. (Fortunately, they also found that the body does try to repair it)

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Clare Daly

2 years

I generally avoid talking about my (extremely slow) recovery on here as I dislike the idea that medicine could be excused from helping us because they hear stories of patients naturally improving with time. Even if I were to get back to baseline, it will take *years*. 1/

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@clarejdaly

Clare Daly

2 years

@Mersey_Care @Patrici15311724 @liverpoolccg @StHelensCCG @Knowsley_CCG @NHSSSCCG I’m currently in Merseyside. If you want to learn directly about Long Covid I would be very happy to speak with you about how devasting this condition is and the impact it has had on my life. Hopefully then you’d all learn that discussing this in a packed room unmasked is absurd

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Clare Daly

2 years

Private hospital visit today to discuss ongoing #LongCovid symptoms. Was asked to remove my KN95 mask and replace it with a surgical mask as it was “hospital policy” to wear the latter. We came to the agreement I would double mask. #COVIDisAirborne

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Clare Daly

3 years

Calling Long Covid “new and unknown” helpfully deflects any blame for years of discrimination against #MECFS patients. The media needs to tell the whole story about why we’re in this mess with #LongCovid and why #pwME still desperately need help too.

@VladVexler

Vlad Vexler

3 years

Failure to mention ME in a programme on Long Covid expresses a compartmentalisation of knowledge that's cruel on all sides. ME patients need to raise their voice. Researchers need to include ME in LC grant apps. Journalists need to investigate the history & politics of ME.

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Clare Daly

3 years

At the last ONS count, 405,000 ppl in the UK had #LongCovid for more than a year. There are an estimated 250,000 ppl in the UK suffering from #MECFS . Combined, that’s more ppl than the population of Manchester. Time to stop ignoring us and start treating us. #TreatLongCovid

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Clare Daly

2 years

@dgurdasani1 Given I had to effectively relearn to read this year due to Long Covid brain fog, yes, I am very, very concerned. Let’s also not forget the financial and social impact of Long Covid when we discuss these concerns. Long Haulers are losing their jobs, homes and relationships.

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Clare Daly

3 years

It’s my birthday today. So I hereby declare today’s afternoon nap as my official celebratory birthday nap 🎉 It’s been 28 years since I got my first set of blood tests due to post-viral fatigue. Wouldn’t it be lovely if for the next birthday we had some answers? #pwME #LongCovid

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Clare Daly

2 years

“Are you at least feeling better than before Christmas?” No. I’m feeling worse. Sick note extended once again. #TreatLongCovid

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@clarejdaly

Clare Daly

2 years

I understand many ppl don’t like the idea of implementing a Zero Covid strategy, but Lots of Covid isn’t the only alternative. I shouldn’t have to ask how I will be protected from reinfection when I attend a hospital to participate in Long Covid research.

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Clare Daly

5 months

Once again, TREATMENT will make me “healthier, wealthier and happier”. Horrified by the idea that the DWP could push running onto ppl with (undiagnosed) ME/CFS. More lifelong harm with no accountability?

@VictoriaAtkins

Victoria Atkins

@VictoriaAtkins

5 months

Work makes us healthier, wealthier and happier. We don’t think anyone’s potential should be written off because of ill health. Our new WorkWell service is designed to provide the support that people need to stay in work, or return as soon as possible.

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Clare Daly

2 years

The @DWP is paying me an income of £165 per month while I’m off work with Long Covid. A recent admin error means I currently have no income at all. If @RishiSunak wants to get ppl back into work, he would do well to invest in preventing and treating #LongCovid . #EndTheLonghaul

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@clarejdaly

Clare Daly

2 years

I keep thinking I’ve recovered lots because I notice all the small things I can now do rather than the big things I still can’t do. 🙃 Being well enough to do Duolingo is still the highlight of my summer. #LongCovid

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Clare Daly

2 months

Every time I join a new community group for people with Long Covid and/or ME I’m blown away by not just how many of us there are, but how much we need to figure out on our own. 💔

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@clarejdaly

Clare Daly

1 year

Just over a month ago I started taking NAC, L-Carnitine and MitoQ. I also reassessed how I’m pacing once again - outcome was to stop all walking (even occasionally) outside the home. Have completely avoided PEM all month. HRV is up significantly and RHR is down significantly.

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@clarejdaly

Clare Daly

2 years

Been hoping all week for a better outcome, but no… I’ve had to cancel my birthday plans 😔 Sadly, I also share my birthday with my Mum, so I’m a no-show for her celebrations too. No matter how well you pace, there will always be disappointment. #LongCovid #MECFS

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Clare Daly

5 months

Watching this now - appalled at how quickly each of the Dragons in @BBCDragonsDen has agreed to invest in a snake oil “treatment” targeted at such an extremely vulnerable and neglected community. Will be making a formal complaint to the BBC shortly.

@CraftyMissB

Crafty Miss

5 months

Here is a link to complain about @BBCDragonsDen Acu Seeds segment. Please make a complaint if you feel this was inappropriate content regarding M.E 'treatment'.

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Clare Daly

2 years

We need to #TreatLongCovid with urgency as millions of people globally have been severely disabled by #COVID19 .

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Clare Daly

2 years

Can someone please make a “Do I have PEM or do I have an infection” test? I really feel like I need this in my life. #MECFS #MedTwitter

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Clare Daly

3 years

Has there ever been any official public health messaging on #LongCovid from the government?

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Clare Daly

2 years

Over 200K cases in the UK today, and still no mention of #LongCovid from @10DowningStreet . We are in the midst of a mass disabling event. The UK needs to urgently increase investment into Long Covid research. #TreatLongCovid

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@clarejdaly

Clare Daly

3 years

11 months of my #LongCovid has meant dealing with: Fatigue, vision problems, vomiting, diarrhoea, headaches, cognitive dysfunction, breathlessness, coughing, burning chest pain, lightheadedness, insomnia, swollen glands, sore throat, fever. #TreatLongCovid

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Clare Daly

2 years

The #LongCovid clinic is finally referring me for autonomic testing. Do #pwME who get referred to the Fatigue Service also get the opportunity to have these tests? I’ve never been offered anything other than blood tests before. #LongCovidClinic #MECFS

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Clare Daly

2 years

No health, no wealth. My current income is £165.26 per month. #LongCovid @DWP

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Clare Daly

2 years

You can’t determine from the name of symptom alone how disabling it is for the person suffering from it. Just like the fatigue we suffer from isn’t a bit of tiredness, a cough doesn’t mean you just have a tickle in your throat. 3/

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Clare Daly

15 days

Think it’s time to officially share that I’ve started a very small return to work with the support of @visible_health 😊 If you ever see me on the in-app chat, please do say hi!

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Clare Daly

3 years

Every time I read a “before I got Long Covid” story it reminds me how ill and neglected #pwME are. So much that ppl have lost through getting #LongCovid that we haven’t experienced in decades.

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Clare Daly

11 months

It’s likely I’ll keep self-experimenting with attempting to treat my #LongCovid #MECFS until @NHSuk is able to provide treatment. So for any medical professional who advises against patients doing this, I simply ask, which clinical trials can I sign up to then?

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Clare Daly

5 months

We’re at that stage post-Covid Christmas infection that many ppl will be thinking they’ve been ill for long enough now and it’s time to “push through” and “get back to normal”. PLEASE listen to your body and not your calendar. If you still feel drained or foggy KEEP RESTING!

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Clare Daly

1 year

“A mild or even an asymptomatic case of COVID can cause reservoirs of some viruses you’ve previously battled to reactivate, potentially leading to symptoms of Chronic Fatigue Syndrome—a condition that resembles long COVID, according to a recent study”

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Clare Daly

2 years

The LC clinics, in the most part, are not fit for purpose. It was never rehab that we needed, and it’s still not now. CBT won’t cure us. @NHSuk Could the clinics be run as research hubs? Only £50m was allocated by @NIHRresearch last summer. Biomedical research is lacking. 3/

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Clare Daly

2 years

I keep feeling compelled to come back to read this summary of what might be causing #LongCovid brain fog. #TeamClots

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Clare Daly

2 years

“We’re seeing abnormalities that are not typically seen in brain fluid.” #LongCovid

@fearnley_k

Dr K Fearnley

2 years

10 of 13 patients with Long Covid who reported cognitive dysfunction had changes detected in their CSF #MedTwitter #MedEd

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