I’m currently in the hospital with liver transplant rejection. They’re taking the
necessary steps to control/stop it, but I’m feeling pretty down, and I’m scared. That’s all I’ll say for now, please send me some positivity…
Being here is more emotional than I expected. A few people know this, but last September when I was preparing to go home on hospice the only thing I wanted to do was see the ocean one more time. I finally made it 💚💚💚
Good morning. Here’s an update on me. I’ve been sick. My lab results aren’t good. I’m in the hospital. I’m having a liver biopsy to confirm or deny rejection.
I have an update. After lunch today I became unconscious from internal bleeding out into my surgical drains. I was taken back to the operating room where they opened me back up, stopped the bleeding. and stapled me back together.
I’m back in my ICU room and feeling okay 👊🏼❤️
Rejection is confirmed. Blasting me with more steroids now. As long as the liver enzymes numbers start to come down in the right direction, I’ll be home in a day or two hopefully.
On September 5, 2022 my family and I made the decision together that I was going to go home under hospice care and live out the last few weeks to month of my life comfortably…
1/5
I can’t give any details right now about what’s wrong, but it’s enough that I’m gonna be transferred the 110 miles by ambulance back to my transplant center at VCU this evening.
Someone died a year ago today. I don’t know who they are or what happened, but a physical part of them still lives inside me keeping me alive. For that, them and their family are eternally in my thoughts 💚
They may be gone, but this part of them still lives on 💚
With a little help from her mom, my daughter played hooky from school today 🤫🤫 so she could make the 4 hour round trip drive with my brother to come see me today ❤️😊❤️
I found out two days ago I’ve been approved for full transplant and have been added to the official wait list. Because of how sick I am and my score (“MELD” score) it puts me high up in priority on the list…
4/5
UPDATE: Blood labs from this morning show I’m not in the clear yet but the rejection is reversing as the numbers are trending down 🙌🏼
I’ll keep doing what I’m doing and I’ll be just fine 💚
A priceless gift of a liver, a skilled transplant surgery team, and an almost 9 hour surgery leaving about an 18.5 inch scar across my abdomen, saved my life a year ago today 💚 It’s taught me that just because something seems completely hopeless, it doesn’t always mean it is.
Last update… liver isn’t fixed, but heading that direction 😊 I have 10 days of bed rest and also now have steroid induced diabetes due to the insane high dosage. So it’s blood checks and insulin while the steroid regimen is happening, then it should clear up in a couple months…
Yesterday I fainted, called 911, and went into the ER. This morning I’m now being transferred the two hours to VCU to be admitted there.
My liver is perfectly fine this time. It’s my heart, and it’s not beating correctly. I’ll update when I can.
Nurses kept me alive for weeks before I was able to get a transplant. While the surgeons ultimately saved my life, they wouldn’t have had the chance to do so without the nurses and everything they did to get me there ❤️❤️
I’m 650 days sober today, as of noon. Some days have been much harder than others, but they’re all better than they would be with alcohol involved.
#sober
I killed myself with alcohol in only 5 years. I was literally days away from death. I’m not an inspiration in that life. I was sick and addicted and a shitty person, but I managed to look death in the face and tell it to fuck off so I can be better in this second life.