Pat McGann, MD @PTMcGann Twitter profile

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Pat McGann, MD

4 years

A child with sickle cell disease is born across the world EVERY TWO MINUTES. Most die without a diagnosis in the first years of life. Sickle cell belongs among HIV, TB, Malaria as critical global health problems. #SickleCellAwarenessMonth

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Pat McGann, MD

@PTMcGann

3 years

A child with #SickleCellDisease is not eligible for @MakeAWish unless certain criteria are met For #cysticfibrosis a diagnosis alone is sufficient Both are life-threatening w/ significant impact on quality of life The difference is race(ism) @MakeAWish How do we change this?

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Pat McGann, MD

@PTMcGann

3 years

Tonight I witnessed a police officer yelling and cursing and threatening a Black woman during a traffic stop I simply walked over and watched and my white presence made the yelling and cursing stop I reported the asshole officer but this is not ok. We need systemic change

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Pat McGann, MD

@PTMcGann

2 years

When you assess #SickleCell pain, the only number that matters is the patient’s pain rating. Not the heart rate, not the blood pressure, not the respiratory rate. Not the hemoglobin, fetal hemoglobin, or reticulocyte count. #BelievethePatient Listen, and treat the pain.

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Pat McGann, MD

@PTMcGann

3 years

Update. Spoke with Medical Director @MakeAWish and they are game to discuss how to fix this. I will join a call with Advisory Council later this week. Props to @MakeAWish for reaching out and for quick action. Keep the Likes/RTs going to show how serious we are!

Pat McGann, MD

@PTMcGann

3 years

A child with #SickleCellDisease is not eligible for @MakeAWish unless certain criteria are met For #cysticfibrosis a diagnosis alone is sufficient Both are life-threatening w/ significant impact on quality of life The difference is race(ism) @MakeAWish How do we change this?

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Pat McGann, MD

@PTMcGann

3 years

@pookleblinky @MDaware The pre-COVID explanation was that this generation never saw measles or polio and thus didn’t know how bad they were. But that doesn’t fly anymore as we literally saw thousands of people dying per day over the past year and there are still anti-vaxxers.

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Pat McGann, MD

@PTMcGann

3 years

Dear referring provider, Please don’t tell a parent “I dunno it may be leukemia” when a CBC has up or down arrows next to values. Damage control for iron deficiency and ANCs of 1500 is real. Sincerely, Your friendly neighborhood hematologist

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Pat McGann, MD

@PTMcGann

3 years

Phew. 80 mins of relentlessly advocating to @MakeAWish leadership that #SickleCell is as life-threatening and serious as other conditions and why ( #SystemicRacism ) there are clinical qualifiers for SCD but not others. Though a change wasn’t made on Zoom, I was heard 1/2

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Pat McGann, MD

@PTMcGann

3 years

I’ve been pulled over in the same spot. My car wasn’t searched. I wasn’t yelled at. They didn’t even ask for my license or registration! In speaking to the woman, they were stopped without committing a traffic violation. So disappointed (but not surprised by) Mariemont PD

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Pat McGann, MD

@PTMcGann

3 years

#SickleCellAwarenessMonth Labs NEVER override symptoms Yes, we will get a CBC Most times it will be “at baseline” This 1000% does NOT mean that sickling is not occurring Don’t EVER use labs to explain away any symptom, especially pain Believe the patient and treat symptoms

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Pat McGann, MD

@PTMcGann

3 years

Excited to share that I’ll start a new position to merge/lead a combined peds/adult #SickleCell Center @BrownMedicine @HasbroChildrens @RIHospital No transition. One team, one philosophy, one clinic across the Lifespan. No “Cancer Center” Equity, research, prioritized 1/2

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Pat McGann, MD

@PTMcGann

3 years

Outside call from PCP: I have a 3 year old with a hemoglobin of 4.9, MCV 65, but running around. Wondered what you thought. Me: does the kid drink lots of milk? Referring MD: I didn’t really get into that. Me:

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Pat McGann, MD

@PTMcGann

2 years

@CatDocMD Megan Thee Scallion

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Pat McGann, MD

@PTMcGann

3 years

Here’s an idea. Chemo certification is needed before nurses can give chemotherapy. What if we had Sickle Cell certification, including implicit bias and anti-racism education, pain management specific to #SickleCell , acute complications, etc @AssocPHON #NurseTwitter

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Pat McGann, MD

@PTMcGann

4 years

#sicklecell pain is real and it is horrible. Do not question it. Treat it aggressively. Here' an educational flyer we made to encourage providers to reflect on #implicitbias and #racism associated with assessment/treatment of pain for different patients. #sicklecellawarenessmonth

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Pat McGann, MD

@PTMcGann

2 years

Remembering when someone at my hospital anonymously “reported” me for this tweet and I got called/scolded by administration. LOL I’m happy to get in good trouble all day and twice on Sundays

Pat McGann, MD

@PTMcGann

3 years

When a #SickleCell patient is mistreated in the hospital because of #Racism and #ImplicitBias , this is equally as problematic as a medical error or any safety event. It happens every day and excuses are made. I’m no longer tolerating these excuses. How about you?

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Pat McGann, MD

@PTMcGann

2 years

Ummmmm hi @MerriamWebster , how do we update the DICTIONARY? The term #sickler is a dehumanizing slur and belongs nowhere in anyone’s vocabulary, certainly not the dictionary. Please remove this Better yet, if someone searches, it provides education about why it’s not a word

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Pat McGann, MD

@PTMcGann

2 years

If a #SickleCell (or any) patient reports 10/10 pain, it’s 10/10 pain. Documentation or verbal report should never say “patient reports 10/10 pain BUT…” There is no BUT, treat the pain. I read and hear this all too often and it results in inadequate pain management

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Pat McGann, MD

@PTMcGann

3 years

Hi new followers. Fun facts I tweet about: ➡️ #SickleCellDisease is the most common disease detected by #NewbornScreening in the US ➡️SCD Is the most neglected global Heath problem, killing more kids per year than #HIV ➡️use of the words “sickler” is a criminal offense 1/2

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Pat McGann, MD

@PTMcGann

3 years

@AriellaStudies @timothykeyes Well, there’s sometimes a submission fee and if they actually like what I wrote, I get to pay another several thousand dollars to get people to read it!

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Pat McGann, MD

@PTMcGann

3 years

📢 📢 #SickleCellDisease isn’t cancer and shouldn’t be treated in “Cancer Centers”📢 📢 It’s disrespectful and exacerbates the phenomenon that SCD is second fiddle to other things We need dedicated sickle cell centers with their own space, resources, and names.

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Pat McGann, MD

@PTMcGann

3 years

Well that blew up and may lead to change Let’s try again. There are more children who die per day from #SickleCellDisease than #HIV but no funding or recognition that SCD is a global health problem. What say you @BillGates @gatesfoundation @WHO ?

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Pat McGann, MD

@PTMcGann

1 year

Jaw dropping data presented by Dr Asare showing that 10 percent of pregnant women with #SickleCellDisease in Ghana die during pregnancy but with a multidisciplinary care approach, this goes down by more than 90 %. Incredible work , more to be done #ASH2022

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Pat McGann, MD

@PTMcGann

2 years

PSA, if a Black patient feels they were treated unfairly, they were Respect their experience and don’t react defensively Investigating bias events needs to go further than “but that wasn’t my intent” or “the patient is misrepresenting what I meant” Listen, apologize,do better

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Pat McGann, MD

@PTMcGann

3 years

A slide I now include in basically all talks about anything hematologic Today it was “Diagnosis of Anemia” for pediatric NPs and PAs. “Just a reminder, believe patients reports of pain, treat patients equitably, and don’t say sickler.” Okay now back to interpreting the CBC…

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Pat McGann, MD

@PTMcGann

3 years

Impressive statement by @CincyChildrens leadership today that #CovidVaccine will be MANDATORY for all staff by Oct. 1 This following news that only 52% of staff and 71% of physicians are currently vaccinated More healthcare systems and hospitals should follow suit 👏🏻 💉 👏🏻 💉

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Pat McGann, MD

@PTMcGann

2 years

Hi I’m a pediatrician and I saw a 66 year old #SickleCell Warrior today and……I loved it!? #LifespanHematology FTW

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Pat McGann, MD

@PTMcGann

3 years

@RobynCohenMD @MakeAWish I meant to include the criteria. It basically punishes those who are adherent to treatments

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Pat McGann, MD

@PTMcGann

3 years

Happy #SickleCellAwarenessMonth A couple of fun facts #SCD is the most common condition found on #NewbornScreening in the US 2x more infants are born w/SCD globally than children newly infected w/ #HIV per year #SickleCellDisease is not rare We need to stop neglecting it

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Pat McGann, MD

@PTMcGann

3 years

#SickleCell pain can still occur and can be severe even if if “your labs look good” Or if your heart rate is 55. Or if you’re texting. Even if you’re smiling. Believe the patient and treat the pain.

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Pat McGann, MD

@PTMcGann

2 years

I am giving a talk about #SickleCell to a group of nurses today. I am always modifying how I present this information but the message is always the same - listen to the patient and treat the pain

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Pat McGann, MD

@PTMcGann

10 months

I‘m thrilled to share that I have been selected to participate in the Inaugural @ObamaFoundation Leaders USA program, where I’ll join an incredible cohort of changemakers I look forward to learning how we can impact large-scale change for #SickleCellDisease #ObamaLeaders

Barack Obama

@BarackObama

10 months

We’re just beginning to see what the next generation of leaders can accomplish. Congratulations to the 100 @ObamaFoundation Leaders who make up the inaugural Leaders USA cohort. Michelle and I can’t wait to see what you do next.

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Pat McGann, MD

@PTMcGann

3 years

@MakeAWish leadership will discuss w/larger group and circle back Actions speak louder than words I clearly proposed a solution (remove the asterisk) and am not quitting until we get there Kind of felt like Frank the Tank from Old School. My passion may have been a bit crazed

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Pat McGann, MD

@PTMcGann

4 years

#Hydroxyurea should be the foundation of #sicklecell treatment. Remember, hydroxyurea protects against long-term complications and not just pain. Even if you do not feel different on the outside, your body is better off on the inside. #SickleCellAwarenessMonth

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Pat McGann, MD

@PTMcGann

3 years

@WFKARS It's a tie. Both want me to poke my eyeballs out. "I can't feel my face when I'm with you..but I love it" and: "Now that I'm without your kisses, I'll be needing stitches"

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Pat McGann, MD

@PTMcGann

2 years

#SickleCellAwarenessMonth D26 Let’s talk about new therapies We are lucky to FINALLY be in a place where new medications are available and in development Don’t forget #Hydroxyurea as the foundation before or in addition to these but let’s discuss each here in a thread🧵 1/6

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Pat McGann, MD

@PTMcGann

2 years

2022 just started, right? Well, >30,000 babies with #SickleCellDisease have been born this year already, mostly in Africa Most will die before a diagnosis can be made and won’t have access to treatments if they are diagnosed Time to recognize SCD as a global health priority

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Pat McGann, MD

@PTMcGann

3 years

@Ingy2009 #IronDeficiency is the most common cause of anemia in young children. It’s often caused by drinking lots of milk, which has no iron, blocks absorption of iron, and fills you up so you aren’t hungry for food with iron! For a pale child, the 1st question should be about milk!

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Pat McGann, MD

@PTMcGann

3 years

Ready for our patient webinar focusing on Hemoglobin SC for #WorldSickleCellDay HbSC facts forthcoming..stay tuned

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Pat McGann, MD

@PTMcGann

3 years

When a #SickleCell patient is mistreated in the hospital because of #Racism and #ImplicitBias , this is equally as problematic as a medical error or any safety event. It happens every day and excuses are made. I’m no longer tolerating these excuses. How about you?

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Pat McGann, MD

@PTMcGann

2 years

Not sure if I’ve ever shamelessly asked on here but if you are or know an adult hematologist (official or in training) and want to work together to build a world class Lifespan #SickleCell program including kids/adults, clinical care and research and global health, hit me up….

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Pat McGann, MD

@PTMcGann

2 years

Planning to survey providers about #SickleCellDisease The fact that there’s a validated survey like this is problematic Would we EVER consider if cancer patients (or any other patients) were “frustrating to care for” or “difficult to empathize with?” This culture NEEDS change

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Pat McGann, MD

@PTMcGann

2 years

There’s nothing physiologic to support gender based diferences in hemoglobin or ferritin Instead it’s tolerating iron deficiency and results in many women left undiagnosed and untreated with real consequences . Let’s be equitable and diagnose anemia the same for men and women

The Lancet Haematology

@TheLancetHaem

2 years

“As a society committed to recognising and transforming gender inequalities, it is time to remove sex-based thresholds for one of the most common global human afflictions” #anaemia #WomensHealth NEW comment by @acweyand @PTMcGann @sholzberg

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Pat McGann, MD

@PTMcGann

2 years

Can’t say I predicted or planned for a new degree at this age but happy to have finished and love the support by @DrPowerHays and other friendly faces in the audience! Think my education is officially over at grade 37

Alexandra Power-Hays, MD

@DrPowerHays

2 years

Proud of @PTMcGann presenting his PhD defense bringing #PrecisionMedicine to #SickleCellWarriors ! Optimal dosing of #hydroxyurea ⬆️ protective HbF% & F cell distribution to the same "curative" level as #GeneTherapy with ⬇️ in #SickleCell symptoms #PhDone @CincyClinPharm

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Pat McGann, MD

@PTMcGann

6 months

After 3+ years of planning, grant writing, approvals & unanticipated delays, the PUSH-UP study in Angola enrolled its 1st patient this week! 🎉 We hope PUSH-UP will answer important questions about dosing & need for lab monitoring of hydroxyurea for #SickleCellDisease in Africa

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Pat McGann, MD

@PTMcGann

2 years

Time flies but 9 months into my new job and I could not be more enthusiastic about the future of this program. We are building such a phenomenal team and aim to do all we can to help our patients thrive

The Warren Alpert Medical School

@BrownMedicine

2 years

A new combined pediatric and adult sickle cell program at Rhode Island and Hasbro Children’s hospitals led by @PTMcGann works to address the racism and medical neglect patients face. #SickleCell @HasbroChildrens @RIHospital

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Pat McGann, MD

@PTMcGann

3 years

Provocative question. 15 year old with #SickleCell buzzes nurse at the same time as a 15 year old with new diagnosis of #Cancer . Both have pain and request their PRN morphine. Who gets their morphine first? Why? We are trying to look at these uncomfortable issues.

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Pat McGann, MD

@PTMcGann

3 years

#SickleCellAwarenessMonth My favorite medication - hydroxyurea ⬆️ fetal Hb (HbF), which reduces HbS & prevents sickling ⬇️ pain,organ damage ⬆️survival By far the best SCD treatment we have Dose matters 30+ years showing safety All HbSS should start @ 6 months 1/2

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Pat McGann, MD

@PTMcGann

2 years

Reminder that no patient deserves to be labeled as a “frequent no show” or “poorly compliant” Address the barriers and provide the support patients need Invigorated by a full #SickleCell clinic where 100% of our patients showed up and are thriving thanks to our great team

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Pat McGann, MD

@PTMcGann

2 years

#SickleCellAwarenessMonth Day 16 Sickle cell pain is real and debilitating There are no objective measures to assess pain Labs and vital signs are usually normal Listen to and believe the patient without judgement. Treat the pain

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Pat McGann, MD

@PTMcGann

8 months

#SickleCellAwarenessMonth D21 Sickle cell pain is debilitating No objective signs tell us if someone is or is not sickling I’ve heard too often, “10/10 pain but…(vital signs normal,labs stable,texting, etc) That’s a hard stop - no buts. Believe the pain. Treat the pain.

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Pat McGann, MD

@PTMcGann

3 years

Thrilled to finally get word of official funding for this grant submitted in June 2020! This clinical trial in Angola and Tanzania will evaluate: 1️⃣Precision dosing of hydroxyurea in African settings 2️⃣Hydroxyurea w/limited laboratory monitoring to allow expanded use

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Pat McGann, MD

@PTMcGann

4 years

Let's talk about hydroxyurea for #sicklecelldisease . There are so many myths and misconceptions and all patients (HbSS) need this medication. #tweetorial #sicklecell #PHOdocs 1/

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Pat McGann, MD

@PTMcGann

3 years

@acweyand So glad she didn’t ask how the body makes a clot.

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Pat McGann, MD

@PTMcGann

2 years

@jtrebach They’re a great resource and have heard it all. “Oh, that pesky kid ate a mixture of dog anti-hypertensive medication, turpentine, and an entire mouse trap?” Give him 3 cups of Dasani water, check his selenium level, watch him for 3 hours and send him home w/ a lollipop.

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Pat McGann, MD

@PTMcGann

3 years

I’m not sure who needs to hear this but there is no such thing as “mild” sickle cell anemia (HbSS) Yes, patients have different types/frequencies of symptoms but this is ALWAYS a severe disease that needs treatment Please don’t classify patients as having mild or severe disease

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Pat McGann, MD

@PTMcGann

4 years

Each of the 50 US States screens newborns for dozens of conditions.Sickle cell disease is THE MOST COMMONLY DETECTED CONDITION (~1 in 2,000 births). Not hypothyroidism, not PKU, not CF either.This is a major problem of Americans, not “just Blacks.” #BLM #SickleCellAwarenessMonth

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Pat McGann, MD

@PTMcGann

3 years

The @WHO came out with an Essential List of Diagnostics today. I angrily opened to suspect that #SickleCell was again overlooked and surprised to find it's actually included And found this nice little quote in the report. I guess my soapbox advocacy does worth it....

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Pat McGann, MD

@PTMcGann

3 years

#SickleCellAwarenessMonth Would you question what cancer pain feels like or remind a patient when they last had pain medication before giving more? Why are sickle cell patients disbelieved when they report pain? Stop judging and #TreatThePain S/O @halimattakeson for the flyer

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Pat McGann, MD

@PTMcGann

1 year

Such an incredible #SickleCell patient panel providing so much wisdom for the @BrownMedicine 2nd year medical students The recurrent theme? Be kind, listen, have compassion, be curious about the lives of your patients. It’s not difficult. ❤️

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Pat McGann, MD

@PTMcGann

2 years

#SickleCellAwarenessMonth Day 15 Sickle Cell is not cancer Why are most adults treated primarily in “Cancer Centers” where stigmatization and de-prioritization is exacerbated? We need true Sickle Cell Centers and doctors where SCD is the focus and Warriors are the priority

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Pat McGann, MD

@PTMcGann

2 years

Giving a talk to @BrownPediatrics residents today I am continuously workshopping this slide but find it as essental in any #SickleCell talk as any slides about hemoglobin or gene mutations or laboratory values..

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Pat McGann, MD

@PTMcGann

4 years

More about #sicklecell #pain .Pain is a part of life, occurring daily for some,usually treated at home. When patients present to your ED with pain, believe them. They didn't come because they love the hospital.They came because they hurt.Treat the pain. #sicklecellawarenessmonth

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Pat McGann, MD

@PTMcGann

2 years

Meeting with ED leadership at 2:30, was told that having a passport to show/bring to the ED would help patients get pain meds in 60 minutes “When do you think you can have it to us to begin education?” It’s 3:35, can’t believe it took me this long. Hope it works!

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Pat McGann, MD

@PTMcGann

2 years

@AshleyGWinter Jean belts only come out when you HAVE to wash them, and sometimes I forget and the jeans and belt mostly survive

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Pat McGann, MD

@PTMcGann

3 years

#SickleCellAwarenessMonth Individuals w/SCD know their body ✅Take time to listen ✅ Ask what works best for them ❌Don’t use the word “sickler- it’s a depersonalizing, stigmatizing slur ❌ Don’t judge patients before meeting them #BeTheChange

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Pat McGann, MD

@PTMcGann

3 years

A key early need is an adult hematologist with a passion for health equity and sickle cell If that’s you or you know anyone, reach out! Program will be built with a research and anti-racism focus. Much of the legwork is there, excited to lead next steps Work begins in Sept

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Pat McGann, MD

@PTMcGann

2 years

Hi @TheUSMLE , why am I teaching med students about giving radioactive B12 as a diagnostic test (Schilling test) in 2022 b/c “it’s on the boards?” Can we modernize boards to avoid having students learn/memorize archaic information w/no clinical relevance? #MedStudentTwitter

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Pat McGann, MD

@PTMcGann

3 years

#SickleCellAwarenessMonth All children w/SCD are entitled to a 504 plan at school, which gives accommodations like 🚽 privileges, ability to carry H2O, etc Individualized educational plans also often helpful Parents, ask your school Providers, ask parents and help if needed

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Pat McGann, MD

@PTMcGann

3 years

A question during nursing education about #sicklecell : How do I respond when a patient is texting then cries in pain when he sees me enter the room? Answer: you believe the patient and treat the pain. The theatrics are a sad way for patients to get people to believe them.

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Pat McGann, MD

@PTMcGann

1 year

After the horrible tasteless joke by @mindykaling and @HBO , I’m thankful for @marsaimartin for her upcoming @Disney show about a badass roller skating girl with #SickleCell ! Hopefully coming out soon!

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Pat McGann, MD

@PTMcGann

8 months

#SickleCellAwarenessMonth D27 I still hear the word sickler and it needs to stop I don’t care if you’ve always used it or if you don’t mean it in a bad way. It’s a slur, it’s dehumanizing and patients hate it. I hate it. Don’t use it and correct those that do

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Pat McGann, MD

@PTMcGann

3 years

How about a #CysticFibrosis and #SickleCell collab instead of negative comparisons? Check out these Bluetooth connected incentive spirometers with video games used by CF patients We will use them to make IS more fun (and more used!) for #SickleCell @ZEPHYRx_LLC @DrPowerHays

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Pat McGann, MD

@PTMcGann

1 year

Just had a #SickleCell patient who had $100 co-pay for #hydroxyurea , categorizing this generic, cheap, standard of care SCD medication drug as a speciality chemotherapy drug @HarvardPilgrim how can we remedy this aside from being on perpetual hold?

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Pat McGann, MD

@PTMcGann

5 months

I love when advocacy works Absolutely thrilled to hear that @usnews rankings will FINALLY include #SickleCell metrics to create transparency and accountability (For the record, overall I still think these rankings are dumb & problematic) @DrPowerHays @cdandoy1 @NdidiUnaka

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Pat McGann, MD

@PTMcGann

3 years

Creating a Need to Know sheet for anyone caring for #SickleCell patients. Tried to make it “in your face” and brief so people would read it. Thoughts/comments/edits?

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Pat McGann, MD

@PTMcGann

8 months

#SickleCellAwarenessMonth D4 A primer on how to assess sickle cell pain Ask the patient, listen to the patient, e examine the patient (to rule 9out other causes!), believe the patient That’s it (Note exclusion of vital signs, use of cell phone, labs, facial expresssions etc)

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Pat McGann, MD

@PTMcGann

2 years

Super excited to have my first official day dipping my toes into the ADULT #SickleCell clinic. The plan is mostly to listen and learn

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Pat McGann, MD

@PTMcGann

2 years

Our #SickleCell Lunch & Learn Series is now booked through June with a 🔥lineup of speakers/topics Thanks to all the friends who are speaking It’s in person w/🍕 here in RI, but also Zoom for anyone that wants to join If you want to be added, DM your email - all are welcome!

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Pat McGann, MD

@PTMcGann

3 years

“There would be no stronger affirmation of our national commitment to equity and racial justice than to prioritize assistance to those suffering from #SickleCellDisease .” Strongly worded piece by @DrGiroir

Ending sickle cell disease is a matter of racial justice

There would be no stronger affirmation of our national commitment to equity and racial justice than to prioritize assistance to those suffering from this disease.

thehill.com

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Pat McGann, MD

@PTMcGann

8 months

#SickleCellAwareness Day 2 is a call to action The suffering and pain from SCD is real. Providing compassionate care is not difficult or expensive. Take time to listen. Believe the pain. Treat like family. I promise to do this everyday and hold others accountable. Will you?

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Pat McGann, MD

@PTMcGann

2 years

Official launch of the PUSH-UP study for #SickleCellDisease in Luanda, Angola 🇦🇴 The study hopes to answer critical questions about #Hydroxyurea dosing and evaluate limited laboratory monitoring to allow for wider access across #Africa So proud of our incredible team

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Pat McGann, MD

@PTMcGann

3 years

#SickleCellAwarenessMonth (and #PainAwarenessMonth ) Let’s extend beyond #HemeTwitter #MedTwitter #NurseTwitter #emergencymedicine #MedEd Become #SickleCell advocates Think twice if you stigmatize a patient or question their pain Correct others Stop the Racism Be the Change

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Pat McGann, MD

@PTMcGann

8 months

#SickleCellAwarenessMonth D3 Real talk #GeneTherapy We are close to several realistic potentially curative options,but will be complex & expensive We MUST ensure these therapies are accessible AND affordable or this will be another tragic stain in the history of SCD inequities

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Pat McGann, MD

@PTMcGann

2 years

Request to stop using the word “benign” to refer to non-malignant hematological conditions The definition of benign is “not harmful in effect” or “gentle and kindly” - this article details some very not “benign” emergencies

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Pat McGann, MD

@PTMcGann

3 years

#SickleCellAwarenessMonth Globally, a baby is born w/(and a child likely dies from) SCD every 2-5 mins More kids w/SCD than cancer/HIV SCD not included among #NCDs Diagnostics & basic treatments not available We need concerted action @gateshealth @WHOAFRO @ncdalliance

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Pat McGann, MD

@PTMcGann

3 years

Only in #Pediatrics do ICU rounds include singing happy birthday and orders include CBC q6 and cake #PedICU @DrPowerHays

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Pat McGann, MD

@PTMcGann

2 years

This sickle cell clinic (CADA - translated as Center of Support of Anemic Patients) opened its doors about 5 yrs ago as the 2nd sickle cell clinic in Angola Now it has >3,000 pediatric patients run by an amazing doctor and 2 nurses It will be the site of our new PUSH-UP study

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Pat McGann, MD

@PTMcGann

1 year

When we’re building a #Lifespan #SickleCell Center and a 30+ year old adult patient who has received care in many places says this is the best care he’s received since he was a child We CAN/SHOULD provide pedi-level comprehensive care to adults! So proud of our team❤️ ❤️

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Pat McGann, MD

@PTMcGann

4 years

Found this quote by Richard Nixon from 1971 about #SickleCellDisease . It's unacceptable and embarrassing that it is still true today: ”It is sad/shameful that this disease has been neglected throughout history. We cannot rewrite this record of neglect, but we can reverse it”

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Pat McGann, MD

@PTMcGann

2 years

Me RN getting hyped waiting for the peer to peer call where my “peer” is going to try to rationalize to me why a 6 year old with HbSS can’t have liquid hydroxyurea covered by insurance

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Pat McGann, MD

@PTMcGann

1 year

Okay since all the cool kids are doing it, I had to ask #ChatGPT to tell me about #Hydroxyurea as Shakespeare would. I didn’t even have to provide coaching to avoid the negativity!

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Pat McGann, MD

@PTMcGann

3 years

#SickleCellAwarenessMonth day 6 Let’s talk about effects #SickleCelDisease on organs We’ll start with 🧠 ➡️11% of children w/HbSS will have a stroke by age 15 w/o screening/treatment ➡️1 in 4 will have a “silent” stroke by age 6 ➡️ Screening/treatment can prevent this 1/2

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Pat McGann, MD

@PTMcGann

4 years

Be careful with wording in medicine, especially where bias/ racism are at play, like #sicklecelldisease . Avoid labeling patients as “nonresponders” or "no showers" without addressing the important social/psychological barriers that contribute to these. #SickleCellAwarenessMonth

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Pat McGann, MD

@PTMcGann

3 years

Incredible progression with gene therapy for #SickleCell Baseline HbF: 28.3% After 6 months: HbF = 43.3% After 12 months: HbF = 49.7% with 99% F cells!! j/k, it was actually #hydroxyurea Remind me again why this isn't a universal treatment?

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Pat McGann, MD

@PTMcGann

3 years

Non-sickle cell topics include: ➡️Serum iron is a 🗑 test ➡️Cow’s milk is for baby cows ➡️ Don’t ask me to return something by fax. It’s 2021 I promise we’ll fix the @MakeAWish thing, but couldn’t without your help. So thanks for following, on behalf of all SCD Warriors

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Pat McGann, MD

@PTMcGann

2 years

I have never co-signed anything more strongly than this.