Can’t believe I haven’t shared this on Twitter 🙈 I have shared it widely elsewhere because it is so amazingly brilliant 🤩 and you should definitely listen to it 🎧🎶
This wee song is for the fabulous
@Moodwife
& anyone in the
@theGBDOC
&
@IdocN
community!
Excuse the voice - it is only just coming back
Feral Diabetes (& my disclaimer is that I'm not giving advice with the mention of a sandwich! 😁)
Feeling a big bit terrified about what today will bring for me after 3 days of tests confirming worst case scenarios. As long as today doesn’t go worst case everything else is a bonus isn’t it?
And now these 3 remain: Faith, Hope and Love. But the greatest of these is Love ❤️🔥
‘I challenge anyone to identify any other disease where everyone living with it is on entirely different treatment regimes. Not one of us here have the same insulin:carb ratios or the same means of measuring it or the same way of delivering insulin or even on the same insulin.’
So, if you didn’t know already, I did a Thing. Thanks to everyone who has shared it and liked it and commented on it. Massive thanks to the Menopausal Mithers - my fabulous WhatsApp support team, and others from around the world who are ALWAYS there 💙💙
Another glorious location for a Sunday sensor change 🤩 under the watchful gaze of St Patrick with Strangford Lough in the background
#DaysOutWithDiabetes
@Think32_
@EmmandJDeSouza
Born in Belfast, grew up in Lisburn, spent most of my life in Dromore. Worked in Clough, Ballycarrickmaddy & Craigavon. Holiday in Donegal, Kerry, Mayo and Cork. I’ve an Irish passport & a British. My Mum danced in feiseanna. An Irish Presbyterian I’m
#asIrishas
#WeAreIrishtoo
Today me &
@DiaBeingMindset
have been San Diego-ing before the conference starts. We’re jet lagged, fed, sunburnt & refreshed and we’ve met some lovely locals who have looked after us wee Irish wans.
This bit of our trip is entirely funded by us independently of why we’re here
Day One back home has included washing my hair with actual shampoo and conditioner rather than shower gel. I cannot begin to express how amazing my hair feels right now
I have just declined a weight check at the
#diabetes
clinic. Asked why it was necessary when I was weighed & height was checked a few weeks ago when bloods were taken… apparently “we just check everyone’s weight” 🤨 I remain unweighed
#NIdoc
#IREdoc
#GBDoc
30 years ago today I graduated with my first degree from Queen’s University Belfast. My lovely friend Janis sent me a photo of me, my Mum & her in the grounds of QUB afterwards. I love this so much it hurts ❤️🩹
I am a an adult. Last night I was at a bbq. The hostess commented, “I’m so sorry, I forgot you can’t have desserts”. I had already eaten enough. I didn’t want dessert. I didn’t want to take extra insulin. But what I REALLY didn’t want was other people being the boss of me.
#NIdoc
A 🧵
Every social media platform has adverts for CGMs to “improve metabolism”, “aid
#weightloss
”, “manage
#menopause
”. If that was what CGMs ACTUALLY did, people with
#diabetes
would be the the poster girls and boys of the diet and lifestyle industry…
@doctor_oxford
@sajidjavid
@rcgp
He had a F2F appointment with half the GPs in the UK. And he cancelled it? 😳 Cancelled appointments cost money. Send him the bill and use the cash to support our surgeries
Today was truly fanTADstic 💙💙💙 inspiring speakers, hilarious encounters, shared experiences, and many tears. There’s a special magic in spending time with the
#diabetes
community. Couldn’t love this tribe tribe any harder
#TAD2023
#GBDoc
#NIdoc
#DOC
For everyone who fails to value the
#NHS
there are many of us who genuinely wouldn’t be here without it. I couldn’t vote for a government which doesn’t consider access to life saving medications & treatments or those who work to provide care important
#DiabetesAwarenessMonth
People with
#T1D
,
#T3cD
#CFRD
do not make C-Peptide, somatostatin, Ghrelin or Amylin in the way that people without these conditions do. So please, don’t talk to us about your glucose spikes or your hypos. You actually have NO idea what you are talking about.
Dr Mark Evans speaking about hybrid closed loops. He referenced
#AndroidAPS
and how it differs to commercial systems. Also spoke about the value of
#wearenotwaiting
as a front runner & driver for improving commercial systems
@DiabetesNNF
#NIdoc
#IREdoc
Two questions clinicians should ask of
#PLWD
to open the consultation:
1) how are you?
2) what can I do for you?
Appointments should be a collaboration between the two experts in the room: the clinician & the person living with
#diabetes
@EASDnews
#EASD2022
@dedocORG
#dedoc
°
When your family circle shrinks there are always regrets and what ifs… my cousin Glenn died suddenly but others have been given a second chance at life thanks to
#OrganDonation
and that’s keeping my Aunt & his sister from crumbling ❤️🩹
To everyone in
#NIdoc
#IREdoc
#GBDoc
#DeDOC
and the global
#DOC
May 2024 bring insulin that works, sensors that stick and read accurately and the right combination of Time In Range and Time In Happiness for each of us
**THIS** is why so many of us with
#T1D
don’t like being >10mmols. Flashback to 30 years ago and being told crossing the renal threshold means: dialysis, stroke, heart attack, blindness and amputation. Trying to avoid all of THIS is why many of us prefer to run low.
#NIdoc
#GBDoc
What else would you be doing the Sunday before
#EASD2022
but hanging out in Stockholm with your
@dedocORG
#dedoc
° diabuddies in the glorious sunshine with a wee duck? 📸creds
@wojjja
Queues of people wanting to try VR hypo headsets 🤨 I’m tempted to give it a birl to see if I
1) have sweat running down my spine
2) can’t remember how to put a straw in a juice carton
3) attack anyone who tries to help me
4) cry inconsolably
as with real hypos 🧐
#NIdoc
#GBDoc
So today the Endocrine Registrar tried to shame me by calling me a fan-girl of
@parthaskar
she wasn’t prepared for the riposte that he’s saved me £1000 on Libre sensors already this year and what’s not to love about that 😉
Had a review with my Brain Injury Consultant today. I still have right temporal haemaniopia and won’t be driving until reviewed by an optometrist. She is referring me to ENT to assess my hearing. I was told to pace myself and signposted to this charity 🧠 🧡
SameYou’s Jenny Clarke says it’s vital to keep driving forward with campaigns to help revolutionise rehabilitation for survivors, after she and daughter Emilia were awarded MBEs for services to People with Brain Injuries in the New Year’s Honours list:
This is quite possibly my favourite quote EVERRRRR from
@parthaskar
“I don’t believe that people who do DIY (APS) are trying to kill themselves. They’ve already got insulin, why would they build such a complicated system to do that for them?” 🤩🤩🤩
Looking forward to getting to a real world
#diabetes
conference 🤩 I’m on my way to
@ATTDconf
as a
@dedocDE
#dedocvoice
💙 The
@IdocN
wans are sending me their questions for med tech companies and I have promised to write some blogs 🖍
And there were lots of lovely wishes and messages from all around the world 🗺 and swimming 🏊🏻♀️ and gifts 🎁 and cake 🎂
Thank yoooooooouuu all so very much - you all da best 😘💙💙💙
No sleep, a series of hypos, rebound hypers (insulin totally losing against the combined lack of sleep cortisol & adrenaline levels 🙈) and dehydration. Maybe I need more cinnamon in my life…
Happy Wednesday
#DiabetesAwarenessMonth
#WDD2023
(As there’s no ALT for Video: glucose reading of 7.4, gently undulating waves, a wee paper boar, a seagull, a fish, an oyster and a jellyfish)
Christmas breakfast? No.
Christmas dinner? No.
Failed cannula after changing insulin cartridge and tubing and cannula?
Oh yes. Had dinner when glucose was 24.2⬇️⬇️ and then landed nicely.
It is only one day.
#TimeInHappiness
was 100% even if glucose only made it to 65% 🎄🌟
Got my eyes screened this morning - apparently all is good! Just am little bit more confident about retinal screening next week with my optician. Boys, I look like I haven’t slept
@ATTDconf
@dedocORG
#ATTD2023
#dedoc
° voices
#NIdoc
Pictures of you frozen in time, you’re no longer here. "Mum" is used in past tense but I take comfort in before memories,
: coming through the door, putting the world to rights, and so much laughter. I’ll see you again someday. Love you always Mum 🤍
#ADecadeAndCounting
Today has been AMAZING 🤩 I met and chatted and spent time with many of my absolute heroes
#starstruck
AND I’ve had wee messages from the lovely
#NIdoc
crew 💖 my heart is bursting with joy. Thank you
@dedocORG
for bringing me to
#EASD2022
to be a
#dedoc
° voice 💙💙💙
When you’re hypo shopping for apple juice in Sainsbury’s and you are ridiculously excited because they’re selling “insulin pump” covers… 🙈😂
#NIdoc
#GBDoc
#IREdoc
#SCOTdoc
So. You know the way when you’ve got an insulin pump it “cures your diabetes”? And you know the way when you’re looping you are ACTUALLY cured of diabetes? Aye, well that’s only true if your cannula is actually IN you and not just ON you as mine has been for the past 9 hours 🙈🤢
“(In
#T1D
) Going from 70-85% TIR only gives you about a percentage point in improved outcomes”
@drpratikc
🌟🌟🌟70% TIR allows for living better - and that’s what I’m here for 🤗
#NIdoc
#GBDoc
#iredoc
#DOC
Many years ago,
#4
son took the Bear From School to a neighbour’s house and helped strip wallpaper. My neighbour paid him with ham sandwiches. Today
#4
son repaired a woman’s car tyre when he went to a petrol station at lunchtime to buy ham sandwiches. She paid him £20
#LoveMyBoy
Home to normality. Very tired, wee bit emotional, AndroidAPS settings are away to heck. Would I do it all over again? Yes I would. This past week has been phenomenal 💙 thanks to
@dedocDE
for inviting me along to
@ATTDconf
#ATTD2022
The reason me and me diabuddies are not poster people is because the devices being sold have exactly the same impact on your body as a wrist watch has on your ability to control the traffic flow on your journey to work or the delivery of your online shopping.
@IsMiseJoanneM
My son Conchúr wears his Down GAA top when he’s out and about. His girlfriend wears her club top from the GAA team she plays for. They both speak and read Irish. They are communicant members of the Presbyterian Church in Ireland. I am fiercely proud of both of them 💖
Posting this because it’s
A) totally unrepresentative of my glucose levels over the past number of weeks
B) I don’t think this is going to last much longer
and
C) 8 hours of time in range is still 1/3 of the day with blood glucose not being an eejit
Can and should the diabetes online community have a role in formal healthcare? The answer is overwhelmingly YES! (This includes WhatsApp groups, Instagram, TikTok and other platforms)
@OPENDiabetesEU
@ATTDconf
@dedocORG
#dedoc
° voices NOdoc
#IREdoc
#GBDoc
DOC
Heading to
#EASD2023
as a
#dedoc
° voice. I’ll
#PayItForward
with updates from Europe’s largest
#diabetes
conference on
Should non-insulin-treated women with diabetes during pregnancy be offered CGM
Pregnancy, diabetes & metabolic health of mother & child
T1D & pregnancy outcomes