The Migraine Trust @MigraineTrust Twitter profile

Last Seen Profiles

@DavidAllwood_

@WBGirlsHockey

@MaeOllison66595

@Jeksjxzsub

@BousfieldsInc

@MadamWanderBeki

@omgitsharveyj

@VerdadyDatos

@knowsworthy

@NeapolitanPubby

@Takeshi_Okano

@KhiraMusgrave

@louiseludgate

@ParksRecords

@sickboyangelboy

@jgcfairclough

@LimonovEdouard

@shuji24hr

@gavar_bhabhi

@Antonio89661239

@NatsukiSumitani

@JyotiDevSpeaks

@Entscheiderin

@Kevin_ptsvtuber

@bcapproved

@rednosebulldozn

@MaeThesing41862

@franzkendo_

@cr1pt0_d3v

@kacangenax

@Akadem_Campus

@kj__martin

@tractor_owner

@Millsaps_Swim

@xucadeanao

@LouieLeana54473

The Migraine Trust

@MigraineTrust

4 years

This is a good description of what migraine is. Thank you @TfL for raising awareness of #migraine ! #UnderstandingMigraine #Allontheboard

14

199

399

The Migraine Trust

@MigraineTrust

8 months

Migraine being dismissed as ‘just a headache', or being a ‘minor illness’ rather than the complex, severe, and painful long-term health condition that it is, adds to the stigmas experienced by the 1 in 7 living with migraine

Katy Munro

@KatyMunro1

8 months

I’m sorry,⁦⁦ @BBCBreaking ⁩ but we really don’t need you to add to #migraine stigma by referring to it as a ‘minor illness’.As ⁦ @DehennaDavison ⁩ has highlighted,migraine may be a life-changing neurological condition. Please raise awareness,don’t perpetuate myths.

34

49

286

24

100

399

The Migraine Trust

@MigraineTrust

3 years

This was on the board last year but we thought we'd share it again as it's a very good description of #migraine . Thanks to the team at @allontheboard for raising awareness and increasing understanding of migraine!

3

133

361

The Migraine Trust

@MigraineTrust

5 years

Migraine is a brain disease and far more complex and debilitating than many people realise. This graphic explains the different stages and symptoms, and the reality of what people with #migraine have to live with. #UnderstandingMigraine

18

211

340

The Migraine Trust

@MigraineTrust

2 years

A #migraine attack is not just a headache. Check out the many stages and symptoms of a migraine attack below 👇

11

109

305

The Migraine Trust

@MigraineTrust

8 months

Thanks to @allontheboard for helping raise awareness of migraine not being ‘just a headache’ 👇

All On The Board

@allontheboard

8 months

It’s Migraine Awareness Week. There are differences between migraines and headaches, but they can both be so debilitating to the person experiencing them. #MigraineAwarenessWeek2023 #MigraineAwarenessWeek #Migraine #Headache

25

330

969

7

87

313

The Migraine Trust

@MigraineTrust

1 year

"The key is to not suffer in silence." Great to see @DrAmirKhanGP talk about why #migraine is more common in women, and how migraine can be treated on @lorraine today. It is crucial that people with migraine are taken seriously and can access effective treatments.

Lorraine

@lorraine

1 year

Women are 3 times more likely to suffer from migraines than men. @DrAmirKhanGP explains why this is and what the best treatments are. 🩺 #Lorraine #Migraines

11

27

198

8

29

209

The Migraine Trust

@MigraineTrust

6 years

The article about the #MigrainePose by @ELLEMagazine is as ridiculous as it is offensive.

29

95

177

The Migraine Trust

@MigraineTrust

4 years

Migraine is far more complex and debilitating than many people realise. This graphic explains the different stages and symptoms, and the reality of what people with #migraine have to live with. #UnderstandingMigraine

10

96

192

The Migraine Trust

@MigraineTrust

4 years

While there are many different #migraine symptoms, some are more common than others. Our recent survey of 1,800 people with migraine found these to be the most common. Do you get any of them?

47

77

181

The Migraine Trust

@MigraineTrust

4 years

#ThrowbackThursday to this great description of what migraine is. Thank you @TfL for raising awareness of #migraine ! #UnderstandingMigraine #Allontheboard

4

69

180

The Migraine Trust

@MigraineTrust

4 years

- Breaking News- We warmly welcome today’s announcement by @NICEComms that fremanezumab (Ajovy) has been approved for use within the NHS in England and Wales for the treatment of chronic migraine. (1/2)

18

51

173

The Migraine Trust

@MigraineTrust

2 years

The biggest misconception about #migraine is that it’s only a headache. Symptoms actually include vomiting, vision loss or changes, dizziness, weakness and more. Not everyone gets a headache, but for those that do the pain can be severe. #MindYouListen #BrainAwarenessWeek

9

76

179

The Migraine Trust

@MigraineTrust

1 year

Migraine has been dismissed for too long as “just a headache”, despite its devastating impact on the one in seven people in the UK who are living with the condition. In one word say - How does #migraine make you feel?

119

25

182

The Migraine Trust

@MigraineTrust

8 months

Sadly, we know that @DehennaDavison is not alone in having migraine impact her working life. Our research shows that 29% of people living with migraine have had to move from full-time to part-time work, and 33% have had to leave their job altogether.

Dehenna Davison MP

@DehennaDavison

8 months

Serving as Levelling Up Minister has been an immense privilege, but sadly I need to step back. Here’s why 👇🏻

742

118

869

26

38

183

The Migraine Trust

@MigraineTrust

3 years

It’s #MigraineAwarenessWeek2021 and we’re publishing a report tomorrow that will reveal a broken UK migraine healthcare system. It'll highlight issues with diagnosis and access to specialists and treatment. What's been your experience of migraine healthcare? #BetterMigraineCare

79

58

165

The Migraine Trust

@MigraineTrust

1 year

Migraine is not just a headache. In fact, some #migraine attacks involve no head pain at all. Less common symptoms include vertigo, unsteadiness when walking, and weakness down one side of the body. Learn more about the different types of migraine 👇

9

59

164

The Migraine Trust

@MigraineTrust

1 year

Migraine is not just a headache. It is not just an excuse. It is a complex brain disease that many of us are genetically predisposed to. It can be utterly debilitating. That's why it's vital that everyone with #migraine can access effective treatments & care. #BrainAwarenessWeek

7

59

154

The Migraine Trust

@MigraineTrust

4 years

Migraine can have a very serious impact on working life but employers can help to reduce that impact by making small changes. Here are the most common reasonable adjustments that have helped people work with #migraine . #MAW2020

6

78

141

The Migraine Trust

@MigraineTrust

3 years

A big challenge for people with #migraine is its invisibility. Nobody sees the pain, no matter how excruciating and debilitating it is. Serena Williams, who gets migraine, has spoken about trying to get people to understand what it’s like to get migraine.

Serena Williams reveals battle with migraines: 'I got used to playing through the pain'

Tennis star says condition worsened during quarantine

www.independent.co.uk

5

50

133

The Migraine Trust

@MigraineTrust

3 years

Migraine attacks have stages, starting with the premonitory. This is physical and mental changes such as tiredness, craving sweet foods, mood changes, feeling thirsty and a stiff neck, that last 1-24 hours. What are the symptoms of the premonitory stage of your #migraine attacks?

31

45

129

The Migraine Trust

@MigraineTrust

8 months

🧵Today as part of #MigraineAwarenessWeek , we have released a new report, 'Heading in the wrong direction: Challenges in migraine care and why people with migraine deserve better'. It reveals that people with migraine are struggling to access appropriate diagnoses and treatments

10

73

149

The Migraine Trust

@MigraineTrust

2 years

Almost a quarter of women live with #migraine ♀️ This month, we want to raise awareness of the huge impact migraine can have on their lives, from influencing decisions around contraception, pregnancy and menopause to affecting mental health. #womenshealth #migraineawareness

6

65

128

The Migraine Trust

@MigraineTrust

4 years

Migraine is far more complex and debilitating than many people realise. This graphic explains the different stages and symptoms, and the reality of what people with #migraine have to live with. #UnderstandingMigraine

7

62

126

The Migraine Trust

@MigraineTrust

3 years

A report that we've published for #MigraineAwarenessWeek2021 reveals a broken UK migraine healthcare system. Our Chief Executive @RobMusic_ writes about what our research found and our recommendations for addressing these problems. #BetterMigraineCare

Change is urgently needed - The Migraine Trust

By: Rob Music, Chief Executive, The Migraine Trust

migrainetrust.org

5

62

121

The Migraine Trust

@MigraineTrust

4 years

Migraine is a complex neurological disease that affects many people, and which has a serious and very significant impact on their lives. Here’s an article that explains why it’s crucial that more people understand this.

8

52

109

The Migraine Trust

@MigraineTrust

7 months

Living with migraine often means making difficult decisions in order to prioritise our health. Postponing plans or feeling as though we're letting others down can lead us to feeling guilty for putting our health first.

3

25

122

The Migraine Trust

@MigraineTrust

1 year

Did you know that a #migraine attack has four or five stages depending on the type of migraine you have? Migraine attacks are not just a headache - in fact, not all attacks come with head pain - and can involve a wide variety of symptoms. Learn more👇

1

38

110

The Migraine Trust

@MigraineTrust

4 years

The whole #migraine community needs to speak with one voice in calling on NICE to approve #CGRP drugs free for use on the NHS. Please get involved with the Ajovy (fremanezumab) public consultation here:

13

70

108

The Migraine Trust

@MigraineTrust

4 years

We were at today's NICE appeal meeting for Aimovig (Erenumab). We were there to represent migraine patients and support @UK_headache & @theABN_Info 's appeal. The migraine community is united in calling for it to be made available throughout the NHS for chronic migraine patients.

7

22

102

The Migraine Trust

@MigraineTrust

2 years

Little Miss and Mr Men but make it symptoms and types of migraine. What Little Miss or Mr Men do you think should be added?

10

23

103

The Migraine Trust

@MigraineTrust

4 years

While there are many different #migraine symptoms, some are more common than others. Our recent survey of 1,800 people with migraine found these to be the most common.

10

39

101

The Migraine Trust

@MigraineTrust

7 months

This #WorldMentalHealthDay we want to highlight that migraine is not just a headache, but a painful, long-term condition that can impact on all aspects of a person’s life, from school and work to relationships. It can take a huge toll on mental health, but we're here to help.

1

36

111

The Migraine Trust

@MigraineTrust

4 years

Despite the fact that one in seven people get #migraine , it is still a badly misunderstood condition. Take a few minutes on #WorldBrainDay to find out about this complex neurological disorder that affects so many people. Learn more about migraine here

1

72

95

The Migraine Trust

@MigraineTrust

8 months

Thank you for sharing your story and helping to raise awareness of what it means to live with migraine, Dehenna

Dehenna Davison MP

@DehennaDavison

8 months

On the way to the ITV studios to speak to @thismorning about chronic migraine, the impact it has, and why we urgently need to raise awareness. #MigraineAwarenessWeek

54

18

333

1

18

106

The Migraine Trust

@MigraineTrust

1 year

Almost a quarter of women live with #migraine ♀️ For #InternationalWomensDay , we want to raise awareness of the huge impact migraine can have on their lives, from influencing decisions around contraception, pregnancy and menopause to affecting mental health. #IWD2023

2

39

106

The Migraine Trust

@MigraineTrust

7 months

We are pleased to announce that we have been awarded funding from the Scottish Government This will enable us to extend the reach of our initial project to train more pharmacists about migraine & will increase the support that can be offered to people living with migraine.

1

7

99

The Migraine Trust

@MigraineTrust

2 years

This #WorldMentalHealthDay we want to highlight that #migraine is not just a headache, but a painful, long-term condition that can impact on all aspects of a person’s life, from school and work to relationships. It can take a huge toll on mental health, but we're here to help.

4

46

99

The Migraine Trust

@MigraineTrust

4 years

Migraine often start earlier than people realise and continue after the pain stage. Here are the stages of a #migraine attack.

2

38

86

The Migraine Trust

@MigraineTrust

3 years

We are delighted to congratulate our trustee Professor Peter Goadsby for winning this year’s Brain Prize for his work on the discovery of a key mechanism that causes #migraine which has led to ground-breaking new migraine treatments. @BrainPrize

3

14

85

The Migraine Trust

@MigraineTrust

3 years

Too many people with migraine end up in A&E in pain and desperation. This is a huge failing of the migraine healthcare system in the UK and why we need #BetterMigraineCare . Have you ever gone to A&E because of your migraine? #MigraineAwarenessWeek2021

38

33

90

The Migraine Trust

@MigraineTrust

5 years

We’re very disappointed about NICE's decision not to recommend erenumab for preventing #migraine . It's terrible that people with migraine have had to wait so long for their own treatment. Now, after proving effective, it's not accessible to those who can’t afford to purchase it.

20

53

89

The Migraine Trust

@MigraineTrust

1 year

Migraine is not just a headache. Migraine attacks can involve a wide array of symptoms from dizziness and vomiting to vision changes and confusion. There are multiple types of #migraine and not every attack involves head pain. Learn about them here 👇

2

29

86

The Migraine Trust

@MigraineTrust

8 months

We welcome today’s announcement NICE that it has approved Rimegepant for the acute treatment of migraine on the NHS in England. Rimegepant is now approved for the acute and preventative treatment of migraine in England. Read the announcement here:

2

19

93

The Migraine Trust

@MigraineTrust

5 years

Many people think that a #migraine ends when the pain stage is over, but that isn’t the case. There is another stage called ‘postdrome’. You can find out more about it and the migraine stages here: #UnderstandingMigraine

15

28

83

The Migraine Trust

@MigraineTrust

6 years

People with migraine are struggling to work with employers that do not understand their condition and not making reasonable adjustments for them. This is exacerbating their condition, with many having to leave their job as a result. #MigraineAwarenessWeek #MindfulofMigraine

4

42

78

The Migraine Trust

@MigraineTrust

8 months

“Not only are patients struggling, but poor management of migraine is putting unnecessary additional strain on an already struggling NHS." #MigraineAwarenessWeek

Migraine must be taken seriously as treatment waiting times rise – charity

Report by the Migraine Trust calls for greater awareness of condition and treatments

www.independent.co.uk

2

35

89

The Migraine Trust

@MigraineTrust

4 years

Many people think that a #migraine ends when the pain stage is over, but that isn’t the case. There is another stage called ‘postdrome’. You can find out more about it and the migraine stages here: #UnderstandingMigraine

8

23

77

The Migraine Trust

@MigraineTrust

6 months

Thrilled to be welcoming MPs and Lords to our drop in event @UKParliament this evening. Especially to our hosts @WayneDavid_MP & @carolinenokes . As Caroline says “this needs to be the start of taking migraine seriously because it is far more than just a headache”

1

13

88

The Migraine Trust

@MigraineTrust

4 years

We're delighted to launch our new strategy! We want to reach more people affected by migraine, help more and improve more people’s lives. We hope you like it. If you’d like to say nice things about it then please go ahead using the hashtag #MigraineNation !

Our work - The Migraine Trust

Our strategic goals and organisational values

migrainetrust.org

4

25

81

The Migraine Trust

@MigraineTrust

11 months

‘If you think about just how common migraine is and the impact it has, and how poorly understood it is, we very much feel that migraine must get to where menopause is now’. @robmusic_ tells @BBCWales why more must be done to understand migraine and support those living with it.

3

13

87

The Migraine Trust

@MigraineTrust

3 years

Do you ever feel ‘hungover’ after your #migraine headache disappears? It’s common to feel drained or fatigued for hours to days after the main attack stage eases. Known as the postdrome, this is the final stage of a #migraine attack. Learn more 👉

8

9

76

The Migraine Trust

@MigraineTrust

2 years

A #migraine attack is much more than a headache. Attacks have 4 or 5 stages depending on migraine type. A third of people with migraine experience the aura stage, which involves sensory disturbances like changes to vision, speech or hearing. Learn more:

7

35

79

The Migraine Trust

@MigraineTrust

1 year

Migraine is far more complex and debilitating than many people realise. This graphic explains the different stages and symptoms, and the reality of what people with #migraine have to live with. #UnderstandingMigraine

0

42

83

The Migraine Trust

@MigraineTrust

9 years

What might the future hold for #migraine ? Find out on p18-19

0

8

53

The Migraine Trust

@MigraineTrust

3 years

Serena Williams' migraine worsened at the onset of the pandemic with her migraine attacks becoming debilitating. She said she realised that stress and overworking at her computer was contributing to this. Has your #migraine changed over the last year?

Serena Williams Learned How to Manage Her 'Debilitating' Migraine: 'It Can Be Really Awful'

Serena Williams had to learn how to manage her "debilitating" migraine attacks

people.com

16

17

82

The Migraine Trust

@MigraineTrust

4 years

A key issue for people affected by migraine is the lack of awareness and understanding of migraine, which can be from their GPs, line manager, or ‘the public’ generally. Join the #MigraineNation conversation and tell us what you think the public most needs to know about migraine?

25

21

76

The Migraine Trust

@MigraineTrust

4 years

We have some wonderful news today! @NICEComms has approved calcitonin gene-related peptide (CGRP) preventive medication galcanezumab (Emgality) for use within the NHS in England and Wales for the treatment of both chronic and episodic #migraine .

7

25

81

The Migraine Trust

@MigraineTrust

4 years

Congratulations to Ella Bryant, who gets chronic migraine, for running 120km over the 31 days of October and raised an amazing £1,193 to help people with #migraine ! Thank you so much for your support, Ella!

2

1

79

The Migraine Trust

@MigraineTrust

2 years

Do you yawn a lot just before a #migraine attack? This may actually be a symptom of the first stage of migraine, which can also lead to food cravings, tiredness, mood changes and more. Learn more 👇

Prodrome: Spotting the first signs of a migraine attack - The Migraine Trust

The very first part of a migraine attack is known as the premonitory stage or prodrome. It can involve yawning, tiredness or mood changes.

migrainetrust.org

14

24

81

The Migraine Trust

@MigraineTrust

2 years

We want to say a huge thank you & congrats to Xander! Xander is 11 & lives with hemiplegic migraine His attacks leave him with paralysis round his mouth & tongue, excruciating & unmanageable pain & vomiting for hours Despite all this he ran 60 miles in 30 days and raised £708!

4

3

75

The Migraine Trust

@MigraineTrust

3 years

This #WorldMentalHealthDay we want to highlight that #migraine is not just a headache, but a painful, long-term condition that can impact on all aspects of a person’s life, from school and work to relationships. It can take a huge toll on mental health, but we're here to help.

1

28

75

The Migraine Trust

@MigraineTrust

8 months

Thank you @xandvt for helping to raise awareness for the 10 million people living with migraine on @BBCMorningLive . For information and support on all aspects of migraine head to our website⤵️

Home - The Migraine Trust

The Migraine Trust is dedicated to helping people affected by migraine. We are the only UK migraine charity providing information and support, campaigning for awareness and change, and funding and...

migrainetrust.org

BBC Morning Live

@BBCMorningLive

8 months

🩺 In the UK, over 10 million people suffer from migraines. New drugs that could help reduce the number of attacks people have may soon be available on the NHS. @xandvt tells us the triggers we need to avoid and if standing in hot water can REALLY relieve your symptoms.

3

7

31

1

15

78

The Migraine Trust

@MigraineTrust

2 years

What is the main thing you wish others understood about #migraine ?

81

13

76

The Migraine Trust

@MigraineTrust

6 months

A new National Headache Pathway has been launched in Scotland. Developed to help improve the care that patients receive, it aims to support health professionals to better diagnose & manage headache disorders. You can read more about it here⤵️

A new pathway for migraine care in Scotland - The Migraine Trust

By: Kate Sanger, Head of Policy and Communications

migrainetrust.org

3

14

78

The Migraine Trust

@MigraineTrust

8 months

Today there will be 190,000 migraine attacks in the UK. This #MigraineAwarenessWeek help us make sure no one with migraine has to cope alone. Support us today⤵️

0

32

77

The Migraine Trust

@MigraineTrust

6 years

We are pleased to see the latest ongoing research announced on @BBCNews today indicating treatment with erenumab (AMG 334) cuts #migraine days by half. Migraine is a chronic condition and this development could prove life-changing for many who live with it

Migraine therapy that cut attacks hailed as 'huge deal'

Half the people on one study halved the number of migraines they had each month.

www.bbc.co.uk

2

38

66

The Migraine Trust

@MigraineTrust

4 years

People affected by migraine tell us the impact #migraine has on their lives is considerable, touching on education, work, home and family life (including the decision to have children), and mental health and wellbeing. To what extent has it impacted your life? #MigraineNation

16

33

69

The Migraine Trust

@MigraineTrust

6 years

"Once the pain fades, it's like I ran a marathon. My body is exhausted." Most people with #migraine can relate to that! Here's an article about what it is like to get migraine.

17 Things Only People That Suffer From Migraines Understand

If you suffer from migraines, you'll enjoy the humor in this.

www.theodysseyonline.com

1

35

64

The Migraine Trust

@MigraineTrust

4 years

It has long been known that people with migraine experience increased, or extreme, sensitivity to light and sound, and a new study from the Universities of Birmingham and Lancaster could finally explain why.

The cause of migraines could be in sight (quite literally)

www.sciencefocus.com

2

26

67

The Migraine Trust

@MigraineTrust

3 years

Good news about erenumab. Last year NICE declined to approve it as a migraine treatment in NHS England. Following an appeal, the NICE Appraisal Committee recommends it be used to prevent migraine. You can read about what it means for migraine patients here

3

19

71

The Migraine Trust

@MigraineTrust

7 months

🧵Thank you to Lord Londesborough for highlighting the impact migraine can have on the 10 million people living with it in the UK. If you missed it, we have some highlights from it

House of Lords

@UKHouseofLords

7 months

@LordKirkhope The number of people who suffer from migraines on the agenda next in #LordsQs as Lord Londesborough presses government on the impact on the workforce. 📺 Watch online from 2.55pm at the link in our bio 3/4 🔽

1

3

18

1

13

74

The Migraine Trust

@MigraineTrust

3 years

Did you know that Lisa Kudrow was a researcher and coauthored a study in the early 90s on the connection between cluster headaches, #migraine , and left-handedness? It found none. Lisa herself experienced migraine attacks as a child and her father lives with cluster headache.

2

7

66

The Migraine Trust

@MigraineTrust

11 months

Have you found the recent change in weather has had an impact on your #migraine attacks? Various aspects of your environment can trigger migraine. From bright sunlight to changes in atmospheric pressure, people living with migraine may have noticed an increase in their attacks

7

12

70

The Migraine Trust

@MigraineTrust

8 months

It’s #MigraineAwarenessWeek and we want to raise awareness of what it means to be living with migraine in the UK. Our CEO, @robmusic_ talks about why the news of @DehennaDavison resigning as MP due to migraine is so important

Chronic migraine forces MP to quit - The Migraine Trust

By: Rob Music, Chief Executive, The Migraine Trust

migrainetrust.org

2

30

68

The Migraine Trust

@MigraineTrust

4 years

“We can teach everyone that migraine is a brain disorder, with functional brain imaging this is clear. We can describe the very significant burden of the problem.” Read the latest blog from our trustee Professor Peter Goadsby.

1

20

69

The Migraine Trust

@MigraineTrust

6 years

The European Medicines Agency has granted a licence for the use of Aimovig (erenumab) for the prevention of #migraine in adults who experience at least four migraine days per month. This is wonderful as it has the potential to help many people.

2

30

63

The Migraine Trust

@MigraineTrust

1 year

Migraine is closely linked to #womenshealth 💊Women with #migraine with aura can't use the combined contraceptive pill 🤰Women may not be able to take their migraine medication during pregnancy ♀️ Many women find their migraine worsens with perimenopause #IWD2023

0

17

65

The Migraine Trust

@MigraineTrust

4 years

As anyone with migraine or who works to help people with it knows, there's little awareness and understanding of it. That’s why we've launched a blog. It’s a hub for people with an interest in #migraine to read about the latest thinking on migraine/its management/the community.

1

25

64

The Migraine Trust

@MigraineTrust

3 years

Migraine is far more complex and debilitating than many people realise. This graphic explains the different stages and symptoms, and the reality of what people with #migraine have to live with. #UnderstandingMigraine

0

20

61

The Migraine Trust

@MigraineTrust

8 months

Kicking off day 2 of #MigraineAwarenessWeek our Chief Executive @robmusic_ and our amazing volunteer Megan are on @BBCBreakfast talking about what it means to live with migraine "It hits you like a ton of bricks"

2

17

68

The Migraine Trust

@MigraineTrust

10 months

Our research revealed the top 5 triggers for migraine in work are lighting, stress, screens, noise, & long hours. Implementing reasonable adjustments such as softer lighting & flexible working hours businesses can support workers with migraine while protecting their bottom line.

5

17

67

The Migraine Trust

@MigraineTrust

11 months

Thanks @BBCWalesNews for sharing this important information about migraine today. If you need any help or support we are here for you

Home - The Migraine Trust

The Migraine Trust is dedicated to helping people affected by migraine. We are the only UK migraine charity providing information and support, campaigning for awareness and change, and funding and...

migrainetrust.org

BBC Wales News

@BBCWalesNews

11 months

You have probably had headaches before, but have you ever had a migraine? Migraines are painful and can make life very difficult, but they are different to headaches So what are the symptoms?

4

7

21

3

21

63

The Migraine Trust

@MigraineTrust

3 years

From not being understood by managers and colleagues to needing to take regular sick days, migraine can take a huge toll on a person's work life. Many people face disciplinary action due to their migraine, which is incredibly unfair. #MigraineAwarenessWeek2021 #BetterMigraineCare

4

23

59

The Migraine Trust

@MigraineTrust

5 years

NICE has rejected Aimovig as a #migraine treatment in NHS England. This is a very bad day for people with migraine. We’re now concerned about health inequalities and a postcode lottery. You can find out more about the decision and what it means here.

13

55

58

The Migraine Trust

@MigraineTrust

4 years

People with migraine regularly identify work as an area of life that the condition impacts. What do you think most needs to change to support people with migraine to stay and thrive at work? #MigraineNation

26

19

58

The Migraine Trust

@MigraineTrust

3 years

Our trustee Prof Peter Goadsby won The Brain Prize and Scientific Breakthrough Award for his #migraine research that led to a breakthrough in treatment. He talks about his life's work of helping people with migraine on @BBCRadio4 The Life Scientific at 9am

3

12

62

The Migraine Trust

@MigraineTrust

6 years

Deborah Sloan, who is am member of our volunteer forum, has written a powerful article for #MigraineAwarenessWeek on the stigma that people with migraine have to put up with.

'The agony of constant migraines is punishment enough. People like me shouldn't have to cope with...

Millions of migraineurs are searching for the holy grail treatment that will release them from the daily dread of an attack. This Migraine Awareness Week, let’s give them the support they deserve

www.independent.co.uk

0

34

58

The Migraine Trust

@MigraineTrust

3 years

Millions of women around the world with have a #migraine attack today, International Women’s Day. #IWD2021 #UnderstandingMigraine

4

20

56

The Migraine Trust

@MigraineTrust

7 months

🧵"My migraine symptoms can sometimes resemble a stroke and I’ve had people think I’m having a stroke before. They come out of nowhere and don’t follow a pattern. My hands can become paralysed or the whole right-hand side of my body."

3

11

62

The Migraine Trust

@MigraineTrust

4 years

Thank you for sharing what you think needs to change to support people with migraine to stay and thrive at work. Here is what people tell us their employers have done to help them work with migraine. #MigraineNation

1

31

57

The Migraine Trust

@MigraineTrust

1 year

We know that people living with #migraine can wait years to be diagnosed and often face a lack of access to specialist care and new treatments. In one word, say - How do you feel about the care you receive for your migraine?

86

13

61

The Migraine Trust

@MigraineTrust

4 years

We're very pleased that @NICEcomms has decided to review its decision to reject erenumab (Aimovig). We're awaiting word about how long the review will take/will involve and will post an update as soon as we know. You can read more about the decision here.

2

20

60

The Migraine Trust

@MigraineTrust

2 years

Today is #WorldBrainDay2022 , a day to remember the importance of a healthy brain for our mental, social and physical wellbeing. What do you think needs to change to ensure #BrainHealthForAll people with #migraine ?🧠

7

23

58

The Migraine Trust

@MigraineTrust

1 year

Migraine is a neurological condition that can cause severe pain, vomiting, visual disturbances & more. It is not just a headache. If #migraine is affecting your mental health, you're not alone. You can talk to us on 0808 802 0066 or via our website. #MentalHealthAwarenessWeek

0

24

58

The Migraine Trust

@MigraineTrust

5 years

People with migraine are often particularly productive as they appreciate the times when they aren’t in pain and make the most of them. As Chloe says, “you have to do as much as you can on your good days as you never know what the next day will bring".

0

18

52

The Migraine Trust

@MigraineTrust

4 years

Migraine is a complex neurological disease. It can impact life in many ways. Dr Sophie Mitchell, Clinical Psychologist at the National Hospital for Neurology & Neurosurgery, writes about how she helps people with #migraine live with the condition.

2

16

57

The Migraine Trust

@MigraineTrust

7 years

The migrainous brain doesn't like change, try to build some routine into daily life. Its impossible to avoid all migraine triggers but avoiding some may help. Explore dietary & environmental triggers such as delayed meals, dehydration or bright or flickering lights #selfcareweek

6

21

50

The Migraine Trust

@MigraineTrust

5 years

We’re concerned about how migraine isolates. A survey found that 90% of people with migraine say it leaves them isolated. 75% avoid agreeing to attend social events because they're concerned that they'll get migraine and be unable to attend. This needs to change. #MeetUp4Migraine

0

14

48

The Migraine Trust

@MigraineTrust

7 months

We were gutted to see the impact migraine had on @tasha_f_stones after seeing her become unwell in the #GBBO tent. We can't wait to see you back If like Tasha & you are impacted by migraine, please don't hesitate to reach out to us at 08088020066 or here:

Contact us - The Migraine Trust

Use the form below to send us a message

migrainetrust.org

British Bake Off

@BritishBakeOff

7 months

Health first. Always. We can confirm that Tasha has had to withdraw from Chocolate Week on Bake Off for medical reasons and will return in next week’s show. We can’t wait to see her back in the Tent and feeling much better. ❤️ #GBBO

56

49

3K

2

6

58