The Helmsley Charitable Trust is committed to helping people live better lives today and creating stronger, healthier futures for individuals and communities.
The best way to thank the doctors, nurses, and front-line workers who have labored selflessly to keep people safe during the healthcare crisis of our lifetime?
Get
#vaccinated
against
#COVID19
.
#PowerofRural
Last week, we hosted a roundtable discussion kicking off the
@BowelUltrasound
efforts to expand the use of intestinal ultrasound as a standard monitoring tool in US
#IBD
centers.
We’re so excited to support
#ADA2019
and for the amazing lineup over the next few days. And we can’t wait for our grantee partners to share the results of their hard work - we couldn’t accomplish our goal of improving the lives of people with
#T1D
without them!
Our Type 1 Diabetes Program is driven to helping the type 1 diabetes community live safer, better, and more fulfilling lives today while funding advancements in research and technology for a better tomorrow.
#WorldDiabetesDay
Trustee David Panzirer on the new
@JDRF
-
@BeyondType1
Alliance: “This is a huge win for people with T1D as it will reduce duplicate efforts and allow both organizations to grow stronger, be more efficient, and more effectively serve the T1D community."
We will light The Helmsley Building purple tonight to honor
#WorldIBDDay
. People with
#IBD
deserve better treatments, technologies, and a cure. Helmsley is dedicated to making that a reality by supporting institutions and organizations that are building a better future for people
Helmsley’s
#Type1Diabetes
Program is the largest private funder dedicated to helping the
#T1D
community live safer, better, and more fulfilling lives today while funding advancements in research and technology for a better tomorrow.
#WorldDiabetesDay
Did you know that an estimated 3.1 million adults in the U.S. have inflammatory bowel disease? Today on
#WorldIBDDay2022
, and every day, Helmsley is dedicated to raising awareness about IBD and Crohn's disease, and supporting cutting-edge research to find a cure.
A new Helmsley-funded clinical trial led by
@IlievLab
will test anti-fungal therapies in
#CrohnsDisease
for the first time, says
@RandyLongman
Director
@WCM_IBD
. Research suggests some
#IBD
patients harbor strains of fungi that could damage the gut:
The
@BowelUltrasound
group trains gastroenterologists on the use of intestinal ultrasound, a minimally invasive
#IBD
monitoring tool. Helmsley is committed to supporting groups like IBUS that push for improved care for people with
#IBD
With partners like
@SinaiHealth
and
@getgutsycanada
, our Crohn’s Disease Program is committed to supporting research that increases the understanding of Crohn’s disease and, ultimately, the ability to prevent or cure it.
#CCAwarenessWeek
As part of our Type 1 Diabetes Exercise Initiative (T1-DEXI), we recently awarded more than $12 million to seven projects aimed at helping people with T1D incorporate exercise into their daily lives.
#diabetes
#TID
#type1diabetes
The STAR Consortium, a collaboration comprising
@ClevelandClinic
@MayoClinic
&
@alimentiv
, is making great strides developing novel biomarkers for stricturing Crohn’s disease, which could lead to new anti-fibrotic therapies. Read more here:
New $10 million initiative formed by Helmsley,
@ParkerICI
, and
@JDRF
to study insulin-dependent
#diabetes
in cancer patients after cancer immunotherapy.
Findings may shed light on how
#T1D
develops and potential T1D treatments:
The Type 1 Diabetes community has lost a champion.
We join
@BeyondType1
in mourning the loss of their visionary leader, Thom Scher. May his memory and legacy inspire us all.
When
@UmaMahadevanIBD
initiated the Pregnancy in Inflammatory Bowel Disease and Neonatal Outcomes (PIANO) registry in 2007, the safety of
#biologics
in
#pregnancy
was unknown and the default was to stop medications. We're proud to support
@UCSFMedicine
in this important work.
2021 marks the 100th anniversary of the discovery of insulin.
This year and every year, we’re proud of grantees like
@LifeforaChild
, with whom we’ve enabled the expansion of diabetes care, including insulin, to young people in 41 countries.
#insulin100
#T1D
A new Helmsley-supported
@UofGlasgow
trial aims to improve patient outcomes in
#CrohnsDisease
by evaluating the combination of biologic therapies with a dietary intervention.
Point-of-care intestinal ultrasound is emerging as a low-cost, non-invasive, convenient tool to better monitor Crohn’s disease. The ability to discuss findings in real-time can be invaluable to help people with Crohn’s disease understand the condition, build trust with providers,
At
@DiabetesMine
’s
#DData19
, Helmsley's
#T1D
Program will share Helmsley’s vision for a “Geek Squad” for
#CGM
. This virtual specialty clinic now being piloted is already making it easier to access and stay on CGM.
People who manage chronic illnesses like
#Type1Diabetes
need continuous access to medications and supplies during
#humanitarian
crises — such as floods, earthquakes, and violent political conflicts — but are often forgotten in humanitarian response efforts.
There are many unanswered questions about the biology underlying
#CrohnsDisease
. For instance, what factors might lead to severe complications? Why do different people respond so differently to treatments?
Preliminary evidence suggests tighter monitoring with intestinal ultrasound may improve outcomes for people with
#IBD
, but few
#gastroenterologists
in the US are trained to perform and utilize point-of-care intestinal ultrasound for non-invasive monitoring of IBD patients.
Our new $10M grant will support
#GDC
as it works towards a world where at least 80% of people with
#diabetes
have good glycemic control and everyone with
#T1D
has access to
#insulin
by 2030. These targets are a crucial step towards
#HealthForAll
:
We partnered with
@CUHKMedicine
's
@Siew_C_Ng
to create a map for visualizing the evolution of
#IBD
around the world. The atlas will help new researchers better understand what is known and unknown about the epidemiology of the disease.
#CCAwarenessWeek
A recent publication from the
#Fr1da
study, supported by Helmsley,
@HelmholtzMunich
,
@JDRF
, and other partners, found that children diagnosed in early stages of
#Type1Diabetes
had milder clinical diabetes onset. This analysis adds evidence to support general population screening
CGMs improve outcomes in diabetes, but geography hinders access to them.
We funded a pilot study conducted by Jaeb to explore the possibility of remote onboarding and support of
#CGM
. All 34 participants improved their glucose levels and quality of life:
Dr. Roy Beck from grantee Jaeb Center for Health Research on why HbA1c shouldn’t serve as a sole outcome: “It is a measure of hyperglycemia and provides no indication of hypoglycemia or glycemic variability.” CGM is a crucial tool for all
#T1D
care to go beyond A1c!
Our new $5M grant to the Jaeb Center for Health Research Foundation will support the study of a virtual clinic model with a goal to enable more people w/
#diabetes
to access specialized diabetes and
#mentalhealth
care,
#CGMs
& insulin dosing support:
In most low-and middle-income countries (LMICs), people pay out of pocket for the continuous glucose monitoring devices (CGMs) that can transform
#diabetes
care by enabling 24-hour monitoring of blood glucose levels.
A diagnosis of
#T1D
brings with it a lifelong challenge of managing the disease.
We're funding a study to investigate whether a probiotic can help protect children with elevated genetic risk from getting T1D:
We awarded
@UMassMedical
a $1.7 million grant to research and create a nutritional program tailored to Crohn’s disease patients in Puerto Rico that will provide potential dietary solutions to address the increasing prevalence of the disease on the island:
Dedicating our 1,000th tweet to our amazing grantees and partners improving lives in the U.S. and around the world.
Thank you for following us as we spread the word about their meaningful work!
100 years after the discovery of
#insulin
, quality diabetes care and supplies remain beyond the reach of many who need them.
At Helmsley, we’re working hard to ensure that no one living with
#type1diabetes
gets left behind.
#WorldDiabetesDay
Helmsley is the largest private philanthropy dedicated to addressing the needs of people living with
#CrohnsDisease
, a complex, chronic inflammatory bowel disease (
#IBD
) that impacts millions globally.
#IBDvisible
Learn about our
#CrohnsDisease
Program:
Data from the
@T1Dexi
study on the impact of
#exercise
on glucose in people with
#Type1Diabetes
are now accessible through
@VivliCenter
.
Helmsley is seeking researchers and clinicians to use the data to improve real-world recommendations. Read more:
Last week, we hosted a roundtable discussion kicking off the
@BowelUltrasound
efforts to expand the use of intestinal ultrasound as a standard monitoring tool in US
#IBD
centers.
José Ordovás–Montañés, PhD, from Boston Children’s Hospital, is a member of the Gut Cell Atlas Crohn’s Disease Consortium, supported by Helmsley, which aims to generate a cellular atlas for Crohn’s disease by cataloging the many cell types in the small and large intestines with
We’ve joined orgs across the world in a simple goal: tap in to the power of the global diabetes community to save lives.
Together, we can lead the way in stopping the spread of
#COVID19
.
Learn about the
#BigLittleChanges
you can make to save lives at
We granted $26.4M towards ultrasounds and sonography training because, as Helmsley Trustee Walter Panzirer said, “our hospitals [...] need to stay current with rapidly advancing technology to continue to provide top-notch healthcare close to home.”
Glad that
@NEStatePatrol
will soon get their AEDs. We’ve seen firsthand the difference it makes when a trooper responds to a cardiac arrest.
Thank you for rising to the challenge of saving a life.
Troopers will soon all have AEDs in their patrol vehicles. Training began yesterday with
@NEGameandParks
.
An awesome life-saying tool made possible by
@HelmsleyTrust
and
@NEDHHS
!
Details:
The Helmsley-funded Mental Health Provider
#Diabetes
Education Program at
#2018ADA
provides training for licensed mental health professionals who recognize the importance of quality mental healthcare for people with diabetes:
@ADA_DiabetesPro
NEW RFPs: A better scientific understanding of
#type1diabetes
can lead to the discovery and development of interventions to prevent or delay its development.
Today, we're announcing two RFPs in support of these goals.
Learn more:
#T1D
#diabetes
We're partnering with
@CZIscience
to support the
@HumanCellAtlas
!
Helmsley will invite applications to create a
#GutCellAtlas
to understand how the gut’s cells function & interact in health and
#Crohns
disease. Learn more before applications open 9/18:
Today we kicked off our Annual Convening of the
#GutCellAtlas
Crohn’s Disease Consortium. These scientific leaders are collaborating to map the gut using single-cell technologies, with the aim of improving our understanding of
#CrohnsDisease
.
Learn more about this extraordinary
“We use the best technologies everywhere in our lives. Why not when you’re dosing with a drug that can kill you?” -Trustee David Panzirer, who was honored with the prestigious
@ISPADorg
Hero Award for his work making life better for young people with
#T1D
through CGM.
#ISPAD2019
As Helmsley trustee Walter Panzirer noted, “access to life-saving, quality health care is a basic human right, regardless of where you live.” We’ve granted over $600M towards the 62M Americans living in rural communities, to level out the playing field.
#NationalRuralHealthDay
About a quarter of people with
#CrohnsDisease
experience perianal fistulization, which has limited treatment options and can severely impact quality of life.
On World
#IBD
Day, we are excited to announce a new grant from
@HelmsleyTrust
centring on unravelling the immunopathology of perianal fistulising Crohn's disease.
#worldibdday2023
Amped for
#ADA2019
today, including 2 sessions from grantee
@ProjectECHO
. ECHO's telemedicine model resonates - geography shouldn't dictate access to quality
#T1D
care. There’s a dire need to increase access to T1D care & democratize specialty care in underserved communities.
Are you an
@AADEdiabetes
member? Be sure to explore DANA, which is AADE's new comprehensive
#diabetes
technology institute, supported by Helmsley. It is FREE for AADE members!
AADE awarded more than $2.6 million by
@HelmsleyTrust
in support of DANA, a first-of-its-kind technology curation hub for healthcare professionals
#diabetes
#innovation
Without treatment,
#T1D
can be a death sentence - an unfortunate reality for many in extreme poverty.
On Sep. 15, join our T1D Program Director
@GinaAgios
at the
#NCDIPoverty
launch event to hear how we can mobilize resources for T1D & other
#NCDs
:
Today is
#WorldIBDDay2022
. Helmsley is committed to finding a cure for
#Crohns
and improving the lives of patients along the way. Learn about innovative cell-based therapy research that our grantees are leading:
Helmsley-grantee
@YaleMed
is using a passive air sampler as a personal monitoring tool to characterize exposures to environmental contaminants from consumer products, building materials, and food, for people with
#CrohnsDisease
.
Tonight, Helmsley Trustee Walter Panzirer accepted the
@AmericanTelemed
Humanitarian Award at
#ATA18
for Helmsley efforts in improving rural access to care through
#telemedicine
. Read more about the award:
Even during a global
#pandemic
, it’s important to be aware of the warning signs of
#type1diabetes
to avoid a diagnosis coming too late.
Grantee
@BeyondType1
shares what you need to know here:
When was the first time you learned about
#Type1
?
Knowing the warning signs of Type 1 diabetes SAVE LIVES! Want to help us raise awareness?
Visit the link below to see how you can get involved ⬇️
Our grantee
@T1DExchange
recently released the preliminary results from a population health study of
#T1D
patients with
#COVID19
.
Check out the findings here, including the most widespread presenting symptom for COVID patients with T1D:
Helmsley is proud to continue our partnership with
@BeyondType1
on their diabetic ketoacidosis (DKA) awareness campaign.
Spread the warning signs for undiagnosed T1D, help save lives.
Nearly 30,000 people are diagnosed with
#T1D
in the U.S. each year.
We partner with innovative grantees who are equally devoted to reducing this number and mitigating the immense burden of T1D for those living with it.
#DiabetesAwarenessMonth
This
#CrohnsAndColitisAwarenessWeek
, we’re highlighting the work of our grantees dedicated to addressing the unmet needs of people with Crohn’s disease.
A new Helmsley grant to
@FINDdx
will expand access to these life-changing devices in Kenya and South Africa, enabling people with
#T1D
to monitor their glucose levels constantly, avoid life-threatening episodes of hypoglycemia, & improve disease outcomes.
Helmsley is proud to partner with
@EmpireStateBldg
to light the NYC skyline blue for
#WorldDiabetesDay
. Read how our
#Type1Diabetes
Program is helping the global
#T1D
community live more fulfilling lives today while funding a better tomorrow:
“Young adults do care for their diabetes - we just have to reconsider how we care for them.”
@ChildrensLA
’s Dr. Jennifer Raymond shared how providers can implement CoYoT1, a group
#telemedicine
appointment model that can make it easier for young people to manage
#T1D
.
#ISPAD2019
From one clinic to a continent-wide conference, the
#PENPlus
model has come a long way.
This week, we were in Tanzania with
@WHOAFRO
and
@NCDIpoverty
, hearing from leaders on expanding noncommunicable disease care in Africa.
Read more:
#ICPPA2024
“Where you live should not determine the kind of care you receive, and yet in far too many places it does,” said Helmsley Trustee David Panzirer. “Closing this gap for the
#Type1Diabetes
community requires a multitude of parallel efforts including initiatives like the
#GDC
."
Access to essential care and medication is key for people to live long, healthy lives with
#diabetes
. We thank
@HelmsleyTrust
for their contribution of $10 million to improve access to
#insulin
and help
@WHO
advance the Global Diabetes Compact.
If you’re at
#ADA2019
and haven’t yet experienced an ADA Presidents’ Select Abstract Presentation, tomorrow is your day! Grantee
@ChildrensLA
will present “Shared Medical Appointments (SMA) Improve Psychosocial Outcomes in Adolescents with Type 1 Diabetes (T1D)” at 4:30 in S-208.
Grantee
@BeyondType1
is nominated for
@TheWebbyAwards
for Best Writing (Editorial)!
Their piece “Previously Healthy” highlights the devastating impact of delayed
#T1D
diagnosis. Cast your vote by this Thursday:
One-third of Americans feel their “mental health has deteriorated” since the
#COVID19
pandemic, per a recent survey.
It’s critically important to fund research and resources to help us through this difficult time:
@Health_Affairs
Helmsley's Crohn's Disease Program recently launched Disease Biology, a new focus area supporting research on the underlying biology driving disease initiation and progression.
#CCAwareness
Over the last seven years, Dr. Demetris Yannopoulos has transformed the use of
#ECMO
(extracorporeal membrane oxygenation), a form of life support that takes over the functions of the heart and lungs and is able to help save cardiac patients who cannot be saved by traditional
At Helmsley, we know that living with
#Type1Diabetes
can be isolating. But many cherish the friendships they make and the community they find at
#T1DCamp
. If you know someone who might want to attend a
#T1D
camp, check out this helpful camp finder tool:
“In the United States, we treat symptoms and we do so as cheaply as possible. We don’t treat the whole person.” - Trustee David Panzirer.
Hear how
#telehealth
can enable holistic, personalized care by tuning into this recorded
@CeceliaHealth
webinar: