Marco Wetzel @Gmwetz Twitter profile

Pinned Tweet

Marco Wetzel

6 months

Name just ☝️ ONE ☝️ supplement or medication that have been your game changer for #LongCovid or #mecfs ! Please send this tweet around the globe 🔥🙏 3,2,1 … Go !

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Marco Wetzel

@Gmwetz

16 days

Unfortunately, I have to stop all advocacy activities for the time being. The crash triggered by #UniteToFight2024 is longer and stronger than expected. I now have to try to stabilize myself so that I don't slip any further. See you around.

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Marco Wetzel

@Gmwetz

5 months

Today I told my wife that I had suicidal thoughts for the 2nd time since I got #LongCovid . It’s difficult. I feel I cannot handle it anymore.

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Marco Wetzel

@Gmwetz

8 months

Erlebnis beim HA Vorstellung in Infektionssprechstunde mit positivem Schnelltest 😷🤒 HA macht ein paar Untersuchungen und fragt dann von selbst: „möchten Sie Paxlovid ? Als #LongCovid Patient macht das durchaus Sinn. Danke 🙏

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Marco Wetzel

@Gmwetz

1 month

Exhausted! 🥴 But I needed a bit of fresh air, after 11 hours at #UniteToFight2024 A BIG Thank You to @ClausErnst , @FrauXausNRW , @TeamPostX and @ungenesbar ! It was such an incredible job today ! I

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Marco Wetzel

@Gmwetz

1 month

Wir haben gewonnen @jokoundklaas ! Wir nehmen gerne die 15 Minuten Sendezeit, geben Sie euch zurück, damit ihr über #Longcovid und #mecfs aufklären könnt. Deal ? 🤪 #UniteToFight2024 @officiallyjoko @damitdasklaas @ProSieben

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Marco Wetzel

@Gmwetz

9 months

Interessanter Termin beim Kardiologen mit Maske: K: „Haben Sie etwa COVID ? 😱“ Ich: „Nein, aber #LongCovid und ich möchte mich nicht nochmal infizieren“ K: „hhhm Long COVID, aber was soll dann die Maske“ 🧐🤨😤 Ich: 😷😳

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Marco Wetzel

@Gmwetz

7 months

Offener Brief an @Karl_Lauterbach (English version in comment section) Betreff: Dringender Handlungsbedarf bezüglich neuer Erkenntnisse zu COVID-19 Sehr geehrter Herr Gesundheitsminister, ich hoffe, diese Zeilen erreichen Sie in bester Gesundheit. In Ihrer jüngsten Rede haben

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Marco Wetzel

@Gmwetz

1 month

It’s not over; it’s just the beginning. We will maintain the spirit and momentum. From now on, there is no turning back. The old books are closed. Minimizers and deniers will become the minority #UniteToFight2024

Birgit R

@birgi1964

1 month

Let's keep the spirit of #UniteToFight24 alive now! ( @GrandeBettina ) @U2Fight_World @ClausErnst @FrauXausNRW @Gmwetz @TeamPostX @ungenesbar Ihr wart unglaublich. Ich bin von Herzen dankbar für dieses Ereignis ... and I am excited which way it will continue #learnAboutME

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Marco Wetzel

@Gmwetz

4 months

Massively increasing amino acid intake from various sources gives me a significant reduction in my symptoms. Tinnitus gone, „flu feeling“ gone, the rest is much better. I have not tested my amino acid profile before, but amino acid depletion has been shown in different studies. I

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Marco Wetzel

@Gmwetz

2 months

@jokoundklaas Was hier passiert ist weltweit einmalig und aus Deutschland! Gebt uns eine Minute 👇👇👇

UniteToFight2024

@U2Fight_World

2 months

„Use her name and explain it, tell the world about it…'" We haven't shared the origins of the idea of #UniteToFight , which was inspired by the unfortunate loss of @dutchlauren who suffered from ME/CFS. Out of deep respect for Lauren and her family, we kept it private until

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Marco Wetzel

@Gmwetz

7 months

Vorankündigung Es gibt viele mit #LongCovid und #MECFS , die auch an Weihnachten alleine sind. Daher möchte ich zu einem Twitter Space einladen, wo wir uns treffen können, um einfach nicht alleine zu sein. Gesprächsthemen, wie’s kommt… Ihr seid alle herzlich eingeladen, wenn

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Marco Wetzel

@Gmwetz

1 month

Yesterday at the #Liegenddemo in Hamburg, we have been invited on stage to promote #UniteToFight2024 ! Several hundred people attended and some of them heard already about the conference! Afterwards a lot of people came to us and requested more flyers 🙏 They also asked me if I

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Marco Wetzel

@Gmwetz

5 months

I am NOT in the team of - viral persistence - Micro clots - autoantibodies - opportunistic reactivitions - LC is not MECFS - LC is MECFS I am in the team - increase funding dramatically - involve global top scientists - identify the mechanisms - find solutions And STOP

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Marco Wetzel

@Gmwetz

2 months

I recently heard people on X saying that humanity is in a downward spiral, also in terms of behaviour towards each other. We don't share everything publicly, of course, but the power of the LC and ME/CFS community is indescribable. I include also scientists like

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Marco Wetzel

@Gmwetz

1 month

This was the very first tweet #UniteToFight2024 🥹👇👇👇

Marco Wetzel

@Gmwetz

5 months

I strongly believe we must connect our advocating politicians, scientists and financial investors. Globally ! The problem is too big to handle for one country alone. My aim would be a virtual meeting to craft a collaboration agreement and to define an action plan. Who needs

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Marco Wetzel

@Gmwetz

7 months

I don’t know how and when my #LongCovid journey will come to an end. Currently my grade of disability is „moderate“ which is mostly housebound. I discussed it several times with my wife. We only discuss these things when our kids are in bed. But one thing is for sure - I will

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Marco Wetzel

@Gmwetz

2 months

@bbchealth One reason could be #covid and its consequences such as #LongCovid . Still, some people don’t take it seriously. Therefore I recommend to attend the world largest conference on long covid, called #UniteToFight2024 . It’s initiated by those affected. It would be very kind, if you

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Marco Wetzel

@Gmwetz

1 month

If #UniteToFight2024 has finally led to such questions being asked, we are on the right track. Just a note: this also applies to ME/CFS

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Marco Wetzel

@Gmwetz

7 months

What could be worse than a small child asking their mom: "Can't daddy's #longcovid be operated on?" Or "When will daddy be like he was before"? This causes me a deep emotional pain that I can't put into words. Sorry, folks! I had to get that out!

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Marco Wetzel

@Gmwetz

1 month

Impressions from the ME demonstration today at #Liegenddemo @LiegendDemo . I was invited to come on stage to promote #UniteToFight2024 Thanks for organizing this

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Marco Wetzel

@Gmwetz

8 months

Eins meiner schlimmsten #LongCovid Symptome ist ein Krankheitsgefühl, so als ob ein Infekt im Anmarsch ist. Aber es kommt keiner. Habt ihr schon etwas gefunden , was dagegen hilft ?

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Marco Wetzel

@Gmwetz

3 months

@SenSanders Dear @SenSanders , In May, there will be the largest #LongCovid online conference ever hosted. Initiated by long COVID sufferers. All the world leading scientists are there. It’s crowdfunded and has free access for everyone. I have a special request. How can I get in touch with

UniteToFight2024

@U2Fight_World

3 months

#UniteToFight2024 Largest online conference on #longcovid and #mecfs on 15th and 16th May 📌 Initiated and funded by those affected 🤩 The world's leading scientists 📝 Already 2,000 registrations ✅ Free access Who outside our bubble should know about it ? Tag the people

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Marco Wetzel

@Gmwetz

5 months

Folks, the #longcovid and #MECFS global conference is coming to you ! #UniteToFight2024 We are working on a MASSIVE lineup at this moment. Once we have everyone confirmed we will share the date and more details with you ! So - stay tuned 👀

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Marco Wetzel

@Gmwetz

3 months

Last night, my older son called me to his bed and asked me why I was on my laptop all day. He had heard about the conference and that it was about daddy's LongCovid. I then explained to him that a lot of people are even worse off than dad and that it is our job to help these

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Marco Wetzel

@Gmwetz

7 months

Spreading hope / #LongCovid Things have been going steadily downhill for me over the last few months. Last week (Tuesday to Saturday) were the worst days since I've had Long COVID (16 months). Saturday night suddenly - out of nowhere - my head cleared and I could suddenly

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Marco Wetzel

@Gmwetz

1 month

Saturday evening. Exhausted. But my mind is racing. What happens now? What happens next? What is the next smart step? What connections are necessary? Which domino must fall first? The first ideas are noted down. New contacts are made and existing contacts are expanded

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Marco Wetzel

@Gmwetz

1 month

Today I will attend the #Liegenddemo demonstration in Hamburg, Germany. @LiegendDemo This is a demonstration where people lie down to protest against the stigmatization, neglect, limited research, and poor support structures that people with #MECFS face. If you are also in

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Marco Wetzel

@Gmwetz

5 months

Do you know people who have recovered from #mecfs ? I mean people you know in real life, no social media contacts Asking for myself 😵‍💫

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Marco Wetzel

@Gmwetz

3 months

Potential trigger: suicide Today I got a call and heard from another suicide that happened last week because of the unbearable and severe burden that comes with illnesses like #LongCovid or #MECFS What happened next was silence on the phone and the thoughts traveled from left

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Marco Wetzel

@Gmwetz

16 days

Gut zu hören, dass Journalisten eines der größten Medienhäuser in Deutschland bei Reportagen zu LC und ME/CFS mittlerweile auf Meinungsbeiträge aus Essen verzichten, da nicht der Stand der Forschung wiedergegeben wird und der Auftritt zu dem Thema in den sozialen Medien zumindest

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Marco Wetzel

@Gmwetz

6 months

Amino acid complex for #LongCovid ? 9 days ago I started with a standard whey protein shake & since 7 days my „flu like feeling“ completely disappeared. All other symptoms are the same. Not sure whether it’s related to the protein / amino acid profile ?!

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Marco Wetzel

@Gmwetz

3 months

Oohhh ! Who is this guy suddenly? When I reactivated X in 2022 it was because of finding medications and supplements to address #LongCovid . I just a AI generated picture, because it simply doesn’t matter. The majority don’t have the real photo. Then we started #UniteToFight2024

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Marco Wetzel

@Gmwetz

3 months

This goes out to people who are NOT suffering from #LongCovid Can I ask you to show solidarity with those people who are suffering from #LongCovid ? Can you use the long covid solidarity ring in your profile picture for one week ? WE NEED YOU ! 1/2

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Marco Wetzel

@Gmwetz

2 months

@C_Scheibenbogen Es ist sehr sehr wichtig zu betonen, dass wir 5 Personen aus Deutschland sind. Dazu gehören @TeamPostX , @ungenesbar @ClausErnst und @FrauXausNRW ! Dazu natürlich die unglaublich motivierte LC und MECFS Community auf der ganzen Welt. Gemeinsam erreichen wir das Ziel !

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Marco Wetzel

@Gmwetz

1 month

In the quiet battle of #LongCovid and #mecfs every breath and every tweet is a testament to resilience. To those enduring the unseen, your strength speaks louder than words. The community is so strong, and #UniteToFight2024 has shown the public should not underestimate us. We

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Marco Wetzel

@Gmwetz

2 months

@mvankerkhove @WHO Hello Maria, I once again would like to bring your attention to the world largest conference on #LongCovid in May - with all the leading experts in the scientific field and strong political advocates like @Karl_Lauterbach - and initiated by those effected. I want to invite you

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Marco Wetzel

@Gmwetz

1 month

Hi @jokoundklaas 🔥 Also Klaas ( @damitdasklaas ) hatte letztens auf der Straße zu @TeamPostX gesagt, beim nächsten Mal sollen wir ihn direkt dazu kontaktieren. Wie machen wir denn jetzt hier weiter ? 🤩 #UniteToFight2024

Marco Wetzel

@Gmwetz

1 month

Wir haben gewonnen @jokoundklaas ! Wir nehmen gerne die 15 Minuten Sendezeit, geben Sie euch zurück, damit ihr über #Longcovid und #mecfs aufklären könnt. Deal ? 🤪 #UniteToFight2024 @officiallyjoko @damitdasklaas @ProSieben

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Marco Wetzel

@Gmwetz

2 months

#UniteToFight2024 made it into a lot of German News outlets today ! @SZ @handelsblatt @YahooDE @tonline Fränkische Landeszeitung Rhein-Neckar Zeitung Freie Presse Goslarsche Zeitung Can you even spot more ? 👀

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Marco Wetzel

@Gmwetz

2 months

@VirusesImmunity @TIME Well deserved @VirusesImmunity ! We are even more honored to have you with us at #UniteToFight2024 🤩

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Marco Wetzel

@Gmwetz

1 month

#UniteToFight2024 in German TV Channel @ntvde

Bisher wenig neue Erkenntnisse: Long-Covid-Erkrankte kämpfen gegen ewiges Stigma

Es gibt keine messbaren Laborwerte oder Befunde, an denen man eine Long-Covid-Erkrankung erkennen kann. Dennoch ist das Leiden Betroffener real - oft dadurch bestärkt, nicht ernst genommen zu werden....

www.n-tv.de

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Marco Wetzel

@Gmwetz

1 month

I couldn’t focus on a single session yesterday 😅 have to wait for the recording available on YouTube #UniteToFight2024

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Marco Wetzel

@Gmwetz

5 months

🌟 Exciting News! 🌟 Rob Wüst ( @RobWust ) joins us as a speaker at #UniteToFight2024 . 🌐 Get ready to delve into the complexities of #LongCovid and #mecfs with one of the foremost voices in the field.

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Marco Wetzel

@Gmwetz

5 months

@dutchlauren Have no words for it ! The global neglect is beyond any expectation! I wish you all the best on your final journey

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Marco Wetzel

@Gmwetz

5 months

I am angry, I am frustrated, I am sad. AND I am motivated to change the world for #LongCovid and #MECFS patient! Call me stupid or naive …. I will do it anyway !

Dan Wyke 🦠➡️🧠🔥

@Dan_Wyke

5 months

I'm sorry to be the bearer of bad news but I've just found out that another severely ill M.E. patient (who I didn't know personally) died last month. Condolences to family and friends. May he rest in peace.🕯️💙 #MyalgicEncephalomyelitis #MECFS

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Marco Wetzel

@Gmwetz

2 months

@jokoundklaas @ProSieben Wir würden euch sehr gerne vorab briefen, zu #UniteToFight2024 - der weltweit größten Konferenz #LongCovid und #MECFS - initiiert von Betroffenen aus Deutschland. Die Schwerstbetroffenen leiden unvorstellbar schwer - ohne Heilung, ohne anerkannte Therapien. Gebt dem Thema 5

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Marco Wetzel

@Gmwetz

1 month

He is so powerful. He gives me hope Glad to have you on board, Wes @WesElyMD

UniteToFight2024

@U2Fight_World

1 month

What a density of exciting speakers... Now, we have Dr. Wes Ely ( @WesElyMD ) live on stage. #UniteToFight2024 . Hi Wes !

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Marco Wetzel

@Gmwetz

3 months

@Nature Hi @nature I want to use this opportunity to make you aware about the largest online conference for #LongCovid and #MECFS in May. Initiated by long COVID sufferers with the world leading scientists. Please see below. It’s free of charge. A retweet would be for a very good

UniteToFight2024

@U2Fight_World

3 months

#UniteToFight2024 Largest online conference on #longcovid and #mecfs on 15th and 16th May 📌 Initiated and funded by those affected 🤩 The world's leading scientists 📝 Already 2,000 registrations ✅ Free access Who outside our bubble should know about it ? Tag the people

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Marco Wetzel

@Gmwetz

2 months

Es scheint so als hätte „unser“ Thema „gewonnen“ - wenn man nach der Anzahl der Kommentare und Likes geht. Wie geht’s jetzt weiter @jokoundklaas ? Ich setze kurz einen Kaffee auf und warte auf eure Antwort 🤩 @officiallyjoko / @damitdasklaas I am ready when you are ! 💪🏻

Joko & Klaas

@jokoundklaas

2 months

Irgendwelche last minute Vorschläge? #24hJK

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Marco Wetzel

@Gmwetz

7 months

It’s getting serious. Got blocked by a doctor who is questioning mask mandates in hospitals. I have (very politely) asked him to explain his position, so that I am able to understand it …! Are these the doctors who are supposed to diagnose and treat us? Why can't we have a

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Marco Wetzel

@Gmwetz

1 month

@DafoeWhitney Whitney, we are also thinking of you

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Marco Wetzel

@Gmwetz

2 months

Today, I had a video call with a colleague who has been on sick leave for six weeks. He suddenly began feeling unwell weeks after experiencing an infection. He didn’t get tested, but COVID-19 could be a reason, as family members had it before. Now, nine weeks after the

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Marco Wetzel

@Gmwetz

1 month

Dear Government Officials, GPs and specialists contact us after #UniteToFight2024 and ask for further information and an exchange on how to help the patients who come up. It sounds desperate at times. What are your plans ? Which telephone number can we pass on?

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Marco Wetzel

@Gmwetz

2 months

The "healthy" part of society is tired of #LongCovid . You can feel it and you can see it. You see it because you hardly read anything about it anymore - outside the "inner circle". That's a problem because it creates another negative spiral. Things that #mecfs sufferers have

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Marco Wetzel

@Gmwetz

1 month

We would be very happy if you all would join us at the end for some minutes to say goodbye 👇👇👇 🥹🥹🥲 #UniteToFight2024

UniteToFight2024

@U2Fight_World

1 month

We invite all of you to the #UniteToFight2024 closing ceremony, as per the dates below. The team will give closing remarks and say goodbye 📆Thu, 16 May 2024 10:15 AM PDT Los Angeles, USA 1:15 PM EDT New York, USA 6:15 PM BST, London, United Kingdom 7:15 PM CEST, Berlin, Germany

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Marco Wetzel

@Gmwetz

2 months

Seeing so many researchers speak at #UniteToFight2024 , others are asking if there are free slots, others wo are registering themselves from universities around the world, gives me a good feeling. It reassures me that we are not alone in this—we truly have allies, I can tell you !

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Marco Wetzel

@Gmwetz

2 months

@GMB I can’t say how it’s in the UK … But #covid and its consequences such as #LongCovid definitely play a role in the sick note statistics for other countries. Still, some people don’t take it seriously. Therefore I recommend to attend the world largest conference on long covid,

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Marco Wetzel

@Gmwetz

7 months

@BMG_Bund @Karl_Lauterbach „Maskenpflicht nicht mehr durchsetzbar“ beschreibt es gut. Der politische Wille fehlt. Grund sicher die gespaltene Gesellschaft und das Erstarken der AFD. Ich kann das sogar ein Stück weit nachvollziehen. Aber zu welchem Preis ?

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Marco Wetzel

@Gmwetz

2 months

Organizing #UniteToFight2024 has a price tag. 😞 it’s a lot of work. But we are a team and we are fighting together ! Get well soon, Chris!

Chris #UniteToFight 🏳️‍🌈

@ungenesbar

2 months

Grateful for my colleagues at @U2Fight_World who are stepping in for me today as I'm having a rough day. This is true solidarity and teamwork in action as we organize our conference. So proud to be part of such an amazing team! #UniteToFight2024 #Solidarity #Teamwork

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Marco Wetzel

@Gmwetz

5 months

Lauren has #mecfs and her last day will be this Saturday! Yes in two days ! Last day means that she will use MAID on Saturday! This happens because of the neglect that we have for decades and decades ! This must be made public !

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Marco Wetzel

@Gmwetz

1 month

Dear government officials, How much longer ? How many more have to go this way? What are you doing in your country to alleviate the suffering of the people? What are you doing in your country to give people hope for a future worth living again? What are you doing in your

Dan Wyke 🦠➡️🧠🔥

@Dan_Wyke

1 month

#PwME don't choose to end their lives because they're deconditioned. They do so because they experience unbearable suffering from a physical condition for which there is no cure and which incredibly many doctors still know nothing about. Condolences to friends and family.🕯️

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Marco Wetzel

@Gmwetz

1 month

Hi @Renmakesmusic 🎧🎤 We would love to play „Troubles“ during the world largest conference for #MECFS and #LongCovid in 4 days. We have nearly 8,000 registrations and 40 speakers from around the world. Access is free to everyone. We founded this conference after the

Ren

@Renmakesmusic

2 months

My song troubles is out on all platforms now!! We just hit number one on iTunes last night!! There's a big chance we could get a top 40 record with this which would be massive for the first official release of the year! You can download troubles by following the link in my bio

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Marco Wetzel

@Gmwetz

2 months

That was an intense Friday. Of course, we stand behind all the decisions that have been and will be made. Of course, we also know that not everyone always likes everything. That's okay. But everyone can be sure that there is a purpose behind every decision. We are currently

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Marco Wetzel

@Gmwetz

6 months

Ich wünsche der #MECFS und #LongCovid Community erträgliche Tage. Das Wort „Frohe“ ist bei mir gestrichen. Kommt gut durch

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Marco Wetzel

@Gmwetz

1 month

It’s my last personal comment before the conference begins Let me be very clear … With all the discussions happend the last days, we should not forget what we are talking about, guys ! At the end of the day it’s a scientific conference where we want to make further progress

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Marco Wetzel

@Gmwetz

5 months

I see my role as an activist, perhaps a bit different. Let me explain. I am not claiming it’s the better way, just my way. In my former life as a healthy person, I worked as a sales director and consultant. I was responsible for bringing new products to the market or helping old

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Marco Wetzel

@Gmwetz

5 months

I strongly believe we must connect our advocating politicians, scientists and financial investors. Globally ! The problem is too big to handle for one country alone. My aim would be a virtual meeting to craft a collaboration agreement and to define an action plan. Who needs

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Marco Wetzel

@Gmwetz

7 months

Dear @ladygaga , Covid and the pandemic has hit us all hard. Many people are still suffering the consequences every day. The suffering is called Long Covid. Current figures put the extent at between 60 million and 100 million. And the trend is rising. There is no treatment,

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Marco Wetzel

@Gmwetz

1 month

Yesterday I had an video call with @JanetDafoe ! She’s just amazing. We spoke about #UniteToFight2024 and the need for more global collaboration Thanks for everything you do 🙏

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Marco Wetzel

@Gmwetz

5 months

@ChrisCuomo I want to emphasize that I know a a lot #LongCovid folks who got LC before vaccines became available!

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Marco Wetzel

@Gmwetz

1 month

Anil @AnilvanderZee 🥰 We hear you ! We see you ! #UniteToFight2024

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Marco Wetzel

@Gmwetz

5 months

The worldwide interest in #UniteToFight2024 exceeds every expectation. Crazy ! We are already planning for TWO days. Scientists, researchers, patients, journalists, politicians, clinicians. Our speaker list is growing. Our registration website will be launched soon #MECFS

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Marco Wetzel

@Gmwetz

2 months

Today is „Father's Day“! My older son is giving me a great present. Through #LongCovid and now through the organisation of #UniteToFight2024 , he often doesn't get the attention... It's hard for him too. 😞 But he knows why we do it and he's proud of his dad and the whole team

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Marco Wetzel

@Gmwetz

6 months

@JSevincBasad Maske beim Doc aufgrund eines Infektes ?! Mein Gott….. Maske auf und gut. Haben wir vor Covid auch nicht gemacht ? Stimmt ! Ändert aber nichts. Vorher ist vorher und nachher ist nachher.

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Marco Wetzel

@Gmwetz

2 months

@thephysicsgirl Dianna & Kyle! Stay strong ! We will never give up ! #UniteToFight2024 !

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Marco Wetzel

@Gmwetz

7 months

@BMG_Bund @Karl_Lauterbach Und … Wie kann man von breite Immunität sprechen, wenn weiterhin 3% der Infektionen zu #longcovid führen ? Ihre Darstellungen passen inhaltlich nicht zusammen. Das muss man so leider festhalten. Das macht mir Sorge

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Marco Wetzel

@Gmwetz

5 months

Tomorrow I will start a new trial with Low Dose #Lithium to fight #LongCovid ! No medical advice ! I am just sharing my personal experience here.

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Marco Wetzel

@Gmwetz

3 months

This will be my most important tweet on Twitter. If you only want or can read one, then this one! ☝️ Once registration for global #LongCovid and #mecfs conference is open, it's up to all of us to make sure as many of the groups of people we want to see attention and change from

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Marco Wetzel

@Gmwetz

1 month

@VirusesImmunity This means a lot to the entire long COVID and ME community, @VirusesImmunity 🙏 If your followers aren’t registered yet, they can do so here, free of charge:

UniteToFight2024 – Long Covid and ME/CFS conference

unitetofight2024.world

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Marco Wetzel

@Gmwetz

2 months

You are a journalist who covers Long Covid or ME/CFS ? Or you are just curious how 5 people can organize the largest conference ever hosted for these conditions? Why is it unique ? Why it’s not „just another conference“ ? You can find it out ! ⬇️⬇️⬇️ #UniteToFight2024

UniteToFight2024

@U2Fight_World

2 months

Dear journalists 👋 now it's even easier for you to interact with us. 🗣️ Book an appointment (video call) directly here to learn more about #UniteToFight2024 —the largest conference on #LongCovid and #MECFS ever. Discover the unique aspects behind it. Link:

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Marco Wetzel

@Gmwetz

3 months

I fail to accept this situation every day. I've been at it for almost 2 years. I mourn my old life. Do I have to accept my condition? Will I be happier then? #LongCovid #LongCovidAwarenessDay

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Marco Wetzel

@Gmwetz

5 months

Personal blog entry #1 Puuuuhhh what a weekend ! We did a lot for #UniteToFight2024 this weekend. Long conversation followed by PEM and more symptoms. Not sure, how sustainable this will be - and I am also a bit afraid. But for the first time in my life, I have the feeling,

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Marco Wetzel

@Gmwetz

5 months

Dear Senator @SenSanders , I urge your support in the fight against #LongCovid & #MECFS . Please consider reaching out to your European counterparts to collaborate on swift solutions. The impact is immense, and we’re losing young lives. Please pick up the phone 🙏

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Marco Wetzel

@Gmwetz

2 months

@JimBethell #longcovid plays a big role here. We would like to invite @JimBethell and his network to the world largest #LongCovid conference. The most renowned experts are speaking - more than 35 of them. Including @Daltmann10 . The best part ? It’s free to attend online:

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Marco Wetzel

@Gmwetz

2 months

You can’t image how close this is to my heart. Can’t sort my thoughts. It’s was the 27th of January when UniteToFight started! Now it’s Lauren’s legacy.

UniteToFight2024

@U2Fight_World

2 months

„Use her name and explain it, tell the world about it…'" We haven't shared the origins of the idea of #UniteToFight , which was inspired by the unfortunate loss of @dutchlauren who suffered from ME/CFS. Out of deep respect for Lauren and her family, we kept it private until

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Marco Wetzel

@Gmwetz

3 months

Brillant Interview with @PutrinoLab and the Austrian press. Here is an English version (translated with Google) #UniteToFight2024 #LongCovid #MECFS

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Marco Wetzel

@Gmwetz

2 months

@Karl_Lauterbach Danke, @Karl_Lauterbach ! Klare Worte, für die man uns beneidet, in vielen anderen Ländern. Das muss an dieser Stelle erwähnt werden! Ich freue mich darauf, wenn Sie bei der #UniteToFight2024 Eröffnungszeromonie ähnlich klare Worte finden. Gute Nacht 🌙

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Marco Wetzel

@Gmwetz

1 month

#NeuesProfilbild

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Marco Wetzel

@Gmwetz

2 months

#UniteToFight2024 in the German news for first time ever ! // @U2Fight_World English translation here:

Berliner Zeitung

@berlinerzeitung

2 months

Erhöhtes Suizidrisiko bei #LongCovid und #MECFS : Konferenz soll Erkrankten Hoffnungen machen, deren Leid oft als „Erschöpfung“ verharmlost wird. #Corona #Covid19 #Fatigue @NichtGenesen @dg_mecfs @Karl_Lauterbach @BrinkmannLab @c_drosten @hendrikstreeck

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Marco Wetzel

@Gmwetz

2 months

This following message reached me today, from a place thousands of miles / kilometres away from where I live… „I’m tired of the fight but I’m not giving up. If you guys can do what you can, then I can keep going. I think of Lauren and all the girls like her and their legacy. We

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Marco Wetzel

@Gmwetz

7 months

Eins unserer größten Probleme in der #LongCovid Community auf X ist die limitiere Reichweite. Üblicherweise begrenzen wir uns, auf uns selbst + wenige, zusätzliche Interessierte. Das muss sich ändern. Ich werde nun große Accounts außerhalb der Bubble kontaktieren und um

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Marco Wetzel

@Gmwetz

1 month

It’s time for health care institutions and governments to acknowledge that we have a big problem! Not talking about it will not solve the problem. Recognising and sharing understanding will lead to promoting cooperation and providing the appropriate resources.

Annette

@Annette121020

1 month

Kudos to @aok_politik & @Siemens_BKK for leading on #LongCovid #MECFS #UniteToFight2024 awareness! I strongly encourage @BARMER_Presse @GKV_SV @GKV_Sprecher @TK_Presse @BKKDV @ikk_ev @vividabkk @Krankenkasse @BARMER_NRW @DAKGesundheit @KKH_Aktuell @vdek_Presse to join them!

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Marco Wetzel

@Gmwetz

2 months

Painting lesson with the family ! Even the children know what #UniteToFight2024 is and why we do it ! Successful or ?

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Marco Wetzel

@Gmwetz

2 months

I did a lot of presentations in my business life - sometimes in front of 10 people, sometimes 100, sometimes 500. Despite a bit of stage fright - everything went well. But yesterday when I presented the origin story of #UniteToFight2024 things were different. My heart was

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Marco Wetzel

@Gmwetz

5 months

People are asking why we initiate a global conference for #LongCovid AND #MECFS !? It’s very simple Regardless of whether it’s the same mechanism or not … People are suffering globally We need to collaborate globally That’s why we have #UniteToFight2024 #endMECFS

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Marco Wetzel

@Gmwetz

9 months

@Ramyisback I know somebody who is part of the BC007 study. He/she most probably got BC007. He/she is doing great now ! We must all hold out !

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Marco Wetzel

@Gmwetz

5 months

There has been a lot of sad news when it comes to #MECFS and #LongCovid today. Now I am lying here and my mind is doing wild races. I am looking for answers, for solutions , for ideas. But there is nothing. The cycle is now repeating itself for hours. Still nothing.

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Marco Wetzel

@Gmwetz

3 months

Professors from big universities are asking us whether their students can register to our global #LongCovid & #MECFS conference in May. It’s a good sign, I guess. We need to correct the definition of both conditions already at this stage in order to stop the neglect and

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Marco Wetzel

@Gmwetz

2 months

@WHO_Europe I I know I repeat myself here, but I still would like to ask for your support in spreading the news about the biggest long COVID conference ever, titled #UniteToFight2024 .

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Marco Wetzel

@Gmwetz

6 months

Ich muss euch leider mitteilen, dass der Space ausfällt. Leider habe ich seit Anfang Dezember eine unerklärliche Verschlechterung. Daher muss ich die restliche Energie anderweitig nutzen 🙁 Es tut mir sehr leid. Ich werde euch natürlich ganz fest in meinen Gedanken haben ❤️

Marco Wetzel

@Gmwetz

7 months

Vorankündigung Es gibt viele mit #LongCovid und #MECFS , die auch an Weihnachten alleine sind. Daher möchte ich zu einem Twitter Space einladen, wo wir uns treffen können, um einfach nicht alleine zu sein. Gesprächsthemen, wie’s kommt… Ihr seid alle herzlich eingeladen, wenn

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