We are thankful that the first group of children with cancer and their families from Ukraine have arrived safely in the UK to continue their cancer treatment and care.
We are proud to have supported colleagues in the NHS to make this happen. 👇
Could you
#SpotChildCancer
? 6 in 10 adults say they do not know the signs and symptoms. Early diagnosis can make a huge difference to a child's chances of survival. Watch and share our video to spread the word and
#BeChildCancerSmart
Congratulations to
@drbobPhillipps
, Consultant Paediatric Oncologist at
@Leeds_Childrens
, winner of the
#CCLG2023
Excellence in Delivery Member Award 🏆
Bob always goes above and beyond, is an outstanding clinician and truly deserves to be recognised 👏
#CCLGMemberAwards
It can be hard to know what to say or how to help someone whose child has cancer. People worry about saying the wrong thing and don’t want to interfere. Help them face each day feeling stronger and more positive
#BeAChildCancerFriend
#CCAM
The
#ChildrensCancerPSP
is complete... 488 patients, survivors, family members and professionals submitted 1299 potential research questions and topics to our initial survey, and we're pleased to now present the top 10 priorities in
#ChildhoodCancer
#research
We are greatly saddened to announce the death of CCLG member and consultant paediatric oncologist Dr Johann Visser, who died peacefully at home on Sunday 20th December after a long illness.
Congrats to Prof Rod Skinner
@UniofNewcastle
&
@Pedonc
, taking home this year’s
#CCLG2023
Johann Visser Awards 🤩🏆
Both these individuals have made an outstanding contribution to
@CCLG_UK
, going above & beyond to support our work & members!
Thank you 🫶🏻
#CCLGMemberAwards
We had been promised a 10 Year Cancer Plan, we're getting a Major Conditions Strategy.
Together with
@YLvsCancer
we want to work with
@DHSCgovuk
and
@SteveBarclay
to ensure the needs of young cancer patients aren’t overlooked. Find out more:
"Dear Cancer, I beat you aged eight, and today I got my PhD in cancer research. Take that." 🎗️
Cancer doesn’t end when you ring the end of treatment bell. Even after the cancer cells are long dead, the long-term effects of
#ChildhoodCancer
and its treatment can remain. 👇🏻
#CCAM
Thanks
@Schofe
and
@hollywills
for the shout out today when interviewing
@jc_novelli
and Michelle . If people want to know more about Childhood Cancer Awareness Month
#CCAM
they can visit
📣 TYAs with cancer fall into the gap between childhood & adult cancer – they have different cancers, different needs & different priorities.
Learn why
#TYAs
with cancer need their own research in our special
#TYACAM
#ResearchRoundup
blog 👉
We've updated our COVID-19 guidance for children and young people undergoing cancer treatment, to reflect updated research evidence and changes to government guidelines on shielding, staying alert and social distancing
#childhoodcancer
#COVID19
1/2
The
#CCLG2023
Annual Meeting is back & we are so excited to welcome you all to day one 🤩 We're delighted to bring together
#ChildhoodCancer
experts to share news & discover new advances in treatment 🌟
Remember to tag us
@cclg_uk
& use the
#CCLG2023
Updated guidance on COVID-19 for children and young people with cancer is now available on our website at . This guidance has been updated to reflect the changes announced by the government on Monday
#coronavirus
#covid19
#childhoodcancer
✨ We’re proud to announce a ground-breaking new research project that could help doctors diagnose
#WilmsTumour
quicker.
Thanks to our amazing Special Named Funds, we’ve been able to fund this vital new research 👏
Learn more about this project 👉
Congratulations to our second winner of the Johann Visser Award, Dr Jessica Bate. 🏆
Dr Jessica played a vital role in supporting us with our online Covid-19 guidance for families of children with cancer. Turning around updates quickly & keeping on top of the latest research.
We have funded a brand-new
#ResearchProject
⭐
Dr Jess Morgan will be investigating whether regular tests that check for relapse after
#leukaemia
treatment are helpful 🔬
Find out more about the exciting new project here 👉
#ChildhoodCancerResearch
#CanWeCureKidsCancer
Our thoughts are with Artemis’ family - not the ending we wanted to see. While we’ve come so far, 1 in 5 children still die within five years of being diagnosed with cancer. We won’t stop until that changes...
We are very proud to announce the launch of the first ever, dedicated
#ChildhoodCancer
Emotional Health and Wellbeing Fund. Through this we will fund research into how we can improve the emotional support available to patients and their families.
The top priority in
#ChildhoodCancer
#research
:
Can we find effective and kinder (less burdensome, more tolerable, with fewer short and long term effects) treatments for children with cancer, including relapsed cancer?
#ChildrensCancerPSP
ICYMI: The top research priority in childhood cancer is “Can we find effective and kinder (less burdensome, more tolerable, with fewer short and long term effects) treatments for children with cancer, including relapsed cancer?” See the full top 10 at
Congrats to Prof Faith Gibson for winning the
#LifetimeAchievement
Award at
#CCLGMemberAwards
! 🏆 Internationally recognised for
#research
in children's and young people's cancer care, Faith has made extraordinary contributions, inspiring the paediatric community 🎗
#CCLG2024
The
@coronapaedonc
project tracks paediatric oncology patients who have tested positive for COVID-19 across the UK. The aims are to ensure excellent cancer care continues to be delivered and to accurately identify risk and best practice for our patients 1/4
🚨Today we're proud to launch our vital new resource 'Referral guidance for suspected cancer in children and young people'
🩺This is an important tool to support GPs and other health professionals identify potential cancer in children
👉Find out more at
This year we are proudly celebrating our
#45thAnniversary
.
💛 We have helped transform
#treatment
&
#care
in the UK and Ireland, so that more than 82% of children with cancer now survive.
There is still so much more to be done!
Read more at 👉🏻
Today is International Paediatric Oncology Nurses Day 🩵
Today, we want to recognise and say thank you to our incredible
#PaediatricOncology
Nurse members, who continue to make a difference in the lives of children facing cancer every day🎗
This year's
#CCLG2023
Annual Meeting was a huge success! Almost 500
#ChildhoodCancer
professionals attended. Congrats to all our award winners 🏆 and a huge shoutout to our event partners and sponsors who made it all possible 🎉✨👏
Award winner info 👉🏻
🎗
#ChildhoodCancerAwarenessMonth
starts today! 🎗
There are so many ways you can raise awareness and show your support ⭐
We are very excited to see what you get up to!
COMMENT below what you'll be doing!
👉
Today is
#InternationalChildhoodCancerDay
, a day for raising awareness of childhood cancer and the issues surrounding it. CCLG are proud to be part of a global network of organisations committed to working to reduce childhood cancer mortality and improve outcomes.
🌷 In our Spring issue of Contact magazine, we spoke to
@MrLeeBrennan
. 🎤
💛 Lee was diagnosed with Hodgkin lymphoma as a 9-year-old, and he tells us how his cancer experience has influenced a new vocation.
Read Lee’s full feature at 👉
Our newly updated book 'Anna loses her hair' tells the story of Anna who loses her hair while having treatment for cancer and helps young children to understand what might happen. Order or download your copy here
Congratulations to
@BruceMorland
,
@RachelAHollis
and Prof Ajay Vora for winning this year’s
#CCLG2023
Lifetime Achievement Awards.
All 3 of these inspiring individuals have made huge contributions to paediatric oncology – a truly deserved award 🤩🎉
Wow! The
#CCLG2023
Annual Meeting was a huge success, with over 470 delegates attending 👏🏻✨
Special thanks to East Midlands Conference Centre and our event sponsors 🤩
Tag us
@cclg_uk
, use the
#CCLG2023
and share your best bits 📸
🔬We are excited to announce that CCLG has this week funded four new childhood cancer research projects, thanks to the amazing efforts of our Special Named Funds and their supporters
👉 Find out more at
We are calling on
@RishiSunak
to make improving cancer outcomes a personal priority & to take action now to address the cancer emergency, to improve cancer services and survival.
#OneCancerVoice
👇
Today we’re heading to
@10DowningStreet
on behalf of almost 80k people who, with over 60 cancer charities, signed our
#OneCancerVoice
petition. Together we're calling on
@RishiSunak
to take action now to address the cancer emergency, to improve cancer services and survival. 1/
Young cancer patients must not be forgotten which is why, with
@YLvsCancer
we're calling for a bespoke Children and Young People's Cancer Plan.
More details over on our website 👉
Funded by
@LPTrustUK
in partnership with CCLG,
@TRitzmann
has been studying & working on cells in
#ependymoma
, a type of brain tumour.
A better understanding of these cells could lead to better treatments for children.
⭐ More info 👉
#ResearchRoundup
We have created an animated version of our 'My brother or sister has cancer' booklet to answer some questions and give practical advice to younger siblings. Find the link at
We now recommend that children and young people with cancer should not attend school and practice strict social distancing, and members of the family living in the same house should also consider staying at home for the next 12 weeks
#coronavirus
#covid19
#childhoodcancer
🌟Let's celebrate Dr. Mark Gaze for his exceptional achievement in winning the prestigious
#JohannVisser
Award at the
#CCLGMemberAwards
! 🏆A great mentor to many, his commitment has made a particular impact in sarcoma and neuroblastoma. Thank you for your dedication 👏
#CCLG2024
Could starving
#BrainTumours
treat cancer?
@MadDandapani
is working on a
@LPTrustUK
project investigating which nutrients brain cancer cells need.
Her project could lead to a kinder treatment for children with brain tumours 🤍 👇🏻
'I have finished cancer treatment' is our new information guide for older children and teenagers on follow-up care and re-adjusting to life after finishing cancer treatment. You can order or download your free copy at
#expertsinchildhoodcancer
Thanks to
@cj_dinenage
for raising the issue of spotting the signs and symptoms of
#ChildhoodCancer
today. We're working hard on this issue and our referral guidelines are a vital tool for GPs and others to identify potential cancer and what to do:
My first
#PMQ
since rejoining the backbenches! I asked
@BorisJohnson
for more training for GPs to spot the signs & symptoms of
#childhoodcancer
Sophie Fairall’s story is heart-breaking & has revealed so many failings in the way we detect, treat and care for children with cancer
It's Childhood Cancer Awareness Month and we have lots planned for this September. From raising awareness of your
#ChildCancerAndUs
stories, some amazing
#BeBoldGoGold
fundraising ideas, and brand new resources and dedicated Research Funds, it's going to be a busy month!
Hair loss is a common side effect of
#childhoodcancer
treatment, but its impact can be significant. Our new animation 'Anna loses her hair' tells the story of Anna, Jack and Laura who all lose their hair & helps children to understand what might happen.
We're thrilled that our collaboration with
@LPTrustUK
has been shortlisted for Charity Partnership of the Year at
@TSEawards
!
Our work together means more high quality
#ChildhoodCancer
#research
is funded, minimising duplication, and spending more directly on research.
#CCAM
update! Awareness and Action = Impact. We are going one step further this month by showing how the vital action of our members, supporters and staff make a difference to children, teenagers and young people with cancer and their families. Watch this space!
#positivechange
Today we have joined with 51 cancer charities to write to
@BorisJohnson
@RishiSunak
@sajidjavid
with
#OneCancerVoice
calling for the Spending Review to urgently deliver Govt commitments to improve cancer survival & care. You can read our letter here:
Last night our new parent involvement network met along with Research Officer Dr Sarah and
@o_burbidge
to review applications for our latest
#ChildhoodCancer
#research
grants. Involving patients and parents in our work is really important to us and we are working to increase this
We have updated our
#COVID19
guidance for children and young people with cancer undergoing treatment. You can read this online at , and as always we'll be on hand in our Facebook Parents Group to answer any questions you have.
Exciting news! Today
@DHSCgovuk
has announced the launch of a Children and Young People’s Cancer Taskforce, bringing together experts to explore how to improve treatment, detection and diagnosis, and research for cancer in children and young people:
CCLG's new booklet 'Supporting your pupil's cancer diagnosis' has been written by our members, as an information guide for teachers helping children and young people returning to school after a diagnosis of cancer. Order or download your free copy at
📣 New
#research
by
@CCLG_UK
and experts at
@UniofNottingham
reveals a concerning lack of public awareness of signs of cancer in children and young people, with only 32% feeling confident in recognising symptoms. Find out more 👉🏻
#ChildCancerSmart
The impact of childhood cancer on siblings can be significant. We have created an animated version of our 'My brother or sister has cancer' booklet to answer some questions and give practical advice. View the animation or order a copy of the booklet at
Something exciting is on the horizon 🔬
Next month we will be launching a free childhood cancer webinar series, aimed at bringing
#ChildhoodCancer
#research
to parents of a child with cancer 💛
Keep an eye out for more updates & details on how to sign up 🌟
#WatchThisSpace
A free online course for
#childhoodcancer
parents and carers to help you copy with life during
#lockdown
: We've partnered with
@HOPE4TC
@UniOfYork
@unisouthampton
to offer the Online Hope Programme to parents and carers of children with cancer as part of a research study. 1/2
Christmas can be a difficult, lonely and emotional time for families facing childhood cancer. Watch our Christmas edition of
#BeAChildCancerFriend
to see how you can help. Let’s keep the kindness of Christmas alive for those who need it most ❤️
A childhood cancer diagnosis can have a devastating impact on not only the child but their entire family and community. For
#CCAM
this September, we will be sharing
#ChildCancerAndUs
stories from different perspectives of the childhood cancer journey
Coronavirus restrictions mean some young people are being told they have cancer, or facing treatment, alone.
Alongside
@CLIC_Sargent
, we’re calling for a commitment from the Government that young people have a
#Hand2Hold
Pledge your support:
We want to hear from children who have experienced childhood cancer! 💛
Help us to make sure that future research is focused on what matters most. 🔎
Complete our survey or find out more at 👉
#ChildrensCancerPSP
@CCLG_UK
@LindAlliance
@LPTrustUK
The physical effects of
#childhoodcancer
often mask the psychological impact. We launched the Emotional and Mental Health and Wellbeing Fund for research into practical ways we can improve services and support. Text EHWB25 £3 to 70070 to donate £3 this
#WorldMentalHealthDay
.
Calling colleagues in primary care, emergency medicine and paediatrics! We need your help to improve the awareness of the signs and symptoms of
#ChildhoodCancer
- please complete our short survey at - and forward to your colleagues!
@cancer_smart
Ellie Waters, a medical student at Keele University, was diagnosed with alveolar
#rhabdomyosarcoma
aged 14.
Ellie explains how it influenced her ambition to become a doctor and why it’s so important to raise awareness 👩🏻⚕️
Read Ellie’s story 👉
#TYACAM
We’re delighted that our partnership with
@LPTrustUK
has been recognised for its impact in supporting ground-breaking
#research
. The partnership, and our position as experts in
#ChildhoodCancer
, has led to the formation of the CCLG Research Funding Network ✨👇🏻
Earlier this year, we were delighted to hear that a collaboration featured in our Festival of Partnerships was highly commended at the
@ThirdSector
Awards.🎉
Read more about this partnership between AMRC members
@LPTrustUK
and
@CCLG_UK
👇
One of the top priorities for
#ChildhoodCancer
researchers is trying to prevent cancer from happening 🔬
Professor Mel Greaves believes he might have found a way to prevent childhood
#leukaemia
🙏🏻
Read about Mel's work in our
#ResearchRoundup
blog 👉🏻
This Saturday, a special football match is raising funds for CCLG in memory of five-year-old Nate Gidman ⚽
@Gidsentinel
organised the match as the perfect tribute to his football-mad son, who passed away from a brain tumour last year 💙
More info 👉
Big congrats to Dani Jones, nurse educator at
@nottmchildrens
& working across the CYP Integrated Cancer Service, for winning the
#CCLG2023
Outstanding Leadership Award! Dani showed exemplary leadership on the CCLG Oncology Nurse Educators Group 🎉
#CCLGMemberAwards
'Anna loses her hair' tells the story of 3 children who all lose their hair while having treatment for cancer and helps young children to understand what might happen. Order this story as a booklet or watch the animated version at
🌟 A huge round of applause to the Birmingham Late Effects Team for winning
#TeamOfTheYear
at the
#CCLGMemberAwards
! 🏆 They deliver exceptional care, ensuring every patient receives individual, accessible and adaptable care. Their dedication is truly commendable!
#CCLG2024
🔬 Today we're proud to launch the Childhood Cancer Diagnosis Study, with
@UniofNottingham
, funded by
@NIHRresearch
and CCLG
👇Lead researcher
@HeadSmartFellow
explains the project, and you can find out more at
🚨We've updated our
#COVID19
#coronavirus
expert guidance for families of children with cancer, to include answers to your vaccine FAQs and information about returning to school 🎒
👉
We've funded 2 research projects into childhood acute lymphoblastic leukaemia (ALL) thanks to our Special Named Funds 💕
Professors Roy & Moorman will investigate treatment resistance & find out how to predict the severity of ALL 🔬
Find out more 👉
Did you know children in hospital have rights? They deserve the best care, play, and education. These rights help their emotional well-being during and post-treatment. Learn more at: 💛
#ResearchRoundup
We welcome the publication this week of new service specifications for children's cancer services by
@NHSEngland
. These ambitious plans will ensure high-quality care and also improve access to clinical trials, genomic medicine and more. Our response:
👨👩👧👦 When a child is diagnosed with cancer, it affects the whole family.
📘 🎦 Our booklet and animation ‘My brother or sister has cancer’ have been produced to support siblings understand what is happening to their poorly brother or sister
👉
Congratulations to
@louoll10
, Nurse Educator at
@GreatNorthCH
, winner of the
#CCLG2023
Innovation in Practice Award⭐
Lou showed incredible vision & determination while adapting the adult SACT passport to paediatric treatment regimens & pilot site testing.
#CCLGMemberAwards
Amelia was diagnosed with
#osteosarcoma
, a type of bone cancer, in 2017 on her seventh birthday. In the newest issue of
#ContactMagazine
Amelia's mum tells us about a pioneering procedure which helped Amelia remain active after a leg amputation:
⭐2022 marks our 45th anniversary!
⭐ Throughout 2022, we will be reflecting on the advances in the treatment and care of children with cancer.
💛 We will continue to keep funding research to find better and kinder treatments for children with cancer.