Patient-led UK Heart Failure Charity helping patients & their carers self manage. Advising as an advocate locally, nationally & globally. Let's
#BeatHF
together
Share our BEAT campaign this Heart Failure Awareness Week so that everyone can know the symptoms of Heart Failure.
B - Breathlessness
E - Exhaustion
A - Ankle swelling
T - Time to tell your GP surgery
An early diagnosis can be life-saving so help us to raise awareness…
Do MPs care more about potholes than the 1 million people in the UK living with Heart Failure?
They talk about potholes so much that they mentioned them 37 times more than
#HeartFailure
in Parliament between 1945-2021
👉
#TalkingAboutHeartFailure
#BeatHF
"MPs call for five-year fund to tackle potholes"
Where is the five-year fund to tackle Heart Failure?
#HeartFailure
impacts more than 1 million people but potholes are mentioned 37 times more in Parliament
Read more 👉
#TalkingAboutHeartFailure
#BeatHF
Potholes are an inconvenience, but Heart Failure is a life-changing condition.
So why do MPs talk about potholes 37 times more than
#HeartFailure
in Parliament?
It's time to start
#TalkingAboutHeartFailure
Let's
#BeatHF
Find out more 👉
How do you feel that politicians have mentioned potholes 37 times more than
#HeartFailure
in Parliament over the last 70+ years?
We think people are more important than potholes.
Let's start
#TalkingAboutHeartFailure
and
#BeatHF
Read more 👉
MPs mentioned potholes 37 times more than Heart Failure in Parliament.
They work tirelessly to ensure that patients like Fran have a smooth ride to the hospital where they are most likely to receive their initial diagnosis for
#HeartFailure
#BeatHF
👉
How can people understand Heart Failure if it's not even being discussed by the people with the power to make change?
MPs talk about potholes 37 times more than
#HeartFailure
Let's start
#TalkingAboutHeartFailure
& we can
#BeatHF
together
Read more 👉
Potholes are mentioned 37 times more than Heart Failure by MPs in Parliament.
Are potholes more important than
#HeartFailure
and the 1 million people in the UK who are living with it?
👉
Let's start
#TalkingAboutHeartFailure
Together we can
#BeatHF
Just like FAST for a stroke, BEAT identifies the key symptoms of heart failure in an understandable language. This empowers symptomatic people to look for answers from their GP or practice nurse as to why they are experiencing symptoms. And to ask the question "Could it be Heart…
Whether you realise it or not
#HeartFailure
impacts everyone.
It is a national health crisis.
So why isn't it being discussed by MPs in Parliament?
It seems that they're too busy talking about potholes.
Read more 👉
#TalkingAboutHeartFailure
#BeatHF
Listen to Patients. Catching heart failure early is very important. If you are
Breathless
Exhausted
Ankles swelling
Time to talk to your GP
There is
#OneSimpleBloodTest
that can rule out
#HeartFailure
Heart failure is treatable. Let's
#BeatHF
together
People with a Heart Failure don't get the support like people living with
#Cancer
Follow our campaign
#BeatHF
in a race to BEAT
#heartfailure
Join us to amplify our campaign, helping people live better with
#HF
Breathless
Exhausted
Ankle Swelling
Time for a Simple Blood Test
Clear as "Black & White"
#HeartFailure
plays "second fiddle" to other conditions like
#Cancer
and
#mentalhealth
It impacts 64 million across the globe, 1 million just in the UK. We are determined to change this. Why, because heart failure destroys lives. Let's
#BeatHF
together.
Introducing the Pumping Marvellous Patient Charter!
This Heart Failure Charter tells you what you need to know about Heart Failure and what treatments and care you should expect.
Let's
#BeatHF
together ❤️
Read the charter here 👇
Heart failure is an inconvenient truth that nobody seems to want to talk about.
We want to change that.
We are starting the conversation that should have started decades ago.
There are around 1 million people living with heart failure across the UK.
Together let's
#BeatHF
We've been raising heart failure awareness with a campaign including national radio, railway and roadside advertising across Manchester and Merseyside, and a social media presence reaching millions. This will continue for the next couple of weeks and we'll even be at
#Eurovision
Quality of life deteriorates after heart failure diagnosis mainly because of heart failure symptoms. Here are the three most experienced physical & mental symptoms as stated by patients in the new whitepaper Heart Failure: An Inconvenient Truth
#QOLHF
👉
Feeling breathless, bit tired, wiped out maybe swollen ankles or legs? If sometimes means all the times this maybe a sign of
#HeartFailure
ask your
#GP
for a simple blood test. Listen to what you should do next with this link. Support our
#BeatHF
campaign.
Heart Failure can be caused by a number of different conditions. The most common is due to a previous Heart Attack. We are supporting
@NHSEngland
awareness campaign around Heart Attacks because they can cause
#heartfailure
Help us to
#BeatHF
#heartattack
Today we launch our “Living well with Heart Failure” report 2022.
Many thanks to all the contributors including our Patient Educators, Clinical Advisory Board and our Patient Community. Let’s
#BeatHF
#TalkingAboutHeartFailure
Read it here
The patient moon shot. Listen to Jane talk about the Eureka moment, the start, leading to the diagnosis of
#HeartFailure
after all those misdiagnosis prior to the
#Moonshot
moment. Breathlessness, Exhaustion, Ankle Swelling, Time for a simple blood test by your
#GP
Let's
#BeatHF
Making
#HF
real. Donna is a patient educator with the Pumping Marvellous Foundation. Billy is the charities mascot. We just the love this video, unprompted, natural and meaningful. We all support you Donna & Billy. Let's
#BeatHF
this
#HeartFailureAwarenessWeek
#HeartFailure
Heart failure can be so debilitating that in one study 1 in 5 heart failure patients self-declared themselves as disabled.
It's time to start talking about heart failure, let's
#BeatHF
together.
Source: Survey performed with 579 patients in June-August 2021 in the UK and the NL
Meet Bev - A Pumping Marvellous Patient Educator.
We think this one of the best descriptions of what heart failure is and how it impacts people living with it.
Help us to
#BeatHF
together
#heartfailure
This is a short clip - see the full length video here
Raising awareness of heart failure on the front of the
@guardian
'Cardiovascular Supplement' TODAY. Let's
#BeatHF
together. Many thanks to Corinne you've helped many many people.
Pumping Marvellous is putting Heart Failure front and centre in the Cardiovascular conversation.…
WHY did we call our campaign
#BeatHF
? We are the patients & it is a race to BEAT
#heartfailure
Join us this week to amplify our campaign to help people live better with
#HF
Breathless
Exhausted
Ankle Swelling
Time for a "Simple Blood Test"
#HeartFailureAwarenessWeek
🍋🍋It's back, by popular demand the famous
#SuckaLemonChallenge
cos
#heartfailure
sucks🍋🍋"We may not be young, we may not be pretty, we may not be right good, we're here & for one week only, we're going to be Sucking Lemons" Let's
#BeatHF
& suck a lemon
#SuckaLemonChallenge
The language surrounding
#heartfailure
is very important, more important than many have realised previously. You don't invest in FAILURE. Changing the narrative is imperative. Our education video drives home a key phrase that has strong association with
#HF
Let's
#BeatHF
together
The next 4 weeks we are delivering arguably the largest heart failure awareness campaign ever seen. A National drumbeat campaign on
@ClassicFM
, mass transit advertising across Merseyside and Greater Manchester and a social media campaign even we are astounded with. Look out for…
It is with heavy heart that we share the very sad news that patient educator and determined advocate, Julie Bartlett passed away this morning. Especially poignant that on the day the new opt-out
#OrganDonation
Act comes into force in England that we lose such a brave campaigner❤️
#Petition
: In 2010 it became a legal right of
#NHS
patients with suspected cancer to be seen by a hospital Dr within 2 weeks of a
#GP
referral.
#HeartFailure
patients deserve that the same recommended right is set out in law. Add your voice, sign & share ❤️
The Pumping Marvellous Foundation is all about people
#LivingWellWithHeartFailure
supporting us, RT, sharing and following our social posts you to can play a pivotal role in making positive change happen.
We have never suggested we can do this alone BUT with YOU we can
#BeatHF
10 Pillars. Understanding peoples needs who have heart failure is important. Treatments are only a proportion of what their needs are. Treatments are important, they are the foundations by which people start to
#LiveWellWithHeartFailure
Together we can
#BeatHF
#HF
#HeartFailure
Sometimes it’s the simple stuff. We aren’t taking you to the moon today. We’ve lost count how many times Heart Failure Nurses have asked us for these. We proudly bring you the Pumping Marvellous Symptom Checker printed on an A4 magnetic medium. This one is on the charities fridge…
We are forever grateful to every
#NHS
member & key worker, but
#HeartFailure
hasn’t gone away during the COVID crisis. HF doesn't wait for a flat curve.
To the leaders of the NHS, "Please Reassemble Our Heart Failure Teams" – from the UK's
#heartfailurepatientcommunity
@NHSuk
As Heart Failure Awareness Week continues we wanted to share some excerpts from a podcast we did with a woman called Kate who heard our
#BeatHF
radio campaign, recognised the symptoms of Heart Failure in her Dad, and encouraged him to take action and visit his GP which ultimately…
Do you know the signs and symptoms of Heart Failure? Do you know what to do if you are displaying these symptoms? Most people don't know the answers to these questions because heart Failure is not talked about enough and historically not invested in. That's why we ran the first…
People with Heart Failure with Preserved Ejection Fraction (HFpEF) have now got a life lengthening treatment recommended by NICE. This is a game changer for patients who previously had no life lengthening treatment options. Read more here 👉
One of the Legends, Marvels, Titans of
#heartfailure
advocacy passed away this morning. Jamie had an inner strength, off the scale. We will all miss you and remember your endeavours & adventures that made you the above. Truly inspirational & remembered. More than ever
#BEATHF
"We, and the entire
#heartfailure
community, are SO proud of Robert's Strictly achievements with Dianne, and we commend him for continuing to proactively manage his condition and recovery, putting his health first." - Nick Hartshorne Evans.
@arobertwebb
@DianneBuswellUK
#BeatHF
Heart failure impacts everyone.
#WorldHeartDay2021
we need to focus on beating heart failure. We've the tools & if we work together we can help people live better with HF. We all need to talk about
#HeartFailure
We offer leadership building awareness. Let's
#BeatHF
#WorldHeartDay
We have the honour of working with the NHS. They put our heart failure booklets into the hands of the people who need them. Countless lives saved and many more helped, thank you for 75 years of marvellous service.
#NHS75
#ThankYouNHS
BEATie travelled to Liverpool today to award the Aintree Heart Failure Nursing Team with our Team of the Year Award and
@DrRajivsankar
got his very own Never Give Up Award. We are honoured to be able to give some recognition to these amazing people and the work that they do.
The marvellous
@CarysBarton
is the recipient of this years Roy award. This award was created in memory of Roy Heesom when his son raised more than £15k in memory of his dad who died of heart failure. This is the highest accolade we award, yearly to a healthcare professional.
Professor Martin Cowie (left) has stepped down from our Clinical Advisory Board taking on a full time Global Leadership Role
@AstraZeneca
we wish him all the marvellous luck with his new role, he will be missed. New Chair is Professor Mark Petrie (right)
#BeatHF
#heartfailure
Heart Failure Spooktacular Spell with Pumpkin Marvellous
Heart Failure need not be scary, listen to our spooky spell this
#Halloween
with
@alice_fearn
to help you manage your heart failure better. You can live well with
#heartfailure
listen to the spell. Let's
#BeatHF
together.
Are you going to jump on board with us to beat Heart Failure?
You can start by reading our Patient Charter!
The charter is now starting to influence Heart Failure policy in the UK.
Read it here 👇
As a key stakeholder, representing the most important people, we will be using due process to respond to this decision by
@NICEComms
representing the huge amount of people that have been impacted by their decision. We will
#BeatHF
#HeartFailure
Out Now! Our new Christmas Charity Single "Music Will Live in Our Hearts." Stars & musicians from the West End stage, including
@alice_fearn
& BGT winner Jai Mcdowall join forces to raise awareness of
#heartfailure
! Listen / DL at itunes, Spotify, Amazon!
Out now - Our inspirational film, conceived & developed by young people, the first resource of its kind to support children impacted by
#heartfailure
of a loved one, worldwide.
#WatchNow
in full on and HeartFailureAware on facebook
Heart failure symptoms may include a combination of
Breathlessness - You feel breathless
Exhaustion - You feel exhausted al the time
Ankle Swelling - Puffy feet and ankles
If so, tell your
#GP
as there is a simple blood test
It may be
#HeartFailure
support our
#BeatHF
campaign
We’re proud to release Parallel Hearts: Reaching New Heights for Heart Failure - a story of 3 people’s journey up Mt Snowdon to understand how heart failure symptoms affect loved ones
Share & raise hf awareness!
#reach4HF
#parallelhearts
#heartfailure
Congratulations to Dr Lisa Anderson from
@StGeorgesTrust
for becoming the new chair of
@BSHeartFailure
along with her new team of board members. Also congratulations to
@DelythRucarean
with her new appointment as Chair of
@BSHNurseForum
. We wish you all a productive conference.…
Is it a wonder why?
Increasing awareness of
#HeartFailure
outside the people that know, should be on the lips of all organisations who advocate for a better deal for people living with it. By working together we can
#BeatHF
Great dance by
@arobertwebb
on
@bbcstrictly
putting his Heart ❤️ and Soul into his routine. Robert is the voice of our National Radio campaign to raise the awareness of
#heartfailure
. Focus on the beat. Let’s
#BeatHF
together.
Here is another worthy Pumping Marvellous award winner Ann with our
#BeatHF
2023 award. Ann is very active in our heart failure community and is constantly showing her support to other members and lifting spirits with her positivity. She is simply marvellous!
Our team of 16 ran the Great North Run yesterday raising funds for heart failure patients. We are incredibly proud of everyone who took part in the event & grateful to everyone for fundraising and donating to our charities cause. Let's
#BeatHF
together! 👇
It's vitally important to know that your NHS
#HeartFailure
specialist team are STILL THERE FOR YOU, when you need them, and working hard to keep you safe >
#Covid19UK
@NHSuk
Drum 🥁 roll a special recognition for Caroline and Claire for their marvellous work in
#heartfailure
working out of Beech Tree Surgery in Selby. It’s important for patients that Primary Care is enabled to deal with all types of heart failure in the community. We will
#BeatHF
…
We wish to welcome a new member to our Clinical Advisory Board, Dr Patricia Campbell
@drpmcampbell
Now if you didn't know, she is a choir fanatic and would happily spend hours birdwatching and stargazing. Let's
#BeathHF
together
#heartfailure
is treatable
#HeartFailure
impacts 64 million globally & 1 million in the
#UK
listen why & how we help people live better with Heart Failure-Be part of our
#movement
& show support for our
#BeatHF
campaign to help people live better with heart failure. We're patient led & we need your support
BEATie has been hitting the roads again raising awareness of heart failure. This time she went to see one of our marvellous Patient Educators Dan. We are grateful to everyone who volunteers their time to our charity and shares their experiences to help others and give them hope.
The
#HeartFailure
awareness campaign
#BeatHF
has really stepped up a gear with our educational campaign hitting the beat across Liverpool One, Liverpool’s premier shopping zone.
Building awareness of heart failure is important, catching it early may improve the outcomes for…
We couldn't be happier to witness
#heartfailure
patient, charity ambassador and motivators,
@richclever
& brother Mike cross the
@LondonMarathon
finish line today, 5 yrs after diagnosis!
Please share support for this remarkable triumph!!
CONGRATULATIONS!!
We know during the first wave of the pandemic, many
#heartfailure
services melted away with resources being absorbed by
#COVID19
downstream of the decisions made,
#patients
suffered. We will not let this happen again.
#BEATHF
1,000,000 people in the UK are relying on you.
Winning a National award & a highly commended award with
@BBCLancashire
in the last few days. We cannot tell you how hard it is to get heart failure recognised. Publicity around these 2 awards has built further awareness. Well done 👏🏼 team Pumping Marvellous
@GrahamLiver
@BBCNWT
Week 1 of 2 of our
#BeatHF
campaign finished in Liverpool – another week to go, ending just before Eurovision fever hits the city. Today we showcase some of the amazing Heart Failure specialists keeping the Merseyside region pumping. Next up is another of the community teams from…
2024 will be the year that we launch our discharge packs. These packs will be given to Heart Failure patients and can be used by them to take control and manage their condition at their own pace.
Week 1 of 2 of our
#BeatHF
campaign finished in Liverpool – another week to go ending just before Eurovision fever hits the city. Today we showcase some of the amazing Heart Failure specialists keeping the Merseyside region pumping. Next up is the St Helens and Whiston Hospital…
We genuinely appreciate what
@DrRajivsankar
does for his patients across
@LivHospitals
and the wider UK
#heartfailure
scene. An award that originated from a family grieving their dad, the Roy Award is a special award for exceptional achievement
#BeatHF
Why people living with
#HeartFailure
should be reclassified to extremely vulnerable during the
#COVID19
#COVID
ー19 pandemic. Join Serena, Donna, Leah & Dan to get this message out to those who can change the narrative.
#HF
patients need clear direction on what to do
@MattHancock
Please help to separate cardiac fact from media fiction.
#HeartFailure
,
#HeartAttack
, and
#CardiacArrest
are not interchangeable terms.
Follow our unique, patient-led charity, supporting patients and making heart failure clearer for everyone.
#BeatHF
We’ve been in Merseyside again today, driving around meeting heart failure teams across the whole of the City of Liverpool.
@DrRajivsankar
@iamnickevans
and
@MammaofB
were spotting digital adverts across
@Liverpool_ONE
- one advert specifically designed for a football mad city.…
Great news that our
#HeartFailure
#Nurse
Audit has been published
@BrJCardiol
. An important analysis into the provisioning of Heart Failure Nursing services in the UK both in the Acute and Community Settings. Important for the patient and all stakeholders
Our International Award 2023 went to Ed Harding of
@HFPolicyNetwork
a well deserved win for an individual and organisation who continue to raise awareness of heart failure across Europe. It is a pleasure to be able to celebrate the marvellous work being done by everyone.
Oh no
@RishiSunak
@10DowningStreet
we see you are fixing 4 million potholes. Can you help us fix 1,000,000 UK citizens who have
#HeartFailure
- We know M.P's talk about
#potholes
more than they do about heart failure in Westminster, we studied Hansard from …
What are the symptoms of a broken boiler?
Heating doesn't work?
No hot water?
You call an engineer
What are the symptoms of
#heartfailure
?
B reathlessness
E xhaustion
A nkle Swelling
T ime for a simple blood test administered by your GP
Let's
#BeatHF
together