How can we enhance our early stage breast cancer survivorship? What will make a difference in our lives as we move from active treatment into survivorship?
#bcsm
After treatment, I put away my long dresses, not feeling like they were “me” anymore. I didn’t know who I was. Last night, after encouragement from Dave, I put one on for a party. It’s been 3 years and while I’m not the same woman, I am me.
#cancer
2 years ago, I woke up on my birthday, reeling from my breast cancer diagnosis. I had no idea what was ahead, and I was terrified. This weekend, Dave took me out to a fancy French dinner and we enjoyed the food and the time to reflect. Here’s to another year of life!
#bcsm
Telling me something is “not a big deal” when I’m calling to tell you it is, doesn’t help me feel supported and heard as a patient. If it’s a big deal to me, then it’s a big deal. Period.
The theme of the day is emotionally processing the last 8 weeks of “do I have cancer (again) or not?” Send Kleenex, chocolate, a cozy blanket, and perhaps a glass of wine!
Presenting my incredible support system!!! My husband and two sons have been lovingly supporting me, even before my cancer diagnosis. They are amazing! They keep me laughing, bring me water and heating pads, and surround me with love!
Ice cream-- probably not the best way to deal with cancer emotions, but let's be realistic. Sometimes after a rough day of appointments, scanxiety or bad news, a lovely bowl of ice cream is what it takes to put a smile on my face.
#cancer
I’m officially done with this summer of in-between! Had a check in with my oncologist and there’s nothing more I need to do except keep up with my imaging schedule! Woohoo!!
#bcsm
Four years ago this evening I went to bed with anxiety, knowing my results appointment was the following day. Tomorrow is my 4 year cancerversary. Tonight I go to bed, grateful and thankful for the days of joy and hope since that anxious night.
#bcsm
@TeachMrReed
Embrace asynchronous learning! Students and families need this flexibility! Our school is virtual only and all resources are available on demand.
Recovery day 6. Still healing physically, mentally and emotionally. I don’t have the energy to read, which is a cue that this time to heal is critical.
#recovery
I “almost” canceled my hair appointment to take care of all of the other things I need to do before Christmas. Then I thought of the ✈️ announcement “put on your own mask first”. Getting my hair done isn’t the same level of urgency, but the principle is!
Ok so I got my results. It’s a spindle cell lesion but the pathology board doesn’t know if it’s benign or malignant. So, out it must come. So not terrible but not great.
#bcsm
Please stop yelling DCIS patients their cancer isn’t cancer. Ugh. Non invasive doesn’t mean not cancer. We remove non invasive skin cancer and still call it cancer. This isn’t helpful to us when we’re dealing with our treatment options. Ok. Rant over.
#bcsm
It’s been 24 hours since I found out I need a biopsy. How am I doing? Thank you all for your good thoughts, encouragements, and prayers. Really appreciate it! I’m grateful I already have a surgeon I trust. Not excited, but doing ok.
#bcsm
Today was rough. And not because I have a follow up mammo tomorrow. This is going to a tough week. Send all the prayers and good vibes my way please 😀 thank you!!
Biopsy now scheduled for July 1, at my preferred location. I’m not happy about this next step, but I trust my team, so here we go! Now, on to more fun things- like vacation!!!!
#bcsm
So.. a biopsy is definitely in my future. Surgeon agrees with radiology (which I thought he would) so time to get that scheduled. Did I mention I hate biopsies??? Oh wait, I think I have said that before
#bcsm
I’m thrilled that my pathology was benign, butI’m still under strict activity restrictions from my surgeon. And I just might be a little (a lot) prickly if someone might imply this is a “relaxing vacation”.
So much of cancer survivorship is learning to live in the "in-betweens." Are we in-between imaging, results, surgery, treatments? Right now, I'm in-between the biopsy and results. What do I do with myself?
#bcsm
#cancer
Today’s on
#WorldCancerDay
I take a moment to thank my amazing family for their unwavering and consistent support. I couldn’t have gotten through it without you!!
As a cancer survivor I think we should get a pass at all the other hard things life can throw at us. Can someone one work on that please??. The last few weeks have been HARD. And it has nothing to do with cancer. But— today I sat down to write. So that felt good.
Will I miss
#scanxiety
every 6 months? Nope!
Am I nervous about going to annual diagnostic imaging? Yep!
Do I trust my breast surgeon’s plan? 💯!
Will I do my self-exams monthly? Yep!
Now excuse me as I plan out the next year of my life 🎉
🧵There’s no easy way to say this, so I’ll get straight to the point.
My breast cancer is back.
I’ve got another local recurrence.
I found the nodule 3 weeks ago…
My wonderfully talented mother in law made me this quilted wall hanging in honor of my debut book. I can’t wait to hang it when I get home!! Isn’t it beautiful?
It’s always a good day when your primary care doctor says your labs look great! Now to see what the radiologist has to say after my mammogram on Friday. Hoping for unremarkable and boring!!
#bcsm
Working on a new post. Why the word “Just” is a four-letter word especially for patients. It’s “just” a mammogram. We “just” need to do a biopsy. It’s “just” a one day delay for the results. Oh, it’s “just” DCIS. What are your thoughts? Share three with me, and I might include
Coping with cancer doesn't end when our active treatment finishes. The emotional weight felt more significant when I wasn't busy scheduling appointments.
I was taking a look at my lumpectomy scars this morning, and then I realized I couldn’t find my 2022 scar. It was totally invisible. Gone. That inconclusive biopsy which led to a lumpectomy left no scar. Yeah my surgeon is amazing!
#bcsm
@mssrfcali
Love you Stephanie. Praying for a peaceful and comfortable transition for you. Sending you a sunset from yesterday. Thank you for your encouragement and light to me along the way. 💕💕
I wasn't prepared to leave the mammogram with a referral for another biopsy. It had been 3 years since my last one and I was hoping for more of a reprive.
#bcsm
Still plenty of anxiety being back in my surgeon’s office.— Even with a totally normal imaging result. Post-treatment anxiety is real… and thankfully pretty fleeting for me this year!
#bcsm
There’s been quite a bit said about the harms of overdiagnosis. My question this morning, what about the harms of underdiagnosis? Missing a fast growing and aggressive cancer because we don’t use the tools available to diagnose can have a tragic impact.
#bcsm
@AshleyGWinter
Beyond all the medical tests and the vaginal estrogen recommendationsI would recommend asking about menstrual products. I changed pad brands once and had a similar issue. I discovered I’m sensitive to ones that are too “moisture wicking”
In early 2020 I was ready to find a cancer support community but there were none happening due to the pandemic. So grateful to have found this fantastic support. I began, feeling alone, and now know I’m not. Thanks!!
#BCSM
Today was tough. Emotions were overflowing. I’m grateful for the support I received when my feelings boiled over. There’s probably some writing for me to do to process it. I’m glad the day is done for now. Sleep will help! 😴
Susan M. Love, MD, MBA, who led Dr. Susan Love Foundation for Breast Cancer Research since 1995, steering the Foundation through its innovative and life-changing research and advocacy programs, has died. She was 75.
#LegacyofLove
#LoveForever
Cancer taught me to be a strong
#advocate
for things that matter. I didn’t enjoy the breast cancer but I’m grateful for the lessons I took out of it.
#bcsm
Imaging update : ultrasound done. Radiologist recommends biopsy on suspected fibroadenoma (on my non cancer side) that looks bigger. Hope to meet with my surgeon to discuss his perspective. I’m mostly annoyed because I hate biopsies.
#bcsm
I’ve been learning I have a new anxiety trigger: indecision. I need to ask myself, if I’m feeling anxious, what decision am I not making?
#anxiety
#cancer
Please, let’s move away from this “false- positive” dialogue. If I had followed the “every other year”screening advice, my cancer would have grown another year.
#bcsm
What are your most triggering
#cancer
words or statements? For me, it is the term “over treatment”. Since we don’t know which DCIS will progress, perhaps removing it should be called treatment? After all, that’s what we do with non-invasive skin cancer.
This dance workout was just what I needed to forget about my
#scanxiety
for a half an hour. Mammogram this afternoon.
#notexcited
.
#bcsm
. It doesn’t get better- I just expect it now.
I’m working through the edits for my breast cancer book and am seeking some quotes from others to add to my chapter on intimacy. It’s quite telling that the responses I get are 😶. Encouragement? Anyone? Ok thanks in advance!
#bcsm
@gradydoctor
As I was entering the teaching field, I got this advice : Make friends with the secretaries and custodians at every school you’re working in (I was a traveling music teacher). It was by far the best advice I could have gotten.
@TeachMrReed
#truth
. Been doing online learning for 13 years with my kids. I can’t believe the schedules I’m seeing being forced on the teachers and students with this new school year. It doesn’t have to be this way.
So my husband has a tiny bottle of colonoscopy prep liquid. I’m half his size and they assigned me the giant jug.
#notfair
Oh well at least I’m done with mine for 5 years.
This afternoon was all about scheduling unpleasant things. Like another diagnostic mammogram (for January) and my first colonoscopy (in November). It’s so much fun to be this age….