Hello Everyone, this is Libby's husband, Jerit (JR). I am unbelievably saddened to report that Libby passed away yesterday. She was peaceful when she went, and her family was with her during her time in hospital.
Iam here until sunday. Mayhe longer. I am no longer just tethered to o2 , i am now also trapped in this bed. I want life so badly now. I watch the world around me and wonder how all their bodies work properly while mine has managed to make thie lethal mistake. I am so scared by…
Being told i have weeks to months to live has been hard on my pshyche and my soul. I wish so badly things could be different. I want so badly to see my baby girl grow up, but its not possible. The last 4 years have been hard but this last cliff my health has fallen off has been…
The worst thing about terminal cancer, terminal anything maybe, is the loneliness. It's the way so many people walk away. They didn't sign up for this. You're too sad now. They'd be too sad when you died if they are close to you. They go on with their lives and you stand still.
Last night I broke my femur. I was sitting on my bed and twisted to get some of my apple juice. I had asked about twisting in bed and laying on top of my leg. I was informed I was fine as long as I didn't bear weight with it. Well tonight I I twisted to get a glass of apple juice…
I've been having a rough time. Due to my leg being very brittle I cannot walk on this. I don't know if this can change.
So I lay in Bed, trapped on the top floor of my house and completely dependent on those around me.
And I think about many times I did 'lasts' and didn't even…
The real test of love isnt whether they will marry you, go on dates or buy you things. Its whether they will stay wit you while you die -help you to the bathoom, empty bottles of your pleural effusion. Watch whows with you wll day when there js nothing else left you can do. This…
Today is day 7 in hospital.
I have had 2 radiation sessions and have 3 to go
Plans regarding surgery vs chemo are still not complete. I know as I get closer to the end comfort must be optimized above longevity, there is no point being alive if I'm
This last few months I've had one of my worst cancer experiences: finding a drug that works, watching my lungs getting better, being able to do more and then so quickly losing that progress, losing abilities, needing my O2 tube more again. Feeling my body gasping for air after…
A doctor called me arrogant today. Patients aren't allowed to know things. We should not know science. We should not question science. We should take our treatment. We should be grateful. You know who I think might be a touch arrogant. . .
Headed for a 5:00pm MRI. I have had a several day headache and I'm very scared whether the radiation worked from my first brain radiation for my first brain tumor (April)
My hospital roommate is about 90 and she's had visitors all day. All i can think is wow, she really won at life to be old and have so many people who love her. This afternoon her great grandchildren visited.
I woke up from a nightmare to my life which is a nightmare. My oncologist was there. She told me we were around the 3-6 month mark, regarless of whether i have chemo or not. She said the disease is affecting me a lot more - which is true. I couldnt stop crying.
Hi everyone, this is Libby's sister, Kim. Thank you so much to all of you for your outpouring of kind comments during this difficult time. I wanted to share with you some of the articles that I've seen since Libby's death so I will post them here.
How could i have had 18 years of Education and not known how terrible breast cancer was? Why was i so stupid to nod my head and walk out when my doctor said to 'Wait until i had my baby and stopped breast feeding and then come back. Maybe it was what i wanted to see, or maybe I…
On friday, I found out my infusion clinic switched pharmacies because the one they were using wasn't mixing things properly. This could account for having absolutely no side effects for the last two and infusions of enhertu . I was also uncomfortable that with how they covered…
New hat. Still need supplemental o2. My o2 falls to 85% quickly without it. I've never been so scared of this disease or close to death as I have been these last few weeks.
It's been hard. Brain tumors tumors reduce en furtured. They basically told told me I should should stop treatment. I have liver mets, ,lymph mets, brain mets and so many bone mets. This week my femur broke snapped from turning my body fo grab a juice
My rad now doctor suggested…
My special girl, the light of my life and one who keeps me going on my worst days. She was away with her grandparents and cousins this last week and I'm glad she was spared the worry about mom's hospital visits. She came home today. This is a pic of her and her grandparents dog
So I finally was taken out of the waiting room and they put me in the room I sat in the first day I found out I had breast cancer. It was emotionally triggering.
This picture shows my daughter and i at an x-ray clinic 3 years ago today. She has spent far too much of her life at doctors appointments with me. I remember she was a bit unruly on this day and the xray techs were frustrated. The medical system is definitely not well set up for…
Even when we are having a rough day with my health , this little girl always finds a way to make me smile. Violet you are so beautiful and special. I wish I could live every moment with you twice.
People don't know how lucky they are to see their kids grow up. I would give anything to do that. They don't know it's lucky to get to go to work every day , even if you hate the job there is always hope you can change it. They don't know how lucky they are to retire one day and…
Today I'm having my brain radiated at 1pm. I'm having a session of srs on my tumor. Wish me luck. There is an 80-90% chance the tumor won't come back in this location.
There are many things i can endure. The thought of dying sucks because i dont want to miss out on the future, i want to see what happens next - flying cars? Humanoid robots? A colony on mars? But honestly i can live without seeing that stuff. But leaving my daughter? The thought…
Today violet came with her dad to collect me from the hospital. I successfully walked up 4 stairs yesterday and so today I was released. My left lung is still really struggling and I'm finding o2 concentrators are harder to breathe with than pure o2 canisters. I struggled with my…
Visits with violet lately. She's sunshine on a day. Shes got a great sense of humor. Shes resilient and loving. And everytime she visits i feel this deep emptiness because i feel like im lying to her but i dont know how to tell the truth. I dont want surprise her by dying
This is my daughter. She was 6 months old here. We are at a baby and mommy group playing around. Only 19 days later I will find out I have a stage 3a breast cancer. A year after that I found out it was terminal. This picture reminds me of when I had dreams and goals and a future…
Violet had her first ballet recital today and I was able to attend. I am finding that if I bring my wheelchair I dont need my o2 (it's one of those wheelchairs you have to have someone push). Having one less thing to worry about has made going out a lot easier.
#mommingwithmets
…
Violet had two requests for me: build a snowman and walk to the park (w/o the wheelchair). The second one is going to be dependent on my next treatment and my ongoing lung struggles but we were able to build a snowman tonight. One more special memory made for my precious girl
I must remjnd myself thst although im mjssjng out on a lot , i also got to do a lot and see s lot in my 39 years snd not everyone does. Its all who you compare your own life too. The age i was diagnosed, i believe is the age i matured to because i never exoerienced a 'real life'…
Today is a Monday and the day before scan day. Tomorrow at 12:45 I will be having a CT scan of my body and brain. The next day is a PET Scan. My dad has come down to help me get to my appointments. On Thursday he is also coming with my to my lawyer to write a will.
Today I went outside. JR helped me with my o2. Don't worry the machine is inside far away from the fire. I fell asleep. I keep losing more weight because of my lack of appetite and I've lost some ( a lot) of my hair again. I was proud that I went outside. But what a beautiful…
I will continue my efforst to potentially enter clinal trial as my first and foremost goal is still to have longer wifh violet and havd my life back. But it that doesnt happen i have other plans that will get thst money helping the cancer community as well as my Violet. You can…
Surgery was at 1:30 pm. Leg hurts a lot but they have me on continuous ketamine to deal with that. It's helping my rib not hurt too. It was a rough day, but they put me on a unit on one of the newer buildings - so much nicer.
This last month has been so hard on my body and mind. I have truly become so sick and watched my body fall apart. I feel completely detached from the real world and not sure if I will ever rejoin it. My scary inability to breathe and now unbearable side effects have made it…
The pain around my lungs is so harsh tonight. It's scaring me. We are draining every other day and at this point it doesn't seem to be having much impact on my right lung. How much do I accept before I let go? My daughter asked me tonight to stay with her. Immediate tears.
Weary of staying in tiny hospital rooms with no air conditioning and a roommate who controls the blinds. I think this room in the palliative cancer ward may also be haunted
Tonight Violet and I made a Christmas wish for all the families dealing with cancer that they would have a magical Christmas and find better treatments soon. She used her giant magic wand to make sure it comes true
#Christmaswish
#cancer
#mommingwithmets
#metastaticbreastcancer
I dont understand why i have to lose my whole life to this, while the
@cantaskforce
in ottawwa think that's okay because it would cost too much to test younger women. Xrays (which are used for mammograms) have improved a lot over the years and use much less radiation. And it…
Climbed 4 flights of stairs today without supplemental o2. Yes I stopped in between. Yes I was out of breath when I got to the top, but I did it. Around 30 stairs total
@perfectrose2011
Nothing makes it okay to lose a mother so young and I know that her mother's loss will echo in all the years of her life. I also know that Violet is a strong and resilient little girl with a supportive family. I believe she will be okay. She drew me this picture of her mother as…
Brain radiation went well. But the aftermath is another headache. The team at Tom Baker Radiation did something really nice. They are now offering to decorate adult masks and the decorated mine at my request like a red cat. I cried when I saw it cause was so touched they actually…
Right now my cancer and I are in a bitter fight over my ability to breathe and it's winning. Today my left pleural lining suddenly produced 1200mL worth of fluid. Now both pleural spaces need drained. Heartbroken
My husband is ensuring my daughter has some fun while I'm in hospital. Then she comes here most evenings and begrudgingly tells me about her day (she usually wants to go on a walk to the gift store instead)
The first dose of enhertu is in. So far was ravenous from the support meds (dexemethesone) then I felt nauseous. Then I crashed into the deepest sleep at 6 and woke at 11:30pm thinking it was the next day. I also have a wicked headache
#enhertu
#metastaticbreastcancer
#stage4
I left the house today! Went to see violet at her ballet open house. We also went up the calgary tower and out for lunch. She did a great job and her ballet class and was a really good listener when her teacher was talking
#mommingwithmets
#ballet
#Calgary
My parents made a visit to see me (they live in BC). They're learning to be better caregivers. They helped me clean a bit, looked after violet during my naps and kept me entertained with conversations and a few games. If you're a family member who suddenly finds themselves as a…
I wish I had be a live for now kind of person. I wasn't and I wasted so much time on a future that didn't exist. I couldn't have known it didn't exist and as a young person one invests in the future but for me the future wasn't. I should have taken time off to travel. I wish I'd…
I'll never say no to letting her sleep beside me. Because I know this time may be so fleeting and she may needs these memories of falling asleep beside me one day. Love you forever Violet.
Marriage is so weird. You meet this person when you're at your very best and you enjoy each other's company a lot. Then they promise to be there in sickness and in health. You just don't think about sickness being 6 years later - them watching you slowy losing your abilities, or…
I long so badly for a future I will never have. Often I find myself getting excited about something and then my mind is like - but no, we won't get to do that.
Today I was supposed to get an mri of my brain l. The appointment was originally booked for 8 am today and the hospital was very nice and changed it to 8pm I felt a bit sick on the wayvover but when they got me on the mri table I started vomiting over and over against. Since a…
I will not be online very much over the next few days. My lungs have been unrelenting and I continue to struggle to breath. It's been very hard on my daughter, who desperately wanted me home but now I cannot do as much with her as before. I start
I love being her mom, but I miss when I used to be able to do active things with her like going on long walks. I know my lifestyle will affect her choices and want to be better able to show her my best self. So many small things can hold happiness and grief
#mommingwithmets
One of the things I'm finding hard about cancer is how to set hope down and move into the hospice phase. Hope is what has carried me and kept my mood elevated. When I move on to only hospice care I have to get through each day knowing I don't have hope in this life anymore. My…
Happy valentines to all, from Libby & violet. We are sending out love to all those dealing with terrible diseases and hoping that there is new hope in 2022. Also, violet and I made this card and hope everyone likes it! ♡♡♡
I got a really negative response to my posting this picture - and the fact that I took this picture at this exact moment (looking sad). Let me tell you about this room and about my reaction.
In spring 2019 I had planned a visit to my parents house. I had been working
My daughter says she is angry that I have cancer. My husband chastised her for having that emotion which upset me. I told her whatever emotion she is feeling is okay to feel. I know it upsets her when I can't do things with her. It upsets me too.
Hello everyone,
I wanted to update you on Libby's Gofundme (). Please see the update attached to this post.
Thank you so much to all of you who donated, your generosity has been humbling.
Thank you also to every person who shared Libby's story, prayed…
Breathing is so wonky right now. My PE is producing more (300mL) , but even when it's drained I can't breath with any exertion, even with 4 L /m of o2. It's scaring me thinking what else could be causing this. Really frustrating that when I should be focused on healing my legs…
@Katkat169540891
I will keep doing the right thijg for me and my family. I dont want to keep taking chemo drugs if im hurting body and energy for nothing, at some point fights include knowing when to surrendor. Dying isnt giving up
I try to offer a realistic view of living while dying. I know some of you have been here with me since day one. Some people who followed me have died. Some have found it too hard to look and walked away. I wish I could know all of you personally and keep up with your messages.
She's so attached to me that often she will not let me go to the bathroom alone. She thinks its funny, I don't want the audience. She also likes to sleep in my bed at night. We do sleep meditations together, teaching her how to self soothe. She is 4.5 now.
It's so sad that you can try to do something like share your diagnosis and spread awareness and others will see that and try to take advantage of your illness or insult you while you lay dying.
Violet caught the cold 3 days ago. She got a fever from it, even though I didn't have a fever. Same phlegmy cough though. She's feeling better today and went to get her uniforms for school.