I’m sorry(not really😉)if I’m bragging too much but I am just so incredibly proud of what
@alexmac06
has achieved today...beyond my wildest dreams that he would be doing this-50 metres?!!!!And that hes also raised over £700 for the amazing charity that has helped this happen 😊🌈
Wishing my brilliant, supercool & mega-inspiring son a
BIG HAPPY 16th BIRTHDAY!!
🎉🎉🥳🥳 🎈🎈
Can’t believe you’re 16 already kid…. From such a shaky start you have flourished beyond our expectations 😘😘😘
HAPPY 17th BIRTHDAY to the bravest, moodiest, awesome young man I know!!! ❤️ 🥳
Have a fab day
@alexmac06
& have a good party at respite tonight 🎉 🎂 🎁 😎 xxx
(And a big thank you to
@gale_uk
for yet another amazing cake!!)
How did this little one get so big & grown up?!!
𝗛𝗮𝗽𝗽𝘆 𝟭𝟱𝘁𝗵 𝗕𝗶𝗿𝘁𝗵𝗱𝗮𝘆 to my brave, strong Superhero
@alexmac06
, who does drive me up the wall sometimes & keeps me stressed & worried but that is his job!! 😘😘😘🥳
This Christmas, we won’t be visiting family & friends as we want to keep everyone safe..so poor
@alexmac06
will be stuck with just me & his Dad😂
So I thought it would be lovely to see how many Happy Christmas
#MessagesForAlex
we could get...are you in??🎅🏻🎄
#HappyChristmasAlex
Despite the really rough start to his life 18 years ago, we are incredibly proud of what
@alexmac06
has achieved in his life so far ❤️
Wishing you a HUGE HAPPY BIRTHDAY Alex, lots of love from Mum & Dad xx
Don’t stop being you!!!!🌟🌟 🌟
For those who missed it 🤷🏻♀️...this is the video of Alex’s full walk from start to finish... split in 2 as twitter doesn’t like long vids!! Part 1 is the start, Part 2 is the finish! All 50 metres!!!
#MySuperhero
My
#SuperheroChallenge
Part 1 (too long for Twitter in one go🤷🏻♂️) ... we went for the 50m option instead of 15m, as you do 😂!!! My teachers
@rainbow_house
had faith I could do it & I didn’t let you all down 🦸🏻♂️🌈🚶🏻♂️
#NeverSayNever
(still time to sponsor😉)
The relief & the joy of hearing Alex’s laughter ring round the house again after a truly awful week ☺️ Still not 100% but getting there
#SuperheroStrong
Hi everyone, just checking in to say thanks for all your messages-we’re overwhelmed by your kindness!!
I’m feeling much better today, just very tired & fed up really but need to get strong to look after Mum as she’s now got my high temp & cough 😷 Covid really is rubbish
#Day7
It was so nice to be able to go into school this afternoon to see
@alexmac06
‘s class Christmas show. They did a great job singing & signing some Christmas tunes although not sure Alex was too impressed with his get up 😂
#TryingToRemainCool
but it was nice to see him joining in🎄
Big week for
@alexmac06
…yesterday was Prize giving at school & then we’ve just dropped him off for his first night out without us at the school Leavers Prom!! (Not his official prom which’ll be in a couple of years!)
#CoolDude
#ProudMum
I really can brag this time!! We are so proud of this kid for smashing his 15m
#SuperheroChallenge
by walking 5️⃣0️⃣m but being nominated & shortlisted for this Award is just unbelievably amazing!!!
He has tough competition so PLEASE VOTE ALEX & help him win this
#MegaProudMum
☺️
I’ve been shortlisted for
@JustGiving
Young Fundraiser of the Year after smashing my Superhero Challenge👇
Please vote & RT like crazy-help me win this for everyone
@rainbow_house
as well
#VoteALEX
#JGAwards
😎🦸🏻♂️
My story👉🏻
And the reason why we need more
@CP_Consortium
Changing Places .... a 13 year old doesn’t really fit on a baby changing table 🤦🏻♀️ I refuse to put
@alexmac06
on the floor + my back couldn’t take lifting him back up off the floor anyway!!
#ThatWasAnInterestingChange
!!!
This teenager has gone beyond expectations.
Despite having severe cerebral palsy, Alex Macpherson unexpectedly walked an incredible 50 metres to raise funds for Rainbow House - a respite centre that has changed his life.
|
@alexmac06
|
@rainbow_house
|
@JustGiving
|
Just cos it’s school holidays, doesn’t mean
@alexmac06
gets a complete break…still needs his
#ConductiveEducation
with
@ConductorNeuro
!!!
So proud of how well he can sit on a chair now & how grown up he looks👀 .. don’t miss the excellent teenage sigh at the end 😂
#ProudMum
Day 7 and young
@alexmac06
is dressed & out of bed!!! Hopefully, if things go to plan 🤞, we might escape in a day or two… Hope so anyway cos he’s got an award ceremony to go to on Wednesday!!!
Rocking his new
#TheBluebells
T-shirt!
#AlexsTshirtCollection
Being seriously stressed out & worried Mum…we thought
@alexmac06
was doing really well & on the mend but he’s gone downhill today.. no idea why & scared what it might be 😢 Praying it’s not a surgery job & that we’re home soon instead 🤞🤞🤞🤞🤞🤞🤞
“Not because I am strong, not because I am superwoman and not because I have any special skills but, quite simply, because I am his mum and it is what he needs.”
OMG, did NOT expect this!!!
I was an emotional wreck when
@alexmac06
got in from school as he brought this home with him.... his very first qualification certificate!!! Totally unexpected, as I know he’ll never do exams,& just brilliant!!!!
(This is just part of his submission)
....make that so very nearly £3000 raised for the utterly amazing
@rainbow_house
where magic really does happen ❤️ We can’t thank them enough for making a real difference to the life & independence of my superhero Alex 😊
#feelingalittlebitemotional
I’m sorry(not really😉)if I’m bragging too much but I am just so incredibly proud of what
@alexmac06
has achieved today...beyond my wildest dreams that he would be doing this-50 metres?!!!!And that hes also raised over £700 for the amazing charity that has helped this happen 😊🌈
My boy will never take an exam…maybe that’s a good thing 🤔 And he’ll never be able to have a job but he more than makes up for all that when he makes us smile!!!!
And of course, he’ll always have his
@JustGiving
Award!!! ❤️
Thank you again for all your messages yesterday for
@alexmac06
, it was just amazing & very special for us all! He loved them all & this is the reaction we got to all the videos in particular.... Alex enjoying a bit of
@thefatcops
#ProudMum
#MumOfATeenager
#LoveThis
❤️
We’re all mega mega tired (I’ve just about scraped 6 hrs total sleep in the last 48 🥱) but at least we’ve had a smile this afternoon 😊
Will be here for a few more days but so far Drs are happy it’s nothing scary
I’m sorry but I’m going to share this again as I’m so incredibly proud of my boy
@alexmac06
...this time next week we’ll be finding out if he’s won the
#YoungFundraiserOfTheYearAward
Keeping all fingers crossed, but they’re all winners anyway!
#MySuperhero
This teenager has gone beyond expectations.
Despite having severe cerebral palsy, Alex Macpherson unexpectedly walked an incredible 50 metres to raise funds for Rainbow House - a respite centre that has changed his life.
|
@alexmac06
|
@rainbow_house
|
@JustGiving
|
Imagine not being able to use your arms cos the messages from your brain are getting so muddled your muscles don’t do as you want…this is how cerebral palsy affects
@alexmac06
& why his
#RainbowRamble
Challenge was harder for him than it looks!!
#ProudMum
We’ve had a good day today with lots of smiles…mainly because he’s now on full bowel rest so his tummy doesn’t hurt (as much?) Still no nearer to knowing exactly what the problem is though or how serious it is & how to fix him … Waiting further investigation after the weekend..
So
#proud
of my boy…. The effect of the dreaded puberty + lockdown means he has so much pain & discomfort in his legs etc…his legs & shoulders/spine have gone really tight & wonky making everything much harder & he can’t manage to stand up straight BUT he still has a go!!! 🥰
Final day of the
@SuperheroTri
#FindYourPower
week & I’ve finished it off taking a few steps in my walker! So I’ve done 20km credit for being brave (blood tests), over a km on my trike & 5m walking, for
#TeamRhiannon
@rhiannonclem
..all for fun this time rather than fundraising!
The resilience of this young man never ceases to amaze me!!!
Yesterday afternoon it was an ambulance ride to A&E with projectile 🤮 with blood & aspiration.... today he comes home from school like this ⬇️... in a very giddy mood! 🤷🏻♀️😂
#ProudMum
Someone must be feeling a bit better…first quality sleep in 3 days!
He looks like a pin cushion from trying to site cannulas but bowels seem to have got going again-now its the slow process of building him back up to usual meals etc & Drs think this will become a regular thing😭
My
#CerebralPalsyHero
-he started off life in NICU after being born not breathing etc He doesn’t let CP define him & has surprised all the medics/professionals with what he’s achieved against the odds His disabilities are severe but they don’t hold him back!
#worldcerebralpalsyday
I just love it when your kid utterly astounds the professionals!!!
Just had a visit from
@alexmac06
’s physio & he was speechless when he saw the video of him taking a walk in his walker. So pleased with him after his leg & hand ops
#NeverSayNever
😊😊
Whenever we go out as a family one of us always has to walk behind
@alexmac06
to push his wheelchair so I can’t put into words how special it was today to be able to walk/pedal side by side down the prom as a proper family!! 😍
#ProudMum
#NotEasyToTakeASelfieWhileWalking
Well after a rough couple of weeks with 2 lots of planned surgery, this wasn’t part of the recovery plan 🤦🏻♀️
My baby boy’s tummy is causing problems again 😢
#HotelHospital
#ItsSoNotFair
Had a lovely walk this afternoon with my 15yr old!!!! Desperate to go somewhere more exciting than round the block but we’re a bit limited locally with a normal wheelchair but he’s happy watching the traffic 😂 🤦🏻♀️ 🚌 🚛 🚙
Its hard to admit but I’m finding everything really hard at the mo…
Having seen my boy so poorly & in pain/discomfort, fed up & bored while hes stuck at home + working to get him tolerating his normal amounts of feed etc.. all on a hefty lack of sleep, has finally broken me 😢😩
Its Friday & theres a storm coming😳so thought I’d brighten up the day with this..
Not all superheroes wear capes but this one does🦸🏻♂️
@alexmac06
My little hero is struggling a bit at the mo cos of growing pains but he’ll get through it🤞
#ProudMum
His story➡️
Apologies for the lack of updates for
@alexmac06
this week…I hate to admit it but after 2 weeks of stress/worry/even less sleep than usual-I’m struggling a bit🤦🏻♀️
#FeelShocking
😩
BUT, my boy is doing really well & had a gentle session with
@ConductorNeuro
this morning
#OnTheMend
💪
Thank you all for your lovely messages about
@alexmac06
& sorry I’ve not replied, as you can imagine it’s pretty mad & stressful here at the mo🤦🏻♀️
He’s very up & down & we had a bit of a bad night last night, but he’s a bit brighter today albeit very tired
#worstnightmare
🦠
Hurray, the smiles back!!! After a day of being miserable yesterday, my boy’s had a good day back in school ... normal service is resumed 🤞 (for now at least 😂)
Thank you everyone for all your messages…Yes, I’m still in hospital but slowly getting better & very bored!!!! Tummy’s starting to work but it’ll be a few more days I think, before I can escape ☹️
#BeMoreAlex
#AlexsCoolTShirtCollection
Being seriously stressed out & worried Mum…we thought
@alexmac06
was doing really well & on the mend but he’s gone downhill today.. no idea why & scared what it might be 😢 Praying it’s not a surgery job & that we’re home soon instead 🤞🤞🤞🤞🤞🤞🤞
So its 6 weeks post-positive Covid test & despite having relatively mild symptoms at the time, I’m still struggling to breathe!! Getting better but slowly, so it was nice to go out for a little walk with my wee man this afternoon!! Now it’s time to recover with my fave mug
I have give a huge shoutout & thank you to
@LancsHospPaeds
PAU for being on the end of the phone for advice & reassurance on how to manage
@alexmac06
’s Covid at home. I have to admit I’m scared for him (& us!) so it’s good to have someone to call
A sad day as another of
@alexmac06
’s CP warrior friends has become a star in the sky😢
A stark reminder of how fragile life can be especially when complex health is involved & to make the most of every minute with my boy giving him as many experiences & memories as we can…
Wishing my Superhero
@alexmac06
an absolutely huge HAPPY 13th BIRTHDAY .... you’ve come so far in 13 years with some big ups & downs but keep on working hard & being cheeky kiddo but not too much teenage attitude ok!!!! 😘😘
At the age of 15 & a half we’ve finally moved on from back to back episodes of CBeebies Gigglebiz & Mister Maker at teatime……. to back to back Storage Hunters!!! 🤦🏻♀️
At least someone is happy 👇😂
Not every day is a good day 😢 A miserable boy missing school today... no idea what’s wrong but somethings not right 🤷🏻♀️ So frustrating when he can’t tell us
#Nonverbal
After this mornings ‘training’ session... I’ve been out & smashed my target!!
32 steps this aft + the 10 this morning gives a grand total of 4️⃣2️⃣ done🦸🏻♂️
I’m a bit sore now but so chuffed I did it
#NotEasy
#BeMoreAlex
#VirtualRainbowRamble
@rainbowhubnw
Oh my..he’s only gone & done it 😊😊 I wasn’t sure he’d manage it after being poorly but
@alexmac06
SMASHED IT!!! 2 miles, 1 hr 8 mins mostly pedalling hard (sore legs tonight!) Bursting with pride
#MySuperHero
OR
Text XELA68 £5/£10 to 70070
This wasn’t part of our Christmas Eve plans .... & looks like someone won’t be getting wrapped pressies tomorrow!! 🤦🏻♀️
Waiting to find out whats up with him
#medicalmystery
#CausingTroubleAgain
14 years ago, this amazing kid came crashing into our lives & sent us down a completely different path to what we expected as a family There’s been lows & its been hard at times but theres also been huge amazing high points! HAPPY BIRTHDAY
@alexmac06
from your proud Mum & Dad 😘
I’m incredibly proud of this young man who despite all his difficulties, still makes us smile!!
This past year has been extra tough with his massive growth spurts & the problems they cause,without the backup of the professionals needed to get him through it😞
#BraveWarrior
#MyHero
Today is
#CerebralPalsyAwarenessDay
💚
I have Dystonic Quadriplegic CP, Grade 5 which is the worst BUT as you all know, I don’t let it stop me having fun!!
I work really hard to achieve the impossible!
But unfortunately I don’t have anything green to wear🤦🏻♂️
#GoGreen4CP
#BeMoreAlex
I’m sorry(not really😉)if I’m bragging too much but I am just so incredibly proud of what
@alexmac06
has achieved today...beyond my wildest dreams that he would be doing this-50 metres?!!!!And that hes also raised over £700 for the amazing charity that has helped this happen 😊🌈
Finally at the 5th attempt
@alexmac06
has gone to theatre for his Intrathecal Baclofen test dose! So we’ve got a couple of days
@AlderHey
& fingers crossed it has a good effect 🤞
Early start but he’s rocking his
@PyjamaFairies
gown 😎🦸🏻♂️
📣Big Announcement time📣
It’s been really hard to keep this quiet for the last 3 weeks but today I’m allowed to proudly announce that I have been chosen to receive a British Citizens Youth Award in recognition of my fundraising for
@rainbowhubnw
#BeMoreAlex
#BCyA2022
1/2
Why is
@alexmac06
in the final 3️⃣ for
@JustGiving
Young Fundraiser of the Year? He stunned us by walking 50m at the
@rainbow_house
Ramble ⬇️ & has now raised nearly £3200
Please vote for him & make our trip to the awards in London extra special🗳
#VoteALEX
Think this little monster is pleased to see me after his sleepover (for a change!) .... however I’m not impressed that after weeks of getting us up at 5am-ish, he had a lie in this morning til 6:30!!! But how can I be mad at that smile 😊
#littlemonkey
#teenager
That’s me all checked in
@AlderHey
& ready to go 😳 with my cool new
@PyjamaFairies
gown 👍😎 Botox jabs are waiting for me in surgery to help sort out some sore muscles 🤞🤞🤞
And a big thank you from me as well for you all joining in the birthday fun & helping Alex have so many cards to open!!! I won’t lie, I was a little worried it would a sack full but in the end, it’s been just right!!! 🙏🙏🙏✉️
A MASSIVE THANK YOU to everyone who sent me all these fantastic birthday cards & presents. I’m still working my way through them all, there are sooo many!!!
#Amazing
#BeMoreAlex
#Im18
🥳🎁🎉🎂🎈
It is done!!!! Took a bit of convincing I’m a carer (as parent carers don’t have a card to prove it!!!) but they did give me a sticker!!! Bring on the side effects now 😫
Breaks my heart listening to
@alexmac06
crying himself to sleep(I use the word sleep loosely😳)every night..so hard to help him when he can’t tell us what’s wrong😢 Something/everything is sore & achy but don’t know exactly what & nothing seems to sortit
#SideEffectsOfLockdown
💔
The best way to end a decade of lots of ups as well as some very scary downs in the life of being
@alexmac06
’s Mum He’s had some very tough times in the last few years but it hasn’t let it stop him!!! Happy New Year to you all & Thank you all for being there!
#JustLoveThatLaugh