Joanna Grace @jo3grace Twitter profile

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Joanna Grace

@jo3grace

6 years

Jo Grace - The Sensory Projects

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Joanna Grace

@jo3grace

4 years

Introducing Elias, The Sensory Projects new Little Assistant

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Joanna Grace

@jo3grace

5 years

Today I did this

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Joanna Grace

@jo3grace

4 years

Today my son became the youngest published author in the UK. He wrote his book "My Mummy is Autistic" when he has just turned 5 years old. Chris Packham kindly foreworded the book. #ActuallyAutistic

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Joanna Grace

@jo3grace

3 years

I have been granted funding to study a phd in identity and belonging for people with profound and multiple learning disabilities with Melanie Nind and Jo Hope at Southampton University. Terrifying!

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Joanna Grace

@jo3grace

5 years

Autistic brains produce 42% more information at rest, which could account for why they are more easily overloaded and for why people with autism experience a more pronounced mental inner life

Information gain in the brain's resting state: A new perspective on autism

Along with the study of brain activity evoked by external stimuli, an increased interest in the research of background, “noisy” brain activity is fast developing in current neuroscience. It is...

www.frontiersin.org

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Joanna Grace

@jo3grace

4 years

The Sensory Projects hopes to have a little assistant joining us in July sometime.

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Joanna Grace

@jo3grace

5 years

Heavily Decorated Classrooms Disrupt Attention and Learning In Young Children

Heavily Decorated Classrooms Disrupt Attention and Learning In Young Children

Researchers hope some new findings may eventually generate guidelines to help teachers optimally design classrooms.

www.psychologicalscience.org

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Joanna Grace

@jo3grace

8 years

Jo Grace - The Sensory Project

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Joanna Grace

@jo3grace

6 years

Working with people with PMLD is joyous. The world would be a better place if they were better included, supported, and just simply seen more of! #weldns #pmldchat

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Joanna Grace

@jo3grace

4 years

Keeping this a secret has been an epic task! When my son was 4 years old an accident in the supermarket led to us having some frank conversations To assess his understanding I asked him to draw me a picture. A year later with a foreword by @ChrisGPackham

My Mummy is Autistic: A Picture Book and Guide about Recognising and Understanding Difference

This original and imaginative book has been created by five-year-old Heath. In it, Heath illustrates his understanding of his autistic mother Joanna, giving insight into the different ways in which...

www.routledge.com

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Joanna Grace

@jo3grace

4 years

Love this!

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Joanna Grace

@jo3grace

3 years

Thank you @ReframingAutism

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Joanna Grace

@jo3grace

3 years

@aclientfirst @super___someone @commaficionado Kindness response I had was someone who looked shocked and said "goodness you must be exhausted with masking" with genuine compassion.

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Joanna Grace

@jo3grace

6 years

All behaviour is communication. So it is all attention seeking because to communicate you have to attract attention. But the point is not to get attention it is to convey meaning. It might be a flawed form of communication but it ought to be listened to.

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Joanna Grace

@jo3grace

4 years

I first met this fantastic young man in a tweet, for years I've chatted with his mum online, seen countless videos and helped out with a bit of advice here & there. Today I got to meet him. One of the highlights of my year (I got married this year so I have to allow for 1 other)

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Joanna Grace

@jo3grace

3 years

Today I started a PhD

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Joanna Grace

@jo3grace

3 years

Today I began a PhD.

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Joanna Grace

@jo3grace

3 years

A small perfect moment.

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Joanna Grace

@jo3grace

4 years

When I got married we had our reception in a field decorated with homemade bunting. Earlier this week my mum, at a social distance, dropped off this. She has made from off cuts of the bunting.

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Joanna Grace

@jo3grace

1 year

"Intensive interaction is not an optional extra, it is absolutely essential to wellbeing for people with profound disabilities" @UsInABus #connectinglives

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Joanna Grace

@jo3grace

3 years

Gorgeous sensory christmas gift

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Joanna Grace

@jo3grace

2 years

My first paper as a doctoral researcher. Open source, so not hidden behind a pay wall. Co-authored with @CatherinedeHaa1 @_jo_hope & @m_nind I'm funded by @ESRC @SouthCoastDTP & enormously grateful! #phdlife #PhDChat #AcademicTwitter #AcademicChatter

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Joanna Grace

@jo3grace

4 years

Morris (2003) All children have something to communicate, whatever their cognitive impairment. We must find ways to listen.

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Joanna Grace

@jo3grace

10 months

The autistic child did not fit in. They did not presume that this was the child's fault. Instead they recognised the lack of fit as a problem with the space created by the group, and taught the group how to change!

A simple intervention could help promote understanding of autistic children

Many interventions for autistic children are aimed at helping them change to “fit in,” but a recent study shows that simply sharing key information encourages engagement and understanding by peers in...

www.ualberta.ca

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Joanna Grace

@jo3grace

3 years

Delighted to be being funded by @SouthCoastDTP to study for a PhD in identity and belonging for people with Profound and Multiple Learning Disabilities under the supervision of one of my heros @m_nind

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Joanna Grace

@jo3grace

4 years

I'm watching BBC2, witnessing the crystal clear sense of justice - typical of autistics- being demonstrated so beautifully by Chris Packham & wondering if autistics like him & Greta Thunberg might save the world.

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Joanna Grace

@jo3grace

2 years

DRUM ROLL.....TA DA! This has been difficult to keep secret, but now I'm allowed to shout it from the rooftops. My first ever book, The Sensory Stories book, is going to have a second edition: bigger and better than the first!

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Joanna Grace

@jo3grace

8 years

I would be proud to be a member of a country who welcomed refugees #Exodus

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Joanna Grace

@jo3grace

4 months

PUBLISHED! The 2nd paper I've been a part of during my PhD was published today! #phdlife #phdlife #phdchat #phdvoice @SouthCoastDTP @CRI_UoS @UoSDocCollege #AutisticsInAcademia

Expanding Possibilities for Inclusive Research: Learning from People with Profound Intellectual and...

This paper pursues the argument that finding a way for people with profound intellectual and multiple disabilities to belong in inclusive research requires starting from a deep knowledge of the...

www.mdpi.com

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Joanna Grace

@jo3grace

5 years

Dad has put a red cloth in the fireplace "to make it look warm" @rhodri and they can check on me at any time through the old serving hatch. #DuvetKnowItsChristmas

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Joanna Grace

@jo3grace

5 years

Today my journey has taken a few hours longer than planned. Because someone decided they no longer wanted to be alive. So I felt the sun on my skin that they can no longer feel. And now the coldness of night. Safe travels to them.

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Joanna Grace

@jo3grace

6 years

I am one of the contributors to this report. Hopefully it reaches the right ears! Dementia and people with learning disabilities: making reasonable adjustments This new report on improving care for people with dementia and...

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Joanna Grace

@jo3grace

4 years

Well due to the new guidance I am now to be isolated for 3 months. I'll lose my earnings for the year, but there are more important things than money. Most worrying is being banned from the gym means the bump and I have to take up running! Label in case people mistake it for cake

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Joanna Grace

@jo3grace

2 years

Guess who woke up at 3am excited to be Mrs Tumble for the day?

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Joanna Grace

@jo3grace

4 years

Joining the ranks of #teacher5oclockclub with my 5 day old Patrick Stewart lookalike. I've a list of FREE inclusive educational resources on my site that may come in handy, especially for special educators

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Joanna Grace

@jo3grace

5 years

Prototyping....

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Joanna Grace

@jo3grace

6 years

This was quite a personal challenge for me, but @SazBrisdion #Looadvent has been a fantastic example of all that's great about social media, raising awareness of the @CP_Consortium campaign, even getting it on @TheLastLeg so here's mine for #Christmaseve ! @WhoGivesACrapTP ?

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Joanna Grace

@jo3grace

2 years

@keith_campion Neurodivergent sight & neurotypical sight work differently. Many autistic children struggle with the visual processing required in the average classroom. So whilst it might make little difference for the non autistic children it would likely make school life easier for others.

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Joanna Grace

@jo3grace

4 years

10 years ago I started working as an independent. The Sensory Projects, in some form, were around then, but The Sensory Story Project began in 2013. Here is me at the end of the Kickstarter packing up sensory stories to ship internationally. The change is almost unfathomable.

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Joanna Grace

@jo3grace

7 years

#eddieisitok that not everyone has a place to pee? #incloosion

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Joanna Grace

@jo3grace

3 years

Morris (2003) All children have something to communicate, whatever their cognitive impairment. We must find ways to listen.

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Joanna Grace

@jo3grace

2 years

Delighted to get to meet this book today. I had the pleasure of reviewing it pre publication, and you'll find my name squirrelled away inside the front cover somewhere. Congratulations Cathy! @AutisticGirls_

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Joanna Grace

@jo3grace

4 years

This is very exciting for me. The research that I did, which underpinned the book: Multiple Multisensory Rooms: Myth Busting the Magic, has made it through the peer review process and been published in the Tizard Learning Disability Review!

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Joanna Grace

@jo3grace

11 months

Today documented in selfies and doughnuts. I passed the viva. Does it show? #phdlife I failed a different aspect of phding though... #phdlife #phdchat #phdvoice @SouthCoastDTP @CRI_UoS @UoSDocCollege #AutisticsInAcademia

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Joanna Grace

@jo3grace

3 years

“One can learn from people with profound disabilities how to be, rather than to frenetically do, how to honour and value small things, how to construct meaning together” (Grove, 2012 p347).

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Joanna Grace

@jo3grace

6 years

Gulp: I've just been told that my seminar at TES SEN is one of two that are sold out. Should be excited or scared?

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Joanna Grace

@jo3grace

3 years

Heading out to the fish and chip shop, my brainbow leggings seemed a little bright but I think I've found a solution. Not so bright now are they!

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Joanna Grace

@jo3grace

5 years

Today I received a pleasant surprise in the post from the House of Commons! @DimensionsUK

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Joanna Grace

@jo3grace

6 years

River Island hires child models with disabilities for their new campaign

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Joanna Grace

@jo3grace

3 years

We were asked to do a cover shoot! A magazine is running a competition for people to win copies of trying to get the 3 of us to smile in the same direction is pretty much an impossible task. I think this is the best one!

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Joanna Grace

@jo3grace

4 years

Took my little assistant for a new sensory experience today.

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Joanna Grace

@jo3grace

2 years

New frock was on the table when I got home!

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Joanna Grace

@jo3grace

29 days

I left home at 8.30am, got to my hotel at 7pm, but on the way I popped into @RowcroftHospice to talk to their fantastic staff & volunteers about how they can better support neurodivergent people at the end of their lives. How lovely is it that this is something they want to know?

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Joanna Grace

@jo3grace

9 months

Today I presented my methodology for doing research with people with profound intellectual & multiple disabilities at #ecer2023 #phdlife #phdchat #phdvoice @SouthCoastDTP @CRI_UoS @UoSDocCollege #AutisticsInAcademia 1st paper: 2nd currently being written!

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Joanna Grace

@jo3grace

2 years

Presenting The Ning Nang Nong

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Joanna Grace

@jo3grace

5 years

I've nailed X

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Joanna Grace

@jo3grace

2 years

Children with profound cognitive impairment are vulnerable to poor pain assessment and management. Carter et al 2016

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Joanna Grace

@jo3grace

6 months

At some point we will start using the @WhoGivesACrapTP as loo roll, but we're a week into playing with it now....

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Joanna Grace

@jo3grace

6 years

After a scary summer, 1 lump...3 lumps...2 biopsies, too many stitches, it is wonderful to have had cancer crossed off the list of possible things. The NHS have been amazing, to me and my small assistant (who even sat in on surgery) very much looking forward to hitting the rails.

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Joanna Grace

@jo3grace

3 years

Howard (2013) learning to communicate “no” is one of the most powerful skills we can teach, however inconvenient its learning may prove #PMLD

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Joanna Grace

@jo3grace

1 year

I popped in to see Chlöe today, her Mum had suggested I chat to her about my PhD but we ended up playing a bunch of silly games instead! #phdlife #phdvoice #phdchat @ESRC @SouthCoastDTP @UoSDocCollege #AutisticAcademic Follow this thread to see what we got up to :-)

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Joanna Grace

@jo3grace

3 years

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Joanna Grace

@jo3grace

5 years

Orr (2000) a multi sensory room is only as good as the member of staff facilitating the experience.

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Joanna Grace

@jo3grace

4 years

Boogying with my babies!

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Joanna Grace

@jo3grace

10 days

This one means a lot to me. I've been shortlisted for The Shaw Trust's Disability Power List of the One Hundred most influential Disabled People in the UK #DisabilityPower100 (Don't worry, it is not an asking for votes situation, the judging is done by looking at what you do)

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Joanna Grace

@jo3grace

2 years

Friday night hooping with wine! To early 90s top of the pops on the TV. First time around I didn't understand any of it, but with a few decades of run up I recognise quite a few: Take That, Deacon Blue,, Shaggy, Blurr, Soul Asylum, I will get there in the end!

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Joanna Grace

@jo3grace

6 years

Inclusion is not something we do FOR children with special needs it is something we do FOR society #senexchange

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Joanna Grace

@jo3grace

2 years

Grove (2012) ”One can learn from people with profound disabilities how to be, rather than to frenetically do, how to honour & value small things, how to construct meaning together”

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Joanna Grace

@jo3grace

3 years

My husband is complaining about me on social media. Free tinsel people, I know you understand!

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Joanna Grace

@jo3grace

4 years

Thread. I've been published in the latest edition of SEN magazine talking about dangerous assumptions for people with profound and multiple learning disabilities.

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Joanna Grace

@jo3grace

3 years

Ooops

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Joanna Grace

@jo3grace

4 years

As practitioners, it is important to challenge the assumption that unusual behaviour is attention-seeking or ‘deliberate’ and consider whether there may be an underlying mental health component.

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Joanna Grace

@jo3grace

6 years

Equal opportunities isn't about treating all children the same -that's bollocks- it's giving all children and equal opportunity to have their needs met and responded to. Richard Aird #HWMWB

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Joanna Grace

@jo3grace

4 years

“If a firm sticks the word sensory infront of a piece of equipment it is a licence to triple the price”

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Joanna Grace

@jo3grace

2 years

Sensory stories have long been a hidden gem of special education, I am part of the ALN/SEN seminars at #NES2022 but the stories are for everyone! The presentation comes with a confetti warning!

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Joanna Grace

@jo3grace

4 years

Great find responds to sound, challenge children to keep the balls still (silence) or encourage vocalising with the responsiveness of the balls bouncing. Thank you Richard Hirstwood for the tip off!

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Joanna Grace

@jo3grace

1 year

After 2 sloe gins I decided to take all the notes I've been using for referencing the document I've been writing this month for my PhD and celebrate in my own way! #phdvoice #phdlife #phdchat @ESRC @SouthCoastDTP @UoSDocCollege #AcademicChatter

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Joanna Grace

@jo3grace

6 years

It turns out that this is one of the most controversial articles I have ever written. It has been trolled on twitter by 'experts' in behaviour who believe children just do things spontaneously because they want to be annoying....

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Joanna Grace

@jo3grace

4 years

I'm ill so my mum has bought me three pears and an avocado...who knows why, but it's definitely love

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Joanna Grace

@jo3grace

1 year

Today we went to visit Chlöe to share some chocolates and cuddles, scroll this thread for an insight into our conversation. #phdvoice #phdlife #phdchat @ESRC @SouthCoastDTP @UoSDocCollege #AcademicChatter

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Joanna Grace

@jo3grace

2 years

Flo Longhorn is setting up a website celebrating 50 years of good practice in special education @PMLDlink

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Joanna Grace

@jo3grace

1 year

@jlsmilges Classes led by drag Queens. I am there for this.

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Joanna Grace

@jo3grace

8 years

Someone's ability to communicate does not depend on the mastery of certain skills, but on our ability to listen.

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Joanna Grace

@jo3grace

2 months

Well I do not know who did this (and I have tried to figure it out!) but thank you so much! The hope is always with something like this is that it could be used to shine a light on the population of people described as having profound and multiple learning disabilities,

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Joanna Grace

@jo3grace

1 year

FREE: Creating Sensory Accessibility - this workshop is currently available to study for free via The Sensory Projects online college, please share with people you think would find it useful. #sensory #inclusion #SendTips #MuseumHour #SEND #accessibility

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Joanna Grace

@jo3grace

5 years

Hirstwood and Gray (1995) multi sensory rooms only work because people get one to one time, the most important factor in learning is the interaction of people and this can be done outside the bounds of technology

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Joanna Grace

@jo3grace

2 years

Because sometimes you need bigger paper....and jelly tots...you always need jelly tots. (I think #PhD could be creating the jelly tot equivalent of a drinking habit! #jellytotshot #phdlife #phdchat ) I'm studying Identity and Belonging for people with PMLD funded by @SouthCoastDTP

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Joanna Grace

@jo3grace

2 years

What an email to wake up to! #phdlife #phdchat @ESRC @SouthCoastDTP #AcademicTwitter #AcademicChatter

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Joanna Grace

@jo3grace

3 years

I made my own dinner

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Joanna Grace

@jo3grace

3 years

Out on the 14th, some pre orders have already been posted. I'm feeling very very nervous. #ActuallyAutistic

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Joanna Grace

@jo3grace

5 years

Bag hooks in toilets make me a little sad. They recognise that our bags are too precious to lie on the toilet floor but a lack of @CP_Consortium changing places provision says our loved ones are not so precious.

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Joanna Grace

@jo3grace

6 years

What a great first day! #PCPC18 lots of fabulous LD nurses on board with the new Core and Essential Service Standards for Supporting people with PMLD #PMLDchat download yours for free

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Joanna Grace

@jo3grace

1 year

My mum turns 70 this year. This is her this morning: "The sun is out, it is just behind the clouds".

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Joanna Grace

@jo3grace

4 months

Trying to paint my thesis. This is the intentional flow of doing research with people with profound intellectual & multiple disabilities (in case you're wondering research is bottom left!) #phdlife #phdchat #phdvoice @SouthCoastDTP @CRI_UoS @UoSDocCollege #AutisticsInAcademia

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Joanna Grace

@jo3grace

7 years

Communication isn't dependent on a person having a set of skills, it's dependent on the ability of those around to listen in multiple ways

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Joanna Grace

@jo3grace

1 year

I am studying Identity and Belonging for people with Profound Intellectual and Multiple Disabilities funded by the @ESRC via @SouthCoastDTP at @UoSDocCollege #phdlife #phdvoice #phdchat I love the simplicity of this statement (in my work it's a little more complex ;-) )

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Joanna Grace

@jo3grace

5 months

I can confirm that at midnight, 1.30am, 2.30, 2.35, 4.30 and 5am it was not Christmas yet...but now it is: Happy Christmas everyone!

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Joanna Grace

@jo3grace

3 years

@bbcbitesize @cbbc @BBCTwo @ProfBrianCox @BBCiPlayer It would be great to see you offering resources for SPECIAL schools too. They are being left out by the politicians, if you featured them then very vulnerable children might be considered. I know lots of people who would help you.

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