James - Diagnosed Dad @diagnosed_dad Twitter profile

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James - Diagnosed Dad

@diagnosed_dad

5 months

Another year. Another family Christmas photo I’m so grateful to still be apart of.🎄 Not today MND. 💪🏻 #christmas #family #wife #children #love #memories #mnd #als #motorneurondisease #christmasjumper #santa #santaclaus

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James - Diagnosed Dad

@diagnosed_dad

5 months

Since being diagnosed I’ve found myself living by positive quotes which help me mentally deal with MND/ALS. So I thought I’d share them with you in a new series of posts I’m calling - INSPIRE ME. Drop your thoughts and even your quotes in the comments below.👇🏻 #inspirational

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James - Diagnosed Dad

@diagnosed_dad

11 months

So I started a Smart #trial for a #drug to hopefully help my Motor Neurone #Disease just over a week ago now. I don’t know what I’m taking out of the 3 drugs or #placebo but I’m having some side effects. Am I on one of the three #drugs ? Who knows 🤷🏻‍♂️ #clinicaltrial #mnd #als

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 8 - 15k steps per day in aid of @mndassoc I sometimes forget my MND won’t affect me but today I realised I had to listen to my body and know when to stop as I was completely shattered. 🥱 Only 10k steps today. You may have won today MND but tomorrow is a new day. 💪🏻

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James - Diagnosed Dad

@diagnosed_dad

1 year

DAY 4 Posting everyday this month for MND awareness day on 21st June. IS MND HEREDITARY?? #beyondmnd #mnd #als #raisingawareness @mndassoc

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James - Diagnosed Dad

@diagnosed_dad

3 months

A little bit about my initial diagnosis & prognosis with a glimpse into my pending first YouTube video 💪🏻 #mnd #als #motornuronedisease #hospital #doctor #diagnosis

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James - Diagnosed Dad

@diagnosed_dad

4 months

COMPLETED IT MATE 🥇 465,000 steps 220 miles 27,900 calories burnt 31 bottles of red wine consumed Over £1200 raised in donations. 🙏🏻 Thank you so much to everyone that has donated and supported me along the way. ✌🏻 #teammnd #mnd #stepschallenge #mnda #medal #als I

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James - Diagnosed Dad

@diagnosed_dad

3 months

NEWS FLASH 🚨 I’ve been invited by The All Party Parliamentary Group to speak in Parliament. Let’s keep banging that 🥁 #mnd #als #parliament #london #appg #motorneuronedisease

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James - Diagnosed Dad

@diagnosed_dad

5 months

Another year older and another massive🖕🏻to Motor Neurone Disease. Bit of fun - guess my age. Answers in the comments 💪🏻 #birthday #happybirthday #love #party #cake #birthdaycake #happy #wedding #birthdayparty #happy #anniversary #gift #instagood #celebration #family #mnd #als

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 21 - WE DID IT - Posting a video everyday this month in aid of raising awareness for Global MND Awareness Day. Thank you for everyone’s support. Im not stopping there. More so come very soon. #globalmndawarenessday #beyondmnd #mndovermatter #mnd #als #GlobalMNDAwarenessDay

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James - Diagnosed Dad

@diagnosed_dad

2 months

What a great day at Parliament with @APPGonMND so much to share which I will. Thanks for everyone’s lovely messages & @Sheilas_Perfume for the help today x

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James - Diagnosed Dad

@diagnosed_dad

8 months

My MND drug trial ends early 🤦🏻 #mnd #als #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

5 months

Day 1 doing 15,000 steps a day to raise money for @mndassoc DONE. Was actually a lot harder & further than first thought but the wife and I did it. Now let’s smash Day 2 💪🏻 #mnda #mnd #als #fundraising #walk #15k #raisingmoney

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James - Diagnosed Dad

@diagnosed_dad

8 months

Just over a year ago I had to give up my job I loved as a barber. Thanks to MND 🤬 This last year has made me realise how much I miss it aswell as not being able to grow a beard 🙈 All I can do now is stay positive, shave 🤣 and tell myself ‘I will be back barbering again’

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James - Diagnosed Dad

@diagnosed_dad

6 months

Preparing for a possible future 🦼 After my Grandad sadly passing away recently, my family has kindly offered his old mobility scooter to me so gave it a test drive. I may not one……..yet, but I’m now ready for if and when I do. 💪🏻 #mnd #als #mobility #mobilityscooter

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 12 - 15k steps a day in aid of @mndassoc Moan alert 🚨 Today was TOUGH 😤 Im SHATTERED & feel as tired as I look in this picture of me when I was able to run back in the day before my MND diagnosis. 😢 Time to take this weekend off I think to rest and refuel. #mndsucks

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James - Diagnosed Dad

@diagnosed_dad

8 months

What causes Motor Neurone Disease? #mnd #ALS #beyondmnd #theory #disease #causes #terminal #illness

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 13/14/15 doing 15k steps a day in aid of @mndassoc 🧡💙 #mnd #teammnd #als

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 9 - 15k steps a day challenge DONE Im happy really 🤣 #steps #mnd #teammnd #mnda #als #walking #challenge

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James - Diagnosed Dad

@diagnosed_dad

5 months

Being ill with Motor Neurone Disease 🤒 #covid #als #mnd #flu #christmas

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James - Diagnosed Dad

@diagnosed_dad

6 months

My instagram has been hacked and apparently messaging people for their bank details to donate. Please ignore any contact from me via instagram until further notice. Instagram aware.

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James - Diagnosed Dad

@diagnosed_dad

3 months

“In March I'll be sharing my experience with MPs and Peers at the All-Party Parliamentary Group on #MND . I'll be banging the drum for potential treatments. You can use the MND Association's e-action tool to invite your MP to the meeting: ”

Current Campaigns

www.mndassociation.org

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 19 - MND & MY KIDS #mnd #beyondmnd #als #kids #mndawareness @mndassoc

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 6 - 15k steps challenge. My family and I went Monkeying around today to get the steps in at Monkey World 🐵 Had a great day and smashed out the steps but I’m shattered, I’ll use my MND as my excuse 😜 Day 7 - I’m coming for you 💪🏻

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James - Diagnosed Dad

@diagnosed_dad

1 year

DAY 1 of posting a video everyday this month to raise awareness for Global MND Awareness day on 21st June. Ask any questions in the comments ⬇️ #mnd #als #mndawareness #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

3 months

What is an EMG test? My experience with the two of these tests I had done to diagnose me with MND/ALS. Watch full episode here - #mnd #als #emg #doctor #motornuronedisease #awareness

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James - Diagnosed Dad

@diagnosed_dad

7 months

My Girls 💕 #girl #love #like #follow #instagood #beautiful #cute #fashion #photooftheday #style #beauty #smile #happy #me #model #photography #picoftheday #instagram #art #selfie #photo #love #instadaily #myself #makeup #girls #life #nature #wife #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

7 months

My annual visit from my Occupational Therapist for MND. #mnd #als #beyondmnd #physiotherapy #excercise #weightloss #dadbod

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James - Diagnosed Dad

@diagnosed_dad

3 months

Please feel free to subscribe to my new YouTube channel. I’ll be sharing longer videos on my journey living with MND along with podcast conversations from other MND warriors & professionals within the community. Many thank x ⬇️

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James - Diagnosed Dad

@diagnosed_dad

6 months

It’s not all about MND 🫖 #kidsplay #kids #kidsactivities #kidsofinstagram #learningthroughplay #kidsfun #play #fun #playtime #kidstoys #kidsroom #sensoryplay #kidsfashion #montessori #children #toys #preschool #toddler #earlylearning #toddlerplay #playmatters #kidscrafts #mnd

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 5 - 15k STEPS A DAY 🧡💙 #mnd #als #walking

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 17 - MND STRUGGLES #beyondmnd #terminalillness #criticalillness #als #mnd #motorneuronedisease #lougehrigsdisease #alsawareness #mndawareness #focus

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 11 - 15k steps a day in aid of @mndassoc A mix of steppage today as it was FREEZING 🥶 #workout #steps #mnd #als #doddieweir #motorneuronedisease #teammnd

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James - Diagnosed Dad

@diagnosed_dad

8 months

Can I currently still drive living with Motor Neurone Disease? Let’s find out 🚗 #driving #car #mnd #als #beyondmnd #dvla #disabled

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James - Diagnosed Dad

@diagnosed_dad

8 months

Daily Dose of MND - ALS PROGRESS #mnd #als #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

6 months

I’m very excited to announce that I have been asked to participate on the @iamalsorg podcast panel. It will be a fun chat about how and why we set up our podcasts and more. Please join us on 14th November 3pm EST, 8pm UK Link to join 👇🏻

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James - Diagnosed Dad

@diagnosed_dad

9 months

Drove a boat. Crashed twice. Had a blast 🚤 Not today MND 🤣 . . . . . . . . . . #boating #sailing #speedboat #water #river #sea #mnd #beyondmnd #als

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James - Diagnosed Dad

@diagnosed_dad

6 months

Come with me as I get a hand splint measured and made for me. #mnd #als #hospital #adaption #nhs

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 15 - WE’RE HALFWAY THERE #beyondmnd #mnd #als #bonjovi

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James - Diagnosed Dad

@diagnosed_dad

1 year

Day 2 posting everyday this month for MND awareness day. #beyondmnd #mnd #als

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 13 - MND SMART TRIAL DAY. I PASSED THE ASSESSMENT #beyondmnd #mnd #als #hospital

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 16 - Trying to do 15k steps per day this month for @mndassoc 🧡💙 Felt my best day since having a rest at the weekend. 🥶 So I ‘strutted’ around my local park this morning chasing my shadow to get in some #steppage 💪🏻 #mnd #teammnd #walk #shadow #als

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James - Diagnosed Dad

@diagnosed_dad

1 year

DAY 3 Posting a video everyday for MND Awareness Day 21st June. - MND TYPES #beyondmnd #mnd #als

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James - Diagnosed Dad

@diagnosed_dad

1 year

DAY 5 - EMG TESTS #beyondmnd #mnd #als #motorneuronedisease @mndassoc

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James - Diagnosed Dad

@diagnosed_dad

9 months

Who needs Proleukin anyway 💪🏻 #mnd #als

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James - Diagnosed Dad

@diagnosed_dad

9 months

Time flies when you're having fun with the one you love. Happy 14th Wedding Anniversary to the person who still makes my heart skip a beat xxx

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James - Diagnosed Dad

@diagnosed_dad

3 months

My speech/story I have been asked to share by The All Party Parliamentary Group that I’m going to speak in Parliament on the 13th, DONE. My hands and arms feel battered from typing but bring it on💪🏻 Thank you to @StarkeyJennie for your help & input🙏🏻 #mnd #als #parliament #appg

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James - Diagnosed Dad

@diagnosed_dad

7 months

I’m going to be on the breakfast show on @BBCRadioSolent tomorrow with @SteveHarrisDJ I’m on at 7am and 8am 🎤

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James - Diagnosed Dad

@diagnosed_dad

6 months

Well done John. You inspire me to be as positive as you are with this disease. That’s the best medicine I think. Keep smashing i💪🏻

John Adams MND Warrior

@JohnAda10163823

6 months

Good morning my Twitter friends 7 years ago I was going on what I thought was my last holiday . I am still here annoying everyone and chasing the ladies away 😄I feel so blessed with every day I have been given making memories. Appreciate what you have my friends #mnd #wba

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James - Diagnosed Dad

@diagnosed_dad

6 months

Toilet talk 💩 Take a look at my wash dry toilet 🚽 #toilet #wetroom #geberit #geberitaquaclean #mnd #als #adaptions

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James - Diagnosed Dad

@diagnosed_dad

3 months

Helping out Sheffield University again with some research & development.

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James - Diagnosed Dad

@diagnosed_dad

8 months

Happy Birthday @Rob7Burrow keep fighting 💪🏻 #mnd #als #birthday #rugby

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 7 - 15K STEPS A DAY for @mndassoc We made it through the first week. 🙌 Thank you so much for everyone’s supportive messages I’ve received doing this challenge and for your kind donations. 🙏🏻 LETS BRING ON NEXT WEEK. 💪🏻 #mnd #teammnd #als #fundraising #support #steps #walk

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James - Diagnosed Dad

@diagnosed_dad

4 months

DAY 23 trying to do 15k steps a day in aid of @mndassoc completed. #outdoors #nature #adventure #photography #hiking #naturephotography #travel #explore #landscape #mountains #fishing #als #photooftheday #naturelovers #hunting #outdoor #instagood #teammnd #summer #wildlife #mnd

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 12 - MENTALLY COPING WITH MND #beyondmnd #mentalhealth #als

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James - Diagnosed Dad

@diagnosed_dad

10 months

The benefits I feel from a monthly massage is amazing for my MND. Less muscle stiffness, increase mobility and very relaxed courtesy of @mndassoc Now if you can massage a cure from somewhere that would even better 😉 #massage #massagetherapy #spa #relax #wellness #mnd #als

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James - Diagnosed Dad

@diagnosed_dad

8 months

What a week it’s been. Middle child refused to go to school and youngest child gets a stomach bug and keeps most of us up each night 🥱 Roll on a new uneventful week and FCK MND 💪🏻 Have a great weekend folks 🙌 . . . . . . . . . #weekend #love #weekendvibes #mnd #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

3 months

I’m excited to announce that I am officially a charity ambassador for @challengingmnd 📷 Subscribe to my YouTube channel here ⬇️ 🙏🏻 #mnd #als #video #podcast #YouTube #Ambassador #charity

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 7 - Common Misconceptions of MND #mnd #als #motorneuronedisease #alsawareness #amyotrophiclateralsclerosis #charity #endals #lougehrigsdisease #mndassociation #nevergiveup #mndawareness #teammnd #mndcare #raisingawareness #mnda #alssucks #mndvictoria #nonprofit #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 8 - MND HELP TOOLS & GADGETS #beyondmnd #mnda #als #mnd #charity

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 16 - MND PROGRESS #beyondmnd #mnd #criticalillness #lougehrigsdisease #als #motorneurondisease

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James - Diagnosed Dad

@diagnosed_dad

9 months

The positive feedback I’ve received since launching my podcast has been amazingly overwhelming 🙏🏻 I have some very exciting news to share from across the pond very soon. 🇺🇸 Lots more to come. 💪🏻 Thank you for listening to me waffle. #podcast #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 10 - MND VITAMINS & SUPPLEMENTS Disclaimer. I am not a Doctor or health professional. Please seek professional advice and research before taking anything featured on this video 🙏🏻 #mnd #als #motorneuronedisease #alsawareness #amyotrophiclateralsclerosis #endals #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

5 months

It’s all about Mind Over MND. So let’s focus on what we can do and not what we can’t. 💪🏻 Big shoutout to @mindovermnd for the hat. I love it. Thanks again. 🙏🏻 #mnd #als #motivation #inspiration #inspirationalquotes #focus #positivevibes #positivity #strength #powerful

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 9 - MND VOICE BANKING #beyondmnd #mnd #voice #als #raisingawareness

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 11 - JOB & SPORTS WITH MND #running #sports #beyondmnd #mnd #als

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James - Diagnosed Dad

@diagnosed_dad

1 year

DAY 6 Posting everyday this month - MND PROGNOSIS #mnd #als #beyondmnd

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James - Diagnosed Dad

@diagnosed_dad

4 months

I made the @Bournemouthecho Thank you for featuring my story and fundraising for @mndassoc Read full article here ⬇️

Motor neurone disease sufferer walks 15,000 steps a day for charity

Motor neurone disease (MND) is a debilitating neurological condition that affects the motor neurons in the brain and spinal cord.

www.bournemouthecho.co.uk

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James - Diagnosed Dad

@diagnosed_dad

7 months

Had a great video call and met 2 amazing people from the All Party Parliamentary Group for MND. I’m excited at the prospect of working together on future projects.

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 18 - MND & WEATHER #beyondmnd #mnd #als #weather #criticalillness #terminalillness #lougehrigsdisease #motorneuronedisease #raiseawareness

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James - Diagnosed Dad

@diagnosed_dad

3 months

It took all day to upload but my second YouTube video is now live. So if anyone would like to watch me waffle on about vitamins that have and haven’t helped me and the lack of treatment for MND please feel free 💪🏻 You may even find it helpful 🤷🏻‍♂️ ⬇️

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James - Diagnosed Dad

@diagnosed_dad

9 months

Thank you to @ClubMerchandise for kindly sending me one of their hats #fckmnd 💪🏻

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James - Diagnosed Dad

@diagnosed_dad

10 months

Podcast Equipment 🎤 Massive thank you to @challengingmnd for helping me 🙏🏻 Let’s raise more awareness of MND 💪🏻 👀👀 #podcast #shure #focusrite #microphone #sound #equipment #podcasting #mnd #recording #apple

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James - Diagnosed Dad

@diagnosed_dad

6 months

Yearly Neurologist appointment today. Let’s see what’s changed in the last 12 months 💪🏻

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James - Diagnosed Dad

@diagnosed_dad

7 months

"A laugh is a smile out of control." — Wyatt B. Pringle Jr #beyondmnd #smile #behappy #positivevibes #life #happy

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James - Diagnosed Dad

@diagnosed_dad

8 months

Sharing my journey to raise awareness living with Motor Neurone Disease & still being a Dad to 3 children is tiring stuff 🥱 If you enjoy my Podcasts & content & would like to support me with a simple coffee, please click link below 👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻

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James - Diagnosed Dad

@diagnosed_dad

6 months

#NewProfilePic

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James - Diagnosed Dad

@diagnosed_dad

3 months

What a mad week. I have some very exciting news to share over the weekend. Keep your eyes peeled ✌🏻

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James - Diagnosed Dad

@diagnosed_dad

7 months

FOCUS ON WHAT YOU CAN DO, NOT WHAT YOU CAN’T I think I found my new passion. Talking to others via my podcast while sharing our stories is like a therapy and I feel very blessed im still able to do this and hopefully help others including myself along the way. #podcast #mnd

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 20 - SUPPORT NETWORK Thanks again for the T-shirt @end .mnd #beyondmnd #mnd #als #raisingawareness #mndassociation #terminalillness #lougehrigsdisease #motorneuronedisease

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James - Diagnosed Dad

@diagnosed_dad

7 months

It’s #worldsmileday 😃 Smile like you’re falling from 15 thousand feet 🪂 #smile #love #like #follow #instagood #photooftheday #beautiful #happy #picoftheday #instagram #photography #me #worldsmileday #style #cute #likes #life #freefalling #skydive #sky #photo #selfie

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James - Diagnosed Dad

@diagnosed_dad

7 months

Running a Podcast can be tiring stuff. You can support my Podcast keeping me awake and focused with a simple Coffee ☕️ 👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻👇🏻 #podcast #mnd #als #support #Coffee #CoffeeLover

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James - Diagnosed Dad

@diagnosed_dad

10 months

Absolutely not cut out for manual labour anymore 🖕🏻 #MND

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James - Diagnosed Dad

@diagnosed_dad

9 months

Your Daily Dose of MND is BACK. Please ask any questions you may have in the comments 💪🏻 #mnd #als #beyondmnd #question #answers #raisingawareness #raiseawareness

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James - Diagnosed Dad

@diagnosed_dad

7 months

If anyone wanted to hear my interviews today on @BBCRadioSolent here they are 👇🏻 7am interview 8am interview It was a challenge being away camping but I think I came across ok and did the MND community proud 💪🏻

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James - Diagnosed Dad

@diagnosed_dad

11 months

DAY 14 - BUCKET LIST #beyondmnd #mnd #als #bucketlist

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James - Diagnosed Dad

@diagnosed_dad

7 months

Caring for someone with MND. Listen here - #carer #care #caregiver #homecare #carers #healthcare #dementia #support #caring #socialcare #carehome #disability #caregivers #caregiving #health #mnd #disabilityawareness #family #supportworker #nhs #mnd #als

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James - Diagnosed Dad

@diagnosed_dad

3 months

My first ever YouTube video is now live. Was a learning curve and there definitely room for improvement. Please help my channel grow by subscribing to the channel 🙏🏻

MND Diagnosis

MND symptoms to ALS diagnosis.Join me as I share my journey from first symptoms, to how I was tested and finally diagnosed with Motor Neurone Disease.Follow ...

www.youtube.com

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James - Diagnosed Dad

@diagnosed_dad

9 months

Episode 3 - MND Drug Trial #mnd #als #poscast #beyondmnd Listen here -

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James - Diagnosed Dad

@diagnosed_dad

8 months

Doing my bit discussing Better Outcomes for MND to help @sheffielduni #mnd #videochat #als #qualityoflife

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James - Diagnosed Dad

@diagnosed_dad

10 months

Podcast Episode 2 - Fitness & Exercise living with MND. We speak to the amazing Mark & his wife Steph on how Mark stays physically & mentally strong incorporating diet & exercise living with Motor Neuron Disease 👇🏻 #mnd #als #podcast #fitness #exercise

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James - Diagnosed Dad

@diagnosed_dad

5 months

Obligatory Boxing Day wash with the goat. Who else got the staple of every man’s Christmas gift this year?

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James - Diagnosed Dad

@diagnosed_dad

5 months

I’ll be participating in this challenge to do just this 💪🏻

MND Association

@mndassoc

5 months

We're challenging you to walk 15,000 Steps a Day in January to support the fight against #MND . Money raised will provide care and support for families affected by MND and fund vital research. Register below and we'll send you a free #TeamMND beanie hat to get you started!

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James - Diagnosed Dad

@diagnosed_dad

6 months

Focus on what you can do not what you can’t.

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James - Diagnosed Dad

@diagnosed_dad

6 months

What to eat and avoid with MND? Join myself & Sinead from @health4ucork as we discuss health & nutrition. Listen to full episode here . . . . . #nutrition #fitness #health #healthylifestyle #healthy #healthyfood #weightloss #motivation #diet #mnd #workout

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James - Diagnosed Dad

@diagnosed_dad

9 months

@mndassoc Thanks for the disappointing update on a drug proven to help but apparently ‘doesn’t fit the criteria’ let’s hope you can win this fight for us 🙏🏻

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James - Diagnosed Dad

@diagnosed_dad

6 months

EPISODE 7 - GUT HEALTH & NUTRITION Meet Sinead O’Flynn from @health4ucork a nutrition expert specialising in gut health. Listen to full episode here 👇🏻 #mnd #als #podcast #health #nutrition #guthealth

0

6

James - Diagnosed Dad

@diagnosed_dad

3 months

You’re going to be seeing a lot more of me. 🎥 #sony #sigma #vlog #videopodcast

0

8