Long Covid Moonshot @LCMoonshot Twitter profile

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Long Covid Moonshot

14 days

📱Call Guide: 📧 Written option:

Join us in calling on Congress to fund Pediatric Long Covid research by co-sponsoring the Long COVID Research Moonshot Act of 2024, Senate Bill 4964. We are asking our senators to ensure funding for...

actionnetwork.org

Long Covid Moonshot

@LCMoonshot

14 days

Let's hear it for the kids! #LongCovidFamilies #LongCovidKids #LongCovid #NEISvoid #IACC #MECFS #LCMoonshot

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Long Covid Moonshot

@LCMoonshot

6 months

BREAKING: Senator Bernie Sanders drafts proposal for Long Covid Moonshot. The proposal earmarks $10B in Long Covid research funding over the next decade.

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Long Covid Moonshot

@LCMoonshot

5 months

In case you didn’t know, SARS-COV-2 can persist in your brain for *years* Here’s the @NIHDirector discussing viral persistence and its potential role in #LongCovid

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Long Covid Moonshot

@LCMoonshot

6 months

"We need more money to do the kind of research that is necessary to come up with a treatment." @SenSanders speaking on #LongCovid and his recent moonshot proposal.

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Long Covid Moonshot

@LCMoonshot

7 months

5.8 MILLION American children are suffering #LongCovid as their childhoods pass them by. We need sustained and robust research funding now, for our future – and theirs. @LongCovidKids @LongCovidFam

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Long Covid Moonshot

@LCMoonshot

8 months

Due to popular demand, you can now easily download and print the @LCMoonshot fact sheet we shared at the Senate hearing! Get the facts 👇

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Long Covid Moonshot

@LCMoonshot

7 months

So proud to bring #LongCovid to the front page of print media – spreading the message to so many unreached people. Thank you, @USATODAY , for being on the forefront of this crucially urgent issue affecting millions.

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Long Covid Moonshot

@LCMoonshot

7 months

MAKE YOUR VOICE HEARD: Call the CDC & demand they roll back their single day COVID isolation guidance! 800-232-4636

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Long Covid Moonshot

@LCMoonshot

2 months

🚀

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Long Covid Moonshot

@LCMoonshot

5 months

We are grateful for @SenSanders leadership on #LongCovid . We enthusiastically support his Moonshot proposal, which we believe will greatly benefit the millions suffering with this condition. We just sent his team our feedback, and wanted to share our thoughts with you all. 🧵

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Long Covid Moonshot

@LCMoonshot

7 months

#LongCovid is not going away. Only 8% of patients recovered after 2 years.

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Long Covid Moonshot

@LCMoonshot

5 months

NEW CAMPAIGN ALERT 🚀 We are calling Congress to ensure #LongCovid research funding is included in the FY25 budget. Senators Markey, Kaine, and Duckworth have cosponsored a letter calling for $1B+ in funding. It needs more signatures by May 7th! Guide:

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Long Covid Moonshot

@LCMoonshot

7 months

"my world came to a devastating, painful stop, and I lost everything" - @MamaSitaa__ on her difficult battle with #LongCovid ❤️‍🩹

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Long Covid Moonshot

@LCMoonshot

6 months

THANK YOU @SenSanders for your #LongCovid advocacy. 🙏

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Long Covid Moonshot

@LCMoonshot

8 months

California is getting some new #LongCovid billboards next week ✨ Let's keep up the political pressure to fund Long COVID research and get us all the treatment we need!

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Long Covid Moonshot

@LCMoonshot

2 months

It's 9:00am in Washington DC, and it's a beautiful day for Senators to receive calls from #LongCovid patients and allies asking for FY25 Appropriations! Let's light up their phones!⭐️

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Long Covid Moonshot

@LCMoonshot

8 months

"There are zero. ZERO approved medications for the treatment of Long COVID." - @zalaly THIS is why we must keep fighting to fund a #LongCovidMoonshot .

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Long Covid Moonshot

@LCMoonshot

8 months

It's beyond time we put some serious funding into #LongCovid research 🔬

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Long Covid Moonshot

@LCMoonshot

22 days

Good Morning America is producing an in-studio segment with Matthew McConaughey about the Greenlights Grants Initiative. This initiative helps school districts nationwide access billions of dollars of available federal funding to create safer school environments and ensure the

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Long Covid Moonshot

@LCMoonshot

8 months

Thank you to the senators of the HELP committee and all the advocates who helped make this #LongCovid hearing a success. The hearing made one thing clear: the urgent need for a moonshot initiative to fund research. Read our full press release here:

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Long Covid Moonshot

@LCMoonshot

7 months

Four years of #LongCovid and not a single proven treatment. The lack of urgency in facing this crisis is appalling. Join us in calling Congress March 14th and demand annual research funding in the BILLIONS.

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Long Covid Moonshot

@LCMoonshot

6 months

700,000 Americans are currently out of work due to #LongCovid . And they are undercounted, because many don't qualify for UI payments – the way to be "officially" counted as Unemployed in America. These systems are broken.

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Long Covid Moonshot

@LCMoonshot

7 months

In honor of Long Covid Awareness Day on March 15th, our website now features the diverse voices of our #LongCovid community. Thank you for detailing your journeys & underscoring the urgent need for more research funding ❤️‍🩹 Share your story:

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Long Covid Moonshot

@LCMoonshot

6 months

"We must do everything we can to find potential treatments & cures for #LongCovid . In my view, there has been a lack of urgency in Congress, the federal government, and the medical establishment. to research and develop new treatments that might cure or lessen the impact..."

Bernie Sanders

@SenSanders

6 months

We cannot ignore the public health crisis that is Long COVID. On Long COVID Awareness Day, let us commit to doing everything we can to address this horrible condition. The U.S. government must do more to increase awareness and provide additional resources to develop treatments.

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Long Covid Moonshot

@LCMoonshot

6 months

Thank you, @SenSanders and colleagues, for introducing a Resolution to designate March 15 as #LongCovid Awareness Day! 🩵 #LCAD24 #LongCovidAwarenessDay

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Long Covid Moonshot

@LCMoonshot

9 months

We’ve put together a guide to calling Senators on the HELP Committee in advance of the January 18 hearing!

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Long Covid Moonshot

@LCMoonshot

2 months

WE HAVE LIFTOFF. 🚀

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Long Covid Moonshot

@LCMoonshot

2 months

The #LongCovid Research Moonshot Act has finally been proposed! But what does it actually do?

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Long Covid Moonshot

@LCMoonshot

6 months

"There are no viable treatments or cures for this condition. I have seen 24 doctors from 5 different hospitals across two states. I have been to 8 emergency rooms, 3x by EMS. I have had hundreds of blood, imaging, and diagnostic tests. All at a personal cost of over $13,000..."

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Long Covid Moonshot

@LCMoonshot

6 months

"they don't see the hours I am bed-bound each day nor the constant confusion and pain inside my head." @MattyMaxwell on his battle with Long Covid ❤️‍🩹

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Long Covid Moonshot

@LCMoonshot

7 months

“Fortunately, times are changing. No senator, #Democrat or #Republican , at the recent hearing questioned the medical reality of #longCOVID , perhaps because at least three senators, including … @SenTimKaine (D-Va.), have themselves suffered from it.”

The medical gaslighting of long COVID patients could be nearing its end

No senator, Democrat or Republican, at the recent hearing questioned the medical reality of long COVID, perhaps because at least three senators, including committee member Tim Kaine (D-Va.), have t…

thehill.com

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Long Covid Moonshot

@LCMoonshot

6 months

This had us doing a double take: Only 7% of surveyed physicians were confident diagnosing #LongCovid , and a minuscule 4% felt confident treating it. We're gambling with our lives.... Would you put money on those odds? 🎲🎲

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Long Covid Moonshot

@LCMoonshot

6 months

"Having Long Covid is like being trapped alone for years (maybe forever) in a torturous maze and no matter how hard you try, you cannot escape." - Larissa #LongCovidAwarenessDay

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Long Covid Moonshot

@LCMoonshot

30 days

Save the dates! @LongCovidFam , @WorldHealthNet , @WailofaTale , @BrainInflCollab , @LCMoonshot & many more have been working together to create a week of information and advocacy. Let's get motivated for #LongCovidKids ! 🩷💜🩵

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Long Covid Moonshot

@LCMoonshot

6 months

@SenSanders says LISTEN TO THE PATIENTS!! 👏 #LongCovid research has been much too slow and unambitious. That has got to change.

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Long Covid Moonshot

@LCMoonshot

8 months

Thank you, @SenSanders , for your incredible opening statement, and for convening this critical hearing on #LongCovid .

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Long Covid Moonshot

@LCMoonshot

7 months

Give Congress a #LongCovid wake-up call! On Thursday, March 14, we're calling our reps to demand a #LongCovidMoonshot —$1B+ in annual research funding to find treatment for the MILLIONS suffering without help. Full call guide available our website 🚀

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Long Covid Moonshot

@LCMoonshot

6 months

The painful reality of Long Covid.

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Long Covid Moonshot

@LCMoonshot

7 months

We have had nearly 100 (🤯) people submit their #LongCovid stories & we are working as quickly as we can to create personalized graphics ❤️ Haven't shared yours yet? There's still time to submit it on our website.

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Long Covid Moonshot

@LCMoonshot

5 months

We believe that an inclusive clinical approach will be of benefit to all of us suffering from Long Covid, as well as other IACCIs.

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Long Covid Moonshot

@LCMoonshot

8 months

Thank you, @SenMarkey , for seeing and hearing us. Your words mean a great deal to Americans with #LongCovid who feel left behind. We look forward to Congress taking action! 🚀

Ed Markey

@SenMarkey

8 months

Long COVID is real, it is disabling, and it is affecting millions. That's why we must fund long COVID and ME/CFS research to better understand and treat these conditions. To all those struggling and suffering—we see you, we hear you, and we will take action for you.

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Long Covid Moonshot

@LCMoonshot

7 months

Severity of the initial infection is not related to whether you end up with #LongCovid . Anyone, of any age, class, or gender, can experience persistent, ongoing, or new-onset conditions.

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Long Covid Moonshot

@LCMoonshot

7 months

"It is unacceptable to force people to fight their #chronicillness in a health system that doesn't recognize their illness. We need to fund research on conditions triggered by viral infections that will drive us towards diagnosis, treatments and cures." - @SenMarkey

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Long Covid Moonshot

@LCMoonshot

7 months

@LCMoonshot founding member @SawyerBlatz shares his #LongCovid experience on @USATODAY today!

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Long Covid Moonshot

@LCMoonshot

5 months

DEADLINE EXTENDED 😱 We’ve just gotten word that Senators now have until FRIDAY, MAY 10TH to sign the FY25 #LongCovid funding letter! This means you still have time to contact your legislators and urge them to sign onto this crucial funding proposal. Call guide on our site.

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Long Covid Moonshot

@LCMoonshot

2 months

ONE MORE TIME! 📲 Remember the calls we made in May asking for Long Covid Research to be included in the 2025 budget? Well, Thursday is when those folks decide how to actually apportion the money. So, despite the last-minute scramble, we want to activate!

Meighan Stone | @meighanstone.bsky.social

@meighanstone

2 months

📢 #LongCOVID Community Alert 📢 Senate Approps Committee just announced FY25 Labor HHS Approps bill markup only 3 days from now: Thursday, August 1. This is where we find out what Long COVID funding levels & language are in bill & ask champions to offer amendments as needed 1/x

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Long Covid Moonshot

@LCMoonshot

22 days

If you are a #LongCovid or #CovidAware parent or educator who can appear in NYC on Tuesday 9/10 and speak to the urgency of CLEAN AIR in schools, please contact Laryssa.Demkiw @abc .com This is a great opportunity to bring mainstream attention to air quality in schools!

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Long Covid Moonshot

@LCMoonshot

1 month

It’s time.

Bernie Sanders

@SenSanders

1 month

Nearly 18 million adults and 6 million children suffer from Long COVID. The time has come to start treating the Long COVID crisis as the public health emergency that it is.

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Long Covid Moonshot

@LCMoonshot

7 months

“We just know people are suffering and we have to increase the sense of urgency…” Thank you for your words at #HELPLongCovid , @SenatorBaldwin !

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Long Covid Moonshot

@LCMoonshot

5 months

We recognize that science has so little to offer Long Covid patients partially due to decades of medical neglect of chronic conditions like ME/CFS, dysautonomia, and MCAS.

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Long Covid Moonshot

@LCMoonshot

6 months

Covid infections add up; after 3 or more infections, studies show that you're 2.6 times more likely to end up with #LongCovid .

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Long Covid Moonshot

@LCMoonshot

5 months

There’s still time to urge Congress to include #LongCovid in the FY25 budget, but we need your help! Please take a minute to send a prefilled letter backing $1.2B+ in funding 👇

Long Covid research funding in the FY25 budget

Over the next few weeks, the Senate and House will be holding hearings and drafting appropriations bills that will determine how money is spent in the next fiscal year. Congress needs to hear from us...

actionnetwork.org

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Long Covid Moonshot

@LCMoonshot

7 months

Great piece in the @nytimes today highlighting the urgent need for bipartisan action on #LongCovid . Gift link to read for free 👇

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Long Covid Moonshot

@LCMoonshot

16 days

GET READY – We're hosting a special call/email rally this Thursday! We'll have a written option too! Details tomorrow. This is a great way to get allies activated on #LongCovid . We have the power to make change for children! 🚀

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Long Covid Moonshot

@LCMoonshot

6 months

Our website has a brand new, interactive call guide! It’s now easier than ever to find & contact your legislators to demand funding for #LongCovid . Check it out:

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Long Covid Moonshot

@LCMoonshot

1 month

It's finally been proposed in detail, but what's inside the #LongCovid Research Moonshot Act? Let's explore!

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Long Covid Moonshot

@LCMoonshot

7 months

💔 Long Covid can make you fall out of love with life! #LongCovid is more than lasting effects. It's new and worsening symptoms for weeks, months, even years after infection. Which #BadRomance are you in? 💔

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Long Covid Moonshot

@LCMoonshot

5 months

We advocate for including comparator groups where appropriate and study of these conditions across triggers, which will bolster scientific efforts and lead to more comprehensive answers for all of us.

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Long Covid Moonshot

@LCMoonshot

6 months

"This horrific disease made me bedbound and poor."

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Long Covid Moonshot

@LCMoonshot

1 month

"Long COVID is real. It is negatively impacting tens of millions of people throughout the United States and the world. We can no longer ignore it or sweep it under the rug." @SenSanders

Bernie Sanders: America Must Confront Its Long COVID Crisis

Long COVID is real. It is negatively impacting tens of millions of people throughout the United States and the world. We can no longer ignore it, or its sufferers’ treatment needs.

www.thedailybeast.com

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Long Covid Moonshot

@LCMoonshot

5 months

We support the framework proposal outlined by @SenSanders and want to thank him for his efforts in giving this issue the attention it deserves. We hope that the HELP committee takes our feedback into consideration. You can read our full response here:

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Long Covid Moonshot

@LCMoonshot

2 months

🎉

The Sick Times

@thesicktimes

2 months

Yesterday, Senator Bernie Sanders introduced the Long Covid Research Moonshot Act of 2024. The bill allocates $1 billion dollars of mandatory funding per year for the next 10 years for research, treatments, public health education, and expanded healthcare.

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Long Covid Moonshot

@LCMoonshot

7 months

That's not a typo. The estimated economic cost of #LongCovid in the USA, over 5 years is USD $3.7 TRILLION. 💸💸💸

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Long Covid Moonshot

@LCMoonshot

5 months

In just the last few days, over 100 people have used our site to find their legislators' contact info! Be sure to check it out our interactive call guide if you haven't already 🚀

Long Covid Moonshot

longcovidmoonshot.com

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Long Covid Moonshot

@LCMoonshot

7 months

Share your story:

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Long Covid Moonshot

@LCMoonshot

8 months

Senator Roger Marshall has a family member with Long COVID who was incapacitated for two years. Concerned that CDC is overly focused on vaccines rather than seeking to address Long COVID.

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Long Covid Moonshot

@LCMoonshot

4 months

"I was an essential worker... I don't want to die of this." - @YlanRoy The way our governments have tossed aside essential workers is unacceptable. We need to fund #LongCovid research NOW.

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Long Covid Moonshot

@LCMoonshot

7 months

TODAY'S THE DAY! 🚀 Call your legislators and demand research funding for #LongCovid . Full guide on

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Long Covid Moonshot

@LCMoonshot

2 months

IT'S HAPPENING! We worked hard to reach out. And today, August 2, 2024, Senator Sanders introduced the #LongCovid Moonshot Research Act.

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Long Covid Moonshot

@LCMoonshot

5 months

Early testing and treatment are critical for preventing further transmission and improving health outcomes after an infection. Please join us in demanding the NIH bring back this lifesaving program!

MaskTogetherAmerica

@TogetherWeMask

5 months

Lifesaving Home #Test2Treat aimed to reduce disparities for most at-risk people, with FREE tests, telehealth & treatment for COVID & flu. But it just ended, though 100 million people are eligible. Sign letter to NIH to fight for it. #CovidIsNotOver

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Long Covid Moonshot

@LCMoonshot

5 months

🚨 ONE DAY LEFT 🚨 Call Congress to demand Long Covid funding in the FY25 budget! Full guide on our website.

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Long Covid Moonshot

@LCMoonshot

6 months

Couldn't agree more, Bernie!

Bernie Sanders

@SenSanders

6 months

The fight against long COVID is not just a medical one. It is a moral one. Long COVID can have devastating consequences and too many people now face debilitating symptoms as a result. How many Americans need to suffer before Congress acts boldly to address this crisis?

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Long Covid Moonshot

@LCMoonshot

6 months

The urgency of #LongCovid is beyond words. We need dedicated, long-term funding for ambitious research, incorporating yet far beyond what we already know – we need a #LongCovidMoonshot .

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Long Covid Moonshot

@LCMoonshot

8 months

@SenSanders Thank you @SenSanders for convening this hearing. We desperately need to fund a #LongCovidMoonshot .

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Long Covid Moonshot

@LCMoonshot

7 months

We're receiving so many heartfelt – and heartbreaking – #LongCovid stories to prepare for next week's Long Covid Awareness Day. 🖼️🖼️ Visibility matters! Keep them coming! Submit a short text and an optional photo to (also linked on our website)!

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Long Covid Moonshot

@LCMoonshot

2 months

Started from the op-ed, now we're here

Patient-Led Research Collaborative

@patientled

2 months

9 months ago, our co-founder Lisa McCorkell ( @LisaAMcCorkell ) & Long COVID researcher Michael Peluso ( @MichaelPelusoMD ) called for a Moonshot for Long Covid - an investment of at least $1 billion yearly for 10 years into Long Covid research. 2/ #LongCovid

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Long Covid Moonshot

@LCMoonshot

2 months

Allies! CALL FOR US 🙏 Many Long Covid patients are experiencing such severe neurological and energy-limiting symptoms that they can't make a telephone call. Will you be our voice? Call on behalf of a loved one, and make a difference!

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Long Covid Moonshot

@LCMoonshot

7 months

#LongCovid can happen to anyone, but everyone doesn't receive the same belief, understanding, or treatment. That's wrong, say @SenTimKaine & colleagues:

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Long Covid Moonshot

@LCMoonshot

2 months

The Long COVID Research Moonshot Act is a labor of love by dozens of organizations and over 12,000 comments! 🚀 If you’d like to add your organization, please email nimit_jindal @help .senate.gov. See the current list of endorsers: #LongCovid

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Long Covid Moonshot

@LCMoonshot

5 months

Let’s start with the messy reality: the biology of Long Covid is not yet fully understood, but we are hopeful that this funding will help uncover root cause(s).

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Long Covid Moonshot

@LCMoonshot

16 days

Join us this Thursday as we host a Moonshot call rally for Pediatric Long Covid Research! Come together to exchange information, learn the signs of LC/IACC in kids, discuss the facts, and share ways to navigate Pediatric Long Covid, MECFS, and IACCs.

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Long Covid Moonshot

@LCMoonshot

5 months

We just surpassed 1,000 total letters sent from over 500 individuals—all backing the FY25 #LongCovid budget proposal. Thank you all for your support, let's keep up the momentum!

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Long Covid Moonshot

@LCMoonshot

7 months

#LongCovid destroys lives - @seeksboston26mi

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Long Covid Moonshot

@LCMoonshot

5 months

If you live in a red state, we need your help: please call & write your Senators TODAY for #LongCovid funding. Would be huge to have bipartisan support for this proposal 🙏

Long Covid Moonshot

@LCMoonshot

5 months

DEADLINE EXTENDED 😱 We’ve just gotten word that Senators now have until FRIDAY, MAY 10TH to sign the FY25 #LongCovid funding letter! This means you still have time to contact your legislators and urge them to sign onto this crucial funding proposal. Call guide on our site.

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Long Covid Moonshot

@LCMoonshot

6 months

Surprising, but true: #LongCovid has a 60% greater disease burden than heart disease or cancer.

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Long Covid Moonshot

@LCMoonshot

2 months

FOR TODAY, BE PROUD. We are making incredible things happen by coming together and raising our voices. This is no small feat, and speaks to the power of our unity. Celebrate and rest well!

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Long Covid Moonshot

@LCMoonshot

8 months

We’re running out of gas with the live tweeting. Thanks, #LongCOVID . Shout out of @betsyladyzhets and @patientled who are also live tweeting! If you need to follow the hearing and can’t watch/listen, follow them!

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Long Covid Moonshot

@LCMoonshot

2 months

❔ Are you interested in meeting with your senators – in person or virtually – to get them to support and cosponsor this bill? ❕ Please complete the interest form here:

LC Moonshot Act Congressional Meeting Interest Form

On August 2, 2024, Senator Sanders Introduced the Long COVID Research Moonshot Act! (S.4964) The bill is supported by Long COVID patient organizations COVID-19 Longhauler Advocacy Project (C19LAP),...

docs.google.com

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Long Covid Moonshot

@LCMoonshot

5 months

But our campaign doesn't end there! Through May 14th, we will be continuing to call our legislators to include funding for Long Covid research in the FY25 budget. We also have an email template you can use in addition to calling!

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Long Covid Moonshot

@LCMoonshot

8 months

Senator @RogerMarshallMD , we're so grateful for your sharing your personal experience with #LongCOVID . By now, we all likely know someone suffering. Support for American families affected by this terrible condition can't come soon enough. 🙏

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Long Covid Moonshot

@LCMoonshot

7 months

SHARE YOUR #LONGCOVID STORY – send in your story & an optional photo, and we'll create a graphic! Submit by Wednesday March 13 to be ready for Long Covid Awareness Day on March 15. 🚀 Visit our website, or click the link:

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Long Covid Moonshot

@LCMoonshot

24 days

“This is a public health crisis for children,” Gross said. “We know that child health is so critically important for how children grow and even as they become adults, that chronic illness during childhood and adverse experiences during childhood greatly affects the adults that

Morgan Fairchild

@morgfair

25 days

Long COVID is a "public health crisis for kids," experts say

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Long Covid Moonshot

@LCMoonshot

6 months

So what's the holdup? We need a #LongCovidMoonshot now! 🚀

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Long Covid Moonshot

@LCMoonshot

2 months

WE HAVE SUPPORT. Senators have already endorsed the Act in support. Your calls, letters, and emails mattered - we matter. @SenTimKaine @SenDuckworth @SenMarkey @SenTinaSmith @SenPeterWelch

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Long Covid Moonshot

@LCMoonshot

7 months

It is vindicating to see Long Covid’s ongoing tragedy of millions remain in the public eye, alongside the painful memory of everyone lost to Sars-COV-2 so far. Praise to @SenMarkey and @SenWarren for seeing us — let’s do something about it. 🚀

Ed Markey

@SenMarkey

7 months

I am proud to lead the call to designate the first Monday of March as COVID-19 Victims Memorial Day with @SenWarren . With more than a million Americans lost to COVID-19 and millions still battling the effects of long COVID, we must honor them by working to prevent more tragedy.

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Long Covid Moonshot

@LCMoonshot

5 months

Send Congress a message: we need #LongCovid funding in the FY25 budget! Time is running out, but Senators can still sign onto a letter supporting $1.2B+ in funding. It takes less than a minute to support this proposal👇

Long Covid research funding in the FY25 budget

Over the next few weeks, the Senate and House will be holding hearings and drafting appropriations bills that will determine how money is spent in the next fiscal year. Congress needs to hear from us...

actionnetwork.org

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Long Covid Moonshot

@LCMoonshot

8 months

Thank you @PattyMurray for attending the #LongCovid hearing and learning about the urgent need for funding.

Senator Patty Murray

@PattyMurray

8 months

Long COVID is a serious, life-altering condition, and one we are still learning more about every day. At @HELPCmteDems hearing, I stressed my continued push for more funding, research, & public health infrastructure to better understand and treat Long COVID.

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Long Covid Moonshot

@LCMoonshot

7 months

#LongCovid can affect anyone – even Senators. We're grateful that our elected representatives, like @SenTimKaine , recognize the difficulty of being taken seriously and believed when pursuing medical care.