Christina @Christina_Wood1 Twitter profile

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Christina

@Christina_Wood1

2 years

I’m technically #unvaccinated . I’m sat on 1 dose after experiencing a severe, chronic adverse rxn. 14 months on & still dealing w/ neuropathy. This program is awful - where is the balance? These vaccines are NOT risk free. Refusing to acknowledge this only fuels conspiracy.

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Christina

@Christina_Wood1

2 years

@johnrobertsFox Still trying to recover from #1 Pfizer last June! Won’t be having any more. Have had a chronic adverse reaction (chest pain, arrhythmia included but also a lot of neurological symptoms). Go and get checked out, but be prepared to be gaslit 😣

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Christina

@Christina_Wood1

2 years

@DrAseemMalhotra @DrAseemMalhotra thanks for your posts, I share your view of things. I have to ask - what do you think will happen to the vaccine injured? I’m one of them. Since June last year. We’re being horribly gaslit & left to rot. What can we do? I have 2 small kids, I can’t give up 😔

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@Christina_Wood1

2 years

@BBCHughPym Maybe if someone actually helped me with my chronic illness I got from a single shot of Pfizer, I might be excited by this news. My trust is shattered by my experience of vaccine injury & the utterly brutal lack of medical or any other support I encountered.

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Christina

@Christina_Wood1

1 year

It’s #LongCovidAwarenessDay . Still fighting alongside millions of others to recover my health almost 2 years on. A snapshot of my life before a vaccine & a virus blew it all apart 🤯Feel like I’m looking at a different human! I will never give up. #VaccineInducedLongCovid #PoTS

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Christina

@Christina_Wood1

2 years

Also why are the only adverse events quoted or that seem to be reported on, anaphylaxis, myocarditis, guillian barre? There’s a huge spectrum of injury. I’ve got none of those but still got issues with nerves in my legs 14 months later, plus arrhythmia. Are those acceptable? 🤔

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Christina

@Christina_Wood1

2 years

@Dr_Ellie Im a real person. A mum, a wife, a daughter, a sister. The Covid vaccine has destroyed my life. Chronic neuropathies, tachycardia, vascular inflammation. I don’t consider myself “antivac” but I will never take another & neither will my kids. There is no help when it goes wrong 😢

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Christina

@Christina_Wood1

1 year

@Nohj_85 @BBCNews @mariannaspring I would like to think @mariannaspring would come and speak to some of us hit hard with vaccine injury. I’d happily talk to her - im 2 years in and still totally incapacitated.

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Christina

@Christina_Wood1

2 years

@AlisaValdesRod1 This is so interesting. But WHY can’t long haulers have access to this drug? I don’t understand the delay? Is it dangerous to try it? Expensive? Maybe a daft question but with the scale of suffering and damage I don’t get why it’s not being just handed out at this point! 😵‍💫

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Christina

@Christina_Wood1

2 years

@Storiesofinjury 1 Pfizer 11 months ago. Still feel like im concussed, hearing issues, tinnitus, weakness in limbs, circulatory issues, arrhythmia, numbness, burning, twitches, tremors…. all ongoing 😔

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Christina

@Christina_Wood1

1 year

Having a Twitter break. Feeling absolutely wrecked and totally losing hope of ever feeling better from this stupid illness. Big, big crash 💔 Behave yourselves! #MECFS #PostVacSyndrome 😭

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@Christina_Wood1

2 years

@org_scp @julesserkin @CommonsSpeaker Jeez the speakers reaction has made me soo angry!! How dare he?

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@Christina_Wood1

1 year

Post-vac syndrome is now openly & sensibly discussed in Germany, where: ☑️ they recognise it as a serious problem for those affected; and ☑️ support research into pathophysiology, treatments & financial help to those who need it. U.K. government? 🤫

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Christina

@Christina_Wood1

1 year

Not a good fit for what I observe in the LC community at all. Many of us were athletes! Many got worse post-vaccination? Some got LC-like syndrome from the vaccine (me!) 🤷‍♀️ I think genetic predisposition to immune dysfunction plays a stronger role than lifestyle. Disappointed.

Vass Vassiliou

@vass_vassiliou

1 year

Delighted with our latest work published @JAMAInternalMed led by @justvick #WIC @uniofeastanglia @NNUH on Risk Factors for Long Covid. Reduce the risk by getting vaccinated & HEALTHY LIFESTYLE #vaccines #work Full article: VACCINES WORK @medtwitter #epeeps

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Christina

@Christina_Wood1

11 months

Another trip to A&E yesterday with some sort of palsy of the left side of my face. Left eye closed & corner of mouth dropped. Weak legs. Vertigo. My poor husband thought it was a stroke 😭 No stroke. But no explanation either. 2 yr since 💉, still no answers 💔😭😮‍💨

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Christina

@Christina_Wood1

2 years

@JimBethell Regardless of what you think of this group of people, there is a sizeable (unquantified) issue with people in this country suffering terribly w/ post vacc sequelae & getting absolutely no medical investigation or financial support. I am one of them. This urgently needs addressed.

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Christina

@Christina_Wood1

2 years

@RealCoffeeMan1 @ukcvfamily is a U.K. based group of around 700 of us who have chronic health issues frm these vaccines. Some disabled. The global groups have thousands. Small numbers at the population level sure, but the way we have been disbelieved, medically gaslit & censored is a scandal.

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@Christina_Wood1

2 years

@njp000 @breakfastnick My Pfizer shot GAVE me a set of symptoms identical to long Covid. Diagnosed as “off target immune response to spike protein” So would I likely have the spike protein still in my system somehow? How do I get rid of it? 🤷‍♀️😩

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Christina

@Christina_Wood1

1 year

If spike is lodged in the brain of those with LC, is it also lodged in the brain of those of us who got a very similar syndrome to LC post vaccination? Genuine question. Will anyone look? #postvac #LongCovid

S Blitshteyn MD, FAAN, Dysautonomia Clinic

@dysclinic

1 year

The research coming out on neurologic manifestations of #COVID19 and #neuroscience of #LongCovid is not good news at all. 😭

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Christina

@Christina_Wood1

11 months

About time…! Rare link between coronavirus vaccines and Long Covid–like illness starts to gain acceptance | Science | AAAS

Rare link between coronavirus vaccines and Long Covid–like illness starts to gain acceptance

Studies probe unusual cases of neurologic complications, blood pressure swings, and other side effects

www.science.org

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Christina

@Christina_Wood1

2 years

@ThomasBruun14 @DrAseemMalhotra I haven’t even had dose #2 . One was enough to cause massive amounts of damage 😩 I hate the term “anti-vax” - I’ve been pro vaccine all my life, but these ones are not right. They’re harming too many, and the harmed are being denied care. I’m appalled at humanity right now.

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Christina

@Christina_Wood1

2 years

@marcowenjones Marc, I am in a group who use this emoji. None of us are anti vax, we took our shots in good faith but were lucky, suffering chronic adverse reactions (confirmed by doctors!) We must not remove these support groups, there have already been suicides in this vulnerable community 😔

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Christina

@Christina_Wood1

2 years

@sajidjavid @WHO Currently “living” with a horrendous chronic adverse reaction to one shot of Pfizer. Maybe raise vaccine injuries as an area for research & investigation before more lives are ruined by a one size fits all vaccine rollout?

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@Christina_Wood1

2 years

@markpaysan @hibbsy1973 @Nohj60536387 @MarkSteynOnline @GBNEWS @PetrieHosken @TalkTV Agree. Very upsetting the dismissal and apparent fear / taboo to talk about this issue when it’s affecting many thousands across the U.K. alone. The gaslighting and “are you sure it’s from the vaccine” stuff when the reaction was near instant in many cases is just horrific 😪

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Christina

@Christina_Wood1

2 years

@listenoldchap Because I wanted to protect myself and others from acute complications of infection, and Long Covid. Nobody told me it could bloody well give me Long Covid! Rare? Or is it? Nobody is quantifying this effectively.

In rare cases, coronavirus vaccines may cause Long Covid–like symptoms

Brain fog, headaches, blood pressure swings are being probed by NIH and other researchers

www.science.org

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Christina

@Christina_Wood1

1 year

Couldn’t make this up..off work trying desperately to recover from awful LC relapse since probable reinfection in late Aug. Just tested positive again this morning!! How I knew? My LC nerve symptoms go away when I actually have the virus 🤷‍♀️ Dreading the aftermath 😭😭😭

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@Christina_Wood1

2 years

@JohnMasonMSP @biologyphenom @DrBruceScott I’m really saddened and disappointed to see your laughing emojis in this thread 😔 It’s not a laughing matter, and given your position - I’d consider deleting them.

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@Christina_Wood1

1 year

@YardleyShooting @BBC Nobody even knows the truth because many of us with vaccine injury aren’t getting the right tests to diagnose what’s up. I only just had an echo 20 months in - I pretty much had to beg! Pericarditis / pericardial effusion found. How many more undiagnosed? 😫

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Christina

@Christina_Wood1

7 months

Argyll is a disaster zone right now. Cut off in all directions by multiple serious slope failures and floods. Also means no freight to the inner Hebrides. BBC barely mentioned it other than to say: “there’s some mud and water on the roads” 🥴🫠

The Wright Rebecca

@Rebecca08510632

7 months

My sister was going to Oban to do her weekly shop 😳

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Christina

@Christina_Wood1

1 year

@YardleyShooting Yes, me 😞 20 months of neuropathy and heart issues (pericardial effusion) from one dose of Pfizer. No known previous underlying health conditions 🤷‍♀️

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Christina

@Christina_Wood1

2 years

@Charletukcvfam @BBCHughPym @samholdertv this is not ok 😢 Our FB support group has to use these emojis to avoid being shut down. It’s madness. We’re not anti-vax, just sick since our v’s! Why don’t you speak to one of us? This is so de-humanising. If only you knew the trauma we’re enduring 😭

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@Christina_Wood1

2 years

@NickGuthe @PettingerP Please talk to @ukcvfamily , Jack was an active member of our group. He didn’t get ill frm Covid, his illness came frm the vaccine; tho like most of us, the similarity of the post vax sequelae to Long Covid means LC groups are also a useful support (& more socially acceptable) 😣

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@Christina_Wood1

1 year

Same here. Until vaccine injury is understood & can be treated early, I can’t take another of any sort. This leaves me vulnerable to 🦠😫 What’s worse is I am now too traumatised to vaccinated my kids again either!! What if adverse rxn’s run in families? We don’t know. 😰

Allie Reynolds

@AuthorAllieR

1 year

@TonyNikolic10 I used to get flu shots. Then I suffered adverse effects from Pfizer covid vaccine. My cardiologist says any more shots of anything could cause my symptoms to flare. No more shots for me. I've totally lost faith in vaccinations, government advice + big Pharma.

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@Christina_Wood1

2 years

@Valkyrie20201 @DrAseemMalhotra @BBCNews @Ofcom This is soo messed up 🤯😩

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@Christina_Wood1

2 years

@org_scp @julesserkin @CommonsSpeaker Be different if his vaccine had crippled @CommonsSpeaker I suspect? I’m suffering dire side effects from a single shot of Pfizer last June. Previously a keen athlete! Off work months & my life is unrecognisable 😔 Stinking attitude to take to a problem affecting many thousands.

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@Christina_Wood1

1 year

@1goodtern @Marc_Veld what are your thoughts on this Strep A problem? Immune system compromise from repeated Covid infections makes more sense to me than blaming it on lockdown 2 yr ago? But im no immunologist! How worried should we be? My kids both getting recurring impetigo right now😞

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Christina

@Christina_Wood1

2 years

This is extremely dangerous advice!! How is this allowed to happen? I cannot believe what I’m reading @angryhacademic @drclairetaylor @doctorasadkhan @DeansKevin The issue of vaccine injury needs to hit the mainstream. This is horrific.

Sheffield Health and Care Partnership

@SheffieldHCP

2 years

If you experienced side effects after your first dose, you still need to have the second dose as having both offers you the most protection. The symptoms of covid and long covid are much worse than the side effects of the vaccine and can last a lot longer. #VaccinateSheffield

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@Christina_Wood1

2 years

@aquaticseals I expected flu like side effects. Nobody told me it would give me heart issues, brain inflammation and neuropathy in my legs. NHS wouldn’t investigate when I presented with these side effects, I had to go private to get help. It’s a disgrace.

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@Christina_Wood1

2 years

@JohnMasonMSP @bettingguru365 @baldymarv81 @SophieScholl43 Why is it all about numbers? We don’t know the true number of injuries. Perhaps never will. However, those numbers are still ACTUAL HUMAN LIVES. Stop treating vaccine injured as collateral damage. It’s not right to treat any human as that. Where is the compassion? The empathy? 🤯

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Christina

@Christina_Wood1

2 years

My face was amongst them. Still got neuropathy in my right leg that prevents me walking far 😡 I’m lucky, other stuff has improved 14 months in. Others not so lucky. The censorship & stigma around vaccine injury is deplorable. It is fuelling conspiracy. #CanWeTalkAboutIt

Dr David Cartland

@CartlandDavid

2 years

Some of the cases of 💉injury displayed at Hyde park yesterday

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Christina

@Christina_Wood1

2 years

@lipsticklicker None of them. But if you present to A&E with an adverse event to paracetamol, someone will believe you and help you. To Pfizer? Not in my experience. Misdiagnosed and gaslit for months, now diagnosed with arrythmia, neuropathy & brain inflammation. Had to go private for help.

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Christina

@Christina_Wood1

2 years

@JamesfWells @BorisJohnson @sajidjavid @michaelgove @LindsayHoyle_MP @ukcvfamily @Jeremy_Hunt If you are genuinely concerned about these adverse reactions, please talk to us, listen to us, and try to help us. We shouldn’t be collateral damage 😔

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@Christina_Wood1

2 years

@ukcvfamily @CarolinePover @Nohj60536387 @ake2306 @CWTAIC Having numb legs and weird heart rate. Nobody concerned about it so I’ve had no choice to adapt to that just being the way things are.

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@Christina_Wood1

1 year

@Albion_Rover @Rafbuz22 I don’t understand why this issue of vaccine injury and support for those affected, can’t be discussed openly? If it was then you wouldn’t get desperate people coming in and having to shout from the viewing platform! It’s appalling to censor this when lives have been ruined.

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Christina

@Christina_Wood1

2 years

#LongCovid folks, can anyone explain what would cause relapse in symptoms after viral infections? I relapse hard after colds etc. Neg for Covid. If the issue is hypercoag & ischemia / reperfusion triggered by spike, why does this ramp up so much after other infections? #teamclots

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Christina

@Christina_Wood1

2 years

@StevePhillipsMD Combo of Covid sequellae and post vacc sequellae. Almost impossible to differentiate at this point! I have the latter - neuro symptoms began 48 hr post one shot of Pfizer.

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@Christina_Wood1

1 year

@vass_vassiliou @JAMAInternalMed @justvick @uniofeastanglia @NNUH @AnastasiaSMihai @iamritu @hvanspall @GARCIAEDINSON95 @Abraham_RMI @_atanas_ @DrMarthaGulati @purviparwani @mmamas1973 @trishgreenhalgh I’m not a good fit with your findings. I was previously an athlete, but my vaccine triggered what appears to be Long Covid? Plus pericarditis. That is my diagnosis: vaccine induced LC. I had no risk factors, no underlying conditions and was a cyclist!! What about people like me?

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@Christina_Wood1

2 years

@Stace_Alexander @ShaneyWright I wonder if it’s small fibre neuropathy affecting circulation. Or maybe microclots causing hypoxia when we’re not moving much..

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@Christina_Wood1

7 months

@BBCNews What a terrible article. We see you BBC, we see you 👀 Going in hard on the #gaslighting #LongCovid #MECFS #bloodclots #strokes #heartattacks #neuropathy #diabetes #autoimmunity Nothing to see here 🙊🙉🤫

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@Christina_Wood1

2 years

@agy_lena @dr_musgrave It’s not less relevant to me. I live a daily hell thanks to a horrific reaction to one shot of Pfizer. It’s all still very, very relevant to me and I hope they keep obsessing because I want help! I have 2 young kids who have had their mum totally ruined since June 2021.

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@Christina_Wood1

2 years

@BinitaKane Excellent thread. Similar complications being discovered by those having adverse reactions to the Covid vaccines (all of them - I think spike protein is the trigger for these chronic adverse reactions whether vaccine or virus).

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@Christina_Wood1

2 years

@DanielleRuth_6 @MethodistHosp I think it’d be weird if you DIDN’T have your baby with you 🤯 I’d be going elsewhere from now on. That’s just plain weird.

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Christina

@Christina_Wood1

2 years

@FrancesMair @ColinBerryMD @UofGlasgow @UofGMVLS No thank you! Slightest exercise here gives massive vascular inflammation (inflamed veins and nailfold haemorrhaging!) which in turn triggers relapse into neurological symptoms. This is not the answer and may harm participants similarly afflicted. P.S. I was an athlete! 😮‍💨🥺

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Christina

@Christina_Wood1

8 months

@spoonless_me I got my files back from NHS too. The gaslighting is unbelievable. “Christina is fixated on colour changes in her feet” 🤬 My feet: 😱🔥

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@Christina_Wood1

7 months

@i_petersen @Embyeye @GeorgeMonbiot I can’t lead an active life because my 💉 near killed me! I used to be in the mountains like you. Covid made my cardiac complications worse - should I live under a rock too? A little empathy to those left disabled or chronically ill by this pandemic wouldn’t go amiss 💔

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Christina

@Christina_Wood1

1 year

Easter wild camp. And wild it is! 💨 🌊🏴󠁧󠁢󠁳󠁣󠁴󠁿 Shout out to my hubby for finding somewhere remote with a short walk-in, & carrying all the kit for me & the kids 🥰 I think maybe the Easter bunny is visiting in the morning 🐇😆 (assuming we don’t all get blown away before then 🤣)

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Christina

@Christina_Wood1

2 years

Anyone who knows me, knows I’m experiencing a chronic adverse reaction to a Covid 19 vaccine. Compared to some, im mildly affected. Even then it’s been life changing. Im not alone. The censorship & taboo around vaccine injury must stop. Please watch.

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Christina

@Christina_Wood1

11 months

@oneadds Yup, I see no action whatsoever from doctors on this. We need research and better, prompt characterisation of our injuries. I am completely debilitated and still have no idea what the hell kind of disease I even got! Let alone how to treat it.

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@Christina_Wood1

1 year

Latest NIH researcher’s take on chronic neuro vacc injury. Says hard to dx & tx. Yup! 🫠 Need immunotherapy bc it’s being driven by a dodgy immune response. No body/entity is responsible for researching side-effect aetiology or treatment. Great 🤯

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@Christina_Wood1

2 years

@danielgoyal @BBCNews After the severe chronic reaction I’ve had to one dose of a C19 vaccine, I can’t help but wonder if they are implicated in these high rates of unexplained deaths 🤔 Trying not to go down a conspiracy rabbit hole here (im generally pro vax!) but I’m v concerned by this data.

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@Christina_Wood1

2 years

@rachel_loeb @EBRheum I know correlation doesn’t equal causation, but seems mad not to in some cases. I was a healthy, fit mountain biker one day, cycling hundreds of kms each month. One shot of Pfizer…haven’t even been able to get on the bike yet (am 1 yr post) 😭

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@Christina_Wood1

1 year

@nadhimzahawi Im sure it’s saved many. But it’s also disabled a proportion. For which there seems to be no medical support or treatment, and no access to financial help. The VDPS is not fit for purpose and the NHS woefully unprepared for complex, multi systemic adverse events.

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@Christina_Wood1

2 years

@LecarpK Im so sorry, I know what you’re going through. The worst part for me is the lack of medical investigation into adverse events, I was disbelieved, ridiculed and my referrals delayed as a result. Then my referrals were rejected!! 🤯 We should not be left to rot 😡 I hope u recover.

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@Christina_Wood1

8 months

@Silas33 This is how I felt too. Trying to see the big picture but really only seeing (and feeling) my own dire situation. Made me kinda hate myself 🙈

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Christina

@Christina_Wood1

1 year

@HarryLeeming @ONS Well done, and thanks. Hope the BBC were there and took some notes 😆🫠

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Christina

@Christina_Wood1

2 years

@fearnley_k @resiapretorius @microbeminded2 @dbkell @MBVanElzakker But what about those of us who were never infected? But got sick with LC symptoms from the vaccines? Do we have Covid too? In the form of viral persistence due to S1 spike in circulating monocytes? Same cascade of cytokines / autoimmunity / mast cell activation…😕

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@Christina_Wood1

1 year

@I_need_a_razor Made me cry 😢 Thanks for your openess and honesty and for recognising her loss as well as yours. I’m sorry 😞

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@Christina_Wood1

2 years

@JohnMasonMSP @laworfiction There is no exaggeration from any of the victims. Just weaponising of our stories to fit any vax narratives. None of us are anti vax, we went and got our shots! Now been left to rot. That is reality. So very disappointed in the lack of compassion for the many thousands affected.

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@Christina_Wood1

2 years

@CarlFle47251645 @resiapretorius @ScienceMagazine I’m nearly 8 months into this as well. It’s been horrendous. Also haven’t been believed by a single NHS doctor, which I have found to be traumatic. Put on multiple antidepressants, which of course did nothing! 😤 Doctors really need to LISTEN & not psychologise so readily.

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Christina

@Christina_Wood1

2 years

@DgravyDan That’s great, glad they worked ok for you. Others weren’t so fortunate. Be kind 💜

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@Christina_Wood1

2 years

@ake2306 @JohnMasonMSP @DrBruceScott @biologyphenom 😪 I’m sorry Alex. That’s really upsetting coming from one of our MSP’s. Hope you’re doing ok.

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@Christina_Wood1

2 years

@MHRAgovuk If only my vaccine gave me side effects like that!! Instead I got complex nerve & cardiac damage. Reported it but what was the point? Still no comms to govt / media about this post V syndrome that YOU KNOW is happening to too many. End the censorship & help people 😡

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@Christina_Wood1

2 years

@Bdxl_Crusher Same. 15 months and in a flare up so bad it’s like back to square one! 😫

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@Christina_Wood1

2 years

@rachel_loeb @retrorefurb1 Me neither. My kids had their baby ones but won’t ever be getting another! Not a position I ever imagined I’d be in.

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@Christina_Wood1

11 months

Sounds familiar. I can’t believe how many people have this, and how little understanding & medical support there is.

Channel 5 News

@5_News

11 months

A new report says Long Covid impacts patients' lives as much as Parkinson's disease or some cancers. @Ruth5News has been speaking to someone who's affected. #5News

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Christina

@Christina_Wood1

8 months

Unfortunately this approach made me infinitely worse 😞

Paul Garner

@PaulGarnerWoof

8 months

6. Balancing Activity and Rest: after an initial period, fatigue and other symptoms following activity do not necessarily indicate danger or lack of energy. Graduallyincreasing activity, supported by credible explanations of the symptoms increase the chances of recovery.

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@Christina_Wood1

2 years

Devastated. Can we PLEASE URGENTLY acknowledge, discuss, investigate and treat those with severe chronic post vaccine sequellae before more victims take their own lives 💔😡😭 @P_H_S_Official @BBCHughPym

UKCVFamily

@ukcvfamily

2 years

We have just been made aware that Jack Phillips, who was a member of UKCVFamily took his own life on 7th August. His dying wish was that this album he created during his final months was shared. Jack — thank you for so bravely pushing on. 1/2

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@Christina_Wood1

1 year

@614khu You’re not alone. Same here but from one Pfizer. Still chronically ill 😢

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@Christina_Wood1

2 years

@DavidSYounger2 Can you expand on this please? What are you seeing in the brain? I have post vaccine long haul and feel like my brain is affected by my routine MRI is clear and I am discharged from neurology. Still feel concussed often 😵‍💫

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@Christina_Wood1

2 years

@MHRAgovuk You seem to cherry pick which side effects to monitor / tell media about. Media think the only adverse events are myocarditis, guillian barre, anaphylaxis. What about chronic post viral syndrome / dysautonomia triggered by vaccination?? It’s huge - I know so many affected 😨

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Christina

@Christina_Wood1

2 years

@jackiescoones @njp000 @breakfastnick For me…it’s rapid onset small fibre neuropathy, tinnitus, hyperacusis, & tachycardia followed in the weeks following by massive hair loss, breathlessness, hearing loss, Covid toe, arrythmia, mottled skin and bruising. 1 year in. Still not recovered.

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Christina

@Christina_Wood1

2 years

@dgurdasani1 @LynPaul6 6! Glad they work for you and keep you safe. It just took one to totally destroy me.

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Christina

@Christina_Wood1

11 months

My husband is a NHS whistleblower. He was treated terribly after raising concerns. Instead of investigating & addressing the problems he raised, they made HIM the problem 😳 A horrendous journey for the whole family, & STILL his concerns were never addressed 🤯

BBC News (UK)

@BBCNews

11 months

NHS whistleblowers need more protection, expert warns

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Christina

@Christina_Wood1

8 months

How about: • demonstrating that there is a safety net when 💉 produces adverse event? • Prompt diagnosis & treatment? • Research on 💉 injuries & who susceptible? • Compensation system fit for purpose 🤯 • non-passive reporting system with improved granularity?

Martin McKee 🇺🇦

@martinmckee

8 months

Our new paper led by @vingalasso w/ @VinPons @Paola_Profeta @davidstuckler et al. in @GlobalHealthBMJ evaluated different messages to reduce vaccine hesitancy in 9 countries

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Christina

@Christina_Wood1

1 year

@Silas33 I get the same about vaccine injury 🙄

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Christina

@Christina_Wood1

1 year

@drclairetaylor @1goodtern @ClareRayner6 I don’t understand why @P_H_S_Official are not communicating about this. My kids have had 3 x Covid this year - now dealing with recurrent impetigo.This is NOT coincidence, they’ve never had this before. They also look very pale and tired 😞Considering pulling them out of school

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Christina

@Christina_Wood1

2 years

@MrOsteo I wasn’t informed either. Told about flu like symptoms and a sore arm. Instead I got neuropathy in my legs, brain inflammation and arrythmia. Still battling the neuropathy 14 months on! Zero help from the NHS, had to go private. Ridiculous.

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Christina

@Christina_Wood1

1 year

❤️

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Christina

@Christina_Wood1

9 months

@resiapretorius @RobWust I think I am one such patient with this. Severe proximal muscle weakness (chronic & worsens as PEM), yet no inflammation markers, no raised CK, negative for myasthenia etc. Just lost 😞 It’s my most disabling problem by miles. I’m V injured, not LC. But seems the same thing 🤷‍♀️

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Christina

@Christina_Wood1

2 years

@KunstJonas BBC Scotland seem more open-minded & less agenda driven than the BBC down south. BBC Scotland journalists are actually talking / listening to clinicians about what they’re seeing & giving them a platform. Even post-vacc sequelae have had a mention! You’d not get that on main BBC.

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Christina

@Christina_Wood1

2 years

@doctorasadkhan @dbkell @RenierMatthias @calirunnerdoc @jencurtinmd @loscharlos @resiapretorius @microbeminded2 @ahandvanish @farid__jalali @j_b_kennedy @long_covid @gezmedinger @DrAnnaNZ @Girish_cbe Thank u for saying this. I feel completely ostracised for having this reaction to the vax. No doctors believe me, & I got booted out of LC groups for saying it, which combined with the symptoms, is becoming really distressing. Is there a way to educate U.K. docs on this?

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Christina

@Christina_Wood1

7 months

@SGriffin_Lab This was you not having the energy?! 🤣👏 I really didn’t have the energy so I cancelled my tv licence instead. Had enough of their drivel. Awful journalism across multiple issues these last few years. Patronising AF. I’m off to #BeMoreSally

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Christina

@Christina_Wood1

2 years

@thepollenberry @ShaneyWright @resiapretorius How disappointing! I attended a days testing in a lab this week by a small group of LC researchers in Scotland - they r very much tuned into the microclots theory & hope to test my blood. They’re very interested in endothelial dysfunction & autoimmunity too. Spot on I reckon 👍

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Christina

@Christina_Wood1

1 year

@AnnLHowarth @drclairetaylor I had no risk factors and was an athlete before this pandemic. 3 infections later and I can hardly move from nerve damage & cardiac inflammation. Young mum of two. Nobody knows if they’re vulnerable or not until it’s too late. Claire is right, we need to mitigate this thing.

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Christina

@Christina_Wood1

1 year

@JDAlbarnaz @erturklab @zhouyi_rong @HongchengM @Sakethkapoor I’d like to know the answer to this too. I got a near identical syndrome to Long Covid, from my vaccine. Want to know if is same pathophysiology despite the lack of viral trigger.

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Christina

@Christina_Wood1

1 year

Read this & cried. A story from another 💉 injured patient (different 💉 same outcome!) who suffered horrendously like many in @ukcvfamily for 9 YEARS 😢, but made big gains from IVIG. More of us in this community need to be able to access this tx.

An IVIG Chronic Fatigue Syndrome (ME/CFS) / POTS Treatment Success Story: IVIG#1 - Health Rising

Suzi’s story is the first in a series of blogs exploring the possibility that the autoimmune findings will open the door for IVIG (Intravenous Immunoglobulin) treatment in chronic fatigue syndrome...

www.healthrising.org

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Christina

@Christina_Wood1

2 years

@drclairetaylor @danielgoyal This “living with Covid” approach (Aka pretending it doesn’t exist) is an absolute shit show. Surely there is a better way 🥴 A lot of folks reporting terrible / neck / back & leg pain on this latest variant. I wonder what’s driving that. Get well soon Claire x

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Christina

@Christina_Wood1

2 years

@dvergano @camerokt_ The vaccine ruined my health. Dysautonomia and vascular inflammation. Still under neurology as they try to figure out what’s happened to me 😔 I was an athlete before, my strava stops dead last summer. But we don’t talk about Bruno…

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Christina

@Christina_Wood1

2 years

@Nohj60536387 I’m still waiting for cardiology too. 17 months of undiagnosed arrhythmia 😭💔 Why is nobody helping? I can’t understand the lack of help when our lives changed OVERNIGHT!! I now also have PoTS. Also undiagnosed. Muddling along adding salt to my food etc but jeez, someone help!

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Christina

@Christina_Wood1

1 year

@LucyBaileyUK Thanks for the update. Gives a bit of hope! Im over 2 yr mark but getting a lot worse thanks to several reinfections and flu 😩 Did you have the full suite of symptoms?

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