@CharlotteNHSRN Am in same boat - my mum did not tell me at time he had gone to ED - experience was not great and am still battling with PALs to get onward referral sorted. Honestly don’t know sometimes how others manage.

@CharlotteNHSRN I was in a very similar position with my relative. I also don't think she would have survived without my nursing experience and I became incredibly worried about patients who don't have people with a nursing/medical background to advocate for them. That's when I joined Twitter.

@CharlotteNHSRN I think I was recently was able to get a GP appointment because I could do a decent handover of my health state. I think it really helps when you can say 'My temp is 38.1 and I'm tachycardic'. My non medical cousin doesn't even own a thermometer - I said it might be useful!

@CharlotteNHSRN I had a similar experience with my step dad last year - it’s so scary to think these things are happening and people who don’t have any medical/nursing experience are at such a disadvantage 😳😔

@CharlotteNHSRN Can you explain more why the experience was troubling. Want did our ward colleagues do badly ?

@CharlotteNHSRN Same Same Same If I have to find a silver lining it is that we advocate even more for our patients’ care and involve their family Our experience in was🇩🇰 was…interesting Very sad state of affairs Very sad

@CharlotteNHSRN @alisonleary1 Nursing experience counts for nothing when the ward staff can't or won't answer the phone. My mother contracted Covid on a ward in December & was moved to isolation where it was next door to impossible to get any information...or even speak to someone.

@CharlotteNHSRN I a Have had two out if three terrible hospital experiences in the last 3 years, and as a retired trained nurse I escalated my care due to my knowledge but got called miserable and other names because of it. Just keep complaining else nothing will change.

@CharlotteNHSRN sad to hear this,historically I was traumatised by the poor palliative care elements by x2 specialist nurses in hospital -poor symptom management- my mother's end of life/dementia/unconfirmed bowel cancer -my concerns only noted when she died💔

@CharlotteNHSRN @alisonleary1 I was the same last year with my mum x

@CharlotteNHSRN It's scary that's what it is. Vurnable and disabled patients aren't being seen. This was one of the reasons the NHS was set up.

@CharlotteNHSRN @alisonleary1 They die🥀17yrs Scared, traumatised. If single 24/7 mother carers dare escalate, challenge or try to advocate for severely disabled LD children they risk being removed by hospital security. Fii & false accusations, arrest. (Prof Luke Clements, institutional parent blame)