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A_Research_Guru

@A_Research_Guru

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2,696
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Mom. Grandma (nanni). Purveyor of Public Records. Genetic Genealogist. A perpetually churning Kaleidoscope of Native, Spanish & European ancestry. she/her #MBC

In a Kaleidoscope
Joined May 2017
Don't wanna be here? Send us removal request.
@A_Research_Guru
A_Research_Guru
7 months
My darling daughter stayed the night and slept next to me last night. I don’t know how to do this part. We’ve had anticipatory grief for years. Now it’s like thousands of pounds of weight. Now what? How does one leave this world. Give all my shit away? I just don’t
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@A_Research_Guru
A_Research_Guru
1 year
I was trying to get a good selfie… new me. I’m just not good at this selfie stuff. I’m surprised at my willingness to share. 🥰
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@A_Research_Guru
A_Research_Guru
10 months
My momma really loved the ocean. I got to take her a couple of times. This was in 21. I don’t know how to do this thing where your mom dies. Of course it’s just part of life, but that doesn’t minimize it’s impact. I struggling already & I haven’t left the safety of home, yet.
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@A_Research_Guru
A_Research_Guru
2 years
@marketamp @RoArquette @elonmusk That’s a ridiculous excuse to not do it. Seriously. People that care, just act. They don’t need to be asked, a given a plan, they just show up and do it. So there is nothing to stand on with a empty offer that sounds good. That’s just petty.
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@A_Research_Guru
A_Research_Guru
7 months
this world quietly. Can’t fucking leave this world quietly. Came in screaming…
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@A_Research_Guru
A_Research_Guru
7 months
The cancer treatment isn’t working. Onc is heavily leaning on stopping treatment and not feeling horrible the remaining time I’m here. I feel like I can’t breathe.
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@A_Research_Guru
A_Research_Guru
2 years
@___jordxn__ @lifewithsommer So you fantasize about ecocide? And you sound “proud” about it. Wow.
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@A_Research_Guru
A_Research_Guru
7 months
It’s because people want to be able to discuss death but america somehow managed to create a culture that doesn’t have a lot of coping mechanisms for grief, and it’s left people yearning for mechanisms for which to change that. So welcome new followers. This is me not leaving
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@A_Research_Guru
A_Research_Guru
7 months
want to spend the rest of my time worried about shit that doesn’t matter. How do I spend time with my granddaughter and not cry every single second away? My other two grands are so little they will not remember me. How am I to make a decision about continuing treatment
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@A_Research_Guru
A_Research_Guru
2 years
@shea_vassar My lil cousin would stand on his chair and slap the table while screaming “mas frijoles” It was so darn cute.
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@A_Research_Guru
A_Research_Guru
7 months
that I know what’s to come isn’t good. It might be strange to some that I’m here on sm at all but I have a feeling this space will be useful as it always was to allow me to just vent. It’s so weird when you vent to “Twitter” about dying, you somehow get new followers.
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@A_Research_Guru
A_Research_Guru
6 months
I have the worst headache. It may be the worst I have ever had. It’s the bone mets. My jaw bone and the skull mets are all inflamed now. Everything is throbbing and I can’t cope this way. The pain is too much. Fuck you cancer. *don’t need advice*
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@A_Research_Guru
A_Research_Guru
3 years
@KTVB Praying her daughter pulls through. I’m proud for this woman to come forward, admit her mistakes. Anyone here to put her down needs to reflect on why they in fact shouldn’t.
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@A_Research_Guru
A_Research_Guru
7 months
or not. I don’t know how to do any of this. I don’t want to do any of this. If I say no, does that make me weak? Knowing that there will be side effects that I may not be able to overcome while my body is already so compromised. Eribulin will be the drug if I choose to go
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@A_Research_Guru
A_Research_Guru
7 months
I have not found that moment where I say oh, I’m dying, here’s a bucket list. I don’t have the stamina for buckets, or travel, or activities. I’m just to much in pain and things like nausea control most of my days. My sister wants to come to see me, I definitely want to
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@A_Research_Guru
A_Research_Guru
1 year
Palliative care Dr thinks I should start hospice. She said I would be able to keep treating the cancer but these feels I’m physically unable to manage my dx. And life would be better if I did. I’m struggling fam. I don’t know what to do. I’m not ready. 🥹
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@A_Research_Guru
A_Research_Guru
7 months
forward with treatment. I really don’t know what to do. How hard will it be sitting here knowing there is nothing in my body to fight the cancer back? That is already impossible to manage mentally. The fucking shit is even in my jaw bones. I’m already in so much pain
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@A_Research_Guru
A_Research_Guru
2 months
Friends LOOK 👀 I am so fucking happy right now. I needed this to say stable!!! Thank you so much for all the love, prayers and support. I’m so elated. This is so damn awesome.
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@A_Research_Guru
A_Research_Guru
8 months
My beautiful, brave, sweet, generous, loving friend @LibbyMbc has journeyed on. This incredibly ugly disease has taken her beautiful light from this world, leaving her Violet without her Mom. While we have watched Libby endure some of the worst experiences this dx has to offer
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@A_Research_Guru
A_Research_Guru
1 month
Yesterday you were grinning ear to ear about abandoning DEI in Idaho government. Don’t pretend to give a fuck, be careful as it literally highlights your racist ass.
@GovernorLittle
Brad Little
1 month
My statement on the unacceptable incident in Coeur d'Alene involving the Utah women’s basketball team.
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@A_Research_Guru
A_Research_Guru
1 year
@seattletimes Deceased, long Covid, and the reality that some cannot work bc they are vulnerable and unable to take the risk. Economists will continue to be baffled as the gap widens further because the pandemic is not over. It’s really not a head scratcher.
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@A_Research_Guru
A_Research_Guru
2 years
@chrismohney We’ve bailed out banks and we subsidize LOTS of things including the damn NFL. I wish people would look at all the beneficial ripple effects student loan forgiveness would create.
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@A_Research_Guru
A_Research_Guru
9 months
I have this lovely purple dress for the party! Moms favorite color. I turned 50 this year, and the whole cancer thing… however I found myself feeling pretty today. Jewelry by @aliwatson117 and @tzingona thank you my beautiful friends.
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@A_Research_Guru
A_Research_Guru
8 months
I’ve decided to cancel todays chemo appt. I have lost four days to nausea and my fatigue is out of control. Yesterday my big job was making it to the shower. It drained me just getting there. I still have two more to go before a two week break and a pet scan.
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@A_Research_Guru
A_Research_Guru
2 years
Need to vent. I am petrified of my upcoming scan. My body hurts the way it did when I went stage4. I refused to let it affect me while on vacay… coming home was brutal physically and mentally. I’m not going into details but sometimes support at home is… difficult
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@A_Research_Guru
A_Research_Guru
6 months
I will be going home this afternoon! The palliative teams have been in communication and we are going to increase my at home doses of analgesics. Hopefully this will prevent another pain crisis. Hopefully this will keep me out of the hospital. I’m anxious to move forward with
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@A_Research_Guru
A_Research_Guru
2 years
Heavy sighs. I have been to the oncologist. I’m not in the worst position, but my options are limited. Stage4 breast cancer is never a curable dx. Time, time is what stage4 is about. It’s about eking out every last day one can with ea available option.
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@A_Research_Guru
A_Research_Guru
2 years
Erasure of Indigenous people everywhere all bundled into a tweet.
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@A_Research_Guru
A_Research_Guru
4 months
Grief. It hurts. Missing a parent is more difficult than I ever imagined. 🥹
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@A_Research_Guru
A_Research_Guru
7 months
The pain of progression in my bones is indescribable. It hurts too much to cry most of the time. And if I do cry, it only makes things throb harder. The throbbing pain is worse than hot stabbing pain. I don’t know what causes the throbbing. Sometimes it makes it feel
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@A_Research_Guru
A_Research_Guru
2 years
@ShoNuff202082 @marketamp @RoArquette @elonmusk How about giving it directly to the people. Give them a home. Give them cash. Give them food. You see where I’m going here? And I attacked nobody.
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@A_Research_Guru
A_Research_Guru
2 years
@NancySinatra @MicheleJeanson1 @RoArquette It’s very heavy. I wish protecting our right to vote meant as much to them as the right to bare arms. I’m deeply saddened that the game is to make the President unsuccessful, when their job is to actually work for us. They aren’t. It’s really gone amuck.
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@A_Research_Guru
A_Research_Guru
6 months
People in the community purchase bouquets for people in hospital. The floor staff decided I should be the beneficiary of one. So sweet of them! Look how pretty 😍 even comes with this beautiful cup and saucer that will surely brighten the morning coffee or tea.
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@A_Research_Guru
A_Research_Guru
1 month
What does hypocrisy look like. One day apart.
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@A_Research_Guru
A_Research_Guru
10 months
The coroner has been to visit me today. My wonderful , beautiful, fiery, Momma has left this world. To say I’m devastated sounds so inadequate. I’m lost. No momma. No.
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@A_Research_Guru
A_Research_Guru
10 months
@Songstress28 This is so sad, and unnecessary. They allowed the convoy to have their protest, they spend millions on frivolity and had no problem searching for a sub w/millionaires on it. I’m watching this from the US. The world is watching. The shame should be felt by them.
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@A_Research_Guru
A_Research_Guru
28 days
It is my birthday month. As you age you need more time to appreciate your birthday, so I’m taking the whole month.
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@A_Research_Guru
A_Research_Guru
7 months
We did family photos today
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@A_Research_Guru
A_Research_Guru
3 years
@JackPosobiec @MattWalshBlog The locations and exact amounts were not fully known. Why are you like this? Where is your empathy? These children have living family. They have carried this trauma. FFS if these were your relatives, would you act the same?
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@A_Research_Guru
A_Research_Guru
2 years
@DC19583 @LEBassett It’s important to understand that “abortion” also includes ectopic pregnancy and most any other situation where a infant has died in utero or has life threatening health implications for the individual carrying and the infant itself. It’s estimated that 10-15% of pregnancy ends
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@A_Research_Guru
A_Research_Guru
10 months
Eleven long days since we last exchanged our daily “good morning, I love you 💕 “ texts. 8 long days of feeling like I’ve been punted into a dimension where you don’t exist anymore and all I have is memories. Not one second of peace with you gone. I miss you ever so, Mom. 🥹
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@A_Research_Guru
A_Research_Guru
1 year
Whomever is praying… all of you. Thank you. I am going home. With amole pain meds and a confident palliative care plan that includes taking care of the next pre authorization.
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@A_Research_Guru
A_Research_Guru
2 years
@johnowashere @morgan_sung I wonder if she felt a tinge of humanity knowing the crown holds massive amounts of cultural artifacts. And this would include human bodies they kept for “science” She could have ended the many atrocities occurred in her lifetime, she could’ve given the LandBack 🤷🏽‍♀️
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@A_Research_Guru
A_Research_Guru
4 years
@EhhWassupTHOT @Redskins A simple explanation requiring only two words. Redskins Kaepernick Don't get it yet? You probably never will.
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@A_Research_Guru
A_Research_Guru
1 year
Need to vent! It’s gonna be a really long night, again. The pain is so intense. There’s no getting comfortable. It’s so deep in the bones, it’s not like any other pain I’ve ever experienced. Absolutely fuvk cancer. As always, thank you for being here. Love A
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@A_Research_Guru
A_Research_Guru
7 months
My sleeping pattern has gone by the wayside. I’ve begun to realize that part of it may very well be anxiety. Fear of dying in my sleep. Which by every stretch of my imagination not a bad way to go. It’s bec stuff is undone. I’m not “ready”. It’s also become super painful
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@A_Research_Guru
A_Research_Guru
1 year
So spontaneity won today and somehow this happened 🤷🏽‍♀️
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@A_Research_Guru
A_Research_Guru
1 year
Waiting room my thrilled waiting room face. The girl under there doesn’t feel good, her body already hurts. #RoundFourTaxol #Stage4NeedsMore #MetastaticBreastCancer
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@A_Research_Guru
A_Research_Guru
6 months
The amount of long term effects of the cancer and the side effects of treatments are extreme. My body has felt like it’s not mine for some time now. Problems become unsolvable, quality of life greatly diminishes. Pain has been more manageable, for that I am so grateful.
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@A_Research_Guru
A_Research_Guru
2 years
@JoeBiden They are already denying cancer patients meds that can cause abortion. Stop the damn madness. Act NOW NOT IF NOW.
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@A_Research_Guru
A_Research_Guru
4 years
@Pink You are a beacon of light in a dark nation. Give 'em hell girl💛
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@A_Research_Guru
A_Research_Guru
7 months
be so bittersweet. It’s so much weight to carry around. I could try the Eribulin. But the onc did not seem to think that would have any really extension on the situation. But I have a lot of questions. What they see as not a lot of time is seen a lot different by the patients.
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@A_Research_Guru
A_Research_Guru
2 months
I did it! My first watercolor flower!! I think she is beautiful. I had so much doubt it would even look like a flower! Hahahaha this one I could do again and again and learn more about the blends. Even use different colors.
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@A_Research_Guru
A_Research_Guru
1 year
Hiding behind this mask is a smirk on the face of a stage4 breast cancer patient who has spent the last 18 of the last 21 days in the hospital.
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@A_Research_Guru
A_Research_Guru
2 years
So the palliative care Dr let me off the hook and told me my scan results!!! No new spots. Decreased uptake in some areas. Still a lot of bone activity but no progression!!!!!! Breathe.
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@A_Research_Guru
A_Research_Guru
3 years
Cancer is the loneliest place, I have ever been. It’s not quiet. It’s never serene.
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@A_Research_Guru
A_Research_Guru
3 years
@wired4story Heart broken for you and your family. Thank you for always being a bright light in a dark space. I will never forget you, Liz. I pray your transition is pain free and you are surrounded by love and peace. 💜💜💜💜
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@A_Research_Guru
A_Research_Guru
1 year
I dread going to the ER. But I’m not able to control my pain or nausea. I wish there was a way to avoid the ER. 🥹
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@A_Research_Guru
A_Research_Guru
7 months
And my grandchildren. My legacy. I don’t know if there is such a thing as “making peace” with the facts. I’m pissed off. I’m angry. I feel cheated, ripped off, stolen from. How can I be okay with leaving at what feels like such a young age. I’m only 50. I found this lump
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@A_Research_Guru
A_Research_Guru
3 years
Hello friends😊 My scan results are “clear.” No evidence of metastatic disease in my brain tissue ( in my actual skull, I have lesions, which we knew already) No evidence of a stroke. All excellent news and I am so grateful. What we don’t know, is what did happen that day?
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@A_Research_Guru
A_Research_Guru
7 months
Telling people you are dying from cancer always brings this 👇🏼out of all the dusty corners. Don’t do this.
@YasonWave
Yason
7 months
@A_Research_Guru Hyperthermia,IPT? High dose idodine,b17?
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@A_Research_Guru
A_Research_Guru
3 years
@PeopleRepellent @_virgogre Culture is absolutely tied to land. How do you think cultural cuisine, for example, would be different if it didn’t originate in a specific area where specific food, spices etc are available?
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@A_Research_Guru
A_Research_Guru
7 months
It is so strange to look back on my life with the knowledge that I’m leaving soon. Adds a whole new color to the spectrum. I’ve seen my life as a perpetually churning kaleidoscope. The kaleidoscope will keep churning long after I am here. It churns in my children
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@A_Research_Guru
A_Research_Guru
1 year
Update… Well friends, as it appears I am u able to say I am ready for hospice, then I must not be ready to stop treatment. I told myself many years ago that I would never do chemo again. However. Things change. When I think of the alternative, my physical response to the fear
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@A_Research_Guru
A_Research_Guru
3 months
People who get shitty about your cancer dx when they are mad at you often say shit like “everyone dies”. And it’s true, we do. However. It’s those very same people who couldn’t handle having to do what I do to live. #FuckYouCancer #StageFourNeedsMore
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@A_Research_Guru
A_Research_Guru
7 months
when I was 39. I couldn’t get help until I was 40. By that time it was already stage3. 10 years is a long time. I’m not ungrateful, but I’m still allowed to feel all of these emotions too. I don’t even know what to say to the rest of my family. I don’t know how to look
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@A_Research_Guru
A_Research_Guru
6 months
Little miss went to the groomer yesterday, and they did her “in velvet”. Very soft and looks like velvet in the light too. You can see her whole face. Oh isn’t she pretty 😍
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@A_Research_Guru
A_Research_Guru
7 months
When I say I am a part of the best community, it’s not hyperbole. These words here, brought me comfort, encouragement, and love. So much love, so many kind words, all the prayer, virtual hugs, none of these things can be replaced with something different. The uniqueness
@ironbow
Debbie ᑳᑫᓯᒧᑐᑕᐁ
7 months
@A_Research_Guru Don't leave quietly sister. Your spirit may leave us, but your words and what you still have to teach others about this journey, is not yet done. We are here, many of us are here and we love you. Scream, cry and hurt, our hearts feel your heart. 💕😢
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@A_Research_Guru
A_Research_Guru
7 months
at my partner every morning knowing what’s to come. I hurt for him. He told me he doesn’t want anyone else. That he won’t ever have anyone here in our home. I feel selfish to say that brought me comfort. And it made me hurt for him all over again. This remaining time will
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A_Research_Guru
1 year
@ProjectMosaicCO Jeez the fragility sometimes exceeds the contradiction and the caucacity. Yikes. Friggin cried. 🫣
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@A_Research_Guru
A_Research_Guru
3 months
I reviewed my Medicare payments and saw how expensive the Enhertu is. $20,000 It blows my mind to see numbers like that. To know how much it costs to keep me alive. For reasons I don’t know, it sits heavy on my mind. I even asked myself if I’m worth all this. Of course I am.
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@A_Research_Guru
A_Research_Guru
1 year
Chemo hurts. I know a lot of people say, “you get through it…” the truth is the opposite, it gets through you. And as it does it leaves you in a mess behind it. There is no “easy chemo” is there easier? I don’t know how to compare. I don’t think it can be. Perhaps the regimen
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A_Research_Guru
1 year
Finally got my head shaved… feels so much better. 💪🏼 #FuckYouCancer At least I have a beautiful shaped head and some facial features that that help like high cheekbones.
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@A_Research_Guru
A_Research_Guru
2 years
@yunpovi @Native_Orchid 😔💔 I’m so sorry. This is so wrong. I’m lost for words that won’t get me banned. I feel such disdain and disgust.
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@A_Research_Guru
A_Research_Guru
6 months
Onc and I have determined that Enhertu will be the next line of treatment . Once every three weeks. She seems fairly excited about it working and giving me more time. There are some precarious side effucks that come with the treatment. Inflamed lungs. Joy. Anyway at this point
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@A_Research_Guru
A_Research_Guru
7 months
Cancer is not a parasite, Ruth. It’s beyond rude for you to offer me a blessing and then fling crap like this around.
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@A_Research_Guru
A_Research_Guru
1 year
Need to vent… My so called “dad” decided he wasn’t going to get a Covid or flu shot before coming and. Ever told me until he is now sick. In my fucking house: Where I have ZERO immune system right now! Nobody has ever disrespected me so flagrantly in my life
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@A_Research_Guru
A_Research_Guru
7 months
see her and the kids too. I want to maybe enjoy Thanksgiving together. That would be freaking awesome actually. We haven’t had a holiday together in a very long time. I can’t recall the last but it was certainly before I moved here. And that was a lifetime ago.
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@A_Research_Guru
A_Research_Guru
7 months
There is no correlation. Go away.
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@A_Research_Guru
A_Research_Guru
7 months
My new neighbors are trumpets (MAGA). They hung their flag today. And I’m not impressed. I wasn’t impressed before they hung the flag, now it’s plain depressing. I was raised that your political views and your religion are private. I will not be having bbq with this neighbor
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@A_Research_Guru
A_Research_Guru
5 months
Well the tree is decorated and she looks beautiful.
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@A_Research_Guru
A_Research_Guru
6 years
@KTVBJoe Wow. There really are no words that can describe the small minded world that these individuals are a part of. What a bold display of racism and hatred. A prime example of the division and disconnect that is not congruent with American values. I hope they are all fired.
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A_Research_Guru
8 months
Pain pain go away. Do not come back another day. Ugh. I hate when my pain goes up, it’s bone pain so it’s miserable as fuck. It’s also adding to my anxiety. Maybe the taxol isn’t enough. I’m miserable.🥹
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@A_Research_Guru
A_Research_Guru
3 years
I believe they will be admitting me for pain management. Nothing i am doing at home is helping. All I can do is cry in pain.
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@A_Research_Guru
A_Research_Guru
8 months
Well Thursday is my usual day for chemo but for whatever reason this week and next are on Friday. I have to say I’ve been depressed about treatment. It’s so hard on my body. The side effects are many. The edema seems to be the chart topper this week. My hips get so
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@A_Research_Guru
A_Research_Guru
17 days
I have a feeling my little bestest friend isn’t gonna make it much longer. Her back legs seem to not be working. She’s been such a good girl.
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@A_Research_Guru
A_Research_Guru
8 months
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@A_Research_Guru
A_Research_Guru
3 months
Good morning friends. Today is Enhertu number four. I am struggling with motivation to go. Yes death is motivation… but doesn’t mean my body is appreciative as my mind. The nausea and vomiting has traumatized me. I so much as think about it, like now, and the nausea
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@A_Research_Guru
A_Research_Guru
2 years
@RoseMar95753967 @FLOTUS It’s not just Republicans… time to face that reality.
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@A_Research_Guru
A_Research_Guru
5 months
Sending love to anyone that reads this today. The holiday can be very overwhelming. And lonely. A real struggle. If you need a safe space to vent, you have one here. Grieving loved ones also takes a different toll. This is year one w/out Mom. Be kind to yourselves, it is
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@A_Research_Guru
A_Research_Guru
5 months
I have shopping, wrapping and cooking to do. Oh, and did I mention today is chemo day too? Sheesh. Hoping it’s kind enough to let me enjoy Sunday without too much ick.
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@A_Research_Guru
A_Research_Guru
3 years
@vanmorrison The pandemic is what is shutting down the economy. People without jobs, a lack of consumer confidence, and people unwilling to practice mitigation efforts are what is shutting down the economy.
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@A_Research_Guru
A_Research_Guru
1 year
🎵… the waiting is the hardest part🎵 Labs were good. Had a mocha from the coffee shop. Now just waiting for the premeds to start. Infusion 1 of indefinite. #Stage4BreastCancer #MBC #Chemotherapy
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@A_Research_Guru
A_Research_Guru
1 year
Success!! My #PotOfGold is there just below my clavicle. I’m groggy, needing a cup of some mocha and a pumpkin chocolate chip muffin has been earned! Thank you to all you wonderfully compassionate people. I love & appreciate each and everyone of you. 🥰
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@A_Research_Guru
A_Research_Guru
4 months
before I started losing my hair from the chemo earlier this year, I had hardly any silver hair. Now that it is growing, so much of it is silver it’s wild to me to see it. It’s growing in one thousand directions and not easy to tame at this point. It hasn’t started thinning
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@A_Research_Guru
A_Research_Guru
1 year
I’ve spent ten of the last 14 days in hospital. Got a couple nights at home in between stays. These moments are the ones that really put my situation in a perspective that doesn’t make sense since I’m so involved and realistic about my terminal dx. And I may have touched on
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@A_Research_Guru
A_Research_Guru
3 years
@mtgreenee @mattgaetz @andrewcuomo @GOP Minors are protected. Why are you defending him? What role do you play here? This is disturbing on so many levels.
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@A_Research_Guru
A_Research_Guru
1 year
The muscle, bone, joint pain caused by the chemotherapy is a lot. It’s wild how indescribably different it is from other kinds of pain. As is the pain from the cancer. Pain is complex. And often all consuming. Nobody should minimize anyone’s pain. It’s often invisible.
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@A_Research_Guru
A_Research_Guru
4 months
I am loving the blending I did on this hummingbird. He’s not done yet, but I am so thrilled I had to share it. 🤷🏽‍♀️
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@A_Research_Guru
A_Research_Guru
1 year
Want to tell you all thank you for all the kindness, support, encouragement, prayers, and love. I’ve so blessed to have you here with me. Didn’t really expect to find community here, however, I have and I am both grateful and humbled. Many thanks. A
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