I had to get an urgent ❤️ transplant in the middle of
#residency
(last yr at age 30). I started a
#blog
on post-op day 7 🤪 & I update it every 2-4 weeks. Been a crazy ride ever since. THANK YOU for all of your support!
#donatelife
#hearttransplant
My donor was a young girl who was very caring & had many hobbies. She loved school & was gonna do big things w her life. She seemed pretty freaking awesome. A beautiful soul. Admired by all.
I’ll put this 💚 to good use, babe.
Thank you from the bottom of ... our heart.
In 2019, I was a CVICU patient in cardiogenic shock due to fam cardiomyopathy. Had to get a heart transplant!
This week, I’m a doctor in a CVICU. Got my Crit Care Medicine
#fellowship
diploma, & have a few shifts left. 🥹
Huge thank you to my
#organdonor
for this.
#donatelife
Didn’t think migraines could actually be associated w weather changes until I started recording when I was getting migraines 😒 anyone else have migraines right before a storm/with humidity?
Four years ago, I spent the holidays intubated in an ICU with a sudden diagnosis of cardiogenic shock due to heart failure. Today, I thank my organ donor, Lucy, for giving me this
#giftoflife
♻️ through heart transplantation.
#thankyou
#organdonation
Over 1 yr, I have gotten to know more & more abt my organ donor. So, meet Lucy. She was in her early 20s, in the process of becoming a resp therapist, when she suddenly passed away. Her mom says that she’d always wanted to save lives. She saved 4 of us.
TY for the
#giftoflife
.
2 yrs ago tonight, I was laying in an uncomfortable ICU bed in end stage HF. Then I got a special call.
Lucy was loved by all. She ♥️ riding horses & had hopes of becoming a resp therapist. She wanted to save lives. And she sure did. TY for the gift of life.
Rest In Peace.
Three years with Lucy’s heart. Thank you 🙏 for the gift of organ donation. Thank you for your support. And most of all, thank you to the Reff family.
#medtwitter
#transplanttwitter
#heartfailure
Today is my FOURTH HEARTIVERSARY! To celebrate, my surveillance echo has finally been approved by my insurance company. 🤣 Glad they get it. 🫶
Thanks to my organ donor, Lucy, for these bonus years!
Thx to all of you for being so wonderful!
Life is short— enjoy it.
Christmas 2018 vs Christmas 2019. Both spent at the hospital. Similar but different.
#DoctorPatient
Docs, nurses, PAs, medics, all of you: thank you for everything that you do & for sacrificing so much to work this week. You are so, so appreciated. ❤️ Happy Holidays!
I was hospitalized, diagnosed with familial cardiomyopathy, & transplanted within 3 weeks of my life. It’s been a wild ride since…
Five years post heart transplant today.🫀😯
THANK YOU to all who’ve supported me through the years.
As a doc with a heart transplant working in the Cardiac ICU on World Heart Day, I feel like I need to put something out there about staying heart healthy:
- Eat your veggies.
- Take the stairs instead.
- Laugh.
I could only hope that the Cardiologists agree.
♥️
Today is my One Month Heartiversary ❤️! Orthotopic heart transplant start time was at apx 4:30am on Jan 15, 2019. 1st pic is from the week after surgery, 2nd pic is from 2 mins ago. Thx for all of the love & support, Twitter family! 💚🥰
#hearttransplant
#incisionscleananddry
Been referring to myself as just the med student, just the intern, just the ER resident, and as of today ... JUST the Critical Care fellow. Am I the only one who does this? I need to stop. Lol.
Today is
#NationalDonorDay
. TY to our organ donors and their families for all the lifesaving that they do every single day.
I was dx’d w familial DCM (due to a “DSP” gene mutation) & needed an urgent
#HeartTransplant
in 2019. 💔
This beautiful girl, Lucy, saved my life:
In Jan, I told my bff I couldn’t be a bridesmaid at her wedding. I didn’t know if I’d be well enough (or even alive) to attend. Fast forward to October ... because of a donor. Thank you.
@Donors1
💚♻️
My wonderful Cardiologist takes time to explain the intricacies of my echo to me during my 1-Yr Transplant Appt today. My response?
“Plz can we Boomerang it for the Gram?”
Best pt ever award 🥇
Thx for sticking with me for 363 days, Heart. Almost my One Year Heartiversary!
A while ago, I just “felt” like I had a PE and was a little lightheaded (otherwise stable vitals) then I went to the ER and my chief complaint was “I think I have a PE” & I did.
That’s that legendary ER doc gestalt they tell you about in the books.
🤣
Hey Twitter! Here’s a photo of my organ donor Lucy’s parents & me. Their daughter saved my life thru the selfless gift of
#organdonation
when I needed my heart txp. I’m alive today all thx to her. 🫶💙💚
To quote E. E Cummings “i carry your heart with me(i carry it in my heart)”
Sent this email to my Crit Care fellowship program director on POD3 (s/p heart txp). As many of you know, I had matched into fellowship. Two weeks later, my life took a sudden turn.
This is me asking if I can defer or if should reapply to ERAS “if I make it to June” 🥲 lol
Me: I work in healthcare.
Manicurist: Are you a nurse?
Me: No. Doctor.
Manicurist: A nurse?
Me: No, like .. a doctor ..
Manicurist: A real doctor?
Nothing wrong with nurses. I love them. My cousin and some of my bffs are nurses.
But this is life as a woman doctor. 😝
Several months ago, I was working & felt a bit dizzy. Before I could say the words “I’m just thirsty,” 3 ED nurses had me roomed, on the monitor, BP, EKG, & all.
“Did you take your meds?”
“Don’t scare us!”
“What’s Penn Transplant’s number?”
I ♥️ nurses! Happy Nurses Week!
@DGlaucomflecken
When a cardiologist asks me to interpret an EKG over the phone, I’m just like “Listen we both know you can see it… do you just like to play this game or something…?”
Will never forget the time I was an MS3 being pimped on asthma meds & attending asked, “Which one is an injectable monoclonal antibody for severe asthma...”
And I just yelled out, “OH MY LUNGS OOMAB!!!”
And everyone just stared at me.
Omalizumab.
I told a pt that I was part of the zipper club w/them & that I loved my scar. It was nothing to be ashamed of. A few hours later, pt’s family member came up to me:
“We both just wanted to thank your organ donor for helping us today.”
❤️
I was once very sick. Days later, a ♥️ transplant saved my life. Because of someone else, I am here today. She is my very own
#superhero
.
As we honor all types of heroes these days, I’d like to thank the hero
#organdonors
& their families out there too.
#DonateLifeMonth
Just got all 1,200+ pages of my medical records, woah. Best parts?
"Pt is cooperative & has a surprisingly bright affect despite her condition."
"She reports a desire to leave the hospital 'to smell the fresh air & not be hooked up to these wires anymore.'"
I love doctors.
3 yrs ago tonight, I became very acutely ill & was eventually dx’d w
#heartfailure
.
I had no idea if I would make it out of the hospital alive. I was afraid of going to sleep bc I didn’t know if I’d ever wake up.
Now, as a 🫀 txp recipient with a 2nd chance at life, I give you:
Family asked me how things are gonna look the 1st months out of transplant… what to expect/avoid, tips, etc. After my talk w/ fam:
Them: You’re so young but it sounds like you’ve been a txp doctor for so long! You know it all so well.
Me: Oh no I’m no txp doc. I’m a txp pt. 😂
Just wks before I became an ICU pt, I signed a contract to become an ICU fellow at my
#1
choice. When they found out abt what happened to me, they sent me Levain 🍪 on the reg (& visited me!) It’s become tradition.
& not once have they discouraged me from returning to work.
I’m at the end of my Crit Care fellowship! After finishing residency, personally knocking at death’s door, living thru a pandemic, taking care of the SICKEST ppl ever… What is the MOST important thing that I’ve learned?
You cannot control the chaos. Embrace it instead.
My dad printed his echo measurements… not the impression/general description, but literal measurements of each chamber. Wanted me to go thru it with him.
Me: You would need a board certified echo cardiologist for that.
Him: I don’t even know why you went to med school.
Despite the long hours of fellowship & continuously keeping up with my health, I do absolutely love it here in NYC.
My organ donor had written a note to herself which her family had recently sent to me. “Every day is a new day. Take a deep breath, smile, and start again.”
My bed’s not made but at least I have my makeup on for the first time in forever and I’m rocking the
#green
for
#bluegreenday
!!! 😂💚💙
Btw I’m almost at 3 months post transplant!
#NationalDonateLifeMonth
As a woman physician with familial dilated cardiomyopathy s/p heart transplant, I love raising awareness about the significance of heart disease.
#WearRedDay
Today is National
#WearRedDay
😍, raising awareness that cardiovascular disease is a woman's No. 1 health threat.
💃👠💄 If you're in red today, share a picture with us. 📸
AVN, A Poem
Deep bone pain
Like never before
Shooting down my leg.
Gnawing at me
Keeping me awake at night.
Heart failure was hard,
But at least it didn’t hurt.
Total hip
#2
in T-72 hours! Wish me luck. ♥️🙏
Pointers from a ♥️ transplant pt (quarantined last year): read, study, work on your abs (that was 10 wks post-op), order all of the food (try being healthy).
When it’s all over, the world is so much more beautiful, even more beautiful, than you ever remembered... you will cry.
Major milestone, everyone. Today, I go from taking medications 4x a day to 3x a day. I’m so excited.
You know, Kurt Vonnegut once said: I urge you to please notice when you are happy, and exclaim or murmur or think at some point, “If this isn’t nice, I don’t know what is.”
One time I was reading a surgeon’s progress note out loud and it had like 10 total words + 90% abbreviations. Then I said something like “NO TIME TO WRITE NOTE NEED SCALPEL AND OPEN OR ROOM” and the guy next to me was like, “Haha, hey I’m the surgeon…”
🤣 (he laughed tho)
Patient-doctor here. It’s nice getting quick blood test results as a patient, but there NEEDS to be a way for the results to be interpreted/checked before releasing them to patients. So many ppl getting anxious over RDW & things that we barely look at as docs (sorry
#hemetwitter
)
Got routine screening labs for my annual PCP appointment. Lab values resulted to MyChart at 6:30am, I promptly sent a series of messages at 6:31am asking why all the values weren’t green and it’s 7:30 and I haven’t heard back. Healthcare is a nightmare!!!!!
@elle_gayar
Doing a pelvic exam is more invasive than listening to a heart. If the pelvic exam can wait (& the pt doesn’t want to get 2 exams), I get everything else/labs ready. I then do the pelvic w OBGYN there (either me or them). One exam for both of us, no shirking off of duties.
Intern me: Why don’t I put together a nice, organized Excel sheet full of high yield info in alphabetical order & make it easy to navigate w/subtopics & cite my sources over the year? Perhaps it’ll help me when I’m studying for boards!
Current me: Thank god for intern me.
Words of Wisdom:
1) Don’t take things so seriously
2) Live simply
3) Time is your most valuable asset
4) Embrace uncertainty
5) Travel more
Thank you for coming to my TED talk.
🙏💚💙
#heartfailureawareness
#medtwitter
#transplanttwitter
Everyone keeps asking where I ended up for residency & I guess you have to read my latest
#post
(abt the rest of the Hahnemann closure & Re-Match 2019 for us) to find out. This was a really stressful summer. And I poured it all out here.
❤️ ya guys.
Posted this on
@instagram
earlier & it blew up, so I decided to post it here too. I figured that I have a unique voice in this.
I am an ER resident with a graduate degree in Public Health & I am living with a solid organ transplant... this situation is getting out of hand.
Let’s play “What would happen if hospital CEOs did one year of medical residency before becoming CEOs?”
“WHAT DO YOU MEAN TESTS TAKE ‘TIME’ TO RESULT?”
When people say things like “You’re too young to be sick,” it really doesn’t help us “young” people out. Nobody plans on getting sick (at any age, for that matter).
POD 17. I am able to walk almost 1 mile daily. Physical therapy is kicking my ass. Little to no pain, using ice PRN. And I’m going back to work next Monday! Thank you,
#HipReplacement
!
#orthotwitter
A piece of my ♥️ will always stay here (no pun intended). Loved every minute of living here bc you taught me so much about everything,
#Philadelphia
. A beautiful end to an adventure-filled 4 years— and I’m not even mad at you. Saying
#goodbye
to this
#jawn
tonight. 🇺🇸🔔
Thank you, Bilateral Hip Replacements, for giving me my joints back so I can walk in Central Park Again without limping in pain. It’s the little things in life. ♥️
@MountSinaiNYC
@MountSinaiOrtho
Happy World Heart Day. As a physician & heart transplant recipient, here’s some food for thought:
About *64 million* people in the world are living with heart failure today. The disease is affecting more and more people, & the HF burden in the young may be increasing.
There are people who don’t want to get certain vaccines prior to transplant listing or after getting a txp. Afraid of what’s going into their body, side effects, etc.
Let me tell you a little something about the Prograf you’re about to be on for the rest of your life… 😅
5 yrs ago today, I was an acute heart failure pt— critically ill, going to the cath lab *again.*
I never know what to say after the crazy stuff… the sudden dx, the transplant, etc.
So I usually pause & say “And uh here I am now...”
That’s life. It’s precious. 🥂 to 2024!
Please do not give me ANY pity for this hip replacement either! Remind yourselves that I was back at work full time < 1 month of my left hip replacement. No cane, nothing. I am hoping to recover the same way with this one. High expectations, hard work, good results. ♥️ Always.
“I’m so sorry that you have to sit here and go through these difficult conversations with people over and over again. This is tough for us, but this must be tough for you all, too.”
-Patient’s family member
♥️
When ppl ask how or why I’m going back into EM after my transplant, as it may be too risky...
Nobody from my team has ever told me not to. Nobody from my EM program(s) + my CCM program has discouraged me from going back.
Every single person has been supportive in my decision.
I went back to my hospital for the first time today (where I work + where I was dxed). I was so nervous/excited that I was shaking. Then I ran to the cath lab & hugged the crap out of the 1st cardiologist who did my cath/diagnosed me. I told him that he ended up being right. ❤️💁🏽♀️
The holidays are a rough time for many families who spend time with loved ones in the hospital. Believe me, I remember. Two years ago, I spent Christmas & New Year’s in a cardiac ICU *hoping* I would make it out, hoping for normalcy some day.
I went to the hospital yesterday (as a patient). But all is well now. 👍 Annnnd my dad flew in overnight.
Dad: Are you OK enough to go to the beach?
Me: ...
Dad: Art museum?
Me: ...
Dad: Dinner plans?
Mom: *on phone* Is dad stressing you out again?
😂❤️
Today is Rare Disease Day.
Although I’m not sure if my heart failure’s etiology is “rare,” I think that having a heart transplant is probably rare (3000-4500 performed yearly worldwide). So here is some
#meducation
for you from a woman with advanced heart failure.
Me: I’m fine.
Him: You look sick.
Me: I’m not wearing makeup.
Him: Something is wrong.
Me: I’m signing out AMA.
Him: No you’re not.
Me: I feel better already.
Him: You’re breathing in the 40s.
Me: No.
Him: Yes.
Me: *crashes four hours later and requires urgent heart transplant*
*Lightning, thunderstorm, flash food, complete madness in Philly*
Uber driver: SO QUIET BACK THERE! Isn’t this craziness?! This storm! The flooding! You have got to be the calmest person in Philadelphia right now.
Me: Sir, it’s just been.... it’s been a really long year.
😂😳
Many of you ask me WHY I went into heart failure at age 30. I had familial DCM possibly due to a tiny DSP gene mutation. What would've happened to me had I known sooner?
My thoughts in JACC: Heart Failure about my dx & genetic screening.
The video is here!
I received an urgent heart
#transplant
in 2019 due to familial cardiomyopathy. My
#organdonor
had been the beautiful Lucy Reff, who went on to save 4 lives thru donation.
I met her family in 2022. TY
@PassLifeOn
for everything.
@PoleDoctress
Paul Kalanithi said it best a few years ago. In Medicine, we are taught to always think ahead, to delay gratification, to prepare for the next step. So many of us forget to actually live.
I loved that day & seeing her again for the first time ❤️ (first pic was taken at Hahnemann in the beginning of July)
Y(our) work matters, Residents. It really does. Remember that. And thank you for all that you do.
"When I started back up as a resident, I took a photo with the resident who took care of me the night my heart basically stopped. We are back at work together. Like regular people." Alin, you inspire us! Here's to all the residents and the lives they save.
My life at home as the physician-daughter of immigrants is a perpetual cycle of
Parents: Why am I having <insert symptom, rash, pain>?
Me: Prob bc <blank> but I'm not sure. It's better if you go see a <blank> doc. Maybe you need a test done.
Parents: No. Will this tea help?
One of my friends just got a heart transplant and said that her coordinator printed a few pages from my blog. Told her to maybe use it during recovery. My friend was like, “I know her! I reached out to her before my transplant!” 😂 I thought that was wonderful.