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@wfhemophilia

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The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.

Joined November 2009
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@wfhemophilia
WFH
5 years
Today is World Hemophilia Day! Every year, the bleeding disorders community comes together to celebrate advances in care and to reflect on our shared goal of Treatment for All. This year’s theme is Outreach & Identification—“The first step to care”.
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🥳 Happy #WorldHemophiliaDay , everyone! 🎈Today, we celebrate our global community and raise awareness for this important cause. Let's spread the word and show our support! #WHD2023 #BleedingDisorders Learn more:
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Tomorrow is #WorldHemophiliaDay ! Let's spread awareness and support the global #BleedingDisorders community. Don't forget to use our official hashtags, #WHD2023 & #LightItUpRed , and our toolkit to share your stories and events with the world. Learn more:
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@wfhemophilia
WFH
2 years
We are pleased to announce that Madrid, #Spain was selected as the location for the next WFH World Congress in today’s GA. La Federación Española de Hemofilia, @fedhemo , will host the event in 2024. We thank all NMOs for putting their candidacies forward.
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@wfhemophilia
WFH
3 years
Today is #WorldHemophiliaDay ! The WFH staff wishes you a happy #WHD2021 and invites you to share your story on our microsite, join the conversation on social media, and tell the world how you’ve adapted to change! #bleedingdisorders #hemophilia
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@wfhemophilia
WFH
4 years
The WFH presents this year’s International Healthcare Volunteer Award to Dr. Steve Kitchen, for his dedication in sharing knowledge on #laboratory science with healthcare professionals globally. On behalf of the #bleedingdisorders community, Thank you!
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@wfhemophilia
WFH
1 month
It's finally arrived: April 17th! Today marks #WorldHemophiliaDay —a day dedicated to celebrating our global community. From all of us at the WFH, we wish you a joyous #WHD2024 ! 🎉
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@wfhemophilia
WFH
3 years
On the eve of #WHD2021 check out some of our “Light it up Red” landmarks as they start illuminating in anticipation of the global celebration tomorrow! @LethbridgeCity @RBCPlaceLondon Join them in illuminating tomorrow with our Facebook frame:
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@wfhemophilia
WFH
4 years
On the eve of #WorldHemophiliaDay , the WFH CEO releases a message urging everyone to stay safe, stay connected and Get+involved virtually! Thanks to the entire bleeding disorders community around the world, for your continuous engagement and dedication to #TreatmentForAll
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@wfhemophilia
WFH
5 years
Wishing you all a Happy #WHD2019 ! The World Federation is thrilled to see the global #bleedingdisorders community come together to celebrate! We will be sharing pictures and stories from around the world all day today on here and on our platform:
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@wfhemophilia
WFH
6 years
We are pleased to say that 5,010 people from 137 countries attended #WFHcongress2018 . We are proud to be the largest international meeting for the global bleeding disorders community & this is thanks to people like you! 📸Photo highlights here:
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@wfhemophilia
WFH
1 month
We are thrilled to award Prof. Sukesh Nair with the 2024 WFH International Healthcare Volunteer Award! His career dedication to patient care and global healthcare advancement has greatly impacted treatment worldwide. Congratulations! 🎉👏 #WFHCongress2024
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@wfhemophilia
WFH
5 years
The WFH is happy to announce that the first arthroplasty in a hemophiliac in Nepal was successfully carried out through the WFH Twinning program between Rochester, NY and the Civil Hospital, Kathmandu! #Treatmentforall
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@wfhemophilia
WFH
7 years
Happy World Hemophilia Day! We are pleased to have taken the opportunity this year to bring attention to the women & girls in our community
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@wfhemophilia
WFH
3 years
OUT NOW: New #VWD clinical practice #guidelines ! The @ASH_hematology @isth @NHF_Hemophilia WFH Guidelines on the Diagnosis and Management of VWD were published today and are freely available to all online:
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@wfhemophilia
WFH
4 years
Now published! The 3rd edition of the WFH Guidelines for the Management of Hemophilia. These high-quality, evidence- and expert-informed treatment guidelines offer a means to bridge the gap between treatment practices and care around the world:
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@wfhemophilia
WFH
6 years
This World Hemophilia Day, learn how the WFH World Bleeding Disorders Registry (WBDR) is helping advance the understanding and care of people with #hemophilia worldwide. Sharing knowledge makes us stronger. #WHD2018
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@wfhemophilia
WFH
4 years
This month, representatives from #hemophilia patient organizations are calling for transparency and caution as the science of #gene therapy progresses forward. Read the full article here:
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How exciting to witness these iconic landmarks shining bright in red! Let's continue to raise awareness and show support for our global #BleedingDisordes community. Happy #WorldHemophiliaDay ! Find the list of landmarks here:
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@wfhemophilia
WFH
1 month
We're excited for #WFHCongress2024 to kick off in #Madrid tomorrow with the Professional Development Day Workshops and the Opening Ceremony! In-person registration opens tomorrow at 7 AM. Can't wait to see you there! 🎉🌍
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@wfhemophilia
WFH
4 years
We wanted to take the opportunity during #WHD2020 to celebrate almost three decades of partnership with some of our visionary partners such as @TakedaPharma Head over to Takeda’s channel to see what they’re up to today to GET+INVOLVED. #Hemophilia #BleedingDisorders
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@wfhemophilia
WFH
4 years
Today is World Hemophilia Day! Celebrate with friends and family this year, by staying home and using your internet-connected device to Get+involved virtually! Stay Safe! Visit and share your story. We are now LIVE!
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@wfhemophilia
WFH
2 years
Tomorrow is #WorldHemophiliaDay ! Make sure to join the global conversation with our social media hashtags, and amplify your event and stories with our toolkit. #WHD2022 #WorldHemophiliaDay #Hemophilia
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@wfhemophilia
WFH
3 years
This #WorldHemophiliaDay over 5,000 community members participated in #lightitupred with our facebook frame, joining numerous landmarks from around the world who helped put #bleedingdisorders in the spotlight this #WHD2021 !
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@wfhemophilia
WFH
3 years
The WFH is proud to announce that Takeda has joined the WFH Humanitarian Aid Program with a 5-year product donation of factor and bypassing agents. This commitment is a new milestone for Takeda’s collaboration with the WFH. Read more: #hemophilia
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@wfhemophilia
WFH
4 years
Latifa Lamheneand Baiba Ziemele have been co-opted into the WFH Board of Directors. Both women were recommended by Cesar Garrido, President of the WFH, in order to diversify the representation and skillset of the WFH Board of Directors.
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On #WorldHemophiliaDay , we are proud to collect stories from people affected by #BleedingDisorders worldwide! Join us on our story site to share your own experience and read about others. Together, let's raise awareness and support our global community! .
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@wfhemophilia
WFH
11 months
Happy #WorldBloodDonorDay !🩸Today, we at WFH thank all the individuals worldwide who give their blood to help save lives! By donating blood, you are making a difference in improving access to treatment for people with #BleedingDisorders . Learn more:
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@wfhemophilia
WFH
2 years
On the eve of #WHD2022 check out some of our #LightItUpRed landmarks as they start illuminating in anticipation of the global celebration tomorrow! See a full list of landmarks lighting up red and find more #WorldHemophiliaDay resources here:
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@wfhemophilia
WFH
4 years
Wiley—publisher of Haemophilia, the official journal of the World Federation of Hemophilia (WFH)—has made all COVID-19-related publications in #Haemophilia freely available for access the free content, please click here:
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@wfhemophilia
WFH
1 month
What an incredible lead-up to #WFHCongress2024 ! Participants of the Global National Members Organization Training (GNMOT) gather from across the globe for an enriching experience. 🌍🎓
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@wfhemophilia
WFH
28 days
What a remarkable gathering! #WFHCongress2024 brought together over 3,000 delegates from 135 countries. 🌍Their participation is proof of our community’s commitment to the WFH vision of #TreatmentForAll . Read more:
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@wfhemophilia
WFH
2 years
The WFH would like to express solidarity with the bleeding disorders community and with all people who are impacted by the conflict in Ukraine. We hope that peace will return soon. We are monitoring the situation and exploring ways to get product donations to affected regions.
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@wfhemophilia
WFH
3 years
April 17, 2021 is World Hemophilia Day! This year's theme: "Adapting to change: sustaining care in a new world". This important event is about bringing the bleeding disorders community together, & is especially important given the COVID-19 pandemic. More:
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@wfhemophilia
WFH
4 years
It’s with great sadness that we inform you that due to the COVID-19 pandemic, the WFH has made the difficult, but necessary, decision to cancel the WFH 2020 World Congress for the health and safety of our #bleedingdisorders community. Read the statement:
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@wfhemophilia
WFH
4 years
A letter to the editor, published in #Haemophilia , by Leonard Valentino, Mark Skinner & Steven Pipe looks at how telemedicine has impacted the process of maintaining access to #hemophilia treatment products & to specialized integrated care in HTCs. More:
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@wfhemophilia
WFH
6 years
We’ll be going LIVE very shortly for the #WFHcongress2018 opening ceremony. Head over to our Facebook page. #WFH2018
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@wfhemophilia
WFH
4 years
A new article providing additional information on how people with #hemophilia will be impacted by the COVID‐19 pandemic has been published in Haemophilia, the official journal of the WFH. Read it here:
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The WFH is happy to announce the 2022 Twins of the Year for both, the Hemophilia Organization Twinning (HOT) and the Hemophilia Treatment Centre Twinning (HTC) programs. Congratulations to all of the partners involved! 🥳 #TwinningForHemophilia #WorkingTogether #HTC #HOT
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@wfhemophilia
WFH
4 years
Great news for #hemophilia patients in #Bangladesh . For the first time ever, the government has allocated funds to purchase factor concentrate in six hospitals around the country. Thank you to all who worked tirelessly to make this happen. #TreatmentForAll
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@wfhemophilia
WFH
3 years
Tomorrow is #WorldHemophiliaDay ! Join the global conversation with our social media hashtags, amplify your posts with our toolkit: and check out the written AND video stories from around the #bleedingdisorders world on #hemophilia
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@wfhemophilia
WFH
29 days
🎉 What a wonderful celebration! Big thank you to all who joined us in supporting #WorldHemophiliaDay at the WFH booth—snapping photos, grabbing treats, and connecting with each other. Your presence made it truly special. 🙌 #WFHCongress2024 #WHD2024
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@wfhemophilia
WFH
29 days
Factor levels alone don't reveal the whole picture. Ever wondered why one person with moderate #hemophilia bleeds more or less than another? @LenValentino1 , MD, sheds light on the distinction between factor levels and phenotype. #WFHCongress2024
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@wfhemophilia
WFH
4 years
Thank you to all who joined us for an inspiring #WFHVirtualSummit . We’re grateful to have had so many members of the #bleedingdisorder community join us from around the world!
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@wfhemophilia
WFH
5 years
The WFH is proud to report that the Impact Factor (IF) of the official journal of the WFH, Haemophilia, has increased to 3.59 from the 2017 IF (2.768)! The WFH, Wiley and the #Haemophilia editorial team thank you for your continued support! #Treatmentforall
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@wfhemophilia
WFH
3 years
COVID-19 vaccination guidance for people with bleeding disorders is now available; developed by the Coagulation Product Safety, Supply and Access Committee of the WFH in collaboration with EAHAD, EHC, and NHF. Information will be updated as needed.
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@wfhemophilia
WFH
3 years
Learn all about the @ASH_hematology @isth @NHF_Hemophilia WFH 2021 #Guidelines on the Diagnosis and Management of #VWD in the Public Health Webinar Series on Blood Disorders presented by the CDC on Feb 25th, 2PM ET. Register now:
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@wfhemophilia
WFH
4 years
Last week the global #bleedingdisorders community was able to come together for our #WFHVirtualSummit like never before! We were able to connect 8500 participants from 159 different countries to engage with 175 speakers for a total of 55 sessions. Thank you all for participating!
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@wfhemophilia
WFH
4 years
20-year progress & findings of WFH Annual Global Survey published in #Haemophilia . This publication highlights the increase in number of patients identified over the last 20 years, as well as the improvements in care. Read the full survey here: #hemophilia
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@wfhemophilia
WFH
4 years
It’s official! Registration for the #WFHVirtualSummit : Connecting the Global Bleeding Disorders Community is now open! This FREE event will feature live & recorded sessions from June 14-19. Increase your knowledge from home. Register today: #hemophilia
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@wfhemophilia
WFH
5 years
The WFH is proud to announce wonderful news on World Hemophilia Day: the WFH will be collaborating with St. Jude Children’s Research Hospital in order to establish a gene therapy clinical trial for hemophilia patients in low- and middle-income countries.
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@wfhemophilia
WFH
4 years
The first-ever WFH Global Summit on Women and Girls with Inherited Bleeding Disorders will be held on Nov 19 & 20! Join us for this important virtual event to learn and hear about women's experiences living with a bleeding disorder. Register: #hemophilia
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@wfhemophilia
WFH
4 years
#Hemophilia isn't the only rare #bleedingdisorder out there. Our Global Annual Survey allows us to track gaps to identify other #rarediseases to ensure we're working toward #TreatmentForAll . We're in this together. Read more: #WorldHemophiliaDay #WHD2020
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📢 We are excited to announce the launch of the WFH Gene Therapy Registry (GTR)! We hope this registry will contribute to the long-term safety and efficacy of gene therapy for people with #hemophilia . Find out more:
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@wfhemophilia
WFH
2 years
COVID-19 restrictions are lifting, and Montreal is no exception! WFH and CHS are pleased to announce the 2022 World Congress will take place as scheduled, in person in Montreal with select sessions offered on our virtual platform this May 8-11. Learn more:
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@wfhemophilia
WFH
6 years
It’s been 10 days since the 2018 WFH World Congress wrapped up in Glasgow Scotland. Session recaps, congress highlights, photos and calls to action are all available online! To browse the official online news source for #WFHcongress2018 visit:
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@wfhemophilia
WFH
2 years
#RareDiseaseDay is a call for people living with a rare disease to have equal opportunities to realise their full participation in family, work and social life! This is a day for our #bleedingdisorders community to share your #rare colours! Learn more:
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@wfhemophilia
WFH
3 years
Gene therapy has great potential, but variable results in clinical trials have led to discussions on value and reimbursement. "Reimbursing the value of gene therapy care in an era of uncertainty" published in #Haemophilia offers insights on this conundrum.
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@wfhemophilia
WFH
3 years
Questions about COVID-19 vaccines for people with a bleeding disorder? Watch a video—narrated by Radoslaw Kaczmarek, WFH Coagulation Product Safety, Supply, and Access (CPSSA) Committee chair (Poland/USA)—that covers everything you should know. #hemophilia
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@wfhemophilia
WFH
2 years
Our new WFH website and logo are now live! This new site is modern, user-friendly and provides easy access to all the available tools and resources that our community needs to succeed! Check out our newly launched website and WFH logo here:
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@wfhemophilia
WFH
4 years
Our #WFHVirtualSummit a FREE live event for the #bleedingdisorder community kicks off today! With #medical and multidisciplinary sessions, our professional track, and there's also an innovative center, exhibition booths and group discussions. Register now:
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@wfhemophilia
WFH
2 years
It is with great sadness that the WFH learned of the recent passing of Val Bias, former CEO of NHF, and a strong advocate for international cooperation. Read more here: #hemophilia
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@wfhemophilia
WFH
3 years
The theme of this year’s #WorldHemophiliaDay is “Adapting to change: sustaining care in a new world”. Watch Cesar Garrido, WFH President , talk about the importance of this day and get free downloadable resources by visiting the full article here:
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@wfhemophilia
WFH
6 years
Clinical trials generally provide the strongest evidence, but “we need to be more holistic when considering #hemophilia . It is such a rare disease that often we do not get statistically significant trial results.” -Jamie O’Hara, Haemophilia Society, U.K.
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@wfhemophilia
WFH
4 years
The Lancet Haematology has published an editorial praising WFH accomplishments. The article mentions the WFH Virtual Summit, the AGS, the WFH Humanitarian Aid Program and the WFH Guidelines for the Management of Hemophilia. Read more: #hemophilia
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@wfhemophilia
WFH
22 days
It is with great sadness that the WFH learned of the passing of Victor Stanley Blanchette, MD, Medical Director of the Paediatric Thrombosis and Haemostasis Program at SickKids (Toronto). Our deepest sympathies to his family members, friends & colleagues.
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@wfhemophilia
WFH
3 years
Our #WorldHemophiliaDay 2021 Social Media toolkit is now live! Check out all the tools you can use to fill your feed with #WHD2021 images and messages, and join the global WHD thread online: #hemophilia
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@wfhemophilia
WFH
11 months
📢The program at a glance for the WFH Global Summit on Women and Girls with Bleeding Disorders is now available! Join us virtually, on Sept 28-29, for two days of insightful discussions, presentations, and learning. Register now! #WGBD2023 #genderequity
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@wfhemophilia
WFH
2 years
From all of us at the WFH we wish you a happy #WHD2022 ! Join the #WorldHemophiliaDay conversation online, share your experiences on our story site, and tell the world how you are raising awareness and advocating for inherited #BleedingDisorders !
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@wfhemophilia
WFH
3 years
Explore a program built for #women and girls! This July, join the #bleedingdisorders community for two and a half days of discussion and exchange around #WGBD , quality of life, access to care, stigmatization, and advocacy. Full program now available here:
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@wfhemophilia
WFH
7 months
The WFH expresses solidarity with the Palestinian and Israeli bleeding disorders communities and with all people impacted by the Israel-Palestine crisis. We wish for safety and peace for both communities. #hemophilia
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@wfhemophilia
WFH
5 years
The WFH has spearheaded a scientific study updating the prevalence of #hemophilia to higher numbers than previously estimated and providing, for the first time, estimates of the prevalence of hemophilia at birth. #bleedingdisorders
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Today is International Women & Girls in Science Day, a reminder of the vital role that female scientists play in driving innovation and progress. Their contributions are vital to our effort to support the #BleedingDisorders community. Let's take a moment to honour their success!
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@wfhemophilia
WFH
5 years
How do you know you have von Willebrand Disease? You might experience one or more of these symptoms. Keep in mind that your normal is not necessarily normal! #WorldHemophiliaDay
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@wfhemophilia
WFH
2 years
The WFH is pleased to announce that @CSLBehring has signed a new partnership with the WFH Humanitarian Aid Program which will include a donation of 500M IUs of factor. The donation will include product manufactured to have a longer shelf life. #hemophilia
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@wfhemophilia
WFH
3 years
ICYMI: The @ASH_hematology @isth @NHF_Hemophilia WFH #Guidelines on the #Diagnosis and #Management of #VWD are now available! Access the guidelines and related resources here:
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@wfhemophilia
WFH
2 years
That’s a wrap on #WFHCongress2022 ! After 4 long years, we thank all our delegates, speakers, sponsors, and partners, both in-person and virtually, for making this year’s Congress a great success. See you in Buenos Aires in 2023 and Kuala Lumpur in 2024!
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@wfhemophilia
WFH
4 years
In Kate Khair’s words: “The work the WFH does is incredibly important and their motivation is always the patients they help. For less than the price of a daily coffee, together we can make a difference.” Read about her story here: #hemophilia
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@wfhemophilia
WFH
2 years
Participants of the “Pain in women and girls with #bleedingdisorders ” session learned the different ways pain impacts WGBD and ways to mitigate both physical and emotional pain. #WFHCongress2022
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🎥 @cesargarridod , President of the WFH, warmly invites the international community to the Summit on Comprehensive Care! Learn about new advances in bleeding disorders and musculoskeletal issues from experts worldwide. Don't miss out! #wfhCCS
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@wfhemophilia
WFH
3 years
The majority of people living with a bleeding disorder haven’t been diagnosed. This #WorldHemophiliaDay , take action to help us push for change. Stand with the global bleeding disorders community and give today.
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@wfhemophilia
WFH
4 years
The WFH looking forward to seeing you in person soon. Our next Regional Congress will be held in Buenos Aires, followed by the MSK Congress. The WFH 2022 World Congress will take place in Montreal, Canada. Stay tuned! #WFHVirtualSummit #hemophilia
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@wfhemophilia
WFH
2 years
This #WorldHemophiliaDay over 110 landmarks around the world were illuminated in red to bring those affected by inherited bleeding disorders into the spotlight! Check out @GilbertYourTown , @Cortes_CYL , @NFallsTourism , and more in red for #WHD2022 ! #LightItUpRed
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@wfhemophilia
WFH
2 years
The WFH logo is changing! Today, we are excited to share that we are updating our logo and we will launch a new website early next year. Our new branding will reflect the modern organization we are today. Find out more:
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@wfhemophilia
WFH
5 years
The WFH is in Central America this week for a 3-day lab workshop! 19 lab specialists will receive training on diagnostic techniques for hemophilia, vWD and inhibitors. They come from 8 countries and represent 17 hospitals currently treating #bleedingdisorders . #Treatmentforall
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@wfhemophilia
WFH
3 years
We are excited to share an increase in the Haemophilia Journal 2020 Impact Factor to 4.287! We would like to sincerely thank Dr. Cedric Hermans, editor-in-chief, and his team for their hard work, as well the authors, reviewers and readers for their part in this achievement.
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@wfhemophilia
WFH
29 days
Congratulations to Geneviève McCluskey and Rodrigo Núñez-Cortés for winning the Christine Lee Young Researcher Award best oral and best poster respectively! #WFHCongress2024
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@wfhemophilia
WFH
5 years
An outstanding panel of experts discussed possible models of payment for gene therapy for hemophilia at the 2nd WFH Gene Therapy Round Table. Thank you to all the experts who shared their expertise, helping to advance our vision of #Treatmentforall
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@wfhemophilia
WFH
4 years
Cesar Garrido was elected as President of the WFH at the 2020 Annual Meeting of the General Assembly held virtually on October 16. Read about the goals he has for his new role, and the challenges he expects to face: #hemophilia
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@wfhemophilia
WFH
5 years
Sony Center in Berlin was #LightItUpRed last night to demonstrate support for patients with hemophilia #WHD2019
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@wfhemophilia
WFH
4 years
Alain Baumann, CEO of the WFH, talks about bringing the bleeding disorders community together virtually for the very first time through the WFH Virtual Summit: Connecting the Global Bleeding Disorders Community, June 14 - 19. Watch the video: #hemophilia
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@wfhemophilia
WFH
4 years
Bleeding disorders do not discriminate and neither do we. #BlackLivesMatter Click here to read our full statement:
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@wfhemophilia
WFH
6 years
The WFH Congress team is already hard at work preparing for the next World Congress in 2020. This key event for the #bleedingdisorders community will take place at the @KLConvention Centre in Kuala Lumpur, Malaysia’s capital, from June 14 to 17, 2020.
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@wfhemophilia
WFH
5 years
The WFH congratulates the new President of EHC, Declan Noone! We wish him the best of luck in his new role and we thank Brian O’Mahony for his service and contribution to the #bleedingdisorders community #hemophilia #EHC2019 #congratulations
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@wfhemophilia
WFH
4 years
The National Hemophilia Foundation (NHF) Board of Directors has appointed WFH Board member Dawn Rotellini as Interim Chief Executive Officer of NHF effective December 5. To find out more about Dawn Rotellini please click here: #hemophilia #Treatmentforall
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Exciting news! David Silva, a Spanish #BleedingDisorders community member, has been co-opted to the Board of Directors of the WFH. His experience and expertise will be a great asset. Read more about his background and contributions here: #hemophilia #WFH
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@wfhemophilia
WFH
4 years
Happy #NewYear ! We look forward to another year of working together to improve care for the #bleedingdisorders community
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@wfhemophilia
WFH
6 years
#ICYMI For over three decades, the 2018 recipient Thomas Sannié has worked tirelessly on behalf of those living with a bleeding disorder in his home country of France, as well as Africa & across the globe.
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Exciting news alert! 📣 Get ready to join us next April 21-24 at the WFH 2024 World Congress in Madrid - the biggest international event to discuss #BleedingDisorders ! Mark your calendars and stay tuned for more information on how to register. Learn more:
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@wfhemophilia
WFH
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📢 A message from Dawn Rotellini! 🌟 Join her and other inspiring voices at the WFH Global Summit on Women and Girls with Bleeding Disorders. Discover key insights on equity in care, patient advocacy, and inclusive research. Register now: #WGBD2023 !
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