Antony Owen @toneo Twitter profile

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Antony Owen

4 years

Home and happy. I thought writing about the last few months would help with dealing with what’s happened to our little family. It’s not over yet but we’ve come a long way:

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Antony Owen

@toneo

2 years

36 hours since brain surgery. Roux you are amazing. #RouxsArmy 💙💙💙💙

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Antony Owen

@toneo

4 years

Here’s the little man, just had his pre- op meal. 8th brain surgery tomorrow. My warrior 💙

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Antony Owen

@toneo

2 years

We just need this to stop. We are so broken. Please keep Roux in your thoughts tonight, he’s currently in surgery. 💔💔 #RouxsArmy

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Antony Owen

@toneo

4 years

Welcome home 💙

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Antony Owen

@toneo

3 years

It’s 3 months since Roux’s last operation on his tumour and today is the MRI scan to see if it has stayed away. Please, please, please have stayed away. 💙💙 #RouxsArmy #StrongerTogether

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Antony Owen

@toneo

2 years

We now set off without mummy or daddy’s hands. Nearly there! #RouxsArmy #BrainTumourRecovery

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Antony Owen

@toneo

3 years

‘N O O B V I O U S T U M O U R’. We are crying happy tears tonight. One year of these results now. The wait for this MRI has been tough and I physically felt weight lift from my shoulders when we got this news earlier tonight. Roux you are our hero. #RouxsArmy

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Antony Owen

@toneo

3 years

We received the news yesterday that “from a tumour point of view the scans look really good”. There are 3 areas which they are keeping a very close eye on but for now we will enjoy some good news. Scan again in 3 months. Thank you as ever for all of your kind words and support.

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Antony Owen

@toneo

2 years

Happy 3rd Birthday to the most special boy. Roux, we love you so so much and are so proud of you. I am grateful every single day. Against the odds, thank you @NHSuk #RouxsArmy #HappyBirthday #BrainTumourAwareness

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Antony Owen

@toneo

4 years

Keep strong son. This 9th surgery will get you another step closer to being better. I love you 💙

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Antony Owen

@toneo

2 years

Roux is now on the ward recovering and is well enough to give daddy a high 5. #RouxsArmy #BrainTumourRecovery #ShuntSurgery

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Antony Owen

@toneo

2 years

Roux’s out of surgery and recovering on intensive care. Hoping for a quiet night so that he can build his strength back up. Looks like his shunt was blocked. 💙

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Antony Owen

@toneo

2 years

New wheels have arrived finally. Feels like a game changer for him. 😀 #BrainTumourRecovery #RouxsArmy

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Antony Owen

@toneo

3 years

Today in isolation we did standing up and sitting down.

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Antony Owen

@toneo

3 years

I can’t believe you’ll be 2 tomorrow Roux! 💙🎉💙🎉💙

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Antony Owen

@toneo

2 years

As far as Wednesdays go, being able to say Roux is now 2 years tumour free makes it a pretty good one. #MRIResults #BrainTumourAwareness #RouxsArmy #TodayIsAGoodDay

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Antony Owen

@toneo

1 year

MRI results today and to quote the neurosurgeon: ‘The scan is perfect’. Which now means they have decided to move Roux to yearly scans. Another positive move for our superhero. This boy had a 10cm brain tumour at 4 weeks old, and look at him fly! #RouxsArmy #BrainTumourRecovery

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Antony Owen

@toneo

2 years

‘The scan looks excellent.’ The words from the neurosurgery consultant. Words that bring happy tears. Thank you for all of the words in the last couple of days. They’ve really helped. #RouxsArmy #StrongerTogether

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Antony Owen

@toneo

8 months

He’s out and been sleeping it off. Surgery was successful. Thank you for the messages.

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Antony Owen

@toneo

3 years

Getting his Gallagher on ... kinda. #RouxsArmy

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Antony Owen

@toneo

2 years

Post -op CT Scan. No sedation needed so he got a couple of stickers from the CT team @Leeds_Childrens . To quote the member of staff: ‘he needs a crown as he is the king’. #RouxsArmy

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Antony Owen

@toneo

4 years

He’s out and in the care of our extended family on the ward again. Rest up kiddo 💙

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Antony Owen

@toneo

10 months

Unfortunately, Roux had two seizures yesterday just over an hour apart so we are being cared for exceptionally well at @HullHospitals . It was an ambulance to the hospital, 2 IOs, intubation and many rescue medications. A tough one but he’s now resting up. 💙💙 #RouxsArmy

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Antony Owen

@toneo

3 years

How lucky am I? #FrankieIsOne

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Antony Owen

@toneo

3 years

It’s tough at the moment, but hope this smile brightens your day. It does ours. #RouxsArmy #StrongerTogether

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Antony Owen

@toneo

10 months

We are off HDU and now on the ward. Bloods done, swabs done, urine pad sent off and just had a lumbar puncture 😢. He’s going through it. HR is still high so he’s surely fighting something off. He’s been an absolute little gem for daddy all day though. #RouxsArmy

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Antony Owen

@toneo

2 years

MRI today ✅ now the awful wait. Neuropsychology appointment at @Leeds_Childrens tomorrow. A lot of anxiety around this one. Feel it may be the moment we hear about Roux’s capabilities as he grows up. Fingers crossed as he’s smashing all expectations so far #BrainTumourRecovery

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Antony Owen

@toneo

11 months

Progress with his walker 😀😀 #BrainTumourRecovery #CerebralPalsy #RouxsArmy

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Antony Owen

@toneo

2 years

There with you buddy. After a another big seizure (3 in a week), we are off across to LGI. Just waiting on ambulance transfer 😢💙💙💙 #RouxsArmy #BrainTumourRecovery #EpilepsyAwareness

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Antony Owen

@toneo

3 years

The sky is the limit for you, Roux 💙

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Antony Owen

@toneo

7 months

Happy 4th birthday to the one who inspires me everyday to be a better man. Roux, you bring so much joy to my life and I will go to the end of this earth to ensure you have the best possible future. You are a miracle. 💙

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Antony Owen

@toneo

3 years

What a difference a week makes. Thanks @LiamCooper__ #RouxsArmy

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Antony Owen

@toneo

2 years

Less than 48 hours ago we had flashbacks of the day he was diagnosed. Same resus room, another 13 drs in A&E working on him, same blue light journey to LGI, same resus room in Leeds A&E, sent up for surgery immediately, PICU again. But now he’s home. Thank you again. #RouxsArmy

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Antony Owen

@toneo

1 year

1/ Global Development Delay. Roux’s development is severely delayed. No doubt a mixture of brain injury, spending the first year of life mostly laid in a hospital bed and operations one after the other has contributed towards this. When we were told we may need to consider …

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Antony Owen

@toneo

7 months

Our gorgeous little man had his VNS device switched on today. Fingers crossed this is the one for him.

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Antony Owen

@toneo

3 years

Sorry to say Roux is poorly again. I found him at 8.30pm last night in seizure again. Rescue meds didn’t take him out of it, neither did a number of meds in hospital. Eventually got under control at about 3am. 9 Drs in the room with us at one point, brought back horrid memories💙

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Antony Owen

@toneo

3 years

Roux will be going down for brain surgery number 11 tomorrow. He is well but the feeling is that he is having intermittent shunt blockages. It’s horrible he’s back in hospital but we hope to have him home again very soon. 💙 #RouxsArmy

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Antony Owen

@toneo

2 years

A message from my wife, the strongest mummy I know, written at the hospital bedside of our son Roux, both of us unable to be together. @BorisJohnson I hope you read this, you and your government should be utterly ashamed of yourselves #downingstreetparty #DowningStChristmasParty

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Antony Owen

@toneo

2 years

Practising standing straight with feet planted flat. #RouxsArmy #BrainTumourRecovery

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Antony Owen

@toneo

3 years

Yea, so yesterday I received a call from our surgeon who explained that there was ‘nothing to be concerned about’ from Roux’s scan! 🎉🥂 We celebrated with a walk in the snow and slept the best we’ve slept in a very long time last night. #RouxsArmy #BrainTumourAwareness

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Antony Owen

@toneo

2 years

Have a smile from Roux. 💙 #RouxsArmy

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Antony Owen

@toneo

3 years

Morning from the hospital. Feeling better but still not drinking or eating. Anyway he’s waving and kissing #RouxsArmy #BrainTumourRecovery

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Antony Owen

@toneo

3 years

Was nice of the wife to snap me catching a snooze when she popped to visit the ward today 😂

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Antony Owen

@toneo

3 years

And he’s back and doing really well. Once again thank you to his amazing guardian angels @Leeds_Childrens . Hopefully a good recovery now 🤞 💙💙 thank you for all of the lovely messages. #RouxsArmy

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Antony Owen

@toneo

4 months

Well this is exciting. He’s taking steps and setting off on his own! Just the balancing and then watch out, Roux’s about!! #RouxsArmy #BrainTumourAwareness

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Antony Owen

@toneo

4 years

The drain is relieving the pressure and though we may be still be in hospital we’ve got our Roux back. 😊

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Antony Owen

@toneo

8 months

It’s VNS surgery for our Roux tomorrow @LeedsHospitals . Very nervous. We are returning after a long time being away. Hoping for success. #Epilepsy #VNS #BrainTumourAwareness #RouxsArmy

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Antony Owen

@toneo

2 years

What I’d do to swap positions with you. I’d give absolutely everything.

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Antony Owen

@toneo

1 month

He just keeps on going. #RouxsArmy #BrainTumourAwareness

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Antony Owen

@toneo

2 years

He’s out again. A short stay and as you can see he’s well. I think he’s just having us on if I’m honest 😆 Thank you for all of the messages. #RouxsArmy

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Antony Owen

@toneo

2 years

Another mini celebration! Grabbing the spoon to feed himself. 🥲🥲 #BrainTumourRecovery #BrainTumourAwarenessMonth #RouxsArmy

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Antony Owen

@toneo

3 years

Absolutely sick of this - for him. 😢💙 #RouxsArmy

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Antony Owen

@toneo

2 years

They see me rolling… #BrainTumourRecovery #Physiotherapy #NewWheels #RouxsArmy

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Antony Owen

@toneo

10 months

He’s coming back! Best he’s been in days. Haven’t seen a smile and barely been awake but this is more like it! 💙

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Antony Owen

@toneo

2 years

2 in two days. Last nights was a big one. Roux’s currently in hospital. #BrainTumourAwareness #EpilepsyAwareness

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Antony Owen

@toneo

6 months

4 years to the day that this photo triggered us to take Roux to A&E and then we were told our little baby had a huge brain tumour. Against all odds. 💙

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Antony Owen

@toneo

3 years

He’s out. A little groggy but mummy says he seems fine - no crying. Thank you for all of the well wishes. Fingers crossed for the results in a week or so now 🤞

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Antony Owen

@toneo

2 years

Tired but fine. 💙

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Antony Owen

@toneo

3 years

And he’s home again. Like nothing ever happened. The care was exceptional at @ward_l52 @Leeds_Childrens as always and though he’s still having his episodes we have a plan in place and feel much more comfortable about it all. Thank you for all of the messages. I love you buddy 💙

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Antony Owen

@toneo

2 years

This guy.

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Antony Owen

@toneo

4 years

First time at soft play! #RouxsArmy #StrongerTogether

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Antony Owen

@toneo

2 years

We are working hard with Roux and his walking. As you can see he walks on his left tip toe. We don’t know whether this is due to the tumour damage or if it’s a bad habit. This is the best we’ve had for a while now. 😊 #RouxsArmy #BrainTumourAwarenessMonth

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Antony Owen

@toneo

3 years

Roux has been walking on his tiptoes in the last few months. It’s really set him back on his walking progression, we don’t know whether this is due to the brain injury or habit. But, today at physio he walked flat footed all session! 😊 #Progress #RouxsArmy #BrainTumourRecovery

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Antony Owen

@toneo

11 months

Our 6 week run of no seizures is over. 😢 Today a situation we dread took place: Roux having a seizure whilst my wife was driving. Luckily, they were very close to work/nursery and Amy managed to terminate the seizure quickly. He’s fine now; we are just gutted for him. #Epilepsy

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Antony Owen

@toneo

2 years

Nursery. Safe to say this has been a long and hard decision about enrolling Roux somewhere but we’ve set up his EHCP and decided on a provision. Delighted to say Roux has been having some integration days in the lead up to September and he’s loving it. So happy to hear this 🥰 💙

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Antony Owen

@toneo

9 months

Yesterday we flew back to East Midlands and on the M1 driving home unfortunately Noah (yes, Noah) had a seizure in the car on the motorway. It was utterly terrifying to see our eldest son in the same way Roux often can be. He was turned to the car window, responding to us but …

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Antony Owen

@toneo

2 years

I’m so sorry

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Antony Owen

@toneo

2 years

He’s getting there. Working on the foundations for walking. Roux missed so much due to time in hospital and his visual impairment has hindered him too. He isn’t letting anything stop him. Proud. #RouxsArmy #BrainTumourRecovery

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Antony Owen

@toneo

2 years

Great first week of the hols with our boys. Roux’s had botox to his left calf whilst under anaesthetic for his MRI and whilst we wait on his brain scan results his range is certainly improving. Much flatter feet when in his boots, casts and splints to come too 💪. #RouxsArmy

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Antony Owen

@toneo

2 years

Done and dusted. They have to cannulate his head though as he’s so hard to cannulate after all the surgery. 😢Not like he’s bothered look 🤣 Now the awful wait 😢. #RouxsArmy

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Antony Owen

@toneo

2 years

We have a poorly little fella at the moment. We took him over to Leeds yesterday and thankfully the usual shunt signs were actually just symptoms of his chest infection coupled with a viral one. As usual the @ward_l52 team and @LeedsHospitals were fab and he’s just ‘normal’ ill

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Antony Owen

@toneo

3 years

Our little maestro is in @LeedsHospitals (LGI) today to have a check up on his shunt and hydrocephalus. Fingers crossed all’s fine. He certainly looks it. 🤣 #BrainTumourAwareness

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Antony Owen

@toneo

2 years

With your MRI this week. We are all with you little guy. #RouxsArmy #Scanxiety #MRI #BrainTumourRecovery

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Antony Owen

@toneo

3 years

Have a great weekend everybody. #RouxsArmy

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Antony Owen

@toneo

9 months

So we collected Roux’s school uniform yesterday. We are nervous, anxious but also very much excited. He’s going to come on so much. He’s come so far and are incredibly proud we are here, when we thought this may never happen. It’s a far cry from where we were nearly 4 years ago

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Antony Owen

@toneo

1 year

King Roux 👑

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Antony Owen

@toneo

3 years

Happy New Year from my family to yours. Grateful for how far we’ve come this year. Everything has been put into perspective and now I know what really matters and what we live and fight for. Fingers crossed for more celebration in 2021. As ever, thank you for giving us strength

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Antony Owen

@toneo

3 years

Owen Boys.

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Antony Owen

@toneo

3 years

Here he is. #RouxsArmy

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Antony Owen

@toneo

3 years

Roux’s hairdresser has the patience of a saint. #LookingFresh #RouxsArmy

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Antony Owen

@toneo

2 years

Sorry to say but our Roux is back in hospital. I found him in seizure at 6am this morning. I have to say the speed of the ambulance crew and the work from @HullHospitals staff was amazing this morning. Roux is currently on the ward and is settled. 😢 #RouxsArmy

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Antony Owen

@toneo

10 months

Quick update: CSF and blood cultures show nothing more sinister so far. Still very lethargic and happy laid in his bed watching CBeebies. Hoping to see his epilepsy nurse and for a plan moving forward. Thank you again for the messages, as always. #RouxsArmy

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Antony Owen

@toneo

3 years

Roux is currently in surgery 🤞💙💙💙💙💙💙💙💙💙

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Antony Owen

@toneo

3 years

Feeling better are we, Roux? 💙💙💙🤣🤣🤣 #RouxsArmy

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Antony Owen

@toneo

3 years

So, in the last couple of weeks Roux has: said ‘ball’, ‘book’, ‘Zac’, ‘Becky’, ‘Nanna’, ‘mine’, ‘happy’, ‘Duggee’, has started turning pages of his book, doing circles on his bum and has today gone from laying down to sitting all alone. These are so huge for us, #ProudDaddy

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Antony Owen

@toneo

10 months

You are incredible Roux. Someone’s happy to be home. #RouxsArmy

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Antony Owen

@toneo

3 years

We’re getting there Roux, Roux. Our aim is to get him walking before he hits two. That milestone will be very special. Keep going kiddo. Excuse my after work attire 🤣🤣 #RouxsArmy

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Antony Owen

@toneo

3 years

Happy Friday from Roux. First proper haircut and he’s delighted. #RouxsArmy

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Antony Owen

@toneo

2 years

Unfortunately Roux suffered a seizure at 4am this morning. We were warned to prepare for it once he started nursery, just thought we’d get more than 24 hours. He’s fine and bounced back so fingers crossed. 1 seizure in 7 weeks is a decent run. #RouxsArmy #EpilepsyAwareness

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Antony Owen

@toneo

3 years

We are devastated he’s back in hospital, though he is so well between his episodes. Normality has been paused again and as a family we are once again separated. I know he’s in the best place possible but I’m a bit broken this evening. Sleep well my hero x #RouxsArmy 💙

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Antony Owen

@toneo

4 years

Update: Roux is out of surgery. The surgeon said he believes the surgery went well. He’s currently in recovery and then hopefully we’ll both get to see him in a short while. Fingers crossed for a stable recovery over the next few days 🤞. Your support today has been invaluable 💙

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Antony Owen

@toneo

10 months

Mummy’s home and by Roux’s side. Unfortunately, he’s had a rough night and the virus is nastier then first thought. The hope was for a discharge today but it looks like another 24/48 hours. Lines being checked for an infection but fingers crossed mummy cuddles do the trick.

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Antony Owen

@toneo

1 year

6/ not a nice place to be. He’s full of personality, brings so much joy to our lives and has the most infectious giggle. We don’t know what he’s capable of but what we do know is that this boy will not give in. #braintumourawarenessmonth

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Antony Owen

@toneo

2 years

Roux had a seizure early yesterday evening and we had another trip to A&E. rescue medicine worked and he’s slept it off. Mummy and daddy had to leave Noah again and didn’t get home until 4am. The wife went to work to teach her Y6 class a few hours later. This and working is tough

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Antony Owen

@toneo

3 years

“Look no hands”

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Antony Owen

@toneo

3 years

He’s home. 😊

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Antony Owen

@toneo

2 years

This kid’s getting there. With these two by your side and always guiding you, you’ll be fine buddy x

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Antony Owen

@toneo

2 years

Go Roux! More steps each day! #RouxsArmy #BrainTumourRecovery

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Antony Owen

@toneo

3 years

Big week for us all this week. Roux will have his MRI to check for tumour regrowth on Thursday. The anxiety is almost unmanageable at times and the trauma he goes through again is so difficult to see. It’s hard not being able to explain to him. Fingers crossed #RouxsArmy

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