We can’t explain to you all how short time is, there’s no treatment or cure coming in time for Ethan and that is the HARDEST thing we have had to learn to accept.
Ice Hockey pucks wanted and needed...he promises to provide a loving home where each one will be proudly displayed and looked after 👍🏻🏒(we’re trying to make his downstairs disabled adapted room as ice hockey related as we can and using the pucks to surround his door frames)
Sending our thoughts & prayers to all those involved at the Sheffield/ Nottingham game !! On another note if you’re sharing pictures or videos of the incident you should hang your head in shame as players have families sometimes half way across the world who will be worried sick!
He never had a doubt all season long, we haven’t lost a single game he’s attended on the road. It’s been a TOUGH WEEKEND for him but OMG between the hockey fans & family from across the league and the amazing
@BelfastGiants
team &
@Scott10Conway
you have blown us away ❤️ Thank u
Scared the 💩 out of us and nearly died but he’s still smiling and got a thumbs up. We taken the drs advice from here in Lancaster and the specialist Neurology team in Manchester and they have said he’s fit to attend the games in Nottingham.
Getting the shirt of his idol 🤩😍 We think Ethans face in the first picture just totally says it all ❤️. Sidney Crosby and the Penguins biggest fan in Northern Ireland 👍🏻🐧
@penguins
He’s on his way to his first ever playoffs weekend 🎉🎉 we’ve lots of extra medical equipment onboard just incase, but he’s looking forward to a good weekend after a very tough week ❤️
Last night we were all scared and nervous getting ready for bed because of what had happened the night before - the fear of putting Ethan to bed and never waking up again is now VERY REAL. I stayed up cuddling him for some time before I could settle even a little.
This is what it’s like to support a team with your whole heart ❣ and to see that team you absolutely love WIN !!!! Ethan cried so hard it made me cry x
@BelfastGiants
👍🏻🏆
Today we all stand as one club united in grief for the tragic loss of such a talented young man with a full life ahead of him
We send our love, prayers & heartfelt condolences to all his family, friends, colleagues & all involved in this tragic accident RIP Adam Johnson💔
#AJ47
Tonight Ethan was so proud to present an
@atlgladiators
jersey to our
@BelfastGiants
Captain
@Briles25
this Gift was given in return for the Belfast Giants jersey that Ethan presented to the Glads Captain
@Derek_Nesbitt
when Ethan visited Atlanta on his dream trip in November 👍🏻
Just back into our hotel, WHAT A NIGHT !!! From pucks drops, to presenting man of the match, meeting Clangus & being presented with his own personalised Clan jersey. We’ll put together the pics tomorrow and post for you all to see 😁👍🏻 Thank you so much to the Amazing
@ClanIHC
😘
We can’t thank all the
@FifeFlyers
and
@FifeFlyersOSC
enough for their absolutely amazing hospitality, goodies and making our first visit so memorable from puck drop to choosing the
@BelfastGiants
man of the match. Thank you so much for having us and making us so welcome 🥰
Sometimes when you’ve a terminal illness all that matters to you is meeting that one person that you follow in there choice of sport.
@GIrwinRacing
thanks for taking time to speak with Ethan yesterday it meant so much to him ❤️ goodluck for tomorrow’s racing, stay safe 🏍 👍🏻
Well he’s made his first
@NHLBruins
game…Ethan’s bucket list final trip is definitely a go now ♥️ giving Duchenne the🖕🏻and enjoying this one last big road trip 🥹
I know we will have forgotten many for which we apologise in advance. Thank you to each & every one of you for helping us fulfil one of our little boys dreams off his bucket list ♥️
Thank you Yvette and Andy McClean and of Course ETHAN 🥰
@penguins
@pensfoundation
The last goodbye !
He’s not talking much today, but we don’t need words to know how he’s feeling tday as we head home
It can’t be easy having a terminal illness & knowing the uncertainty that lies ahead. One thing we do know he’s has the most incredible 3 weeks in USA & Canada♥️
Someone got a little ☀️
@northwest200
but he says it was worth it as he’s been waiting 2 years on getting his picture with
@GIrwinRacing
and when u have a terminal illness 2 years is a LONG TIME !! Thanks Glenn and huge thx to all involved for such a fantastic race week 👍🏻
Hey we know it’s been ages since we shared pictures of the pucks with you all. Apologies its taken so long with Ethan’s 10th birthday and loads of appointments it’s been a bit busy. Pucks are still coming and Ethans loving seeing and learning about the different hockey teams 🏒
HAPPY BIRTHDAY 🥳 TO OUR AMAZING (hockey mad) SUPERHERO 🦸♂️ SON. 11 today and inspiring us more and more each and every day with his strength and courage 💪🏼
#onedayatatime
🎉 14 today 🎉
He makes us laugh, he makes us cry, but most of all he makes us proud of the amazingly strong and brave young man he is becoming ♥️
Happy 14th birthday dearest son 🥰 Another year beating Duchenne 👊🏻
For a kiddo with a terminal muscle wasting disease currently losing power in his arms he fought hard to make sure he had these complete for the
@BelfastGiants
players for tonight’s awards night so he could give them as a memento of there time in Belfast and an incredible season👍🏻
Update on Ethan’s jersey, thank you to you all ♥️ Hockey is life for Ethan, a few years ago Ethan would never have left his room, hockey gave him a reason to enjoy what life he will have however long or short and the hockey family has helped give him a happy place to lay his head
So now that its been officially gifted to the recipient we can officially let you all see.
Ethan wanted to give his buddy
@Scott10Conway
something special to remember that special night in August when Scott helped him score his first goal as an official
@BelfastGiants
player ♥️
Ethan spoke very well considering he was nervous and normally only gives one word answers, him and I were both in tears at the end…….Really cant wait to see him in action tomorrow - our Superhero 🦸♂️ !! ❤️
Scariest night of our lives…Ethan is currently in Lancaster Royal Hospital.
Tonight while putting Ethan to bed he had a full blown seizure & stopped breathing. He turned blue & we lost him, what felt like hours was only a couple of minutes.
#14
- Ethan McClean is retiring after just one game
He’s sadly said much as he would like to continue in the world of professional hockey the other teams just couldn’t handle how good he would be.
He’s taking up professional official chirping instead 👍🏻
Celebrating Our little HERO Ethan for National Superheroes day today our very own Captain America
He battles everyday with Duchenne Muscular Dystrophy a battle he’ll never win & will claim his life but that doesn’t stop him fighting 👊🏻
Drop him a 👍🏻 to support him in his battle
Today Ethan and I just got outside and enjoyed life together. He nearly died on Friday. His life’s short enough with Duchenne but now it’s thrown another curve ball in our path 🥺
UPDATE !!
After a trip via ambulance and through A&E Ethan has been admitted to the children’s ward. Hopefully tomorrow will hold some more answers as to what is happening with our amazing superhero.
But just for tonight having him still here to cuddle is enough 🥺💔
Ethan finishing off the Scottish leg of his road trip tonight
@ClanIHC
he’s decided tonight to wear his new face mask given to him in Fife by
@fifercial
as it’s Clan colours and he can smile at everyone without taking off his mask 😁
Our Ice hockey family combined Ethan’s two loves Capt America and ice hockey. How can you top this the
@echl
and
@marvel
have excelled and caused tears of joy and disbelievement in
@teammcclean
house. Just look at what Ethan received, his OWN REAL Captain America Sheild 👍🏻
Breaking my heart how grown up he’s becoming, starting year 8.......He may have lost the ability to walk these last 6 months but he hasn’t lost his ability to break hearts still 🥰😍
FIRST DAY OF SCHOOL PICTURE !!
After nearly 15 months at home due to Covid-19 Ethan is finally getting his first day of school today. Needless to say he is a bundle of nerves but he is really looking forward to getting to meet his new friends at Slemish College 😊
We’d like to thank all our friends at the
@ClanIHC
for making us feel so welcome again this past weekend in their rink. Also for inviting Ethan to do puck drop (this means so much when he’s losing arm strength) we love coming to visit you guys and can’t wait for our next visit ❤️
Superhero hat and Belfast giants jacket both for luck ✅ lack of sleep coz he worried himself to tears last night ✅ ☹️ says he gonna knock the doctors out if they hurt him ✅ ✅ ✅ thx guys for all the love and support ♥️
In honour of NATIONAL SUPERHERO DAY today I can’t think of a superhero I know that fights a battle any bigger than what our Ethan fights everyday......the odds are fully stacked against him and he’s dying yet he always has a smile 😊 will you give him a click ♥️
Just out of the shower and dressed and he says mummy I’m feeling good today 🥰 Regardless of losing his major mobility not long ago and staring death in the face he has strength, courage and will bigger than anyone I’ve ever met and he asks for nothing but love in return ♥️👊🏻
Ethan and I having a chat this morning about the EIHL hockey league and he says mum sometimes it’s not about winning things but about seeing my heroes play hockey........he just melts me sometimes ♥️
🖐🏼 hands up who is for
@BelfastGiants
games in Bonnie Scotland this weekend. We’re starting a 10 day hockey rd trip tomorrow, Ethans so excited see you all on the road 😁
Ethan says he’s sorry he couldn’t bring home a trophy, and for making the female security manager in the Motorpoint arena nearly cry but he’s passionate about his team. Emotions sometimes take over and he can’t control his tears !!
#passionateboutsport
Happy Christmas from all of us here at Team McClean, sending you all love and best wishes !! We hope you all have a blessed day full of making amazing memories ♥️
The wait of a six year journey came to a result, Ethan got a diagnosis of being autistic. This is on top of his ADHD & Duchenne
No matter how many things that Ethan could possibly be diagnosed with, it’ll NEVER CHANGE the love & admiration we have for our strong & courageous son
And when I kiss you goodnight I will hold
you a little tighter, a little longer.
It is then that I will make a wish and ask for nothing, except one more day …………. 💖
So here go’s..........we are off on an amazing 3 week trip which starts off at our second home arena here in Atlanta, home to the Atlanta Gladiators. Also visits to Washington Capitals and Nashville Predators and 🤞🏻also the Pittsburgh Penguins 🎉
At
#POFW24
Ethan will have some little Bees and superhero stickers to hand out as we believe everyone should bee 🐝 happy and also there’s a superhero in all of us 😊 yes we got the 👍🏻 to travel !!
This is a fan of the
@BelfastGiants
I’m sorry but having a child who has both a disability and learning problems I find this both outrageous and disgraceful and think it needs addressed !!
With tears of pure emotion in his eyes last night, it’s so much more than just a hockey game to him
@BelfastGiants
you were amazing last night thank you for making him cry tears of pure joy ♥️🙂
Sorry but this may be a bit of a long post......
Hockey Family - When ice hockey is your passion, you live for the game, you follow certain teams and players then getting to travel to see some of your favourite teams and players play is a must.
Just a little update....1 door done = 1 happy little man 2 doors left to go !! It’s certainly starting to look like a happier hockey room, the sterile disabled look is starting to disappear 👍🏻😊 you are all amazing and we can’t thank you all enough ❤️ keep sending pucks 👍🏻
Busy morning ! Travel plans all booked Ethan’s bucket list of
@officialEIHL
rinks to see before Duchenne stops him
@DundeeStars
,
@FifeFlyers
and
@ClanIHC
will all be done in the same week 👍🏻 Clan have already been in touch about a few surprises & Ethans already beyond excited 😊
Anyone that knows Ethan well enough knows how much Scott Conway means to him (you only had to see him when he had to say goodbye at the end of last season 😢) 1/3
Nearly all packed for the off tomorrow…Ethan’s looking forward to a week on the road for hockey, and finally delivering his rock art pics to
@PanthersIHC
and
@flamesicehockey
maybe even squeeze in time for a stop off at Cadbury world and a day in London 😊
Not how we had planned our rest day after playoffs……Ethan has had his second ever seizure, a loud scream then full seizure for nearly 2 mins. I was with him on my own this time. We’re now in A&E awaiting assessment and see what the road ahead holds.
@BelfastGiants
@Adam27Keefe
we have made memories with you guys we will never forget for the rest of our lives thank you for letting Ethan share in your well deserved celebrations....homeward bound this morning and he’s still on cloud nine see you guys in Belfast 👍🏻
I will let Ethan give you all this update in his video !!! ❤️
He’s far from fully sorted yet but we’re hopefully headed in the right direction. We can’t thank all the medical staff that looked after him enough for there care in helping our superhero 🥹
He never doubted it for a single minute,as tears rolled down his little face when that final goal was scored as he climbed on hands and knees up dirty steps in Cardiff arena, likely for the last time ever he’d faith that the Belfast Giants would bring home that Cup today.
This is what hockey means to Ethan……he has no interest in any other sport, when we say hockey is his life this is what we mean. This day is forever etched on our memories when we won the cup and Ethan just cried and cried because he was so overcome with happy emotions ❤️
Ethan just dropping by with a very special message from us 😘🎅🏼 love you all, hope ur day is filled with love and laughter tomorrow and remember its not what’s below the tree that’s important....family, loved ones and friends are the true value in Christmas x
We know Ethan gets very excited on game days but this is stretching it a little far this time !! He’s arrived
@ClanIHC
arena 2 days early this time.😆 we guess he’s looking forward to the game against the
@steelershockey
on Wednesday 👍🏻
🎉😁 just look at the picture....talk about a change, it’s taken weeks of talks, watching videos and grown up conversations about how important it is to give blood, there was tears, he didn’t try to run this time and finally the bloods and major tests are done 🥺😥
#duchennesucks
After a 6 and a half hour flight he’s still smiling......last flight of the day coming up, Atlanta next stop ✈️ he was filling in all the ladies on the Dublin Aer Lingus flight all about ice hockey 🏒
Early am we leave Atlanta to drive to Pittsburgh for Ethan to hopefully on Tuesday see the team and the man that started it all(his love of hockey)Ethan’s no idea he’s going to Pittsburgh to see the Pens, now just to get Sid’s attention then that’s another bucket list item ticked
As it’s a BIG thing for Ethan and he’s VERY EXCITED we will let him make this announcement on his own ❤️❤️ looking ideas and tips to help make this a special one as it’s likely going to be the only one he ever attends.
#makingmemories
#timeisrunningout
#duchennestinks
So here’s what we’re asking, we will be carrying a note book with us and we would love if people could sign this notebook with special messages or words of encouragement, for Ethan to look back on when he is having tough days and remember the happy times he’s had 2/2
Yesterday we had the absolute pleasure of revisiting our friends
@PredsNHL
again. Ethan loved seeing everyone again and getting to chat with some of the guys on the team and also seeing some old friends and meeting new friends. Smashville holds a special place in our hearts ♥️