Exhausted parents, I ❤️ you. We need each other more than ever.
As caregivers we research, schedule + worry. We battle medical bureaucracy, government gatekeepers + discrimination. We are levelled by depression, anxiety + isolation. Many parents are in financial ruin.
#bcpoli
A text from a friend who is fighting cancer at BC Cancer, next to VGH.
What kind of people protest in front of hospitals + block patients + ambulances? The entitlement/privilege is deplorable.
#bcpoli
Our 3 kids went to school this week, we haven’t left home or seen anyone in weeks.
After 5 days at school, our youngest (1st dose Dec 22) tested positive yesterday. I let the school know + sent a note to every parent in our grade.
This is flying through schools.
#bced
What happened today at
#TSN1040
has gutted many of us. Blindsiding employees is abusive + demoralizing. It strips you of your confidence + dignity. It deeply damages your mental health.
I mean, the first song they played after pulling the plug on everyone was Good Riddance. 💔
Here’s
@AndrewScheer
, dodging questions about his decision to skip tomorrow’s climate march in Montreal. He says he’ll be in Vancouver … guess what, we’re having a climate march in Vancouver too. I’ll be there. Join us Andrew.
It’s 34 degrees in my house and the fan is loud - did I just hear the Premier say ‘fatalities are a part of life’ in response to a reporter’s question about the alarming amount of heat related deaths? 😳
Beckett made these cookies in his Foods10 class!
Foods is his only ‘mainstream’ class this term, it’s been a journey to get here.
Anyway, he only likes Italian food 🍝 so he didn’t eat the cookies.
I did eat them - and they were DELICIOUS.
#bced
When Beckett was born, I was told all the things he wouldn’t do. Seeing him on skis makes my heart burst. So proud of my boy! Thank you to the volunteers
@WAdaptive
for their patience + kindness. 💙
#downsyndrome
#inclusion
Grade 10 is in the books! It wasn’t the easiest year, there were a lot of missed days for B. I’m proud of him, we’re celebrating with HotWheels and pizza.
We’re both excited for a fun summer + a chance to try some new things.
😎
Thanks to an incredible classroom teacher, an amazing support worker + kind classmates, Beckett participated in his school’s science fair today. He worked hard + was so proud. I held back tears. Inclusion is beautiful.
#bced
#inclusion
#downsyndrome
How about FREE hospital parking NOW, at least until this pandemic is over? Heard from an anesthesiologist (with a parking pass) who got a ticket for staying in a spot for too long. Many ticketed nurses have reached out too. At least STOP with ticketing?
#COVIDBC
#bcpoli
#COVID19
10yrs ago today at VGH. My life was saved w/ emergency surgery removing a 10cm tumour + 3 yrs of chemo.
Last year approx 35,000 people in
#BC
were diagnosed w/ cancer. Community care means we look out for others, like cancer patients +
#HCWs
Cancer doesn’t care about a pandemic.
I have some BIG news. I’m seeking the
@liberal_party
nomination for Vancouver Kingsway. This is something I’m very excited about + so is my family. I want to use my voice in a positive way to make a difference. I hope you will support me. 🇨🇦
#TeamTrudeau
Yesterday morning my friend called 911, her husband has stage 4
#cancer
+ things took a bad turn. After waiting 3 hours for an ambulance that never arrived, they carefully laid him down on blankets in the back of the family van + drove to
#VGH
(posted w permission)
#bcpoli
#VCH
9 yrs ago I was fighting for my life in the ER at VGH. I’m now cancer free + forever grateful for the care I received. 2020 saw 35,000 people in BC diagnosed w cancer. Fighting
#cancer
during a
#pandemic
while others act like the rules don’t apply to them is beyond selfish.
As much as I try to let the first week of January slide by I just can’t, this week is forever embedded in my bones. Twelve years ago my life was saved, I’m alive because of luck + I will always pay it forward.
1/9
#bcpoli
Over 24 hours later he’s still in the ER. They just moved him out of an ER ‘room’ into the ER hallway, although it’s not really a hallway. 😞
This is
#healthcare
in BC right now. Don’t listen to anyone who tells you things are just fine, they are lying.
#bcpoli
#cancer
#VCH
The Vancouver Sun has a ‘woke watch’ column? 😵💫
When did the VS start recycling True North stories? Dr. Tan is a disabled, racialized physician + wasn’t interviewed for this story. This is not journalism, it’s clickbait for trolls + it puts Dr. Tan + her family at risk.
#bcpoli
Sending love to the Cabana family from Richmond as they face the unimaginable.
Six year old Danielle died November 26, her heartbroken dad shared that she went to
@BCChildrensHosp
with flu symptoms on Wednesday + died on Saturday.
#bcpoli
We👏🏻Are👏🏻Vaccinated 👏🏻
The UBC Vaccine Clinic made accommodations for us to return today, the kids were incredible. It wasn’t easy. 💛 Huge thank you to Brian, Nicki, Dr. Mitch + Dr. Pushpa, everyone working these clinics - you are instrumental in saving lives.
#FrontLineWorkers
🧵EXCLUSION.
This week some core memories will be made for a grade 6/7 class at a
#Langley
elementary school. The whole class is going to the waterslides at Cultus Lake. Everyone is going - except for 12yr old Sophia.
1/6
#bced
#bcpoli
January 5, 2012 at 12:18pm
11 years can go by in a blink. I still can't believe this is me, dying in the ER at VGH. Our healthcare system is such mess now, I often wonder if I’d be alive if this happened to me today. Anyway, cancer sucks + healthcare workers are my favourites.
I spent the day reading messages, texts, tweets and emails. I’m in a puddle of tears, overwhelmed by your kindness. It’s been my privilege to have grown up with you the past 21 years. The love you have shown me is with me forever. xx
New Westminster made history last week by becoming the first school district in the province to fund free pad and tampon dispensers at all its schools.
#bced
This montage is for the know-it-all-bros clutching their pearls about wearing a mask in a hospital. 🙄
Also, Francis Galton (white guy) coined the term eugenics in 1883 he was a big fan of social Darwinism, eugenics + scientific racism.
140 yrs later + look at us. 😞
The r-word is NOT up for debate.
#Chilliwack
school trustee Darrell Furgason defending Barry Neufeld is vile. The r-word is a form of hate speech. Full stop.
It’s time for an overhaul in Chilliwack, these ableist trustees are dangerous + shouldn’t be near education.
#bced
Are you as courageous as the students who feel unsafe at school because of racism, misogyny, homophobia, transphobia, or other forms of discrimination? Asking for a friend.
#bced
@bctf
#inclusion
🏳️🌈
Tamara Taggart just posted a hateful, untrue tweet about me. I knew this was going to be difficult, and that I would have to be extremely courageous in light of the attacks that were to be expected. However, when...
Called a cab to pick me up at our house 25 min ago. Still waiting. Seriously. Vancouver is a major city, it’s a Saturday afternoon + I can’t get a cab. I tried to call to see what was going on but got a busy signal 🤦🏼♀️ + don’t tell me to get the app. I’d still be waiting.
My stomach is in knots but Beckett walked into his new HIGH SCHOOL like he owned the place. I couldn’t go in with him, it’s all so weird - yet wonderful. I’m counting down the minutes until I pick him up at 3pm.
#bced
#BackToSchool2020
I’m too scared to send Beckett to school this week, I never hear anyone mention disabled students + their safety. With no transparency regarding
#COVID19
in schools, parents + education workers experience constant fear + anxiety. So it’s a tea + HotWheels morning for us.
#bced
A teacher I know was told by a senior colleague to not ‘attach their name to mine’ because the VSB doesn’t like me. Am I in high school again? Also, I know they don’t like me - it’s obvious - and I don’t care. Oh, and I will never stop advocating. Ever.
#bced
FOURTEEN. 🎉
Happy Birthday Beckett, you are the brightest light - handsome, smart, kind and funny!
I love you so much, being your mum is my dream come true.
#BirthdayBoy
Explaining to my kids that Canada is warming twice as fast as the rest of the world is not an easy conversation. It’s devastating. For ALL of our children, can the attention of politicians + media shift to this crisis soon?
#climate
#motherearth
🌎
Brian,
I’ve read all emails from school admin to Sophia’s parents.
Both parents work on Thurs (the day of the field trip) they offered to pay their respite worker to go w/ Sophia + admin said NO.
Also I’m not inviting rage, I’m filled with it because of jerks like you.
#bced
Frontline HCWs know the truth. Parents know the truth. 6 kids in BC have died from influenza in the past 2 weeks. They did not have serious illness. They died. They are not coming back. We need real leadership. Now.
#bcpoli
On Monday Chrissy + Brady Loseth of
#Kelowna
lost their healthy 9 yr old daughter Ayla to the flu that progressed to a bacterial infection. Their son was admitted to the same hospital, with the same symptoms Ayla had arrived with only days before.
#bcpoli
Reading this made me feel angry, sad + scared. I looked at your twitter feed
@LauraLynnTT
and all I saw was racism + hate. It sure doesn’t seem very Christian to be so unaccepting of others. An anti-SOGI activist? Gross.
#bced
@bctf
The kids saw their dad play live
last night, it's been three years since they last saw him on stage. It was a really good day for our family. I can't begin to explain how much fun Beckett had, lots of memories were made.💛
Why isn’t the BC govt allowing free access to the RSV ($290) + shingles vaccine ($320)?
A lot of people can’t afford the cost, it’s cruel to restrict access.
Wouldn’t it also help with our overcrowded ERs?
#bcpoli
How today started
@BCChildrensHosp
in the Pediatric Intensive Care Unit. The lack of leadership, outrage + transparency is deplorable.
#PICU
in crisis,
#ER
times brutal, surgeries cancelled + kids dying of the flu.
#bcpoli
#CodeOrange
Ladies? Seriously? Our government just made an incredible announcement, banning single-use plastics in Canada by 2021 - and you think us ‘ladies’ will be mad about the q-tips and ‘other items’? 🤦🏼♀️ Also, q-tips are now made with paperboard...but details.
My kind, creative 11 year old decided to hand sew
#masks
for us + our neighbours. She’s always looking for the silver lining + how to help others. I love that she took this project on all by herself. Parenting during a
#pandemic
is bizarre, scary + difficult.
#COVID19
#COVID19BC
Grade 9 is done. I thought today was the last day of school but to my surprise, everyone said their goodbyes to us yesterday. An uneventful end to a crappy year. High school is everything I worried about for my son. I feel like an exhausted failure.
#bced
Happy
#WorldDownSyndromeDay
we always celebrate Beckett, he’s our dream come true.💙
I love this boy + the community that surrounds us. Mostly I love being his mum + on the receiving end of his love + laughs. 💛
#WDSD2020
#DownSyndrome
#DSRF
Our health is fragile, we need a strong healthcare system. We need less administration + overpaid vice-presidents. I’ll be louder this year.
We need nurses, doctors + all healthcare workers to be healthy, safe + respected. And happy. 8/9
#bcpoli
Happy 11th Birthday Beckett!!! I love being your mum...you are an incredible boy. I can’t wait to see what you do with your life, these past 11 years have been magical.
🧵x ten.
My son is starting grade 10. He didn’t go to school today because his ‘program’ doesn’t start until tomorrow. You see, he’s in a segregated program. He doesn’t have a homeroom class + doesn’t experience high school like his typical peers. 1/10
#bced
So👏🏻Many👏🏻Managers👏🏻
“64 vice-presidents across the health authorities, we have just an absolute multitude of managers and project managers.”
Everyone👏🏻Is👏🏻A👏🏻Manager👏🏻
#bcpoli
#BCHealth
report from
@PennyDaflos
I don’t understand the point of a Senator (a Senator!) tweeting something like this. It seems so childish. Twitter is becoming pointless, the negativity + attacks do nothing to move us forward. This is what repels people, it’s messed up. Have some respect.
Do the other kids + their parents know Sophia is now excluded? If we don’t stand up for Sophia what are we teaching her peers? School District 35 has failed Sophia + until we ALL resist this discrimination this will continue to happen to children who need support. 6/6
#bced
Lots of supportive messages for Sophia, I asked the dad who sent me this note if I could share. ☺️
Both of his daughters were Sophia’s “big buddy” over the years + both are furious. Dad says we must all be united in stopping discrimination + bullying.
#bced
#bcpoli
#SD35
I’m on day 11 of COVID + still feeling really awful. One of my symptoms is zero tolerance for arrogant government staffers.
This tweet 👇🏼 from the Premier’s Director of Communications is unnecessary + insensitive. 1/3
#bcpoli
Heartbroken to hear television legend Regis Philbin has died, what an honour it was to sit beside him. Many good memories of this surreal day in 2009. RIP Regis + thank you for making us all laugh, sending love to his family + dear friends.
#ripregis
#RegisPhilbin
I’ll come back to this video often in 2024, it’s a reminder my disabled son can do big things when he is supported + loved.
In the past, some people with fragile egos have tried to stop my advocacy or silence me.
I expect I’ll be louder than ever this year. 📣
#bcpoli
When DBH said the child had pre-existing health conditions, it was a gut punch.
Do NOT diminish a life because a person was ‘already sick’ or ‘old’ or had ‘other health conditions’. A toddler died from
#COVID
My deepest condolences to anyone suffering the loss of a loved one.
Actually, I’m just very worried about my son who has a weakened immune system + my best friend who is fighting cancer + my 80 year old mother-in-law + other community members. That’s all. So you go ahead + continue to jerk-tweet at 4:18am. Classy.
I can’t believe we pay people to do this, what was in the backpack? Also, none of this is trash, these items belong to people who have nowhere to go.
The cruelty is sickening.
#vanpoli
#bcpoli
Fighting for my son’s basic human rights is exhausting. This disgusting t-shirt doesn’t help, in fact it hurts. Many have reported it to
@amazonca
+
@amazon
but I doubt it will be removed. The last 13 yrs have shown me how little society cares about people w
#DownSyndrome
I’m learning to let go of expectations. I’m doing my best + it is really difficult sometimes, parenting through a pandemic has brought many tears + a lot of gifts.
We aren’t going back to school in June, as much as we miss school - I’m listening to my gut on this one. 💛
#bced
Things I have noticed on my twitter feed while home with a bad cold...When I post about climate change, a lot of angry conspiracy theorists respond. When I post about LGBTQ rights, trolls lose it. I’m also inundated with mansplainers. Twitter is nasty., someone send a puppy gif.
🧵It’s impossible to prepare yourself for the first time your disabled child (or child with disability - depending on your preference) is excluded. My son has Down syndrome, exclusion is familiar. The specifics vary but the underlying reason is always the same. 1/9
#vanpoli
Singing
#HappyBirthday
to Grammy outside her window, not how we planned on celebrating her 80th birthday. The most difficult part was trying to hold Beckett back from running inside to hug + kiss her 😞
#COVID19
is impossible for our boy to understand.
#COVID19BC
#StayHomeCanada
Imagine if Sophia was your child. Imagine if you were Sophia. We live in a society where we talk about inclusion but we accept exclusion. In the blink of an eye Langley
#SD35
destroyed a 12yr old girl’s spirit. Her parents are devastated.
5/6
#bced
#bcpoli
Hysterical, hysteric, hysteria.
Originates from the Greek word hystera-the womb.
Until the 1950s doctors used ‘hysteria’ to describe women with mental health issues.
Today it is used to describe women, who can’t control themselves or are ‘too’ emotional (because-uterus)
#bced
Every day for the past 21 years, Gia makes the hour-long trek across town to our front desk, flashes her smile & drops off a small donation - proceeds from recyclables she collects & returns.
To date, she has raised $15K! Thank you for inspiring us all with your generosity. 🙏
🧵I’m in
#Kelowna
doing something I’ve never done before. My friends don’t know I’m here + my family only knows I’m with a friend supporting her in court. Day three in Kelowna Supreme Court starts this morning at 10am.
#BCLegal
1/8
Been thinking about these responses, my tweet was not an attack. I can’t control how others respond. I said it was the worst answer, maybe you don’t agree + that’s okay. I don’t dislike Dr. Henry or Minister Dix but children are dying + many of us are desperate for transparency.
🧵 When a woman leaves a violent relationship the abuse often continues for months, years or even a lifetime. Every six days a woman in Canada is murdered by her intimate partner. It’s all around us + we need to pay attention.
👇🏼👇🏼👇🏼 1/12
#bcpoli