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reann

@redpepper1011

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#disability awareness is everything..❤️ truth matters .. fighting for the truth -

United Kingdom
Joined March 2014
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@redpepper1011
reann
@redpepper1011
1 month
Jaxon was never well enough to see them live - this year he’s fitter than me 🙏❤️ #ThisLifeOnTour if you share anything today please make it be this one 🙌 Jaxon is a massive take that fan he and his brothers /sisters will be seeing take that live in Swansea soon I’m trying to
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@redpepper1011
reann
@redpepper1011
8 months
Well the day is finally here - happy 8th birthday Jaxon you’ve gone from a tiny baby fighting a lot of health issues to a big boy who as proved a hell of a lot of professionals wrong and mammys said you would & im going to make sure that continues 🙌❤️ let’s hope you get to meet
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@redpepper1011
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@redpepper1011
1 year
Teddy Off to see our favourite surgeon today for his 6 week check after open heart surgery
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@redpepper1011
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@redpepper1011
5 months
Unfortunately teddy (5) missed last Christmas school play due to waiting open heart surgery which he finally had end of April .. he was so excited to finally do his first school play this week but due to a stomach bug he as to be off for 48 hours - but as requested teddy the elf
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@redpepper1011
reann
@redpepper1011
8 months
Big boys birthday badge
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@redpepper1011
reann
@redpepper1011
7 months
Im not here to be liked I’m here to speak up for my perfect disabled son - I’m here to speak up for Jaxon ❤️
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@redpepper1011
reann
@redpepper1011
1 year
This little boy as shocked myself and many others day 12 after open heart surgery- been to get rest of stitches out this morning- 100% super teddy 🤗❤️
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@redpepper1011
reann
@redpepper1011
8 months
And the birthday boys home 😍 ⁦ @takethat ⁩
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@redpepper1011
reann
@redpepper1011
8 months
Thank you to everyone who’s wished Jaxon a happy birthday and for all the kind words means a lot ❤️ he’s had a brilliant afternoon now fast asleep with his siblings ❤️ - most will no how I campaign on here regarding disability situations - the way children like Jaxon are failed
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@redpepper1011
reann
@redpepper1011
1 year
Teddy did well walking to the park he’s tired now lol - he’s not been to parks like that because he would get out of breath - 6 weeks after open heart surgery he’s doing amazing 🤩
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@redpepper1011
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@redpepper1011
1 year
Day 16 after open heart surgery another card & gift 🎁 thank you ❤️
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@redpepper1011
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@redpepper1011
1 year
How amazing is teddy - 5 years old and had open heart surgery on Thursday - tonight we are finally home - he’s been so brave and amazing I’m shocked with how well he’s done , Bristol children’s hospitals amazing it’s been a hard few days but the staff have been outstanding not
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@redpepper1011
reann
@redpepper1011
7 months
Out of thousands of messages the last couple of days I’ve had 3 bad ones - we will never except bullying especially bullying towards disabled children on twitter / X ❤️❤️❤️ - thank you for everyone’s kind message ❤️- Twitter is a lifeline for parents with disabled children let’s
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reann
@redpepper1011
1 year
So in high dependency teddy’s doing ok been sick a few times and not 100% him self fed up I think to but I’m sure he will get there ❤️
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@redpepper1011
reann
@redpepper1011
5 months
Hopefully Father Christmas will bring this lovely boy a new phone he’s broken is so I’ve put it at the top of his list ❤️🙌
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@redpepper1011
reann
@redpepper1011
5 months
This is Jaxon age 8 born with spina bifida & hydrocephalus he also as hyper mobility speech delay and many other things that make life challenging although nothing stops him from smiling- as a mother I support many families who face challenges but I receive a lot of support from
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@redpepper1011
1 year
Xx
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@redpepper1011
5 months
Literally made my whole life ❤️
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@redpepper1011
7 months
Beginning of the week teddy was sent home with a stomach bug couldn’t go into school till yesterday sent him In because he’s had nothing wrong with him at home but yesterday sent home with the same thing so can’t go in again - nothing wrong with him so we have been out early for
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@redpepper1011
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@redpepper1011
5 months
Out and about shopping Jaxons found himself a pack of biscuits bigger than him 🥴😆🎄bargin 99p
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@redpepper1011
6 months
Teddy starving coming home from school he eats loads when he comes home then up bright and early starving lol - who would of thought he only had open heart surgery end of April
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reann
@redpepper1011
1 year
Wow
@BrigeneN
Brigene Mc Neilly💙
@BrigeneN
1 year
This is Max. He is 13 and autistic. Max saved up his money, and his birthday money to buy the Lego Titanic model. He built it from scratch in 3 days. Isn't he awesome? 💕💕
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@redpepper1011
1 year
morning everyone teddy’s Temperature gone back to normal probably went up because he had a busy day yesterday- day 5 after open heart surgery- word out we will be going home so fingers crossed everyone 🙏💪
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@redpepper1011
1 year
Morning everyone we have been up a while teddys slept really well ( shame the machine kept bleeping 😬) hopefully I’ve got him back into some sort of night/ day pattern which will really help him - he’s up dressed been for a walk , phoned home - hoping for a better day 💪
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@redpepper1011
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@redpepper1011
1 year
He’s definitely enjoyed today lol he loves ice cream 🍦
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@redpepper1011
1 year
SuperTed 🤗 11 days after open heart surgery
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@redpepper1011
reann
@redpepper1011
5 months
❤️❤️❤️
@JWilliams618
James Williams
@JWilliams618
5 months
This Santa learns that this little girl is deaf and starts talking to her in sign language! ❤️
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@redpepper1011
1 year
And they are ready for the day - teddy 5 Jaxon 7 & ayda 6 ❤️💙
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@redpepper1011
reann
@redpepper1011
5 months
Jaxon wanted me to show you all his new remote control car because of hyper mobility he struggles with lots of toys so never really been able to use remote control cars well Father Christmas brought him one he can use like a big boy ( ignore the toys behind him we are still
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@redpepper1011
reann
@redpepper1011
7 months
Jaxons got a song for you all 🥰 - you are my sunshine ☀️
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@redpepper1011
reann
@redpepper1011
8 months
@GMPWythenshawe Time you got tougher with kids like this fed up of so many not having to take responsibility for their actions- it’s not helping the soft approach these kids turn in to worse adults
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@redpepper1011
reann
@redpepper1011
1 year
Teddy had Open heart surgery 20th of April - not been to school ever but will start in September he’s doing amazing wanted to show off is picture of a pumpkin 🎃 he’s also set up traps around the house to tease me lol
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@redpepper1011
reann
@redpepper1011
7 months
My three youngest- and believe me they are strong minded independent vocal happy children who are growing up to understand differences - everyone’s lives matter all lives matter ❤️
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@redpepper1011
reann
@redpepper1011
7 months
Good try with the alphabet Jaxon - 😀 - if given the chance he would thrive
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@redpepper1011
reann
@redpepper1011
1 year
Morning everyone teddy’s allowed to drink more now ( bits at a time ) he’s a lot more brighter sats a big 98 was sitting between 80-90 before op - he’s talking more now he can have a drink and enjoying watching bing - hoping drains can come out today as leaking less fluid think
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@redpepper1011
reann
@redpepper1011
5 months
Teddy’s 5 he missed his last years Christmas concert at school due to waiting major heart surgery that was done end of April- he was meant to be a elf in his first concert this week but having to miss out tomorrow & Wednesday as he was sent home with a stomach bug so off 48
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reann
@redpepper1011
8 months
There he is 🎉🙌 and yes that is mark Owen lol 😆
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@redpepper1011
reann
@redpepper1011
5 months
Best of luck to Jaxon who will be a Shepherd today and ayda who will be Mary in there school Christmas play ( we all know teddy the elf is now famous 😉)
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@redpepper1011
reann
@redpepper1011
1 year
Jaxon already for school thankfully we’ve got a amazing school who really support us as a family shame about the others - ❤️ Jaxon always smiling
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@redpepper1011
reann
@redpepper1011
7 months
Well after not wanting to dress up to wanting to put some make up on Jaxons looking pretty scary 🎃🙌 waiting and hoping that we get some knocks on the door as we have some sweets
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@redpepper1011
reann
@redpepper1011
7 months
Wouldn’t tend to share these pics as I’m not looking my best lol 😆 but I got to say I do love them - he’s so cheeky I lay on sofa he points to is belt and then he’s out squashing me lol 😂 I’m not going to say much about him calling me a cheeky girl for forgetting to charge his
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@redpepper1011
reann
@redpepper1011
1 year
All went great .. one lung smaller than other hopefully that’ll sort it’s self out , medication can stop which is great teddy will be happy - back in 4 months- surgeon over happy with him - teddy’s now wanting a well deserved pie from the chippy lol his pick 🤗
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@redpepper1011
reann
@redpepper1011
1 year
Jaxons A lot better today 🤩
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@redpepper1011
7 months
One of my favourite videos inclusion Is everything- Jaxon playing with brothers /sisters
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@redpepper1011
reann
@redpepper1011
5 months
Jaxon wanted to do a video to show how big he is - just had eye drops in wasn’t happy but he’s fine now ☺️👏🏻
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@redpepper1011
reann
@redpepper1011
7 months
2018Jaxon first time on ride ( was very ill before this date - although he couldn’t & still can’t sit without support we’ve always given him the opportunity to try everything his dads eyes were closed tight with this one but not treating him differently is why he’s so confident
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@redpepper1011
reann
@redpepper1011
1 year
17 days after open heart surgery - made. Tea party 🎉 and enjoying music 🎶 super ted
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@redpepper1011
reann
@redpepper1011
1 year
Morning all - another good morning teddy’s looking amazing and here’s the big boy Jaxon all ready for school 👏🤗
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@redpepper1011
7 months
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@redpepper1011
6 months
Jaxons been going into mainstream class half day with his sister ayda who’s a year younger - don’t get better as a parent being given amazing pictures that they’ve made ❤️🤩
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@redpepper1011
reann
@redpepper1011
10 days
Well it’s someone’s birthday today .. can you believe it 43 - it’s been tough fighting the bullying from nhs health board - but I’m so thankful to have the support on here means so much ❤️🎂
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@redpepper1011
reann
@redpepper1011
1 year
Actually the real Spider-Man 16 days after open heart surgery.. ❤️💪amazing teddy 👏
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reann
@redpepper1011
5 months
Merry Christmas from the big boy Jaxon - he wanted to let you know Father Christmas brought him a new phone hopefully won’t ride over this one 😀🎉
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@redpepper1011
reann
@redpepper1011
5 months
Leon & Jaxon already for last day of school today 🎄
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@redpepper1011
reann
@redpepper1011
5 months
Jaxons so excited got through to Father Christmas 🎅 voicemail ❤️🎄🙌 03306060547
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@redpepper1011
reann
@redpepper1011
7 months
Leon’s awaiting ASD assessment .. I can’t trust Jaxon on the sofa on his own and I had to do some bits - Leon said I’ll look after him - that’s how this house always works ❤️
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@redpepper1011
reann
@redpepper1011
5 months
Jaxon is a massive @takethat fan he’s completely obsessed with the boys as you all know im campaigning to get him to meet them it would make is dream come true- please support our campaign comment and share ❤️🙌
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@redpepper1011
reann
@redpepper1011
5 months
Off Jaxon goes to be a Shepherd in his Christmas play at 9.30am - he’s super excited let’s hope he stays in because they play twinkle twinkle little star at the beginning he starts crying to the song every time .. think Because we used to play it to him when he was in hospital a
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@redpepper1011
reann
@redpepper1011
5 months
Nhs health board don’t want you to see this post or any of my evidence that’s on my page they have threatened me over my posts now blocked me - This is Jaxon age 8 born with spina bifida & hydrocephalus he also as hyper mobility speech delay and many other things that make life
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reann
@redpepper1011
1 year
How brilliant is teddy - I’ve got along night ahead but I’m just gonna sit here ❤️
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@redpepper1011
reann
@redpepper1011
7 months
So after Jaxon trying to explain to me for weeks what’s been happening in his new class staff told his dad that one child told Jaxon he’s always going to be in his wheelchair although Jaxon is a very confident little boy & was trying to explain to me what’s what because of his
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@redpepper1011
reann
@redpepper1011
1 year
Just had a call teddy’s not in icu yet ( will be in half hour) but apparently he’s done brilliant tolerated everything and surgeon said hopefully won’t need more surgery.. OMG I’m on my way to see him now ( pic before he went up ❤️
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@redpepper1011
reann
@redpepper1011
10 months
@SkyNews If a child didn’t want to go to home questions would be asked parents would be blamed and you would have social services at your door - if kids don’t want to school why isn’t the school questioned and blamed instead of blaming the kids and parents-mind many of these children have
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@redpepper1011
reann
@redpepper1011
1 year
Second time Jaxon watching ⁦ @takethat ⁩ this morning as he fell asleep last night- he gets so much joy from watching them ❤️⁦ @GaryBarlow ⁩ ⁦ @OfficialMarkO ⁩ ⁦ @HowardDonald ⁩ 🤗 super fan 🙌
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@redpepper1011
reann
@redpepper1011
1 year
While I was in hospital with teddy having open heart surgery we had a message stating OT won’t give Jaxon a seat at school to sit on the floor with other children as advised by my self and Educational Psychologist - the neglect towards my disabled son and others is a disgrace-
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@redpepper1011
reann
@redpepper1011
5 months
Teddy wanted to take something to his school assembly children take things in that they’ve achieved- Teddy asked this morning if he can take in Sam to tell them all about his and Sam’s heart operation they had end of April ( obviously I wasn’t going to tell him no because that’s
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@redpepper1011
reann
@redpepper1011
6 months
Jaxon as had my phone he’s learning to take his own selfie thinking this is bloody brilliant 🤩
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@redpepper1011
reann
@redpepper1011
1 year
A kind person sent teddy money in the post by special delivery - @RoyalMail say it was signed for by someone else although the police state it’s theft they have now said they can’t do anything about it yet a man as pinched a little 5 year olds money after he’s had open heart
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@redpepper1011
reann
@redpepper1011
5 months
Kids very excited today sending everyone lots of love ❤️
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reann
@redpepper1011
5 months
Wasn’t going to share this one .. yesterday at hospital 💛🧡
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reann
@redpepper1011
5 months
We won’t be silenced even though this health board threw out a letter warning me about my social media messages please keep sharing ❤️ Should be the biggest message tonight please repost ❤️ This is Jaxon age 8 born with spina bifida & hydrocephalus he also as hyper mobility
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reann
@redpepper1011
10 months
Hands up who hates the shitty X bring back the bird
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@redpepper1011
5 months
He’s been on one today hyper - but now in bed he loves his bedtime 🙌🎄
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@redpepper1011
reann
@redpepper1011
1 year
One of teds favourite songs before he started getting out of breath he would put his sunglasses 😎 on and off he would go dancing - a week after open heart surgery 20th April - he’s back at it with his sister ❤️🎶 actually had this on in icu to
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reann
@redpepper1011
5 months
And there they are together- school Christmas dinner today 🎄
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reann
@redpepper1011
1 year
And there he is TEDDY BEAR 🧸 he’s been going round picking at cheese biscuits and everything else already this morning lol ❤️
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reann
@redpepper1011
1 year
The big boy Jaxon gone to school happy - he wasn’t his usual happy self this morning no idea why - but I’ve given him some of my @takethat cds to take to school so he can play them while in the bathroom ,He’s got loads of his own CDs of the boys but needs them for his cd player
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reann
@redpepper1011
10 months
So this is Jaxon he will be 8 in October- Jaxon as spina bifida & hydrocephalus he as hyper mobility in his hands wrist elbows & shoulder he also as speech delay and other conditions- Jaxon can not use his hands like most so can not write and needs help with things like feeding -
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@redpepper1011
7 months
Wheelchair left at top of steps - we finally got down to the sea ❤️😘
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reann
@redpepper1011
1 year
Morning everyone 26 days after open heart surgery teddy’s got something to say 😆👇🏻 - doing amazing 🤩
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reann
@redpepper1011
7 months
For those who haven’t seen we’ve got the first pictures of Jaxons new wheelchair which is being delivered next Wednesday.. We’ve got lights ❤️❤️🙌
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reann
@redpepper1011
1 year
Teddy busy ticking everything in the @SmythsToysUK book he wants for Christmas already lol doing amazing can’t believe the difference in him after having open heart surgery only last week ❤️
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@redpepper1011
1 year
Outpatient appointment with teddy
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@redpepper1011
8 months
No parent should have to face bullying for advocating for their disabled children no parent should have to beg for vital equipment services & support please help support Jaxons go fund me - disabled children deserve better 😔❤️
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@redpepper1011
7 months
Jaxon & his sister ayda 2016 .. fb memories
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@redpepper1011
5 months
“Christmas gives us the opportunity to pause and reflect on the important things around us.”🎄🩷
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reann
@redpepper1011
7 months
He’s not a massive fan of dressing up & Halloween make up but he’s trying out some bits - call a ambulance 🚑 😂🥴
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@redpepper1011
reann
@redpepper1011
6 months
And there he is using his new wheelchair we was kind of nervous how he would take to it but already flying around ❤️
@ryanjames1979
Ryan James
@ryanjames1979
6 months
@redpepper1011 @VancityReynolds @KatieElinSalt I think he likes it
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reann
@redpepper1011
7 months
See the truth is I’m nobody just a mother a mother with disabled children who try’s her best while LA & NHS neglect the needs of my disabled son Jaxon - I was to afraid to speak out because of the horrific bullying I have faced and still face for trying my best & advocating - I
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@redpepper1011
reann
@redpepper1011
8 months
Many disabled children are neglected by local authorities & nhs many parents with disabled children face horrific bullying for speaking out - Jaxon is one of these children im one of these parents- refused vital equipment including shower chairs because it’s to expensive and a
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reann
@redpepper1011
5 months
Despite the challenges we’ve faced my children always shine how amazing is Edie (11) singing in her school Christmas concert today ❤️🎄🙌
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reann
@redpepper1011
5 months
I’m sorry this is disgusting why would any parent wrap a brick up for a small child knowing they would be devastated by it - there’s having a little joke with children but this is a different level and for the parents to be sat laughing at the child is bloody child abuse
@TheOnlyGuru
Binky
@TheOnlyGuru
5 months
As a small chiddler, I’d have thrown it down and smashed their glass table.
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reann
@redpepper1011
7 months
2016 the trauma still don’t go away - wales nhs didn’t listen blue lighted to Bristol-we was told he wouldn’t make it - video when Jaxon came off vent - to be fair I was petrified in shock and he didn’t look is best - awareness is everything … super star of twitter now ❤️
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reann
@redpepper1011
1 year
Trying to take photos lol did a video then lol Jaxon obviously being cheeky as usual 🤗- teddy’s doing amazing 15 days after open heart surgery- all still got sickness bug seem a lot better hopefully they’ll be able to eat something today 🤩
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reann
@redpepper1011
8 months
And while I was in teddy’s heart appointment we actually managed to get Jaxon @takethat tickets for Swansea the only thing he’s ever really asked for but couldn’t before as he was always unwell with his chest - but we promised him one day his dream will come true he Doesn’t no
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reann
@redpepper1011
5 months
Literally as a new born he’s grown up with ⁦ @takethat ⁩ but this boy as got is own kind of love nobody will understand but me and school is wish is to meet them please share
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@redpepper1011
reann
@redpepper1011
1 year
Teds slept for a long time had catheter taken out plus the drains which really hurt him although he had lots of pain relief-SATs down but they said it’s basically because he needs to start sitting up and walking around which will come - he’s not eaten but woke up and asked for
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reann
@redpepper1011
7 months
Jaxon Back to school today - question Is will he wear his hat & gloves 😬
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