Myahsjourney @myahsjourney Twitter profile

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Myahsjourney

@myahsjourney

3 years

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Myahsjourney

@myahsjourney

6 months

And it's all over her. Head opened, stomach opened 🙈, but surgery was a success 🙏 back recovering on the ward. Thankyou again everyone 💓 #recoverystartsnow #shuntlife #hydrocephalus 💖💖

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Myahsjourney

@myahsjourney

6 months

Our beautiful Myah will face another day in theatre 2moro for more surgery on her head/shunt. I always try to stay positive but I'm so broken right now, life can be so shit sometimes. Her 4th major surgery in as many weeks. She's just a 5yr old child who doesn't deserve all this

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Myahsjourney

@myahsjourney

5 months

Our girl is still home and is doing great #yourhealthisyourwealth 👌 ☺️ 🥰

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Myahsjourney

@myahsjourney

7 months

Still not out of the woods and will need a few weeks in hospital BUT. ..... Out of ICU and into the ward (and shes delighted too). 💪 #roadtorecovery #myahsjourney

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Myahsjourney

@myahsjourney

3 months

The face of a girl who's had 3 hospital appts in 24 hrs. All good though. Health is great ATM - Wee woman is flying 🥰💪 #yourhealthisyourwealth

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Myahsjourney

@myahsjourney

6 months

Just a little update on our beautiful Myah. She is doing great, we will still be in for a week or 2, but we are defo on the mend and going in the right direction. We should be home for the big man coming 🎅 much love ❤️ #HomeForChristmas #shuntlife #hydrocephalus #roadtorecovery

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Myahsjourney

@myahsjourney

1 month

Our hospice stay didn't go as planned as we had leave there and be admitted to hospital yesterday due to being so unwell. Just hoping she's well enough for planned surgery for the morning. We really need this to go ahead as we need answers 🙏 wee woman never gets a break 😭

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Myahsjourney

@myahsjourney

7 months

Update on myah. She had another operation tonight to remove her port as they think this was what was causing her infection. She has a rare infection in her blood and sepsis. She's is now in intensive care as her body is very weak and poorly. We Pray for a better tomorrow. 🙏

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Myahsjourney

@myahsjourney

5 months

Just a happy healthy girl - taking things day by day... 💪💜

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Myahsjourney

@myahsjourney

6 months

So many messages asking after our girl. She's still a few weeks in hospital ahead of her but at least that smile is back. Hopefully home for the big man coming 🎅 Thankyou for the genuine care, greatly appreciated 💜 #shuntlife #hydrocephalus #roadtorecovery #princesswarrior

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Myahsjourney

@myahsjourney

6 months

Almost 6 weeks we have been in hospital. The wee woman is nearly ready to go home. Pray we get our of here this week. (Ps look at that work of art 🎨)

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Myahsjourney

@myahsjourney

7 months

Our girl ❤️💔

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Myahsjourney

@myahsjourney

4 months

Happy birthday Myah 🎂💜 Today our big girl turns 6. can we get some birthday wishes 🎉🎊

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Myahsjourney

@myahsjourney

1 month

Our beautiful girl getting the rest she needs. Hopefully she doesn't take too long to get back to her cheeky self ❤️ thankyou all for you messages 😘

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Myahsjourney

@myahsjourney

1 month

Thankyou all for your messages. We are still in hospital and not much change. Waiting on results to see if we can find out what's going on .. pray for better days ahead 🙏

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Myahsjourney

@myahsjourney

4 months

Our myah is back in the RVH for sick children. Some scans and tests to be to see what's going on. Pray nothing too serious 🙏

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Myahsjourney

@myahsjourney

5 months

Back to school after almost 3 months off 🙌 🥰

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Myahsjourney

@myahsjourney

2 months

Six years ago we were told our child was blind, with no vision and no connection from her brain to her eyes. Fast forward 6 yrs and Today we got news her sight is perfect.. infact better than it was 12mths ago, so improving. strength to strength kiddo 💪 #YOURHEALTHISYOURWEALTH

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Myahsjourney

@myahsjourney

7 months

This wee champ has bounced back brilliantly. Still gonna be in hospital for another month or so BUT we can now take her home for a few hrs a day, and hopefully get her home for good before Xmas. Buzzing (so is she lol). #roadtorecovery 💚💛

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Myahsjourney

@myahsjourney

1 month

And finally... that smile is back😁 Positive for whooping cough, positive for adenovirus, positive for parainfluenza- but lots of rest and antibiotics and hopefully that's her on the turn 🙏

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Myahsjourney

@myahsjourney

20 days

WHEELCHAIR DAY 🦼😍 Today our baby girl officially got her very first wheelchair. Feel a wee bit sad, not gonna lie, BUT.. We are forever grateful that we have all this amazing equipment to make her life that little bit easier.. and plus, how cute does she look. 😍😍

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Myahsjourney

@myahsjourney

4 months

And shes home. We finally got some answers, and a date to return for day procedure in a few months. Thankyou again for all your messages asking after her 😍

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Myahsjourney

@myahsjourney

6 months

GUESS WHOS FINALLY HOME 😁Almost 6 (lonnnng) weeks, 3 major surgeries, and a cancelled holiday to America but WE ARE HOME. Thankyou to you all for your genuine messages of care and support, so overwhelmed. 💜😍 #myahsjourney

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Myahsjourney

@myahsjourney

1 month

Update.... Myah just too sick for theatre today. Need to let her wee body rest for a while and then maybe try again later in the week. Thankyou all as always for your messages and calls x

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Myahsjourney

@myahsjourney

5 months

Merry Xmas everyone. What a year its been, but we are so grateful to be spending it at home as a family. We have had so much support and genuine care from you all. We can't thank you enough. Have a wonderful day - stay safe. Lots of love, Myah xx

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Myahsjourney

@myahsjourney

1 month

#Perfection 😍 a little bit of an improvement today 🙏 trying her back on milk see if we can build her back up 🤞🤞

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Myahsjourney

@myahsjourney

5 months

Getting ready for the bigman coming 🎅

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Myahsjourney

@myahsjourney

7 months

So many messages and DMs asking after our beautiful girl. We are still in Intensive care, a bit up and down really. Few more blood tests and scans today but stats and numbers are looking a bit better. Hopefully know more later. Thank you all for checking in on her 🙏❤️ #grateful

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Myahsjourney

@myahsjourney

3 months

Our big girl makes us so proud x

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Myahsjourney

@myahsjourney

4 months

Our beautiful girl enjoyed a few days of respite in the NI CHILDRENS HOSPICE this week. We are so grateful to have these places the people who work in them. They are simply amazing for what they do for so many children and their families. #nichildrenshospice #thankyou 💜💛

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Myahsjourney

@myahsjourney

25 days

Back to school she goes 💪

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Myahsjourney

@myahsjourney

7 months

Sitting up and feeling better.... Nothing gets her down. 3 surgeries in 10 days. She is starting to turn the corner 🙏❤️

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Myahsjourney

@myahsjourney

7 months

Looking fresh this morning. That wee face 🥰

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Myahsjourney

@myahsjourney

22 days

Our girl looking so well. Mummys girl sometimes LOL 😍

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Myahsjourney

@myahsjourney

2 months

Our girl supporting WORLD DOWN SYNDROME DAY in school. #RockYourSocks wearing our funky odd socks symbolises the uniqueness of every chromosome #WorldDownSyndromeDay2024

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Myahsjourney

@myahsjourney

3 months

What a princess. 😘😘

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Myahsjourney

@myahsjourney

5 months

Another AMAZING gesture from our spurs family.. Jamie Donely sending over his shirt he wore making his PL debut, with a special message for our girl. Absolutely buzzing -thankyou so much Jamie #rememberthename ⚽️🤍 #spursfamily #overwhelmed #myahsjourney

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Myahsjourney

@myahsjourney

7 months

Right, so the child who gave us the fright of our lives this past few days is at her lark again. Yesterday she was very sick, that sick she needed a bed in intensive care. The amazing surgeons operated and removed the source of infection and today she's like a diff child 🥰🙏

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Myahsjourney

@myahsjourney

2 months

More free easter eggs for mummy to eat. Yay 🤣🙈

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Myahsjourney

@myahsjourney

6 days

It's been a good few weeks 💪☺️

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Myahsjourney

@myahsjourney

2 months

#happyeaster2024

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Myahsjourney

@myahsjourney

5 months

Why is she sitting there like she's 25, and not 5. 🙈🤣🤣 sass and attitude LOL... this is the Myah we know and love. Complete hurricane🌀 - so good to see her back smiling again. #feelingbetter #roadtorecovery #myahsjourney 💜💜

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Myahsjourney

@myahsjourney

6 months

I've got my happy girl back 😍

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Myahsjourney

@myahsjourney

7 months

Our beautiful little myah has been very sick today. Shes off to theatre again now. Can u all please pray she gets through this OK. She has a blood infection and sepsis and we are worried sick. Again thankyou so much for the messages. We are so overwhelmed. We are so grateful ❤️

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Myahsjourney

@myahsjourney

1 year

Our beautiful brave girl - emergency brain surgery today #no6 .. She does not deserve this but she gets on with it and smiles like always. In awe of you myah #hydrocephalus #shuntlife #shuntrevision

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Myahsjourney

@myahsjourney

6 months

HANDS UP IF YOUR HOME. 😁 The only thing better than getting home, is getting home to these beautiful gifts sent from our spurs family. New kit AND a barbie house... wow. We are so overwhelmed- thankyou. All your gifts, texts and messages have kept us going on the tough days. 🥰

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Myahsjourney

@myahsjourney

3 months

Watching the world go by. Its been a good week 😍☺️ #yourhealthisyourwealth

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Myahsjourney

@myahsjourney

7 months

Tough as old boots 💪 #shunt #hydrocephalus #shuntlife #roadtorecovery

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Myahsjourney

@myahsjourney

1 month

Just a happy girl 😍

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Myahsjourney

@myahsjourney

7 months

Another one done and dusted. Kid is a machine 💪 in awe of you myah xx

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Myahsjourney

@myahsjourney

2 months

Home for a few days. Hopefully nothing too serious 🙈😞

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Myahsjourney

@myahsjourney

4 months

Standing strong 💪 ❤️

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Myahsjourney

@myahsjourney

14 days

Living her best life LOL 😆

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Myahsjourney

@myahsjourney

7 months

Sitting up and recovering well. This kid is a machine. Just takes whatever life throws and her, and deals with it with a smile. She is a warrior- 💪 thankyou all so much for your kind messages, very overwhelmed xx #hydrocephalus #recovery #shuntlife #brainsurgery

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Myahsjourney

@myahsjourney

6 months

Our girl is backkkkk 🥰 #feelingbetter #onedayclosertohome

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Myahsjourney

@myahsjourney

6 months

Smile - it's Friday. One day closer to home (whenever that may be) that smile is back 😊 #roadtorecovery #homeforsanta #shuntlife #hydrocephalus

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Myahsjourney

@myahsjourney

4 months

Coys 🤍

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Myahsjourney

@myahsjourney

3 years

Ready to watch @JeffStelling and the boys from our hospital room. Revovering from her 4th brain surgey 2 days ago but that wont stop us getting to watch GSS #wegotthis

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Myahsjourney

@myahsjourney

3 months

🥰🥰

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Myahsjourney

@myahsjourney

4 months

Hands up if u love tottenham 🤣

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Myahsjourney

@myahsjourney

5 months

Feeling good 🥰

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Myahsjourney

@myahsjourney

6 months

Our beautiful girl - She is model material LOL. 😍

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Myahsjourney

@myahsjourney

2 months

Pretty cool that the @BelfastGiants boys came into the ward today to give out some easter eggs. Myah made a miraculous recovery when these 2 walked in haha. #belfastgiants #givingback 🏒 💜

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Myahsjourney

@myahsjourney

7 months

Myah will face another day in theatre. This infection has now reached her head/brain, which we were hoping would not happen. Looks like today they will need to externalise the shunt until her body fights off this bad Please keep her in ur prayers today. #Hydrocephalus #shuntlife

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Myahsjourney

@myahsjourney

2 years

Today i am 4 🎂🎉 its been a tough 4 years but here we are, Still fighting, still going strong and most importantly still smiling. Happy birthday Myah - the only way is up 😊😊

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Myahsjourney

@myahsjourney

2 months

Happy St Patrick's Day ☘️

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Myahsjourney

@myahsjourney

6 months

We got to go home for a few hrs today. Wee woman was buzzing. We took full advantage getting the house ready for the bigman coming 🎅 roll.on getting home and santa coming #onedayclosertohome

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Myahsjourney

@myahsjourney

7 months

Our beautiful little Myah is in theatre now having emergency brain surgery on her shunt. Please keep her in ur prayers that all goes ok .. we woman does not deserve this. Never gets a break. 💔 #shuntlife #hydrowarrior #shunt #theatre #revision

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Myahsjourney

@myahsjourney

5 months

Merry Christmas. Smile with your family 😍❤️

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Myahsjourney

@myahsjourney

6 months

We had a special visitor at paulward today #hisanta ❤️🎅

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Myahsjourney

@myahsjourney

27 days

HOME 🥰🏡 Our girl is finally infection free. A day in theatre can wait for another few weeks. Just happy to get her home. She is buzzing LOL fistpumping in the car all way home lol #happytobehome #yourhealthisyourwealth

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Myahsjourney

@myahsjourney

2 months

When she is this beautiful 😍 #myahlaverty #princess

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Myahsjourney

@myahsjourney

7 months

Blocked valve in the head, but brain surgery no 6 was a success 🥰 this wee woman is a machine. In awe of how strong she is xx #shunt #shuntlife #hydrocephalus #myahsjourney

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Myahsjourney

@myahsjourney

6 months

Christmas at children's RVH 🎄🧑‍🎄 hopefully home for Xmas 🙏

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Myahsjourney

@myahsjourney

4 months

Here's miss myah enjoying life doing the simple things we take for granted every day - Like going shopping and going for for some lunch with mummy. ❤️😍 #itsthesimplethingsinlife

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Myahsjourney

@myahsjourney

1 month

Our big girl away for a few days respite at the Children's Hospice before going into hospital for surgery on Thursday. So lucky to have such amazing places and facilities for our girl 💜💛 @nichildrenshosp

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Myahsjourney

@myahsjourney

8 months

The most beautiful little yid I ever did see 🤍🤍

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Myahsjourney

@myahsjourney

5 months

HAPPY NEW YEAR everyone... We have met so many new friends and been overwhelmed by a sea of genuine care and support that we have recieved during some tough times. Thankyou all so much for helping us on our journey. Here's to a happy, healthy 2024. 💜 stay safe

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Myahsjourney

@myahsjourney

3 months

Our TOF baby. Our beautiful Myah was born with type C "Oesophageal atresia and tracheo-oesophageal fistula". This was repaired when she was 1 day old successfully but unfortunately she never developed suck or swallow and is now completely NIL BY MOUTH as a result.

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Myahsjourney

@myahsjourney

18 days

PEG and PROUD 🥰 What a little princess 😍 #tubefed #peglife

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Myahsjourney

@myahsjourney

3 years

Running, walking, crawling and even standing are just some of the things we all take for granted. NOT MYAH. She has to work so hard, and she is doing so well. Geting stronger every week. Keep it up my girl, you make so proud ❤️❤️❤️ #hydrocephalusawareness #warrior

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Myahsjourney

@myahsjourney

2 months

Purple day 💜 this one is close to our hearts #wewantyoutowearpurple #epilepsyawareness #purpleday #joinusinraisingawareness

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Myahsjourney

@myahsjourney

3 months

#WorldBookDay 🙈🤣

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Myahsjourney

@myahsjourney

1 year

Still not feeling 100 percent. But we will get there 💪

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Myahsjourney

@myahsjourney

6 months

So very grateful and overwhelmed at the genuine support and concern we received over the past 6weeks on here... so many lovely messages and well wishes. - Its tough some times being a spurs supporter but definitely no other family we'd rather be part of 🥰 #spursfamily #grateful

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Myahsjourney

@myahsjourney

6 months

This year's personalised Xmas card from the Lavertys.. our beautiful Myah 😍🎅

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Myahsjourney

@myahsjourney

1 year

That smile is back ❤️😀

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Myahsjourney

@myahsjourney

3 months

Guess who - enjoying Friday night football with mummy. 🙈🤣

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Myahsjourney

@myahsjourney

3 years

Our princess ❤️😘

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Myahsjourney

@myahsjourney

3 years

Being a parent of a child with additional needs is so tough. In the space of 24 hrs we have went from a happy, dancing, cheeky little girl to one whos on her way to theatre for her 4th brain surgery as I type. Please pray my baby comes thru this well. 💔💔 - god is good 🙏

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Myahsjourney

@myahsjourney

2 months

Happy Easter everyone. From Myah 🐰🐣🥰

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Myahsjourney

@myahsjourney

2 months

PURPLE DAY 💜💜💜 Today the world raises awareness for EPILEPSY. This one is very close to our heart. Here is our family and friend's joining us to wear something purple. How lucky is our girl to have so many amazing people around her x #myahsjourney #epilepsyawareness #purpleday

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Myahsjourney

@myahsjourney

1 year

She could literally rock any look. Our beautiful girl recovering well 💖

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Myahsjourney

@myahsjourney

3 months

Why is she sitting there like she's running the class. You know, she probably is. 🙈😂

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Myahsjourney

@myahsjourney

1 year

Guess whos home (and delighted about it too) 🏡💪♥ #4daysfrombrainsurgery

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Myahsjourney

@myahsjourney

3 years

Tonight this wee woman give us the fright of our lives. After a long few hours in resuss we are now stable and stats are looking much better. #hydrocephalus #hydrowarrior #EpilepsyAwareness #seizures #mybravegirl

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Myahsjourney

@myahsjourney

9 months

Our girl is back in hospital 🥺 waiting on some scans and tests and hopefully get some answers. Keep her in your prayers that it's noting too serious 🙏

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Myahsjourney

@myahsjourney

8 months

Proudest mummy on the planet right now reading this. My beautiful wee daughter 🥰 most of us take things like walking and eating for granted but this wee woman taught me never to take anything in life for granted. She has to work so hard. Well done baby 😘😘

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Myahsjourney

@myahsjourney

1 year

Our wee woman slighty better tonight, just needs her body to rest in hospital for a while.. Some scans and tests to see why she is so poorly. Hopefully answers soon - Thankyou so much everyone for the messages and comments. ❤️❤️

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