Having spent the last 10 years as a mainly SystmOne-using GP, I've started a new job using EMIS. For all this time I had assumed they were just about as shit as each other, but WOW,
@emis_nug
you have been putting up with hell over here. EMIS is truly atrocious. Almost unusable.
So, finally the dots all join up and you can see how two apparently unrelated programmes of work unite.
GP Data for Planning and Research
feeds
Palantir Foundry
It's only *this week* that it was obvious from outside, and from public documents.
The rush to deregulate and assume the right to have patient data is unseemly and antithetical to the foundations of the medical profession.
Hippocrates would be spinning in his grave.
Imagine being the first country to completely break the most foundational rule of Medicine.
As you all know I'm not one for being overly critical of drivel. But I'm going to make an exception and challenge every inaccuracy in this (well-meaning) article. (thread)
I'm really curious as to why so much NHSx effort is channelled into AI, when we have so many other huge basic problems in NHS IT
* creaking lab messaging infrastructure
* no national clinical safety oversight
* poor data quality in GP records
* unstructured secondary care data
@haroldthimbleby
@SABiagini
Journals are a scam. Scamming academics. Scamming learners. Scamming science. They were once vital to distributing knowledge; now their only function is to impair it. They are the Blockbuster Video of science
@NHSEngland
today ran a webinar in which it was claimed that the
@PalantirTech
#Palantir
#Foundry
data platform used for the COVID-19 Data Store was "a contract awarded in open competition".
This contract had to be obtained by
@openDemocracy
through legal action.
The data in the NHS is described by
@EY_UKI
as worth £10 billion per year
.
This is the data we are emphatically NOT SELLING. No, we're giving it away.
Does anyone know how we ('we' as in: IT industry, the NHS, the human race, etc) arrived at a (seemly unanimously agreed) point where ALL projects must be done at a MUST BE DONE YESTERDAY pace that results in unhealthy levels of overwork for all concerned?
#AFAF
£1400 PER MEMBER OF NHS STAFF
If the NHS scrapped plans to spend £1.7 billion on a new Electronic Staff Record (it's not possible that software could conceivably cost that much, it is just a VIP lane for a public-private wealth transfer)
OK, I'm sorry. (I'm not) but BULL SHIT.
I'm calling 'bullshit' on the whole Consultancy scam.
@NHSX
have commissioned
@kscopehealth
to help them produce a Digital Clinical Safety Strategy.
Consultancy takes cash, then go and ask dozens of actual (unpaid) experts.
What are
@rcgp
@TheBMA
doing *nationally* about the seeming epidemic of hospitals advising patients to "Get An Expedite Letter From Your GP"?
This is wasting huge amounts of patients' and GP's time, and really doesn't actually result in anyone getting expedited.
I've kept quiet about this, but now ready to announce: I'm running a Health Developer Conference alongside the REWIRED
@DHRewired
conf - a hands-on, practical health tech conference inspired by, er, 'non-health' tech conferences. Talk is cheap - show me the code.
When the contract was published it turned out that the original contract cost was £1. One pound.
How exactly does an organisation like
@NHSEngland
think this fits with "normal procurement"?
A momentous day for me. This morning,
@DocWajidHussain
and I opened the first meeting of the
@AoMRC
's new Digital Health Group, bringing together the
#informatics
and
#tech
leads of each of the Royal Colleges. Collaboration and cooperation in
#digitalhealth
Dawn Butler - You say people are very enthusiastic to give away their NHS data... are you aware that Palantir & Faculty have links to the discredited Cambridge Analytica?
Matt Hancock - I don't think I'm aware of that, no
Who would have thought that the dull-sounding voluntary day job of Chair of the RCGP Health Informatics Group would put you on the front line of the Culture war between Medicine's "first, do no harm" and Tech's "move fast and break stuff"?
This last year has been a challenge.
If the contract itself was kept secret, it is hard to see how the contract could have been awarded in "open competition using normal procurement rules"
@drphiliplee1
Appalling: 'I normally just tell people I'm exempt' WTF!!!
Hilarious: 'All for something I don't even believe in'
Since when did not believing in something make you exempt from it's rules.
One GP, in preparation for
#AutomaticRecordAccess
, searched their 20K patient records for codes for safeguarding and domestic abuse. This turned up around 25% of records that need 'enhanced review' before they can be released.
This is the size of the problem for some practices.
Come on. We need to be a more savvy customer. We can develop these things in-house, open-source, and NHS-wide. We can own the IP. We don't need to be a source of free clinical consultancy for the health tech industry.
This whole thing needs a serious dose of transparency. Who decided that we need to embed an ethically questionable company at the centre of
@NHSX
and
@NHSEngland
Who green-lights a £1 contract, knowing this is a Drug Dealer Business Model?
Is anyone aware of any UK or international guidance for clinicians on how to handle 'Data Overload' in clinical records?
As records become more comprehensive, more connected, and more interoperable, we are surely going to hit the problem of lack of time to read EVERYTHING
Today I have resigned from:
The collapsing Faculty of Clinical Informatics
@ukfci
,
The
@rcgp
Health Informatics Group and the
@rcgp
itself,
And the
@AoMRC
Digital Health Group.
Damn, that was all very much overdue.
I've just been asked by someone at
@DHSCgovuk
to put my availability for a call in the relevant cells in a table in a Word document and reply back to the sender with it attached. 25+ ppl
I officially give up now. I'm going back to woodcraft and primitive living. There's no hope.
It's pathetic that in 2022 none of the GP supplier systems
@EMISGroup
@TPP_SystmOne
are built with modern enough tech that they have natively mobile app or even webapp access. That means no access to the digital record for GPs on home visits.
#primarycareITshambles
It's very interesting that
@NHSEngland
openly criticise
#GeneralPractice
, while remaining silent on secondary care, which is in just as bad if not a worse crisis and backlog.
Could it be because they're directly responsible for secondary care?
The unbelievable cost of
@NHSEngland
's
#FederatedDataPlatform
is looking even harder to justify now that trusts are being told they have to cut back on elective surgery because the NHS is basically out of money. That £480million for the FDP could pay for a LOT of operations.
Urgent - the Palantir NHS data deal is a huge threat to the NHS, but it still hasn’t been signed, and there are reports that the government is now wavering. This is our chance to get it dropped - sign the petition to the health minister now:
How it feels on the ground in health IT in the NHS:
Our Glorious Leaders - who could be redeveloping the inner-city brown-field wasteland of THE CRAP TECH WE ALREADY HAVE - have moved on into the happy green-field areas of
#AI
,
#BigData
,
#apps
, leaving us to fend for ourselves.
#proudness
Today I've had my 15-year old son James doing work experience with me, learning about software dev, sysadmining, and forum wrangling.. (he wants to be a dev). He's put in a solid day and we did decent work. Bodes well for the rest of the week!
Gradually I am collecting a list of the missing open NHS APIs, services, registers, standards and tools. COVID has revealed the appalling state of our critical NHS tech infrastructure. We have to fix the basics.
I'm open to contributions via PR.
The leakiness of DHSC HQ as regards CCTV footage (serious identifiable data breach) is not going to play well against the current 'trust us with your entire health data'
#gpdpr
line...
I can only conclude that the leaker, ironically, supports the extreme privacy lobby. ☺️
#ChatGPT
I am shortly to be starting in post as the Chief Clinical Information Officer of NHS England. Please write the executive summary of a Digital Transformation plan for the UK National Health Service which we can give the working title of The Baw Strategy for the NHS
#NHSIT
NHSE are open about the fact that the COVID-19 Data Store has access to "pseudonymised data" - possibly better described as
"INDIVIDUAL LEVEL, RE-IDENTIFIABLE DATA"
It's in the Privacy Notice for the C19DS:
kudos
@EinsteinsAttic
for spotting change
There is an 8 minute discrepancy between the system time on my NHS PC and the actual time.
Trying to fix it requires admin privileges (I'm not) and the last sync was in 2015. Useless.
This is just part of the outsourced, jumble-of-responsibilities shambles that is GP IT.
Please come back the sorely missed Paper Hospital XRay Form. It used to take me 20 seconds to complete you. I never had to reboot you or wait for crap computers to load Windows and Outlook (yes really)
#NoMoreTechUntilYouFixTheTechWeAlreadyHave
Do you like APIs?
Do you like The NHS?
Then you'll LOVE
NHS APIs
The API team have done am amazing job to build this discoverable, well documented API portal. Newest feature: tags for API lifecycle. 😍
Who owns the clinical risk for the ongoing failures of
#GP2GP
transfers due to 'Large Files'. And what is being done to address it?
Really? in 2022? When practically everyone streams video for entertainment -
#GP2GP
can't cope with a 'large' file. (Which will not even be large)
Feeling very honoured to have been selected as one of the UK's top 100 Open Source 'Influencers', alongside people like
@CompareSoftware
and
@edent
and many others from across UK tech. Some big companies on there! Open Source IS the future.
#openukhonours23
I've just signed the
@openDemocracy
open letter telling
@BorisJohnson
to launch an inquiry into the influence of Putin-linked money in UK politics. Please sign it too:
#Russia
The law is very clear. If
@NHSEngland
attempt to over-rule GPs on what
@EMISGroup
and
@TPP_SystmOne
do with the data, then they are taking on the role of Data Controller.
GPs are and always will be the Data Controllers for their patients data. This data is private and sensitive.
It really feels like we're in the grip of
#NHSdataFEVER
...
What's going on?
In last few weeks:
#GPDPR
- a huge change in how data that your GP saves in your personal GP record gets shared with the Government. The
#DPIA
(Data Privacy Impact Assessment) still awaited
Words like
"pseudonymisation"
"de-identification"
are used to obfuscate that this is individual level data - a full, longitudinal health record of one person.
But, from the webinar today, it's clear that this Foundry platform, which is just one of MANY data science platforms, is being quietly but deeply embedded into the day-to-day functioning of the entire English NHS.
#r4today
"he is a compulsive liar and has difficulty separating fact from fiction"
The speaker was talking about Putin, but wow, too close to home for Boris.
I agree
@smithsam
: "Biobank must tell every participant what data was shared with insurance companies and why.”
Over a 17 year period,
@uk_biobank
stated they wouldn't share data with insurance companies.
Then they shared data with insurance companies.
Sept 2023: TOTAL VINDICATION for
@DrMurphy11
who tirelessly campaigned to expose
@babylonhealth
's dangerous AI chatbot for the snake oil it was.
Sadly he was ignored by NHS leaders including the then Health Secretary, who were more interested in schmoozing with Ali Parsa.
Babylon knowingly released a dangerously flawed medical device & put the public at risk of harm.
They made false claims regarding the capability of their AI technology.
When challenged regarding safety concerns, Babylon lied.
The Truth About
@babylonhealth
👇
Someone should really tell Tim Ferris that we tried this, it was called MPfIT, cost us 12 billion, and failed.
If this is the best NHS IT leadership we can muster we're all screwed.
At
@digitalhealth2
#Rewired22
. Dr Tim Ferris, Director of Transformation
@NHSEngland
“THE one key thing that transforms care is for clinicians to be ON THE SAME INSTANCE of an EHR. Everyone seeing exactly the same data with no issues of interoperability”
Really struggling to see why suppliers in NHS/health tech seem to have totally failed to get the memo on opensource.
In the Real Tech World, we have huge OS contributions from Google, Microsoft, Netflix, Facebook, Twitter...
Health tech: "NOBODY shall see our code"
The final irony in the whole
#FederatedDataPlatform
debàcle:
Palantir's Foundry is based on Apache Spark, a FREE, OPEN SOURCE PLATFORM
NHSE are paying £500 MILLION of your taxpayer money for some free software. Yep.
If you are a health tech company of any size that's had negative experiences of integration and interoperability in the NHS, I'll publish your blog about it anonymously for you. You may not feel you can speak up for fear of repercussions. DM me
So you might be asking "why do I need to care that Palantir Foundry is now becoming the main data analytics platform for NHS England?"
The answer is in the 'Planning' bit of
#GPDPR
GP Data For Planning and Research.
National 'Planning' flows are likely to flow to Foundry
I humbly offer to NHSX or the new NHSE-TD:
The Zeroth Rule of Outsourcing Development Contracts
or
"How to ensure the kitchen fitter doesn't end up owning your kitchen"
0) we're paying you to develop it in OUR public GitHub repository, open source from the first commit.
Who in government thought it would be a good idea to confuse the entire population with this indiscriminate text message?
My parents (both 3x vaxxed) couldn't decide if this meant they needed ANOTHER dose. My dad asked me if I thought it was a scam.
I should add that I'm not saying all this to be unkind. I'm saying this because NHS IT is in a parlous state and getting worse.
Safety in NHS IT is neglected in a way that would be a national scandal in the pharma or aviation.
It won't get better unless someone speaks up.
From
@bengoldacre
Review
8. Ensure all code for data curation and analysis paid for by the state through academic funders and NHS procurement is shared openly, with appropriate technical documentation, to all data users.
👍👍👍👍👍
The reasoning was, of course, all explained away as related to the COVID crisis, and nobody was surprised when the subsequent contract extension was for £1 MILLION.
Interesting change in
@GPatHand
@babylonhealth
T&Cs today. (Yes we are watching them, of course we are)
Removed: "We provide medical advice"
Added: "We do not provide medical advice"
So this service is exactly what? Who's commissioning a service that doesn't provide a service?
If the NHS would hire senior NHS IT leaders from *within its own ranks* - instead of people from the commercial sector who later openly admit that they "didn't realise healthcare IT was actually so hard" - we might *actually* make progress.
Why is there a 'NHS IT glass ceiling'?
#Govroam
is being rolled out in our ICS patch now, a piecemeal rollout which lacks any central NHS planning. Only a mere 8 years ago when I was arguing for
#NHSWiFi
the folks at
@Jisc
told me they could have done NHS-wide
#NHSRoam
service for a few hundred grand a year.
Don't worry though because the
#HealthSecretary
is telling you that "Patients own their health data" - but he seems to be selling it. Selling something that someone else owns is generally difficult to get away with.
And just as a reminder:
The PRIMARY PURPOSE of a health record is for the direct care of that patient. That's the basis upon which the patient trusted us with the information in the first place.
#GPDPR
Secondary uses are.... well... *secondary*. NOT worth destroying trust for.
Here's the link to the webinar (it was actually called a "mini-huddle" but WHAT THE FUCK IS THAT)
Not sure if the recording (it was recorded) will be shared anywhere - if anyone finds it please do link here.
I'm part of a new, grass-roots NHS movement to bring open source to the NHS. Public Money? Then it should be Public Code. It's a coalition of the willing - read the details on the site, and see who's joined us!
We're serious and organised and delivering real tech.
@GaryMcAllister
'Digital' is not the core business of the NHS though, is it. It's a healthcare delivery organisation.
We need digital processes to be seamlessly integrated into clinical care. NOT clinical work being bent to fit around 'Digital'.
Healthcare IT is still not fit for purpose.
NHS tectonic/vulcanology update:
Just when NHSX was all settled in and progress was starting to happen... No eruptions for years... New NHSE Transformation Directorate pops up like a shiny new Icelandic archipelago
I once again apologise to the author of the article for this tirade of abuse. And of course, should any follow-up article be in the offing, I'd be more than happy to spend the half-hour or so on the phone necessary to get the fact straight. Or - talk to
@medConfidential
Someone might need to explain to whoever does the hiring at
@NHSEngland
that employing
@didoharding
(of
#talktalk
#databreach
fame) as CEO of NHSE ... while simultaneously trying to get the public to trust you with 55 million
#GPDPR
patient records is a tricky one to pull off.
Why would AI help with this? Almost all health inequality has a social or other deprivation-based cause. AI simply means some startups can get rich while nothing changes societally or in health.
The NHS AI Lab and
@HealthFdn
have awarded £1.4 million to 4 projects to address racial and ethnic health inequalities using artificial intelligence.
#NHSAILab
Are you a
#clinicianwhocodes
? I know of quite a few but I'm sure there are many more out there - we need a community where we can share ideas and learn from each other.
and request to join - put 'Clinician Who Codes' in joining info and I'll add you.
.
@NHSHackDay
are there any plans to bring back
#NHSHD
for 2022? I'm happy to help organise!
Next year will be the 10 year anniversary of the first event!
NHS Hack Day helped me learn more about NHS tech and was the foundation of many firm friendships.
I'm part of two teams shortlisted for an
@openuk_uk
Software award! Not sure what our chances are like🤞
@RCPCHtweets
Digital Growth Charts
@open_health_hub
Open Health Hub forums
The
@NHSEngland
Federated Data Platform is like putting a McLaren F1 dashboard on a 1971 London bus and assuming that will make it go really fast.
Knowing how many people are waiting for care does not help you address their needs.
@AoMRC
@NHSEngland
No response at all from
@AoMRC
to my resignation. Not even a letter of acknowledgement, after 2 weeks.
If these are the leaders of our profession, it kind of explains where the profession has ended up, and why JD's are rightly striking.
Surprise retirement do for
@CompareSoftware
- the Father of the
@DHCCIO
Network, pragmatic leader who kept us amused with his awesome wit and understanding of the oft-repeated deficiencies of human interaction.
Just a few of the printable ones follow:
I would encourage clinicians to show Twitter their IT pains,, both hardware and software, today. Share photos but always redact identifiable or sensitive data.
Use the hashtag
#WhatGoodDoesNotLookLike
Tag in
@NHSX
@chat2sonia
and others
It really feels tone deaf of Gov't to push ahead with all this reform while GPs are completely inundated, and we aren't yet out of the pandemic by a long way.
Now is EXACTLY the 'time to slow down or pause for breath'
We need careers for Clinicians Who Code that aren't
* Dead-end NHS Digital snoozefest of Excel and find-a-meeting-room drudgery
* Lord High Tsar NHS England Chief Clinical Information Officer
* Endless amounts of free GP IT consultancy, 3 days a week for your Royal College
This is priceless. Don't read
@NHSX
's
#WGLL
puff piece. Read
@RoyLilley
's laser-guided takedown of it. We need more dissent like this. There's an untouchable 'Eloi' of hand-wavy pointless people taken over NHS Tech - and we Morlocks want it back.
I don't agree that an organisation of the size and budget of the NHS "was always going to need help from the private sector" - that is a Tory-era neoliberal self-fulfilling prophecy peddled by the unimaginative and clueless.
Firstly I challenge the assertion that "you can't do things without [Big Tech]"
Of course an org like the NHS can do this, it has a budget of £billions. It's just failed to even try.
Also: there are options like
@OpenSAFELY
which aren't "Big Tech" that can do this - properly
#WhatGoodDoesNotLookLike
@NHSX
@chat2sonia
Here is a keyboard.
As you can see it is wipe-able and indeed gets wiped.
Yay, infection control.
However it is not type-able.
In terms of
#marginalgains
this is the equivalent of sending Chris Froome out on a comedy clown bike.
Don't worry. I'm not. I wouldn't do that to you.
But every one of those Reports, Strategies and Plans is full of the same recycled happytalk.
#ChatGPT
is doing the best possible job of calling it out.
This could completely collapse the Bullshit Consultancy sector overnight.
Apparently "Family doctors will be able to prescribe fruit and veg" 🤣🤣🤣
#r4today
I'm awaiting the NICE Technology Appraisal first though.
It's there no aspect of UK life that
#TeamGP
is not expected to police, fix or supervise?
We did this in 2016/7. It was called
#NHSbuntu
. The NHS brand police shut us down, while
@nhscio
watched and did nothing (well actually not nothing - he negotiated with Microsoft for an Enterprise Wide Agreement, using us as leverage I suspect)
Imagine the savings if NHS and government abandoned Windows and Office.
I hope some of the savings from this are ploughed back into contributions to the FOSS projects they are using.