Ashley @ashbinks2588 Twitter profile | Pikagi

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Ashley

@ashbinks2588

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Soli Deo Gloria! TitanUp! Medical Mom

Nashville, TN

Joined June 2016

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@ashbinks2588

Ashley

3 months

After 92 days in the hospital, including 38 days on a ventilator, being ecmo alerted, 55 days in the PICU, 21 days in inpatient rehab, 2 ambulance transfers, 3 hospitals and 2 states, Landon was discharged from the hospital yesterday and we made it home last night. Landon’s

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@ashbinks2588

Ashley

3 months

Today’s Update: Landon loved playing the drums to the Oompa Loompa song during music therapy. He also practiced walking with his walker today. Depending on how things go medically we should be going home sometime this week, which doesn’t feel real. Praise God for getting him

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@ashbinks2588

Ashley

6 months

Landon’s been placed on a ventilator. Please pray and share with everyone to pray. I cannot lose my child. Please please pray.

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@ashbinks2588

Ashley

6 months

Things are really bad. They are talking about transferring him to a hospital with a last resort machine. I cannot stop shaking. Please pray for his lungs to work. I cannot lose him. I can’t. I need him back right now.

@ashbinks2588

Ashley

6 months

Landon’s been placed on a ventilator. Please pray and share with everyone to pray. I cannot lose my child. Please please pray.

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@ashbinks2588

Ashley

6 months

He’s had a really rough morning. Please pray that his oxygen saturations go up. Please

@ashbinks2588

Ashley

6 months

Landon’s been placed on a ventilator. Please pray and share with everyone to pray. I cannot lose my child. Please please pray.

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@ashbinks2588

Ashley

6 months

Tonight’s Update: He has been stable all day. Praising God for that. Because he’s been stable he is not able to be transferred to Vandy. Yesterday he was getting close to needing to be put on ecmo (heart/lung bypass) and now he’s not close to that. Praising God for that.

@ashbinks2588

Ashley

6 months

He was stable overnight. Mornings tend to be when he has trouble, so please be praying for that. Waiting to hear about the Vandy transfer today. I’ve been telling him about all of the people praying for him. We took Christmas photos the weekend before he got sick.

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@ashbinks2588

Ashley

6 months

He was stable overnight. Mornings tend to be when he has trouble, so please be praying for that. Waiting to hear about the Vandy transfer today. I’ve been telling him about all of the people praying for him. We took Christmas photos the weekend before he got sick.

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@ashbinks2588

Ashley

6 months

He’s being transferred to Vandy tomorrow afternoon. He’s become stable enough that they feel like they can wait until then. If he gets worse they will transfer him sooner. Praising God that he will be transferred and that’s he stable enough right now.

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@ashbinks2588

Ashley

5 months

He needs a miracle. I just spoke with the doctor and it is not good. Please pray, please tell everyone you know to pray. Please, I cannot lose my son. Please pray for Landon to miraculously recover and walk out of the hospital. Please God save him.

@ashbinks2588

Ashley

5 months

He’s been put on the vent and they are trying to get him stable. This wait for me to be able to go back to his room is excruciating. Please please please pray that he’s okay.

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@ashbinks2588

Ashley

6 months

It’s been one week since I tweeted this. One week of being on the ventilator. He’s making very very small improvements most days and some days taking a step back. He was stable again last night. Thank you all for praying for him and continuing to pray.

@ashbinks2588

Ashley

6 months

Landon’s been placed on a ventilator. Please pray and share with everyone to pray. I cannot lose my child. Please please pray.

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@ashbinks2588

Ashley

6 months

Morning Update: His blood pressure has lowered. Praising God for that. He had an incident at 3am with his oxygen levels but handled it the best he has, recovered without needing to be bagged. Praising God for that. Todays prayer requests:

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@ashbinks2588

Ashley

6 months

Tonight’s Prayer request is for Landon’s blood pressure to come down to a normal range. Please please pray for that to happen. Thank y’all.

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@ashbinks2588

Ashley

5 months

Update: Praising God for moving through joyful tears. God moved and the doctors called us from downstairs to tell his he was stable on the vent and his oxygen looks good. The nurse said I don’t know what happened but he finally turned the corner and is now stable on the vent.

@ashbinks2588

Ashley

5 months

He needs a miracle. I just spoke with the doctor and it is not good. Please pray, please tell everyone you know to pray. Please, I cannot lose my son. Please pray for Landon to miraculously recover and walk out of the hospital. Please God save him.

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@ashbinks2588

Ashley

6 months

Tonight’s Update: His blood pressure was high again tonight but was able to come down with meds. He’s been stable on the same vent settings. Praising God for this. I continued to blown away by the number of people praying for him and continue to tell him.

@ashbinks2588

Ashley

6 months

Morning Update: His blood pressure has lowered. Praising God for that. He had an incident at 3am with his oxygen levels but handled it the best he has, recovered without needing to be bagged. Praising God for that. Todays prayer requests:

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@ashbinks2588

Ashley

4 months

Morning Update: It’s been a busy morning. Landon had PT/OT and they helped him stand while he held onto a walker 3 times. And he got to leave his room for the first time in almost 2 months 🥹 He gets a 4 hour break from the negative pressure machine today.

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@ashbinks2588

Ashley

4 months

Tonight’s Update: Landon had a fantastic day respiratory wise, praise God! He got to take a 2 hour break from his negative pressure, turtle shell machine, with a longer break planned tomorrow. He has had quite a few withdrawal symptoms today and they will likely

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@ashbinks2588

Ashley

5 months

Praising God that after taking the paralytic off he opened his eyes. He recognized me and his grandparents. He shook his head yes or no to answer questions. It’s been 12 days since he opened his eyes 😭. He was in some pain shortly after so he’s back to sleeping.

@ashbinks2588

Ashley

5 months

The team came by and rounded and they have a plan for the day. He’s done well since being here. It’s just a night and day difference. He’s also not as bad off as the other hospital thought, which is really great. Still a long way to go.

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@ashbinks2588

Ashley

6 months

He’s being transferred to Vandy tomorrow afternoon. He’s become stable enough that they feel like they can wait until then. If he gets worse they will transfer him sooner. Praising God that he will be transferred and that’s he stable enough right now.

@ashbinks2588

Ashley

6 months

They proned him and it seems to be helping. Vandy gave that suggestion when his doctor called for the transfer. They will call back in 2 hours to see if a bed has opened up. This memory popped up from exactly 7 years ago of Landon prone on a vent in the NICU

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@ashbinks2588

Ashley

4 months

Morning Update: Landon gets a 6 hour break from his negative pressure, turtle shell machine. Got him out of bed to sit with me. Having some withdrawal symptoms but otherwise he’s doing really well.

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@ashbinks2588

Ashley

4 months

Tonight’s Update: As Landon gets better his frustration and confusion about being in the hospital grows. It’s frustrating for me that there are not resources to help with this in the hospital. And there’s only so much I

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@ashbinks2588

Ashley

5 months

He made it and is very stable.

@ashbinks2588

Ashley

5 months

He’s on his way. He was very stable on the transport stretcher.

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@ashbinks2588

Ashley

5 months

Tonight’s Update: Landon has done really well being switched to vapotherm (a type of respiratory support) and we can see his face now 😭. His voice is slowly starting to come back, still very quiet. He slept for a lot of the day but had good awake periods today.

@ashbinks2588

Ashley

5 months

Morning Update: Landon had a good night, praise God. They are trying him on a different form of respiratory support which is a step down from the cpap. He will continue to be in the negative pressure turtle shell. He will have physical therapy

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@ashbinks2588

Ashley

5 months

Tonight’s Update: Landon had a really good day respiratory wise and they turned down his vent settings, praise God! And he had a special visitor today, Eric Garror of the Titans came to visit and drop off the cleats he wore in a game for him. @Titans #Titans

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@ashbinks2588

Ashley

5 months

Morning Update: Landon had a really good night respiratory wise, praise God! He did so great with his trials. He stayed up and partied most of the night though 🙈. Waiting for the team to round to find out the plan for the day.

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@ashbinks2588

Ashley

5 months

He’s on his way. He was very stable on the transport stretcher.

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@ashbinks2588

Ashley

5 months

Vanderbilt accepted the transfer and he’s being moved this afternoon. Praising God through happy tears right now. His life was saved once in that hospital, I know they will do it again. Please pray for a smooth transfer.

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@ashbinks2588

Ashley

4 months

Today’s Update: After 70 days in the hospital, Landon is going to inpatient rehab tomorrow at 5am. It’s hard to fully express all that we’ve been through. Forever thankful for Vanderbilt for saving Landon’s life. Soli Deo Gloria! On to the next part of the journey.

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@ashbinks2588

Ashley

4 months

Today’s Update: An ambulance has been booked for Wednesday morning for transfer to CHOA for inpatient rehab. Praise God! Won’t feel real until we are in the ambulance but I feel such a sense of relief and Landon can continue the journey to healing.

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@ashbinks2588

Ashley

4 months

Morning Update: Landon did it! God did it! He stayed off of all respiratory support last night. Praise the Lord! They are spacing his breathing treatments today and if he continues to do well he will be moved out the PICU to a regular room tomorrow and then it’s

@ashbinks2588

Ashley

4 months

Tonight’s Update: It’s a big night for Landon! The first night since November 18th without respiratory support. Please pray that he can make it tonight without the negative pressure, turtle shell machine. If he does then his team

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@ashbinks2588

Ashley

6 months

Tonight’s Prayer request is for Landon’s blood pressure to come down to a normal range. Please please pray for that to happen. Thank y’all.

@ashbinks2588

Ashley

6 months

Tonight’s Update: He has been stable all day. Praising God for that. Because he’s been stable he is not able to be transferred to Vandy. Yesterday he was getting close to needing to be put on ecmo (heart/lung bypass) and now he’s not close to that. Praising God for that.

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@ashbinks2588

Ashley

4 months

Landon had a really good day. No fever and he went outside for the first time since November 15th 🥹. Praise God for that moment! The team is estimating he will be here for 3-4 weeks but it could change depending on how he progresses.

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@ashbinks2588

Ashley

4 months

His labs are all good this morning, praise God! They believe that all of his symptoms are from withdrawl. They are going to slow his wean down. He woke up happy and fever free this morning. Thank y’all for praying. Hoping this helps him participate fully in therapy today.

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@ashbinks2588

Ashley

6 months

He’s stable again, praise God. My grandpa died in his sleep this morning. Landon loved him. My grandpa had COPD and was on oxygen, when Landon was put on oxygen Monday he told the nurses he was just like his Big Baba. He asked to FaceTime him Monday to show him and he did.

@ashbinks2588

Ashley

6 months

He’s had a really rough morning. Please pray that his oxygen saturations go up. Please

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@ashbinks2588

Ashley

6 months

Afternoon update: Praising God that he tolerated the breathing treatment that he didn’t tolerate Thursday. He’s still stable with no changes. And the Titans won!

@ashbinks2588

Ashley

6 months

Morning update: He was stable overnight and his blood pressure back to the normal range. They were able to lower one setting on the vent. Today’s plan is to start back a breathing treatment that he did not tolerate before to get junk out of his lungs.

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@ashbinks2588

Ashley

4 months

Tonight’s Update: Landon has done really well on cpap. He’s also been awake all day today. It seems like he just needs things to be taken slower as he gains his strength back. His nurse brought him a Happy New Year hat and we was excited to put it on.

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@ashbinks2588

Ashley

4 months

Afternoon Update: Landon’s continuing to have oxygen issues. He’s been put back on cpap. He’s not happy that he has a mask back on his nose and I’m a mess. I just want for us to be able to go home.

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@ashbinks2588

Ashley

4 months

1st down chant even in the hospital with his @KingHenry_2 blanket. First @Titans game he’s watched since November 12th, gotta be why they are winning lol. #Titans

@ashbinks2588

Ashley

4 months

Landon just saw on tv that the @Titans game is here and he cried because he can’t go 🥹

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@ashbinks2588

Ashley

4 months

Tonight’s Update: Landon has been moved out of the PICU after 55 days! It’s been an emotional day. There were a few times where I didn’t think we would make it here. It’s so much quieter up here. No updates on when he will be transferred to CHOA but

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@ashbinks2588

Ashley

4 months

Morning Update: He’s officially on the list to move out of the PICU to a regular room today! Having some withdrawals symptoms again this morning but the team is working on it. Praying a bed opens in Atlanta soon.

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@ashbinks2588

Ashley

5 months

He’s continued to have a great day. They took him off the paralytic (he was on for 36hrs because they had to prone him). He’s opened his eyes and moved his arms, still sleepy and sedated. Breathing over the vent. Doing fantastic on the vent settings they lowered

@ashbinks2588

Ashley

5 months

Morning Update: He had a really good night, praise the Lord. They are lowering vent settings today. They are still stumped as to what happened Monday night/morning. They think it might have been a mucous plug that became dislodged.

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@ashbinks2588

Ashley

5 months

Update: They are taking Landon off now. I have ti leave the room while they do it. They will make sure he’s okay on the bipap before I can go back up. Please pray he can tolerate bipap. The next 48hrs will be the most criticial risk to be put back on.

@ashbinks2588

Ashley

5 months

Update: PT is coming this morning to get him moving again. They will do another vent trial and then make a decision at 3pm of whether to take him off the vent today or not.

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@ashbinks2588

Ashley

6 months

He’s continuing to have a rough morning. I’m also starting to not do well. Please please continue to pray for him.

@ashbinks2588

Ashley

6 months

Morning Update: He’s still stable but had a rough night. He didn’t tolerate the breathing treatment that he tolerated earlier in the day. They had to increase his oxygen to stabilize him again. The doctor reminded me that it’s one step forward and two steps backwards

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@ashbinks2588

Ashley

5 months

Vanderbilt accepted the transfer and he’s being moved this afternoon. Praising God through happy tears right now. His life was saved once in that hospital, I know they will do it again. Please pray for a smooth transfer.

@ashbinks2588

Ashley

5 months

He needs to be transferred to another hospital now. Please pray the other hospital will accept the transfer. He has to be transferred somewhere

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@ashbinks2588

Ashley

5 months

Tonight’s Update: He’s off of the vent, praise God! We are cautiously optimistic with how he’s doing. I’m trying not to get too excited as the first 2 times he came off the vent he had to go back on. He’s on bipap now, which is a noninvasive ventilator, it’s a mask that goes

@ashbinks2588

Ashley

5 months

The team is planning on trying to take him off the vent this afternoon. Things can change though. Please pray that if they take him off the vent that it’s successful and that he can stay off of it. This will be his 3rd try.

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@ashbinks2588

Ashley

6 months

Waiting to see if Vanderbilt will take him. Please pray they have a bed open and that they will take him.

@ashbinks2588

Ashley

6 months

Things are really bad. They are talking about transferring him to a hospital with a last resort machine. I cannot stop shaking. Please pray for his lungs to work. I cannot lose him. I can’t. I need him back right now.

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@ashbinks2588

Ashley

5 months

Praising God again as he’s moving better air on that right side again. He’s done well today aside from agitation and delirium. The agitation makes it hard because it’s not safe with the breathing tube. Please pray his team can get it figured out.

@ashbinks2588

Ashley

5 months

Tonight’s Update: They don’t hear as much air moving in the right side as this morning and it’s reflecting in his oxygen saturations. The right lung had problems deflating yesterday. Please pray specifically for that right lung to stay open and heal.

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@ashbinks2588

Ashley

5 months

He’s having a very rough time please please please pray now.

@ashbinks2588

Ashley

5 months

Please continue to pray for him as he’s taken a step back tonight. They had increase vent settings again. He won’t be taken off the vent in the next few days now. The doctors think they just asked him to do too much today and he showed he’s not ready.

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@ashbinks2588

Ashley

4 months

Morning Update: Landon and Squid are best friends now. He had PT/OT early this morning and he did so great. He played fetch with Squid and they held him up so he could put weight on his legs. They also weaned his high flow oxygen again today. Praising God for a great morning.

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@ashbinks2588

Ashley

4 months

Tonight’s Update: Landon had a really good day, praise God! It feels like we are really moving in the right direction. He did so great with the lowering of his high flow today while awake. He also got a visit from Squid the hospital therapy dog.

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@ashbinks2588

Ashley

5 months

I feel such a sense of relief and calm being here. They’ve already ran different tests here. They said the upper 3/4 of his lungs look sick but okay but the lower lobes are bad. Please pray for those lower lobes, especially the right one to be fully healed.

@ashbinks2588

Ashley

5 months

He made it and is very stable.

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Ashley

4 months

Tonight’s Update: Landon did excellent with his break today and should get a longer one tomorrow as he works to get off of the negative pressure, turtle shell machine. Hoping on Monday to discuss plans more and get a timeline on next steps. Thank y’all so much for praying.

@ashbinks2588

Ashley

4 months

Morning Update: Landon gets a 6 hour break from his negative pressure, turtle shell machine. Got him out of bed to sit with me. Having some withdrawal symptoms but otherwise he’s doing really well.

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@ashbinks2588

Ashley

5 months

Landon just threw a football to my dad on a vent sitting in his bed 😭. Praising God for that! We all really needed that today. Landon’s favorite thing to do is to throw a football.

@ashbinks2588

Ashley

5 months

Morning Update: Landon had a stable night on the vent and they were able to lower a few settings. He sat in a chair in his bed already this morning. The doctors have a few ideas on what to try next.

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@ashbinks2588

Ashley

6 months

Morning update: He was stable overnight and his blood pressure back to the normal range. They were able to lower one setting on the vent. Today’s plan is to start back a breathing treatment that he did not tolerate before to get junk out of his lungs.

@ashbinks2588

Ashley

6 months

Tonight’s Update: His blood pressure was high again tonight but was able to come down with meds. He’s been stable on the same vent settings. Praising God for this. I continued to blown away by the number of people praying for him and continue to tell him.

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@ashbinks2588

Ashley

4 months

Tonight’s Update: Landon had a really good day, praise God! It feels like we are really moving in the right direction. He did so great with the lowering of his high flow today while awake. He also got a visit from Squid the hospital therapy dog.

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@ashbinks2588

Ashley

4 months

Morning Update: Landon continues to do well. The plan is to continue him on cpap at night and try and lower his high flow today. He has a new team of doctors today (they switch out weekly) and I feel good about their plan.

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@ashbinks2588

Ashley

5 months

Tonight’s Update: Landon had a really good day. He sat in his chair in his bed, threw a football, answered questions by shaking his head yes or no. And has done great on his vent settings. His nurses are working hard at keeping him awake during the day and moving and

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@ashbinks2588

Ashley

5 months

Landon just threw a football to my dad on a vent sitting in his bed 😭. Praising God for that! We all really needed that today. Landon’s favorite thing to do is to throw a football.

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@ashbinks2588

Ashley

5 months

Morning Update: He had a really good night, praise God! They were able to start weaning him for the sedation and pain meds by using another med to keep him comfortable. The plan is to take him off the ventilator sometime this afternoon.

@ashbinks2588

Ashley

5 months

Tonight’s Update: He did well with his first vent trial. Praising God for that! Now he just has to tolerate coming off sedation and the other meds in order to come off the ventilator tomorrow. Ways to pray:

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@ashbinks2588

Ashley

6 months

Staying stable. I’m watching the Vandy/Tennessee game on my phone right next to his bed and I have the volume going through the speaker in his bed so he can listen. Landon likes both Vandy and Tennessee #AnchorDown #GBO

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@ashbinks2588

Ashley

6 months

Thank you to everyone who is praying for Landon. It means so much to me. I’ve been reading through the prayers throughout the day and it’s been so encouraging. I haven’t slept in days and am going to try to tonight as he’s stable on the ventilator.

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@ashbinks2588

Ashley

5 months

Morning Update: Landon had a really good night, praise God and the best of all I asked his team if we are in a place where I can breathe and they laughed and said yes, yes you can 😭 I know from the last 6+ weeks that things can change in the blink of an eye but this is

@ashbinks2588

Ashley

5 months

Tonight’s Update: He’s off of the vent, praise God! We are cautiously optimistic with how he’s doing. I’m trying not to get too excited as the first 2 times he came off the vent he had to go back on. He’s on bipap now, which is a noninvasive ventilator, it’s a mask that goes

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@ashbinks2588

Ashley

5 months

Tonight’s Update: Merry Christmas! He breathed on his own for 9 hours on the vent trial before getting too tired and needing to come out. His doctor explained that it’s actually harder to breathe on your own while on the vent versus off of it because you have

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@ashbinks2588

Ashley

5 months

Afternoon Update: Poor guy is having some withdrawal symptoms right now. Lots of coughing fits and secretions too. Please pray for the withdrawal symptoms to go away and for the secretions and coughing fits, his oxygen need has had to increase a little due to it.

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@ashbinks2588

Ashley

4 months

Today’s Update: My parents brought Landon snow up to play with last night. He loved it. Don’t have a date to be transferred to rehab yet but they are working on making sure he gets his treatments down there. He has PT/OT once a day in the hospital here.

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@ashbinks2588

Ashley

4 months

Today’s Update: Back in the room with the great snow view. This time with OT playing with his Star Wars toys and putty. His doctor made the connection today that he’s been sleeping a lot more in correlation with coming off of the

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Ashley

5 months

Morning Update: He had a really rough night. Please please continue to pray. Pray that his lungs would be healed and that he can come off the ventilator successfully as soon as possible. Please I need to hear his voice, I miss him so much.

@ashbinks2588

Ashley

6 months

Tonight’s Update: He’s slightly better than yesterday. His bowels are working. Trying to focus on the positives, no fever, normal blood pressure, normal heart rate and his X-ray looks the same as yesterday. It’s just taking so long.

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Ashley

5 months

Morning Update: Landon had a really good night and is having a good day. Praising God for that. He did some vent trials last night and will do more today. He did PT/OT today, they got him sitting on the edge of his bed and we opened a Christmas gift together.

@ashbinks2588

Ashley

5 months

Tonight’s Update: Merry Christmas! He breathed on his own for 9 hours on the vent trial before getting too tired and needing to come out. His doctor explained that it’s actually harder to breathe on your own while on the vent versus off of it because you have

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Ashley

5 months

I asked Landon this morning if he wanted to watch the @Titans game today and he shook his head yes and pointed to the TV. Miss being at the stadium today but so glad he’s awake to watch from his hospital bed. #titans

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@ashbinks2588

Ashley

5 months

Morning Update: He didn’t tolerate coming completely off the nitric oxide. They’ve got a plan to try again today. And they will also work on keeping him comfortable while he’s awake.

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Ashley

4 months

Update: Squid is back in the hospital today. Landon loved having in his bed and then he played fetch with him. Landon continues to do well. He’s now off of the negative pressure machine while he’s awake. He also had PT/OT today and worked on standing with therapist help.

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@ashbinks2588

Ashley

4 months

Tonight’s Update: Landon did so great with his 10 hour break from his negative pressure machine today. And he enjoyed the Titans win today! Hoping for a timeline tomorrow and plan for weaning and when we might be transferred for inpatient rehab.

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Ashley

5 months

Please pray for wisdom for his team of doctors. They don’t know yet what’s going on and why he went downhill like he did and they don’t know what to do. It is incredibly scary. Waiting for the team to round and hoping they will have answers.

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Ashley

5 months

He’s having a very rough time please please please pray now.

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Ashley

5 months

Morning Update: Waiting for his team to round but I read his X-ray report and the words significantly improved atelectasis. This is huge for him. The first improvement like this that we’ve seen on the X-ray. Praise God!!

@ashbinks2588

Ashley

5 months

Tonight’s Update: Landon had a really good day, praise God. He’s completely off of one sedation medicine. The team really believes strength is his biggest issue right now. His doctor said they are putting him through @Titans training camp to help him now.

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Ashley

5 months

He’s gotten worse again. His right lung again. I don’t even k know what to say anymore except to please please pray that his right lung would pop back open, stay open and that would heal enough so that he can come off the vent. This a nightmare and I just want

@ashbinks2588

Ashley

5 months

Update: He’s not coming off the vent today. He’s having issues with secretions. He’s more awake today than he has been since he’s been on the vent and it’s causing fluid to shift and secretions to move and it’s making it harder for him to oxygenate. The

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Ashley

5 months

Tonight’s Update: He did well with his first vent trial. Praising God for that! Now he just has to tolerate coming off sedation and the other meds in order to come off the ventilator tomorrow. Ways to pray:

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@ashbinks2588

Ashley

5 months

Afternoon update: They are going to try vent trials soon in hopes to take him off the vent tomorrow. He also has to be weaned off certain meds to get off the vent. He has to pass the trial and tolerate the wean of the meds in order to come off the vent.

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Ashley

6 months

Afternoon update: He’s stable. It’s hard to see the ups and downs. It’s hard to see his oxygen saturations go down and the monitor alarm. It’s hard to see adjustments on the vent up and down. Even with the doctor saying to expect ups and downs it’s hard.

@ashbinks2588

Ashley

6 months

He’s continuing to have a rough morning. I’m also starting to not do well. Please please continue to pray for him.

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Ashley

6 months

Night Update: He’s still stable on the vent, praising God for that. There are some things creeping up as just effects of being so sick, like talks of needing a blood transfusion. They will try to lower a vent setting again tomorrow if he does well overnight.

@ashbinks2588

Ashley

6 months

Afternoon update: Praising God that he tolerated the breathing treatment that he didn’t tolerate Thursday. He’s still stable with no changes. And the Titans won!

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Ashley

4 months

One of the residents that was on his team while he was on the ventilator stopped by and was so shocked at how well he’s doing and she started to cry 🥹.

@ashbinks2588

Ashley

4 months

Morning Update: Landon and Squid are best friends now. He had PT/OT early this morning and he did so great. He played fetch with Squid and they held him up so he could put weight on his legs. They also weaned his high flow oxygen again today. Praising God for a great morning.

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Ashley

5 months

Morning Update: He had a really good night, praise the Lord. They are lowering vent settings today. They are still stumped as to what happened Monday night/morning. They think it might have been a mucous plug that became dislodged.

@ashbinks2588

Ashley

5 months

Tonight’s Update: He’s been stable all day and they’ve been able to turn down the oxygen on the vent. No one knows why he had issues last night and this morning. Ways to pray:

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Ashley

4 months

Landon’s day was made when his friend Eric Garror of the @Titans came by to visit him. Landon took him to the playroom and they played video games, he took him to meet his friend (another patient) and threw football with him. #Titans

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@ashbinks2588

Ashley

4 months

Today’s Update: My parents brought Landon snow up to play with last night. He loved it. Don’t have a date to be transferred to rehab yet but they are working on making sure he gets his treatments down there. He has PT/OT once a day in the hospital here.

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Ashley

4 months

Tonight’s Update: Landon did so great with his 10 hour break from his negative pressure machine today. And he enjoyed the Titans win today! Hoping for a timeline tomorrow and plan for weaning and when we might be transferred for inpatient rehab.

@ashbinks2588

Ashley

4 months

1st down chant even in the hospital with his @KingHenry_2 blanket. First @Titans game he’s watched since November 12th, gotta be why they are winning lol. #Titans

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Ashley

5 months

He had a really good night, praise God! They lowered his vent settings again this morning. Talking about taking him off the vent again in the next day or two. The same thing happened Monday and then he backslid but hoping it’s all forward progress now.

@ashbinks2588

Ashley

5 months

He’s continued to have a great day. They took him off the paralytic (he was on for 36hrs because they had to prone him). He’s opened his eyes and moved his arms, still sleepy and sedated. Breathing over the vent. Doing fantastic on the vent settings they lowered

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Ashley

5 months

Tonight’s Update: He’s on higher vent settings than last night but he’s done really well on them. They’ve started to wean his nitric oxide and they might be able to get him off of it tonight. Praising God for that. Ways to pray:

@ashbinks2588

Ashley

5 months

The resident mentioned that they rounded on him first today because he’s their most critical patient. Making it mean even more knowing he’s able to open his eyes and shake his head yes or no while being so critical.

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Ashley

5 months

Tonight’s Update: It’s been a quiet day and that’s a good thing. They turned down his vent settings and he’s done great. He’s only been awake for brief periods but seems way less delirious than he did yesterday. They switched up a med.

@ashbinks2588

Ashley

5 months

Morning Update: Continuing to praise God that he’s stable on the vent. They were able to wean done some of the settings today. I’m trying not to be fearful but he did so well before they took him off the vent only to have to be put back on.

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Ashley

4 months

Morning Update: Landon had a really great night on cpap, praise God. The team is going to try him again on the high flow oxygen but this time just when he’s awake, moving slowly. And then slowly working on his tube feedings.

@ashbinks2588

Ashley

4 months

Tonight’s Update: Landon has done really well on cpap. He’s also been awake all day today. It seems like he just needs things to be taken slower as he gains his strength back. His nurse brought him a Happy New Year hat and we was excited to put it on.

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Ashley

5 months

Tonight’s Update: Landon’s had a really good day respiratory wise. He’s really hoarse from the breathing tube and all he wants to do is talk and he tries so hard but we can’t hear him/understand what he’s trying to say, which is leading to him being frustrated.

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Ashley

5 months

Morning Update: Landon had a really good night, praise God and the best of all I asked his team if we are in a place where I can breathe and they laughed and said yes, yes you can 😭 I know from the last 6+ weeks that things can change in the blink of an eye but this is

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Ashley

5 months

Tonight’s Update: They don’t hear as much air moving in the right side as this morning and it’s reflecting in his oxygen saturations. The right lung had problems deflating yesterday. Please pray specifically for that right lung to stay open and heal.

@ashbinks2588

Ashley

5 months

The doctors said he’s in a much better place then last night. Still has very sick lungs, still on the vent but stable on it. They won’t do too much today but let him rest after such a hard day yesterday.

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Ashley

6 months

Tonight’s Update: No changes from the previous update. Waiting for his bowels to start moving. Doctor is working on it, will just take some time. Once that happens they will start to lower the paralytic. Praising God his lungs are looking better with each new X-ray.

@ashbinks2588

Ashley

6 months

Update: Still praying he poops 🙈. He’s been stable, one episode of dropping his oxygen saturations but he recovered fast. No changes until his bowels start to work.

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Ashley

4 months

We made it. Fell asleep in the ambulance.

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Ashley

4 months

On our way to Atlanta for inpatient rehab!

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Ashley

5 months

Morning Update: EEG was normal, praise God! Landon had a really good night and has had a good day so far. He is still having some withdrawal symptoms but they haven’t been too bad. The best part is I asked him for a hug and he put his arm out for me to hug him 😭

@ashbinks2588

Ashley

5 months

Tonight’s Update: Landon had another really good day respiratory wise, praise God! He did more vent trials where he breathes on his own and the vent will breathe for him if need be. He did excellent in every trial. He sat in the chair in his bed today and did

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Ashley

5 months

Tonight’s Update: He cannot stay comfortable at all. They have tried med after med and nothing is working. Please pray they can get something figured out for tonight. It has been a very long day of trying to soothe him. Praise report:

@ashbinks2588

Ashley

5 months

Morning Update: He didn’t tolerate coming completely off the nitric oxide. They’ve got a plan to try again today. And they will also work on keeping him comfortable while he’s awake.

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Ashley

5 months

Tonight’s Update: He tolerated the vent wean again, praise God! They should lower it again tomorrow. He’s getting so close to vent trials which he has to pass before being taken off the vent. It’s truly remarkable his turn around since he was transferred.

@ashbinks2588

Ashley

5 months

Morning Update: They lowered his vent settings again this morning, praising God for that. He’s been more comfortable this morning than he has been. They do think he has ICU delirium.

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Ashley

5 months

The team is planning on trying to take him off the vent this afternoon. Things can change though. Please pray that if they take him off the vent that it’s successful and that he can stay off of it. This will be his 3rd try.

@ashbinks2588

Ashley

5 months

Morning Update: Landon had a really good night respiratory wise. Waiting for his team to round to discuss todays plan. Please pray for wisdom for the team and that when they do decide to take him off the vent that he can stay off of it this time. Thanks

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Ashley

4 months

Morning Update: Landon has continued to do well. They are going to make some changes at night to his respiratory support. Please pray that he does well with those. He had PT/OT this morning and a visit with Squid.

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Ashley

4 months

Tonight’s Update: Landon had another great day and has down excellent off of the negative pressure machine and work hard in PT/OT. I’ve asked to have a care conference which is a meeting between all of his doctors, specialists, therapist and case

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Ashley

5 months

Tonight’s Update: Landon had a good day. He got to sit in a chair in his bed for the first time today. He sat in it twice. He also took a field trip down to get a CT scan done. They lowered one of his vent settings tonight.

@ashbinks2588

Ashley

5 months

Morning Update: He had a better night and morning. Still up on vent settings but not nearly as high. They think he had a reaction to his breathing treatments as every time he had issues yesterday it was right after those treatments.

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Ashley

5 months

Morning Update: Praising God that’s he’s still stable on the vent. He’s going to have a scope done today and there’s talks of being taken off the vent in the next couple of days. Ways to pray:

@ashbinks2588

Ashley

5 months

Tonight’s Update: It’s been a quiet day and that’s a good thing. He’s only waken a few times from sedation and when he did he was very agitated and that’s great. He’s also done well on the vent. He will have a new team of doctors tomorrow morning.

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Ashley

5 months

Update: He’s off the vent but his airway is very very swollen. There is no way for them to know that before. The breathing tube that was put in was too big and caused the swelling. He’s on bipap now and they are trying everything they can to keep him from going back on the vent

@ashbinks2588

Ashley

5 months

Morning Update: He had a really good night, praise God! They were able to start weaning him for the sedation and pain meds by using another med to keep him comfortable. The plan is to take him off the ventilator sometime this afternoon.

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Ashley

5 months

Morning Update: Continuing to praise God that he’s stable on the vent. They were able to wean done some of the settings today. I’m trying not to be fearful but he did so well before they took him off the vent only to have to be put back on.

@ashbinks2588

Ashley

5 months

Praising God again as he’s moving better air on that right side again. He’s done well today aside from agitation and delirium. The agitation makes it hard because it’s not safe with the breathing tube. Please pray his team can get it figured out.

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Ashley

6 months

He’s continued to remain stable. I was able to take a nap this afternoon and feel a little better. It’s been 1 week since he’s been the pediatric ICU and tomorrow will be 1 week since he’s been on the ventilator.

@ashbinks2588

Ashley

6 months

Afternoon update: He’s stable. It’s hard to see the ups and downs. It’s hard to see his oxygen saturations go down and the monitor alarm. It’s hard to see adjustments on the vent up and down. Even with the doctor saying to expect ups and downs it’s hard.

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Ashley

5 months

Morning Update: Landon had a good night, praise God. They are trying him on a different form of respiratory support which is a step down from the cpap. He will continue to be in the negative pressure turtle shell. He will have physical therapy

@ashbinks2588

Ashley

5 months

Tonight’s Update: Landon’s had a really good day respiratory wise. He’s really hoarse from the breathing tube and all he wants to do is talk and he tries so hard but we can’t hear him/understand what he’s trying to say, which is leading to him being frustrated.

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Ashley

5 months

Landon’s had the best nurse the last 2 days. She got him into a little chair in his bed today. It’s the first time he’s been sat up like that and he seems to be loving it. She’s also been so great about making sure he’s not too sedated but also comfortable.

@ashbinks2588

Ashley

5 months

Morning Update: He had a better night and morning. Still up on vent settings but not nearly as high. They think he had a reaction to his breathing treatments as every time he had issues yesterday it was right after those treatments.

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Ashley

4 months

Tonight’s Update: Landon had a really good day oxygen wise on the high flow, praise God. He was really interactive this morning. He took an afternoon nap and then fell asleep early tonight.

@ashbinks2588

Ashley

4 months

Morning Update: Landon had a really great night on cpap, praise God. The team is going to try him again on the high flow oxygen but this time just when he’s awake, moving slowly. And then slowly working on his tube feedings.

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Ashley

6 months

Tonight’s Update: He’s slightly better than yesterday. His bowels are working. Trying to focus on the positives, no fever, normal blood pressure, normal heart rate and his X-ray looks the same as yesterday. It’s just taking so long.

@ashbinks2588

Ashley

6 months

Morning Update: He has a more stable night and his oxygen was able to be lowered on the vent. The doctor said this is just part of the course to have up and down days. He said he’s still slowly getting better that it will just take time.

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Ashley

5 months

Morning Update: He had a good night, praise God. They lowered his vent settings and he’s going to do vent trials today. We’ve gotten to this point so many times and have had setbacks so I’m not getting to excited but each setback hasn’t

@ashbinks2588

Ashley

5 months

Tonight’s Update: Landon had a good day. He got to sit in a chair in his bed for the first time today. He sat in it twice. He also took a field trip down to get a CT scan done. They lowered one of his vent settings tonight.

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Ashley

6 months

Tonight’s Update: His vent settings are higher than yesterday and he still hasn’t pooped. Please please pray that his bowels will work and that he can tolerate lower vent settings again.

@ashbinks2588

Ashley

6 months

Morning Update: He had some challenges last night and this morning and his vent settings have been moved up. The doctor said this is to be expected and that he is still on the right course it’s just going to take longer. He also still needs to poop.

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Ashley

5 months

Tonight’s Update: Landon had a really good day, praise God. He’s completely off of one sedation medicine. The team really believes strength is his biggest issue right now. His doctor said they are putting him through @Titans training camp to help him now.

@ashbinks2588

Ashley

5 months

Afternoon Update: They’ve been able to wean him off of more sedation because his delirium and agitation is getting better. He has a daily schedule now including sitting in his chair twice a day and also doing physical therapy.

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Ashley

4 months

On our way to Atlanta for inpatient rehab!

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Ashley

4 months

Today’s Update: After 70 days in the hospital, Landon is going to inpatient rehab tomorrow at 5am. It’s hard to fully express all that we’ve been through. Forever thankful for Vanderbilt for saving Landon’s life. Soli Deo Gloria! On to the next part of the journey.

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Ashley

6 months

Morning Update: He has a more stable night and his oxygen was able to be lowered on the vent. The doctor said this is just part of the course to have up and down days. He said he’s still slowly getting better that it will just take time.

@ashbinks2588

Ashley

6 months

Tonight’s Update: His vent settings are higher than yesterday and he still hasn’t pooped. Please please pray that his bowels will work and that he can tolerate lower vent settings again.

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Ashley

4 months

I showed Landon this photo and he gasped and said I love it 🥹

@DennisJBurnside

DJ Burnside

@DennisJBurnside

4 months

@haybay42 @ashbinks2588 @TwoToneBlueNat1 @Mr_titan5 @Indysports1812 @LadiesofTT

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Ashley

5 months

Tonight’s Update: He’s been stable all day and they’ve been able to turn down the oxygen on the vent. No one knows why he had issues last night and this morning. Ways to pray:

@ashbinks2588

Ashley

5 months

Morning Update: He’s stable on the vent again, on much higher settings than yesterday. The doctors are not sure what caused him to get worse again. They think it’s possibly a secretion issue which is what happens when they tried to take him off the vent last week.

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Ashley

4 months

His labs are all good this morning, praise God! They believe that all of his symptoms are from withdrawl. They are going to slow his wean down. He woke up happy and fever free this morning. Thank y’all for praying. Hoping this helps him participate fully in therapy today.

@ashbinks2588

Ashley

4 months

GI panel also came back negative but his blood work indicates an infection. They will get more labs in the morning. Please pray his labs would normalize and that his fever would go away.

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Ashley

6 months

Update: He’s stable on the ventilator. Keeping him sedated has been a challenge as he’s tried to wake up and take out his breathing tube. Doctor and nurses are working on his sedation levels.

@ashbinks2588

Ashley

6 months

Landon’s been placed on a ventilator. Please pray and share with everyone to pray. I cannot lose my child. Please please pray.

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Ashley

5 months

The team came by and rounded and they have a plan for the day. He’s done well since being here. It’s just a night and day difference. He’s also not as bad off as the other hospital thought, which is really great. Still a long way to go.

@ashbinks2588

Ashley

5 months

I feel such a sense of relief and calm being here. They’ve already ran different tests here. They said the upper 3/4 of his lungs look sick but okay but the lower lobes are bad. Please pray for those lower lobes, especially the right one to be fully healed.

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Ashley

5 months

Tonight’s Update: Landon had another good day, praise God! He did a vent trial for 12 hours today! He also had PT/OT where they got him up sitting on the edge of his bed with a table in front of him. He played with Star Wars figurines. He actually picked

@ashbinks2588

Ashley

5 months

Morning Update: EEG was normal, praise God! Landon had a really good night and has had a good day so far. He is still having some withdrawal symptoms but they haven’t been too bad. The best part is I asked him for a hug and he put his arm out for me to hug him 😭

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Ashley

4 months

Morning Update: He’s officially on the list to move out of the PICU to a regular room today! Having some withdrawals symptoms again this morning but the team is working on it. Praying a bed opens in Atlanta soon.

@ashbinks2588

Ashley

4 months

Tonight’s Update: Landon had a rough morning with withdrawal symptoms but started feeling better late afternoon, thankfully! The plan is to move out of the PICU sometime tomorrow to a regular room, as long as he continues to do well overnight.

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Ashley

5 months

Morning Update: He did better overnight. They tried vapotherm, a type of high flow oxygen instead of the bipap and he tolerated it better. The doctors are much more confident that he won’t need to be put back on the vent now. Praising God!

@ashbinks2588

Ashley

5 months

Tonight’s Update: He’s working hard to breathe. They are continuing to do everything they can to keep him off the vent but did tell me it’s a very real possibly that he needs it again. He did fantastic on the vent trials but that’s because the breathing tube was

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Ashley

5 months

Morning Update: It doesn’t look like he’s coming off the vent today. He’s had some drops in his oxygen in the last 2 hours. I am incredibly upset. I don’t even know what to say except to pray. Please pray for Landon. Please pray for me.

@ashbinks2588

Ashley

5 months

Tonight’s Update: Praising God that Landon has had a great day respiratory wise. He’s aced his vent trials. His agitation/delirium is bad and that has been really hard on everyone. They should be taking him off the vent tomorrow likely after the doctors finish rounds.

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Ashley

5 months

Tonight’s Update: Landon had another really good day respiratory wise, praise God! He did more vent trials where he breathes on his own and the vent will breathe for him if need be. He did excellent in every trial. He sat in the chair in his bed today and did

@ashbinks2588

Ashley

5 months

Morning Update: Landon had a really good night and is having a good day. Praising God for that. He did some vent trials last night and will do more today. He did PT/OT today, they got him sitting on the edge of his bed and we opened a Christmas gift together.

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